New

[Guest guest]

Hi

Welcome to the list. My name is Tracey and we have two daughters Coral

who is 12 and Skylar who will be 10 October. Skylar was diagnosed

autistic at the age of 3. This is a great list. Glad to have you with

us.

Tracey

Nat5787@... wrote:

> Hello Everyone,

> I am new to the group, my name is . I have 3 children, two boys

> and a

> girl. The boys are 6(NT) and 9 months (so far so good). My daughter

> will be 4

> in October and is HF. She was diagnosed and started therapy at 2

> years 4

> months. We recently had a 24hour EEG done and found she is having

> partial

> seizures. We started Tegretol yesterday.

>

> Donelle, we have a few things in common. I am also from the So. Cal

> area

> (Orange County) and have found to be a wonderful resource.

>

> I am looking forward to sharing information and ideas with everyone.

>

>

>

>

[Guest guest]

I've done tons of work in your Area and down in San Diego... nice to have

you on the list... I am also a recent 'joiner' ! If you ever need any

help, don't hesitate - I know alot of the resources you probably do as I've

used them in IEPs/Mediations/Due process(normally we settle everything).

Sounds like youre a good local advocate yourself, if you are, let me know

as I always need people to refer people to..... if you know what I mean !

Somedays my job is overbearing to say the least ! Take Care and peace to

you...

E. , Sr.

Dir, The Office of Advocacy for Autistic Children

U.S. Civil Rights Lobbyist

Lil Mikeys Daddy

808-845-7841 anyone feel free to call... you can call late as I am in

hawaii and 6 hours behind NYC time.

>From: Nat5787@...

>Reply-Autism_in_Girls

>autism_in_girls

>Subject: New

>Date: Wed, 28 Aug 2002 02:16:58 EDT

>

>Hello Everyone,

>I am new to the group, my name is . I have 3 children, two boys and

>a

>girl. The boys are 6(NT) and 9 months (so far so good). My daughter will be

>4

>in October and is HF. She was diagnosed and started therapy at 2 years 4

>months. We recently had a 24hour EEG done and found she is having partial

>seizures. We started Tegretol yesterday.

>

>Donelle, we have a few things in common. I am also from the So. Cal area

>(Orange County) and have found to be a wonderful resource.

>

>I am looking forward to sharing information and ideas with everyone.

>

>

*********************************************

The Office Of Advocacy for Autistic Children

*********************************************

E. ,

Reg. Civil Rights Lobbyist

Calif., D.C. , Nv., Az., Wa., N.Y., Pa., Il

Lil Mikey's Daddy

============================

" We Speak for those who can not, we will fight relentlessly for the Civil

Rights of all Children....disabled or not .. Globally "

============================

Contact Mike for free online advocacy here at this email address or

call if you need immediate assistance at 217-586-7504 Chicago ..or my

assistant in Sacramento Cal, 916-410-0516 ask for , for free phone

advocacy. In person professional advocacy available on a case by case basis.

Peace to the Children.

-----------------------

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Hi : I did my first challenge 2 years ago, and am back doing C2

and startign Saturday. My advice is don't pay attention to the scale.

You really don't see big changes until well into the 12 week program

and the best is near the end. Stick with it. The rewards are many.

Marti

> Hello, my name is and I am new to this club as well as BFL. I

> plan on starting Monday (yes, this is my Christmas present to

> myself). What advise can anyone offer me since I've never

> experienced Body For Life before?

>

> Thanks!!

>

> J

[Guest guest]

Hi !

Welcome. The best advice I can offer you is to read the book cover

to cover, and underline or highlight everything that Bill says to

do. Make a list of things to do--such as goal setting etc. etc.--and

just start doing it. Visit this board regularly and read and/or

share your experience. There are some really wonderful people here

who have a wealth of knowledge when it comes to fitness. You will

learn a lot just by reading the posts here. Keep in touch!

Warmly,

Petra

> Hello, my name is and I am new to this club as well as BFL.

I

> plan on starting Monday (yes, this is my Christmas present to

> myself). What advise can anyone offer me since I've never

> experienced Body For Life before?

>

> Thanks!!

>

>

[Guest guest]

Hello Kate,

Welcome to our group. I am so happy to see you here. I am also thrilled to

hear that you are enjoying your Life Lift program so much. Sleeping better and

having more energy are both such important benefits. I feel certain that the

longer you do Life Lift the more you will realize all of the amazing benefits.

You sound like someone who will be a great addition to our group.

Each person is very different in how much and how quickly they will eliminate

inches and pounds. There are so many factors that will determine this. The main

thing to remember is that your body knows exactly what it is doing and it will

do the best for you if you do the best for it. Feeding it major doses of oxygen

each day with Life Lift is as good as it gets and your body will respond by

eliminating toxins and fat at a speed that is healthy and right for you. Many

lose very quickly and some lose slowly, but one thing is for certain, doing Life

Lift is the best gift you can give your body. You are rebuilding your organs and

the inner structure of your body from the inside out. You are healing your body

from within.

A few helpful hints-

1-Drink plenty of water. You are dissolving toxins with Life Lift and you need

to flush them out of your system.

(If you are using the Body Wrap products it is especially important to drink

plenty of water)

2-Eat every couple of hours to keep your body fueled. Keep it fueled and it

will not need to store fat, thus the fat begins to leave your body.

3-Watch your sodium (salt) and sugar intake. This can make a huge difference.

Read labels. You may be surprised to see that what taste best sometimes may be

the best for you. I am often surprised when I read labels that the things that

look like they may have the highest sodium and calorie count, don't. If you

consume too much sodium, drink more water to flush it out.

4-Do your Life Lift breaths throughout the day, 5 minutes at a time is good.

By doing this you are keeping your body burning fat more efficiently.

5-Alternate your Life Lift workouts. It can make a big difference if you

stagger your workout routines. Your body can get used to a routine and this is

when you may go into a slump. Keep it fresh. It will make a huge difference. For

those of you who have the workout videos it is good to rotate them. Some have

reported the best results come when they rotate the workout #1 and workout#2 or

the stretch band videos in the morning and they do the Reflexology video at

bedtime. Many have reported extreme improvements in their sleep habits too.

Using the Reflexology with Life Lift at bedtime also helps to stimulate the

digestive system so they see an improvement in weight loss from the improvement

in the functioning of their digestive system. It all works together. The better

your internal organs function the better your body will look.

Keep breathing and you will find success in reaching your goals.

Be sure to set your goals. What a perfect time to do this. It is a New Year.

Go for it with all you have!

In setting goals details are important. Write them down and spend a few

minutes a day focusing on what it is that you really want for yourself. Go for

it! You can reach your goals and you deserve to.

Take good care,

Rashelle

Hello,

I just got lifelift, and started about two weeks ago. What a great

program. So far, I am sleeping better, and seem to have more energy,

[Guest guest]

Hello Kate,

I just read this again. I had to tell you how much I loved reading

it. It made my day!

Thanks for the smile,

Rashelle

> Hello,

>

> I just got lifelift, and started about two weeks ago. What a great

> program. So far, I am sleeping better, and seem to have more

energy,

> although I just finished school so do feel very tired, but I think

it

> should wear off soon. I was wondering what the average loss is? I

> think I expected to lose three dress sizes in two weeks=), and I

did

> not measure myself before so don't really know my true progress. I

> do feel as though it may be a little slow though. Any thoughts?

> thanks,

> Kate

>

> ps it is great still, I love that it's low impact, and non

> stressfull, and when following the video it goes by soo fast!

> usually with workout tapes I can't wait for it to end,I get

impatient

> fast, but this is different.

[Guest guest]

The best advice i can give you is to do what we all have done..Trial and Error.

I ask many ??? and do online research before starting new products. It all

depends on what interests you? Candles? (paraffin or soy)Soaps (cold process,

melt and pour???) Body butters? Lotions? Lip balms? Bath bombs? Lotion

sticks?perfumes? I make many different items. I know of alot of good sites for

supplies......let me know what you are interested in and i will forward you some

things. My email is bjh@...

Bobbi Jo

New

I saw this group and thought it would be wonderful for me. I LOVE bath and

body products and would love to learn how to make things like that and

candles for me and special gifts...

Is there a " dummy " way to know what to do ..how to do..and where to do ..

I really would love to learn from all of you

Amy

[Guest guest]

Welcome to all of you " newbies " !!! The best thing I did was a search on E-Bay

for bath and body recipes. Got bunches. One was 500 Bath and Body recipes for

maybe 2-3 dollars. I don't remember because purchased several groups of recipes

-- some for 1 & 2 dollars. These are dutch auctions so if you're not familiar

with them read about them in the user's guide or whatever they call it. Most of

these recipes are sent via e-mail so you receive them quickly. Check it out.

I've used lots of them for my personal use.

Suzanne

New

I saw this group and thought it would be wonderful for me. I LOVE bath and

body products and would love to learn how to make things like that and

candles for me and special gifts...

Is there a " dummy " way to know what to do ..how to do..and where to do ..

I really would love to learn from all of you

Amy

[Guest guest]

Hi Emma,

Welcome to the group! Congratulations on the birth of Ian. My son

's middle name is also . He just turned six. My advice is

to give him lots of hugs and kisses and one from me too!

Also check out www.woodbinehouse.com I would recommend getting their

books on Down syndrome, especially the medical, gross motor and fine motor

skills books.

Roni

Usborne Books For Children

www.ubah.com/J1422

[Guest guest]

Well hello Emma. Your post makes me smile. I have a BIL and SIL that truly

believe their baby is " the cutest baby in the world. " (That's his nickname) ;-)

Of course I tell them all the time their baby is cute BUT ... definitely not as

cute as my babies were! ;-)

Cheryl in VA

[Guest guest]

In a message dated 7/8/2003 12:33:00 AM Eastern Standard Time,

gavinsaunt1@... writes:

> Hi, just thought I would introduce myself. I'm Traci and I live in

> Lancaster, PA. Gavin, age 4, was diagnosed with PDD in January. I'm

> here to learn all I can, as this is all new to me. We still haven't

> really come to terms with this label and we still haven't shared it

> with others. I was wondering if you changed your child's therapies,

> frequency of therapies, etc. We were told that a TSS worker would be

> of benefit to Gavin, but we're unable to look into that at this time

> and I'm not sure how helpful this really would be. Has anyone used a

> TSS helper and was it beneficial? Any information on stategies for

> school and therapies and where we should start would be greatly

> appreciated. My knowledge is VERY limited, so I'm not sure where to

> even begin! Also are there any books that you would recommend?

> Thanks.

> Traci and Gavin

>

Hi Traci!

Welcome to the list. I live in Hamburg, Pa. Maybe some time we could

meet. The label my son has is ASD and some use PDD. I have no idea what the

difference is, but I do know that this extra label has opened new doors for

. It is much easier at an IEP to ask for more services and get them. It

is very difficult to get a handle on this label. I have seen other children

with the same label as my son and they were so totally different that I would

never had known they share anything. Good luck in your search and I'm sure

you'll find a lot of information here. Again, welcome Traci and Gavin.

Judy

[Guest guest]

Just wanted to say Hi . I am mom to Henry 5.5 yrs. Henry is also blind.

Also very very strong!

Take care, Kathie

[Guest guest]

Hi, Welcome. My name is and my son, Damin, is also 10 and has

PDD-NOS along with some other things. He shredded any paper when he

was younger and loved to destroy his hot wheel cars. The younger

years were very difficult, but now he is doing better. Damin is

going into the 4th grade at a collaborative program and making some

progress.

Again, welcome!

-mom to Damin, 10, PDD-NOS, GAD, probable bipolar, probable FG

Syndrome

[Guest guest]

Robin, what a neat idea! Pat K

[Guest guest]

, what is a collaborative program? I'm so glad to see that there are

some other 10 year olds on this list. Pat K

[Guest guest]

My son's collaborative program is called SEAP, specialized elementary

alternative placement. It is a program for children who need more

than what the public school can provide. Two different counties

combined together to create a program specifically for these

neurologically different children. It is physically in the public

school, but the classrooms are away from the other public students.

My son has lunch and recess with his class, but also separate from

the public kids. They will, on occasion, be integrated with the

public kids for a presentation, or even an art class, if they are

able to do so.

Basically, it is inbetween the public school and a private day school.

Hope you understand, I am not that good at explaining things.

-mom to Damin, 10

>

> , what is a collaborative program?

[Guest guest]

What do they teach Damin, and how do they teach him. How many are in his

class? What is the student teacher ratio? Pat K

[Guest guest]

Hi !

Penny - waving from another board....

;-)

new

Hi my name is and I just signed onto this board so thought

I should say hi.

[Guest guest]

> What do they teach Damin, and how do they teach him. How many are

in his

> class? What is the student teacher ratio? Pat K

>

>

They teach him the typical curriculm, math, spelling, science, social

studies. Although Damin is 10 yrs old, he is learning at the 2nd-3rd

grade level. They teach by multisensory approach and repetition.

Lots and lots of hands on activites. Last school year, there were 5

students including Damin, one teacher with two assistants. Over the

summer, there were 7 students including Damin,with one teacher and 2-

3 assistants. There is also a speech and language teacher,

occupational therapist, and adjustment counselor that each spend a

day in the class for activities. I think the max for his class is 8

students and 1 teacher and 2-3 aides. The school has a huge focus on

a sensory diet. Throughout the day, the students do sensory

activities and more often if they need it.

-mom to Damin, 10

[Guest guest]

What state do you live in ? I'm sorry if you've already told us. You

seem to have great services. The PPCD class my son is in started out with 5

last year total (one child only went 3 days a week and she's included in the

five) and they had 9 at the end of the year. There is only one aid. Of

course, I felt my son was getting less one-on-one time or small group time

when the class had almost doubled at the end of the year.

Pam

Re: new

> What do they teach Damin, and how do they teach him. How many are

in his

> class? What is the student teacher ratio? Pat K

>

>

They teach him the typical curriculm, math, spelling, science, social

studies. Although Damin is 10 yrs old, he is learning at the 2nd-3rd

grade level. They teach by multisensory approach and repetition.

Lots and lots of hands on activites. Last school year, there were 5

students including Damin, one teacher with two assistants. Over the

summer, there were 7 students including Damin,with one teacher and 2-

3 assistants. There is also a speech and language teacher,

occupational therapist, and adjustment counselor that each spend a

day in the class for activities. I think the max for his class is 8

students and 1 teacher and 2-3 aides. The school has a huge focus on

a sensory diet. Throughout the day, the students do sensory

activities and more often if they need it.

-mom to Damin, 10

[Guest guest]

Wow,, it sounds like Damin is in a really good school and is doing great!

I am so happy for you. Pat K

[Guest guest]

Wow,, it sounds like Damin is in a really good school and is doing great!

I am so happy for you. Pat K

[Guest guest]

We live in Massachusetts, Worcester County to be exact. The program

Damin attends is 30 miles away in another county, but well worth it.

, mom to Damin, 10

> What state do you live in ? I'm sorry if you've already told

us. You

> seem to have great services. The PPCD class my son is in started

out with 5

> last year total (one child only went 3 days a week and she's

included in the

> five) and they had 9 at the end of the year. There is only one

aid. Of

> course, I felt my son was getting less one-on-one time or small

group time

> when the class had almost doubled at the end of the year.

>

> Pam

> Re: new

>

>

>

> > What do they teach Damin, and how do they teach him. How many

are

> in his

> > class? What is the student teacher ratio? Pat K

> >

> >

> They teach him the typical curriculm, math, spelling, science,

social

> studies. Although Damin is 10 yrs old, he is learning at the 2nd-

3rd

> grade level. They teach by multisensory approach and repetition.

> Lots and lots of hands on activites. Last school year, there

were 5

> students including Damin, one teacher with two assistants. Over

the

> summer, there were 7 students including Damin,with one teacher

and 2-

> 3 assistants. There is also a speech and language teacher,

> occupational therapist, and adjustment counselor that each spend a

> day in the class for activities. I think the max for his class

is 8

> students and 1 teacher and 2-3 aides. The school has a huge

focus on

> a sensory diet. Throughout the day, the students do sensory

> activities and more often if they need it.

>

> -mom to Damin, 10

>

>

>

[Guest guest]

Thanks Pat. It was a struggle to find such a good program. It took

months of looking and a mediation between the school dept. and I to

get here. Definitely more good programs are needed for our kids!

-mom to Damin, 10

> Wow,, it sounds like Damin is in a really good school and is

doing great!

> I am so happy for you. Pat K

>

>

>

[Guest guest]

Hi ,

Its great to hear that is doing well with the titanium rib.

I took my daughter Olivia to be assesed by Dr. Melvin and Dr. Cambell at the Santa Hospital in San TX., a few yrs ago. At the time, they felt that her ribs were too thin, and they feared rib breakage. Her thoracic curve then was at 50. In the end, they didnt rule her out, and they didnt rule her in. Im glad that we checked it out, because it may be an option in the future.

Many respected docs are of the opinion that the titanium rib is superior to subcutaneous (growing) rods.

How long does the average lengthening procedure take, since its an outpatient procedure? Where are you going to get it done.? I heard that a few places are doing it, besides TX.

And to what degree was s scoliosis when the 1st surgery was performed? Has rib breakage ever been a concern?

Olivia was diagnosed with "idiopathic," infantile scoliosis at 5 months. I dont use the term "idiopathic," because I know what caused it. She had a misdiagnosed left subluxed hip from birth, to 5 months. Her scoliosis is "pain induced," scoliosis.

She does have a slight case of Ehlers Danlos Syndrome type 6, but very slight. Its a connective tissue disorder. (lack of collagen).

Olivia is so sassy at this point, I am going crazy...but very glad she is so vocal and articulate.. That will be of benefit to her socially..

Thats really one of the things I worry about most..how will she handle this as she gets older. The normal pressures of society, and how you look...beautiful or not...

I guess we will handle it day by day, and be posotive. Not an easy thing , at times..

Anyway, thanks for joining the list..

I am really glad to know that your son is doing great with the titanium rib.

talk soon,