New member

[Guest guest]

Welcome Kellie from (Dookster).

http://www.geocities.com/hollywood/location/5712/index.html

New Member

From: "k adams" <mwa@...>Hi My name is Kellie. Three years ago I was diagnosed withvasculitis. It has changed my life dramatically. I am glad I founda place where I can share my thoughts about having a chronic illness. Would love to talk with others who have similiar illnesses to giveinspiration, share information on diseases etc. Thanks Kellie------------------------------------------------------------------------Now's your chance to get organized! Get the Web's lowest prices onPalm PDAs and accessories at Accompany, the leader in group buyingVisit us today at start saving!1/2513/3/_/_/_/953354486/------------------------------------------------------------------------SCHEDULED CHATS FOR MARCH2nd Tuesday Night/Wednesday AfternoonAuckland time zone Wednesday 15th 3pmLos Angeles time zone Tuesday 14th 6pmNew York time zone Tuesday 14th 9pmSydney time zone Wednesday 15th 1pm4th Saturday Night/Sunday Afternoon of the MonthAuckland time zone Sunday 26th 3pmLos Angeles time zone Saturday 25th 6pmNew York time zone Saturday 25th 9pmSydney time zone Sunday 26th 1pmMembers Only Chat Room is situated at /chat/

[Guest guest]

, Thankyou for welcoming me into the group. I am so glad I have finally found a place to share. I am sure you will be hearing from me soon. Please write back anytime. Kellie

New Member

From: "k adams" <mwa@...>Hi My name is Kellie. Three years ago I was diagnosed withvasculitis. It has changed my life dramatically. I am glad I founda place where I can share my thoughts about having a chronic illness. Would love to talk with others who have similiar illnesses to giveinspiration, share information on diseases etc. Thanks Kellie------------------------------------------------------------------------Now's your chance to get organized! Get the Web's lowest prices onPalm PDAs and accessories at Accompany, the leader in group buyingVisit us today at start saving!1/2513/3/_/_/_/953354486/------------------------------------------------------------------------SCHEDULED CHATS FOR MARCH2nd Tuesday Night/Wednesday AfternoonAuckland time zone Wednesday 15th 3pmLos Angeles time zone Tuesday 14th 6pmNew York time zone Tuesday 14th 9pmSydney time zone Wednesday 15th 1pm4th Saturday Night/Sunday Afternoon of the MonthAuckland time zone Sunday 26th 3pmLos Angeles time zone Saturday 25th 6pmNew York time zone Saturday 25th 9pmSydney time zone Sunday 26th 1pmMembers Only Chat Room is situated at /chat/

[Guest guest]

Hi, ,

we're all here to hear you ... about your illness and troubles, or

whatever comes to mind. You can even post a couple of graphics like some

have, and you can read Aisha's daily jokes, and smile a little (or a

lot), or whine and vent a little (or a lot) as you need to.

vanessa

--

Help The Epilepsy Connection to:

TEACH understanding so people will be able to pronounce the word

epilepsy and understand what it isn't.

SHOW society that accepting those with epilepsy benefits them

personally.

TELL OTHERS that fear cripples and ignorance is the monster-people with

epilepsy are human beings with abilities, talents and dreams.

CALL & CONNECT: 714-998-0391

EMAIL: motzko@...

SURF THE WEB: epilepsy-connect.org

[Guest guest]

Thanks I will probably be doing a lot of all of those. Its great to

have found such a site with such a great group of people. Thanks again,

Kellie

Re: New Member

> From: DiDomenico <vanessadd@...>

>

> Hi, ,

>

> we're all here to hear you ... about your illness and troubles, or

> whatever comes to mind. You can even post a couple of graphics like some

> have, and you can read Aisha's daily jokes, and smile a little (or a

> lot), or whine and vent a little (or a lot) as you need to.

>

> vanessa

>

> --

> Help The Epilepsy Connection to:

> TEACH understanding so people will be able to pronounce the word

> epilepsy and understand what it isn't.

> SHOW society that accepting those with epilepsy benefits them

> personally.

> TELL OTHERS that fear cripples and ignorance is the monster-people with

> epilepsy are human beings with abilities, talents and dreams.

> CALL & CONNECT: 714-998-0391

> EMAIL: motzko@...

> SURF THE WEB: epilepsy-connect.org

>

>

>

> ------------------------------------------------------------------------

> You have a voice mail message waiting for you at iHello.com:

> 1/2377/3/_/_/_/953441581/

> ------------------------------------------------------------------------

>

> SCHEDULED CHATS FOR MARCH

>

> 2nd Tuesday Night/Wednesday Afternoon

> Auckland time zone Wednesday 15th 3pm

> Los Angeles time zone Tuesday 14th 6pm

> New York time zone Tuesday 14th 9pm

> Sydney time zone Wednesday 15th 1pm

>

> 4th Saturday Night/Sunday Afternoon of the Month

> Auckland time zone Sunday 26th 3pm

> Los Angeles time zone Saturday 25th 6pm

> New York time zone Saturday 25th 9pm

> Sydney time zone Sunday 26th 1pm

>

> Members Only Chat Room is situated at

/chat/

>

>

[Guest guest]

Oh Lillian,

I am so sorry to hear your story! I am also a musician who cannot play - I totally know *hug*

What is lymphedema? Can you sue the dr?

Welcome to the family sweetie! Vent, bitch complain, - be yourself. We unconditionally love all. *hug* SO sorry to hear that you cannot play.... oh how I know that one, and I too love the guitar.

xox Aisha.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aishaMailing list: AishaElderwyn-subscribeegroupsBeing Sick:

[Guest guest]

In a message dated 05/18/2000 11:55:38 PM Central Daylight Time,

aisha@... writes:

<< What is lymphedema? Can you sue the dr?

Lymphedema is caused when the lymphatic vessels of the arm are damaged or

blocked. In my case, they were damaged. When he sucked fat out, he sucked out

lymphatics. I have mild swelling in both arms, stage 1. I have to pump and do

manual lymph drainage. I do not want to go to stage 2. What bothers me is

that I paid $3500 to get this condition. I asked him if it would hurt my

hands and he said no.

We have an attorney working on the case. I can't talk about details, as much

as I would like to, because of legalities. (

> Welcome to the family sweetie! Vent, bitch complain, - be yourself.

Myself...a stubborn Cuban who won't let this happen to anyone else. The

squeaky wheel gets the grease, or so they say.

Lillian

[Guest guest]

Welcome to our happy family. Sorry you are here because you are sick but is

nice seeing ya anyway. Hope this helps you as much as it has helped me.

Everyone is so good here even on the really bad days. If I can ever help you

please let me know.

Tina1

>From: " Lillian Newman " <lills4@...>

>Reply-egroups

>egroups

>Subject: new member

>Date: Fri, 19 May 2000 04:36:57 -0000

>

>Hi Everyone,

>

>My name is Lillian. I had cosmetic surgery...liposuction, the " new

>safe ultrasound method " and I got a permanent cardiovascular

>condition called lymphedema in both arms from it. I have

>documentation that states that it is a direct complication of the

>surgery.

>

>Words cannot express the sadness that I have felt and am struggling

>to understand why the doctor did not warn me about lymphedema. He

>said nothing prior to the surgery...and did not tell me about it

>until the swelling persisted post surgery.

>

>I asked him if the surgery would hurt my ability to use my hands, as

>I am a guitarist. He assured me it would not.

>

>If you know anyone who is considering this, tell them to be happy

>with who they are. I get edema pumped out of both arms 3x a week.

>

>Life has changed forever.

>

>Lillian

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

In a message dated 05/21/2000 12:15:41 PM Central Daylight Time,

healthyu2000@... writes:

<< have they ever suggested any ways to detox and clear your lympph

nodes?Just wondering >>

Manual Lymph Drainage. I get that 3 x a week and do it myself, but it's not

working alone.

Lymphedema Pump - one on order, get it thursday. insurance won't cover it,

and we have to pay $3700 for it.

That's basically what I am faced with. Pardon my dissappointment. I have a

successful soapmaking company that I may need to close this year if my

condition deteriorates. I have already cut production from 20 batches to 5

batches per month.

I HATE the doctor who operated on me. He ruined my life.

Lillian

[Guest guest]

have they ever suggested any ways to detox and clear your lympph nodes?Just

wondering

Sheena:)

Lillian Newman wrote:

> Hi Everyone,

>

> My name is Lillian. I had cosmetic surgery..

> * Members Profiles, locations and birthdays

> * DAILY LIVE CHAT!!

> * Medical Resources, and more.... http://www.elderwyn.com/members

[Guest guest]

Welcome Amy!

You might try www.duff.net/zapper

We have chats on Tues. at 9AM EST and Thurs. at 8PM EST.

Glad to have you!

Beth (ICD since 4/98 due to Vtach at the age of 39 then)

[Guest guest]

Hi Amy,

My name is Mike, and I'm new to the site also. I'm am also new to owning a

defibrillator (3 weeks)! In March the day before my 41st birthday I passed

out while jogging during my lunch break, and later test in the hospital

revealed 3 arteries almost completely blocked. After by-pass surgery they

discovered an irregular heartbeat, and to make a long story short they

discovered that I had a non-sustained V-tach which lead to the Guidant AICD

in my chest 3 weeks ago. There are no local support groups in my area

(Central Pennsylvania), so I really enjoy the site. Hope to hear from you at

one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take care.

Mike

[Guest guest]

Amy,

Welcome to the group. Hope you enjoy it. Duff has put together a great

spot for us bionic bunny's.

Pete

" If you want to live a long and happy life,

get a chronic disease and manage it. " Oliver ll Holmes

Visit www.healthyheartmarket.com

New Member

Hi everyone.

My name is Amy Accardo, and I have had my pacemaker/ defibrillator

since 1994. I have Hypertrophic Cardiomyopathy, and my heart just

gets confused sometimes, so it needs help. I can't believe I'm just

now finding out about this site, but I'm really excited about it. God

Bless you all, and e-mail me if you'd like. )

------------------------------------------------------------------------

Make PayPal your friend.

Sign up today and get a $5 bonus.

1/5024/9/_/6079/_/960476118/

------------------------------------------------------------------------

[Guest guest]

Hi Amy,

My name is Tom. It seems we have the same type box. I have the

arrhythmia problem. And I've had my box since 1994. Now I'm on my second

one. I hope you're doing okay. Let us know if you have any questions. Good

luck.

Tom

"Pete @ Healthy Heart Market" wrote:

Amy,

Welcome to the group. Hope you enjoy it. Duff has put together

a great

spot for us bionic bunny's.

Pete

"If you want to live a long and happy life,

get a chronic disease and manage it. " Oliver ll Holmes

Visit www.healthyheartmarket.com

New Member

Hi everyone.

My name is Amy Accardo, and I have had my pacemaker/ defibrillator

since 1994. I have Hypertrophic Cardiomyopathy, and my heart just

gets confused sometimes, so it needs help. I can't believe I'm just

now finding out about this site, but I'm really excited about it. God

Bless you all, and e-mail me if you'd like. )

------------------------------------------------------------------------

Make PayPal your friend.

Sign up today and get a $5 bonus.

1/5024/9/_/6079/_/960476118/

------------------------------------------------------------------------

------------------------------------------------------------------------

Want to win airfare to Vegas for you and 20 friends, $15,000 and a

suite at Bellagio for New Year's? Or 2 roundtrip tickets anywhere in

the U.S. given away daily? Go to Expedia.com for your chance to win...

1/5292/9/_/6079/_/960485155/

------------------------------------------------------------------------

[Guest guest]

Hi Tom.

Thank you for your response. I am doing very well. I am on my third device. I had my first replacement in 1998 because my battery was low. Then, in February of this year, I woke up with my defibrillator firing.... repeatedly. I knew I felt fine and couldn't figure out what was going on. I went to the ER and got checked. There, they determined that my leads were probably bad. They think it was because I had been working out, and since my box was in my abdomen, sit ups were not the best thing for me. Now my device is in my chest, and after some adjustment, I feel great! Take care and good luck.

Amy

New Member Hi everyone. My name is Amy Accardo, and I have had my pacemaker/ defibrillator since 1994. I have Hypertrophic Cardiomyopathy, and my heart just gets confused sometimes, so it needs help. I can't believe I'm just now finding out about this site, but I'm really excited about it. God Bless you all, and e-mail me if you'd like. ) ------------------------------------------------------------------------ Make PayPal your friend. Sign up today and get a $5 bonus. 1/5024/9/_/6079/_/960476118/ ------------------------------------------------------------------------ ------------------------------------------------------------------------ Want to win airfare to Vegas for you and 20 friends, $15,000 and a suite at Bellagio for New Year's? Or 2 roundtrip tickets anywhere in the U.S. given away daily? Go to Expedia.com for your chance to win... 1/5292/9/_/6079/_/960485155/ ------------------------------------------------------------------------

[Guest guest]

My name is Phyllis and I have had my defibrillator since 1996 (1st) and 2 nd one

since 1998. Its nice hearing from others with an ICD. I am planning to take

my first vacation in August with my ICD. I can't get into chat rooms but

enjoy your messages. I live in Wisconsin and there are no support groups in

the area.

New Member

Date: Thu, 8 Jun 2000 14:35:42 -0700

[Original message contained attachments.]

[Guest guest]

Hi ,

Good to hear from you! When all this happened the first thing that went

through my mind was, why? I'm too young, so on and so on! With no local

support groups this site helped me realize that there are lots of others out

there. Jogging, don't know if I'll every be doing that again. Start cardiac

rehab next week, but think in the future I'll stick to walking : ) I passed

out, hit the ground (hard too), and came out of it by someone asking if I'm

OK. Then it seemed like only seconds until an ambulance arrived. I guess

I'm fortunate. But anyway I just wanted to say hello and say thanks for

sharing your story. Every little bit of information really helps when your

new to all of this. Take care and keep in touch!

Mike

[Guest guest]

Phyllis,

Where in Wisconsin. I have a Medtronic ICD. Live in la Crosse.

Jan

New Member

> Date: Thu, 8 Jun 2000 14:35:42 -0700

>

> [Original message contained attachments.]

>

>

>

> ------------------------------------------------------------------------

> Free @Backup service! Click here for your free trial of @Backup.

> @Backup is the most convenient way to securely protect and access

> your files online. Try it now and receive 300 MyPoints.

> 1/4935/9/_/6079/_/960501431/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Jan, I live in Milwaukee and have a Metronic ICD too. And to all the others,

I really enjoyed hearing from all of you. I only wish I knew about the site

sooner. Its great being in contact with other people with ICD's. Looking

forward to further correspondence.

New Member

> Date: Thu, 8 Jun 2000 14:35:42 -0700

>

> [Original message contained attachments.]

>

>

>

> ------------------------------------------------------------------------

> Free @Backup service! Click here for your free trial of @Backup.

> @Backup is the most convenient way to securely protect and access

> your files online. Try it now and receive 300 MyPoints.

> 1/4935/9/_/6079/_/960501431/

> ------------------------------------------------------------------------

>

>

------------------------------------------------------------------------

Remember four years of good friends, bad clothes, explosive chemistry

experiments.

1/4051/9/_/6079/_/960510204/

------------------------------------------------------------------------

[Guest guest]

Hi Amy,

Ginnie here. ICD 9/98, v-fib, sudden cardiac death, full flat lined for

three minutes. But still here, Thank God! Nice to meetcha!!!

Do you know about the cardiac chat on Weds. and Sundays? I usually cannot

make them cause I work part time at my church on those nights, but I have

made many friends through that network. for further info, you can email

ICDJES@..., she is the coordinator.

Peace,

Ginnie

[Guest guest]

Hi Amy! I am new to the group as well.I survived an episode of Sudden

Cardiac Death (SCD) in 12/91 at age 33. I got my first ICD in 1/91 my

second 6/95 and due to get my third soon. Doctors are unclear what

caused/causes the electrical malfunction that puts my herat into VT/DR. It

stems from the center of my heart. Although I had a tough run the first 3-4

years I have been doing great the last 5 years.

At 02:55 PM 6/8/00 +0000, you wrote:

>Hi everyone.

> My name is Amy Accardo, and I have had my pacemaker/ defibrillator

>since 1994. I have Hypertrophic Cardiomyopathy, and my heart just

>gets confused sometimes, so it needs help. I can't believe I'm just

>now finding out about this site, but I'm really excited about it. God

>Bless you all, and e-mail me if you'd like. )

>

>

>------------------------------------------------------------------------

>Make PayPal your friend.

>Sign up today and get a $5 bonus.

>1/5024/9/_/6079/_/960476118/

>------------------------------------------------------------------------

>

>

>

[Guest guest]

Hey Mike- I was jogging when I started experiencing non-sustained episodes

of VT and later that night I went into DF and was pretty much dead. I was

in a coma and on life support for 3 days. It is pretty shocking to have

something like this happen when you think you are healthy. I no longer

jog, but I do walk/hike almost everyday and work out on lite weights. Most

people in the ICD support groups I attend are much older, so it is

refreshing to see ICD recpients clsoer in age sharing their stories! Take

care,

At 05:17 PM 6/8/00 -0400, you wrote:

>Hi Amy,

>My name is Mike, and I'm new to the site also. I'm am also new to owning a

>defibrillator (3 weeks)! In March the day before my 41st birthday I passed

>out while jogging during my lunch break, and later test in the hospital

>revealed 3 arteries almost completely blocked. After by-pass surgery they

>discovered an irregular heartbeat, and to make a long story short they

>discovered that I had a non-sustained V-tach which lead to the Guidant AICD

>in my chest 3 weeks ago. There are no local support groups in my area

>(Central Pennsylvania), so I really enjoy the site. Hope to hear from you

at

>one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take care.

>Mike

>

>------------------------------------------------------------------------

>Old school buds here:

>1/4057/9/_/6079/_/960499070/

>------------------------------------------------------------------------

>

>

>

[Guest guest]

Hi Phyllis, my name is . I have been able to enjoy many trips thanks

to the securty of having the ICD. Enjoy yourself! R

At 04:57 PM 6/8/00 -0500, you wrote:

>My name is Phyllis and I have had my defibrillator since 1996 (1st) and 2

nd one since 1998. Its nice hearing from others with an ICD. I am

planning to take my first vacation in August with my ICD. I can't get

into chat rooms but enjoy your messages. I live in Wisconsin and there

are no support groups in the area.

> New Member

>Date: Thu, 8 Jun 2000 14:35:42 -0700

>

>[Original message contained attachments.]

>

>

>

>------------------------------------------------------------------------

>Free @Backup service! Click here for your free trial of @Backup.

>@Backup is the most convenient way to securely protect and access

>your files online. Try it now and receive 300 MyPoints.

>1/4935/9/_/6079/_/960501431/

>------------------------------------------------------------------------

>

>

>

[Guest guest]

Hi, I am glad (?) to see that there are people in our age group (30-45)

who are dealing with this. I was 36, exercised regularly, no smoke, no

drink, and had this happen to me after doing yard work and falling in the

shower (has anyone else have an attack occur in the shower?). I had mine

implanted in 9/99 and now am on betapace to control PVC and VT. It's

frustrating to not be able to exercise as much as I used to, but am glad

to be alive. I am always worried about the my lifespan since the ICD has

only been around less than 20 years.

On Thu, 8 Jun 2000, L wrote:

> Hey Mike- I was jogging when I started experiencing non-sustained episodes

> of VT and later that night I went into DF and was pretty much dead. I was

> in a coma and on life support for 3 days. It is pretty shocking to have

> something like this happen when you think you are healthy. I no longer

> jog, but I do walk/hike almost everyday and work out on lite weights. Most

> people in the ICD support groups I attend are much older, so it is

> refreshing to see ICD recpients clsoer in age sharing their stories! Take

> care,

> At 05:17 PM 6/8/00 -0400, you wrote:

> >Hi Amy,

> >My name is Mike, and I'm new to the site also. I'm am also new to owning a

> >defibrillator (3 weeks)! In March the day before my 41st birthday I passed

> >out while jogging during my lunch break, and later test in the hospital

> >revealed 3 arteries almost completely blocked. After by-pass surgery they

> >discovered an irregular heartbeat, and to make a long story short they

> >discovered that I had a non-sustained V-tach which lead to the Guidant AICD

> >in my chest 3 weeks ago. There are no local support groups in my area

> >(Central Pennsylvania), so I really enjoy the site. Hope to hear from you

> at

> >one of the chat sessions on Tuesdays, Thursdays or Saturdays. Take care.

> >Mike

> >

> >------------------------------------------------------------------------

> >Old school buds here:

> >1/4057/9/_/6079/_/960499070/

> >------------------------------------------------------------------------

> >

> >

> >

>

>

> ------------------------------------------------------------------------

> Free @Backup service! Click here for your free trial of @Backup.

> @Backup is the most convenient way to securely protect and access

> your files online. Try it now and receive 300 MyPoints.

> 1/4935/9/_/6079/_/960511165/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

Mike, I live in NE PA and there are no support groups here.

On Thu, 8 Jun 2000, L wrote:

> Hi Phyllis, my name is . I have been able to enjoy many trips thanks

> to the securty of having the ICD. Enjoy yourself! R

> At 04:57 PM 6/8/00 -0500, you wrote:

> >My name is Phyllis and I have had my defibrillator since 1996 (1st) and 2

> nd one since 1998. Its nice hearing from others with an ICD. I am

> planning to take my first vacation in August with my ICD. I can't get

> into chat rooms but enjoy your messages. I live in Wisconsin and there

> are no support groups in the area.

> > New Member

> >Date: Thu, 8 Jun 2000 14:35:42 -0700

> >

> >[Original message contained attachments.]

> >

> >

> >

> >------------------------------------------------------------------------

> >Free @Backup service! Click here for your free trial of @Backup.

> >@Backup is the most convenient way to securely protect and access

> >your files online. Try it now and receive 300 MyPoints.

> >1/4935/9/_/6079/_/960501431/

> >------------------------------------------------------------------------

> >

> >

> >

>

>

> ------------------------------------------------------------------------

> Free @Backup service! Click here for your free trial of @Backup.

> @Backup is the most convenient way to securely protect and access

> your files online. Try it now and receive 300 MyPoints.

> 1/4935/9/_/6079/_/960511468/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

Mike, just have to adjust for what's best for you. After implant, I went

four months with no PVCS, no shock, then I decided to jog a mile, then I

stopped and guess what happened! You just can't tell , just have to reach

a comfort level!

On Thu, 8 Jun 2000 stcapital7@... wrote:

> Hi ,

> Good to hear from you! When all this happened the first thing that went

> through my mind was, why? I'm too young, so on and so on! With no local

> support groups this site helped me realize that there are lots of others out

> there. Jogging, don't know if I'll every be doing that again. Start cardiac

> rehab next week, but think in the future I'll stick to walking : ) I passed

> out, hit the ground (hard too), and came out of it by someone asking if I'm

> OK. Then it seemed like only seconds until an ambulance arrived. I guess

> I'm fortunate. But anyway I just wanted to say hello and say thanks for

> sharing your story. Every little bit of information really helps when your

> new to all of this. Take care and keep in touch!

> Mike

>

> ------------------------------------------------------------------------

> Remember four years of good friends, bad clothes, explosive chemistry

> experiments.

> 1/4051/9/_/6079/_/960517756/

> ------------------------------------------------------------------------

>

>

>