New

[Guest guest]

The term “hepatitis” is actually a catchall for inflammation of the liver. About 90% of patients with serous liver disease develop jaundice and/or acute liver cell injury. The most common causes of liver disease are viral hepatitis and alcohol, chemical or toxin-caused liver disease. (Stobo et al., 1996). Modern medical science divides viral hepatitis into four strains, based upon the type of virus (A, B, C, or E). Hepatitis with jaundice is usually found in types A and E, both of which are classified as contagious. Modern society has experienced a major increase in the incidence of certain viral strains of the disease, particularly hepatitis B and C. In fact, hepatitis C is now being referred to as a “silent epidemic.” Herbal medicine has much to offer in the way of treatment for these difficult diseases.TCM and JaundiceIn TCM, Jaundice is divided into

two basic groups, called Yin yellow disease, and Yang yellow disease. Yang yellow disease is actually acute jaundice or acute hepatitis. Yin yellow disease is chronic jaundice caused either by external toxins and dampness, or excesses of alcohol and greasy food. These factors weaken the digestive system and eventually block the liver. The blocked liver backs up, causing jaundice. TCM doctors formulate based upon whether there is more heat or more dampness. Capillaris (yin chen hao or Artemisia Capillaris) is used as the main herbal treatment, adding other herbs as needed. Capillaris is bitter and pungent in taste, and cool in property. It removes heat and dampness from the liver and gallbladder, increases bile secretion, and is diuretic. It is used for symptoms such as intermittent fever and chills, bitter taste in mouth, nausea and loss of

appetite. For these reasons, it is the number one herb for treating jaundice, gall bladder disorders and hepatitis. For chronic hepatitis TCM doctors use capillaris in high doses, along with many other adjunct herbs, including dandelion root, isatis root and leaf, bupleurum root, schisandra berry, scute root, turmeric root, white peony root, salvia root, and licorice root (Hu and Tillotson, 1999).Ayurveda and JaundiceIn general, Ayurvedic texts divide hepatitis into four main conditions called anemic hepatitis (pandu kamala), contagious hepatitis (aupadravika kamala), acute hepatitis (kumbha kamala), and chronic hepatitis (halimaka). The early Ayurvedic texts include hepatitis as a subset within their chapters on anemia. As they described it, in an

anemic condition the liver becomes overactive as it filters the by-products of the dead red blood cells, leading to liver weakness (Bajracharya, 1999).With chronic hepatitis, there is no obvious swelling and blockage in the liver. Only the symptoms of anemia and pallor can be identified. This condition can stay in the body for many years, with periods of remission and exacerbation of liver inflammation. Ayurveda diagnoses this condition as a disease of Vata and Pitta, as it involves mild chronic inflammation (Pitta dosha) coupled with “reversed liver nerve function” (yakrit udavarta). In reversed function of the hepatic nerves, the upper function of the liver becomes more active, while the lower function is relatively inactive or sluggish. Ayurveda points out that this sort of neurological over-activity usually causes mild pain (Bajracharya, 1999).According to Ayurveda, the main causes of hepatitis can be classified into three

groups as follows:1. Overuse of heat-generating foods and behaviors. In general, heat-generating foods are sour, pungent or salty in taste, and have the physical effect of capillary dilation. Causative factors thus include excessive or daily use of high fat foods, roasted or fried foods, butter, ghee, alcohol, milk products, coffee, vinegar, alcohol, pickles, chili and other hot spices. All of these aggravate Pitta.Heat generating behaviors include heavy physical labor, summer heat, working or living in indoor environments which are excessively hot (such as working over a stove), emotional upset (especially anger), and excessive daytime sleeping.2. Improper medical treatment. Treatment with, or exposure to strong chemical agents, such as astringent drugs to stop diarrhea, exposure to pesticides, and antibiotics can all weaken the

liver.3. Direct contact with an infected person's bodily fluids, stool or food. Transmission rates are much higher at time of epidemic outbreaks. Control extends to obvious precautions with sexual contact, using the same eating utensils, food, plates, cups, or water, and poor hygiene (Pebody et al., 1998, Mahoney et al., 1997, Deka et al., 1994).Hepatitis B and C have a relatively low rate of cure with Western medicines at the time of this writing, and the available treatments are very expensive and have strong side effects. The drug cocktails (combinations), which seemed to offer hope in 1998 in spite of sometimes horrific side effects, are now showing signs of viral recurrence after drug discontinuation. Furthermore, I am not convinced that the drugs themselves do not damage the liver.There is even some controvery whether or not hepatitis C is truly a virus. It may simply be a sign of

chronic liver damage, possibly with multiple causes, leaking RNA particles picked up by the currently inaccurate testing methods. A science editor of ABC news stated, "No one's been able to come up with a hepatitis C virus, purify it, inject it into an animal and cause hepatitis." Full article here.Ayurvedic physicians were unaware of the seriousness of the complications of these new forms of chronic hepatitis until this was made clear with the emergence of new diagnostic tests around 1989, and the reports in the literature and press. Until that time, patients with hepatitis B and C symptoms were treated with basic hepatitis herbs, liver tonics and rasayana (longevity tonics). Hepatitis B responded well to Ayurvedic treatments, but hepatitis C (originally called non A-non responded much more slowly. When blood tests

finally became available around 1991, Dr. Mana began to keep records at his Kathmandu clinic of patients with B and C strains after utilizing his Ayurvedic treatments. Dr. Mana also noted and spoke out about the emotional shock that awaited patients when told that the diseases were not curable, and could cause liver cancer and cirrhosis. In Ayurvedic thinking, this type of fear progressively weakens the entire nervous system (Vata). The fear adds to the burden of the illness, and can speed up progression. Dr. Mana has developed several complex herbal tonics (containing up to 40 herbs each) for all forms of chronic hepatitis, and has literally treated thousands of patients during his four decades of active practice since 1955. Some important known herbs include shilajatu, guduchi

stem, turmeric root, and triphala . However, many herbs he uses in his formulas are unavailable outside Nepal. Patients visit him from all over the world to be treated for chronic hepatitis, with many patients now importing herbs from Nepal utilizing FDA allowances for personal importation (see resource guide). The treatment takes from six month to up to two years. Western Herbalists Treating Chronic HepatitisAt the 1999 American Herbalist's Guild Annual Symposium, I talked with several prominent herbalists, including and Lesley Tierra and Winston. All three of them reported cases with similar results to those I had experienced in the clinic, dropping liver enzymes into the normal range, and viral loads down by as much as 50-90%. Dr. Terry Willard reported to me in a personal

communication getting a high level of complete extinction of hepatitis C at his clinic in Canada.After reviewing TAM, TCM and Western medicine approaches to this disease, I developed a series of treatment protocols with herbalist/acupuncturist Kirk Moulton of Chicago that also got good results. The Bottom LineHepatitis B and C can be controlled with herbal medicines. Use of milk thistle seed extract, about 3-6 capsules of a good quality standardized extract, along with strict avoidance of drugs and alcohol, and about 5 grams a day of a personalized liver tonic formula made with herb such as the following is very, very helpful. Think of it as a liver multi-vitamin:White peony root (bai shao / Paeonia lactiflora) soothes and calms liverSalvia root (dan shen / Salvia

miltiorrhiza) reduces inflammation, improves circulationBupleurum root (chai hu / B. chinensis) - calming liver tonicCapillaris herb (yin chen hao / Artemisia capillaris) - removes liver inflammationCordyceps mushroom (dong chong xia cao /C. sinensis) - lung tonic, liver tonic Bromelain enzyme (Ananas comusus) - digestive, antiinflammatory Eclipta (han lian cao / E. prostrata) - Cools and nourishes blood, heals liverGanoderma mushroom (ling zhi / G. lucidum) - strengthens immune system, calms liverGuduchi stem (Tinospora cordifolia) - detoxifying liver and energy tonic Licorice root (gan cao / Glycyrrhiza glabra) - soothes stomach, detoxifies liver Red peony root (chi shao / Peonia rubra ) removes blood congestion Schisandra fruit (wu wei zi / S. chinensis) - liver tonicScute root (huang qin / Scutellaria baicalensis) removes inflammation from blood and liver Shilajatu complex (bituminous minerals) - liver and

kidney tonic Tien qi root (san qi / Panax pseudoginseng) - wound-healing agenTurmeric root (haridra / Curcuma longa) liver tonic, antiinflammatoryVasaka leaf (Adhatoda vasica) removes liver inflammation Posted on Sunday, April 3, 2005 at 02:17PM by posted by Dr. Tillotson in Disease encyclopedia |

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

Hi ?,

Welcome to the group!!! I'm Helen 55 from NW, Ohio... Sent a couple of links out, hopefully they will be of some help... Their are a lot of nice folks on here... We have a couple with kidney problems and quite a few diabetics, so hopefully when they are up to it they will be able to talk with ya and try and help ease your mind on what to expect as you start your new journey with these ailments...

Vent away, it does one good to be able to talk about what is going on and is a Great release valve...

((( Welcoming Hugs )))Helen

My Ailments:1-F.M.S.--Fibromyalgia 2-C.F.S.--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypethyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Poly Neuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertension 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycemia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's--P.B.Cs--P.A.Cs--Ventricular Tachycardia-One other I dont remember the name of 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Light Stroke-age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy-age 40 Gall Bladder out Diseased--almost died-age 48 Anemic twice real bad

Hi Im new to this group. My illness is polycystic kidneys and insulin dependent diabetes which is new to me and I hate needles.

Not been feeling to well lately and this all feels a bit overwhelming at the moment.

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

glad to have you in the group. there are tons of wonderful people here to talk to . hope to hear from you soon. evleynposh046 <posh046@...> wrote: Hi Im new to this group. My illness is polycystic kidneys and insulin dependent diabetes which is new to me and I hate needles. Not been feeling to well lately and this all feels a bit overwhelming at the

moment.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Thank you for your welcome, . I have a son named Sam also. (He's 8

yrs. old.) ;o) We've learned to deal with Nikole's illnesses pretty well

over the years. I just feel bad that I didn't push the doctors more to find a

diagnosis. I have an anxiety disorder so I just thought I was being paranoid

and annoying the docs for so long. So now it makes me really mad that I was

right and they were just too busy to pay attention. (In my opinion anyway.) I

feel a bit lucky also in that and HIDS have no permanent damage to organs

(from what I've read so far) and that is what the ID specialist thinks

Nikole's problem most likely is. I don't think it's actually sunk in yet that we

have a diagnosis. It's been so long and all it took was one trip to Dr. Wittler

to find what seems like the answer. I laugh when I think of him telling me

he's almost possitive it's even though her medical records look more like

HIDS. Then he tells me that HIDS is extremely rare and only in people with

dutch heritage.... you're not dutch are you? I had this shocked look on my face

when he said that. lol Our family is really into our dutch heritage and my 17

yr old son wants to take a trip to the Netherlands and then this doctor is

asking if we're dutch. It's too unreal, ya know? lol

Anyway, thank you for the welcome. I am so happy to find people with the same

concerns about their child as mine. I hope your Sam is doing well. If

Nikole's fevers stay on the same schedule as they've been lately she will get

her

next one in about 2 weeks.

Tonya

In a message dated 11/2/06 9:44:59 PM Central Standard Time,

catherineh@... writes:

Just wanted to say welcome, Tonya. I am sorry that Nikole's fevers

went on for so long before you were able to convince the doctors to

dig deeper. It seems like so many parents hear the same thing... " your

child just seems to pick up everything. " That is so very frustrating

and I hope that in the future, as pediatricians become more aware,

this will not be the case. I'll be thinking of you and hope you get

some answers soon!

Mom of Sam (2), possible

[Guest guest]

Just wanted to say welcome, Tonya. I am sorry that Nikole's fevers

went on for so long before you were able to convince the doctors to

dig deeper. It seems like so many parents hear the same thing... " your

child just seems to pick up everything. " That is so very frustrating

and I hope that in the future, as pediatricians become more aware,

this will not be the case. I'll be thinking of you and hope you get

some answers soon!

Mom of Sam (2), possible

[Guest guest]

Hi Lori,

Thank you for your reply. What you've heard about HIDS makes sense. I've

done some research on dutch lineage and they are a germanic people. I find it

hard to believe that there is a genetic marker for a disease that would ONLY

come from dutch lines. The Netherlands is an extremely small region and it

borders Germany. My husband's family surname is Bavarian, but we have no idea

where his actual ancestors came from. My family history has been recorded

forever, so we know my family is from Holland originally. The study my doctor

gave

me says there are only 200 known cases of HIDS in the world. That is really

hard to believe since the dutch have done a LOT of research on it. My doctor

told me to look up infor on the web about dutch studies because so much has

been done there to learn about the disease. It's odd that you mention the Amish

and Mennonites.... there are many communities of them here in Kansas. I think

I'll look to see if there are any studies of genetic diseases of the Amish and

Mennonites in Kansas. I doubt there will be. They usually stay to

themselves.

Thank you again for the input. There is a lot of information on the

internet, but a lot of it is contradictory. It's so frustrating! lol

Tonya

mother of Nikole, 9 yrs.

In a message dated 11/5/06 2:12:51 PM Central Standard Time,

slsjasrodgers@... writes:

Hi

I just wanted to add my two cents in here. This is what I have heard about

HIDS. It is believed to have originated as you had mentioned - from Dutch

Heritage. However, I believe theya re finding it much more often then they had

thought. At the PFS conference in Spetmenber it was told to us that there is a

large number of Amish and Mennonite (who may be called PA Dutch but really are

from German decent) who have been diagnosed with HIDS and the head of that

clinic

believes it is a PFS underdiagnosed. Also my rheumatologist has mentioned

that he does not always see the diagnosis strictly with certain ancestry. It may

be a reason to look but NOT having the ancestry is not a reason NOT to look.

Also, I have also been told that a blood test alone will not rule out HIDS.

Your child's IgD levels may be fine but they may still have the genetic marker

for HIDS.

I just wanted to add my two cents from what I have been told. Good luck in

your journey for answers!

Lori Rodgers

mom to four daughters including (2) ?PFS

[Guest guest]

If the doctor documents thoroughly insurance can usually be worked out. If paid

for out of pocket it depends on where you infuse. Whether it's a doctors

office, hospital, clinic or at home. When we infused at the hospital Macey's IV

brand ran about $200 per gram. She received 20 gms at that time so about $4000

per month. We had a 10% co pay. So it was like having a car payment each

month. Now we do it weekly at home, using another brand and doing it into the

skin and not the vein. It runs about $200 per month out of pocket.

We have Blue Cross PPO federal employee and they have yet to deny anything

Macey's ever needed done.

I hope that she is able to benefit. Has she started yet? Did they test to see

if she responded to her vaccinations? Even if her IgG is showing normal if she

isn't recognizing her vaccinations then that's a problem in itself.

Ursula - mom to (13) and Macey (11, CVID)

http://www.primaryimmune.org

http://www.jmfworld.org

http://members.cox.net/maceyh

[Guest guest]

hi how are you, we have 4 kids ages 6-4-3-2 and the youngest has a

gross motor delay, and mixed receptive/expressive language dissorder,

and sensory issues, and 2 doctors sadithey see early signs of

aspergers. i do not really have any useful info for you because you

son is older than ours i just wanted to say hello, because i saw that

you son has expressive language dissorder. well hopr to get to know

you better.

Dana

>

> Hi,I just thought I'd introduce myself to the group. My name's Kim

> and I'm a single parent of a 10yr old with hf

autism,adhd & expressive

> launguage disorder. We had a rough ride when Trev was little. He

was

> 2 weeks shy from his 4th bday before we got an actual diagnois. My

> son's on Concerta for the adhd-it's helped so much,especially at

> school. In November my son started taking an anti-depressant-it's

> actually turning out to be a good thing for him. I was a little

> worried about it at first. We tried it before a few years back and

it

> was not fun. I'm glad we're in a good school. I'm alittle worried

> about jr. high. it's coming up fast. I'm having a hard time

> explainning,so he can understand this-my boyfriend(who lived with

us

> for almost 2 years) & I split up. Trev's not understanding

why 'cause

> he only saw us happy and laughing. His behavioral therapist wants

me

> to explain what happened. My question is how can I explain

something

> I don't even totally understand to someone who doesn't understand

the

> complexity of social things? My son is also worried about my exes'

2

> kids. He doesn't know if they're ok,even when I told him they are

> ok. Anyone got any ideas on this?

> Kim

>

[Guest guest]

,

My daughter has celiac. She is 6 now and wasn't diagnosed till she was 4. She

did not have typical symptoms. This is one of the biggest challenges we face

with her. Of all her issues, celiac is the one that tries my patience the most.

Tammy

mom to Hannah 6

[Guest guest]

Hello Corey I'm and while I don't have SMA I have a number of

friends that do. All I can do is be supportive and help my friends when I

can. They're the best :-p

On 1/11/07, Corey Tana Blyth <14coreytana@...> wrote:

>

> My name is Corey (I'm female) and I have SMA II. I was diagnosed when I

> was two. I'm new here and just wanted to say " hi " .

>

>

[Guest guest]

Welcome aboard!! ~a

Corey Tana Blyth <14coreytana@...> wrote:

My name is Corey (I'm female) and I have SMA II. I was diagnosed when

I was two. I'm new here and just wanted to say " hi " .

[Guest guest]

Thank you very much a! I am so glad to find a group like this one!

-- Re: New

Welcome aboard!! ~a

Corey Tana Blyth <14coreytana@...> wrote:

My name is Corey (I'm female) and I have SMA II. I was diagnosed

when I was two. I'm new here and just wanted to say " hi " .

[Guest guest]

Welcome to the group a. I am sure you will love it here. There is always lots of interesting information and lots of friendly people here willing to help.

Stacie

-- new

hello,

I'm new here and am a mother of an Autistic boy. I'm hoping I will be able to learn and hopefully even share my experiences.

thanks

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Games.

[Guest guest]

Hello,

Welcome to our group !!! My name is and I have also tried

Oxycise. I just could not get into the flow. The GOOD news is you found

LifeLift !! For me, LifeLift is gentle, smooth and energizing.

It is really magnificent!! The people in this group are VERY

supportive and WONDERFUL !! We are here for you and are happy to

answer any questions.

Love,

>

> I am new to the group. I treid oxycise and it too harsh and plus i'm

> afraid it'll make me have flat small lips and mine aren't big to

begin

> with.

>

> I plan on getting some lifelift for my breathing (pcosers have

> decreased lung capacity) pretty soon

>

> I was goig to get oxygen zoo, ll 1 and 2 and the stretch band

>

> any other good advice or comments on these workouts?

>

[Guest guest]

Welcome

I personally love the stretch bands

Did it this morning!

Blessings

R

New

I am new to the group. I treid oxycise and it too harsh and plus i'm

afraid it'll make me have flat small lips and mine aren't big to begin

with.

I plan on getting some lifelift for my breathing (pcosers have

decreased lung capacity) pretty soon

I was goig to get oxygen zoo, ll 1 and 2 and the stretch band

any other good advice or comments on these workouts?

[Guest guest]

Welcome to the group , I am sure you will love any of the LL

programs you choose.

Molly : O )

>

> I am new to the group. I treid oxycise and it too harsh and plus

i'm

> afraid it'll make me have flat small lips and mine aren't big to

begin

> with.

>

> I plan on getting some lifelift for my breathing (pcosers have

> decreased lung capacity) pretty soon

>

> I was goig to get oxygen zoo, ll 1 and 2 and the stretch band

>

> any other good advice or comments on these workouts?

>

[Guest guest]

Hello Dear,

My name is Pat and everyone thinks of me as their main cheerleader and

encourager, and that, I certainly am. I have been dong Life Lift aerobic

breathing for the last 13 months, and it is truly the most wonderful weight

loss/health improvement program that I have ever found in all my 55-nearly 56

years. I know that you will love Life Lift as much as I do, and I wish you much

success on your Life Lift journey. Much love to you, dear, and the best of luck

to you.

Love always,

Pat

New

I am new to the group. I treid oxycise and it too harsh and plus i'm

afraid it'll make me have flat small lips and mine aren't big to begin

with.

I plan on getting some lifelift for my breathing (pcosers have

decreased lung capacity) pretty soon

I was goig to get oxygen zoo, ll 1 and 2 and the stretch band

any other good advice or comments on these workouts?

________________________________________________________________________________\

____

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

http://tools.search./shortcuts/#loc_weather

[Guest guest]

Welcome to life lift! You are going to love it! Connie :-)

In a message dated 3/27/2007 3:59:58 PM Pacific Standard Time,

arthur.brenna@... writes:

> I am new to the group. I treid oxycise and it too harsh and plus i'm

> afraid it'll make me have flat small lips and mine aren't big to begin

> with.

>

> I plan on getting some lifelift for my breathing (pcosers have

> decreased lung capacity) pretty soon

>

> I was goig to get oxygen zoo, ll 1 and 2 and the stretch band

>

> any other good advice or comments on these workouts?

>

>

>

>

</HTML>

[Guest guest]

I forgot to mention how she can't get " clean " while on the potty, especially

after a bowel movement. I have baby wipes in there, she gets a little trash

bag, practically fills it up, then calls me in there, I look, yep, you're clean.

But she doesn't believe it. I have to watch her though, at times she forgets to

get the little trash bag and loads it all into the toilet, then I have to get

it all out.

thanks for the welcome and input.

lynn

svdbyhislove <BJClosner@...> wrote:

>

<<<Am I alone in any of this, or is this the road?>>>

Welcome, Lynn. )

As I was reading your post and all you were describing of your

daughter, I was thinking. . Yep, uh huh, oh yeah. It all sounds like

OCD to me. And I think our son has experienced most of those thins at

different times in his life, since his OCD seems to change tactics at

times (which is not uncommon).

You are not alone. . And this is the road.

I know that it is not easy living with OCD, but finding others who've

been there and understand (like this group), will help. Glad you are

here.

BJ

> Hi, my name is Lynn, I am new to this list. My daughter Sis is 12

years old. She is on the meds, seraquel, prozac, topomax, diamox (for

pressure on the brain), melatonin (to help her get to sleep), various

other stomach and asthma meds.

>

> I joined to see if I could gain insight on her OCD. Since joining

I've been reading about the different but same things other children

have. Am looking for advice, recommendations, etc. on some things she

does, or just to know that yes, this is going on with the other

children also, that I am not alone.

>

> Sis demands to have a very structured day. All day she asks what

we are going to do, are we going somewhere tommorrow. If we have

things to do, it has to be listed out, and if you break the order, she

gets upset, repeats over and over she doesn't understand, that we were

supposed to do this then this. She has fears of things, like of

something happening to me, or if the dogs get sick. If someone in a

store coughs, she's gotta get out of there fast, so she won't get

sick. There are also " bad " thoughts. At times she says it's " the guy

in her head " that won't leave her alone. He's telling her to count

things, spell out things, and repeats it over and over. She can't

stand taking a shower. it's a battle, she'll shake and say she's

scared. There are times she thinks someone is here. If it's getting

dark outside she gets anxious about not being able to get enough

sleep. Her bedtime is 7:00 pm, if it's close to that and we aren;';t

home, a crying episode. Tough to

> get to sleep sometimes.....what if, what if, what if. Counts train

cars, how many numbers it is that her chihuahua stands on his back

legs, how many numbers of rose bushes, trucks, cars, everything.

> Am I alone in any of this, or is this the road ?

>

>

> ---------------------------------

> Get the free toolbar and rest assured with the added security

of spyware protection.

>

>

[Guest guest]

Hi Lynn, you mentioned several things that I've read on this list

over the years so you are definitely not alone! My son is

18, his OCD began back in 6th grade.

Do you feel the Prozac has helped with her OCD at all? How long has

she been on it, what dosage? (though I know dosages can be

a " balancing act " when on more than one medication)

single mom, 3 sons

, 18, with OCD, dysgraphia and Aspergers (mild)

>

> Hi, my name is Lynn, I am new to this list. My daughter Sis is 12

years old. She is on the meds, seraquel, prozac, topomax, diamox

(for pressure on the brain), melatonin (to help her get to sleep),

various other stomach and asthma meds.

>

[Guest guest]

There are many in here who've been through the bathroom problems, so

she is not unusual in that. For our son it was more about feeling

like he was not getting all of his urine out. He would be in the

bathroom for hours and wouldn't come out (that was 5 years ago). That

is when we finally tried meds and within a week there was improvement.

Within a month, it was gone after years of dealing with it. He also

went through wiping until he was bleeding (in both areas). We did the

baby wipes in the trash can thing too. And we've gone through

repeated plugged toilets, but with toilet paper.

Playing with meds is frustrating. We are doing that this time around.

Last time he was on them, they worked at a lower dose and he did

well. This time it's anybody's guess. Plus we are trying therapy

with someone who knows what they are doing this time. It's hard to

tell if anything is working " enough " . We have good days and bad here.

I guess my goal is to get him back on track before we start

homeschooling again next year. He missed half a year this last year

due to this wretched stuff. There are days where I wish I could rip

the OCD out of his head and stomp it into the ground.

Anyway, didn't mean to turn this into a rant (lol). I guess I was

just sharing that we all lose our patience and are frustrated at times

with what we see our kids struggling with. And what can be an answer

for one, isn't necessarily an answer for another. But, it's great to

have this group to share information with, so we can try different

things in hopes that if one things doesn't work, another may help.

BJ

> >

> <<<Am I alone in any of this, or is this the road?>>>

>

> Welcome, Lynn. )

>

> As I was reading your post and all you were describing of your

> daughter, I was thinking. . Yep, uh huh, oh yeah. It all sounds like

> OCD to me. And I think our son has experienced most of those thins at

> different times in his life, since his OCD seems to change tactics at

> times (which is not uncommon).

>

> You are not alone. . And this is the road.

>

> I know that it is not easy living with OCD, but finding others who've

> been there and understand (like this group), will help. Glad you are

> here.

>

> BJ

>

> > Hi, my name is Lynn, I am new to this list. My daughter Sis is 12

> years old. She is on the meds, seraquel, prozac, topomax, diamox (for

> pressure on the brain), melatonin (to help her get to sleep), various

> other stomach and asthma meds.

> >

> > I joined to see if I could gain insight on her OCD. Since joining

> I've been reading about the different but same things other children

> have. Am looking for advice, recommendations, etc. on some things she

> does, or just to know that yes, this is going on with the other

> children also, that I am not alone.

> >

> > Sis demands to have a very structured day. All day she asks what

> we are going to do, are we going somewhere tommorrow. If we have

> things to do, it has to be listed out, and if you break the order, she

> gets upset, repeats over and over she doesn't understand, that we were

> supposed to do this then this. She has fears of things, like of

> something happening to me, or if the dogs get sick. If someone in a

> store coughs, she's gotta get out of there fast, so she won't get

> sick. There are also " bad " thoughts. At times she says it's " the guy

> in her head " that won't leave her alone. He's telling her to count

> things, spell out things, and repeats it over and over. She can't

> stand taking a shower. it's a battle, she'll shake and say she's

> scared. There are times she thinks someone is here. If it's getting

> dark outside she gets anxious about not being able to get enough

> sleep. Her bedtime is 7:00 pm, if it's close to that and we aren;';t

> home, a crying episode. Tough to

> > get to sleep sometimes.....what if, what if, what if. Counts train

> cars, how many numbers it is that her chihuahua stands on his back

> legs, how many numbers of rose bushes, trucks, cars, everything.

> > Am I alone in any of this, or is this the road ?

> >

> >

> > ---------------------------------

> > Get the free toolbar and rest assured with the added security

> of spyware protection.

> >

> >

[Guest guest]

> I forgot to mention how she can't get " clean " while on the potty,

> especially after a bowel movement. I have baby wipes in there, she gets a

> little trash bag, practically fills it up, then calls me in there, I look,

> yep, you're clean. But she doesn't believe it

That is how it was at our house too until we sought help and learned to deal

with it. We began by limiting the amount of wipes she could use and then

supporting her while she dealt with the anxiety that caused. The first

night was awful! But in just a couple of weeks she went from wiping for 45

minutes and still not feeling clean to being able to wipe a normal amount of

times and with MUCH less anxiety. I felt like a mean parent to only allow a

certain amount of wipes, but it worked wonders and she can now use the

bathroom alone most of the time and with little anxiety.

Shaw

game-enthusiast@...

[Guest guest]

In a word, yes! Our son, 16, has been very scary and violent, and no

one else would know, as it is only behind closed doors.

For us it has been about combo of OCD and Bipolar. Now that we are

on the right track, with better medication, things are settling down

some. I understand that sometimes OCD presents first when there is

something else underlying that they are trying to contain or are

overwhelmed by.

Not sure the age of your son? Our son will also deny he needs help,

things are fine, anger is under control and then he will punch a

wall! I believe it's called lack of insight, just a touch of

humour.... We have learned to stay very calm and be flexible to help

contain things while remaining firm about boundaries and limits - a

near impossible task as I'm sure you experience daily from the sound

of it.

My only thought is, as is our experience, that it may not be just ocd

going on, and that it would be critical to get a proper diagnosis or

picture of what all is going on. Don't know where you live and what

facilities are available, but for us the emergency and

hospitalization is what has helped get us headed in the direction to

proper care (hopefully), or at least more comprehensive care.

>

> I am new to this cyber world...entered my first chat line (ocd

chat) two days ago and it has really helped put a new light on a

problem we have been dealing with for a long time. Our family has

been torn apart by our sons ocd. He is also behaviorally out of

contol and I was wondering if any one has a child with ocd and odd

symtems. We are looking at the possibility of residential treatment

but keep thinking we will find the right " thing to help " . He is in

denial won't take medication and our insurance co. is not authorizing

any more therapy for him because it hasn " t seemed to help. In the

meantime we are struggling to cope. He is very controlling and some

of his actions are explosive. The only help we are getting now is

with a family preservation service that comes into the home once a

week or so to help with counceling and to document his and our goings

on. This person " contaminates " our home and my son won " t step where

she walks so he jumps over the spot in the entry and avoids touching

the door handle and completely avoids our dining table. He is having

trouble in school(is very inteligent) but can't get homework

completed sometimes. He doesn " t want my help and is slipping.....he

does enjoy sports activities and copes well outside the home...but

when he is home it is, and can be horrible. Anyone with an afraid

acting out ocd child out there?

>

[Guest guest]

Hey ,

Welcome to this group....I hope you will find here a new family,

As I and many others have...

If you stay with us, you will find support, love, compassion, knowledge and

wisdom from folks who are and have been where you are now...as far as an answer

to your question, I have not found many if any natural remedies to replace the

medications used to treat Still's.

However, I am finding more and more research supporting some very healthful

benefits of a 'natural' diet.....natural foods are being found to diminish the

ravishing effects of an immune system on hyper-drive and even are being shown to

'reset' our inflammatory system. I suggest researching all the info you van

find re inflammation, and of course Still's (what little there is).....anyway, I

wish you the very best on your road ahead.

Many Blessings!

Larry B.

http://docs.yahoo.com/info/terms/

[Guest guest]

Hey ,

Welcome to this group....I hope you will find here a new family,

As I and many others have...

If you stay with us, you will find support, love, compassion, knowledge and

wisdom from folks who are and have been where you are now...as far as an answer

to your question, I have not found many if any natural remedies to replace the

medications used to treat Still's.

However, I am finding more and more research supporting some very healthful

benefits of a 'natural' diet.....natural foods are being found to diminish the

ravishing effects of an immune system on hyper-drive and even are being shown to

'reset' our inflammatory system. I suggest researching all the info you van

find re inflammation, and of course Still's (what little there is).....anyway, I

wish you the very best on your road ahead.

Many Blessings!

Larry B.

http://docs.yahoo.com/info/terms/