Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi , What he may mean about it not being Infantile is that you know what the cause is which is hypotonia from the Prader Willi. has 'true" Idiopathic Infantile Scoliosis because he does not have a syndrome or low muscle tone, and there is no known cause for it. Dr. D'Astous and the Neurologist that we saw both think it is caused from inutero positioning, we will never really know this is just them speculating. I definately would send the x-rays to Dr. D'Astous, he sees alot of children with these rare syndromes and he definately would know if is a candidate for casting. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Welcome R new to the group Hello everyone I am new to the group and would like to say hello. What can changing the way you breathe do for you? Everything! See why tens of thousands agree, Life Lift is the best! http://www.oxygenzoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2004 Report Share Posted May 30, 2004 Hi Wayne, Welcome to our list!!!! Do you have any of the Life Lift tapes yet? If so which ones? Liz On Sat, 29 May 2004 05:50:22 -0000 " cowboy5638 " <wayneswrld6@...> writes: Hello everyone I am new to the group and would like to say hello. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Neeka, I'm 53, have SMA, and have been in a wheelchair since I'm 11. My advise is to keep doing what you're doing. Keep his muscles as flexible as possible. Just love him and treat him like any other kid and remember that we're all here for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Hello Neeka, My name is Shaylene and my 3 yr old little girl Sierra Journey has SMA type 2! This is a wonderful group, feel free to jump into any conversation and ask any questions that you need, everyone here is Great! Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Another organization to try is www.smasupport.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 > Another organization to try is www.smasupport.com thank you. i will try there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hi Sheri, Where do you want to start? What is it you would like to make? There are all kinds of recipes in the archives., just use the search option A good source for supplies comes after you decide what you want to make. Lucinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Thank you for responding Lucinda, I'm getting used to getting no response on the boards and almost forgot to even check messages tonight. I want to do lotions and things like bath salts to start with till I know more about what I'm doing...start off simple and go from there. Any suggestions for starting off simple? I will do as you suggest and do a search for basics... thanks so much.. blessings > > Hi Sheri, > Where do you want to start? What is it you would like to make? > > There are all kinds of recipes in the archives., just use the search > option > A good source for supplies comes after you decide what you want to make. > > Lucinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Sheri, Let's start with bath salts, lotions can be tricky. Bath salts are simple, I would suggest you start with Dead sea salt, Or epsom salt. Here is a very simple recipe 1 lb of dead sea salt Mix 10 drops of lavender essential oil into 1 teaspoon of glycerin, Add this to the salt TAAAAA DAAAAAAAAAAAA Bath salt! You can use essential oils or fragrances oils if you like! Lucinda Bulk Herbs, Spices,fine teas,essential oils and More! http://www.glenbrookfarm.com/herbs Re: New to the group Thank you for responding Lucinda, I'm getting used to getting no response on the boards and almost forgot to even check messages tonight. I want to do lotions and things like bath salts to start with till I know more about what I'm doing...start off simple and go from there. Any suggestions for starting off simple? I will do as you suggest and do a search for basics... thanks so much.. blessings > > Hi Sheri, > Where do you want to start? What is it you would like to make? > > There are all kinds of recipes in the archives., just use the search > option A good source for supplies comes after you decide what you want > to make. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Oh I would have been asking that in a week or two! What about plastic air tight bottles? or does the plastic have/cause some reaction? Jeanette <jeanette_ann_3@...> wrote:Just a quick question (you thought this was simple! LOL) I made bath salts and stored them in plastic baggies and they lost all their scent. Then I was told I had to store them in glass. Then I was told not to use glass because wet hands in the bathroom and glass don't mix. So, what does everyone store them in that keeps the scent in? Thanks a bunch! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hi Lucinda, I'm new to the group and I would like to introduce salts in my line. Can the glycerine be purchased at your local pharmacy? I see this ingredient in most of the receipes that have been posted. Thank You, Rose > Sheri, > Let's start with bath salts, lotions can be tricky. > > Bath salts are simple, I would suggest you start with Dead sea salt, > Or epsom salt. > > Here is a very simple recipe > > 1 lb of dead sea salt > Mix 10 drops of lavender essential oil into 1 teaspoon of glycerin, > Add this to the salt > > TAAAAA DAAAAAAAAAAAA > > Bath salt! > > You can use essential oils or fragrances oils if you like! > > Lucinda > > > Bulk Herbs, Spices,fine teas,essential oils and More! > http://www.glenbrookfarm.com/herbs > > Re: New to the group > > > Thank you for responding Lucinda, > > I'm getting used to getting no response on the boards and almost > forgot to even check messages tonight. > > I want to do lotions and things like bath salts to start with till I > know more about what I'm doing...start off simple and go from there. > Any suggestions for starting off simple? I will do as you suggest > and do a search for basics... thanks so much.. > > blessings > > > > > Hi Sheri, > > Where do you want to start? What is it you would like to make? > > > > There are all kinds of recipes in the archives., just use the search > > option A good source for supplies comes after you decide what you want > > > to > make. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hi Rose. I haven't seen this answered for you so, I will let you know that, I buy mine at my local pharmacy for now. I have to ask for it as it is not on the shelf, but it IS available to the public. Where I am at, I get mine at the pharmacy at Wal-Mart and it is 3.34 for 4 fl. oz. Hope this helps. Oh, and the people who have used the salts I have used glycerin in appreciate my warning about the slippery tub, but they say they LOVE how soft their skin feels from it! Alice in SD ----- Original Message ----- From: kaleilokeonapua Can the glycerine be purchased at your local pharmacy? Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Rose Glycerine that you use in toiletries should be " vegetable glycerin " and not synthetic glycerine that is sold in drug stores....Lucinda sells high quality vegetable glycerin at her site under Oils and Butters...check it out! hth Sherry www.herbalsoap-healingcreams.com Natural Care E-books, booklets, spreadsheets, free downloads Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 In a message dated 10/1/2004 2:01:17 PM Central Daylight Time, dawnhoustontx@... writes: Howdy I am Dawn from Houston Tx. I am 40 and I have MSGetting a divorce from the smuck.. He left because I got sick.I have 3 cats and 2 dogs.I use to survey all around the US for a media research company.I love Dragons they are all around my house and on my computer. If he left cause you were sick then he is a smuck. Hi, my name is Amylee I live North of Dallas on the Oklahoma side. I have a 13 yo with autism and I have PCOS and now the FMS has come back with a vengeance. Dragons are cool in our house it is penguins. Amylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Welcome Dawn! This group is very friendly and wonderful! I have a bumper sticker that says something like 'do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup' that's my only dragon thing New to the Group Howdy I am Dawn from Houston Tx. I am 40 and I have MSGetting a divorce from the smuck.. He left because I got sick.I have 3 cats and 2 dogs.I use to survey all around the US for a media research company.I love Dragons they are all around my house and on my computer. You can reach me at dawnhoustontx@... or Dawn@...I use when I want to talk on Im's..My web page is http://www.geocities.com/dawnhoustontx/index.htmlworking on a better one.My birthday is Aug 19,1964 If there is anything else you would like to know other than I can be a wise a** email me. Take care and Be SafeDawn~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./links Personal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 I have that one and I love it. take care and be safe Dawn -- In , " Don and " <handd1@c...> wrote: > Welcome Dawn! This group is very friendly and wonderful! I have a bumper sticker that says something like 'do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup' that's my only dragon thing > > > New to the Group > > > Howdy I am Dawn from Houston Tx. I am 40 and I have MS > Getting a divorce from the smuck.. He left because I got sick. > I have 3 cats and 2 dogs. > I use to survey all around the US for a media research company. > I love Dragons they are all around my house and on my computer. > > You can reach me at dawnhoustontx@y... or Dawn@s... > > I use when I want to talk on Im's.. > > My web page is http://www.geocities.com/dawnhoustontx/index.html > > working on a better one. > > My birthday is Aug 19,1964 If there is anything else you would like > to know other than I can be a wise a** email me. > > Take care and Be Safe > > Dawn > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives-/messages > > Chat:- Scheduled Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into groups at your convenience and receive no email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician. > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > When nothing is sure, everything is possible. > > --- Margaret Drabble > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 Thanks for you kind words and you are right he is a smuck. I think he will win the smuck of the year. Take care Dawn > > > In a message dated 10/1/2004 2:01:17 PM Central Daylight Time, > dawnhoustontx@y... writes: > > Howdy I am Dawn from Houston Tx. I am 40 and I have MS > Getting a divorce from the smuck.. He left because I got sick. > I have 3 cats and 2 dogs. > I use to survey all around the US for a media research company. > I love Dragons they are all around my house and on my computer. > > > If he left cause you were sick then he is a smuck. > Hi, my name is Amylee I live North of Dallas on the Oklahoma side. I have a > 13 yo with autism and I have PCOS and now the FMS has come back with a > vengeance. Dragons are cool in our house it is penguins. > > Amylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 In a message dated 10/3/2004 11:00:10 AM Central Daylight Time, dawnhoustontx@... writes: Thanks for you kind words and you are right he is a smuck. I think he will win the smuck of the year. That is so true. A good mate is a godsend in our situation but a Smuck just gets in the way. I told mine to leave I didn't want to burden him. He didn't go he just let me rant and rave. I say that sometimes a good cat is worth ten Smucks. lol. Amylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Welcome to the group Dawn!!! I'm Helen 53, from NW Ohio... I don't have MS, but my niece in law does ( she was just diagnoised last year with it ( Tell us how you handle your days and keep us updated... ((( Welcoming Hugs ))) Helen Howdy I am Dawn from Houston Tx. I am 40 and I have MSGetting a divorce from the smuck.. He left because I got sick.I have 3 cats and 2 dogs.I use to survey all around the US for a media research company.I love Dragons they are all around my house and on my computer. You can reach me at dawnhoustontx@... or Dawn@...I use when I want to talk on Im's..My web page is http://www.geocities.com/dawnhoustontx/index.htmlworking on a better one.My birthday is Aug 19,1964 If there is anything else you would like to know other than I can be a wise a** email me. Take care and Be SafeDawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Hi Helen I go to doc's too much of the time. LOL Right now I am working on a web page to help others not with just MS but what ever can help. I will also have jokes and thoughts. I can still walk most of the time. LOL My hubby and I are getting divorce. I think he could not handle it. He should win the smuck of the year.LOL Take care and be safe Dawn > Welcome to the group Dawn!!! > I'm Helen 53, from NW Ohio... I don't have MS, but my niece in law does > ( she was just diagnoised last year with it ( Tell us how you handle your > days and keep us updated... > ((( Welcoming Hugs ))) > Helen > > Howdy I am Dawn from Houston Tx. I am 40 and I have MS > Getting a divorce from the smuck.. He left because I got sick. > I have 3 cats and 2 dogs. > I use to survey all around the US for a media research company. > I love Dragons they are all around my house and on my computer. > > You can reach me at dawnhoustontx@y... or Dawn@s... > > I use when I want to talk on Im's.. > > My web page is http://www.geocities.com/dawnhoustontx/index.html > > working on a better one. > > My birthday is Aug 19,1964 If there is anything else you would like > to know other than I can be a wise a** email me. > > Take care and Be Safe > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Hi Dawn, Thats nice making a site to help others... I wish I had that talent ) Keep the positive outlook!!! ((( Happy Hugs ))) Helen Hi Helen I go to doc's too much of the time. LOLRight now I am working on a web page to help others not with just MS but what ever can help. I will also have jokes and thoughts. I can still walk most of the time. LOLMy hubby and I are getting divorce. I think he could not handle it. He should win the smuck of the year.LOLTake care and be safe Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Hi Angel Bear You have alot of links I would like to add if you have some time email me dawnhoustontx@... Dawn Take care > Hi Dawn, > Thats nice making a site to help others... I wish I had that talent ) > Keep the positive outlook!!! > ((( Happy Hugs ))) > Helen > > Hi Helen > I go to doc's too much of the time. LOL > Right now I am working on a web page to help others > not with just MS but what ever can help. > I will also have jokes and thoughts. > I can still walk most of the time. LOL > My hubby and I are getting divorce. I think he could not > handle it. He should win the smuck of the year.LOL > Take care and be safe > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 At 01:20 PM 10/11/2004 -0700, you wrote: > >Hello Everyone: >I'm Moran and new to this group and hope to learn a great deal. >Ï'm a Mother of a beautiful 14 month old son named andre diagnosed with very mild hemi left CP and stopped vaccinations due to information sent to me in regards to the high content of mercury which affects the Neurological system. >I currently continue to get educated and get as much of information possible to inform others. >Does anyone know how to get the Vaccination laws from CA, I have contacted a state representative in California and they keep forwarding my request to different Senators. It has been a month with no copies of the vaccination laws. >Also, I would like to know how do I get a waiver for school. > >Thank you, > > Welcome I sent you some CP and vaccination info It could very well be vaccine injury And California is very easy When it comes time for school you just sign the back of hte form they give you - a philosophical exemption. The only laws are in relation to school (much later for andre) http://www.nccn.net/~wwithin/exemptions.htm for links to each state's laws Sheri -------------------------------------------------------- Sheri Nakken, R.N., MA, Classical Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account vaccineinfo@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. ****** " Just look at us. Everything is backwards; everything is upside down. Doctors destroy health, lawyers destroy justice, universities destroy knowledge, governments destroy freedom, the major media destroy information and religions destroy spirituality " .... Ellner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 I am new here too. The holidays are coming up but with planning you can get through it. I am sure a lot of these experts can tell us how to handle the holidays. > Hi All, > > I am so happy to find an online support group. > > I am 50, married, with a 12 and 4 year old at home. > > I was gifted with Bill's book 3 ½ years ago and except for periods of back > pain or denial, have been attempting the lifestyle changes ever since. > Though I have never officially entered a challenge, I am considering the > Nov.1. > > My biggest hurdles are large extended family gatherings…Here comes > Thanksgiving and Christmas. > > I am brand new to the internet, so please excuse any cyber mistakes. > > > > Nice to know there are others out there making good decisions for fitness! > > > > TJ > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.