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remember any children, even with mild hypotonia, will have some trouble with

potty training.....Sensory Integration will effect this also. Many times they

don't feel the sensation that they have to " go " the same way another typical

child would, therefore they actually do it before they realize they have done

it! <sorry, that sounds weird, lol>....low tone can effect this greatly.

~k

[ ] Re: potty training

Oh, just so you know that you aren't exactly alone, not EVERYONE is

doing a great job with potty training. I had been trying for almost

a year to get my son Drew started. Granted, I did start earlier, and

knew it would take longer, but I wanted to get him started, hoping

that after a year or so he'd be on his way. Alas, that is not the

case. He actually started out doing okay, but as time when on, he

got worse and non-cooperative about it. Now, he's almost 3 now, and

I know I have some time to some degree...but he's a huge kid, as big

as some 4 and 5 year olds we know, so he's outgrowing the diaper

sizes.

I decided to just back off as much as possible. I think he does show

a lot of the signs of being ready, but it's a matter of being ready

and WILLING for Drew. I've also been assured that when he starts

preschool, the sped teacher will be helping him to learn, so I

shouldn't fret about it just yet. I'll be VERY happy to get her help

on this one!

;-)

le (mom to Drew, 2.11 yrs, apraxia, DSI, and hypotonia)

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the best form of toilet traing is send them to school!that worked for our child!

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zinc can help with " feeling " the sensation to go.

Some parents I know used a " sitting " schedule. Mine-

I let them all go without bottoms- and just a long t-shirt.

Doesn't his school teach training? What do they say? The special ed dept here

starts with that skill day one for those who need it....

-GA

From: ixacta

Sent: Sunday, August 15, 2004 5:56 PM

Subject: [ ] potty training

My aspie 5.5yo is still not reliably potty trained, and I'm

struggling to understand him and figure out what's going wrong.

He can stay dry all night, and has done, bar minor accidents for at

least 6 months. But the daytime is another story. I feel like I've

tried everything: pullups, no underpants, underpants, rewards,

charts, etc etc. Nothing works. What happens is that he ignores any

signals his body is sending him until he is practically doubled over,

then he will generally hobble to the toilet as fast as he can go and

pee all over himself, the floor, the toilet. Sometimes he gets there

in time. Rarely without wet underpants though. And if I see him

wiggling around, obviously needing to go, and remind him, he'll deny

needing to go. The only way to keep him dry that I've found is to

make him go every hour or two, whether he wants to or not.

I've talked to him about the problem, but I can't really get a

straight story (very typical of him, can never describe how he feels,

just says what he thinks he's " supposed " to say). Usually he says he

does know that he needs to go, but can't say why he doesn't ( " I just

do. " ) Sometimes he blames it on a compulsion (he knows he has those

and that they aren't good things). Sometimes he says it's because he

doesn't like to stop what he's doing, but it happens even when he's

doing nothing. Sometimes he says he doesn't like sitting down on the

toilet. Sometimes he says he doesn't like standing up.

He seems to have good bladder control, given that he can stay dry at

night. Could it be some sort of compulsion? Any way to drive a

compulsion away? I'm at my wits end. Should I just put him back in

diapers? This is driving me absolutely nuts. I'm running out of

patience and don't like the way I'm reacting to it all. Sorry this is

so long, I guess I'm venting.

=======================================================

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I'm in much the same place with both my 5 yr old severe autie & my " NT "

(shadow issues) 3 year old. I just keep reminding the 3 year old to go,

every hour or two, and if he is successful he gets a candy (M & Ms kept in the

medicine cabinet in a ziploc baggie). If he wets he has to put the wet

clothes in the laundry and put clean clothes on.

The 5 yr old is much more problematic & I don't have a good solution for

him. He was in pullups today as he spent most of yesterday peeing on the

floor. One thing I have found with him, when we are home, is that if I

leave his bottom half naked he is usually 100% with pee. He will get a

pullup to poop in it. Working on having him wear clothes.

For both of them, I think if they have something on their bottom halves,

they forget it isn't a diaper.

I have had some success with (5) doing the " potty training in less

than a day " protocol. You go from where they wet to the bathroom, pull down

pants, pull up pants, flush, wash hands, back to where they wet, back to the

bathroom, the book says 10 times. " We do not pee pee in our pants. We do

not pee pee on the floor. We pee pee on the POTTY. " I do it 5 times now. A

year ago I wouldn't have done it with him at all. Wouldn't have been

possible. So use your best judgement.

Good luck.

-Sara.

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He will get a

pullup to poop in it.

My son did this too, or he'd get a pair of underwear to poop in...so I

hid them and he figured out he only had one choice...to go in the potty!

Never had an accident after that...So, you might consider that.

Good luck, been there done that!!

Kim

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I am having the exact same scenario at the same age with my Aspergers Daughter.

We just established

tonight that we need to replace the matress and the carpet (only 1 yr. old now)

is a close second.

My once potty trained daughter at 20 mo. old, has been regressing for almost 3

years now. I too have tried everything, and also get the same responses

verbally and physically. We are in pullups about 30% of the day and overnight.

I try to start

the day with underwear, but only stick with it if I'm at only 2 changes. 3rd

time gets a pullup. I do believe very stongly that it is symptomatic, along

withchronic constipation and urinary tract infections. I haven't gotten into

any any vitamins or diets that may be appropriate for for Aspergers (if anyone

has any, please pass on) because I am awaiting official diagnosis (even though

we already know) so that I can meet with Dr. on all of these topics. I do

believe that they need to be seen

by O.T's (Wawa Hous by Eden also referred me to occupational therapy for some

of Ellens needs) because alot

of issues are sensory. It may be such a sensation that they get, or maybe that

they can't even feel the urge at all

(but the look on her face 9 x out of 10 tells me she's aware). Ellen has

spinning, laughing fits (please tell me what

" gut bugs " are) , and is constantly complaining of itching (or at least desires

continuous scratching). I'd be curious to know if any of these are also

affecting your son. Maybe we come up with a solution between the two of us, and

whoever else might be experiencing similar. I too am at wits end. please feel

free to e- mail presti1399@... also.

<tt>

My aspie 5.5yo is still not reliably potty trained, and I'm <BR>

struggling to understand him and figure out what's going wrong.<BR>

<BR>

He can stay dry all night, and has done, bar minor accidents for at <BR>

least 6 months. But the daytime is another story. I feel like I've <BR>

tried everything: pullups, no underpants, underpants, rewards, <BR>

charts, etc etc. Nothing works. What happens is that he ignores any <BR>

signals his body is sending him until he is practically doubled over, <BR>

then he will generally hobble to the toilet as fast as he can go and <BR>

pee all over himself, the floor, the toilet. Sometimes he gets there <BR>

in time. Rarely without wet underpants though. And if I see him <BR>

wiggling around, obviously needing to go, and remind him, he'll deny <BR>

needing to go. The only way to keep him dry that I've found is to <BR>

make him go every hour or two, whether he wants to or not.<BR>

<BR>

I've talked to him about the problem, but I can't really get a <BR>

straight story (very typical of him, can never describe how he feels, <BR>

just says what he thinks he's & quot;supposed & quot; to say). Usually he says he

<BR>

does know that he needs to go, but can't say why he doesn't ( & quot;I just <BR>

do. & quot;) Sometimes he blames it on a compulsion (he knows he has those <BR>

and that they aren't good things). Sometimes he says it's because he <BR>

doesn't like to stop what he's doing, but it happens even when he's <BR>

doing nothing. Sometimes he says he doesn't like sitting down on the <BR>

toilet. Sometimes he says he doesn't like standing up.<BR>

<BR>

He seems to have good bladder control, given that he can stay dry at <BR>

night. Could it be some sort of compulsion? Any way to drive a <BR>

compulsion away? I'm at my wits end. Should I just put him back in <BR>

diapers? This is driving me absolutely nuts. I'm running out of <BR>

patience and don't like the way I'm reacting to it all. Sorry this is <BR>

so long, I guess I'm venting.<BR>

<BR>

</tt>

<br><br>

<tt>

=======================================================<BR>

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The itching is probably yeast. Grapefruit seed extract helps with that, along

with a low/no sugar diet. The Dr., unless you see someone who is one of the ten

or so in the country that has a clue, will know less than most parents on the

mailing lists. Chronic constipation can be remedied using magnesium. The key to

improvement is research and following biomedical treatments. Per urinary tract

infections- what type of soap do you use? (and Bath bubbles, etc.) I can only

tolerate Ivory soap- or I immediately get a tract infection. Had many of them as

a kid- as my Mom did not figure out for a long while that it was the bubbles and

the bathbeads and the Dove. Gluten, casein, soy, corn & corn syrup, dyes,

artificials, MSG, BHT, preservatives, phenols and sugar are the most problematic

for children with spectrum disorders. Zinc can helps with sensory issues,

especially " feeling " the urge to go.

-GA

the day with underwear, but only stick with it if I'm at only 2 changes. 3rd

time gets a pullup. I do believe very stongly that it is symptomatic, along

withchronic constipation and urinary tract infections. I haven't gotten into

any any vitamins or diets that may be appropriate for for Aspergers (if anyone

has any, please pass on) because I am awaiting official diagnosis (even though

we already know) so that I can meet with Dr. on all of these topics. I do

believe that they need to be seen

by O.T's (Wawa Hous by Eden also referred me to occupational therapy for some

of Ellens needs) because alot

of issues are sensory. It may be such a sensation that they get, or maybe

that they can't even feel the urge at all

(but the look on her face 9 x out of 10 tells me she's aware). Ellen has

spinning, laughing fits (please tell me what

" gut bugs " are) , and is constantly complaining of itching (or at least

desires continuous scratching). I'd be curious to know if any of these are also

affecting your son. Maybe we come up with a solution between the two of us, and

whoever else might be experiencing similar. I too am at wits end. please feel

free to e- mail presti1399@... also.

<tt>

My aspie 5.5yo is still not reliably potty trained, and I'm <BR>

struggling to understand him and figure out what's going wrong.<BR>

<BR>

He can stay dry all night, and has done, bar minor accidents for at <BR>

least 6 months. But the daytime is another story. I feel like I've <BR>

tried everything: pullups, no underpants, underpants, rewards, <BR>

charts, etc etc. Nothing works. What happens is that he ignores any <BR>

signals his body is sending him until he is practically doubled over, <BR>

then he will generally hobble to the toilet as fast as he can go and <BR>

pee all over himself, the floor, the toilet. Sometimes he gets there <BR>

in time. Rarely without wet underpants though. And if I see him <BR>

wiggling around, obviously needing to go, and remind him, he'll deny <BR>

needing to go. The only way to keep him dry that I've found is to <BR>

make him go every hour or two, whether he wants to or not.<BR>

<BR>

I've talked to him about the problem, but I can't really get a <BR>

straight story (very typical of him, can never describe how he feels, <BR>

just says what he thinks he's & quot;supposed & quot; to say). Usually he says he

<BR>

does know that he needs to go, but can't say why he doesn't ( & quot;I just <BR>

do. & quot;) Sometimes he blames it on a compulsion (he knows he has those <BR>

and that they aren't good things). Sometimes he says it's because he <BR>

doesn't like to stop what he's doing, but it happens even when he's <BR>

doing nothing. Sometimes he says he doesn't like sitting down on the <BR>

toilet. Sometimes he says he doesn't like standing up.<BR>

<BR>

He seems to have good bladder control, given that he can stay dry at <BR>

night. Could it be some sort of compulsion? Any way to drive a <BR>

compulsion away? I'm at my wits end. Should I just put him back in <BR>

diapers? This is driving me absolutely nuts. I'm running out of <BR>

patience and don't like the way I'm reacting to it all. Sorry this is <BR>

so long, I guess I'm venting.<BR>

<BR>

</tt>

<br><br>

<tt>

=======================================================<BR>

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Bacteria usually gives diarrhea- while yeast frequently causes constipation. Of

course, not all kids are the same....

-GA

[ ] Re: potty training

Hi. I do think that gut bugs(bacteria) and yeast (might be the cause

of the spinning and laughing) have alot to do with it. My son

started the potty traing by himself one day and never looked back

until we stopped probiotics to do a stool test and he hasn't been

right since.

Regards,

a

mom to

> I am having the exact same scenario at the same age with my

Aspergers Daughter. We just established

> tonight that we need to replace the matress and the carpet (only 1

yr. old now) is a close second.

> My once potty trained daughter at 20 mo. old, has been regressing

for almost 3 years now. I too have tried everything, and also get

the same responses verbally and physically. We are in pullups about

30% of the day and overnight. I try to start

> the day with underwear, but only stick with it if I'm at only 2

changes. 3rd time gets a pullup. I do believe very stongly that it

is symptomatic, along withchronic constipation and urinary tract

infections. I haven't gotten into any any vitamins or diets that may

be appropriate for for Aspergers (if anyone has any, please pass on)

because I am awaiting official diagnosis (even though

> we already know) so that I can meet with Dr. on all of these

topics. I do believe that they need to be seen

> by O.T's (Wawa Hous by Eden also referred me to occupational

therapy for some of Ellens needs) because alot

> of issues are sensory. It may be such a sensation that they get,

or maybe that they can't even feel the urge at all

> (but the look on her face 9 x out of 10 tells me she's aware).

Ellen has spinning, laughing fits (please tell me what

> " gut bugs " are) , and is constantly complaining of itching (or at

least desires continuous scratching). I'd be curious to know if any

of these are also affecting your son. Maybe we come up with a

solution between the two of us, and whoever else might be

experiencing similar. I too am at wits end. please feel free to e-

mail presti1399@e... also.

>

>

=======================================================

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I was in the same boat as both of you with my four year old asd son.

You need to take them every couple of hours and make them try. Keep

cotton underwear on them. If they wet their pants, don't make a big

deal of it. Just take them and see if they can finish on the toilet.

They will know that they will be going to the bathroom soon, so they

will hold it because they will not like being wet. For a while , it

will just be you taking them on a regular basis. Them going on their

own comes much later. Also, have interesting toys in the bathroom to

entice them to go in. Don't punish them. Make it a normal, pleasant

experience and matter of fact. I have successfully potty trained three

little ones, the youngest just turning two. I thought I would never

get my son to potty train, but he did, and yours will too. Kristy

On Aug 15, 2004, at 8:42 PM, panderson14me wrote:

> UGH!  I'm in the same boat right now.  Can't get a straight answer,

> but can't get to the potty.  And to make him go every hour...!!!!  It

> takes 20 min sometimes to go try!!!!  I've tried making him stand in

> the corner with his soiled underwear, going to his room, taking

> things away (going to a festival), not giving rewards, putting a sad

> face on his chart...  Whatever the reason, he can't help it, because

> he REALLY wanted to go to that festival tonight.  Good luck.  Let me

> know what helps!

>

> Regards,

> a

> mom to

>

>

> > My aspie 5.5yo is still not reliably potty trained, and I'm

> > struggling to understand him and figure out what's going wrong.

> >

> > He can stay dry all night, and has done, bar minor accidents for at

> > least 6 months. But the daytime is another story. I feel like I've

> > tried everything: pullups, no underpants, underpants, rewards,

> > charts, etc etc. Nothing works. What happens is that he ignores any

> > signals his body is sending him until he is practically doubled

> over,

> > then he will generally hobble to the toilet as fast as he can go

> and

> > pee all over himself, the floor, the toilet. Sometimes he gets

> there

> > in time. Rarely without wet underpants though. And if I see him

> > wiggling around, obviously needing to go, and remind him, he'll

> deny

> > needing to go. The only way to keep him dry that I've found is to

> > make him go every hour or two, whether he wants to or not.

> >

> > I've talked to him about the problem, but I can't really get a

> > straight story (very typical of him, can never describe how he

> feels,

> > just says what he thinks he's " supposed " to say). Usually he says

> he

> > does know that he needs to go, but can't say why he doesn't ( " I

> just

> > do. " ) Sometimes he blames it on a compulsion (he knows he has those

> > and that they aren't good things). Sometimes he says it's because

> he

> > doesn't like to stop what he's doing, but it happens even when he's

> > doing nothing. Sometimes he says he doesn't like sitting down on

> the

> > toilet. Sometimes he says he doesn't like standing up.

> >

> > He seems to have good bladder control, given that he can stay dry

> at

> > night. Could it be some sort of compulsion? Any way to drive a

> > compulsion away? I'm at my wits end. Should I just put him back in

> > diapers? This is driving me absolutely nuts. I'm running out of

> > patience and don't like the way I'm reacting to it all. Sorry this

> is

> > so long, I guess I'm venting.

>

>

>

> =======================================================

>

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My almost 4-year-old AS son is still not potty-trained, still cannot

tell me if he has messy pants or not and still has diarrhea most of

the time. Once we get a few more rounds of chelation under our

belts, I am hoping to train him the same way I did my " NT " daughter

with many ADD characteristics. She was not doing well with it and

was almost 4, wouldn't do anything when I would set her on the potty

and then a few minutes after she was off would wet her pants. I was

taking her every 15 minutes and still no success! I decided to try a

one-day training approach. I made arrangements with my husband to be

in charge of my son for the day and my daughter and I spent all

morning and part of the afternoon in the bathroom. We had her potty

chair (with a seat that can be put on the regular toilet as well and

a lid that made it a step stool or chair), a chair for me, books

(mostly kid potty training ones), salty snacks, a lot of her favorite

juice and soda, and some prizes hidden away. After breakfast we

headed to the bathroom and she got to have the salty snacks and of

course then she downed the juice. We hung out reading our stories

until she started to pee (she was bare bottomed) and I quickly put

her on the potty. Emptied the potty, cleaned up the little puddle,

washed hands, etc. and went back to reading, drinking, etc (also gave

her a prize, which for her was a glow-in-the-dark bracelet.) Kept it

up for the morning, dressed her for lunch (which we ate in the

kitchen) and returned to the bathroom for a while in the afternoon.

After that, she was pretty much trained. We had a little refresher

course in about a week and she had the typical accidents on occasion

(at the store and when relatives were visiting-big excitement for

her) but she was out of diapers in a day. I think she just needed

that concentrated effort to understand what it was she was really

supposed to do on the potty.

Spending most of the day in the bathroom probably isn't tops on

anyone's list for a Saturday, but it sure beat all the messes I was

cleaning up from our carpet when I tried it the " traditional " way!

She got a little tired of being in the bathroom, but since she got

snacks and juice and soda (big treat for her), prizes for using the

potty, Mommy's total attention, books, etc, it wasn't punishment at

all for her, just success at last!

I hope another idea helps. You just have to pick what would work

best for your child and sometimes it is just trial and error. You

can also check your local library for books on potty training, both

for kids and instructional ones for adults. There was one at our

little library that had all sorts of different ways to do it, all

written out with step-by-step instructions. It is kind of funny,

actually, all the literature out there just on potty-training!

Good luck!

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He absolutely FREAKS if I even try to take him into the bathroom after he

puts the pullup on. If a pullup is not available he will poop on the floor

& then wig out over the mess. When I have pushed this issue in the past he

has started holding BMs & that's not a road I want to go down. For now I am

calling this good; he will pee on the toilet at home independantly and in

public if we take him...I can handle one pullup a day! We are still working

on gut issues, maybe once he is consistantly having more normal BMs the rest

will come? I don't know...The other option I see is to get him to sit on

the potty chair with his pullup on, then without it, and gradually move the

chair to the bathroom.

Thanks! :)

Rambling,

-Sara.

He will get a

pullup to poop in it.

My son did this too, or he'd get a pair of underwear to poop in...so I

hid them and he figured out he only had one choice...to go in the potty!

Never had an accident after that...So, you might consider that.

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You can try drawing out a story and showing him what it is he should do. I tried

this when my son was 4 and it clicked with him.

The Byk Family <thebyks@...> wrote:He absolutely FREAKS if I even

try to take him into the bathroom after he

puts the pullup on. If a pullup is not available he will poop on the floor

& then wig out over the mess. When I have pushed this issue in the past he

has started holding BMs & that's not a road I want to go down. For now I am

calling this good; he will pee on the toilet at home independantly and in

public if we take him...I can handle one pullup a day! We are still working

on gut issues, maybe once he is consistantly having more normal BMs the rest

will come? I don't know...The other option I see is to get him to sit on

the potty chair with his pullup on, then without it, and gradually move the

chair to the bathroom.

Thanks! :)

Rambling,

-Sara.

He will get a

pullup to poop in it.

My son did this too, or he'd get a pair of underwear to poop in...so I

hid them and he figured out he only had one choice...to go in the potty!

Never had an accident after that...So, you might consider that.

=======================================================

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Wow, that sounds like yeast. Are you giving lots of probiotics like

Culturelle?

Barb

Re: [ ] potty training

> I am having the exact same scenario at the same age with my Aspergers

Daughter. We just established

> tonight that we need to replace the matress and the carpet (only 1 yr. old

now) is a close second.

> My once potty trained daughter at 20 mo. old, has been regressing for

almost 3 years now. I too have tried everything, and also get the same

responses verbally and physically. We are in pullups about 30% of the day

and overnight. I try to start

> the day with underwear, but only stick with it if I'm at only 2 changes.

3rd time gets a pullup. I do believe very stongly that it is symptomatic,

along withchronic constipation and urinary tract infections. I haven't

gotten into any any vitamins or diets that may be appropriate for for

Aspergers (if anyone has any, please pass on) because I am awaiting official

diagnosis (even though

> we already know) so that I can meet with Dr. on all of these topics. I do

believe that they need to be seen

> by O.T's (Wawa Hous by Eden also referred me to occupational therapy for

some of Ellens needs) because alot

> of issues are sensory. It may be such a sensation that they get, or maybe

that they can't even feel the urge at all

> (but the look on her face 9 x out of 10 tells me she's aware). Ellen has

spinning, laughing fits (please tell me what

> " gut bugs " are) , and is constantly complaining of itching (or at least

desires continuous scratching). I'd be curious to know if any of these are

also affecting your son. Maybe we come up with a solution between the two

of us, and whoever else might be experiencing similar. I too am at wits

end. please feel free to e- mail presti1399@... also.

>

>

> <tt>

> My aspie 5.5yo is still not reliably potty trained, and I'm <BR>

> struggling to understand him and figure out what's going wrong.<BR>

> <BR>

> He can stay dry all night, and has done, bar minor accidents for at <BR>

> least 6 months. But the daytime is another story. I feel like I've <BR>

> tried everything: pullups, no underpants, underpants, rewards, <BR>

> charts, etc etc. Nothing works. What happens is that he ignores any <BR>

> signals his body is sending him until he is practically doubled over, <BR>

> then he will generally hobble to the toilet as fast as he can go and <BR>

> pee all over himself, the floor, the toilet. Sometimes he gets there <BR>

> in time. Rarely without wet underpants though. And if I see him <BR>

> wiggling around, obviously needing to go, and remind him, he'll deny <BR>

> needing to go. The only way to keep him dry that I've found is to <BR>

> make him go every hour or two, whether he wants to or not.<BR>

> <BR>

> I've talked to him about the problem, but I can't really get a <BR>

> straight story (very typical of him, can never describe how he feels, <BR>

> just says what he thinks he's & quot;supposed & quot; to say). Usually he

says he <BR>

> does know that he needs to go, but can't say why he doesn't ( & quot;I just

<BR>

> do. & quot;) Sometimes he blames it on a compulsion (he knows he has those

<BR>

> and that they aren't good things). Sometimes he says it's because he <BR>

> doesn't like to stop what he's doing, but it happens even when he's <BR>

> doing nothing. Sometimes he says he doesn't like sitting down on the <BR>

> toilet. Sometimes he says he doesn't like standing up.<BR>

> <BR>

> He seems to have good bladder control, given that he can stay dry at <BR>

> night. Could it be some sort of compulsion? Any way to drive a <BR>

> compulsion away? I'm at my wits end. Should I just put him back in <BR>

> diapers? This is driving me absolutely nuts. I'm running out of <BR>

> patience and don't like the way I'm reacting to it all. Sorry this is <BR>

> so long, I guess I'm venting.<BR>

> <BR>

> </tt>

>

> <br><br>

> <tt>

> =======================================================<BR>

>

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Guest guest

> the day with underwear, but only stick with it if I'm at only 2

changes. 3rd time gets a pullup. I do believe very stongly that it is

symptomatic, along withchronic constipation and urinary tract infections.

Constipation ideas

http://www.danasview.net/constip.htm

UTIs are generally bacterial

http://www.danasview.net/yeast.htm

>>I haven't gotten into any any vitamins or diets that may be

appropriate for for Aspergers (if anyone has any, please pass on)

HNI enzymes can be very beneficial

http://www.houstonni.com/

For diets, gfcf and Feingold are both used with much success,

depending on which one/s your child might need.

>>Ellen has spinning, laughing fits (please tell me what

> " gut bugs " are) , and is constantly complaining of itching (or at

least desires continuous scratching).

Spinning and laughing was yeast for my son

http://www.danasview.net/yeast.htm

Depending on where she is itching, that can also be yeast, or a few

other things.

Dana

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My doctor tells me that high ammonia levels (from bad bacteria) can

mask the sensation of knowing when you have to " go " . I definitely

see this with my son. I can take him to the potty all day long, put

him on it, and he'll go (he's pretty regular -going after meals)

but I can tell that he is not yet know the sensation of when its

time. And they are " really " trained when they know this feeling and

can take themselves, right?.

> > I am having the exact same scenario at the same age with my

> Aspergers Daughter. We just established

> > tonight that we need to replace the matress and the carpet (only

1

> yr. old now) is a close second.

> > My once potty trained daughter at 20 mo. old, has been

regressing

> for almost 3 years now. I too have tried everything, and also get

> the same responses verbally and physically. We are in pullups

about

> 30% of the day and overnight. I try to start

> > the day with underwear, but only stick with it if I'm at only 2

> changes. 3rd time gets a pullup. I do believe very stongly that

it

> is symptomatic, along withchronic constipation and urinary tract

> infections. I haven't gotten into any any vitamins or diets that

may

> be appropriate for for Aspergers (if anyone has any, please pass

on)

> because I am awaiting official diagnosis (even though

> > we already know) so that I can meet with Dr. on all of these

> topics. I do believe that they need to be seen

> > by O.T's (Wawa Hous by Eden also referred me to occupational

> therapy for some of Ellens needs) because alot

> > of issues are sensory. It may be such a sensation that they

get,

> or maybe that they can't even feel the urge at all

> > (but the look on her face 9 x out of 10 tells me she's aware).

> Ellen has spinning, laughing fits (please tell me what

> > " gut bugs " are) , and is constantly complaining of itching (or

at

> least desires continuous scratching). I'd be curious to know if

any

> of these are also affecting your son. Maybe we come up with a

> solution between the two of us, and whoever else might be

> experiencing similar. I too am at wits end. please feel free to

e-

> mail presti1399@e... also.

> >

> >

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I have the same question. My daughter is 3 1/2 and has CP and speech delays. She

can go on the potty if I keep her on a schedule, but can't seem to tell me when

she has to go. She signs quite well, but I don't think she knows the feeling yet

of having to go. Also, she can't walk on her own, so she can't just go in there

by herself. Has anyone else potty trained a child with CP and speech problems

and how long did it take?

anatopper <anatopper@...> wrote:

Hi

I was wondering if anyone is having a problem potty training their son or

daughter due to

speech delays. I'm having a difficult time. My son will only go to the potty

chair on his own

without saying a word when he has no clothing on his bottom. But if I put on his

underwear or pull up he just goes anywhere. He will not communicate to me when

he has

to go. I'm frustrated because he needs to be potty trained for preschool. Any

suggestions

or tips would be very helpful.

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I was just going to say we're at the same place. My 2 1/2 year old

will stay dry all day (except at nap) if i take him every couple

hours. He did use the sign for potty once and I was thrilled but he

hasn't used it since. (Were not great at signs and we weren't always

catching that he was trying to sign something and that was a lot of

teh problem)--He has some kind of movement disorder but has walked for

almost five months and still he won't go into bathroom himself. He

throws a fit ands squats to the floor when I grab his hand and say

lets try to go potty, but most of the time he does go potty on the

toliet. I know a couple typical 3 1/2 year olds that still aren't even

close so I imagine its got to be somewhat harder for kids with tones

issues to figure it out. I think the fact that she can do it on a

schedule is great. Everytime we take Taft we have him attempt to say

potty and then we cheer regardless of the quality of the word. Were

hoping that will be a word he picks up soon to communicate. The other

day I told him it was time to for bed and he walked to the bathroom.

I got excited and asked him if he had to go potty he looked at me

pointed to the bathtub and said baa ...... If only I got the same

enthusiasm for the toliet :)

ps. I don't have hardwood floors so its a no-go for me but a mom on

my hypotonia support group potty trained her son by having him be

naked all the time and whenever she saw that he had to go (it looks

like an erection) shed take him to the pot. I don't have the time or

patience but her son is moderately mr and he was trained by

kindergarten so it was quite the accomplishment.

- In , Stier

<dstier2001@y...> wrote:

> I have the same question. My daughter is 3 1/2 and has CP and speech

delays. She can go on the potty if I keep her on a schedule, but can't

seem to tell me when she has to go. She signs quite well, but I don't

think she knows the feeling yet of having to go. Also, she can't walk

on her own, so she can't just go in there by herself. Has anyone else

potty trained a child with CP and speech problems and how long did it

take?

>

>

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My daughter is that way also. My sister in law said her daughter was the same

and its easier to potty train in the summers (my daughter turned 3 in July)

because they can walk around commando no problems. Neither one of them have

communication disorders. My son has been diagnosed with apraxia but he is only

21 months old. So still too young for that.

Mindy (mother of , apraxic and hyposensitive)

> Ps if he has a favorite cartoon character or if he likes fish or something

like that you can try decorating the bathroom. We have fish everywhere even on

the toilet lid.

> From: " anatopper " <anatopper@...>

> Date: 2004/09/07 Tue PM 10:39:15 GMT

>

> Subject: [ ] potty training

>

>

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I too let my son run naked to learn the connection between the

feeling of a full bladder and the urine or stool coming out. We had

a number of accidents but a heck of a lot less than house breaking a

puppy! I bought a product called Natures Miracle that is based on

enzymes and it completely cleaned any odor or stains that occured.

I also let Nick dictate if he wore a diaper or not. He was much

more motivated if it was his decision. I then went to his wearing

pants without diaper or underwear. I brought a portable potty with

me where ever we went. We had two " accidents " out that were very

embarrassing for him after swimming, so I learned that after

swimming he needed to go at least two times! I think that he was

self conscious to sign " potty " in front of others so I learned to

just take him to the bathroom more than once. I also learned to ask

him if he needed to go after eating, drinking and playing rough.

For me it was very important not to show any emotion over the

accidents or if he decided to go back to a diaper for a few days.

We celebrated the potty visits with stickers that I got at Wal Mart

that teachers use (Great job! Way to go! Etc.) that I allowed him to

stick right on the lid. I also encouraged him to go at the same

time I or his father went.

Lastly I tried to remember that when your child trains has no effect

on all the important things in life.

McCann

Mom to Nick 04/01 Apraxic but so much more than that!

> ps. I don't have hardwood floors so its a no-go for me but a mom

on

> my hypotonia support group potty trained her son by having him be

> naked all the time and whenever she saw that he had to go (it looks

> like an erection) shed take him to the pot. I don't have the

time or

> patience but her son is moderately mr and he was trained by

> kindergarten so it was quite the accomplishment.

>

>

> >

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Hi everyone,

I just wanted to say that i have 4 boys my 6 year old has dysponia and vpi. I

wanted to tell you the best way i found to potty train a boy is let him potty on

a tree or bush. We live in the country on five acres so they can get away with

it. They found such delight in peeing on a tree all 4 of my boys where potty

trained by 2 years of age. To this day they all still pee on a tree if they r

outside. I found this to be the easiest way. None of my boys ended up having

accidents. And if u have to, get daddy to go and pee on a bush the kids will

think this is the funniest thing. Take Care

srmccann2003 <smccann@...> wrote:

I too let my son run naked to learn the connection between the

feeling of a full bladder and the urine or stool coming out. We had

a number of accidents but a heck of a lot less than house breaking a

puppy! I bought a product called Natures Miracle that is based on

enzymes and it completely cleaned any odor or stains that occured.

I also let Nick dictate if he wore a diaper or not. He was much

more motivated if it was his decision. I then went to his wearing

pants without diaper or underwear. I brought a portable potty with

me where ever we went. We had two " accidents " out that were very

embarrassing for him after swimming, so I learned that after

swimming he needed to go at least two times! I think that he was

self conscious to sign " potty " in front of others so I learned to

just take him to the bathroom more than once. I also learned to ask

him if he needed to go after eating, drinking and playing rough.

For me it was very important not to show any emotion over the

accidents or if he decided to go back to a diaper for a few days.

We celebrated the potty visits with stickers that I got at Wal Mart

that teachers use (Great job! Way to go! Etc.) that I allowed him to

stick right on the lid. I also encouraged him to go at the same

time I or his father went.

Lastly I tried to remember that when your child trains has no effect

on all the important things in life.

McCann

Mom to Nick 04/01 Apraxic but so much more than that!

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My son was similar - very stubborn. For example, one morning he woke

up dry so we put him on the potty. Two 12 oz cans of Coke and an

hour and a half later he still wouldn't go. When we put the pull-up

on, he flooded it!

What we did was devote an entire 3 day weekend to potty training. We

put him in underwear and gave him tons of fluids. When he would

start to pee we would rush him into the bathroom and sit him on the

toilet. He could not stand it when he wet himself and it ran down

his leg so he got the idea pretty quick. He would then run into the

bathroom himself. It was a long, exhausting weekend but soooo worth

it. The #2's took a little longer - we would take him with and dump

the turd in the toilet and say poop goes in the potty and gradually

he started to go in there for that too.

There are several different methods to use for potty-training. We

actually took a 4 hr seminar on potty-training. If you'd like, I

could send you the material - it may give you some idea of what

method you'd like to try.

Good Luck!

Jan, Mom to (6) - mild hypotonia, severe expressive delay due

to apraxia, dysarthria, sensory issues (improving)

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Thanks so much, we will try this weekend. We would greatly

appreciate any and all literature you are willing to share. We are

open to receiving anything that will help in this process.

I know that you already know this but you are a blessing not only to

your family but to others as well.

Thanks again,

Bonnye s

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can you share the literature with me too? i'm desperate!

Candi

[ ] Re: potty training

Thanks so much, we will try this weekend. We would greatly

appreciate any and all literature you are willing to share. We are

open to receiving anything that will help in this process.

I know that you already know this but you are a blessing not only to

your family but to others as well.

Thanks again,

Bonnye s

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Me Too!!

Judi

> [Original Message]

> From: Santos <csantos@...>

> < >

> Date: 5/10/2005 9:34:10 PM

> Subject: Re: [ ] Re: potty training

>

> can you share the literature with me too? i'm desperate!

> Candi

> [ ] Re: potty training

>

>

> Thanks so much, we will try this weekend. We would greatly

> appreciate any and all literature you are willing to share. We are

> open to receiving anything that will help in this process.

>

> I know that you already know this but you are a blessing not only to

> your family but to others as well.

>

> Thanks again,

> Bonnye s

>

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Judi,

I tried to email you but your spam blocker wouldn't let me.

If you email your address I can send you a copy too.

Jan

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