Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Hi , I have a 9yr old son who at times can be self injurous,biting,scratching.He's whacked himself upside the head several times and he caught himself under his eye so now he looks like he has a black eye.He's limited verbally and so I know what you mean about the frustration level for them due to inability to communicate.I was wondering if you've ruled out any gastric or digestive problems.My son has reflux and we're testing some other things to rule them out as well.He also has epilepsy (dx'd at age 4)I also took him to a dentist to get xrays(yes he was put under)and no cavities or anything that would bring discomfort.He's been on several meds 6 or so and now he's on Buspirone.Have you concidered medication? It's quite a task trying to " rule out " things but it's the only way to know where the behavior is coming from. Welcome to the group..I hope we can be helpful to you! Stacey From: April aka Gypsycatwoman <gypsycatwoman@...> Date: 2006/07/23 Sun PM 07:33:15 CDT autism Subject: Re: New member intro Nice to meet you ! Feel free to jump into any of the discussions at any time April " E. Stoecker " <emilystoecker@...> wrote: Hi everyone, My name is and I have a 5 year old Moderately Autistic daughter. She is considered mid functioning. Her biggest behavior issues are unfortunately self injurious. She bites herself, pulls at her mouth, she has recently begun banging her head. She will throw herself on the ground. She pinches herself, and she lets off these howling screams. Most of her behavior is triggered by frustration. Her verbal skills have improved, but she still can't get out all she wants. She perseverates <BR>HEAVILY on things, and when she doesn't have a complete " set " or proper order, she will injure herself until her world is in " order " . She does have major sensory issues. Our home looks like an OT playground. We have the trampoline, therapy balls, rice box, net swing, weighted vests, balls, blankets etc... Last year she had very little brain body connection, and this year she is able to percieve herself, but as on a diagonal sideways... Pleased to meet all of you, - YM and AOL IM handle: LittleSmokes1978 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Hi Stacey, When Sophie was a baby she had reflux. It has eased since then, but her menu is limited. She freaks out at the sight of some foods, and doesn't like the texture of others. I have to get her tested to see if she has " measles In the gut " and do some scratch tests. Em On Mon, 24 Jul 2006 5:33 pm, all4cam@... wrote: > Hi , > I have a 9yr old son who at times can be self > injurous,biting,scratching.He's whacked himself upside the head several > times and he caught himself under his eye so now he looks like he has a > black eye.He's limited verbally and so I know what you mean about the > frustration level for them due to inability to communicate.I was > wondering if you've ruled out any gastric or digestive problems.My son > has reflux and we're testing some other things to rule them out as > well.He also has epilepsy (dx'd at age 4)I also took him to a dentist > to get xrays(yes he was put under)and no cavities or anything that > would bring discomfort.He's been on several meds 6 or so and now he's > on Buspirone.Have you concidered medication? It's quite a task trying > to " rule out " things but it's the only way to know where the behavior > is coming from. > > Welcome to the group..I hope we can be helpful to you! > > Stacey > > > > From: April aka Gypsycatwoman <gypsycatwoman@...> > Date: 2006/07/23 Sun PM 07:33:15 CDT > autism > Subject: Re: New member intro > > > Nice to meet you ! Feel free to jump into any of the discussions > at any time April > > " E. Stoecker " <emilystoecker@...> wrote: Hi everyone, > > My name is and I have a 5 year old Moderately Autistic daughter. > She is considered mid functioning. > > Her biggest behavior issues are unfortunately self injurious. She bites > herself, pulls at her mouth, she has recently begun banging her head. > She will throw herself on the ground. She pinches herself, and she lets > off these howling screams. > > Most of her behavior is triggered by frustration. Her verbal skills > have > improved, but she still can't get out all she wants. She perseverates > <BR>HEAVILY on things, and when she doesn't have a complete " set " or > proper > order, she will injure herself until her world is in " order " . > > She does have major sensory issues. Our home looks like an OT > playground. We have the trampoline, therapy balls, rice box, net swing, > weighted vests, balls, blankets etc... Last year she had very little > brain body connection, and this year she is able to percieve herself, > but as on a diagonal sideways... > > Pleased to meet all of you, > - > YM and AOL IM handle: LittleSmokes1978 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Hi Stacey, When Sophie was a baby she had reflux. It has eased since then, but her menu is limited. She freaks out at the sight of some foods, and doesn't like the texture of others. I have to get her tested to see if she has " measles In the gut " and do some scratch tests. Em On Mon, 24 Jul 2006 5:33 pm, all4cam@... wrote: > Hi , > I have a 9yr old son who at times can be self > injurous,biting,scratching.He's whacked himself upside the head several > times and he caught himself under his eye so now he looks like he has a > black eye.He's limited verbally and so I know what you mean about the > frustration level for them due to inability to communicate.I was > wondering if you've ruled out any gastric or digestive problems.My son > has reflux and we're testing some other things to rule them out as > well.He also has epilepsy (dx'd at age 4)I also took him to a dentist > to get xrays(yes he was put under)and no cavities or anything that > would bring discomfort.He's been on several meds 6 or so and now he's > on Buspirone.Have you concidered medication? It's quite a task trying > to " rule out " things but it's the only way to know where the behavior > is coming from. > > Welcome to the group..I hope we can be helpful to you! > > Stacey > > > > From: April aka Gypsycatwoman <gypsycatwoman@...> > Date: 2006/07/23 Sun PM 07:33:15 CDT > autism > Subject: Re: New member intro > > > Nice to meet you ! Feel free to jump into any of the discussions > at any time April > > " E. Stoecker " <emilystoecker@...> wrote: Hi everyone, > > My name is and I have a 5 year old Moderately Autistic daughter. > She is considered mid functioning. > > Her biggest behavior issues are unfortunately self injurious. She bites > herself, pulls at her mouth, she has recently begun banging her head. > She will throw herself on the ground. She pinches herself, and she lets > off these howling screams. > > Most of her behavior is triggered by frustration. Her verbal skills > have > improved, but she still can't get out all she wants. She perseverates > <BR>HEAVILY on things, and when she doesn't have a complete " set " or > proper > order, she will injure herself until her world is in " order " . > > She does have major sensory issues. Our home looks like an OT > playground. We have the trampoline, therapy balls, rice box, net swing, > weighted vests, balls, blankets etc... Last year she had very little > brain body connection, and this year she is able to percieve herself, > but as on a diagonal sideways... > > Pleased to meet all of you, > - > YM and AOL IM handle: LittleSmokes1978 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Hi , I am new to this board and saw your message. My son too is very self injurious. He bites himself, chokes himself horrendously, and beats his head something awful. If he is around a wall he bangs it too. He has bruised himself several times. Once he made the whole house shake! He sounds a lot like your daughter, my son is 9. He is verbally ok to a point. I don't know all the terminology but what I mean is he can talk. But he can't verbalize what he needs or wants when he gets frustrated and that is when the head banging and biting, choking starts. There is nothing I can do to stop him. If I try then he beats on me. He too has the sensory issues. Problem is I haven't figured all of them out yet. He has the trampoline and I need to get the weighted vest. He wants/needs close to 50-75 tight hugs a day. He will tell you, " I need a tight hug. " Right now though I had to place him in a residential treatment center because I couldn't do anything more for him here at home and my state had no help for him in home. I am a single mother and I live in Iowa. I did find a bunch of places just a couple nights ago that might be able to help though. It was through a link that someone else had here. While he is there I am getting my home set up for him to return. The structure some of the things that are needed for is SID. I was fired from my job for taking off too much time. I was trying so hard to find services for him and they fired me. So a lot of the sensory things that would help him will have to be homemade. Do you have suggestions? Thanks, Kimmery > > Hi everyone, > > My name is and I have a 5 year old Moderately Autistic daughter. > She is considered mid functioning. > > Her biggest behavior issues are unfortunately self injurious. She bites > herself, pulls at her mouth, she has recently begun banging her head. > She will throw herself on the ground. She pinches herself, and she lets > off these howling screams. > > Most of her behavior is triggered by frustration. Her verbal skills have > improved, but she still can't get out all she wants. She perseverates > HEAVILY on things, and when she doesn't have a complete " set " or proper > order, she will injure herself until her world is in " order " . > > She does have major sensory issues. Our home looks like an OT > playground. We have the trampoline, therapy balls, rice box, net swing, > weighted vests, balls, blankets etc... Last year she had very little > brain body connection, and this year she is able to percieve herself, > but as on a diagonal sideways... > > Pleased to meet all of you, > - > YM and AOL IM handle: LittleSmokes1978 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Hi , I am new to this board and saw your message. My son too is very self injurious. He bites himself, chokes himself horrendously, and beats his head something awful. If he is around a wall he bangs it too. He has bruised himself several times. Once he made the whole house shake! He sounds a lot like your daughter, my son is 9. He is verbally ok to a point. I don't know all the terminology but what I mean is he can talk. But he can't verbalize what he needs or wants when he gets frustrated and that is when the head banging and biting, choking starts. There is nothing I can do to stop him. If I try then he beats on me. He too has the sensory issues. Problem is I haven't figured all of them out yet. He has the trampoline and I need to get the weighted vest. He wants/needs close to 50-75 tight hugs a day. He will tell you, " I need a tight hug. " Right now though I had to place him in a residential treatment center because I couldn't do anything more for him here at home and my state had no help for him in home. I am a single mother and I live in Iowa. I did find a bunch of places just a couple nights ago that might be able to help though. It was through a link that someone else had here. While he is there I am getting my home set up for him to return. The structure some of the things that are needed for is SID. I was fired from my job for taking off too much time. I was trying so hard to find services for him and they fired me. So a lot of the sensory things that would help him will have to be homemade. Do you have suggestions? Thanks, Kimmery > > Hi everyone, > > My name is and I have a 5 year old Moderately Autistic daughter. > She is considered mid functioning. > > Her biggest behavior issues are unfortunately self injurious. She bites > herself, pulls at her mouth, she has recently begun banging her head. > She will throw herself on the ground. She pinches herself, and she lets > off these howling screams. > > Most of her behavior is triggered by frustration. Her verbal skills have > improved, but she still can't get out all she wants. She perseverates > HEAVILY on things, and when she doesn't have a complete " set " or proper > order, she will injure herself until her world is in " order " . > > She does have major sensory issues. Our home looks like an OT > playground. We have the trampoline, therapy balls, rice box, net swing, > weighted vests, balls, blankets etc... Last year she had very little > brain body connection, and this year she is able to percieve herself, > but as on a diagonal sideways... > > Pleased to meet all of you, > - > YM and AOL IM handle: LittleSmokes1978 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Hi Kimmery, I'm a single mom as well.My son is 9yrs old ,limited verbally,most of the time he cannot tell me what he wants/needs especially when frustrated or at the begining of a " meltdown " he too will come after me when I've tried to prevent him from destroying things in our home or hiting ,biting scratching.He used to inflict this on me then he started the SIB.He's had black/blue bruises under his eye,sides of his head.And red scratch marks on his face,arms,legs. I've tried several meds,risperdal,adderal,metadate,seroquel,abilify and now buspirone over the past year,which was when all the behaviors started.The busprirone has been the only thing that has brought some relief.He's only on 10mg in the morning.The dr rx'd more but I always start with the lowest and work my way up depending on how he tolerates and responds to the meds.He also has epilepsy and has a " combo " of 2meds for that. Gastric reflux was diagnosed last summer so he's on previcid ,it works great!I've also incorporated vitamins like a regular childrens multi-vitamin,omega 3,6,9,b12(liquid).I really think it helps because his behavior has improved.It hasn't completely gone away but it is more managable.I'd say at least a 90 % improvement. His " rages " used to go on and on.There was NOTHING I could do to calm him,redirect him etc.It was a cycle that HAD to complete itself..a beginning and an end.He would turn over dressers and nightstands..it was like he was looking for something to destroy.I really used to feel like a " battered mom " I had scars and bruises all over my hands,arms.It was a really dark time for me so I can definately relate to what you're both saying.Definately he has sensory issues also.I have a swing in my house(a hook in the ceiling)balls,body socks(which may work well for your son)weighted vests(I don't really use now). I know this is long so I'll bring it to a close but what I wanted to also share is that since your son needs the proprioceptive input(hugs)maybe a " bodysock " would work for him and the first one my son had was home made,the other two he has we ordered from " SouthPaw " .Another would be an item that's like a vest but it has a piece that wraps around their torso and then two straps that go across the shoulders with velcro and so you can adjust it to where it " squeezes " .I need to get one for my son because he craves that too.Anyways,I'll look it up and send you the link (and post it here as well) so you can see what I'm talking about. Hope this helps, Feel free to email me anytime! Stacey From: hawkeyekimm <hawkeyekimm@...> Date: 2006/07/28 Fri PM 08:45:45 CDT autism Subject: Re: New member intro Hi , I am new to this board and saw your message. My son too is very self injurious. He bites himself, chokes himself horrendously, and beats his head something awful. If he is around a wall he bangs it too. He has bruised himself several times. Once he made the whole house shake! He sounds a lot like your daughter, my son is 9. He is verbally ok to a point. I don't know all the terminology but what I mean is he can talk. But he can't verbalize what he needs or wants when he gets frustrated and that is when the head banging and biting, choking starts. There is nothing I can do to stop him. If I try then he beats on me. He too has the sensory issues. Problem is I haven't figured all of them out yet. He has the trampoline and I need to get the weighted vest. He wants/needs close to 50-75 tight hugs a day. He will tell you, " I need a tight hug. " Right now though I had to place him in a residential treatment center because I couldn't do anything more for him here at home and my state had no help for him in home. I am a single mother and I live in Iowa. I did find a bunch of places just a couple nights ago that might be able to help though. It was through a link that someone else had here. While he is there I am getting my home set up for him to return. The structure some of the things that are needed for is SID. I was fired from my job for taking off too much time. I was trying so hard to find services for him and they fired me. So a lot of the sensory things that would help him will have to be homemade. Do you have suggestions? Thanks, Kimmery > > Hi everyone, > > My name is and I have a 5 year old Moderately Autistic daughter. > She is considered mid functioning. > > Her biggest behavior issues are unfortunately self injurious. She bites > herself, pulls at her mouth, she has recently begun banging her head. > She will throw herself on the ground. She pinches herself, and she lets > off these howling screams. > > Most of her behavior is triggered by frustration. Her verbal skills have > improved, but she still can't get out all she wants. She perseverates > HEAVILY on things, and when she doesn't have a complete " set " or proper > order, she will injure herself until her world is in " order " . > > She does have major sensory issues. Our home looks like an OT > playground. We have the trampoline, therapy balls, rice box, net swing, > weighted vests, balls, blankets etc... Last year she had very little > brain body connection, and this year she is able to percieve herself, > but as on a diagonal sideways... > > Pleased to meet all of you, > - > YM and AOL IM handle: LittleSmokes1978 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 > > Hi Kimmery, > Gastric reflux was diagnosed last summer so he's on previcid ,it works great!I've also incorporated vitamins like a regular childrens multi- vitamin,omega 3,6,9,b12(liquid).I really think it helps because his behavior has improved.It hasn't completely gone away but it is more managable.I'd say at least a 90 % improvement. >> > Hi , I am an Autism teacher and a mother of a 15 year old with ADHD and sensory issues. I have found through my experience with my son that the bio-medical approach works wonders. If vitamins help, then he probably has something going on that a DAN Dr. could help out with, such as giving him enzymes, etc. Just a suggestion since when I started supplementing my son the right way his need for meds has gone down and behaviors, especially things like chewing his clothes and fidgeting, are much better. He also doesn't have as much of a need to " finish what he's started. " With him, it wasn't physical, but he would have to finish an argument, fib, etc even when he knew he was backing himself into a corner. Hope this is helpful, AMY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 > > Hi Kimmery, > Gastric reflux was diagnosed last summer so he's on previcid ,it works great!I've also incorporated vitamins like a regular childrens multi- vitamin,omega 3,6,9,b12(liquid).I really think it helps because his behavior has improved.It hasn't completely gone away but it is more managable.I'd say at least a 90 % improvement. >> > Hi , I am an Autism teacher and a mother of a 15 year old with ADHD and sensory issues. I have found through my experience with my son that the bio-medical approach works wonders. If vitamins help, then he probably has something going on that a DAN Dr. could help out with, such as giving him enzymes, etc. Just a suggestion since when I started supplementing my son the right way his need for meds has gone down and behaviors, especially things like chewing his clothes and fidgeting, are much better. He also doesn't have as much of a need to " finish what he's started. " With him, it wasn't physical, but he would have to finish an argument, fib, etc even when he knew he was backing himself into a corner. Hope this is helpful, AMY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Hi Amy! Yeah,I am totally beginning to see that a biomedical approach,at least in our case,could be the " relief " that I'd been searching for.I was just thinking to myself yesterday that up until a few months ago his behavior was completely out of control.It was horrible,just unbearable ,never knew when he'd go off or where we'd be(in the store,car etc) I just couldn't understand where this was coming from and why all these psychotropic meds were not working.His neurologist has ordered some metabolic tests to be done as well which I feel we need to rule out as well .But yes,I probably will connectnect with a DAN dr. Stacey From: aamyleeteaches <aamyleeteaches@...> Date: 2006/07/31 Mon PM 02:10:01 CDT autism Subject: Re: New member intro > > Hi Kimmery, > Gastric reflux was diagnosed last summer so he's on previcid ,it works great!I've also incorporated vitamins like a regular childrens multi- vitamin,omega 3,6,9,b12(liquid).I really think it helps because his behavior has improved.It hasn't completely gone away but it is more managable.I'd say at least a 90 % improvement. >> > Hi , I am an Autism teacher and a mother of a 15 year old with ADHD and sensory issues. I have found through my experience with my son that the bio-medical approach works wonders. If vitamins help, then he probably has something going on that a DAN Dr. could help out with, such as giving him enzymes, etc. Just a suggestion since when I started supplementing my son the right way his need for meds has gone down and behaviors, especially things like chewing his clothes and fidgeting, are much better. He also doesn't have as much of a need to " finish what he's started. " With him, it wasn't physical, but he would have to finish an argument, fib, etc even when he knew he was backing himself into a corner. Hope this is helpful, AMY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 hi stan nice to meet you ! i'm stacie i'm 23 and have had a icd since i was 13 i have not been in the war but i can say i have had my icd go off minny of times where all very glad you have came and we hope you find the support information and freindship ! that your looking for ! and maybe some war stories anyways it was nice to met you and hope to hear from you soon ! stacie, shocking life for shocking people !stanbutterfly <stanbutterfly@...> wrote: Hi, my name is Stan. I am a retired 70 year old with a ICD installed 6 years ago. I've had multiple incidents over the last couple of years, and would like to talk to people who have been through similar things. I am looking forward to swapping war stories. Thanks.Stan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi Stan Welcome to the group. I am sure there are a lot of us out there that can swap stories with you. I am 52 and have had a ICD since last December 2005. I have not had any incidents with it as yet, and of course I hope never to have one. Tomorrow I will transmit a scan from my unit for the first time from home. Do you do that? I am here, if you have any questions. Sincerely, Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Welcome Laurel: I would like to see your web page if Lenny oks. We have 3 boys on the spectrum 11, 9, and 8. Starting in March we will be seeing a DAN Dr. for the first time and are excited about this opportunity. This is an interesting journey, isn't it? Alison >From: " Laurel " <autiemom4@...> >Reply-EOHarm >EOHarm >Subject: New Member intro >Date: Mon, 29 Jan 2007 12:41:32 -0000 > >Hello everyone, >I just joined the group and thought I would introduce myself. >My name is Laurel and I am the mom of 6 children, 4 of which are on >the autism spectrum. I have a 20 yo daughter, 18 yo son, 16 yo son, >15 yo son, 3 yo daughter, and 9 month old son. >3 of my 4 older children are on the Geier Treatment Protocol. The 4th >is getting the labs done to get on the protocol. We are very excited >about what the Geiers are doing and have already done so far in our >family! (I feel like for the first time in over 10 years like we may >have a promising future!) >btw...my youngest 2 are NT...have never been vaccinated. >If it is okay to post a link to our own personal private websites, I >could post mine so you can read our family story if anyone is >interested. >Thank you, >Laurel > > > _________________________________________________________________ Get in the mood for Valentine's Day. View photos, recipes and more on your Live.com page. http://www.live.com/?addTemplate=ValentinesDay & ocid=T001MSN30A0701 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 > If it is okay to post a link to our own personal private websites, I > could post mine so you can read our family story if anyone is > interested. No reason why you can't. And welcome! Lenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Thank you! The page " our story " is on at my website is below: http://autismfamilycircle.com/ourstory.html > > > If it is okay to post a link to our own personal private websites, I > > could post mine so you can read our family story if anyone is > > interested. > > No reason why you can't. And welcome! > > Lenny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2007 Report Share Posted February 16, 2007 Betty & Welcome!! I am the mom to one child. He has CVID with Complete T-Cell Dysfunction. Our Local ER found out just what this meant about 2 week ends ago......we have lived in our current location for all of Blake's 15 yrs. & not used the ER but twice in in his life time!!! Blake was Dx'ed with PID when he was 3. We went to DUKE & got a complete & OFFICIAL DX & Have been doing IVIG ever since.....he was 6!!! It took thta long to get someone to get serious & Stop looking at teh fact that Blake was a MICROpreemie. THis was their catch all for our situation...... " well you know he was a Micro Preemie(1 lb. 6 oz at birth) he also had a very hard neonatal period & lots of chronic changes to his lungs & immune system!! Blake too, has Asperger's. His is on the moderate/severe side. He is also homeschool as well as has a teacher from the public school coming out 3 days a week to keep him on target with his grades & needs(he has a IEP inplaced & all of his subjects are geared to his disability). He also has Central Auditory Processing Disorder as well as Intergrated Sensory Motor Skill Delays. His school considers him homebased/homeschoold because we got medical authorization to keep Blake safe & out of a hospital each time he went to school(spent his whole 1st & 2nd grade in a hopsital). Blake is in 8th grade.....Obcessed with any History/Geography/Maps....owns almost all states & all Canada providents!!! He LOVES Flea Markets & any old print books!!!! You have come upon a Treasure full of wonderful & PID Intelligent women/men. Just ask all your heart desires, no question is too big or too hard to get answers from this group!!! mom to 15 yr. old smarty pants, Blake.....Knows EVERYTHING...or so he thinks!!!: CVID with Complete T-Cell Dysfunction IVIG every 2 weeks, Severe Asthma, GERD, CAPD, SMD, Aspergers/OCD/ADHD/ODD: Reads 12th grade level, cannot do math but knows he is supposed to get change when buying books at the Local Flea Market!!!!! http://www3.caringbridge.org/sc/blakester Come & see the Greatest Adventure of MY Lifetime!!!!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~\ ~~~ plant4birds <gardenlass@...> wrote: Hi! My name is Betty and I am a new member. I have two kids with PID, one of whom also has Asperger's syndrome. I also have PID and multiple sclerosis. We have been in a rough place health-wise for many weeks now and feeling so isolated. I'm hoping this group will help all of us see that others face the same struggles we do. Oh, we homeschool both kids, too. --------------------------------- TV dinner still cooling? Check out " Tonight's Picks " on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2007 Report Share Posted February 20, 2007 plant4birds wrote: > > > Hi! My name is Betty and I am a new member. Welcome Betty, I hope that this group can support you and your family. Sounds like you've got a full plate. Feel free to ask questions and contribute to the discussions. How long have you been diagnosed -- before or after the kids? In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Hi Karin!! I am so glad you made it!! My name is Connie, I have 6 kids. My oldest, Tatyanna, just started college. She wants to be a physical therapist largely because of her interactions with Hannah, age 7, DS. Sergey starts college next year, even if he doesn't want to! graduates high school next year, Midori is 15 in June. Finally, Theresa is 4- she is often our interpreter for Hannah! You will LOVE this list or your money back! (get it... it's free.. ha ha) There has never been a question on here that I haven't seen answered. Welcome, welcome, welcome!! Connie (ps...these are the mom's who gave me the input on what how to design the ribbon!) In a message dated 3/6/2007 12:48:50 P.M. Eastern Standard Time, karin.matheson@... writes: Hi everyone! I'm a new member with a 9-week old baby boy () who has Down Syndrome. I'm hoping to get info / support from other parents who are farther down this journey than I am, and someday to be able to help other new parents with what I've learned & gone through. Thanks for allowing me to join! Karin <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Welcome. You might also want to look for a local support group, if you haven't already found one. Here's a link that might help http://www.ndss.org/index.php?option=com_content & task=view & id=1996 & Itemid=274 You could also check your phone book, local hospital, or chapter of the ARC for info. And another link that could be helpful in finding info and resources for things like Early Intervention, http://www.nichcy.org/states.htm -- Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Karin Welcome, and congratulations on the birth of ! This is a great group of people, lots of information, tons of support. One of the nice things is you will find parents of kids with DS of all ages. Welcome, and feel free to jump right on in! Sharon H. Mom to , (15, DS) and , (11) South Carolina " Be kinder than necessary, for everyone you meet is fighting some kind of battle. " New member intro Hi everyone! I'm a new member with a 9-week old baby boy () who has Down Syndrome. I'm hoping to get info / support from other parents who are farther down this journey than I am, and someday to be able to help other new parents with what I've learned & gone through. Thanks for allowing me to join! Karin Notice: This transmission is for the sole use of the intended recipient(s) and may contain information that is confidential and/or privileged. If you are not the intended recipient, please delete this transmission and any attachments and notify the sender by return email immediately. Any unauthorized review, use, disclosure or distribution is prohibited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 HI Karin, Congratulations on the birth of your darling baby boy. The first thing to remember he is a baby first, secondly he is a boy, thirdly a ..........(put in your family name) last a person with DS. IMO, that difference in his make-up is minor compared to all the other bits and pieces which make him to be the person he will grow up to be. All kids cause grief, stress, happiness and delight, the main thing is enjoy your son. Stick with this group, there are lots of very knowledgeable people who can advise how to deal with the many and varied little problems which crop up. Best wishes Jan, mother of Trent 22yo w/DS from the LandDownUnder New member intro Hi everyone! I'm a new member with a 9-week old baby boy () who has Down Syndrome. I'm hoping to get info / support from other parents who are farther down this journey than I am, and someday to be able to help other new parents with what I've learned & gone through. Thanks for allowing me to join! Karin Notice: This transmission is for the sole use of the intended recipient(s) and may contain information that is confidential and/or privileged. If you are not the intended recipient, please delete this transmission and any attachments and notify the sender by return email immediately. Any unauthorized review, use, disclosure or distribution is prohibited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Welcome. I remember the first year with . she is now in Kindergarten.. Believe me, you will get lots of information and support here. I know I have _____ From: [mailto: ] On Behalf Of Karin Matheson Sent: Tuesday, March 06, 2007 12:46 PM Subject: New member intro Hi everyone! I'm a new member with a 9-week old baby boy () who has Down Syndrome. I'm hoping to get info / support from other parents who are farther down this journey than I am, and someday to be able to help other new parents with what I've learned & gone through. Thanks for allowing me to join! Karin Notice: This transmission is for the sole use of the intended recipient(s) and may contain information that is confidential and/or privileged. If you are not the intended recipient, please delete this transmission and any attachments and notify the sender by return email immediately. Any unauthorized review, use, disclosure or distribution is prohibited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 Hi Ali, good to have you here! We have a lot of OCD in my family too (including me!) so I wasn't surprised when my daughter was diagnosed. Laurie " Crehan Feeney, Ali " <alicrehanfeeney@...> wrote: Hi all - Just a quick intro to the list. :-) My name is Ali, and to make our story as brief as possible - my 4 yr old daughter has been showing signs of anxiety issues for a while, and recently began showing very clear signs of OCD. It wasn't a shock as there is a strong family history; quite frankly, after months of not knowing what was going on and being terribly worried, this diagnosis is almost a relief for us. It seems like this list is a great resource, and I'm so glad to have found it. Best regards, Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 Hi Ali, welcome! Yeah, it can be a relief to actually get a diagnosis even if it's something you already strongly suspect. My son with OCD is now 18 (since January). I joined this list right around the time he was turning 12. His OCD popped up in 6th grade. This list really helped keep me sane thru the years. So what are your choices since the diagnosis? Are you searching for a therapist to help? The area we live in really has no one experienced - that I ever found/heard of - with therapy for OCD so we have managed - or tried to, LOL - on our own all these years pretty much. Lots of great help and suggestions and always support from this group! single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers/autism (mild) > > Hi all - > > > > Just a quick intro to the list. :-) My name is Ali, and to make our story as > brief as possible - my 4 yr old daughter has been showing signs of anxiety > issues for a while, and recently began showing very clear signs of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 welcome - you've found a great place - we're here for you eileen Quoting " Crehan Feeney, Ali " <alicrehanfeeney@...>: > Hi all - > > > > Just a quick intro to the list. :-) My name is Ali, and to make our story as > brief as possible - my 4 yr old daughter has been showing signs of anxiety > issues for a while, and recently began showing very clear signs of OCD. It > wasn't a shock as there is a strong family history; quite frankly, after > months of not knowing what was going on and being terribly worried, this > diagnosis is almost a relief for us. > > > > It seems like this list is a great resource, and I'm so glad to have found > it. > > > > Best regards, > > Ali > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2007 Report Share Posted March 26, 2007 Thanks, everyone, for the warm welcome! we have a therapist for our daughter -we really lucked out and found someone right off the bat. We've been working with her since December, when we knew something was going on but weren't sure what, just that it fell in the anxiety spectrum. We saw other doctors who said it was everything from agoraphobia to post-traumatic stress disorder, but this therapist just hung in there with us until we finally got my daughter to tell us about her rules. I'm also fortunate in that we are in the Boston area, so there are a lot of providers and other resources. And like I said, I'm just relieved to finally understand what is happening here - the months of worrying, all the meltdowns and so on, have been really rough on us all. Best, Ali in Quincy, MA _____ From: [mailto: ] On Behalf Of Sent: Thursday, March 22, 2007 7:44 PM Subject: Re: New member intro Hi Ali, welcome! Yeah, it can be a relief to actually get a diagnosis even if it's something you already strongly suspect. My son with OCD is now 18 (since January). I joined this list right around the time he was turning 12. His OCD popped up in 6th grade. This list really helped keep me sane thru the years. So what are your choices since the diagnosis? Are you searching for a therapist to help? The area we live in really has no one experienced - that I ever found/heard of - with therapy for OCD so we have managed - or tried to, LOL - on our own all these years pretty much. Lots of great help and suggestions and always support from this group! single mom, 3 sons , 18, with OCD, dysgraphia and Aspergers/autism (mild) _ Quote Link to comment Share on other sites More sharing options...
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