hello

[Guest guest]

Suzie I don't know..My husband sent it to me..He knows we have a lot of critter lovers in group..Kathy b.

Re: Hello

Love the sweaters, should be matching tho'. Who's that woman behind the doggie model? Suzie

Kathy brunow <kathy-boo@...> wrote:

Hope is the thing with feathers that perchs in your soul.. Dickerson

Kathy Brunowkathy-boo@...

Add me to your address book...

Want a signature like this?Isn't this so cool..Kathy B..

[Guest guest]

> From: Judy [mailto:judybilby@...]

> This is the second time I have tried to make the tea.

> The first time what I made was so much different from

> what I am making now and I don't know why.The first one

> the colony was very smooth and thick. The tea was very

> slimy. ... This time my colony comes out very lumpy and

> looks just awful but the tea is not thick and slimy.

> I have been drinking at leasta quart a day. Does the

> time of the year make any difference in how this comes out?

Yes Judy time of year has a significant impact on KT. In my area

(Charlottesville, Virginia), I get the best results between March and May.

The early fall isn't bad either. Winter time is good KT but a bit slower to

brew and you may have to adjust with longer cycles. Summer time the yeast

tend to be too active and the brews tend to sour quickly. This tends to be

true even though the ferment may sit in a well controlled temperature area

of your home.

As you become experienced with the factors that influence fermentation you

naturally start to adjust. Read the trouble shooting site to learn how to

compensate. (http://w3.trib.com/~kombu/KTBalance.shtml)

> Also I have been making it very different from your recipe.

> I have just been making sun tea and then adding the colony

> and starter. The next batch will be made by your recipe.

> Can anyone shed any light on my experiences?

Sun tea is fine. Keep in mind that whether you're using city water or well

water it's best to boil the water for a few minutes even if you intend to

cool it to use for sun tea. For city water this gives it a chance to throw

off chlorine and for well water this will insure any bacteria is killed that

could affect the culture.

As for slimey tea, this indicates there was significant yeast activity which

probably caused a greater degree of bubbles in the second batch which makes

the culture lumpy and holey. The clearing of the tea occurs toward the end

of the activity when the yeast bloat or die off, sinking to the bottom.

All of this is natural and all of this can be controlled to a fair degree.

Read the link above to find out how.

- Len

[Guest guest]

> From: Judy [mailto:judybilby@...]

> This is the second time I have tried to make the tea.

> The first time what I made was so much different from

> what I am making now and I don't know why.The first one

> the colony was very smooth and thick. The tea was very

> slimy. ... This time my colony comes out very lumpy and

> looks just awful but the tea is not thick and slimy.

> I have been drinking at leasta quart a day. Does the

> time of the year make any difference in how this comes out?

Yes Judy time of year has a significant impact on KT. In my area

(Charlottesville, Virginia), I get the best results between March and May.

The early fall isn't bad either. Winter time is good KT but a bit slower to

brew and you may have to adjust with longer cycles. Summer time the yeast

tend to be too active and the brews tend to sour quickly. This tends to be

true even though the ferment may sit in a well controlled temperature area

of your home.

As you become experienced with the factors that influence fermentation you

naturally start to adjust. Read the trouble shooting site to learn how to

compensate. (http://w3.trib.com/~kombu/KTBalance.shtml)

> Also I have been making it very different from your recipe.

> I have just been making sun tea and then adding the colony

> and starter. The next batch will be made by your recipe.

> Can anyone shed any light on my experiences?

Sun tea is fine. Keep in mind that whether you're using city water or well

water it's best to boil the water for a few minutes even if you intend to

cool it to use for sun tea. For city water this gives it a chance to throw

off chlorine and for well water this will insure any bacteria is killed that

could affect the culture.

As for slimey tea, this indicates there was significant yeast activity which

probably caused a greater degree of bubbles in the second batch which makes

the culture lumpy and holey. The clearing of the tea occurs toward the end

of the activity when the yeast bloat or die off, sinking to the bottom.

All of this is natural and all of this can be controlled to a fair degree.

Read the link above to find out how.

- Len

[Guest guest]

For BFL purposes, you shouldn't change your set rep/pattern just

because you're on a machine. If you can do several sets of 20 reps it

means your weight is much too light. You're missing out on those heavy

and challenging sets of 6 and 8 along with the high-point where you

switch exercises.

It's normal for the muscles to fatigue differently when you change

exercises or change the order. That's the reason you switch things up

at least every 4 weeks. You see more dramatic results because the

muscles are doing something they're not used to.

On Apr 12, 2005 1:46 AM, Lammail <lammail2003@...> wrote:

> Well I was hoping for a little insight on the make up work I did, but since no

once corrected what I did I assume it was OK.

>

> (Friday's workout started with HIIT 10 minutes on the treadmill full speed.

Then I

> finished the upper body that I missed on Wednesdays bad day. Then on to the

lower body. Since sing the machines and not dumb bells I upped the reps to 4

sets of 20 maintaining a

> comfortable weight that did exhaust the muscles. I then finished cardio with

10 more minutes on the treadmill.)

>

Question - Have you noticed once the muscle is fatigued you can't do

as many reps? For instance I swapped up which machines first, not

doing the same muscle first each time. From what I had written down,

toward the end of the workout the last reps, I noticed I couldn't do

the same weight with the same reps. Now if I had done that exercise

FIRST I truly believe with no fatigue there would not have been a

problem. Does this make sense? Am I right to swap up which upper

body exercise I do first?

[Guest guest]

Misty hi. My name is Ursula and I have a 9 yr old daughter with CVID

(Common Variable Immune Deficiency). CVID is a combination of antibody

deficiency, IgG deficiency and/or IgA/IgM deficiency. She has received IgG

replacement since she was 2 1/2. Except for a brief year off at 4 yrs old to

retest her system. Since August she has taken the IgG by subcutaneous route

under her skin in her stomach. She does this weekly in smaller amounts.

She had a port in the beginning but lost it to infection. Plus several

central lines and PICC lines. She's done well over the last 2 years except

for 1 chest infection. She has some Endocrine and GI issues which right now

aren't being linked to her PID but who knows.

Welcome and feel free to jump in and ask any questions. Have you contacted

the Immune Deficiency Foundation for their patient/family information?

1-800-296-4433

Ursula Holleman

mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Misty hi. My name is Ursula and I have a 9 yr old daughter with CVID

(Common Variable Immune Deficiency). CVID is a combination of antibody

deficiency, IgG deficiency and/or IgA/IgM deficiency. She has received IgG

replacement since she was 2 1/2. Except for a brief year off at 4 yrs old to

retest her system. Since August she has taken the IgG by subcutaneous route

under her skin in her stomach. She does this weekly in smaller amounts.

She had a port in the beginning but lost it to infection. Plus several

central lines and PICC lines. She's done well over the last 2 years except

for 1 chest infection. She has some Endocrine and GI issues which right now

aren't being linked to her PID but who knows.

Welcome and feel free to jump in and ask any questions. Have you contacted

the Immune Deficiency Foundation for their patient/family information?

1-800-296-4433

Ursula Holleman

mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Welcome to the group, Misty!

The first few months looking for and getting the diagnosis are always hard.

Anytime you need to kick, scream, cry, stamp your feet or simply vent, this is a

great place to do it.

Do they know if Jake's condition is permanent, or is there still a chance that

it is due to a slow to mature immune system?

My son has X-linked Hyper IgM Syndrome (no IgG or IgA). He takes daily

antibiotics, allergy and asthma (though he doesn't have asthma) medications.

Prophylactic medications are pretty commonly used for the IgA deficiency as IVIG

does not replace the IgA. Sam was on IVIG from 1998 til January of this year,

when we switched to Subq method of infusion.

Do call the Immune Deficiency Foundation. They have lots of good info that will

help you, including a phone number for use by physicians of children with

primary immune deficiency. (I have a sheet of paper that lists that number, as

well as all of Sam's doctors and the various medications he is on that I take

with me on trips to ER, since they don't often run into immune deficiencies.)

If you have any specific questions, ask away. There is a wealth of information

contained in these moms. Those that learned the hard way would love to make it

easier on the " newbies " .

God bless,

Wenoka (Mom to AMY - 10, wants to be 18 / Sam - 8, Hyper IgM / Christi - 4,

attitude disorder)

Hello

Hi, I just wanted to introduce myself..my name is

Misty and I am the mother of 2 Rylee is 7 and in

perfect health and then I have Jake age 3 and he was

diagnosed with Selective Antibody Defiencey in Nov.

His IGA levels were almost nonexistent. He has been

undergoing IVIg every two weeks since Nov and in

January he had to have a Port put in. All of this is

new to me since my daughter is so healthy! I really do

not know much about his condition so if anyone could

shed some light on it for me it would be great!!

__________________________________________________

[Guest guest]

In a message dated 4/25/2005 9:49:44 PM Pacific Standard Time,

yhwhworship@... writes:

Christi - 4, attitude disorder)

Wenoka,

LOL, crack me up!! I remember my daughter at 4!! She is now 24 (almost

25) and engaged to be married!

Sandi

[Guest guest]

HI! We still are not certain wether Jake's condition is permanent or

not we are hoping not but will deal with it if it is. He is doing so

well on the IVIg. Jake has been sick since literally the day he was

born from the operating room he was taken to the nursery for an IV of

antibiotics and fluids and put under an oxygen tent..from there things

got worse. He is only 3 and he has had sinus surgery 3 times tubes in

the ears 2 times a PICC Line a Port and NUMEROUS to many to

count..hospitalizations, that have lasted a week or more at the time.

All of this is not even counting all the test he has been put through

in ton at the Medical Univ(the PH Probe was awful). We have a

wonderful Immunologist along with other Drs. So far he is responding

well to the IVIg he has only had two Sinus infections since Nov which

is great for us!! they were pretty nasty ones though. Thanks for

welcoming me and I look forward to becoming friends with all of you it

really helps to know that there is someone in the same boat as my

family and that their are people here who understand what we are going

through. Jake is a trooper though!! Thanks again!

> Welcome to the group, Misty!

>

> The first few months looking for and getting the diagnosis are

always hard. Anytime you need to kick, scream, cry, stamp your feet

or simply vent, this is a great place to do it.

>

> Do they know if Jake's condition is permanent, or is there still a

chance that it is due to a slow to mature immune system?

>

> My son has X-linked Hyper IgM Syndrome (no IgG or IgA). He takes

daily antibiotics, allergy and asthma (though he doesn't have asthma)

medications. Prophylactic medications are pretty commonly used for

the IgA deficiency as IVIG does not replace the IgA. Sam was on IVIG

from 1998 til January of this year, when we switched to Subq method of

infusion.

>

> Do call the Immune Deficiency Foundation. They have lots of good

info that will help you, including a phone number for use by

physicians of children with primary immune deficiency. (I have a

sheet of paper that lists that number, as well as all of Sam's doctors

and the various medications he is on that I take with me on trips to

ER, since they don't often run into immune deficiencies.)

>

> If you have any specific questions, ask away. There is a wealth of

information contained in these moms. Those that learned the hard way

would love to make it easier on the " newbies " .

>

> God bless,

>

> Wenoka (Mom to AMY - 10, wants to be 18 / Sam - 8, Hyper IgM /

Christi - 4, attitude disorder)

>

> Hello

>

>

> Hi, I just wanted to introduce myself..my name is

> Misty and I am the mother of 2 Rylee is 7 and in

> perfect health and then I have Jake age 3 and he was

> diagnosed with Selective Antibody Defiencey in Nov.

> His IGA levels were almost nonexistent. He has been

> undergoing IVIg every two weeks since Nov and in

> January he had to have a Port put in. All of this is

> new to me since my daughter is so healthy! I really do

> not know much about his condition so if anyone could

> shed some light on it for me it would be great!!

>

> __________________________________________________

>

[Guest guest]

Hi Misty!!

Welcome to the Group. THere is a GREAT wealth of knowledge here.

All of th parent's here are very supportive!!

This is . Mom to Blake (we met at teh clinic on Friday). Hopie

Jake is having a great week. It was nice to meet you & hear your

story!!!

We can sympathize with you as far as the testing, Ph Probe & finding

out what is actually going on with your little one. Blake is a very

complicated boy with a medical book all of his own(seems like).

Although he is completely homebound, he is a very bright child. He

has his Aspie moments & then again you would never guess he has

the " issues " he has to deal with on a daily basis.

(mom to Blake, 13....CVID with Complete T-Cell

Dysfunction...15Grams IVIG every 2 weeks, Asthma, GERD, Asperger's

Syndrome(Autism), ADHD, Sensory Motor Skills Delays, A rare Blood

clotting disorder, Loves to read......Hates Math....thinks he is 21

yrs. old!!!!)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Welcome to the group, Misty!

> >

> > The first few months looking for and getting the diagnosis are

> always hard. Anytime you need to kick, scream, cry, stamp your feet

> or simply vent, this is a great place to do it.

> >

> > Do they know if Jake's condition is permanent, or is there still a

> chance that it is due to a slow to mature immune system?

> >

> > My son has X-linked Hyper IgM Syndrome (no IgG or IgA). He takes

> daily antibiotics, allergy and asthma (though he doesn't have

asthma)

> medications. Prophylactic medications are pretty commonly used for

> the IgA deficiency as IVIG does not replace the IgA. Sam was on

IVIG

> from 1998 til January of this year, when we switched to Subq method

of

> infusion.

> >

> > Do call the Immune Deficiency Foundation. They have lots of good

> info that will help you, including a phone number for use by

> physicians of children with primary immune deficiency. (I have a

> sheet of paper that lists that number, as well as all of Sam's

doctors

> and the various medications he is on that I take with me on trips to

> ER, since they don't often run into immune deficiencies.)

> >

> > If you have any specific questions, ask away. There is a wealth

of

> information contained in these moms. Those that learned the hard

way

> would love to make it easier on the " newbies " .

> >

> > God bless,

> >

> > Wenoka (Mom to AMY - 10, wants to be 18 / Sam - 8, Hyper IgM /

> Christi - 4, attitude disorder)

> >

> > Hello

> >

> >

> > Hi, I just wanted to introduce myself..my name is

> > Misty and I am the mother of 2 Rylee is 7 and in

> > perfect health and then I have Jake age 3 and he was

> > diagnosed with Selective Antibody Defiencey in Nov.

> > His IGA levels were almost nonexistent. He has been

> > undergoing IVIg every two weeks since Nov and in

> > January he had to have a Port put in. All of this is

> > new to me since my daughter is so healthy! I really do

> > not know much about his condition so if anyone could

> > shed some light on it for me it would be great!!

> >

> > __________________________________________________

> >

[Guest guest]

Hi Misty,

Welcome to the group. It's amazing the information that you can acquire here.

My name is Janet and we have an 8 year old with XLA. He was diagnosed at 5 and

he gets infusions every 4 weeks. The difference with IVIG is amazing. We are

not totally normal (you can tell when he is running out of juice that last week)

but he is soooooooo much better than he was. It sounds like your little guy has

been through a lot in his short life. Most of the moms here can relate. This

is a great place just to lurk and pick up info or vent and get ideas. We

understand.

Janet - mom to 8 years old - XLA. Also mom to some others - (the

teenage girls I chose not to claim as mine at the moment.)

Hello

>

>

> Hi, I just wanted to introduce myself..my name is

> Misty and I am the mother of 2 Rylee is 7 and in

> perfect health and then I have Jake age 3 and he was

> diagnosed with Selective Antibody Defiencey in Nov.

> His IGA levels were almost nonexistent. He has been

> undergoing IVIg every two weeks since Nov and in

> January he had to have a Port put in. All of this is

> new to me since my daughter is so healthy! I really do

> not know much about his condition so if anyone could

> shed some light on it for me it would be great!!

>

> __________________________________________________

>

[Guest guest]

Hey ! I was so glad that I met you Friday!! I think Blake was

wonderful and I am sure him and Jake will become friends as much as

they will be seeing each other!! I am so glad you refered me to this

website it is full of info!! I am still sorting through it all!! I am

sure I will see you again at the kids next infusion! Jake goes back on

the 20th at 9:00..I just love that place they are so wonderful to our

children!! I am sure I will talk to you before then!

> > > Welcome to the group, Misty!

> > >

> > > The first few months looking for and getting the diagnosis are

> > always hard. Anytime you need to kick, scream, cry, stamp your feet

> > or simply vent, this is a great place to do it.

> > >

> > > Do they know if Jake's condition is permanent, or is there still a

> > chance that it is due to a slow to mature immune system?

> > >

> > > My son has X-linked Hyper IgM Syndrome (no IgG or IgA). He takes

> > daily antibiotics, allergy and asthma (though he doesn't have

> asthma)

> > medications. Prophylactic medications are pretty commonly used for

> > the IgA deficiency as IVIG does not replace the IgA. Sam was on

> IVIG

> > from 1998 til January of this year, when we switched to Subq method

> of

> > infusion.

> > >

> > > Do call the Immune Deficiency Foundation. They have lots of good

> > info that will help you, including a phone number for use by

> > physicians of children with primary immune deficiency. (I have a

> > sheet of paper that lists that number, as well as all of Sam's

> doctors

> > and the various medications he is on that I take with me on trips to

> > ER, since they don't often run into immune deficiencies.)

> > >

> > > If you have any specific questions, ask away. There is a wealth

> of

> > information contained in these moms. Those that learned the hard

> way

> > would love to make it easier on the " newbies " .

> > >

> > > God bless,

> > >

> > > Wenoka (Mom to AMY - 10, wants to be 18 / Sam - 8, Hyper IgM /

> > Christi - 4, attitude disorder)

> > >

> > > Hello

> > >

> > >

> > > Hi, I just wanted to introduce myself..my name is

> > > Misty and I am the mother of 2 Rylee is 7 and in

> > > perfect health and then I have Jake age 3 and he was

> > > diagnosed with Selective Antibody Defiencey in Nov.

> > > His IGA levels were almost nonexistent. He has been

> > > undergoing IVIg every two weeks since Nov and in

> > > January he had to have a Port put in. All of this is

> > > new to me since my daughter is so healthy! I really do

> > > not know much about his condition so if anyone could

> > > shed some light on it for me it would be great!!

> > >

> > > __________________________________________________

> > >

[Guest guest]

Hey ! I was so glad that I met you Friday!! I think Blake was

wonderful and I am sure him and Jake will become friends as much as

they will be seeing each other!! I am so glad you refered me to this

website it is full of info!! I am still sorting through it all!! I am

sure I will see you again at the kids next infusion! Jake goes back on

the 20th at 9:00..I just love that place they are so wonderful to our

children!! I am sure I will talk to you before then!

> > > Welcome to the group, Misty!

> > >

> > > The first few months looking for and getting the diagnosis are

> > always hard. Anytime you need to kick, scream, cry, stamp your feet

> > or simply vent, this is a great place to do it.

> > >

> > > Do they know if Jake's condition is permanent, or is there still a

> > chance that it is due to a slow to mature immune system?

> > >

> > > My son has X-linked Hyper IgM Syndrome (no IgG or IgA). He takes

> > daily antibiotics, allergy and asthma (though he doesn't have

> asthma)

> > medications. Prophylactic medications are pretty commonly used for

> > the IgA deficiency as IVIG does not replace the IgA. Sam was on

> IVIG

> > from 1998 til January of this year, when we switched to Subq method

> of

> > infusion.

> > >

> > > Do call the Immune Deficiency Foundation. They have lots of good

> > info that will help you, including a phone number for use by

> > physicians of children with primary immune deficiency. (I have a

> > sheet of paper that lists that number, as well as all of Sam's

> doctors

> > and the various medications he is on that I take with me on trips to

> > ER, since they don't often run into immune deficiencies.)

> > >

> > > If you have any specific questions, ask away. There is a wealth

> of

> > information contained in these moms. Those that learned the hard

> way

> > would love to make it easier on the " newbies " .

> > >

> > > God bless,

> > >

> > > Wenoka (Mom to AMY - 10, wants to be 18 / Sam - 8, Hyper IgM /

> > Christi - 4, attitude disorder)

> > >

> > > Hello

> > >

> > >

> > > Hi, I just wanted to introduce myself..my name is

> > > Misty and I am the mother of 2 Rylee is 7 and in

> > > perfect health and then I have Jake age 3 and he was

> > > diagnosed with Selective Antibody Defiencey in Nov.

> > > His IGA levels were almost nonexistent. He has been

> > > undergoing IVIg every two weeks since Nov and in

> > > January he had to have a Port put in. All of this is

> > > new to me since my daughter is so healthy! I really do

> > > not know much about his condition so if anyone could

> > > shed some light on it for me it would be great!!

> > >

> > > __________________________________________________

> > >

[Guest guest]

In a message dated 4/26/2005 1:10:54 P.M. Eastern Daylight Time,

zanggang@... writes:

We are not totally normal (you can tell when he is running out of juice that

last week) but he is soooooooo much better than he was.

Janet, you should talk to your doctor about changing his IVIG to 3 weeks. We

are starting next infusion. The same thing was happening to Brittany.

Janet, Mom to Brittany, CVID, age 14

[Guest guest]

Dear Misty

I don't think I said hi yet, I am also new to this group and have been so

busy that I haven't said Hi to the other newbies. So Hi to all I may have

missed. My Son has a similar diagnosis, he is five. We have five children

total, two who are chronically sick. Our baby is 14 months and undergoing

testing due to infections and currently has cellulitis of his finger, not a

good sign.

Anyway these children's bodies don't make immunoglobulins, a protein that

fights off infection. For some reason or another their system has a defect

in the immune system, this is why they get ill often. IVIG replaces IGG so

they can have a better chance at staying healthy. How is Jake doing now

that he gets IVIG? He is staying

healthy and tolerating it well? Please feel free to email me personally, if

you would like I could give you my phone # if you want to talk more in depth

about this illness, what I said above is pretty basic.

ajunes@...

Another great resource is the Primary immune Deficiency foundation and they

would be helpful also with any questions you may have. wwwprimaryimmune.org

or 1-800-296-4433

Take care

Amy Junes

Hello

>

>Hi, I just wanted to introduce myself..my name is

>Misty and I am the mother of 2 Rylee is 7 and in

>perfect health and then I have Jake age 3 and he was

>diagnosed with Selective Antibody Defiencey in Nov.

>His IGA levels were almost nonexistent. He has been

>undergoing IVIg every two weeks since Nov and in

>January he had to have a Port put in. All of this is

>new to me since my daughter is so healthy! I really do

>not know much about his condition so if anyone could

>shed some light on it for me it would be great!!

>

>__________________________________________________

>

[Guest guest]

Welcome back , Sharon(moderator)

[Guest guest]

> Welcome back , Sharon(moderator)

Sharon - i don'tseem to be getting any of the e-mails thru to my

computer - any suggestions?? (i did ask for ind,. mail on the form)

Knowing my luck, they're roaming round cyber space at the moment!!!

[Guest guest]

Hola Eva!

I don't know if i qualify, but I'm mexican/belgian, living in Barcelona,

(although I'm moving

to Brussels in 2 weeks). I have a 6year old ASD girl and a 3 NT girl. My

(6) is

practically out of the spectrum, we're thrilled. Welcome to the group. Careful

with the

dmps if you have serious candida because you might not see the good things if

the yeast

gets out of control. When you are moving metals they are excreted via urine and

yes,

caca! and yeast looves good food. Also make sure you have very correct mineral

levels

because dmps not only moves mercury but zinc, and magnesium (among others).

Chelation is no " simple " therapy, be careful.

We got a big scare with dmsa with mine (she went temporarily blind) and it was

only

thanks to Owens in Sulfur stories that the blindness was temporary... So I

take

chelation VERY seriously. Talk to your Dan!

(from Barcelona/soon Brussels)

> Hello,

>

> Sorry, my english is pathetic...

>

> My name is Eva. We live in Spain. Our child (born may 2002) is in the

> ASD. We have a girl too(born sept 2000), she's NT.

> We have started with TD DMPS last week-end; we have'nt tell it our

> DAN! doctor for the moment, because she considers previously it's

> necessary to apply the diet for the candida during several month. She

> displease me, but there's not another one here:-(

>

> I would like to know if there's also someone from Spain in this group.

>

> Thanks,

>

> Eva

[Guest guest]

Eva,

Did you know there was a Spanish speaking autism group? I think it's something like autismo mercurio on the .

Eva, I think it's great you are on this list. The autism problem is finally breaking the language barriers! I lived in Germany for twenty years and noone knows of the autism mercury connection there. I hope Kirby will translate his book into German, French, Spanish and Chinese so that we get all the bases covered.

Hello

Hello,Sorry, my english is pathetic...My name is Eva. We live in Spain. Our child (born may 2002) is in the ASD. We have a girl too(born sept 2000), she's NT.We have started with TD DMPS last week-end; we have'nt tell it our DAN! doctor for the moment, because she considers previously it's necessary to apply the diet for the candida during several month. She displease me, but there's not another one here:-( I would like to know if there's also someone from Spain in this group.Thanks,Eva

[Guest guest]

I know how you feel, my kids are the same way, no cards, letters, calls now for 6 years, I feel so bad for you the only thing is to arise above it, they did wrong not you.

We give birth to them love them, go without for them and this is the reward we suffer.

Anne

[Guest guest]

These numbers are not good. What is your name?

Quickly go back through the posts ( " Messages " ) in this group regarding

adrenal tumors, their diagnosis and whether they are creating your

condition. It is sometimes the cure to take out a gland. But at least

half he time, it is not, and you end up back where you started, or

worse. The wrong meds are often prescribed, actually lengthening or

worsening the condition.

Dr Grim, our adviser, is expert on these matters, although he is a

little busy right now, you can see his comments about the necessity of

adrenal venous sampling with ACTH stimulation, low sodium diet and

spironolactone 2-week tests, and other things prior to surgery. Don't

rely on bloodwork, 24 hr urines and CT scan only. His " evolution "

piece is in the files section, along with some other stuff that has

saved many of us from common medical ignorance.

The alarming thing is most doctors are completely unaware of this well

established Dx method. I am studying the phenomenon now, and finding

what is regarded as " common medical industry opinions " which rely on

water cooler and golf course gossip rather than checking the facts.

You will also (in messages) find his list of questions about your

history, and current meds, etc. Answer those asap, and send to him at

lowerbp2@...

Dave

On Jun 19, 2005, at 11:19 AM, bayabas76 wrote:

> im glad to find you guys here...i have been diagnosed with Conn's

> syndrome by a gp last week...been having severe hypertension since

> 1996...averaging 190-240/120-140....and low potassium at 2.3....

>

> help...please....

>

[Guest guest]

Need all lab tests etc. Read our old posts for examples of what we need to be able to help.

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora

[Guest guest]

Dave as you know I prefer to have the data on our group site as all can contribute that way and learn as well.

Sounds like we have 2 newbies this week.

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora

[Guest guest]

Hi, I don't know what data you refer to. Yes, with amazingly

familiar-sounding problems.

Could you explain this reference?

Dave

On Jun 19, 2005, at 11:49 PM, lowerbp2@... wrote:

> Dave as you know I prefer to have the data on our group site as all

> can contribute that way and learn as well. 

>

> Sounds like we have 2 newbies this week. 

>

>

>

> May your pressure be low!

>

> Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

> Clinical Professor of Medicine and Epidemiology

> Director, Hypertension Diagnosis and Treatment Center

> Board Certified in Internal Medicine, Geriatrics and Hypertension

>

> Published over 220 scientific papers, book chapters and 220 abstracts

> in the area of high blood pressure epidemiology, physiology,

> endocrinology measurement, treatment and how to detect curable causes.

> Listed in Best Doctors in America

> Specializing in Difficult to Control High Blood Pressure and the

> History and Physiology of High Blood pressure in the African Diaspora

>

[Guest guest]

You had asked a pt to email me directly. I prefer working with this group.

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora