Questions

[Guest guest]

What's your favorite chocolate? My Designer Whey just ran out, and I " m

afraid to replace with something different. Stuff lasts a long time, I

don't use it every day.

Diane

At 09:19 PM 4/21/2006, you wrote:

>It's whey protein. I know that some supplement/vitamin stores carry it

>but I always buy mine online from Netrition.

>

><http://www.netrition.com/syntrax_nectar_page.html>http://www.netrition.com/syn\

trax_nectar_page.html

>

>I originally bought an 11-flavor sample pack for $15.99 from EnjoyHealth:

><http://www.enjoyhealth.com/samples.htm>http://www.enjoyhealth.com/samples.htm

>

>That's a good way to taste them all without buying a couple pounds of

>one flavor and hoping you like it.

>

>

----------

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Checked by AVG Anti-Virus.

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[Guest guest]

My favorite chocolate is EAS 100% Whey.

> What's your favorite chocolate? My Designer Whey just ran out, and I " m

> afraid to replace with something different. Stuff lasts a long time, I

> don't use it every day.

>

> Diane

[Guest guest]

recommended this on an earlier thread too and I tried it today

when my Designer Whey ran out. MUCH better than Designer Whey. It

mixes better, tastes better, and is cheaper.

Jen

> > What's your favorite chocolate? My Designer Whey just ran out,

and I " m

> > afraid to replace with something different. Stuff lasts a long

time, I

> > don't use it every day.

> >

> > Diane

>

[Guest guest]

To me, YES! He sure sounds like a good candidate.

1. Reactive additaves: I do not believe so. You can look through

the Valtrex PDR in the Files directory of this group.

2. Regression and no gains. Yes, we have had kids that have gone

though the healing-regression with little or no gains thereafter. I

think the more important question is, " Has the regression ever been

more than temporary? " And no, it hasn't. For kids that do not

respond and are going through an extended regression (beyond the six

week trial), all have reported normalizing after they stopped the

Valtrex.

In other words, a minority of folks may experience temporary

regressive looking symtpoms while on Valtrex that clears when you

stop. The main reason someone may stop is because after the trial

periord (6 weeks) they are just not seeing gains. That has been the

type of " worst case senario " reported.

3. The typical regressive-healing time is 20-40 days. If it goes

longer, most people disconinue the Valtrex and regression stops.

Some of these families have moved to Famvir or Acyclovir with better

results and some of those families have later moved back to Valtrex

for additional gains.

4. Yes

5. Yes!

- Stan

>

> I am hoping to make a decision and start antivirals very soon. I

am interested in anti-virals for my children because of visual

stims, very low Vit A despite high supplements, low muscle tone,

poor coordination, persistent gut issues, clumsy, hyper, chronic

swollen glands, oral sensory issues, No response to LDN, I was very

sick when pregnant with my son and got some small skin tags during

my pregnancy. He was born with scaring of his retina. The only

time he has great BMs is when he is on antibiotics. They both have

mild OCD issues. My son regressed socially after mild case of the

chicken pox. I am sure there are other reasons but all I can think

of at the moment. Does this sound like they would be candidates?

Can anyone help me with these questions?

>

> 1. Is there anything in Valtrex (lactose, corn, etc.) that

sensitive kids may have a problem with?

>

> 2. Has anyone ever reported or heard of regression with an

antiviral and no gains?

>

> 3. What is the longest regression anyone has heard reported on

this board. I thought I heard anywhere from 30-45 days, is that

typical?

>

> 4. Has anyone seen gut improvement, better BMs or weight gain

as a result of doing anti-virals?

>

> 5. My son has lost most of his more autistic traits (spinning,

head banging, non-responsiveness, stimming, etc.) but still appears

to have cognitive deficits. Has anyone heard of cognitive gains

being reported?

>

> Thanks for any thoughts and feedback.

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

To me, YES! He sure sounds like a good candidate.

1. Reactive additaves: I do not believe so. You can look through

the Valtrex PDR in the Files directory of this group.

2. Regression and no gains. Yes, we have had kids that have gone

though the healing-regression with little or no gains thereafter. I

think the more important question is, " Has the regression ever been

more than temporary? " And no, it hasn't. For kids that do not

respond and are going through an extended regression (beyond the six

week trial), all have reported normalizing after they stopped the

Valtrex.

In other words, a minority of folks may experience temporary

regressive looking symtpoms while on Valtrex that clears when you

stop. The main reason someone may stop is because after the trial

periord (6 weeks) they are just not seeing gains. That has been the

type of " worst case senario " reported.

3. The typical regressive-healing time is 20-40 days. If it goes

longer, most people disconinue the Valtrex and regression stops.

Some of these families have moved to Famvir or Acyclovir with better

results and some of those families have later moved back to Valtrex

for additional gains.

4. Yes

5. Yes!

- Stan

>

> I am hoping to make a decision and start antivirals very soon. I

am interested in anti-virals for my children because of visual

stims, very low Vit A despite high supplements, low muscle tone,

poor coordination, persistent gut issues, clumsy, hyper, chronic

swollen glands, oral sensory issues, No response to LDN, I was very

sick when pregnant with my son and got some small skin tags during

my pregnancy. He was born with scaring of his retina. The only

time he has great BMs is when he is on antibiotics. They both have

mild OCD issues. My son regressed socially after mild case of the

chicken pox. I am sure there are other reasons but all I can think

of at the moment. Does this sound like they would be candidates?

Can anyone help me with these questions?

>

> 1. Is there anything in Valtrex (lactose, corn, etc.) that

sensitive kids may have a problem with?

>

> 2. Has anyone ever reported or heard of regression with an

antiviral and no gains?

>

> 3. What is the longest regression anyone has heard reported on

this board. I thought I heard anywhere from 30-45 days, is that

typical?

>

> 4. Has anyone seen gut improvement, better BMs or weight gain

as a result of doing anti-virals?

>

> 5. My son has lost most of his more autistic traits (spinning,

head banging, non-responsiveness, stimming, etc.) but still appears

to have cognitive deficits. Has anyone heard of cognitive gains

being reported?

>

> Thanks for any thoughts and feedback.

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

[Guest guest]

Hi Stan!

Thanks for the fast reply! I kind of grouped both kids together.

They share most of the symptoms and a couple are more for Abi and

some are specific to Isaac. Do you have any opinion on whether we

should start with OLE/Virastop or Valtrex? I will talk with DANs in

a few weeks to see about getting an rx. Is it okay to start OLE

with natural antifungals in place or do you think it is necessary to

use diflucan (again not sure if I can get an rx). I am sure I will

continue to pepper you with endless questions until I finally take

the plunge! Thanks again!

> >

> > I am hoping to make a decision and start antivirals very soon.

I

> am interested in anti-virals for my children because of visual

> stims, very low Vit A despite high supplements, low muscle tone,

> poor coordination, persistent gut issues, clumsy, hyper, chronic

> swollen glands, oral sensory issues, No response to LDN, I was

very

> sick when pregnant with my son and got some small skin tags during

> my pregnancy. He was born with scaring of his retina. The only

> time he has great BMs is when he is on antibiotics. They both

have

> mild OCD issues. My son regressed socially after mild case of the

> chicken pox. I am sure there are other reasons but all I can

think

> of at the moment. Does this sound like they would be candidates?

> Can anyone help me with these questions?

> >

> > 1. Is there anything in Valtrex (lactose, corn, etc.) that

> sensitive kids may have a problem with?

> >

> > 2. Has anyone ever reported or heard of regression with an

> antiviral and no gains?

> >

> > 3. What is the longest regression anyone has heard reported on

> this board. I thought I heard anywhere from 30-45 days, is that

> typical?

> >

> > 4. Has anyone seen gut improvement, better BMs or weight gain

> as a result of doing anti-virals?

> >

> > 5. My son has lost most of his more autistic traits (spinning,

> head banging, non-responsiveness, stimming, etc.) but still

appears

> to have cognitive deficits. Has anyone heard of cognitive gains

> being reported?

> >

> > Thanks for any thoughts and feedback.

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US

(and

> 30+ countries) for 2¢/min or less.

> >

>

[Guest guest]

Hi Stan!

Thanks for the fast reply! I kind of grouped both kids together.

They share most of the symptoms and a couple are more for Abi and

some are specific to Isaac. Do you have any opinion on whether we

should start with OLE/Virastop or Valtrex? I will talk with DANs in

a few weeks to see about getting an rx. Is it okay to start OLE

with natural antifungals in place or do you think it is necessary to

use diflucan (again not sure if I can get an rx). I am sure I will

continue to pepper you with endless questions until I finally take

the plunge! Thanks again!

> >

> > I am hoping to make a decision and start antivirals very soon.

I

> am interested in anti-virals for my children because of visual

> stims, very low Vit A despite high supplements, low muscle tone,

> poor coordination, persistent gut issues, clumsy, hyper, chronic

> swollen glands, oral sensory issues, No response to LDN, I was

very

> sick when pregnant with my son and got some small skin tags during

> my pregnancy. He was born with scaring of his retina. The only

> time he has great BMs is when he is on antibiotics. They both

have

> mild OCD issues. My son regressed socially after mild case of the

> chicken pox. I am sure there are other reasons but all I can

think

> of at the moment. Does this sound like they would be candidates?

> Can anyone help me with these questions?

> >

> > 1. Is there anything in Valtrex (lactose, corn, etc.) that

> sensitive kids may have a problem with?

> >

> > 2. Has anyone ever reported or heard of regression with an

> antiviral and no gains?

> >

> > 3. What is the longest regression anyone has heard reported on

> this board. I thought I heard anywhere from 30-45 days, is that

> typical?

> >

> > 4. Has anyone seen gut improvement, better BMs or weight gain

> as a result of doing anti-virals?

> >

> > 5. My son has lost most of his more autistic traits (spinning,

> head banging, non-responsiveness, stimming, etc.) but still

appears

> to have cognitive deficits. Has anyone heard of cognitive gains

> being reported?

> >

> > Thanks for any thoughts and feedback.

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US

(and

> 30+ countries) for 2¢/min or less.

> >

>

[Guest guest]

> 1. Is there anything in Valtrex (lactose, corn, etc.) that

sensitive kids may have a problem with?

titanium dioxide.

I hope it is part of the blue coating that I wash off.

[Guest guest]

> 1. Is there anything in Valtrex (lactose, corn, etc.) that

sensitive kids may have a problem with?

titanium dioxide.

I hope it is part of the blue coating that I wash off.

[Guest guest]

Hi, Patti. My EP said if I got zapped, to call him. If it happened

more than once or twice, I should call 911. If you're driving---

that can get serious and some states will suspend your driving

privileges for a time. Talk to your EP or cardiologist for some

guidelines. Insist on guidelines. I'm still surprised at how little

they seem to tell patients.

Mike

Questions

>

>When you have the " zap " do u have to call 911 and get checked? Or do

>you just go about your regular business? What if i'm driving and I

>get zapped?

>

>Patti

>

>

>

>

>

>

>Please visit the Zapper homepage at

>http://www.ZapLife.org

>

[Guest guest]

> I'm still surprised at how little

> they seem to tell patients.

For the last four years all I've gotten is " good bye and good luck. " I

have had to fight tooth and nail for any information and do all my

research myself.

Lynn

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

I can't even start to list all the confrontations I've encountered. My son is

eight and some people can just be ignorant.

Sent from my BlackBerry® wireless handheld

Questions

I was wondering how you all handle others?  Telling them and such.  There have

been times that I have had parents say something to me about s behavior

and this was before his diagnosis and I get so embarrassed I have to leave

parks, parties etc.  The other day I got into an argument in a store with a

woman who yelled at because he stood in front of her cart, I called him

and he just stood, I tried to grab him and he pulled away... she went to go

around him and he moved in front of her again so she yelled come on kid move!  I

couldn't believe it.  I said come on.. he's a 4 year old and she went on and on

about how rude he was and I was.  It seems that we have scenarios like

this almost every time I take him somewhere.  So how do you all handle things

like this?  Do you explain about the Aspergers?  Which brings up another

question.  I have a cousin who's child as been diagnosed with everything from

OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses

it to get away with everything even things that clearly are not related.  So I

guess what I am asking is I am afraid to make this diagnosis define  and

thereby hindering him or giving him an excuse to cop out  how do you help them

embrace this and use it to empower them instead?

 

 

Thanks.

Jenn

 

 

The years that a woman subtracts form her age are not lost. They are added to

other women's.

~ Diane de Poitiers

[Guest guest]

Jenn; From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise. If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word. When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your

child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand. My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience. Most people think I turned out pretty

good despite the different wiring I have in my brain. Best of luck to you with your special child. Jenn Kraus <JennK949702@...> wrote: I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The

other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and

thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead? Thanks. Jenn The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers

Get your email and more, right on the new .com

[Guest guest]

In a message dated 10/22/2006 11:35:10 P.M. Eastern Daylight Time, JennK949702@... writes:

So how do you all handle things like this? Do you explain about the Aspergers?

Dear Jenn,

A gentleman in an adult Asperger's group made up some small cards explaining it. I thought it was a great idea. You could just hand a card to someone. The woman sounds like she was loaded for bear anyway, and you're child gave her a target.

And it is so trying!

with understanding,

Francine

[Guest guest]

Hi Jenn,

We had a REALLY late diagnosis at 10 and

my son is now 13.

I tell people when I need to and I do it discretely

so that he does not hear me doing it. I only tell people if his behavior may seem

abnormally rude to them. For example we were in a pet specialty store and my one

of my son’s fixations is dogs. He was looking at the books and asked the

woman if they had the “Complete Dog Book” she said they were out of

stock and my son replied “that makes no sense, you have the “Complete

Cat Book” you should really make sure you keep the Complete Dog book in

stock” ……I let that one go…..

Then he opened another book that he

thought he might like and saw the price tag. He then looked at her an said “24.99?

that is an outrageous, price what a rip off” at this point, I again

reminded him that that is rude to say out loud (and he argued loudly “well

it is a rip off mom”!)

So while he was looking at something else

I went over to the store owner and explained briefly what he had and why he was

so “blunt” and apologized. We were getting ready to leave and she

asked him how much money he had. He told her and she then offered to sell him

one or 2 other dog things she thought he would like to which he responded “no

thanks, I am more of a book guy” lol.

Maybe at your sons age someone could send

you the link to the autism cards you could hand out? Or maybe the Aspergers

cards?

-Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Jenn Kraus

Sent: Wednesday, October 18, 2006

4:19 PM

Autism and Aspergers Treatment

Subject:

Questions

I was

wondering how you all handle others? Telling them and such. There

have been times that I have had parents say something to me about s

behavior and this was before his diagnosis and I get so embarrassed I have to

leave parks, parties etc. The other day I got into an argument in a store

with a woman who yelled at because he stood in front of her cart, I

called him and he just stood, I tried to grab him and he pulled away... she

went to go around him and he moved in front of her again so she yelled come on

kid move! I couldn't believe it. I said come on.. he's a 4 year old

and she went on and on about how rude he was and I was. It seems that we

have scenarios like this almost every time I take him somewhere.

So how do you all handle things like this? Do you explain about

the Aspergers? Which brings up another question. I have a

cousin who's child as been diagnosed with everything from OCD to ADD and she

tells EVERYONE within a mile about it... he's 14 now and uses it to get away

with everything even things that clearly are not related. So I guess what

I am asking is I am afraid to make this diagnosis define and

thereby hindering him or giving him an excuse to cop out how do you

help them embrace this and use it to empower them instead?

Thanks.

Jenn

The years

that a woman subtracts form her age are not lost. They are added to other

women's.

~ Diane de Poitiers

[Guest guest]

when my daughter jessica has had out of control or inappropriate behaviors and people seem exasperated i have said "she has a disability, sorry." most people change their attitude. although, i have had a couple of incidents with people who were just plain nasty. but i figure that they are the ones that look ignorant then, lol.

<< I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?>>

I LOVE SOMEONE WITH AUTISM

[Guest guest]

I agree with Charlotte on carrying a card that says autism on it and

talks about your son's specific challenges and those of autism in

general. Even with Asperger's it's often best to put autism on the card

instead of Asperger's Syndrome because Asperger's may confuse people

since it's a word not readily known by most people (nor as easily

pronounced), while autism is a concept they're more likely to grasp. I'm

fairly well adapted in life at 26, but I also carry around a custom card

in my wallet about autism in case of a medical situation or some other

scenario comes up where I'm not able to describe it on my own to people

(ex. becoming very sensory and cognitively overloaded while a police

office is talking to me, falling unconscious, being in the hospital,

etc.). As far as what you write on the card, everyone who I talked to

about carrying autism cards in recent years advised me to use autism on

the card rather than Asperger's (as I mentioned above) and to avoid

using terms like high-functioning and spectrum, which may be confusing

to people. My card basically has some bullets about how I have autism,

that it likely won't be apparent to you when you see/talk to me, and

some of the major differences in my thinking and actions.

I think also that instead of telling people always about autism,

sometimes you can selectively disclose about just a specific challenge

your child has per the situation (ex. he has very high social anxieties,

he's very uncoordinated and has trouble with thinking about how to move

his body, he gets overwhelmed sometimes by too much noise or light,

etc.) and then just describe that specific challenge in detail. I don't

usually talk about having autism to people I don't know, but I do often

disclose a specific difficulty (ex. I'm a little bit clumsy sometimes,

I'm feeling a little bit fatigued and overwhelmed by the noise, etc.)

I've done some weird things at times like buying a sandwich and drink

(cup for filling up) at the sandwich shop, filling up the drink, and

then leaving before I remembered to go get the sandwich from the counter

(which was being made while I filled up the drink). In situations like

this I just offered up a rational explanation when I came back quickly

about how I was thinking about something else and got sidetracked. I

rarely tell people I have autism in these cases because I don't think

they have a need to know. My friends (especially close friends), on the

other hand, definitely need to know because it's an important part of

understanding me as a person and my research and advocacy efforts in the

area of autism.

I do recommend for the older kids and young adults that they learn about

having autism as they get older and if able learn how to advocate for

themselves and get in front of their disability rather than behind it. I

agree that you don't want them to start thinking it's an excuse for all

their behavior. You really want to instill in them how they're different

in a positive orientation that emphasizes how everybody has differences

and challenges and how people who have them can work to overcome them.

You don't want them learning that their disability is an excuse, and I

think that you can avoid that by getting in front of it as I say and

thinking of it as a challenge rather as a fixed reason for neglecting

responsibilities and shirking chores and duties.

I also think that the word /late/ is very relative because it's true

that 10 is late compared to 2, 3, or 4. However, it's not as late as the

teen and adult years when many people with autism spectrum disorders get

diagnosed. I didn't self-diagnose until 19 and didn't receive an

official diagnosis until I was 25. I should have been diagnosed when I

was 13 or 14 when Asperger's was added to the DSM IV, but they missed

the boat with me.

- on, adult with Asperger's Syndrome

Ph.D. Candidate in Information Sciences & Technology

The College of Information Sciences & Technology

The Pennsylvania State University | University Park, PA 16802

(www.ist.psu.edu)

Pennsylvania Regional Director & Board Member

The Autistic Self-Advocacy Network (www.autisticselfadvocacy.com)

Charlotte wrote:

>

> Hi Jenn,

>

> We had a REALLY late diagnosis at 10 and my son is now 13.

>

> I tell people when I need to and I do it discretely so that he does

> not hear me doing it. I only tell people if his behavior may seem

> abnormally rude to them. For example we were in a pet specialty store

> and my one of my son’s fixations is dogs. He was looking at the books

> and asked the woman if they had the “Complete Dog Book” she said they

> were out of stock and my son replied “that makes no sense, you have

> the “Complete Cat Book” you should really make sure you keep the

> Complete Dog book in stock” ……I let that one go…..

>

> Then he opened another book that he thought he might like and saw the

> price tag. He then looked at her an said “24.99? that is an

> outrageous, price what a rip off” at this point, I again reminded him

> that that is rude to say out loud (and he argued loudly “well it is a

> rip off mom”!)

>

> So while he was looking at something else I went over to the store

> owner and explained briefly what he had and why he was so “blunt” and

> apologized. We were getting ready to leave and she asked him how much

> money he had. He told her and she then offered to sell him one or 2

> other dog things she thought he would like to which he responded “no

> thanks, I am more of a book guy” lol.

>

> Maybe at your sons age someone could send you the link to the autism

> cards you could hand out? Or maybe the Aspergers cards?

>

> -Charlotte

>

> ------------------------------------------------------------------------

>

> *From:* Autism and Aspergers Treatment

> [mailto:Autism and Aspergers Treatment ] *On Behalf Of *Jenn Kraus

> *Sent:* Wednesday, October 18, 2006 4:19 PM

> *To:* Autism and Aspergers Treatment

> *Subject:* Questions

>

> I was wondering how you all handle others? Telling them and such.

> There have been times that I have had parents say something to me

> about s behavior and this was before his diagnosis and I get so

> embarrassed I have to leave parks, parties etc. The other day I got

> into an argument in a store with a woman who yelled at because

> he stood in front of her cart, I called him and he just stood, I tried

> to grab him and he pulled away... she went to go around him and he

> moved in front of her again so she yelled come on kid move! I couldn't

> believe it. I said come on.. he's a 4 year old and she went on and on

> about how rude he was and I was. It seems that we have scenarios like

> this almost every time I take him somewhere. So how do you all handle

> things like this? Do you explain about the Aspergers? Which brings up

> another question. I have a cousin who's child as been diagnosed with

> everything from OCD to ADD and she tells EVERYONE within a mile about

> it... he's 14 now and uses it to get away with everything even things

> that clearly are not related. So I guess what I am asking is I am

> afraid to make this diagnosis define and thereby hindering him

> or giving him an excuse to cop out how do you help them embrace this

> and use it to empower them instead?

>

> Thanks.

>

> Jenn

>

> The years that a woman subtracts form her age are not lost. They are

> added to other women's.

> ~ Diane de Poitiers

>

>

[Guest guest]

Hi Jenn! My 3 year old is autistic and I do tell people that we are

around alot. Here is why. When my 13 year old (not autistic) was

about 7 or 8, he had an autistic kid on his team. I am sorry to say

that this kid used to make me crazy. His Dad was the assistant

coach and every time the son went in a game he would " act like a

girl " flapp his arms, run slowly on his tip toes, & do a few other

things. I really figured the kid was a little feminine and just did

not want to play soccer. At the time I knew nothing about autism

(and I mean NOTHING). The kid must have been mildly autistic.

Anyway, once our Rosie entered our lives and we watched her grow and

develop and have her little problems, I started to put 2 and 2

together and now, it is so obvious that this kid from years ago was

struggling through autism. I really feel bad that I could have felt

the way I did at the time, but that is what happened. I know also

that 1/2 the parents on the team felt the same way I did.

I can say without any doubts that if we knew the boy was autistic,

even though none of us really knew what that was, we would have been

completely understanding and supportive. The Dad should have told

us. It is so easy to be lazy and just, BAM, pass judgement on kids

without considering if there are any real problems beyond their

control.

I think we all owe it to our children to make sure people around

them are as understanding as possible. They won't be understanding

if they are convinced your kid is just a spoiled brat.

Hope my logic and story helps you.

Daly

>

> I was wondering how you all handle others? Telling them and

such. There have been times that I have had parents say something

to me about s behavior and this was before his diagnosis and I

get so embarrassed I have to leave parks, parties etc. The other

day I got into an argument in a store with a woman who yelled at

because he stood in front of her cart, I called him and he

just stood, I tried to grab him and he pulled away... she went to go

around him and he moved in front of her again so she yelled come on

kid move! I couldn't believe it. I said come on.. he's a 4 year

old and she went on and on about how rude he was and I was. It

seems that we have scenarios like this almost every time I take him

somewhere. So how do you all handle things like this? Do you

explain about the Aspergers? Which brings up another question. I

have a cousin who's child as been diagnosed with everything from OCD

to ADD and she tells EVERYONE within a mile about it... he's 14 now

and uses it to get away with everything even things that clearly are

not related. So I guess what I am asking is I am afraid to make

this diagnosis define and thereby hindering him or giving him

an excuse to cop out how do you help them embrace this and use it

to empower them instead?

>

>

> Thanks.

> Jenn

>

>

> The years that a woman subtracts form her age are not lost. They

are added to other women's.

> ~ Diane de Poitiers

>

[Guest guest]

Jen,

there is a card you can print out off of one of the Autism sites that

you can hand to strangers and walk away. the card basically says my kid

has autism a neurological condition not bad parenting, and goes on about

you noticed my child's behavior and I noticed yours we are modifying

our child's behavior you modify yours, learn more about autism and gives

a web site. I just recently lost my hard drive with all my saved stuff

so I don't know what one it was. the local group I used to be in before

we moved had these cards laminated and it was supper. hope that helps

Greta

Jenn Kraus wrote:

>

> I was wondering how you all handle others? Telling them and such.

> There have been times that I have had parents say something to me

> about s behavior and this was before his diagnosis and I get so

> embarrassed I have to leave parks, parties etc. The other day I got

> into an argument in a store with a woman who yelled at because

> he stood in front of her cart, I called him and he just stood, I tried

> to grab him and he pulled away... she went to go around him and he

> moved in front of her again so she yelled come on kid move! I

> couldn't believe it. I said come on.. he's a 4 year old and she went

> on and on about how rude he was and I was. It seems that we have

> scenarios like this almost every time I take him somewhere. So how do

> you all handle things like this? Do you explain about the

> Aspergers? Which brings up another question. I have a cousin who's

> child as been diagnosed with everything from OCD to ADD and she tells

> EVERYONE within a mile about it... he's 14 now and uses it to get away

> with everything even things that clearly are not related. So I guess

> what I am asking is I am afraid to make this diagnosis define

> and thereby hindering him or giving him an excuse to cop

> out how do you help them embrace this and use it to empower them instead?

>

>

> Thanks.

> Jenn

>

>

> The years that a woman subtracts form her age are not lost. They are

> added to other women's.

> ~ Diane de Poitiers

>

[Guest guest]

carrying these cards sounds like a great idea!!

Jenn

Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller

* Questions>> I was wondering how you all handle others? Telling them and such. > There have been times that I have had parents say something to me > about s behavior and this was before his diagnosis and I get so > embarrassed I have to leave parks, parties etc. The other day I got > into an argument in a store with a woman who yelled at because > he stood in front of her cart, I called him and he just stood, I tried > to grab him and he pulled away... she went to go around him and he > moved in front of her again so she yelled come on kid move! I couldn't > believe it. I said come on.. he's a 4 year old and she went on and on > about how rude he was and I was. It seems that we have scenarios like > this almost every time I take him somewhere. So how do you all handle > things like this? Do you explain about the Aspergers? Which brings up > another question. I have a cousin who's child as been diagnosed with > everything from OCD to ADD and she tells EVERYONE within a mile about > it... he's 14 now and uses it to get away with everything even things > that clearly are not related. So I guess what I am asking is I am > afraid to make this diagnosis define and thereby hindering him > or giving him an excuse to cop out how do you help them embrace this > and use it to empower them instead?>> Thanks.>> Jenn>> The years that a woman subtracts form her age are not lost. They are > added to other women's.> ~ Diane de Poitiers>>

[Guest guest]

"My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience."

Wow how amazing your parents sound!

Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller

Re: Questions

Jenn;

From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise.

If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word.

When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family

If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand.

My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience.

Most people think I turned out pretty good despite the different wiring I have in my brain.

Best of luck to you with your special child.

Jenn Kraus <JennK949702comcast (DOT) net> wrote:

I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?

Thanks.

Jenn

The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers

Get your email and more, right on the new .com

[Guest guest]

It sure does, thanks . I will tell you one thing... if nothing else has taught me not to be judgmental!!!

Jenn

Science may have found a cure for most evils, but it has found no remedy for the worst of them all: the apathy of human beings.~ Helen Keller

Re: Questions

Hi Jenn! My 3 year old is autistic and I do tell people that we are around alot. Here is why. When my 13 year old (not autistic) was about 7 or 8, he had an autistic kid on his team. I am sorry to say that this kid used to make me crazy. His Dad was the assistant coach and every time the son went in a game he would "act like a girl" flapp his arms, run slowly on his tip toes, & do a few other things. I really figured the kid was a little feminine and just did not want to play soccer. At the time I knew nothing about autism (and I mean NOTHING). The kid must have been mildly autistic.Anyway, once our Rosie entered our lives and we watched her grow and develop and have her little problems, I started to put 2 and 2 together and now, it is so obvious that this kid from years ago was struggling through autism. I really feel bad that I could have felt the way I did at the time, but that is what happened. I know also that 1/2 the parents on the team felt the same way I did.I can say without any doubts that if we knew the boy was autistic, even though none of us really knew what that was, we would have been completely understanding and supportive. The Dad should have told us. It is so easy to be lazy and just, BAM, pass judgement on kids without considering if there are any real problems beyond their control. I think we all owe it to our children to make sure people around them are as understanding as possible. They won't be understanding if they are convinced your kid is just a spoiled brat.Hope my logic and story helps you. Daly>> I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?> > > Thanks.> Jenn> > > The years that a woman subtracts form her age are not lost. They are added to other women's.> ~ Diane de Poitiers>

[Guest guest]

What a wonderful response, thank you for sharing.

Re: Questions

Jenn;

From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise.

If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word.

When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family

If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand.

My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience.

Most people think I turned out pretty good despite the different wiring I have in my brain.

Best of luck to you with your special child.

Jenn Kraus <JennK949702comcast (DOT) net> wrote:

I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?

Thanks.

Jenn

The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers

Get your email and more, right on the new .com

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/501 - Release Date: 10/26/2006

[Guest guest]

What a wonderful response, thank you for sharing.

Re: Questions

Jenn;

From an adult Aspie, I can say first hand that I am thankful my parents never worried about other people's perception of my wierd or quirkie behavior. I was never "labeled" by them in front of their friends, neighbors or associates. I think if I had been labeled and excused by them, I would have felt there was something wrong with me. When situations occurred, they would mention them at a time when I was open to hearing their advise.

If it was me acting like your child in the store, I would probably hear my mother's reponse with sincere empathy in her voice; "I am very sorry you see us that way." If the lady felt further engagement, she would just move on her way and not say another word.

When it comes to other people's reaction, I hope you do not feel you should have to explain, or justify actions, especially in front of your child. People do not know the whole story and if they are bold or rude enough to react in public, well then they are judging without the right to do so. I hope you will not let their responses shake you and you can be as strong as my mom and dad were. Yes, at times they were embarassed, but for the most part, they were not worried about what those that were not close to them thought. it was more important to have unconditional love and patience for family

If your friends need explaining of a melt down, a quirk, or whatever wierd behavior, it is my perspective that they are not worthy of being friends if they can not unconditionally look aside at things they may not understand.

My mom and dad empowered me by not excusing my behaviors. They educated me at appropriate times with love and patience.

Most people think I turned out pretty good despite the different wiring I have in my brain.

Best of luck to you with your special child.

Jenn Kraus <JennK949702comcast (DOT) net> wrote:

I was wondering how you all handle others? Telling them and such. There have been times that I have had parents say something to me about s behavior and this was before his diagnosis and I get so embarrassed I have to leave parks, parties etc. The other day I got into an argument in a store with a woman who yelled at because he stood in front of her cart, I called him and he just stood, I tried to grab him and he pulled away... she went to go around him and he moved in front of her again so she yelled come on kid move! I couldn't believe it. I said come on.. he's a 4 year old and she went on and on about how rude he was and I was. It seems that we have scenarios like this almost every time I take him somewhere. So how do you all handle things like this? Do you explain about the Aspergers? Which brings up another question. I have a cousin who's child as been diagnosed with everything from OCD to ADD and she tells EVERYONE within a mile about it... he's 14 now and uses it to get away with everything even things that clearly are not related. So I guess what I am asking is I am afraid to make this diagnosis define and thereby hindering him or giving him an excuse to cop out how do you help them embrace this and use it to empower them instead?

Thanks.

Jenn

The years that a woman subtracts form her age are not lost. They are added to other women's.~ Diane de Poitiers

Get your email and more, right on the new .com

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.408 / Virus Database: 268.13.14/501 - Release Date: 10/26/2006

[Guest guest]

These may or may not be what you are looking for, but they might be helpful for someone else here (and they are free). http://www.dimensionsspeech.com/joinnar.shtml

Of course, you could make your own very easily as well. The Autism Society of Illinois has some, too, for purchase:http://www.autismillinois.org/index.asp?PageAction=VIEWPROD & ProdID=43

....or you could have my favorite shirt made. I don't have one;I just use the quote on a board if I am doing a training :-)

I don't look like I have autism? Well, you don't look stupid. ~~~~~~~~~~ Let's call it even.

Have a good day!Lee

>> Jenn, I think the cards are a great idea as well. I will have to see if I can find one I can print. If anyone knows what website they are on...... >