Hi everyone

[Guest guest]

Hi, - - it's so good to hear from you. I remember those days. I used to

type while Brock was nursing - - it decreased my keyboarding speed, for sure.

LOL

Melinda )

Hi everyone

I just thought I would pop in and say hello to all of my LL friends. I am

soooo busy right and never and never seem to get on the computer without a

baby

on my lap. It is hard to type that way.

Anyways, I just wanted to say hi and tell you that I think about all of you

often.

Hugs,

[Guest guest]

Hi ,

My name is Pat and I am new to LIfe Lift. It is the most wonderful

weight loss and health improvement program that I have ever come

across. Well, I am very busy right now, my friend, but I just wanted to

tell you that it is so nice to meet you.

Love always,

Pat

faytk@... wrote:

> I just thought I would pop in and say hello to all of my LL friends. I am

> soooo busy right and never and never seem to get on the computer

> without a baby

> on my lap. It is hard to type that way.

>

> Anyways, I just wanted to say hi and tell you that I think about all

> of you

> often.

>

> Hugs,

>

>

>

>

[Guest guest]

Thanks Pat, I am so glad that you are liking LL. I think it is something you

will never want to stop. And isn't our Rashelle just the best?

[Guest guest]

Hi ,

You're very welcome. I am an LLaholic already!! I most definitely WILL

do LL for the rest of my life. Yes, Rashelle certainly IS THE best.

She is THE sweetest person I have ever met over the internet!! I love

the way she cares so deeply about each of us, and what a keen interest

she has in every facet of our lives, not just where LL is concerned. I

am starting to thnink of her as my LL MOM, and that feels so wonderful!!!

Love always,

Pat

faytk@... wrote:

> Thanks Pat, I am so glad that you are liking LL. I think it is

> something you

> will never want to stop. And isn't our Rashelle just the best?

>

>

>

>

>

[Guest guest]

Gail, Please go to the doctor about the memory loss, cuz i love you. connieThe light at the end of the tunnel may be you

[Guest guest]

Gail, Please go to the doctor about the memory loss, cuz i love you. connieThe light at the end of the tunnel may be you

[Guest guest]

Ya is there a way to improve my memory.When my HCV was active I had no memory,but I find I am getting bad with the memory again and I don't think it can be old age when I am only 61.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of DebSent: May 24, 2006 8:19 PMHepatitis CSupportGroupForDummies Subject: Hi Everyone

It's time for crowd control clean up and getting back to HCV issues.

We have many members with very serious health dx's, issues and concerns and in need of our understanding and support.

We all have many serious issues to deal with in our every day lives and tend to loss it from time to time but hopefully recover from it all.

With having an open discussion type format for group we gain many benefits become even closer for support but also at times we run into problems.

Our group and members need to maintain a certain control to handle their problems receive the support needed and also not use group for lashing out or venting to a point that is destructive to the group and all members.

Stress is our enemy in any way shape or form and we don't need members taking their stresses out on each other but instead realizing what is really causing the stresses and problems in their lives to deal with and to successfully handle it.

I will not allow this group to fall apart or be used destructively in any manner by anyone.

The last thing we all need is for members to go after each other throats !!!!!

We have done to much good already for far to many people and with so many others out there still in need of HCV support and information.

Some of our serious personal issues not related to our HCV should not be vented in group or group used to lash out at other members period !!!!!!

We can not heal the world or all our members and the many other non-related HCV serious issues and problems they are facing.

That is why online support groups are themed related to a persons illnesses or problems.

Other specific types of support groups are best to handle and support some of our problems not related to our HCV while still being a member here for our HCV understanding and support.

Remember what we All have in common and what is our main focus being a Hepatitis Support Group for All it's Members.

Ok People lets hear about You and Your HCV.

I know you must have tons to talk about or just thrilled to have HCV.

Love and Hugs.

Take Care and God Bless Us All.

Deb

[Guest guest]

Your messages are getting through cause I got this.I have been going to the doctor about it for over a year and they still don't know whats going on.Now get over to Suzie to make sure she is alright.

Gail

Re: Hi Everyone

Gail, Please go to the doctor about the memory loss, cuz i love you. connie

The light at the end of the tunnel may be you

[Guest guest]

I just finished reading the one that they didn't put through.Your tired of having to be strong.Hey you have a sweet little girl in your house that is depending on you being strong,so get with the program.The last treatment increased your chances cause it would have healed your liver to a degree.To many people have screwed you up girl and your taking it out on the group.Not right hon.Talk to me in my personaly addy if you have to get all that hate out.I wish I could make everyones pain go away,but I also know that mistakes and pain is what teaches us.Now get hold of Suzie to make sure she is alright.

Gail

Re: Hi Everyone

Gail, Please go to the doctor about the memory loss, cuz i love you. connie

The light at the end of the tunnel may be you

[Guest guest]

Thanks, Deb,

I appreciate what you are saying here. Certainly the part about members staying on topic (Hep C) and not personally "lashing out" is a good rule of thumb.

Hi Everyone

It's time for crowd control clean up and getting back to HCV issues.

We have many members with very serious health dx's, issues and concerns and in need of our understanding and support.

We all have many serious issues to deal with in our every day lives and tend to loss it from time to time but hopefully recover from it all.

With having an open discussion type format for group we gain many benefits become even closer for support but also at times we run into problems.

Our group and members need to maintain a certain control to handle their problems receive the support needed and also not use group for lashing out or venting to a point that is destructive to the group and all members.

Stress is our enemy in any way shape or form and we don't need members taking their stresses out on each other but instead realizing what is really causing the stresses and problems in their lives to deal with and to successfully handle it.

I will not allow this group to fall apart or be used destructively in any manner by anyone.

The last thing we all need is for members to go after each other throats !!!!!

We have done to much good already for far to many people and with so many others out there still in need of HCV support and information.

Some of our serious personal issues not related to our HCV should not be vented in group or group used to lash out at other members period !!!!!!

We can not heal the world or all our members and the many other non-related HCV serious issues and problems they are facing.

That is why online support groups are themed related to a persons illnesses or problems.

Other specific types of support groups are best to handle and support some of our problems not related to our HCV while still being a member here for our HCV understanding and support.

Remember what we All have in common and what is our main focus being a Hepatitis Support Group for All it's Members.

Ok People lets hear about You and Your HCV.

I know you must have tons to talk about or just thrilled to have HCV.

Love and Hugs.

Take Care and God Bless Us All.

Deb

[Guest guest]

Hi Everyone

Hello, my name is Cami i'm 26 and I joined this group to learn about

what others go thru with downs in their family. My little brother

was born with Downs Syndrome, he is now 18 almost 19 years

old, WOW *shakes head* already. He is a joy to have as a brother.

He is still in school, he'll graduate when he is 21, and this year to

much disapprove from the school he got to go too Prom with a girl he

was thrilled and we all cried when we saw him all dressed up in his

tux with his girl on his arm. Anyways I could go on and on about him

if you let me lol. IS there anyone else out there with teenagers with

Downs. Anyone else from Illinois.

Well i need to go get ready for work, I hope to hear from some of

you. Have a G8 Day Everyone.

Cami

[Guest guest]

Hi Cami, and welcome.

Your brother sounds great, and it also sounds as if you have a good relationship

with him. I am so glad he got to go to his prom, we have heard many stories of

different schools trying to block the students with DS from participating in

many of the normal activities of high school life.

My daughter with DS is 14, and her sister is 10. And I have a question for you.

When you were growing up, was there any time that you were embarrassed by your

brother, and didn't want to be around him that much? Hope you don't mind

answering..........

Sharon H.

Mom to , (14, DS) and , (10)

South Carolina

Hi Everyone

Hello, my name is Cami i'm 26 and I joined this group to learn about

what others go thru with downs in their family. My little brother

was born with Downs Syndrome, he is now 18 almost 19 years

old, WOW *shakes head* already. He is a joy to have as a brother.

He is still in school, he'll graduate when he is 21, and this year to

much disapprove from the school he got to go too Prom with a girl he

was thrilled and we all cried when we saw him all dressed up in his

tux with his girl on his arm. Anyways I could go on and on about him

if you let me lol. IS there anyone else out there with teenagers with

Downs. Anyone else from Illinois.

Well i need to go get ready for work, I hope to hear from some of

you. Have a G8 Day Everyone.

Cami

[Guest guest]

Good question Sharon!!! I am also wondering about

same sex sibs too. I have 3 boys.... 8 2.5 and almost

9 months. (2.5) DS. I would love to know if it

gets harder for an older or younger sibs to handle the

harshness of growing up, peers, tagging along stuff

like that. I remember back in the days, knowing kids

be tough on a sib with a disability and being called

stupid and being embarrassed to bring the sib with

them.

Thanks

--- Sharon <huie@...> wrote:

> Hi Cami, and welcome.

>

> Your brother sounds great, and it also sounds as if

> you have a good relationship with him. I am so glad

> he got to go to his prom, we have heard many stories

> of different schools trying to block the students

> with DS from participating in many of the normal

> activities of high school life.

>

> My daughter with DS is 14, and her sister is 10.

> And I have a question for you. When you were

> growing up, was there any time that you were

> embarrassed by your brother, and didn't want to be

> around him that much? Hope you don't mind

> answering..........

>

> Sharon H.

> Mom to , (14, DS) and , (10)

> South Carolina

> Hi Everyone

>

>

> Hello, my name is Cami i'm 26 and I joined this

> group to learn about

> what others go thru with downs in their family. My

> little brother

> was born with Downs Syndrome, he is now 18

> almost 19 years

> old, WOW *shakes head* already. He is a joy to

> have as a brother.

> He is still in school, he'll graduate when he is

> 21, and this year to

> much disapprove from the school he got to go too

> Prom with a girl he

> was thrilled and we all cried when we saw him all

> dressed up in his

> tux with his girl on his arm. Anyways I could go

> on and on about him

> if you let me lol. IS there anyone else out there

> with teenagers with

> Downs. Anyone else from Illinois.

> Well i need to go get ready for work, I hope to

> hear from some of

> you. Have a G8 Day Everyone.

> Cami

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

[Guest guest]

Sharon,

I didn't grow up with a sib with DS, BUT I grew up with a sib with Noonan

syndrome (also distinct facial features, major health problems)...7 years

younger than me. I don't know if I am " normal " or not, but I was never

embarrassed by my brother. I used to get in " fights " when people would make

fun of him...that was a little awkward sometimes, but people soon learned

not to say anything about him. Only a couple of times, I remember

feeling a little jealous of the time that my brother got from my parents,

that we didn't get, but that wasn't too bad. Anyway, for ME, at least,

growing up with my brother changed me, formed me, made me who I am...I have

4 brothers, but has the most to do with how I turned out. After I got

married, and left home, I missed having a " special " person in my home so

much!!! In fact, that is why we adopted . I give full credit to my

brother and God. Because He prepared me by giving my brother to our family,

it paved the way for us to bring home to live with us and be a part

of our forever family.

So, don't worry so much about the short term. It may be hard on your other

kids here and there, but I promise, long term, it will be the best things

for them. They will learn things that no one else could ever " teach " them.

Humility, patience, unconditional love, to not judge a book by it's cover,

looking on the inside to see people's gifts, understanding, ingenuity, I

could go on and on Having our kids with DS in our families, prepares our

other kids, our neighbors, friends to be more comfortable with people with

special needs, it helps to prepare future special ed teachers, aids, hab

workers, therapists, adoptive parents, or just plain someone who is a nice,

good person, who can treat anyone with respect and feel comfortable around

others

Kym...mom to 5 including (9ds)

[Guest guest]

Oh, and I forgot to add, my brother with special needs was the way that I

rated every person I dated!! If someone treated him with anything but the

utmost respect, or did an eye roll with his endless questions, or avoided

him, then I knew that they weren't the person for me! My husband was

nervous around him, but treated him kindly and you could see the effort he

made to try to talk to my brother on a level he could understand and he

never treated him with any disrespect. As our relationship grew, he got

more comfortable around and started picking up on some of the ways

that we interacted with him. Pretty soon, he formed his own unique

relationship with and joked with him in ways that were totally theirs.

It was awesome. To this day they have a special relationship and my husband

and I have been married almost 20 years. So, that is an unseen benefit.

You can weed out a lot of jerks, by seeing how they treat our kids with

special needs.

Kym

[Guest guest]

Thank you, Kym, for sharing such beautiful post about your brother.

Jackie

-------------- Original message --------------

From: " kym mac " <mymacfamily@...>

Sharon,

I didn't grow up with a sib with DS, BUT I grew up with a sib with Noonan

syndrome (also distinct facial features, major health problems)...7 years

younger than me. I don't know if I am " normal " or not, but I was never

embarrassed by my brother. I used to get in " fights " when people would make

fun of him...that was a little awkward sometimes, but people soon learned

not to say anything about him. Only a couple of times, I remember

feeling a little jealous of the time that my brother got from my parents,

that we didn't get, but that wasn't too bad. Anyway, for ME, at least,

growing up with my brother changed me, formed me, made me who I am...I have

4 brothers, but has the most to do with how I turned out. After I got

married, and left home, I missed having a " special " person in my home so

much!!! In fact, that is why we adopted . I give full credit to my

brother and God. Because He prepared me by giving my brother to our family,

it paved the way for us to bring home to live with us and be a part

of our forever family.

So, don't worry so much about the short term. It may be hard on your other

kids here and there, but I promise, long term, it will be the best things

for them. They will learn things that no one else could ever " teach " them.

Humility, patience, unconditional love, to not judge a book by it's cover,

looking on the inside to see people's gifts, understanding, ingenuity, I

could go on and on Having our kids with DS in our families, prepares our

other kids, our neighbors, friends to be more comfortable with people with

special needs, it helps to prepare future special ed teachers, aids, hab

workers, therapists, adoptive parents, or just plain someone who is a nice,

good person, who can treat anyone with respect and feel comfortable around

others

Kym...mom to 5 including (9ds)

[Guest guest]

My friend has a 20 year old son with special needs, he's about the level of

an 11 year old. Her older son would weed out girlfriends this way. He's

married now, and when my friend talks about finding a group home for him

some day if their health begins to fail, her daughter-in-law is the first to

pipe up and say " NO WAY, he's coming to live with US!

I can totally see that for my kids, too. They talk about having Ruthie spend

weekends with them, or keeping her if we want to vacation alone. We've even

talked about her spending one weekend a month away with them all taking

turns. I have a feeling it could end up being more than that, though, they

are all so attached to her.

I tell them it's a good thing we have her, we know we'll get regular visits

after they all move out! LOL

Sue

> Oh, and I forgot to add, my brother with special needs was the way that I

> rated every person I dated!! If someone treated him with anything but the

> utmost respect, or did an eye roll with his endless questions, or avoided

> him, then I knew that they weren't the person for me!

[Guest guest]

Lots of questions here, I'm just going to address a couple.

Yes, you can do weights and cardio together, but you should always do

the weights first; if you start out tired, you won't be able to put any

oomph into your workout, it will be hard to maintain proper form, and

you risk injury. Plus, if you do the cardio immediately afterward, you

can dispense with a cardio-warm-up period; your blood will already be

pumping. Thus, precious time is saved.

Don't underestimate the effects of an active lifestyle; taking stairs

instead of elevator, parking at the far end of the lot, etc. That stuff

really makes a difference.

3,000 calories sounds like an awful lot to me, too, unless you're

extremely large and heavy and do lots of exercise.

Naomi

******

>

> Hi everyone, I've been lurking on here for a couple weeks now. I

> just started a challenge and I'm in week 2 (day 1--I had to adjust

> my free day to fit my schedule...). I have a lot of weight to lose.

> My goal for this challenge is to stick with it, push myself to not

> take the easy way out and to eat cleaner. I have a couple

> questions...like most newbie's do...I have the book but the food

> confuses me. Is it possible to go by calories/ratio's instead of

> eyeballing portions? I use Physique Transformations website to

> record/track my food and exercise and I like the site but don't

> quite agree with their calorie levels and eating 3000 calories in

> conditioning. So I'm here now. Looking for something that makes more

> sense to me. Also, I have an extremely busy schedule (I am a single

> mother who works 1 full time and 2 part time jobs--but only work

> nights I don't have my kids) anyway, is there any way to do all the

> workouts but do them in a different order or maybe lift and do

> cardio in the same day? Some days I can't make it to the gym and I

> only have 1/2 hour off between jobs. I'm not trying to cut corners,

> I guess I'm trying to figure out a way to make it all fit without

> totally throwing in the towel and giving up, yet again.

> Thanks to everyone!

> Kim

>

>

[Guest guest]

Nope, they ramp everyone up to 3000 and beyond in " conditioning " and

then when you go into fat-burning your calories rotate (low days are

mon/fri then days that follow the program adds 200 calories per day,

sunday is a free day too) and depending on if you lost weight your

calories will either drop and they'll add cardio or they'll drop

your calories. It's pretty confusing without actually seeing/doing

their program in PT mode (where you have no control of your

calories/ratios). I'm using the program in standard mode now (where

I adjust my calories, ratio's) and my goal is 1750 calories with a

37/43/20 ratio. From reading BFFM I think this should be about right

for me. I like their software just for the fact that all the foods I

eat are either in there or I can make a custom entry so I know I've

got everything right.

>

> Lots of questions here, I'm just going to address a couple.

>

> Yes, you can do weights and cardio together, but you should always

do

> the weights first; if you start out tired, you won't be able to

put any

> oomph into your workout, it will be hard to maintain proper form,

and

> you risk injury. Plus, if you do the cardio immediately

afterward, you

> can dispense with a cardio-warm-up period; your blood will already

be

> pumping. Thus, precious time is saved.

>

> Don't underestimate the effects of an active lifestyle; taking

stairs

> instead of elevator, parking at the far end of the lot, etc. That

stuff

> really makes a difference.

>

> 3,000 calories sounds like an awful lot to me, too, unless you're

> extremely large and heavy and do lots of exercise.

>

>

> Naomi

> ******

> >

> > Hi everyone, I've been lurking on here for a couple weeks now. I

> > just started a challenge and I'm in week 2 (day 1--I had to

adjust

> > my free day to fit my schedule...). I have a lot of weight to

lose.

> > My goal for this challenge is to stick with it, push myself to

not

> > take the easy way out and to eat cleaner. I have a couple

> > questions...like most newbie's do...I have the book but the food

> > confuses me. Is it possible to go by calories/ratio's instead of

> > eyeballing portions? I use Physique Transformations website to

> > record/track my food and exercise and I like the site but don't

> > quite agree with their calorie levels and eating 3000 calories in

> > conditioning. So I'm here now. Looking for something that makes

more

> > sense to me. Also, I have an extremely busy schedule (I am a

single

> > mother who works 1 full time and 2 part time jobs--but only work

> > nights I don't have my kids) anyway, is there any way to do all

the

> > workouts but do them in a different order or maybe lift and do

> > cardio in the same day? Some days I can't make it to the gym and

I

> > only have 1/2 hour off between jobs. I'm not trying to cut

corners,

> > I guess I'm trying to figure out a way to make it all fit without

> > totally throwing in the towel and giving up, yet again.

> > Thanks to everyone!

> > Kim

> >

> >

>

[Guest guest]

Do you have an email to contact the People at PT people...there web

site is being weird and all the links are dead...

>

>

> Nope, they ramp everyone up to 3000 and beyond in " conditioning "

and

> then when you go into fat-burning your calories rotate (low days

are

> mon/fri then days that follow the program adds 200 calories per

day,

> sunday is a free day too) and depending on if you lost weight your

> calories will either drop and they'll add cardio or they'll drop

> your calories. It's pretty confusing without actually seeing/doing

> their program in PT mode (where you have no control of your

> calories/ratios). I'm using the program in standard mode now

(where

> I adjust my calories, ratio's) and my goal is 1750 calories with a

> 37/43/20 ratio. From reading BFFM I think this should be about

right

> for me. I like their software just for the fact that all the foods

I

> eat are either in there or I can make a custom entry so I know

I've

> got everything right.

>

>

[Guest guest]

Yeah, I think they're having problems with their website and they've

disabled links to try to pinpoint what the problem is. Here's one of

the e-mail addresses that I found for Ric who owns the company:

ric@...

honestly, besides this bug, their website and their software is

wonderful. Their program in PT mode isn't for everyone but their

food tracking tool makes it worth the cost per month for me...anyway.

> >

> >

> > Nope, they ramp everyone up to 3000 and beyond in " conditioning "

> and

> > then when you go into fat-burning your calories rotate (low days

> are

> > mon/fri then days that follow the program adds 200 calories per

> day,

> > sunday is a free day too) and depending on if you lost weight

your

> > calories will either drop and they'll add cardio or they'll drop

> > your calories. It's pretty confusing without actually

seeing/doing

> > their program in PT mode (where you have no control of your

> > calories/ratios). I'm using the program in standard mode now

> (where

> > I adjust my calories, ratio's) and my goal is 1750 calories with

a

> > 37/43/20 ratio. From reading BFFM I think this should be about

> right

> > for me. I like their software just for the fact that all the

foods

> I

> > eat are either in there or I can make a custom entry so I know

> I've

> > got everything right.

> >

> >

>

[Guest guest]

Yeah, I think they're having problems with their website and they've

disabled links to try to pinpoint what the problem is. Here's one of

the e-mail addresses that I found for Ric who owns the company:

ric@...

honestly, besides this bug, their website and their software is

wonderful. Their program in PT mode isn't for everyone but their

food tracking tool makes it worth the cost per month for me...anyway.

> >

> >

> > Nope, they ramp everyone up to 3000 and beyond in " conditioning "

> and

> > then when you go into fat-burning your calories rotate (low days

> are

> > mon/fri then days that follow the program adds 200 calories per

> day,

> > sunday is a free day too) and depending on if you lost weight

your

> > calories will either drop and they'll add cardio or they'll drop

> > your calories. It's pretty confusing without actually

seeing/doing

> > their program in PT mode (where you have no control of your

> > calories/ratios). I'm using the program in standard mode now

> (where

> > I adjust my calories, ratio's) and my goal is 1750 calories with

a

> > 37/43/20 ratio. From reading BFFM I think this should be about

> right

> > for me. I like their software just for the fact that all the

foods

> I

> > eat are either in there or I can make a custom entry so I know

> I've

> > got everything right.

> >

> >

>

[Guest guest]

What bill are you referring to? CAA? Maybe you should read on this

list what the majority of us feel about it before you call your reps

to support the bill. There are a few who have really done their

homework with this bill and the more you read, the more you will

learn about it, much in the same way about the book EOH. Just a

suggestion Welcome to the group!

" I am writing to my reps today to support the bill.. "

---In EOHarm , " Kendra Pettengill " <achsel@...> wrote:

>

> OK, I was only lurking for a few days. That didn't last however

as

> I had written my opinion about Autism Speaks. Which by the way,

is

> my own disappointment not an indictment.

>

> Many from this group know me, or know about me. For those that

> don't, save the welcome to Autism well-wishes, I have been in this

> game for nearly 6 years. While I have had an active voice, I

never

> jumped in the forefront with those marching in D.C. etc., as a

> single widowed mother with a child suffering from Autism, I was

> using every penny to save my child. So, I supported from the

> background and I write profusely. Mainly because it is like

therapy

> for me, it is how I " let it out " . Sometimes it's good, other

times

> it's just angry and hopefully I think twice before those go out

> anywhere, but I do have a reputation for telling it like it is,

and

> not always being polite or politcally correct about it. Dr.

> McCandless, Pringle, and Dan Olmsted have all asked and

> received permission to publish things I have written. It's nice

> when it is more than just personal venting.

>

> My daughter is considered 90% recovered, and that took every

penny,

> every ouce of energy, fundraising, family help, financially and

any

> other way it could be done. I sold my house, spent all my saving

> and took early withdrawal on all my retirement money. Begging,

> borrowing, (haven't stolen yet) but joke to new Mom's locally to

> stay off my street corner when looking for additional funds. We

> used Biomedical, naturopathy, chelation, and ABA. My daughter was

a

> GFCF anomaly. She withdrew as if from Heroin, then started

speaking

> in the 2nd week. The light came back on, and we started ABA not

> long after that. She was diagnosed in the bottom 1%, never to

> speak, and severely mentally retarded I was told. As a single

Mom,

> of course I was told to institutionalize before she became old

> enough to injure me.

>

> She started 3rd grade this week. No special-ed, no aide, no

> pullouts. Hardly a month goes by these days that I don't cry

> watching her do things I once stopped dreaming of. Taking dance

> classes, downhill skiing, teasing an uncle, getting her cousins

with

> a remote control fart machine. She is my miracle every day. And

we

> did it all alone, no physicians, no school help. Just my family,

my

> daughter, and some volunteers. The only thing I paid for the

whole

> way was a BCBA. AFter becoming a doctor, nurse, nutritionist,

> special-ed lawyer, advocate, I just didn't have enough left to

> became an ABA consultant, so that I paid for. I would do it all

> again to watch this beautiful child emerge again, like a butterfly.

>

> On July 24th, 2006, my brother passed away after a 10 year

> battle with cancer. He was our biggest supporter, and sort of

> Keely's only father figure. Professionally, financially, moral

> support, he was there every step of the way. It has been a huge

> loss for us and I sort of disappeared for a while. But I am

back.

> I will never give up this fight for all the kids. People wonder

why

> I don't take my recovered daughter and run, never to look back,

> pretend it never happened, but I cannot. I am paying it forward

for

> everyone that helped me all these years.

>

> I resisted reading EOHarm for a long time. Sort of that, what can

> you know mentality. I've been researching this for years and here

> comes Kirby, does a little research and now he is the face of

Autism

> in the media. I didn't like his pro-vaccine stand. Oh how wrong

I

> was. I finally read the book, met Kirby, heard his presentation.

I

> am so thankful I took a 2nd look. He is phenomenal and if you

> really listen to him and what he has learned I don't believe he is

> pro-vaccine anymore as I think he realizes, he has seen there may

be

> NO SAFE Vaccines. We talked about why Oregon may be 1 in every 98

> and he had some excellent insight on that. I'm now a Kirby

convert.

>

> I am finishing a stint as President of FEAT of Oregon. I will

never

> be speaking here in that capacity, it is a limited mission there

and

> I don't always see eye-to-eye with some demanding scientific proof

> first. But again it was a way I could 'pay it forward' to those

who

> helped me save my daughter.

>

> I am looking forward to this list as for the first time and over

10

> different lists, this is one where my issues are yours, my

> arguments, research, knowledge, this is where I really need to be.

>

> So, that is sort of an introduction. I look forward to the

> information available here. I am writing to my reps today to

> support the bill and stand firm that there be no sacred-cows

allowed.

> Thanks for being here, all of you.

> Kendra Pettengill

> Mother to Keely, 8, formerly diagnosed with Autism.

>

[Guest guest]

I would bring the carseat with you. You will get to board before the other

passengers and the flight attendants will be more than happy to help you get her

carseat strapped in. If she takes a paci, bring that so that the pressure

doesn't hurt her ears while ascending and descending (I think you can bring a

bottle, but with the new restrictions it might be more of a pain than it is

worth). Try to bring toys that will be entertaining for her. Also, be sure

that any liquids like your shampoo or makeup gets packed in your regular bag and

not your carry-on luggage. They will throw it out on you if you try to carry

it on the plane.

I don't know about the taxi cabs, but my guess is that you are better to have

your own seat to put in the car in case they don't have one. Try calling your

patient care coordinator...they probably can get a Shriner to come pick you up

and then you could avoid the whole taxi thing.

Good luck with everything and be sure to post about your visit when you get

back.

Noelle (12-2-01)

Ian (8-15-04)

hi everyone

I am so happy my 11 month old daughter finally has her first

appointment on October 26 at Shreiner's in Philidelphia....... We

live in North Carolina and this will be the first time i have ever had

to fly, I know nothing about flying or what to exspect on this

visit.... Can any of you Please share any information with me on

flying with a baby..... Will i have to take her carseat on the

plane ??? What about when she rides in a taxi cab ???? I have no

idea ??? im 100% country girl who has barely been out of North

Carolina... lol..lol... I am so happy my little Sadie finally gets to

start on her road to recovery...... Thank you all so much, Rhonda

[Guest guest]

Usually children under the age of 2 fly for free in a parent's lap. The only

way she would have her own reserved seat is if you purchased a ticket for her.

If they have seats available on the flight next to one another, then you guys

could pry move seats and put her in her carseat. Just remember though...if you

didn't purchase a ticket for her, then you won't know until you check in if

there are empty seats available. You may want to go ahead and take her carseat

with you up until check in, then if there isn't an empty seat to put her in they

should be able to check that carseat for you at the gate and put it in cargo for

you so you don't have to try to find space in the cabin for it.

As far as liquids and toiletries, I just checked on that today as we are flying

to Ohio for a funeral this weekend....you can take shampoos now up to 3 oz. I

think it was in a ziploc bag.....check with your carrier on exact limits though.

I know we can take shampoo and toothpaste, but only 3 oz I think it was...the

airlines website will have all that info too.

Good luck!

Tracey

hi everyone

I am so happy my 11 month old daughter finally has her first

appointment on October 26 at Shreiner's in Philidelphia....... We

live in North Carolina and this will be the first time i have ever had

to fly, I know nothing about flying or what to exspect on this

visit.... Can any of you Please share any information with me on

flying with a baby..... Will i have to take her carseat on the

plane ??? What about when she rides in a taxi cab ???? I have no

idea ??? im 100% country girl who has barely been out of North

Carolina... lol..lol... I am so happy my little Sadie finally gets to

start on her road to recovery...... Thank you all so much, Rhonda