introduction

[Guest guest]

I LOVED your " REAL " fibro commercial!!!!!! Might as well laugh, since

crying doesn't help, eh?! There are some folks with FMS and/or CFIDS

on youtube now, and it's good to hear REAL people tell it like it

really is. Yes, on a bad day, we are truly a mess!

[Guest guest]

>

Anne;

so true, love it. dominie does a great job. I remember back in

my 30's I am giong on 52 now the DR's told me too much ging on sit

down and rest and yuor symptoms will dissappear. But I remember those

trials now.One of my friends told me get plain Mucinex it has the

guaifensin in it. I take more supplments than I do RX's. I also love

yur web site and yuor furkid. we get them from shelters too my beagle

age 9 gets in front of me when my BP goes up or even pulse. My

chihuahua knows when it is medicine time or when my pain level;s go

up. but yu also have a great website. I live near a town called

Baldwin almost out opf Duval Cunty. hugs heidi

> We noticed a statistical anomaly in people being diagnosed with

Fibro.

>

> Most are women over 40 or so. Well, when we were little girls, the

top two career options for girls were Nurse and Teacher.

>

> Each year we've noticed more variety in the people who are being

diagnosed. First it was Accountants, then Sales Reps, now we're

> getting computer people, truck drivers, business owners,

technicians, etc. As the career window widened over the years it has

led to more

> diverse people having Fibro.

>

> Just so many Baby Boomers hit 40, then 45, then 50, etc, that a lot

of the Nurses and Teachers were found to have it. Those are also two

> careers where you work with and can talk with a number of other

women; they exchanged information more quickly than more isolated

> homemakers, etc.

>

> Another aspect of this is that the group of " women over 50 " had not

been as accustomed to using the computer and internet as the " women

over 40 "

> right behind them. Most " women over 30 " are very used to using

computers and the internet.

>

> About the time all this hit the fan (2000) with a comprehensive

list of FMS symptoms, the " women over 40 " at that time started

hitting the computers

> and started exchanging experiences online and sifting the facts

out. Changes in the internet and email, giving us the ability to

communicate worldwide,

> inexpensively, were a big boost. Back then, the business buzz word

description would have been " paradign shift " .

>

> When we saw that Guaifenesin was about to become harder to get, I

posted on a lot of boards looking for other sources. I'm in Orlando,

FL, but a

> woman in the Netherlands saw one of my posts and gave me the name

and phone number for a company in Canada where we could buy in bulk

> without a prescription and have it shipped to the U.S. I'm sorry I

didn't keep her name, because that kind effort has been so important

to many people.

>

> Those who have been in it from at least that time, like Dominie,

remember when it was pretty bleak, too. People were invariably

thought to have a

> mental illness, be hypochondriacs, have a weak character, have some

other illness, etc. The cost to try to get diagnosis was horrendous.

They were

> being " experimented on " with Methotrexate shots, Tender Point

injections, neck surgeries, and other pretty bad treatments. It was

before we knew

> what meds and why to take for the depression, etc that can come

with FMS. Also what pain meds would do the most good with the least

problems. I encountered quite a few that were suicidal at times,

even amoung those who did know what they had.

>

> When we saw that Guaifenesin was about to become harder to get, and

sky high in price, I posted on a lot of boards looking for other

sources. I'm in

> Orlando, FL, but finally a woman in the Netherlands saw one of my

posts and gave me the name and phone number for a company in Canada

where we

> could buy in bulk without a prescription and have it shipped to the

U.S. Everyone shared that around the net as quickly as possible.

I'm sorry I didn't keep

> that lady's name, because her kindness has been so important to

many people. Others shared their experience with buying and packing

capsules, etc.

>

> In 2000, we posted all the symptoms we knew and people threw rocks

at us. They swore that all those symptoms could not be part of FMS.

Or that CFS

> and FMS are related and how. Of course, it eventually was obvious

that they were. Now anyone who can go online can know in seconds,

for free.

>

> Hope you will all understand what Dominie and others have done,

giving countless hours, dealing with endless frustration, paying

expenses out of their

> own pockets, taking a lot of guff from jerks; for no profit for

themselves, to get things to this point.

>

> By the sheer force of personal will and God's unlimited grace,

we've come a long way, Baby!

>

> Annie

> www.FibroFix.com

>

>

>

>

>

> Re: introduction

>

>

> Hi !

>

> Greetings from SW KY....near Ft. , Hopkinsville and

Oak Grove. Have you had many problems with doctors here in KY? I

had a very hard time. A lot of docs don't seem to want to

listen...or, the thing that happens the most, in my opinion, is they

break you up into symptoms, instead of trying to figure out what the

accumulation of different symptoms might indicate. And, having a

medical background didn't seem to help. In fact, while its on my

mind, has anyone ever noticed that people in the health profession

seem to suffer from this more than people in other professions.

You'd think we'd be listened to and believed more. I had one doc

actually tell me " maybe you've been around sick people too long. "

Nice. Anyway, I've noticed that people in more densely populated

areas of the country are being dx'd and treated sooner...prolly b/c

the best doctors tend to practice in bigger cities.

>

> Anyway, I had a thought about the lady in the fibro video.

You know what hit me about that commercial first? She didn't figet

enough. I know it sounds silly but, think about it. When was the

last time most of you were able to sit so straight and still? If I

were doing that commercial, I would shift positions once or twice, at

least. I understand that she had to get as much info in there in as

little time as possible but they should have one of us on a bad day.

It would go something like this...

>

> puts down her journal, turns to the camera and

squints, (lights are too bright) starts to say what's on the cards,

forgets where the cards are, looks around, winces at more bright

lights, shifts in her seat b/c her back is already hurting, finally

sees the card, says, " Today my fibromyalgia really hurt. My muscles

were so sore and tender to the touch. Actually, it feels like

somebody wrapped me up too tightly in ace bandages and then set them

on fire! " Another shift...right leg is tingling. " I couldn't sleep

last night and...omg!...please turn those lights down...I can't take

it...my head is starting to ache " Another shift...this time I have

to put my hand up to my face and shield my eyes and what is that

NOISE? Oh, the flourescent lights in the ceiling. About now, the

sweating wouold start and this weird feeling like I was starting to

tilt sideways, even though I'm sitting straight...kind of...

>

> Well, maybe we can make a series of commercials, kinda like

those for that margarine. Everybodyseems to want to know what's

going to happen in the next one. Sorry guys, the way I deal with

this is mostly through humor. If I still didn't have my sense of

humor, I don't think I'd have any sense at all. LOL!

>

> Gentle Hugs & Blessings,

>

> __________________________________________________

>

[Guest guest]

Welcome to the PTM Group.Your efforts are really appreciable

On 24/04/2008, Kumbakonam Sambasiva Venkataraman <dynamicyouth_development@...> wrote:

Dear Friend,

I am K S Venkataraman, Associate Editor, Dynamic Youth, free online monthly magazine, dedicated to Global Youth Development and addressed to the Youth of the world.

The April issue of Dynamic Youth, the free international online monthly magazine, dedicated to Global Youth Development is available www.dynamicyouth.org for your kind perusal.

Primarily the monthly Dynamic Youth itself would be my message to the learned members. I would also like to participate in any discussion of general importance, especially relevant to the Youth.

I hope my interaction with the learned members of this group would be mutually beneficial.

With kind regards,

K S Venkataraman

-- http://mukulchaudhri.blogspot.com

[Guest guest]

Hi Mohinder,

I understand your situation. As for me a mother of autistic child. I felt lost when I am the only

person in Singapore using this method. You are lucky compare to me the support group in Bay area

is good.. Since I am believer that her methods works very well with my daughter, there was no turning

back. I took the liberty on working with my child's school mate to gain experience

if this really works. I am very happy to receive feedback from some parents.

My latest achievement was able to make a 3yrs old gal with Autistsm & Rett syndrome whose fingers cant open

properly with spasm. Within minutes of working on her sequential finger opening (which I learn in Denver in Feb.)

now she is able to open her finger nicely. Its amazing and I still cant believe that I did that!!!!!!!!!

I travel extensively just to learn new methods from the Master. Until I decided to sponsor Dr.Masgutova to SIngapore

so that many other parents will be able to do it too.

I strongly believe that parents are the best therapist. I usually advice parents who are busy & not dedicated, pls dont

waste money to take up the course. Find someone that can help to do a follow up home program for the child.

At this moment , I am in the pipeline of opening a centre to do the home program for parents who are busy. They will

leave their children everyday 5day aweek for 1.5hrs so that I will do the home program for the children.

So anyway, If you ever decided to take up the course, it is usually a surprise wake up call that we too have some reflex

which is not integrated.

I do hope this will help you decided. Ultimately, you need to do the work on your child.

Rgds

Yonie

[childrenwithchalle nges] Introductionchildrenwithchallen gesgroups (DOT) comDate: Tuesday, May 13, 2008, 7:58 AM

Hi everyone. My name is Colleen and I am the mother of Aidan, a 31 month old boy, who suffered a brain injury when he was accidentally left in a car for 4 hours when he was 10 months old. We live in New Orleans, and have a 14 month old daughter as well.Aidan presents very much like a child with CP and his motor function is greatly impaired. He has full body hypotonia with an overlay of high tone in arms/hands; legs/feet. He does not sit, crawl, walk etc. He has very pronounced ATNR reflex and also other reflexes that interfere with his movement, so i would like to learn more about the method and to know whether it has helped others.We have done HBOT (80 dives); Stem cell therapy in Russia; Traditional PT, OT Speech; CCDT therapy; and right now Aidan is in his third week of suit therapy at Therapies4Kids.We have not seen any dramatic improvement from any of the

above.Colleen

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

Thanks a lot for the detailed feedback.

Mohinder Chopra

Mohinder Chopra

From: Colleen Gannon <cbgannonbellsouth (DOT) net>Subject: [childrenwithchalle nges] Introductionchildrenwithchallen gesgroups (DOT) comDate: Tuesday, May 13, 2008, 7:58 AM

Hi everyone. My name is Colleen and I am the mother of Aidan, a 31 month old boy, who suffered a brain injury when he was accidentally left in a car for 4 hours when he was 10 months old. We live in New Orleans, and have a 14 month old daughter as well.Aidan presents very much like a child with CP and his motor function is greatly impaired. He has full body hypotonia with an overlay of high tone in arms/hands; legs/feet. He does not sit, crawl, walk etc. He has very pronounced ATNR reflex and also other reflexes that interfere with his movement, so i would like to learn more about the method and to know whether it has helped others.We have done HBOT (80 dives); Stem cell therapy in Russia; Traditional PT, OT Speech; CCDT therapy; and right now Aidan is in his third week of suit therapy at Therapies4Kids.We have not seen any dramatic improvement from any of the

above.Colleen

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

Hi,

Are you saying that within minutes of therapy your dauhter could open her hadn nicely?

That is miraculous.

With this speed, your daugher might have almost recovered already.

Please share.

Mohinder Chopra

Mohinder Chopra

From: Colleen Gannon <cbgannonbellsouth (DOT) net>Subject: [childrenwithchalle nges] Introductionchildrenwithchallen gesgroups (DOT) comDate: Tuesday, May 13, 2008, 7:58 AM

Hi everyone. My name is Colleen and I am the mother of Aidan, a 31 month old boy, who suffered a brain injury when he was accidentally left in a car for 4 hours when he was 10 months old. We live in New Orleans, and have a 14 month old daughter as well.Aidan presents very much like a child with CP and his motor function is greatly impaired. He has full body hypotonia with an overlay of high tone in arms/hands; legs/feet. He does not sit, crawl, walk etc. He has very pronounced ATNR reflex and also other reflexes that interfere with his movement, so i would like to learn more about the method and to know whether it has helped others.We have done HBOT (80 dives); Stem cell therapy in Russia; Traditional PT, OT Speech; CCDT therapy; and right now Aidan is in his third week of suit therapy at Therapies4Kids.We have not seen any dramatic improvement from any of the

above.Colleen

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

Dear Mohinder,

Its not my daughter. I am working on a girl who is 3yrs old diagnosed for Autism but

recently shows symptoms of Rett.

She has spasm in her hands badly. I am seeing her once a week. I use Dr. Masgutova method to address

her reflex & JSJ (Jin Shi Jitsu) to make her flow circulation better.

This is the beauty of Dr.Masgutova work. We dont cure the child, but we are correcting the child's reflex

in order to help open the possibilities. That is important stepping stone in each every child to correct this as

first priority. From there then you will see the improvement in each child. Each child is special & unique. All is

not the same. Therefore we see different result. But mainly we are targeting into three different dimension which

are the Focus, Lateriality & Centring.

You can see some children works well some methods & others dont. And parents usually says the therapy

doesnt work. Try to look & understand why its not working. Unless you could do a checking on the child reflex

then you realized that due to some of this issues the therapy cant address what is it supposed to do. Does

that make sense?

I am not sure what is your child diagnosed with. But definitely it will helps. Many parents lose interest

in doing it, mainly I found out, they do it wrongly. A session with me usually I ensure that the caregiver who is doing

the work must show me how they doing it. It make my work much easier the next following session they meet me.

We can see much improvement so that we could work on other reflex.

Some parents says it tiring & the child not cooperative. Do it at nite during the child sleeps its much easier. After

awhile the child usually cooperative & loving it. Some parents even tell me that sometime the child request for it.

If you have many family members, then its even better. Give each member each task to do, someone with warm

hands does better doing the tactile embrace. Do it any time of the day, dont fix it certain time schdl. You get tired

& frustrated. If you tired, its ok take a rest first.

As for me what I do is I will sleep early then the rest of the family. I will wake up mayb 2am, then I will work

on my child. Its make my work so much easier. Mayb about 1hr then I will continue to sleep.

I hope all this helps. I am very blessed that some parents do trust me with their child. I am not a certified therapist

but I do many courses its more like a practitioner. When the child improve, it only by word of mouth that parent refer

me to another family. And suddenly my schdl is very tight now. Although my profession as an engineer I work with children

only during weekend.

For many other parents the main important is try to get the correction of your child reflex, it open doors to all the possibilities

that have been locked all this while. If the child works well with the therapist or non professional therapist but do have the

experience working on your child reflex, do give them the benefit of doubt. I know its difficult in the US you do not have the

licence to touch but sometime you need to sign an agreement to have mutual understand.

I hope this helps to clear your doubts.

Rgds

Yonie

[childrenwithchalle nges] Introductionchildrenwithchallen gesgroups (DOT) comDate: Tuesday, May 13, 2008, 7:58 AM

Hi everyone. My name is Colleen and I am the mother of Aidan, a 31 month old boy, who suffered a brain injury when he was accidentally left in a car for 4 hours when he was 10 months old. We live in New Orleans, and have a 14 month old daughter as well.Aidan presents very much like a child with CP and his motor function is greatly impaired. He has full body hypotonia with an overlay of high tone in arms/hands; legs/feet. He does not sit, crawl, walk etc. He has very pronounced ATNR reflex and also other reflexes that interfere with his movement, so i would like to learn more about the method and to know whether it has helped others.We have done HBOT (80 dives); Stem cell therapy in Russia; Traditional PT, OT Speech; CCDT therapy; and right now Aidan is in his third week of suit therapy at Therapies4Kids.We have not seen any dramatic improvement from any of the

above.Colleen

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

Hi ,

Did you receive the article on the Masgutova Method? The article

explains the principles behind Svetlana's work. Do you have specific

questions that you can post to the group? We could answer them hear

and probably other members would also benefit from your questions.

>

> Hi everyone! I just joined this group because I have a 1 year old

who has down syndrome. She is a wonderful little girl and is

progressing well. She goes to regular pt and ot but I am interested in

learning more about this method and how it can help her. I have

looked in the files but am still very uncertain about how it works.

I will continue reading but anyone info would be appreciated. Anyone

else out there whose child has down syndrome?

> thanks

>

>

[Guest guest]

Hi ,

My name is Neumann and my daughter has Downs syndrome. I

have had great results with this therapy as well as with Anat Baniel.

Basically my daughter has a practitioner that uses both therapies and it has

been wonderful. She was able to roll over at 5 months, way before my typical

son rolled over. My daughter is 7 months old now. If you have any specific

questions, please email me. I’d be glad to answer them.

Does your daughter crawl now at 1 year?

Blessings,

Book It Now Vacation

Check

out our website for low cost travel!

http://www.bookitnowvacation.com

tel:

(208) 317-6211

Always have my latest info

Want a signature like this?

From:

[mailto: ]

On Behalf Of Gamroth

Sent: Monday, June 16, 2008 11:20 PM

CHILDRENWITHCHALLENGESGROUPS (DOT) COM

Subject: introduction

Hi everyone! I just joined this group because I have a 1

year old who has down syndrome. She is a wonderful little girl and is

progressing well. She goes to regular pt and ot but I am interested in learning

more about this method and how it can help her. I have looked in the

files but am still very uncertain about how it works. I will

continue reading but anyone info would be appreciated. Anyone else out there

whose child has down syndrome?

thanks

[Guest guest]

Hi Shari,

Do you know Bonnie Brandes? I don’t know how far she is from

you, but she is in Crystal River, FL. She is one of the certified Masgutova

Specialists and has been to both US family conferences and attended the Polish

children camp as well. She would be a great contact for you.

Val

From:

[mailto: ] On Behalf Of playparent@...

Sent: Thursday, June 19, 2008 8:28 PM

CHILDRENWITHCHALLENGESGROUPS (DOT) COM

Subject: Introduction

Hi, I'm Shari Shine, Davie,FL. I am interested in taking courses

to learn more about reflex inhibition/integration. I work with pre-school age

children, babies and toddlers who are displaying many worrisome delays,

disorders and dysfunctions. I want to be able to help these children and their

families. I joined this group to get other people's feedback as to different

courses and hear from those who are being helped by the Masgutova Method. I am

attending the Brain Gym 101 this summer, have attended courses in SI and am

volunteering at an SI camp here in my hometown. I will be glad to meet all!

Gas prices getting you down?

Search AOL Autos for fuel-efficient used cars.

[Guest guest]

Hi Sandy I would love to talk to you we may share some things please email me anytime

Much love and light

In a message dated 9/3/2008 7:59:32 P.M. Eastern Daylight Time, sandyniemann@... writes:

Hi,I'm in Berkeley, CA, and have an 8-year-old daughter adopted from Taiwan. She has dyspraxia, anxiety and hypervigilance, and some learning issues, though we're awaiting the results of neuropsych testing to know just what those issues are. We have been doing neurological reorganization through Northwest Neurodevelopmental Training Center for just over a year, and we haven't seen much change--her anxiety, however, has decreased markedly with homeopathy during the past year, so possibly the neuro reorg is more responsible for that than I realize. Still, I'm hoping there may be some more effective ways of working with these challenges (and ones that require less than 1.5 hours per day!). Sandy It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

-Sandy

I have a 9 year old with significant anxiety problems what homeopathic

remedy are you using if you don't mind sharing.

I am g-ma to a 9 year old with spastic quad cp .

thanks

lola

-- In , Sandy Niemann

<sandyniemann@...> wrote:

>

> Hi,

> I'm in Berkeley, CA, and have an 8-year-old daughter adopted from

Taiwan. She has dyspraxia, anxiety and hypervigilance, and some

learning issues, though we're awaiting the results of neuropsych

testing to know just what those issues are. We have been doing

neurological reorganization through Northwest Neurodevelopmental

Training Center for just over a year, and we haven't seen much

change--her anxiety, however, has decreased markedly with homeopathy

during the past year, so possibly the neuro reorg is more responsible

for that than I realize. Still, I'm hoping there may be some more

effective ways of working with these challenges (and ones that require

less than 1.5 hours per day!).

> Sandy

>

[Guest guest]

Hello Alice - and welcome to our forum where I hope you will receive all the help- and support you need. Any questions you have at any time, just ask, and somebody will be along to hopefully give you an answer, or at least, point you in the direction where you might be able to find an answer. It's always good to have another'Yorkshire Lass' amongst usIt's a pity your doc. didn't do a Free T3 test. Your Free t4 is on the high side, which might be an indication this inactive hormone (T4) is not converting to the active hormone T3. It is the T3 hormone that needs to get into every cell in your body to make it (and your brain) function. You could ask your GP to write a seperate blood request form for this (FT3) test. Often, when a laboratory sees the TSH and the FT4 is within the reference range, they refuse to test the more expensive FT3, but they might do it on a seperate request form. If you are not converting (this mostly takes place through the liver) then this would explain your symptoms. Go to our FILES on the Home Page of this forum, and scroll down until you see 'NPTech Services' (now Lab 21) and you can see that you can get your blood tested there if your laboratory refuses to do it. This costs £17 and the details are all there.

It is not enough that "your results are fine". Your doctor should give you a thorough clinical examination,take all of your syomptoms ionto account, look at yhour 'signs', take into account whether there are any family members who have a thyroid or autoimmune problem, do a FULL thyroid function test and look at these altogether. A blood test is insufficient to diagnose hypothyroidism. You should ask him to refer you to an endocrinologist who is a thyroid specialist, rather than one who has diabetes as his speciality.

It is not enough to take a letter to your doctor to request Armour. Because Armour is not licensed in the UK, many doctors believe it has had potency problems in the past, or they are not allowed to prescribe it. Neither are true. You may well need to go armed with plenty of information for him so he can get true facts about this medication that has been used for over 100 years, and it was, at one time, the ONLY medication for sufferers of hypothyroidism. The British Thyroid Association are trying to rubbish Armour Thyroid and have written a misleading (and in parts incorrect) statement about Armour. We have corrected this and asked the BTA to amend their statement, but without success. Doctors are not aware of the facts, so be prepared and print the following off http://www.tpa-uk.org.uk/resp_bta_armour.pdf .If you look in our FILES again on this forum, you will also see a letter from the MHRA who state that doctors CAN prescribe Armour, but they should take full responsibility, because it is not licensed, should something go wrong and a patient tries to sue them, they are not covered. Hopefully, you have a GP who has an open mind and realise that you do need to have a trial of this medication.

There are doctors who will prescribe you Armour (though few and far between) within the NHS, but if you could not find one and you need to see somebody privately, believe me Alice, it is much cheaper to buy your own Armour from an Internet Pharmacy as the prices charged for a private prescription are far too high. We have details of this in our FILES under "How to Use Natural Thyroid Extract".

Dr Peatfield (who is both Patron and Medical Adviser on this forum) is doing a metabolic clinic at my home very soon (I live between Skipton and Keighley) and if you would like an appointment with him, let me know as soon as possible as I have a couple of places left. This is on 25th and 26th October. Write to me privately at sheilaturner@... . He is now retired and does not prescribe, but he diagnosis and gives his recommendations of what medication you should be taking and tells you where to purchase these.

Luv - Sheila> > Serum free t4 level 19 pmol/L within the range 10 - 23.> > Serum TSH level 1 mu/L within the range 0.04 - 4.00.> > I am going to print off a letter from one of the advocacy sites > (sorry cannot remember which one at the moment)to send into my Gp to > request Armour. I can see this is going to be a challenge.> > Does anyone know of a good Doctor who will prescribe Armour and who > who has a Surgery in the area, even if this is Private?> > Ali>

[Guest guest]

Hi

Welcome to our forum where I hope you get all the help and

support you need.

> I have

been on 125mmg of

levothyroxine for about two years now and only have blood tests once

a year, but i still feel awfull i am constantly tired and lathargic

my mood seems a bit better but i am still putting on weight, all be

it a lot slower i am now 16 stone i was 12 stone when i had my

daughter.

Unfortunately, doctors believe that L-thyroxine is the 'gold

standard' treatment and that it works for absolutely everybody, and if it does

not, then " it's all in our head " as Professor Weetman would tell you.

Most people seem to settle on 125 mcgs and then start realising this dose (or

the L-thyroxine itself) just isn't working and symptoms still remain. This is

because L-thyroxine is mainly an inactive hormone and it has to convert to the

active hormone triiodothyronine (or T3 for short). Some of us are unable to

convert T4 through the liver and kidneys for various reasons, but as doctors

have been taught that everybody can convert, they will not accept this. Can you

post your last thyroid function tests here please. Ask your doctor for a

copy of these and also remember to get the reference range for each of the

tests so we can see what is happening. For a full thyroid function test, you

should have had a TSH, Free T4, Free T3 test done. Also, check to see whether

your GP ever checked to see whether you have antibodies to your thyroid. If so,

and this tested positive, this means the antibodies see your thyroid as public

enemy number one and they set about destroying the thyroid tissue and this is

the reason your thyroid is unable to make the thyroid hormones that keep you

well. If he has not tested your antibodies, ask him to do this, and also

get your ferritin (stored iron) level checked. This is important as many

hypothyroid sufferers who are not regaining their health when on treatment find

they have a very low ferritin, and they need some form of elemental iron too

help build this up. You are putting on weight because people with a low metabolism

are unable to burn off the extra calories.

My family are very understanding and try and

let me nap if

i need to but i feel like i am letting them down i am not interested

in anything i am constantly tired or moody i have two children aged

8 and 9 they want to be out enjoying life not stuck with me.I go to

my doctor every few months complaining of some new problem or other

like muscle ache tiredness bowl problems but he dosent seem to be

much help " try these but they probarbly wont help much " . I am

starting to get very depressed about the whole thyroid thing as you

can probarbly tell could you offer me any advice or help many

thanks kelly

It does appear that the time has come when you need to get off

this roundabout. Write a letter to your doctor putting down all of your

symptoms and signs (you can check yours against the list of symptoms and signs

in our web site www.tpa-uk.org.uk -

click on Hypothyroidism, and on the drop down Menu, click on 'Symptoms and

Signs'. Also, take your basal temperature every morning before getting out of

bed and before drinking. Normal temperature is 98.6 but yours might be 97.8 or

even very much less. Just do this for say, 5 days and write the results in your

letter. A low temperature is indicative of low metabolism and would show your

GP the medication you are taking is insufficient to raise it. Tell your GP if

there are any relatives who have a thyroid problem or who suffer from any

autoimmune diseases. Tell your GP you wish to be referred to a thyroid

specialist so that you can get a thorough clinical examination to see why you

are not regaining your health. Tell him that you are aware that L-thyroxine is

mainly an inactive hormone and that it has to convert to the active hormone T3

and that you feel you might not be converting. Tell him also that you are aware

some sufferers have low adrenal reserve, low ferritin, systemic candidiasis,

low vitamin D and that you are aware that any one of these could be stopping

your L-thyroxine from being absorbed. Make sure that he is fully aware that you

are not happy with the level of treatment you are on and that you might need

combination therapy, and that this is the reason you would like a referral to

an endocrinologist. Send a copy of the letter you write to the Head of Practice

and also ask for your letter to be placed into your medical notes.

Go to our website www.tpa-uk.org.uk

and click on 'Hypothyroidism' and then click on 'Associated Conditions' and

read about all of these. Doctors are not aware that any of these will stop your

thyroxine from working. We can help you with any of these if you do have a

problem.

Luv - Sheila

_

[Guest guest]

Hi ,

Welcome to the forum. I know you will find lots of support here.

Most of what you are saying sounds familar. I have had an underactive

thryoid since 1997. I have had lingering symptoms for a long time.

But my problems really started when my Thyroxine was increased to 125

mcg earlier this year. This level was toxic for me I had

palpitations, headaches, fatigue, dizziness etc etc etc the list goes

on, I had to reduce the dose myself.

When I visited the GP with an A4 list of symptoms they said your

levels are fine, you must be depressed, suffering from anxiety.

Could you afford to see a private Dr, like Dr P? (I can send you his

details privately if you like?) I saw him on Sunday and now feel that

there is light at the end of the tunnel. He said he thinks I have

Adrenal fatigue (this is quite common if you have an underactive

thryoid)and that I am not converting the T4 in Thyroxine into T3.

Also I did a simple test for Candida which I have, so I shall also be

treating myself for this.

I shall be self treating; but with the Doctors advice, there is no

way I would have felt confident doing it completely on my own.

Since having the thyroid probs I am 20 kg overweight!

I know how hard it is for you when you are feeling so tired; but try

to read up as much as you can, there is a list of books in the files

section on here.

I hope non of this is garbled; but I have brain fog at the moment.

Love Alice xx

i am constantly tired or moody i have two children aged

> 8 and 9 they want to be out enjoying life not stuck with me.I go to

> my doctor every few months complaining of some new problem or other

> like muscle ache tiredness bowl problems but he dosent seem to be

> much help " try these but they probarbly wont help much " . I am

> starting to get very depressed about the whole thyroid thing as you

> can probarbly tell could you offer me any advice or help many

> thanks kelly

>

[Guest guest]

hi there thanks for the note but i am on a low income so can not

afford to see a private doctor but i am going to see my doctor next

week and sit and have a proper talk to him i am hoping this might

have some results

>

> Hi ,

>

> Welcome to the forum. I know you will find lots of support here.

>

> Most of what you are saying sounds familar. I have had an

underactive

> thryoid since 1997. I have had lingering symptoms for a long time.

> But my problems really started when my Thyroxine was increased to

125

> mcg earlier this year. This level was toxic for me I had

> palpitations, headaches, fatigue, dizziness etc etc etc the list

goes

> on, I had to reduce the dose myself.

>

> When I visited the GP with an A4 list of symptoms they said your

> levels are fine, you must be depressed, suffering from anxiety.

>

> Could you afford to see a private Dr, like Dr P? (I can send you

his

> details privately if you like?) I saw him on Sunday and now feel

that

> there is light at the end of the tunnel. He said he thinks I have

> Adrenal fatigue (this is quite common if you have an underactive

> thryoid)and that I am not converting the T4 in Thyroxine into T3.

> Also I did a simple test for Candida which I have, so I shall also

be

> treating myself for this.

>

> I shall be self treating; but with the Doctors advice, there is no

> way I would have felt confident doing it completely on my own.

>

> Since having the thyroid probs I am 20 kg overweight!

>

> I know how hard it is for you when you are feeling so tired; but

try

> to read up as much as you can, there is a list of books in the

files

> section on here.

>

> I hope non of this is garbled; but I have brain fog at the moment.

>

>

>

> Love Alice xx

>

> i am constantly tired or moody i have two children aged

> > 8 and 9 they want to be out enjoying life not stuck with me.I go

to

> > my doctor every few months complaining of some new problem or

other

> > like muscle ache tiredness bowl problems but he dosent seem to be

> > much help " try these but they probarbly wont help much " . I am

> > starting to get very depressed about the whole thyroid thing as

you

> > can probarbly tell could you offer me any advice or help many

> > thanks kelly

> >

>

[Guest guest]

Hello Graham, and welcome to our forum where I hope you get all

the help and support you need. Please read everything you can in our FILES and

also look through the many very useful LINKS. You may find something that rings

a bell somewhere as thyroid disease can be very confusing, frustrating and

difficult to diagnose and treat - at least, it's difficult the way the NHS try

to diagnose it through the results of thyroid function tests ONLY, without

taking account of symptoms, signs, listening to the patients story, or even

asking the patient questions about their family history and whether there is

thyroid or autoimmune disorders in the family.

Doctors are told by organisations such as the British Thyroid

association that if their patients thyroid function tests are within the so

called 'normal' reference range, then their patient does not suffer from

hypothyroidism, so they either tell their patients to take more exercise, go on

a diet or to take antidepressants, and if they don't work, often come up with a

diagnosis of CFS, ME or FM.

Have you asked your GP for a full thyroid function test, which

should include testing to see if you have antibodies to your thyroid. If you

have such antibodies, this is called Hashimoto's disease, and the antibodies

see your thyroid tissue as public enemy number one and set about its gradual

destruction so it is unable to put out the thyroid hormones your body and brain

need to make them function. Also, ask your GP to check your ferritin level

(stored iron) and vitamin D level, because either of these can be a cause of

hypothyroidism too. Do the questionnaires in our FILES (you can get there from

the Home Page of this forum) on Adrenals and Candida and see how you score. It

is amazing how many people suffer with these but have no idea.

Before you get out of bed for 4 or 5 days and before having a drink,

take your temperature with (if possible) a mercury thermometer. Normal

temperature should be 98.6 but if yours is 97.8 or even lower (and it could be

much lower)this is an indication your metabolism is running too low - another

feature of hypothyroidism. You should be see by a good thyroid doctor who knows

what he is talking about, rather than an endocrinologist who's specialty is

diabetes. Diabetic specialists know little about hypothyroidism sadly, a fact

many of us are learning to our cost. We do have a list of doctors who prescribe

combination therapy and Armour thyroid and this might make them 'good' doctors,

but I have no idea of their bed side manner. I know you expressed a wish to see

Dr Peatfield, and he is up at my cottage again next January - you literally

just missed him as he was up here last week. He is an excellent doctor and I

couldn't recommend him more highly.

What treatment are they giving you for ME and is your specialist

an endocrinologist at Airedale Hospital? If so, can you write to me privately

as to who this is please.

Ask as many questions as you wish and hopefully, somebody will

come along and try to find an answer for you. You are not alone Graham in

hitting your head against a brick walls, there are a heck of a lot of brick

walls around, but we will knock, 'em down and these doctors WILL listen.

Now, go and do the adrenal questionnaire in particular, I am

keen to know how you score.

luv - Sheila

Hello

My name is Graham, I'm 36 years old and was introduced by a friend of

the family. I became unwell in september 07 and carried on thinking

it was just a virus I could not shake. Then in january 08 my GP said

it was ME! which was quiet a shock, I origanaly made very good

progress but relapsed in march. I have made progress since but seem

to hit a glass celling and have relapses, and at the moment I am at

the lowest I have ever been. I feel my GP put a labble on me and left

me to the internet to find out information, some good some bad, the

candida diet did work for me but at the moment I think I have found

that stress is having the biggest effect on me. My GP did reffer me

to the Leeds ME clinic which is a little late to be honest, they only

work along the lines of pacing which would of been benifical to me

last january, but because I only see an OT they can't answer my

questions and are strict on there guiedlines or beliefs of the

illness and the same goes for my GP who is dismisive of symptoms. I

am sure this is a simalar story to many of you and I guess I would

just like to feel I have an understanding of what is going wrong with

my body, at the moment I think I do but I dont know if I'm correct

and making something fit and any help and advise would help to relive

some of the axiety and feeling of hitting my head against the wall

with the health service.

thanks for listening Graham

_,___

[Guest guest]

Welcome to the forum Graham,

We are all aware of many of the diagnoses which GP's give us,due

to ignorance about the thyroid,and it's associative problems.We have

all found tpa and Sheila,through having to investigate why we feel so

dreadful.ME and CFS are often used when GP's have excluded most other

illnesses.

Read as much as you can in the files and other peoples posts,and if

you need any advice,just ask.Take care,

Val 2

>

> Hello

> My name is Graham, I'm 36 years old and was introduced by a friend

of

> the family. I became unwell in september 07 and carried on thinking

> it was just a virus I could not shake. Then in january 08 my GP

said

> it was ME! which was quiet a shock, I origanaly made very good

> progress but relapsed in march. I have made progress since but seem

> to hit a glass celling and have relapses, and at the moment I am at

> the lowest I have ever been. I feel my GP put a labble on me and

left

> me to the internet to find out information, some good some bad, the

> candida diet did work for me but at the moment I think I have found

> that stress is having the biggest effect on me. My GP did reffer me

> to the Leeds ME clinic which is a little late to be honest, they

only

> work along the lines of pacing which would of been benifical to me

> last january, but because I only see an OT they can't answer my

> questions and are strict on there guiedlines or beliefs of the

> illness and the same goes for my GP who is dismisive of symptoms. I

> am sure this is a simalar story to many of you and I guess I would

> just like to feel I have an understanding of what is going wrong

with

> my body, at the moment I think I do but I dont know if I'm correct

> and making something fit and any help and advise would help to

relive

> some of the axiety and feeling of hitting my head against the wall

> with the health service.

> thanks for listening Graham

>

>

>

> _,___

>

[Guest guest]

Hi Annie,

welcome to the forum; you'll find many people have similar

experiences to yourself, don't worry.

I'm just going out now, so others will pick this up later.

best wishes

Bob

>

> Hi this is the first time I have used this forum and I suppose I

> just wanted to introduce myself and my experience of

> hypothyroidism.

> I was first diagnosed with Hashimotos 3 years ago. Started on

> 100mcg of levothyroxin. Although i did start to feel better I

> have never felt in good health.

[Guest guest]

Hi

Annie - and welcome to our forum where I hope you get the support you need.

First,

never mind what your doctor thinks - he is there to help you regain your health…so

ask for a full thyroid function test that includes tSH, Free T4, Free T3 and a

test to see whether you have thyroid antibodies or not. Also, ask to have your

ferritin level (stored iron) level tested, B12, Vitamin D (very important),

Zinc, magnesium and Copper. If any of these are low (and those with hypothyroidism

could show very low readings) then you need to build these up as quickly as you

can - because being low means your body is unable to absorb the thyroid

hormones.

Another

couple of problems that stop your thyroid hormone from being absorbed is low

adrenal reserve and candida albicans. Go to our we site www.tpa-uk.org.uk

and click on 'Hypothyroidism' and then click on 'Associated Conditions'. On the

page that opens you will see what these conditions are, read through the lot

and decide whether one or more of them could be your problem. If you feel it is

your adrenals - or candida - go to the FILES section of this forum web site and

scroll down the long list until you see 'Adrenal Questionnaire' and 'Candida

Questionnaire' and see how you score. If high, you should think about getting

the 24 hour salivary adrenal profile offered by Genova Diagnostics www.gdx.uk.com

.. This is an expensive test, but it really is worth every penny, because once

you treat your adrenals (we can go into that later), you will be amazed at the

difference this will make to your health and your life. It actually states in

the Patient Information Leaflet in your box of thyroxine that you should tell

your doctor if you have low adrenal reserve because you should not take

levothyroxine until they are treated. Doctors don't even know this. They

blithely go ahead prescribing it and after a while, problems start to flourish

and patients complain of not being able to regain their normal health. It is

the same with Candida.

Have

a read through lots on the web site and the files on this forum. If you have

any worries or questions you need answering, just shout, and somebody will be

along to help you.

The

one thing I can tell you is that there IS light at the end of the tunnel - but

sadly, not many people find it within the NHS mainstream diagnosing and

treating protocol. You have to break out and find the true cause of your

illness - that way, you will get it back.

Do

you take any iron supplements now. If so, please remember that you must NEVER

take your iron tablets any where near your levothyroxine. You must take iron at

least 3 to 4 hours away from when you take your T4 - so probably best to

take your levothyroxine when you go to bed and your iron in the morning. A

small study has shown that people sleep better taking their T4 at night and

they feel better during the day. Have you considered trying this?

Luv -

Sheila

Hi this is the first time I have used this forum and I

suppose I just

wanted to introduce myself and my experience of hypothyroidism. I was

first diagnosed with Hashimotos 3 years ago. Started on 100mcg of

levothyroxin. Although i did start to feel better I have never felt

in good health. I have also suffered from iron defficiency and

menstrual difficulties during this time. Recently after some blood

tests my thyroid function is low again and my thyroxin has been

increased to 125mcg. After 5 weeks on this dose, I am still feeling

awful. I feel like I am never going to get well again. I feel like I

am in an endless cycle of Thyroid, iron and menstrual problems. I am

so fed up going to the doctor and believe they think it is all in my

mind. I would really appreciate fellow members to share their own

experiences with me, as I sometime think I am going mad.

Annie

[Guest guest]

Hi Annie,

Sounds like me 9 years ago! Things got so bad menstrually that

I had a hysterectomy. A visit to Dr. P for Armour and progesterone and

adrenal support soon had me on the right track! No, you are not going

mad- this disease just makes you feel you are- lack of T3 causes

depression. First ask to try a dose increase of T4- that may help a

little while you work out your next step. I would suggest that you look

at the files on other thigs that mimic hypo symptoms which may also

help- low iron, low zinc, low selenium candida infection low vit D etc.

Subject: Introduction

Hi I have also suffered from iron defficiency and

menstrual difficulties during this time. Recently after some blood

tests my thyroid function is low again and my thyroxin has been

increased to 125mcg. After 5 weeks on this dose, I am still feeling

awful. I would really appreciate fellow members to share their own

experiences with me, as I sometime think I am going mad.

Annie

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

,Consider the book The Gut and Psychology Syndrome by Natasha McBridehttp://www.gutandpsychologysyndrome.com/?gclid=CIu4pem4q5kCFR4hnAodnhNOKA

On Tue, Mar 17, 2009 at 7:09 PM, Mischelle Bilyeu <mischelebilyeu@...> wrote:

Hello, my name is Mischelle and I am the mother of a 14 year old daughter. We live in Indianapolis Indiana. She has been diagonised with ADHD and ODD since she was 5. There was also mention of Asperburgers syndrome. These last few months have been awful, I really feel as though I am going to lose my mind. 

She is constantly fighting with someone in the house, it has gotten so bad that CPS was out at my home because of false alligations she made. She is constantly cursing at me telling me that I am not her mom, she calls me stupid, I really don't know how much more I can take. If anyone has any suggestions I would really appreciate it. I have been thinking that maybe she would benefit better if she were put somewhere, and taken out of the home. I am sure it would be alot more peaceful.

Lost

parentMischelle

-- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurpose.comMom to 24, Katy 22, Preston 20 (serving a full-time mission in Mendoza, Argentina), Annie 18, Kent 16, Callie 13 (cured from dyslexia), Carson 11, Dawson 9 (brain injured--was severe now mild!)

[Guest guest]

Hello ,

I will second the recommendation to look

at Gut issues for this child.

Are you located in the Bay area? There is

a wonderful non-profit support group of parents and professionals in Los Altos called, “Help

One Child” which helps families work with children who are showing

behaviors just like your daughter. These parents have been or are going

through the same hell on earth and they are figuring out solutions. If you are

interested, write me back and I will try to find the phone # for you.

Scholer

From: [mailto: ] On Behalf Of Donna Bateman

Sent: Tuesday, March 17, 2009 7:37

PM

Subject: Re:

RE: Introduction

,

Consider the book The Gut and Psychology Syndrome by Natasha McBride

http://www.gutandpsychologysyndrome.com/?gclid=CIu4pem4q5kCFR4hnAodnhNOKA

On Tue, Mar 17, 2009 at 7:09 PM, Mischelle Bilyeu <mischelebilyeu >

wrote:

Hello, my name is Mischelle and I am the mother of a 14

year old daughter. We live in Indianapolis

Indiana. She has been

diagonised with ADHD and ODD since she was 5. There was also mention of

Asperburgers syndrome. These last few months have been awful, I really feel

as though I am going to lose my mind.

She is constantly fighting with someone in the house, it

has gotten so bad that CPS was out at my home because of false alligations

she made. She is constantly cursing at me telling me that I am not her mom,

she calls me stupid, I really don't know how much more I can take. If anyone

has any suggestions I would really appreciate it. I have been thinking that

maybe she would benefit better if she were put somewhere, and taken out of

the home. I am sure it would be alot more peaceful.

Lost parent

Mischelle

--

Donna Bateman

Neurodevelopmental Specialist

www.parentswithpurpose.com

Mom to 24, Katy 22, Preston 20 (serving a full-time mission in Mendoza,

Argentina), Annie 18, Kent 16, Callie 13 (cured from dyslexia), Carson 11,

Dawson 9 (brain injured--was severe now mild!)

[Guest guest]

Hi .

I have family in the Bay area who could benefit from Help One Child support group. Could you get me a contact number? Thanks.

Joan

joan@...

On Wed, 18 Mar 2009 00:22:57 -0700, Scholer wrote:> Hello , I will second the recommendation to look at Gut> issues for this child. Are you located in the Bay area? There> is a wonderful non-profit support group of parents and> professionals in Los Altos called, Help One Child which helps> families work with children who are showing behaviors just like> your daughter. These parents have been or are going through the> same hell on earth and they are figuring out solutions. If you are> interested, write me back and I will try to find the phone # for> you. Scholer From:> > [mailto: ] On Behalf Of Donna> Bateman Sent: Tuesday, March 17, 2009 7:37 PM To:> Subject: Re:> RE: Introduction , Consider> the book The Gut and Psychology Syndrome by Natasha > McBride> http://www.gutandpsychologysyndrome.com/?gclid=CIu4pem4q5kCFR4hnAodnhN> OKA On Tue, Mar 17, 2009 at 7:09 PM, Mischelle Bilyeu wrote:> Hello, my name is Mischelle and I am the mother of a 14 year old> daughter. We live in Indianapolis Indiana. She has been diagonised> with ADHD and ODD since she was 5. There was also mention of> Asperburgers syndrome. These last few months have been awful, I> really feel as though I am going to lose my mind. She is> constantly fighting with someone in the house, it has gotten so bad> that CPS was out at my home because of false alligations she made.> She is constantly cursing at me telling me that I am not her mom,> she calls me stupid, I really don't know how much more I can take.> If anyone has any suggestions I would really appreciate it. I have> been thinking that maybe she would benefit better if she were put> somewhere, and taken out of the home. I am sure it would be alot> more peaceful. Lost parent Mischelle -- Donna> Bateman Neurodevelopmental Specialist www.parentswithpurpose.com> Mom to 24, Katy 22, Preston 20 (serving a full-time mission> in Mendoza, Argentina), Annie 18, Kent 16, Callie 13 (cured from> dyslexia), Carson 11, Dawson 9 (brain injured--was severe now mild!> )

[Guest guest]

Hi ,

My daughter has a really roller coaster hard time. I would appreciate if you can share some information on that support group. we live very close to Los Altos.

Thank you.

Ying Ying

From: Scholer <otrmom@...> Sent: Wednesday, March 18, 2009 12:22:57 AMSubject: RE: RE: Introduction

Hello ,

I will second the recommendation to look at Gut issues for this child.

Are you located in the Bay area? There is a wonderful non-profit support group of parents and professionals in Los Altos called, “Help One Child†which helps families work with children who are showing behaviors just like your daughter. These parents have been or are going through the same hell on earth and they are figuring out solutions. If you are interested, write me back and I will try to find the phone # for you.

Scholer

From: childrenwithchallen gesgroups (DOT) com [mailto: childrenwithchallen gesgroups (DOT) com ] On Behalf Of Donna BatemanSent: Tuesday, March 17, 2009 7:37 PMchildrenwithchallen gesgroups (DOT) comSubject: Re: [childrenwithchalle nges] RE: Introduction

,Consider the book The Gut and Psychology Syndrome by Natasha McBridehttp://www.gutandpsychologysyndrome.com/?gclid=CIu4pem4q5kCFR4hnAodnhNOKA

On Tue, Mar 17, 2009 at 7:09 PM, Mischelle Bilyeu <mischelebilyeu> wrote:

Hello, my name is Mischelle and I am the mother of a 14 year old daughter. We live in Indianapolis Indiana . She has been diagonised with ADHD and ODD since she was 5. There was also mention of Asperburgers syndrome. These last few months have been awful, I really feel as though I am going to lose my mind.

She is constantly fighting with someone in the house, it has gotten so bad that CPS was out at my home because of false alligations she made. She is constantly cursing at me telling me that I am not her mom, she calls me stupid, I really don't know how much more I can take. If anyone has any suggestions I would really appreciate it. I have been thinking that maybe she would benefit better if she were put somewhere, and taken out of the home. I am sure it would be alot more peaceful.

Lost parent

Mischelle

-- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurp ose.comMom to 24, Katy 22, Preston 20 (serving a full-time mission in Mendoza, Argentina), Annie 18, Kent 16, Callie 13 (cured from dyslexia), Carson 11, Dawson 9 (brain injured--was severe now mild!)