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On Wed, 28 Feb 2001 16:47:14

Vicky Gifford wrote:

>Hi again Mike

>

>Out of interest, if you're a patient of Dr Ali, what makes you recommend

>Dr Hyams and not Dr Ali himself?

>

>Just wondered.

>

>take care

>

>Vicky

>

>

Only because Tess is in the UK did I recommend

Dr Hyams. If she was in the US I'd would recommend

Dr. Ali.

Mike

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  • 2 weeks later...
Guest guest

At 10:36 AM 3/10/01 -0600, you wrote:

>I am a sick Gulf War Vet, I have been battling this illness for 2 years

>now, I have gone through treatments for

>fungus(yeast), virus', and mycoplasma(fermentans). All treatments went

>good and I was really improving, and when the improving stopped my Dr

>checked me for heavy metals, my hair showed high levels of mercury,

>arsenic, antimony, bismuth, and tin with lower levels of other metals.

>I'm in the process of getting my amalgams changed. After this is done,

>I'm planning to try DMSA for chelation, has anybody here have any

>experience with it? bad results? good results?

>I want to do this as safe as possible, I have read through Andy Cutlers,

>Ziff, and Huggins' books. The books just don't provide you with real

>world experience.

>

>Thanks

>Tom

>

>

>

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Tom,

You may not have heard that hair analysis has been recently found to be

totally unreliable. You may want additional tests to confirm the fact that

you have a build up of heavy metals in your body before embarking on this

therapy. Steve B.

New member

>

>

>

>

> > I am a sick Gulf War Vet, I have been battling this illness for 2 years

> > now, I have gone through treatments for

> > fungus(yeast), virus', and mycoplasma(fermentans). All treatments went

> > good and I was really improving, and when the improving stopped my Dr

> > checked me for heavy metals, my hair showed high levels of mercury,

> > arsenic, antimony, bismuth, and tin with lower levels of other metals.

> > I'm in the process of getting my amalgams changed. After this is done,

> > I'm planning to try DMSA for chelation, has anybody here have any

> > experience with it? bad results? good results?

> > I want to do this as safe as possible, I have read through Andy

> Cutlers,

> > Ziff, and Huggins' books. The books just don't provide you with real

> > world experience.

> >

> > Thanks

> > Tom

> >

> >

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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  • 3 weeks later...
Guest guest

Hi Lizz

My name is Kim and I live in Leicester , Nice to have you in our group.

Kim Fuoco

New Member

> Hi All! I have just subscribed to this list and am glad to hear of so

many

> soapers so close!

>

> I'm Lizz from Thimbleberry Hill Soapworks in Livonia (Finger Lakes west).

> I've been soaping for five plus years and added them to Thimbleberry Hill

in

> 1997. In about a month I will be opening a small shop in Geneseo, NY.

>

> May I begin with a question? So many of your messages have attachments.

> Why? Because I never open attachments or read mail with them I'm afraid

that

> I'll miss something!

>

> Thanks for opening your list to me.

> Lizz

>

>

> Our members map

> http://.homestead.com/locations.html

>

> Our Message Board

> http://www.voy.com/21568/

>

> Special Invite for members

> http://soapwerks.com/martinrectangle.htm

>

>

> All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

>

>

>

>

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Hi Lizz, My name is Kathy, and I live in Niagara Falls. I just joined the

group a couple of months ago, so I still have a lot to learn. Get all the

information about the gathering we are having this summer. Hope you can join

us. Kathy

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Lizz, Welcome to the list! Im Shaye and I am about 20 miles east of

Rochester. Ontario, NY.

Shaye

The Soap Shack

www.mysoapshack.com

New Member

Hi All! I have just subscribed to this list and am glad to hear of so many

soapers so close!

I'm Lizz from Thimbleberry Hill Soapworks in Livonia (Finger Lakes west).

I've been soaping for five plus years and added them to Thimbleberry Hill in

1997. In about a month I will be opening a small shop in Geneseo, NY.

May I begin with a question? So many of your messages have attachments.

Why? Because I never open attachments or read mail with them I'm afraid

that

I'll miss something!

Thanks for opening your list to me.

Lizz

Our members map

http://.homestead.com/locations.html

Our Message Board

http://www.voy.com/21568/

Special Invite for members

http://soapwerks.com/martinrectangle.htm

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

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Guest guest

Wow! yep sure is! Maybe your 1880's ancestors went to church where I live.

Our house use to be a Methodist church..

I have two girls in grades 2 and 5 going to Wayne Central.

Shaye

The Soap Shack

www.mysoapshack.com

Re: New Member

Ontario!!! I'm a 1969 grad of Wayne Central! My family has been (and

still is) in Ontario since the late 1880's. Small World.

Lizz

Our members map

http://.homestead.com/locations.html

Our Message Board

http://www.voy.com/21568/

Special Invite for members

http://soapwerks.com/martinrectangle.htm

All posts to this list are copyrighted by post author. They may NOT be

forwarded, copied, or used in anyway without the permission of the post

author with the exception of answering posts to this list. Posts are

personal opinions only.

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Guest guest

Welcome Lizz - I'm Penny and live in Orchard Park (near Buffalo). We relocated here in Sept 2000. If anyone knows of good campgrounds around here, please let me know.

Good luck with your shop, I'm so envious of you.

Penny

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Guest guest

Gathering??!! We have a small group of soaper friend that meet each year in

CAnandaigua. I was this year's cochair. If you need ideas, help, etc., just

let me know.

Lizz

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Guest guest

It is you!!! I saw the email address and looked in my notes from last year

and found you! It is too bad we had to cancel this year's gathering at the

last minute. I had some good stuff lined up to do. Maybe next year!

Lizz

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Hi Lizz

I'm and I live in Ilion (just east of Utica) and we're all

happy to have you join us. Good luck on your new shop and

we're all envious of you. Will it be totally soaps and toiletries

or do you do other crafts you will have there?

As far as the attachments, I'm not sure why you're seeing

attachments. I never noticed that we had a lot of attachments

unless they're pictures of people's soaps. But those are usually

on display in the "files" section of our Home Page.

Anyways, welcome to our group and maybe you;d like to join

us in our little get-together this summer.

- Ilion

New Member

Hi All! I have just subscribed to this list and am glad to hear of so many soapers so close! I'm Lizz from Thimbleberry Hill Soapworks in Livonia (Finger Lakes west). I've been soaping for five plus years and added them to Thimbleberry Hill in 1997. In about a month I will be opening a small shop in Geneseo, NY.May I begin with a question? So many of your messages have attachments. Why? Because I never open attachments or read mail with them I'm afraid that I'll miss something! Thanks for opening your list to me.LizzOur members maphttp://.homestead.com/locations.htmlOur Message Boardhttp://www.voy.com/21568/Special Invite for membershttp://soapwerks.com/martinrectangle.htmAll posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only.

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Guest guest

Hi Lizz! Remember me? We were at the WNY Gathering together last Spring at

Sharon's B & B. I'm glad you found this list, it really is a very nice place to

be.

Welcome, welcome, welcome,

(in Spencerport)

Body & Soap

Esavard@... wrote:

> Hi All! I have just subscribed to this list and am glad to hear of so many

> soapers so close!

>

> I'm Lizz from Thimbleberry Hill Soapworks in Livonia (Finger Lakes west).

> I've been soaping for five plus years and added them to Thimbleberry Hill in

> 1997. In about a month I will be opening a small shop in Geneseo, NY.

>

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Guest guest

Hi Lizz,

Welcome to the list! I'm Terri... list creator, and I live in Baldwinsville/Syracuse. Feel free to kick back and relax on this list. We're a friendly crowd.

Hope to see you at the gathering!Terri

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Guest guest

I'm the only one here, till you joined, that was there last year. I wish I had

been able to make it this year, it was such a wonderful experience for me.

These ladies are hoping to get together sometime soon, probably in the summer,

to

learn and make stuff, and of course talk until we get froggy! I hope you will

join us as you have so much to teach us! By the way, after your crockpot demo

last year, I stopped on the way home and bought one--although I haven't mastered

it yet, I keep trying! Terri only does crockpot and she's a whiz, right honey?

Esavard@... wrote:

> It is you!!! I saw the email address and looked in my notes from last year

> and found you! It is too bad we had to cancel this year's gathering at the

> last minute. I had some good stuff lined up to do. Maybe next year!

>

> Lizz

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Guest guest

Canandaigua Gathering

Due to committment conflicts the Gathering has been cancelled. I wish we had

know about you guys cuz we could have met anyway if you all wanted to attend.

It is a great weekend. One of our group, Sharon and her husband Ray, owns

Habersham Inn B & B in Canandaigua and hosts us in her lovely B & B. We have a

cookout on Friday night and then hold a swap with a common theme. This year

the swap was based on different types of wrapping. Of course we talk and

talk and laugh and talk.

Saturday (after one of Ray's delicious breakfasts) we have demos in the

morning and hold a craft class in the afternoon. (Has been basket making or

painting.) Saturday night we go to 's Valley Inn in Honeoye for

dinner. 's is owned and operated by our hostess's husband- best

garlic mashed potatoes around!

Saturday night we share samples that are donated to us from places like

Brambleberry, Sweetcakes, FNWL etc. We also talk and laugh and talk and

laugh.

Sunday morning after a WONDEFUL brunch prepared by Ray we all hug and head

home.

Wonderful friends, Wonderful weekend, Wonderful soapin'.

I'm really missing it already! Hope I can join you at your gathering.

Lizz

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  • 2 weeks later...
Guest guest

Patty,

Welcome! I'm kinda new myself, but feel right at home here. It's a great

group for sharing info, sob stories, jokes, advice, whatever!

~ Mom to 10 1/2 DS and 6

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Hi :

Welcome to the group here. This is a wonderful group and I'm sure you will

enjoy it immensely. I also remember those feelings at the beginning when you go

through a grieving type process as you wonder what your life will be like with

your newest member. But, you know what, life is pretty good. As you can see in

my signature, Noah is 17 mos. old and he is doing great even with a slight heart

problem. I wouldn't trade him for anything as I'm sure you are already feeling

that way about your son, . Again, welcome, and feel free to email

anytime.

Mommy to - 3 NDA and Noah - 17 mos. DS

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  • 1 month later...
Guest guest

Welcome, Thanks for sharing your story. I have never had to take the drug.

I know that many heart medications can cause severe reactions and I hope they

will find one that you can tolerate. I take beta pace as it is the only one

I have ever been able to tolerate. That Anaramaonie (excuse spelling) nearly

wiped me out for good.

Please believe that in the end you will do fine! I am one of the ones who

had a very hard time dealing with my icd. I have had a total of 4. Truly

you may never love the idea of it being there but you will learn to be glad

it is and know that you need it. I m one of the loonies who even tried to go

without one for 2 years and let me tell you it is by the Grace of God that I

am here and living.

So much happens so fast I don't know if it the age we are or what but it was

hard for me to adjust to all I couldn't do. I have always been a goer and a

doer. Different people will react in different ways.

Know that you are never alone with this group. We allhave different

conditions and different life styles but we all have one thing in common and

that is are friend the zapper.

Take each day one at a time look for the funny things and the good things.

Someday that maybe hard to find but then you can look at it like this, this

is only today tomorrow could be better so you got to keep it together and try.

Blessing to you and your family please know that you are in my prayers.

Sharon in Ohio

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Guest guest

Welcome, Thanks for sharing your story. I have never had to take the drug.

I know that many heart medications can cause severe reactions and I hope they

will find one that you can tolerate. I take beta pace as it is the only one

I have ever been able to tolerate. That Anaramaonie (excuse spelling) nearly

wiped me out for good.

Please believe that in the end you will do fine! I am one of the ones who

had a very hard time dealing with my icd. I have had a total of 4. Truly

you may never love the idea of it being there but you will learn to be glad

it is and know that you need it. I m one of the loonies who even tried to go

without one for 2 years and let me tell you it is by the Grace of God that I

am here and living.

So much happens so fast I don't know if it the age we are or what but it was

hard for me to adjust to all I couldn't do. I have always been a goer and a

doer. Different people will react in different ways.

Know that you are never alone with this group. We allhave different

conditions and different life styles but we all have one thing in common and

that is are friend the zapper.

Take each day one at a time look for the funny things and the good things.

Someday that maybe hard to find but then you can look at it like this, this

is only today tomorrow could be better so you got to keep it together and try.

Blessing to you and your family please know that you are in my prayers.

Sharon in Ohio

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Guest guest

Welcome to the Zapper board...

Re: coping w/ICD... w/out zaps it took me just about 1 yr to come

full circle in " dealing w/feelings " w/regard to ICD placement... and

in talking w/others online, I think if you recieve a " zap " it will

take a little longer... often one tends to lose ground after a " zap "

if what I gather from chatting w/those that have been " zapped " is

correct. May I suggest that you try to find a support group either

here on this board, in another online heart chat or in person... this

has been of tremendous help in dealing w/the ICD for many other

ICD'ers. You can e-mail me at Naojeca@... for some links

to 'chats if you're interested.

Re: Coreg... I know others that are on this med... some have a

difficult time in the beginning... some aren't able to continue

taking it... and others have had great success w/it... one in

particular couldn't take " full doesage " in the beginning so they let

him continue at 1/2 dose for quite some time and then eventually got

him to full dosage... and in the 2+ yrs he's been on it his EF has

risen from 20% to 60% ... it just doesn't get much better :) So if

it's at all possible, stick w/Coreg and hopefully you'll have great

results as well... Good luck to you

JES :) in NJ, USA

God created your face... You create the expression :)

> Hi,board. I am a new AICD patient. I received my converter last

Weds.

> at Lutheran Hospital, Ft. Wayne, Ind.

I am aware that this is common practice to treat CHF and high blood

pressure with Coreg but I think I am one that cannot tolerate it.

Hope I don't scare anyone, but I'm just telling what happened to

me. I will see what happens next on Fri. I ma also taking Norvasc,

aldactone and avapro, along with aspirin, plavix and several

vitamins. I hope that God's blessings will be on all and pray that

he will help those how ask in his name. He will not Fail. I know

that first hand God Bless, teacherzap

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Guest guest

Welcome to the Zapper board...

Re: coping w/ICD... w/out zaps it took me just about 1 yr to come

full circle in " dealing w/feelings " w/regard to ICD placement... and

in talking w/others online, I think if you recieve a " zap " it will

take a little longer... often one tends to lose ground after a " zap "

if what I gather from chatting w/those that have been " zapped " is

correct. May I suggest that you try to find a support group either

here on this board, in another online heart chat or in person... this

has been of tremendous help in dealing w/the ICD for many other

ICD'ers. You can e-mail me at Naojeca@... for some links

to 'chats if you're interested.

Re: Coreg... I know others that are on this med... some have a

difficult time in the beginning... some aren't able to continue

taking it... and others have had great success w/it... one in

particular couldn't take " full doesage " in the beginning so they let

him continue at 1/2 dose for quite some time and then eventually got

him to full dosage... and in the 2+ yrs he's been on it his EF has

risen from 20% to 60% ... it just doesn't get much better :) So if

it's at all possible, stick w/Coreg and hopefully you'll have great

results as well... Good luck to you

JES :) in NJ, USA

God created your face... You create the expression :)

> Hi,board. I am a new AICD patient. I received my converter last

Weds.

> at Lutheran Hospital, Ft. Wayne, Ind.

I am aware that this is common practice to treat CHF and high blood

pressure with Coreg but I think I am one that cannot tolerate it.

Hope I don't scare anyone, but I'm just telling what happened to

me. I will see what happens next on Fri. I ma also taking Norvasc,

aldactone and avapro, along with aspirin, plavix and several

vitamins. I hope that God's blessings will be on all and pray that

he will help those how ask in his name. He will not Fail. I know

that first hand God Bless, teacherzap

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Guest guest

Hi, Teach, and welcome aboard! This is a wonderful list, both for the

ICD folks

and for their families. (I'm the family, not the patient, in my case....

am here to

learn more about my husband's unit and condition).

As to your Coreg med., there are many many different meds. available

to boost

heart function. The ones my husband takes are digoxin, and captopril. He

has

metoprolol to help reg. the arrythmia probs. Lipitor for the cholesterol

factor.

Lasix for water retention/CHF issues. He's also got wise docs, who put

him

on the lowest possible doses of the above, to minimize side effects. You

can

research the various drugs, and bring your research to your dr.'s

attention.

As a teacher, you should excel at this! Most drs. like a patient who

does this

for him/herself. Some get insulted. If yours is the latter, dump his

butt. :)

That really sucks that you were so athletic and active, and still had

an MI.

Life can be so very unfair, can't it?

Glad to meet you, jump in with your questions and concerns any time.

Sue

--

" She was not quite what you would call refined.

She was not quite what you would call unrefined.

She was the kind of person that keeps a parrot. "

-- Mark Twain

Rich and Sue Owens

http://www.geocities.com/Yosemite/Meadows/7457/index3.html

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Guest guest

Hi, Teach, and welcome aboard! This is a wonderful list, both for the

ICD folks

and for their families. (I'm the family, not the patient, in my case....

am here to

learn more about my husband's unit and condition).

As to your Coreg med., there are many many different meds. available

to boost

heart function. The ones my husband takes are digoxin, and captopril. He

has

metoprolol to help reg. the arrythmia probs. Lipitor for the cholesterol

factor.

Lasix for water retention/CHF issues. He's also got wise docs, who put

him

on the lowest possible doses of the above, to minimize side effects. You

can

research the various drugs, and bring your research to your dr.'s

attention.

As a teacher, you should excel at this! Most drs. like a patient who

does this

for him/herself. Some get insulted. If yours is the latter, dump his

butt. :)

That really sucks that you were so athletic and active, and still had

an MI.

Life can be so very unfair, can't it?

Glad to meet you, jump in with your questions and concerns any time.

Sue

--

" She was not quite what you would call refined.

She was not quite what you would call unrefined.

She was the kind of person that keeps a parrot. "

-- Mark Twain

Rich and Sue Owens

http://www.geocities.com/Yosemite/Meadows/7457/index3.html

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