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got it

mel

At 03:40 PM 5/3/01 -0700, you wrote:

>I'm not getting messages...can you guys tell me if you get this?

>

>Thanks,

>

>

>

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Dear ,

I not only got your message, I'm also receiving a lot of other notes

from people saying they can't send (or is it receive?) messages through

mail. I don't know what is up, but I don't really use for my e-mail

and I don't seem to have a problem.

However, I did log on to last night and it looks like every single

message I've sent and received (well over 5,000 by now for the 2 groups)

is still sitting there waiting for me! It's just too hard to read everything

in my regular mail box, but to read it again on is going to be impossible!

Oh, well, what's a sick guy to do? Gotta find the time.

I love you all.

Hugs,

ie B

fbertaud@...

Don & wrote:

I'm not getting messages...can you guys tell me if you get this?Thanks,

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Some others I know were having trouble too. Maybe was constipated for

a while there! LOL

Shaye

testing

can't log onto the groups.... wondering if mail is going through

Our members map

http://.homestead.com/locations.html

Our Message Board

http://www.voy.com/21568/

Check out these great Molds!!

http://soapwerks.com/martinworld.htm

Member Kae's Site... Awesome oil Prices!

http://www.olivetreesoaps.com/

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

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yes Terri it came through !

IN BB

Terri Wagner <twagner@...> wrote: can't log onto the groups.... wondering if mail is going throughOur members maphttp://.homestead.com/locations.htmlOur Message Boardhttp://www.voy.com/21568/Check out these great Molds!!http://soapwerks.com/martinworld.htmMember Kae's Site... Awesome oil Prices!http://www.olivetreesoaps.com/All posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only.

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I got your message, Terri.

Dee

showed an unfound page earlier...

we working?

Terri

Big Smiles...Creations

Graphics by AngelKeeper____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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That image is awesome Dee!!!

Colleen

Country Meadow Creations

__________________________________________________

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Donna,

I can see you fine...welcome

Serra

grace4_u wrote:

> Just joined and am testing to see if I am active or not. Donna

>

--

Watch this space for the pre-opening of my webstore!!!

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In a message dated 8/21/02 7:18:19 AM Pacific Daylight Time,

rdill@... writes:

>

> We approached Janet's education with a different attitude toward

> testing. We allowed it to be done. The testing (varied which tests

> were used from year to year) gave a reasonably consistent answer and

> confirmation that Janet was not falling back. This was particularly

> good when in mid-teens they said to expect the test results to drop

> because people with down syndrome plateau, rather than continuing

> learning. Jan is still learning at 29, but things like math skills take

> constant use to maintain or improvement.

>

The only testing I've had problems with over the years is the IQ testing.

Most IQ tests are structured on giving increasingly difficult material, in a

predescribed order, until the child fails.

These are the problems I have with that approach

1) It sets the child up for failure and frustration

2) will quickly shut down if she thinks she is being tested rather

than taught

3) her learning is often non-linear. SHe'll pick up more advanced concepts

and miss " easier " concepts. I see many of her issues as more of an LD than a

MR problem.... but I can't ever convince the school psychologists of that!

4) Most school psychologists I've met are on a power trip! They tend to

insist on test formats that are based on 's weaknesses (like language

processing). I've had several nasty fights over the test format.

5) When the test results are inaccurate, then the school expectations are

diminished. At this point the school has decided she can't learn to read

based on the IQ tests putting her still at a Kindergarten level. (She's is

going into 5th grade). Which is nuts.

- Becky

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We approached Janet's education with a different attitude toward

testing. We allowed it to be done. The testing (varied which tests

were used from year to year) gave a reasonably consistent answer and

confirmation that Janet was not falling back. This was particularly

good when in mid-teens they said to expect the test results to drop

because people with down syndrome plateau, rather than continuing

learning. Jan is still learning at 29, but things like math skills take

constant use to maintain or improvement.

Our educational aims for Janet have always been simple. We want her to

keep learning from where she is today. We also want her to keep being

challenged to both learn and use what she knows, so that she won't lose

what skills she has. I guess it is no different at 29 than it was at

9. Jan has things she's working on, some of them toward new achievement

and some in maintenance mode.

I understand that testing is bad if they use it to prove that they

shouldn't educate. We never had that problem since our view was that

education and expectations weren't based upon tests, but on improving

from her current-state capabilities which are not what the tests

measure.

Rick

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Seems to be working fine, at least in the North Sea.

Regards

Colin Jefferson-

Medic DNO Alpha.

Testing

Just testing to see if the list is quiet or my Puters broken...

Cheers,

Brash \ Gavin Lines

Senior Nurse Supervisor

International SOS \ Cabinda Gulf Oil Company

e-mail: Amed2@...

Telephone: CTN. 8 345 2696

Via Aberdeen 01224 334000 Cabinda Ext. 2696

Member Information:

List owner: Ian Sharpe Owner@...

Editor: Ross Boardman Editor@...

Post message: egroups

Subscribe: -subscribeegroups

Unsubscribe: -unsubscribeegroups

Thank you for supporting Remote Medics Online.

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Hi ,

Your computer is working

Everyone must be on holiday................

OwenD

Testing

Just testing to see if the list is quiet or my Puters broken...

Cheers,

Brash \ Gavin Lines

Senior Nurse Supervisor

International SOS \ Cabinda Gulf Oil Company

e-mail: Amed2@...

Telephone: CTN. 8 345 2696

Via Aberdeen 01224 334000 Cabinda Ext. 2696

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Guest guest

yep.....

seems like I'm on an ocean cruise to nowhere in the north sea sun...! (but

cant find the bar, casino or swimming pool!)

what you up for your simulated holiday .... playing on the beach making

sandcastles?? (only joking!)

enjoy!

serious question - which do you feel is better - chemical activated icepacks

(something like Koolpak) or waterjel style dressings .... how long does the

cooling power of water-jel last when compared to Koolpak...?

any ideas??

best wishes from a non holiday maker

Re: Testing

Hi ,

Your computer is working

Everyone must be on holiday................

OwenD

Testing

Just testing to see if the list is quiet or my Puters broken...

Cheers,

Brash \ Gavin Lines

Senior Nurse Supervisor

International SOS \ Cabinda Gulf Oil Company

e-mail: Amed2@...

Telephone: CTN. 8 345 2696

Via Aberdeen 01224 334000 Cabinda Ext. 2696

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Yep! Me...

Testing

This is a test...

Had someone say they had trouble sending to the list.... no posts yesterday

so I'm checking to see if things will go through

Anyone else have problems sending to the list?

Terri

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I see ya Mar! Do you see me?

/shaye

testing

Testing, testing, 1 2 3

I had problems yesterday so am just getting around to my emails

tonight. Trying to send email to group to see what happens.

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You came through ... that's about all I can help with. My hubby uses

OutLook and I use IncrediMail so I'm a stranger to OutLook.... I used to use

OutLook Express. I know there is a big difference.

Congrats on the new computer. We'll be looking for a new system in the

Spring... hubby will want to built it himself though so we'll be going

parts " shopping. Just up that mechanic's alley!

We use Norton so I can't help there either, but if you don't get any answers

I'll have my hubby drop you a line... don't be scared if you see an email

from someone called squidley that's him (motorcycle riding nickname!)

Terri

..

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Thanks Terri

It's just going to take time.

Re: testing

You came through ... that's about all I can help with. My hubby uses

OutLook and I use IncrediMail so I'm a stranger to OutLook.... I used to

use

OutLook Express. I know there is a big difference.

Congrats on the new computer. We'll be looking for a new system in the

Spring... hubby will want to built it himself though so we'll be going

parts " shopping. Just up that mechanic's alley!

We use Norton so I can't help there either, but if you don't get any

answers

I'll have my hubby drop you a line... don't be scared if you see an

email

from someone called squidley that's him (motorcycle riding nickname!)

Terri

..

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I've got this really conservative doctor who is a good neuro but is only

treating me because a friend has Lyme and he consults with Burrascano, so he is

treating me.

What you say is interesting, and I'm a serious researcher. Can you give me any

leads to track this down? A doctor? So, are you saying there are seven of

you, 4 Lyme positive with bad tests from Igenex but some different ones from

Focus. Who are they? Are you associated with them in any way? Where did you

get your Hokama stats? How do you know that this cigua like toxin attacks the

liver, other organs and CNS? Which researchers?

Beck Spelce

skyqtee wrote:

> Beck,

> I am glad you tested postive for the coinfections. As you may already know

> testing for these bugs

> are difficult. I have a friend who has been treating lyme for about 6

> months and was wondering

> if it was really lyme since he saw no improvement on IV rocephin. He also

> tested negative for the all the

> coinfections with Igenex and MDL. Then we got info on a laboratory called

> Focus in California and

> and they found 2 coinfections which changed his antibiotics protocol. I

> don't know how he is doing

> on this new protocol yet. Lyme especially, is like a Trojan Horse

> everything hops on board.

>

> Anyhow, I have several friends 3 pos with myco and 3 with Lyme who are

> still sick. To make a long story short they have all tested positive for

> cigua. So I really don't know the connection

> yet but I think this is significant. From what I understand there have been

> over 200 samples sent to Hokama

> from doctors who are dealing with the sickest people and 95 % have come up

> positive.

> This cigua like lipid toxin attacks the liver, other organs and central

> nervous system. Now the reseachers

> are trying to figure out the chemistry of this toxin and also determine what

> is causing it. They think it is some sort of infectious agent. I think it

> may be worse than lyme or myco. I would like to see as many people with

> chronic illness get tested.

>

> Please consider next time you have to draw blood. Thank You

>

> Re: hep c and lyme

>

> > Jan,

> >

> > I've tested for coinfections and gratefully have none.

> >

> > Could you please explain the importance of Dr. Homama's test and it's

> > relationship to burgdorferi and liver enzymes?

> >

> > Yes, I had a tick bite (only saw a palm sized rash). The Universe put a

> > spanner in the works by having me bitten 3 times within 3 weeks by Brown

> > Recluse Spiders, so for a long time, I blamed the problems on the BR

> > Bites and my month later " flu " from hell. The rash persisted off and on

> > for maybe 4 years. The doctor would just give me hydrocortisone cream

> > for it.

> >

> > I lived adjacent to a suburban golf course and ran 2 miles every other

> > day. There were loads of deer, couldn;t grow anything outside without

> > wire cages. I ran across the golf course, where the little dears loved

> > to come out in the early morning mist and " talk " to one another. I

> > thought them charming.

> >

> > I had a neg. Western Blot in 1996, then a Biaxin prequel PCR with

> > Igenex. was positive for DNA.

> >

> > Beck

> >

> > pnutmm92647 wrote:

> >

> > > Dear Beck,

> > > Please take one step in testing the next time you have a blood

> > > draw. Have you also tested for coinfections yet? I would strongly

> > > suggest the

> > > following:

> > >

> > > 1. Test for coinfections

> > > 2. Test for cigua like lipid toxin (This is way up on the list

> > > since you have liver involvement)

> > >

> > > p.s. were you ever bitten by a tick? I know that many who have the

> > > disease don't recall a tick bite or bullseye rash but did you ever

> > > notice any kind of rash and then get sick immediately?

> > >

> > > To better health

> > >

> > > -Jan

> >

> >

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Our second child (of 5) had DS and died just before his 4th birthday. We

decided to have another child after his death, but had three miscarriages in

a row, so we had ourselves tested. Our karyotypes were normal. The

miscarriages were probably due to a hormonal problem, which was easily

corrected, and we went on to have healthy child no. 4. On the other hand,

child no. 5 (aka Mr. Surprise) also has DS, although it is probably related

to " advanced parental age. "

Bev

testing

Hey! I just wanted to know if any of you had ever had testing done on

yourselves. I've just experienced my second miscarriage in 3 mths. We're

having a karyotype etc done tomorrow. I pray there isnt a link. Sydnie is

almost 3 and want so much for her to have a brother/sister. My dr said he

felt in his gut there wasnt anything wrong with either one of us but wants

to make sure. Any suggestions?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

www.marykay.com/atate526

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What else besides a karyotype? My in-expert opinion is that unless

Sydnie has translocation DS you aren't going to find anything wrong

with either you or your DH chromsomally. Anyway, I've had a total of 7

miscarriages and after m/c #4 we had a full work, so email me with any

questions. I do wonder if I (we) have sticky chromsomes or some such

thing given our history.

Anne

On Monday, March 31, 2003, at 07:25 PM, Angie Tate wrote:

> Hey! I just wanted to know if any of you had ever had testing done on

> yourselves. I've just experienced my second miscarriage in 3 mths.

> We're having a karyotype etc done tomorrow. I pray there isnt a link.

> Sydnie is almost 3 and want so much for her to have a brother/sister.

> My dr said he felt in his gut there wasnt anything wrong with either

> one of us but wants to make sure. Any suggestions?

> ~Angie

> May God Bless You As He Has Us

> www.babiesonline.com/babies/s/sydniebrooke

> www.marykay.com/atate526

>

>

>

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Yes, I have been tested. We do have the translocation type and I am a

carrier. I had 3 miscarriages in 2 years before but no testing was

done then. About 5% of DS in translocation and only 1% is hereditary. I

also have an older daughter and she is not even a carrier. However there are

and have been quite a few children with DS in my family. I have taught this

to medical students (and a few doctors) so if I can help just ask.

Jessie, mom of , 38, and the light of my life.

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Donna,

Hi. Are your posts coming through yet? I heard that there are some problems

with comcast and aol. I hope they come through otherwise go to the web site

to read the posts. still cant figure out whats wrong. <A

HREF= " " >! Groups : </A>

You might want to contact comcast if you can.

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I am not familiar with this test. You need to find out if the test can be

administered as frequently as you wish to monitor, whether it be yearly or more

often. Many standardized tests can not be done more than once every 12 months

or the results are considered invalid.

In Texas I have found that most schools use the Brigance to measure progress,

and frequent testing doesn't affect reliability or validity on testing results.

The only problem I have run into is when they release a new version -- you can't

compare the results of one version to another. You can resolve this by having

the school continue to use the same version, but somewhere down the line you

will have to switch over to the latest test.

The Brigance covers a broad span of grade/age levels. And you should be able to

use the results (weaknesses) to write your child's IEPs.

Barb

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