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Can I get this info too ? Maggie is almost 30 months old and we have not started

yet

thanksDeb

janslat <JanSl@...> wrote:

Judi,

I tried to email you but your spam blocker wouldn't let me.

If you email your address I can send you a copy too.

Jan

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> Judi,

>

> I tried to email you but your spam blocker wouldn't let me.

>

> If you email your address I can send you a copy too.

>

> Jan

Hi, I just joined this group and would love any information

regarding potty training with EFA's

Thanks,

mother of a 6 yr old with XXY- Klinefelter Syndrome

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I would love to receive the info on potty training as well. My son will

be 3 in August and is not potty trained.

Thanks,

Larner

225 N. Michigan Ave.| Chicago| IL | 60601

p: 312.616.2443 | f: 312.233.8443

[ ] Re: potty training

> Judi,

>

> I tried to email you but your spam blocker wouldn't let me.

>

> If you email your address I can send you a copy too.

>

> Jan

Hi, I just joined this group and would love any information

regarding potty training with EFA's

Thanks,

mother of a 6 yr old with XXY- Klinefelter Syndrome

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johnjudi@.... My computer has been down. I'll check my

spamblocker to see if it's there. Thanks

Judi

> [Original Message]

> From: debbie remley <maglibmama@...>

> < >

> Date: 5/16/2005 11:02:39 PM

> Subject: Re: [ ] Re: potty training

>

> Can I get this info too ? Maggie is almost 30 months old and we have not

started yet

> thanksDeb

>

> janslat <JanSl@...> wrote:

> Judi,

>

> I tried to email you but your spam blocker wouldn't let me.

>

> If you email your address I can send you a copy too.

>

> Jan

>

>

>

>

>

>

>

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Please add me to the list. Callie is 39 months old, totally knows

when she has to go, hates to be wet/dirty, tells me when it's time

to change her & still will not even consider the potty / toilet.

I don't want to make a big issue about it, but it's time.

thanks

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Whomever first posted that they have some new (and improved?) potty

training tips that worked, Jan? Please just post it here so all

can see. Late to potty train is pretty par for the course in this

group ...actually for many kids today in general for some reason.

For those that want archived info -here's one

From: " kiddietalk " <kiddietalk@...>

Date: Wed Oct 22, 2003 11:20 pm

Subject: Re: Potty Training - not till 5 y/o????

In this group it's not unusual for our children not to potty train

till late three or early four (overall) due to low tone. Not sure

which group five is normal in?

I just posted recently that even " normal " kids are training late

today, but am too fried to find the post (must be under a different

subject which is why subject titles are important) So searched quick

and found these links on it at google

Lots more out there -may want to cut and paste links

Toilet-trained at 2? Today it's rare

Grandma may not agree, but the change is fine, experts say. They see

no need to rush the process.

http://users.erols.com/elainefrankadopt/inquire.html

But over the last few decades, the age at which toddlers become

diaper-free has been creeping upward. In 1957, 92 percent of

children were toilet-trained by the age of 18 months, studies found.

Today the figure for 2-year-olds is just 4 percent, according to a

large-scale Philadelphia study. Only 60 percent of children have

achieved mastery of the toilet by 36 months, the study found, and 2

percent remain untrained at the age of 4 years.

http://www.faculty.fairfield.edu/faculty/hodgson/Courses/so142/News_stories/toil\

etT.html

And...in case that was not enough -for those

interested parties -here is a potty archive that has other potty

messages in it -and will teach you how to search the archives for

even more- So this message is full of potty stuff! (wait, is that

what I meant to say?)

From: " kiddietalk " <kiddietalk@...>

Date: Mon Sep 23, 2002 8:56 am

Subject: Re: Potty training help

Hi !

Knowing -the Outreach Coordinator for CHERAB-she can find you

even more advice than the following. (which is from two messages of

's

from

the archives) ~

~~~~~~~~~~~~

For those who are new here is a great chance to let everyone know

how to

search the archives for topics of interest.

Go to You will need

to sign into , and if you don't have a account, it's free

to get one.

Once you are in the website you will see a white box with the

words " Search Archives " All you need to do is put in key words for

example " Potty Training " or " ProEfa " etc. and it will bring up a

list of messages. That may not be the complete list, and you may have

to search under various names to find everything.

If you know the post number, you can add that to the box that says

Msg # ___ and then press " go "

Anyway, here are some messages in reference to Potty Training that

I archived for you. Hope this helps you out some and best wishes!

Mustafa,

Mom to three great kids!

Khalid 14 1/2 yrs. (Verbal and Limb Araxia and speaking

well) Jadd 6.11 yrs. (Oral Apraxia) Danya 9 1/2 yrs.

Archives:

#507

#651

#662

#633

#642

#641

#635

#630

#625

#622

#673

Re-thinking Potty Practices-

Part 1: Popular potty training advice includes a number of

long-held assertions that simply don't parallel normal

human development.

http://babyparenting.about.com/library/weekly/aa062701a.htm

Part 2: Muscles, including those needed for voiding

functions, need to be used and exercised for proper

development.

http://babyparenting.about.com/library/weekly/aa062701b.htm

Part 3: Urology researchers suggest that the late-onset of

toilet training may permanently affect bladder and bowel

control.

http://babyparenting.about.com/library/weekly/aa062701c.htm

Part 4: Communication of elimination functions is not

limited to verbal skills, nor is social cooperation a

prominent attribute among two-year olds.

http://babyparenting.about.com/library/weekly/aa062701d.htm

Part 5: Anthropologists have clearly shown that a society's

specific infant training practices are adaptive to

sociocultural factors, which indicate a profound effect on

toilet training readiness.

http://babyparenting.about.com/library/weekly/aa062701e.htm

Part 6: As we re-think our potty training practices, the

need to develop and market related products and

instructional material is evident.

http://babyparenting.about.com/library/weekly/aa062701f.htm

Mustafa

=====

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I would also love the potty training info. Thank you so much!

Christi O'Neal, mother to , ASD, global Apraxia, age 39 mo

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My son was 4 in November, and potty training was not going

well. He didn't seem to care if he messed his pull-ups at all. Every

time he did it, I would ask the same question: Where is the (pee or

poop) supposed to go? He would always answer 'toilet.' Finally I

decided he could only have pull ups at night. During the day he wore

big boy underwear with plastic pants on top. He hated the plastic

pants, but figured out pretty quickly that if he used the toilet, he

didn't have to use the plastic pants. Now, he is completely

potty-trained and even gets up in the night to use the restroom. For

what it's worth, that's our story. I had to do the same thing to his

sister who is 17 mos. older. I had to get to school and babysitter on

the same page, and send extra clothes daily for a while. Neither were

real wild about the whole idea, but went along with it, as long as

they didn't have to wash out the underpants, etc.

Good Luck

Roni

Matt's mom

Apraxia, hypotonia, some autistic behaviors - but really cute!

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Even though my daughter was talking in her late 3's, we always enjoyed

talking to each other in sign language (we still do). She would do the sign for

all

done, then after she flushed, she would do the sign for all gone. I was lucky

enough to have a good speech therapist that felt like signing took the

pressure off of her.

Joni

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Yes, you were lucky. Our school slp told us not to

use sign at all, as they would rely on that vs. being

motivated to talk. I did what she said, but now I

would do it differently. At least signing relieves

some of the frustration from not being able to

communicate. My youngest didn't talk very much at all

until he was 4 1/2, and he was very frustrated.

--- Jandjatindy@... wrote:

> Even though my daughter was talking in her late 3's,

> we always enjoyed

> talking to each other in sign language (we still

> do). She would do the sign for all

> done, then after she flushed, she would do the sign

> for all gone. I was lucky

> enough to have a good speech therapist that felt

> like signing took the

> pressure off of her.

> Joni

>

>

> [Non-text portions of this message have been

> removed]

>

>

Barb Katsaros

barbkatsaros@...

__________________________________________________

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I potty trained my son who was 3yr at the time....pre nids, he was on no meds at

all...so you can imagine how hyper and inattentive he was.

It took about 2 weeks total. I don't know if you can find them any more, but I

put him in old fashioned plastic pants over regular underwear. I took him to the

bathroom every hour and put him on the toilet.

He had lots of accidents, but being wet was the important thing I couldn't get

across in the huggies pull ups. After awhile he hated being wet or soiled and

learned to get to the bathroom before he wet his pants.

This is definitely old school but it really works, especially with my child

who even today can't stand it if a few drops of water gets on his clothes, he

insists on changing.

good luck

cat

Cheryl Lowrance <c.lowrance@...> wrote:

I'm slowly working on potty training with my 3 year old and I'm

wondering if I should stop worrying too much about it until after the

die off of valtrex and diflucan. Any thoughts on this? I'm not in a

hurry and he is slowly getting it. I've kind of stopped already

since he's been sick and we won't start the valtrex until after he's

feeling better and we won't start the diflucan until about 3 weeks

after that. So I'm kind of thinking about just letting it go for

now. He does understand that potty and will use it when naked but

when he's in diapers or underwear he doesn't get that he can still go

to the potty. He's getting there slowly and I really don't want to

push too hard if it's something that I should just wait on to make it

easier for him.

cheryl

__________________________________________________

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My son, now 14, had many problems with potty training. He was actually potty

trained, except for the poo part. He, like yours, would go in his undies or

make a mess in his pants even though he knows what he's supposed to do. Way

back then we were told to let the natural flow happen, that he would get there,

but sometimes it takes boys a LOT longer than normal. There's some kind of

scientific reason why, but I can't put my finger on it at this time.

Best of luck to you,

Crystal

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This is similar to how I potty trained our son, just after he turned 4. He

has CP in addition to ASD, and limited sensation in his lower half. I put a

training potty on a mat in front of a tv in our bedroom (not far from the

bathroom) and every hour I put him on the potty with a favorite video. I

also put him in regular underwear (we tried the plastic overpants, but he

didn't like them at all) - no more pull-ups. The first 2 days were messy,

but I kept a close eye on him and rushed him to the potty as soon he started

to have an accident, and also had him help me clean up the mess. When he had

successes, we made a really big deal with hoorays and stickers, and for

poops a new train (just the first 5 or so times). We kept it all very fun

for him (and the same for his twin, who was trained a year + before him). By

the 3rd day, he 'got it' and he's been pretty much potty trained since (both

poop and pee). We have a portable potty for the car so we were able to go

places after being home a couple of days.

I later found out from an urologist that this is the best method for kids

like my son.

Good luck!!

Kristy

Re: Potty training

I potty trained my son who was 3yr at the time....pre nids, he was on no

meds at all...so you can imagine how hyper and inattentive he was.

It took about 2 weeks total. I don't know if you can find them any more,

but I put him in old fashioned plastic pants over regular underwear. I took

him to the bathroom every hour and put him on the toilet.

He had lots of accidents, but being wet was the important thing I couldn't

get across in the huggies pull ups. After awhile he hated being wet or

soiled and learned to get to the bathroom before he wet his pants.

This is definitely old school but it really works, especially with my

child who even today can't stand it if a few drops of water gets on his

clothes, he insists on changing.

good luck

cat

Cheryl Lowrance <c.lowrance@...> wrote:

I'm slowly working on potty training with my 3 year old and I'm

wondering if I should stop worrying too much about it until after the

die off of valtrex and diflucan. Any thoughts on this? I'm not in a

hurry and he is slowly getting it. I've kind of stopped already

since he's been sick and we won't start the valtrex until after he's

feeling better and we won't start the diflucan until about 3 weeks

after that. So I'm kind of thinking about just letting it go for

now. He does understand that potty and will use it when naked but

when he's in diapers or underwear he doesn't get that he can still go

to the potty. He's getting there slowly and I really don't want to

push too hard if it's something that I should just wait on to make it

easier for him.

cheryl

__________________________________________________

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Thanks for all the advice. I've already been thinking about the

plastic cover so now I know I'll definitely give those a try.

Cheryl

On Dec 15, 2006, at 1:56 PM, catherine quinn wrote:

> I potty trained my son who was 3yr at the time....pre nids, he was

> on no meds at all...so you can imagine how hyper and inattentive he

> was.

>

> It took about 2 weeks total. I don't know if you can find them any

> more, but I put him in old fashioned plastic pants over regular

> underwear. I took him to the bathroom every hour and put him on the

> toilet.

>

> He had lots of accidents, but being wet was the important thing I

> couldn't get across in the huggies pull ups. After awhile he hated

> being wet or soiled and learned to get to the bathroom before he

> wet his pants.

>

> This is definitely old school but it really works, especially with

> my child who even today can't stand it if a few drops of water gets

> on his clothes, he insists on changing.

>

>

> good luck

>

> cat

>

> Cheryl Lowrance <c.lowrance@...> wrote:

> I'm slowly working on potty training with my 3 year old and I'm

> wondering if I should stop worrying too much about it until after the

> die off of valtrex and diflucan. Any thoughts on this? I'm not in a

> hurry and he is slowly getting it. I've kind of stopped already

> since he's been sick and we won't start the valtrex until after he's

> feeling better and we won't start the diflucan until about 3 weeks

> after that. So I'm kind of thinking about just letting it go for

> now. He does understand that potty and will use it when naked but

> when he's in diapers or underwear he doesn't get that he can still go

> to the potty. He's getting there slowly and I really don't want to

> push too hard if it's something that I should just wait on to make it

> easier for him.

>

> cheryl

>

> __________________________________________________

>

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Cheryl,

It is good you are deciding when to do the potty training because our kids do

not give the normal signs that they are ready for it. But I wouldn't try

anything new and would even stop therapies during die off. Our kids feel really

sick during that time. Tylenol every three and a half hours helps. The yeast

being killed off usually kicks up some severe reactions before exiting the body.

I know you are never going to believe this because your child is acting so much

more autistic, but it really is great news. It means your child will be helped

tremendously by the antifungal. You probably feel like you are going backwards

at this time, and it is hard to know that you are doing the right thing.

However, when die-off is over, you will see a new kid. More focused and alert.

You will be amazed by the change in your child. So hang on. After die-off it

will be wonderful! Die-off usually last more than a week or two. If it is

really bad, call Dr. G. He may tell you to either increase or decrease the

dosage of the anti-fungal. Once I tried the pills myself just to see what

die-off felt like. You feel like PMS times twenty. During that time we didn't

do any thing complicated. We hung out and did things he found relaxing like

watching his favorite videos. Hang in there. This short terrible time will

bring great things.

When you are ready to go back to potty training this is how we did it.

I did the same thing with as I did with my not autistic daughter. My son

never gave me an indication one way or another that he was ready for being

toilet trained. Since I had another child, I just started training him without

waiting for the signs. He was three in a half when I started. Older is easier.

I put up a piece of construction paper on the wall of the bathroom. I made a

big deal out of picking out stickers at the store. One kind of sticker was for

" Pee Pee " and one for " Poopie. " We also picked out " big boy " underpants.

(Although he didn't act like he cared we still did this.) I stayed home for two

days and put him in the underpants (not pull-ups because our kids do not like

being wet) and when I had to go I would put him on the toilet too. My needs

reminded me not to forget to put him on the toilet.

We read books about " the potty " long before we ever started training. The first

time he used the toilet, we danced around the house, called Dad, and were

singing with delight this stupid song that our family always sings when

something great happens. Within two days, he was trained for daytime. I didn't

even attempt nighttime until he woke up dry. Then I yanked off the diaper and

put him on the toilet. If you wait for signs, it will never happen. Hope this

helps.

Marcia

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My heart goes out to you. It's hard when you get unneccessary

pressure from family. I trained my son much later starting at 5

because he also was a late walker with a poor sense of balance and

when he was interested in the potty he was just learning to walk. I

never got pressure from family about it, but I feel for you in the

sense that my family wants to see certain things from him at a certain

age and when they did't see it, I get the presssure/ blame from them.

I see it as their way of not being able to cope with my son's

problems and try to understand, but it's still hard. I feel like - I

am the mother and I have to give support to THEM. Shouldn't it be the

other way around!?!?

Anyway, enough venting. We started my son on Indep Day 2007 and he's

been doing very well. He feels very little pressure and his body, in

all respects (walking included), is ready. It's made the entire

ptocess much easier. Since he is school, they also help support the

process. Potty traininf is hard and very demanding and the more ready

you and he are the better it will be for all. Best of luck.

PS This Sunday my husband and I decided to put a diaper over his

underwear and go out for dinner. I still took him to the potty as

scheduled at the restaurant and I was able to enjoy my meal without

stressing if he had an accident. We had a great dinner, a happy kid

and a dry diaper to boot!!

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I think you may be better off letting him see you go and get on the

potty at intervals with him and eventually he will put it together.

There is a video, potty power, that people swear by. With my NT

daughter who just did not get " when " to go and was not great at

expressing herself a week at the beach with two potty trained kids

did it.

>

> OH, this is just beginning for me. My son is 3 and great grandma

and grandma are mortified that he is not potty trained yet. Good

grief!

>

> Any advice? I think he is ready cognitively/mentally, but again

that communication and motor planning may be what is slowing us down.

>

> I am an only child that never babysat, so any tips you have would

be great!!!!

>

> Love,

> Clueless mom! ha.

>

>

> Roark

> " There will be years that ask

> and there will be years that answer.

> In the end, God never wastes pain "

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

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Anyone know the name of the video?????????

ilizzy03 <lizlaw@...> wrote: I think you

may be better off letting him see you go and get on the

potty at intervals with him and eventually he will put it together.

There is a video, potty power, that people swear by. With my NT

daughter who just did not get " when " to go and was not great at

expressing herself a week at the beach with two potty trained kids

did it.

>

> OH, this is just beginning for me. My son is 3 and great grandma

and grandma are mortified that he is not potty trained yet. Good

grief!

>

> Any advice? I think he is ready cognitively/mentally, but again

that communication and motor planning may be what is slowing us down.

>

> I am an only child that never babysat, so any tips you have would

be great!!!!

>

> Love,

> Clueless mom! ha.

>

>

> Roark

> " There will be years that ask

> and there will be years that answer.

> In the end, God never wastes pain "

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

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Potty Power

> >

> > OH, this is just beginning for me. My son is 3 and great grandma

> and grandma are mortified that he is not potty trained yet. Good

> grief!

> >

> > Any advice? I think he is ready cognitively/mentally, but

again

> that communication and motor planning may be what is slowing us

down.

> >

> > I am an only child that never babysat, so any tips you have

would

> be great!!!!

> >

> > Love,

> > Clueless mom! ha.

> >

> >

> > Roark

> > " There will be years that ask

> > and there will be years that answer.

> > In the end, God never wastes pain "

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

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If anyone's interested, there's also a new potty training kit coming out with

the Baby Signs program. That's the one we used. We were Beta Testers because

my son has a small part in the video (Because he knew TONS of signs). Anyway,

it should be officially on the market the first week of January. You can order

it by going to the website, www.babysigns.com. It's an entire kit.....it has a

parent guide that offers suggestions to parents, etc.....That's where I got my

potty training ideas. It promotes training kids before the age of two, but that

was not our story at all. Like I said, we were testers, but I wouldn't have

used it until I saw clear signs that my son was ready to go potty. He really

liked the video a lot.....it's a nice mix of animation and real kids

(babies/toddlers and big kids).

Also, I'm not making any money from the video.....at all. Not selling

something. I'm just located in Northern Ca, and the doctors that developed the

program are from my area.

@...: williamjlucejr@...: Mon,

31 Dec 2007 17:25:50 -0800Subject: Re: [ ] Re: potty training

Anyone know the name of the video?????????ilizzy03 <lizlaw@...> wrote:

I think you may be better off letting him see you go and get on the potty at

intervals with him and eventually he will put it together. There is a video,

potty power, that people swear by. With my NT daughter who just did not get

" when " to go and was not great at expressing herself a week at the beach with

two potty trained kids did it.>> OH, this is just beginning for me. My son

is 3 and great grandma and grandma are mortified that he is not potty trained

yet. Good grief! > > Any advice? I think he is ready cognitively/mentally, but

again that communication and motor planning may be what is slowing us down. > >

I am an only child that never babysat, so any tips you have would be great!!!! >

> Love, > Clueless mom! ha. > > > Roark> " There will be years that ask>

and there will be years that answer. > In the end, God never wastes pain " > > >

---------------------------------> Never miss a thing. Make your

homepage.> > [Non-text portions of this message have been

removed]>---------------------------------Never miss a thing. Make your

homepage.

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Yes, it is called Potty Power. I ordered it from

www.pottymonkey.com (another source you might like). But I saw it

at Toys R Us on the shelf.

> >

> > OH, this is just beginning for me. My son is 3 and great

grandma

> and grandma are mortified that he is not potty trained yet. Good

> grief!

> >

> > Any advice? I think he is ready cognitively/mentally, but

again

> that communication and motor planning may be what is slowing us

down.

> >

> > I am an only child that never babysat, so any tips you have

would

> be great!!!!

> >

> > Love,

> > Clueless mom! ha.

> >

> >

> > Roark

> > " There will be years that ask

> > and there will be years that answer.

> > In the end, God never wastes pain "

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> >

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I have been trying to get 4 year old daughter potty trained as well.

She has the same type problem. She doesn't seem to realize she

actually has to go or needs to go. Everytime I put her in panties she

will go potty for me, but nothing will ever come out. I have tried

taking her every 15 minutes, but she goes when she has to i

guess...usually on her bedroom carpet or bed. Those plastic bed

covers have really come in handy. I will look up hypotonia though. It

may explain her potty training difficulties and her low muscle tone.

Deborah

>

> remember any children, even with mild hypotonia, will have some

trouble with potty training.....Sensory Integration will effect this

also. Many times they don't feel the sensation that they have

to " go " the same way another typical child would, therefore they

actually do it before they realize they have done it! <sorry, that

sounds weird, lol>....low tone can effect this greatly.

>

> ~k

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I PT'd my son by putting him on the potty in front of his favorite DVD

movies, then phased those out. He has CP in addition to ASD, so I had to put

him on the potty every 30 minutes at first, then we moved to every 1 hour.

Once he *got it*, he could recognize the sensations himself and initiate

going on his own. I also made sure we were 'on the go' the 3rd day of

training, with our 'car' potty so he would be able to go anywhere. (My twins

are 5 and we STILL use this ingenious potty all the time:

http://www.onestepahead.com/catalog/product.jsp?productId=361755 & parentCateg

oryId=85184 & categoryId=85218 & subCategoryId=86218 & PIPELINE_SESSION_ID=c3c4e42

bac12041572b26ec0ada16f8a).

I never put him in pull-ups again - only regular underwear. I watched him

like a hawk the first few days, and if he was having an accident, I raced

him to the potty. I had training pottys all over the house & backyard for

this reason.

He was a HUGE fan at the time, and I was able to find a choo-choo

train training potty that he got really excited about.

I also used tatoos on his hand whenever he was successful (at first

just for being successful, then when he initiated it himself).

Good luck!

Kristy

potty training

My son is 4 years old and I need advise on potty training him. He goes

and sits on the potty but will not do anything. He holds it till he's

off the chair..and also holds it in while he is wearing his " big boy

pants " .As soon as I put his pull-up back on he goes..please any advice

will help alot...

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My son was a lot like this. He was 4 and 3 months before he would have a BM in

the potty. He would get really upset if he was on the potty when he needed to

do one and would hold it for what he considered a more opportune time. There

was nothing I could do. When he was ready, he started using the potty. It was

like a switch flipped. This is probably not what you were hoping to hear, but

you may just need to wait. There seems to be some emotional maturity reached

before they are ready for this.

Hang in there. I know it doesn't seem like this now, but he'll get there.

April

potty training

My son is 4 years old and I need advise on potty training him. He goes

and sits on the potty but will not do anything. He holds it till he's

off the chair..and also holds it in while he is wearing his " big boy

pants " .As soon as I put his pull-up back on he goes..please any advice

will help alot...

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For my son, we could not put him in pull-ups (until he was asleep, at

night). We also had to ensure he stayed 'regular' with formed stools that

came around the same time each day.

Kristy

Re: potty training

My son was a lot like this. He was 4 and 3 months before he would have a

BM in the potty. He would get really upset if he was on the potty when he

needed to do one and would hold it for what he considered a more opportune

time. There was nothing I could do. When he was ready, he started using the

potty. It was like a switch flipped. This is probably not what you were

hoping to hear, but you may just need to wait. There seems to be some

emotional maturity reached before they are ready for this.

Hang in there. I know it doesn't seem like this now, but he'll get there.

April

potty training

My son is 4 years old and I need advise on potty training him. He goes

and sits on the potty but will not do anything. He holds it till he's

off the chair..and also holds it in while he is wearing his " big boy

pants " .As soon as I put his pull-up back on he goes..please any advice

will help alot...

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