Thank you

[Guest guest]

Thank

you Debbie -- and Happy Birthday to you!! Birthdays are a wonderful

thing these days - another year we have survived heart disease and were

able to celebrate with family and friends!

Happy

LIFE, guin

debbie simmons wrote:

HAPPY

BIRTHDAY GUIN....

MINE WAS SUNDAY, 51 BITES!!!!!!!

AGAIN, HAPPY BIRTHDAY :-)~ AND MANY YRS OF

HEALTH AND HAPPINESS

DEBBIE

[Guest guest]

Hi ,

I just caught up on this series of postings and I also wanted to say

that I think it is great that you and your daughter are going to do

this together. I too was a severely overweight child, starting at

around age 7 and continuing until I was 20. Though my Mom encouraged

me to lose weight, I had no idea on how to do that. I sympathize

with - teasing is brutal, and much like her, I was an emotional

eater. After a long and hard day of teasing, nothing made me feel

quite as good/bad as eating every piece of junk in the house. I too

did most of my eating in hiding because I was embarassed and

ashamed.

I'm 25 years old, and if you think your daughter would like to talk

to someone my age for questions, support, swapping stories, etc.,

then please give her my email. I would love to talk to her and

support her along the way.

Again, I applaud you for what you are doing and I truly wish you and

the best of luck.

> Hi

>

> I want to say thanks to everyone that offered a warm and

encouraging

> welcome to both my daughter and myself.

>

> Some of the emails that I received where very emotional for me but

a

> big eye opener.

>

> We have taken my daughter to the doctor and they has no trouble

with

> her doing the BFL diet. They encourage it. Just as long as she

keep

> her calcium level up, take vitamin and doesnt skip meals. As for

the

> exercise...again no real issues. Nothing that will be overdoing it

> for her changing body. Like avoid extra heavy weight lifting and

to

> monitor her heart-rate until she is comfortable.

>

> We will be testing ourselves this week to prep for the start of the

> official diet next week. That way we will be able to add to our

> workout without a fight. So watch for our pictures to be posted

> soon. I CANNOT WAIT!!! SHE CANNOT WAIT!!!

>

> I cannot wait for my daughter to walk into school this year feeling

> good about herself. And being able to put to rest the teasing that

> she has been subject to for a couple of years now. Even by what

she

> calls her best friend. This will be her chance to SHINE!!! I am

> very proud of her for making this strong and honest commitment.

>

> Again, thank you to everyone that has offered advice and support

> already. That is so cool to know that we have a trusting place to

> find comfort if we feel like the diet is crashing in on us.

>

> &

[Guest guest]

Welcome to the group!

You and your daughter are going to love the program. I can tell by

your post that you are very committed and excited about the program.

Good for you. Can't wait to see your before pics!!

Mona

http://mybodyforlife.fateback.com

> Hi

>

> I want to say thanks to everyone that offered a warm and

encouraging

> welcome to both my daughter and myself.

>

> Some of the emails that I received where very emotional for me but

a

> big eye opener.

>

> We have taken my daughter to the doctor and they has no trouble

with

> her doing the BFL diet. They encourage it. Just as long as she

keep

> her calcium level up, take vitamin and doesnt skip meals. As for

the

> exercise...again no real issues. Nothing that will be overdoing it

> for her changing body. Like avoid extra heavy weight lifting and

to

> monitor her heart-rate until she is comfortable.

>

> We will be testing ourselves this week to prep for the start of the

> official diet next week. That way we will be able to add to our

> workout without a fight. So watch for our pictures to be posted

> soon. I CANNOT WAIT!!! SHE CANNOT WAIT!!!

>

> I cannot wait for my daughter to walk into school this year feeling

> good about herself. And being able to put to rest the teasing that

> she has been subject to for a couple of years now. Even by what

she

> calls her best friend. This will be her chance to SHINE!!! I am

> very proud of her for making this strong and honest commitment.

>

> Again, thank you to everyone that has offered advice and support

> already. That is so cool to know that we have a trusting place to

> find comfort if we feel like the diet is crashing in on us.

>

> &

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

Brandee, I'm glad I could help. But, no, Ursula is the backbone of

this group -- but she's just finished her nursing school and into her

first nursing job -- so she's pretty busy in addition to being the

mother of a CVID'er, and her husband has recently been diagnosed also.

So -- hats off to Ursula, but glad I could help. We serve a mighty God

who brings peace and love and joy in places where you wouldn't expect it!

In His service,

Dale

[Guest guest]

In a message dated 8/19/2003 6:40:14 PM Pacific Daylight Time,

plwboy2@... writes:

> every one of us is so different so thank you for giving

> me more than one outlook on everything.

>

> God Bless

>

> Vicki

> countin down the days!!!!!!!!!! yay!!!!!!!!!! im ready im ready im

> ready

Ahhh, Vicki, it is out pleasure to answer your questions, soothe your

troubled worries and wipe your fevered brow (metaphorically)! I'm glad we have

helped and we are here with you, now, during and after the switch!

Hugs and blessings, Ann

[Guest guest]

Vicki...don't be too quick to thank us for answering your

questions...the way I figure it, you haven't had surgery yet and

we're still in for a TON more when your post-op...lol...that's ok

hon...bring 'em on!

Hugs

Jo

who couldn't help teasing a younger switch sis.

[Guest guest]

You are very welcome. Breast cancer has touched my extended family as well, and

my Dad passed away a few years back of Non-Hodgkins Lymphoma. What's 5 bucks?

If everyone even just gave a dollar (which I know they can, because I just sold

25 candy bars yesterday within a 2-block area at $1 a piece!) I think you'd be

well over your goal!

Good luck on your 5K - I'd love to do one in my area and might just look into

it. The ones here lately have been 10K's and I don't think I'm ready for that!

Plus I need child care, too. And the advice about just doing your HIIT while

running the race was good, too. Do you think you'll try that? Or just run at a

steady pace? With that encouragement from your dad, I don't know.... )

http://qwesteferral.com/r.jsp?a=Fmu9DBSgHpRfVU541Lz2HA$$ & x

Thank you

...Thank you so much for the donation!! I really appreciate

it and I will post the results of my race after next weekend so you

can see how I did. It will be extra motivation for me, knowing that

part of the money I raised came from a BFL member...teehee!!! I

can't let ya down! My dad donated some and then sent me an email to

tell me he ran a 10k when he was 32 in 59 minutes and then had a

cigarette afterwards...so I have a bit of motivation there as well.

I can't let my pack a day cigarette smoking dad beat me!!! ROFL

M.

[Guest guest]

It's my pleasure ! Good luck on the 5th - I'm sure you'll do

great!

(And thanks for the Christmas card info - that's a great idea!)

-Sharon

(ho usually just lurks and reads :-)

> Sharon,

>

> Thank you for your generous donation....I appreciate it and so will

> the G. Komen foundation.

>

> I wanted to let everyone know about their Christmas card program.

> It's a great organization to donate to and it takes some of the

> stress out of shopping for those you just don't know what to get.

I

> have a lot of relatives that are VERY difficult to buy for or they

> already everything they could want and are wealthy enough to buy

> anything they need or want. So what I do for Christmas for those

> relatives that don't live near me is I make a donation to the

> G. Komen foundation and in return, each person I list on the

website

> receives a beautiful Christmas card imprinted with a message on it

> saying that a monetary donation has been made in their name/honor.

> The foundation does all the addressing and mailing. All you have

to

> do is donate a minimum of $5 per card and type in the addresses and

> names you wish to send the cards to. It's a wonderful way to let

> those in your family (especially the women) know you are thinking

of

> them and helping out a good cause as well.

>

> My family loved this the first year I did it and now I do it every

> year. It takes a lot of stress off of me from having to run

around,

> find gifts, then mail them off. When you have a HUGE extended

> family, this is a terrific way to share the Christmas spirit. I

> think it demonstrates the true meaning of Christmas. As I get

> older, I realize that Christmas is less about the presents

(although

> try and tell my kids that!!!) and more about just being with your

> family and showing you love and care for them. And like I said,

the

> cards are truly beautiful and touching. You can go to the G.

> Komen website in October, which is when they begin their program

and

> get it all taken care of....then you just have to worry about

> running around looking for gifts for the kids!! = ) I enjoy my

> Christmas a lot more this way without having to worry about whether

> the person receiving my gift is going to like it, need it, or even

> use it. And I know my money is well spent for a good cause.

>

> Hopefully, this post doesn't sound too " preachy " or " soap box-y " to

> anyone. I think it's really important and such an unnecessary

cause

> of death for too many women. I know in Nevada, 1500 women will be

> diagnosed with breast cancer this year and of those, 300 will die

> from it. I have been touched by it in my family, as I'm sure some

> of you have.

>

> Thanks again for all the support ya'll have shown me....it's

greatly

> appreciated!!!!!!! = )

>

> M.

[Guest guest]

Got this from "The Doctor " and decided to send it on, This will give our new members history on CB, as well as the Doctors response to my tirade. LOL, I just had to a word in....

CB was really awnry yesterday, and I was doing everything I could think of to calm him down. Then he finally had a BM, as a matter of fact he he had quit a few.. to the point that at 6:30 he had the runs so bad he couldnt make it to the potty ontime. But the behavior change was extreme...suddenly after the first. He was probably having a tummy ache. I still have today to get though...wish me luck LOL

Hope you all have a Wonderful Holiday !

CB's Granny

I did not discount parents on the list. I wrote to them with

honesty and sincerity. Being a parent of a child with a serious condition

does not make your evaluation of information any more valid than any

other person's. But being a scientist and caring about the truth does

provide additional access to information and a different perspective from

which to evaluate evidence. This perspective has been pretty darned

successful in improving things beyond incorrect causal theories of bad

air and bad diets as the cause of disease, cupping, bleeding, and purging

which were approved medical treatments of LESS THAN 100 YEARS AGO My

compassion is and will remain for people who waste their time on blind

alleys when the truth is available to all. Sometimes the truth conflicts

with personal notions of cause and effect, and while this kind of error

is human and excusable, it is remediable by using valid methods of

discovering the truth, not but hot assertions and character

assassination; and the rejection of further inquiry and the people who

are working on your behalf is damaging to no one else but yourself. I am

not those people who apparently wronged you in the past, but may be

looking at me through the lens that they gave you. Why give them that

kind of power? Good luck to you, and thanks for writing.

At 11:25 AM 12/20/2003, you wrote:

Dr

Mulick,

Thank you for sending the information on behavior management. We

in the group appreciate your participation . You asked why we are cynical

and defensive, I can only give you my point of view. My grandchild became

very ill after recieving his 15th month series of vaccine, he had been

experiencing normal age-appropriate development until that point.

He speech completly regressed and disappeared and his aggression became a

constant problem. My children took him to his pediatrician with their

concerns. The Doctor's answer was the onset of " terrible twos "

and that we had better get behavior under control. The physical

examination that took place that day, resulted in the doctor causing my

granchilds ear to bleed. It was only due to my constant nagging that my

children started searching for a reason for his regression. The

process which lasted until he was 2 1/2.

The " no specific dx " WAS the the DX. We

chose autism. as it allowed us the services for speech therapy,and OT. He

then was seen at UCLA ( age 4 ) and was offically dx as high funtioning

autism. I wont even go into how extremely difficult it has been to follow

though with how his behavior and education should be handled, as we

cannot find a school that will or can comply with UCLA's instructions.

This is a bright, funny, loving 6 year old boy, that I and his private

educators believe really has a future.

But the heartbreak and struggle ( including filing a child abuse

report against a public school ...he came home with welts and bruises on

his back and legs and was homeschooled by me for a year ) Has left a

great deal of damage.

This story isn't unique Doctor.....its the

norm.... and when you add the lack of compassion, well....we get cynical

and defensive.

While the group appreciates any and all

information received by professionals, we feel we must take it all with a

grain of salt. We have been misled and misdirected in the past by

such professionals who have not been properly trained in the field of

autism. To my knowledge, most physicians only receive the barest

information on autism in medical school. Based on our history, we

feel that it was our blind trust in these professionals which directly

led to my grandson's autism.

I think that we can all agree that

more research is required before any of us can make a blatent assumption

on the safety of vaccines and the mercury additives. Instead of

blindly following the accepted norm, we feel we need to question

why? Why our children have been exposed to the second most toxic

substance on earth? Why autism has increased from 1 in 10,000 to 1

in 163 in the last five years?

In closing, why not put your money

where your mouth is, so to speak. Instead of discounting the

parents on this list, why not use your reputation to receive grant funds

to study the cause of this disorder that affects so many families.

Thank you for your time and

attention.

Sincerely yours,

Lorna E. Berry

lornaberry@...

A. Mulick, Ph.D.

Professor of Pediatrics & Psychology

The Ohio State University

700 Children'as Drive, CHPB-4

Columbus Oh 43205

<w> 614-722-4700

<fax> 614-722-4718

[No institutional

endorsement of message content implied]

[Guest guest]

Dear Marjorie,

Jim taught me that the majority of porn spammers try to join the list with

an address like abcd123@...

I know how much some list members are offended by porn spam, so I do my best

to

try and ferret out the spammers before they get access to the list, because

it is uncensored.

Therefore, I am very cautious in allowing anyone to sign up using that

format, especially

if they have provided no information in the profile section.

Welcome to the list!

Remember there is no medical advice here ... just good folks sharing what

they know...

Best of health!

Dr. Saul Pressman

--------------------------------------------------------------------------------\

------------------

----Original Message Follows----

From: marjorie vincent <kolabear141@...>

Reply-oxyplus

oxyplus

Subject: Thank you

Date: Thu, 8 Apr 2004 00:50:26 -0400 (EDT)

Thank you for re-considering my application. I have health issues and want

to learn more on this subject.

Sincerely,

Marj

---------------------------------

Post your free ad now! Canada Personals

[Guest guest]

THnakyou to whomever wrote about teh jane pauly show talking about aspergers, OMG that show was so dead on, about my oldest. We have learned to cope with it in our own ways, and really no one looks at him like he is "diffrent", he acts like most 2 year olds.

Thank you

Thank you guys for taking the time to read my long post and reply with your own experiences, it helps to know that I am not just overreacting. I will keep you posted after her eval. Aside from medication (I really want to stay away from meds as long as possible) what other techniques/diets have you used to help your children function more efficiently?e

[Guest guest]

Hello Jenni,

You are such a sweet one. I can't begin to tell you how much your message means

to me.

I always feel my life is wonderful, but every so often when people I love are

hurting, I truly appreciate the love, support and prayers offered.

There is nothing more powerful, or more appreciated than a prayer on our behalf.

No gift means more to me.

Love to you,

Rashelle

's surgery

Just a quick note to let you know that 's surgery went really well.

The doctor is pretty confident that the growth was cancer free but we won't be

100 percent sure until we get the results from the biopsy. Thank you all for

the prayers. I think the entire family got all of about 2 hours sleep last

night. Right now his brother (our Airman who came home for the surgery) is on

one side of him and his dad on the other watching him sleep and rubbing his

head. We are so grateful for such a positive outcome! Thank you all so much

for your prayers and good wishes.

with love,

Jenni

Proud Air Force Mom!

May God guide and protect our troops!

[Guest guest]

Thank you

Liz,

Thank you so much for your words of encouragement. I am in stage 3 of fibrosis. My viral load was 92.6 Mil at the last count. I am currently in my second series of shots. Just did my 7th shot out of 48 Saturday. Last year when I was first diagnosed I Had a load of 3mil. After three months of Peg-Interferon it was 'Undectecable' Two weeks after my 24th shot I was up to 15 mil. Withi 2 months it shot up to the 92.6 mil. The GI Dr did have it retested to confirm that high of a count. This time they have almost doubled my PegIntron 2b. The depression at times if quite overwelming. Thoghts of suicide are very real and not a scary thought. That really concerns my wife and I. We have gotten rid off all the guns in the house. I was seriously thinking one day last week about using it to end my problem.

I have found that my dreams the night before really affect what type of a day I am going to have. It sometimes takes me a while to sort out the dreams with reality when I wake up. I do black out at times and do not remeber coversations or some of my actions. I ahve not acted on these feelings. And so far the three Groups I have joined on have been very helpful with keeping my desire to continue alive. Liz, Dick, Kathy,Pat,Gail,Gil just to mane a few.

For a guy who was going to shut up, I am still makiong alot of noise.

[Guest guest]

I was informed by my transplant coordinator, that when it comes time for me to try TX a whole gal. of water a day is required..Oh and please continue to make noise Chris..Kathy b.Gail Deveaux <gaila@...> wrote:

You need a place to talk and express what you are thinking.Do they have you on dual therapy.Like the needle and pills? You should know that one of the sides is suicide.You have to drink tons of water to help flush out some of the sides.That is one of the most important things to do while on treatment.I know also that while I was on treatment I couldn't have sex cause I was to sore.I don't know in what way it effects men,but I am sure some of the men will fill you in.Take care.

Gail

http://deveauxkennels.tk

mailto:gaila@...

-----Original Message-----From: ccwyland [mailto:ccwyland@...]Sent: December 29, 2004 8:22 PMHepatitis C ; Hepatitis CSupportGroupForDummies Subject: Fw: Thank you

Thank you

Liz,

Thank you so much for your words of encouragement. I am in stage 3 of fibrosis. My viral load was 92.6 Mil at the last count. I am currently in my second series of shots. Just did my 7th shot out of 48 Saturday. Last year when I was first diagnosed I Had a load of 3mil. After three months of Peg-Interferon it was 'Undectecable' Two weeks after my 24th shot I was up to 15 mil. Withi 2 months it shot up to the 92.6 mil. The GI Dr did have it retested to confirm that high of a count. This time they have almost doubled my PegIntron 2b. The depression at times if quite overwelming. Thoghts of suicide are very real and not a scary thought. That really concerns my wife and I. We have gotten rid off all the guns in the house. I was seriously thinking one day last week about using it to end

my problem.

I have found that my dreams the night before really affect what type of a day I am going to have. It sometimes takes me a while to sort out the dreams with reality when I wake up. I do black out at times and do not remeber coversations or some of my actions. I ahve not acted on these feelings. And so far the three Groups I have joined on have been very helpful with keeping my desire to continue alive. Liz, Dick, Kathy,Pat,Gail,Gil just to mane a few.

For a guy who was going to shut up, I am still makiong alot of noise.

Kathy Brunow

[Guest guest]

Dear Adele,

Hi, what a beautiful and touching note. I have added your to my prayers and you also.

Sharon In Ohio

[Guest guest]

Dear Gail,

Prayers help. I have been praying for my son who also is . He has had a box ,as he calls his ICD, for 11 years. He is on his third which is smaller than the first two. The research is amazing. The cardiac care we receive today expands and improves tomorrow. We must remain hopeful and optimistic!!!

I send prayers and good wishes to your . Perhaps you would remember my in yours? The family members such as yourself need many prayers .as well as the doctors and nurses that care for our loved ones.

Blessings,

Adele

Thank you

I would like to say thank you to all those who sent prayers and good wishes to . It has been a rough ride here for a while as you know. The e-mails have helped to get through the tough times and we really appreciated your thoughts and prayers.

GailPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Sharon,

Thank you for the prayers and your kind response.

Peace be with you,

Adele from Massachusetts Peace be with you!!!

[Guest guest]

Hi Robin! Glad you got the tapes!

These aren't "best" tapes so don't have high expectations, but they are easy to follow, not complicated whatsover, so they are good if you have a tendency to get lost with fancy choreography.

The instructors are bubble heads, but I like that they do the workouts outside on the beach! The black man, Kendall something or other, is nice to look at :-)

Hope your posting situation clears up ! Not sure why is messing up, though my email account is doing funny things.

Grapevines,

rjroubik <rjroubik@...> wrote:

I received those tapes in the mail yesterday. Thank you so very much!!! It made my day especially since I've been feeling so blue the past few days. My computer too has been doing goofy thing lately. This note may even post 6 hours later ...or maybe it might not post at at. Who knows. It's a mystery. :-bRobin

[Guest guest]

What workouts are these?

Tonya

>

> I received those tapes in the mail yesterday. Thank you so very

> much!!! It made my day especially since I've been feeling so blue

> the past few days. My computer too has been doing goofy thing

> lately. This note may even post 6 hours later ...or maybe it might

> not post at at. Who knows. It's a mystery. :-b

>

> Robin

>

>

>

>

>

>

>

[Guest guest]

> The black man, Kendall something or

>other, is nice to look at :-)

you must mean kendall hogan... he is the lead on 'crunch: fat blaster: the

next step' which i put on tape for you.

:*carolyn.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 266.7.1 - Release Date: 3/09/2005

[Guest guest]

No problem Dwayne. Feel free to ask any questions or just vent if you need to.

Take care.

Tom

-------------- Original message --------------

hello, im sorry my name id dwayne and makes me feel very good to be

able to communicate with people who relate with me. i just want to say

thank you for your responses and making your presences felt. and i hope

that this can be the beginning of a friendship amongst friends. thank

you again

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

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List manager: (Sexy Mature Artist) Email: Esma1999@...

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List manager: (Sexy Mature Artist) Email: Esma1999@...

[Guest guest]

No problem Dwayne. Feel free to ask any questions or just vent if you need to.

Take care.

Tom

-------------- Original message --------------

hello, im sorry my name id dwayne and makes me feel very good to be

able to communicate with people who relate with me. i just want to say

thank you for your responses and making your presences felt. and i hope

that this can be the beginning of a friendship amongst friends. thank

you again

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

oogroups.com

List manager: (Sexy Mature Artist) Email: Esma1999@...

[Guest guest]

welcome, dwayne. yes, this is a good group. bettylou directed me here

during a time when i was freaking out about a lot of disability-related

changes i was adjusting to. i had been feeding isolated because all the

other lists were mostly parents of SMA kids. this is a nice mix of ages,

experiences and SMA types. i'm 39, have type 2, live in berkeley CA with

my partner of 5 yrs, and run a small business out of my home. i'm glad

this group has been helpful so far.

cheers!

alana

At 11:17 AM 6/27/2005, you wrote:

>hello, im sorry my name id dwayne and makes me feel very good to be

[Guest guest]

Welcome!!

in Lancaster, CaKathleen Bonczyk <kbncyk@...> wrote:

I wish to be a member of this egroup.

__________________________________________________

[Guest guest]

Best of luck, and probably a great choice..........

Thank you

I would like to thank everyone for all of your responses to my posting regarding our possible move to Atlanta. We will not be moving to Atlanta for the time being. So once again thank you.Ralph