HELP!!!

[Guest guest]

Thanks sooo much and i'll start doing these tonight!!! Pray that it works

for me .

>From: Lizkins9@...

>Reply-LifeLift

>LifeLift

>Subject: Re: HELP!!!

>Date: Tue, 17 Aug 2004 14:29:26 -0400

>

>Hi Mia,

>

>My 2 favorite oblique (love handle) exercises are the side stretch and

>the an oblique

>twist. Try doing these the next few days and see if they help.

>

>The side stretch is the one that is on the BF tape. I do the LL breath

>and while I'm holding my breath I reach my right arm up and over my head

>reaching towards the opposite side for a good stretch. Don't forget to do

>the other side. I usually do 5 on ea. side. When I 1st started doing

>breathing exercises I lost first in the sides of my waist because of this

>exercise.

>

>The other one that I like is done while laying on my back with one knee

>bent with that foot flat on the floor. The other knee is crossed over

>that one like a man crosses his leg. I do the breathing and while I'm

>holding my breath I reach the hand on the bent knee side over putting it

>on the crossed knee and hold while I'm holding my breath for as long as

>possible. I do 5 of these on each side.

>

>Do these make any sense? I always worry that I don't explain them very

>well. It would be much easier if you just came over to my house and I

>showed you in person. :-)

>

>If you don't understand my explanation please ask me again and I'll try

>and do a better job.

>

>Love, Liz

>---

>On Tue, 17 Aug 2004 13:38:04 -0400 " Mia L " <mial76@...> writes:

> > Hi Everyone,

> >

> > I need some quick advice. I have a big event coming up this weekend

> > and I

> > still don't like the way my outfit looks even though it looks better

> > than it

> > did before (maybe i'm just being too hard on myself) but I literally

> > still

> > can pinch an inch on my " love handles " . I do my breathing every day

> > and

> > i've been doing the 6 week body makeover which makes me eat 3 meals

> > and 2

> > snacks and I also drink at least 100oz of water each day. Does

> > anyone have

> > any advice on trimming down my midsection superfast in the next 4

> > days???

> >

> > Any help anyone can give is much much much appreciated!!

> >

> > Always Breathing,

> >

> > Mia

> >

>

>

[Guest guest]

Thanks again for all the wonderful tips...this is such an awesome support

group!!

>From: " The Good Book " <the-good-book@...>

>Reply-LifeLift

><LifeLift >

>Subject: Re: HELP!!!

>Date: Tue, 17 Aug 2004 12:43:06 -0500

>

>Mia,

>

>Do you have Rashelle's body wrap? If you do, I would do that daily for a

>minimum of 1 hour. I always see immediate results with it and I focus it

>completely on my waist and my inner thighs. I did this the week before we

>went to Disney World as my husband's company was sponsoring our trip there

>and I knew that I would be meeting people that work for my husband. He's

>proud of me no matter what but I wanted to make sure I looked well put

>together. The wrap was just the little bit of extra I needed.

>

>with love,

>Jenni

>Proud Air Force Mom!

>May God guide and protect our troops!

>

>Christian Air Force Mom and Dads Group

>CAFMandD/

>

>Support for women going through menopause.

>seasons-of-life/

> HELP!!!

>

>

> > Hi Everyone,

> >

> > I need some quick advice. I have a big event coming up this weekend and

>I

> > still don't like the way my outfit looks even though it looks better

>than

>it

> > did before (maybe i'm just being too hard on myself) but I literally

>still

> > can pinch an inch on my " love handles " . I do my breathing every day and

> > i've been doing the 6 week body makeover which makes me eat 3 meals and

>2

> > snacks and I also drink at least 100oz of water each day. Does anyone

>have

> > any advice on trimming down my midsection superfast in the next 4

>days???

> >

> > Any help anyone can give is much much much appreciated!!

> >

> > Always Breathing,

> >

> > Mia

> >

> > _________________________________________________________________

> > Don't just search. Find. Check out the new MSN Search!

> > http://search.msn.click-url.com/go/onm00200636ave/direct/01/

> >

> >

> >

> >

> > What can changing the way you breathe do for you? Everything!

> > See why tens of thousands agree, Life Lift is the best!

>http://www.oxygenzoo.com

> >

[Guest guest]

Back at ya

R

Re: HELP!!!

In a message dated 8/17/2004 4:08:12 PM Mountain Daylight Time,

mial76@... writes:

Thanks again for all the wonderful tips...this is such an awesome support

group!!

You got that right Mia! I have been on boards that THINK they are

supportive, but they aren't. So many just want to be 'Queen Bee', and never

really

accept the newbies. That DOESN'T happen here!!!! :) Just one of the many

reasons I love coming here and continue to do just that. Rashelle, {our super

dooper, most awesom leader}, Jenni, both s, Liz, all of them are just so

wonderful. Hope you keep coming back...

Kiki

[Guest guest]

You know.... I look at our list as our LL family and it's great to be a

part of it!!!! I really feel loved and cared about in many ways and I

love all of you too. :-)

Love, Liz

--

On Tue, 17 Aug 2004 18:14:26 EDT KikiDee11@... writes:

In a message dated 8/17/2004 4:08:12 PM Mountain Daylight Time,

mial76@... writes:

Thanks again for all the wonderful tips...this is such an awesome support

group!!

You got that right Mia! I have been on boards that THINK they are

supportive, but they aren't. So many just want to be 'Queen Bee', and

never really

accept the newbies. That DOESN'T happen here!!!! :) Just one of the

many

reasons I love coming here and continue to do just that. Rashelle, {our

super

dooper, most awesom leader}, Jenni, both s, Liz, all of them are

just so

wonderful. Hope you keep coming back...

Kiki

[Guest guest]

I'll be praying Mia!!!!

Love, Liz

--

On Tue, 17 Aug 2004 18:06:01 -0400 " Mia L " <mial76@...> writes:

Thanks sooo much and i'll start doing these tonight!!! Pray that it

works

for me .

[Guest guest]

Same here Lizzy

R

Re: HELP!!!

You know.... I look at our list as our LL family and it's great to be a

part of it!!!! I really feel loved and cared about in many ways and I

love all of you too. :-)

Love, Liz

--

On Tue, 17 Aug 2004 18:14:26 EDT KikiDee11@... writes:

In a message dated 8/17/2004 4:08:12 PM Mountain Daylight Time,

mial76@... writes:

Thanks again for all the wonderful tips...this is such an awesome support

group!!

You got that right Mia! I have been on boards that THINK they are

supportive, but they aren't. So many just want to be 'Queen Bee', and

never really

accept the newbies. That DOESN'T happen here!!!! :) Just one of the

many

reasons I love coming here and continue to do just that. Rashelle, {our

super

dooper, most awesom leader}, Jenni, both s, Liz, all of them are

just so

wonderful. Hope you keep coming back...

Kiki

[Guest guest]

Liz,

Those were great explanations. Especially when you said how a man crosses his

legs. That's an instant word picture.

Thanks for sharing so much with all of us.

[Guest guest]

Thanks !!!! I really try to write it so that it makes sense, but

sometimes it's tough. :-)

Love, Liz

--

On Wed, 18 Aug 2004 17:19:45 EDT faytk@... writes:

Liz,

Those were great explanations. Especially when you said how a man crosses

his

legs. That's an instant word picture.

Thanks for sharing so much with all of us.

[Guest guest]

Well, the short answer is: It's normal and you're probably not doing

anything wrong. :-)

Feeling a little bigger in the first week or two is a VERY common

phenomenon. It should turn around quickly though, and you'll start to

see drops in both pounds and inches. Here's an old post on the

subject. It was from someone who's leg measurements went up at first.

Maybe it will shed some light.

~~~

Keep training your legs. It's a major calorie burn. If you're feeling

big and bulky, the problem isn't your new lean muscle, it's the old

familiar fat that's still covering it. It's easy to gain some muscle

in the beginning. Once the fat loss catches up, you'll have some

sleek, rock hard, jiggle free legs that are smaller than what you

started with. Witness the fat and muscle comparison photo:

http://skwigg.tripod.com/fat_and_muscle.jpg

Quite a few women never get there though. They gain an inch in their

thighs the first couple weeks of training, wig out, and go back to

being flabby and soft. If they'd stuck it out for 12 weeks, they'd

have found that the fat loss catches up and their legs start looking

amazing! It's not unusual for the measurements in your arms, legs, and

hips to go up slightly at first but then drop like rocks. At the end

of a 12 week transformation you'll be inches smaller all the way

around. Most people don't stick it out though. The " I'm getting bulky "

phenomenon is an excellent excuse to quit and go back to something

safely ineffective.

Double check your meals, your portion sizes, and free day, and make

sure you're creating a substantial calorie deficit every week. You

have to have a calorie deficit in order to strip the fat off. If

you're training your guts out but you've increased your calories to

meet the demands, it's possible that you're accidentally doing a

" bulking " phase. That's all about your diet though.

If you're near your ideal weight, the ballpark estimates are that your

calories should be 8-10 times your body weight for fat loss, 12 times

your body weight for fat loss with some muscle gain, and 15 times body

weight for muscle gain only. Here's the BFL calculator:

http://www.bodyforlife.com/exercise/calcalc.asp

Remember, those numbers are only going to be close if you're already

near your ideal weight. Anybody more than 20-30 pounds over might want

to enter a goal weight instead of your current weight.

Here are some other links to help you maximize your results:

Uh-oh, a Plateau

http://www.skwigg.com/id66.html

How to Have a Dramatic Transformation... or not

http://www.skwigg.com/id64.html

Do You Want to Lean Out or Swell Up?

http://www.skwigg.com/id55.html

On Thu, 17 Mar 2005 00:53:31 -0000, vc_simmons <vc_simmons@...> wrote:

>

>

> I've been on body for life for 2 weeks and I've gained a couple of

> pounds. I'm not any thiner, if anything I look bigger. Is this

> normal? Am I freaking out for no reason, or am I doing something

> wrong? Please help!!!

>

>

>

>

[Guest guest]

Hi,

I dont know how to use the chat room. Does it work. Mike

Is there anyone who is really do get on the chat with me to answer

some questions for me?

[Guest guest]

Dr. Vaezi is located in the Crile building.

I drive East on Carnegie and turn right on 100th or 101th street into the

parking garage.

Follow the signs in the skyway to the Crile building

Dr. Vaezi's office number is: 216-444-6519.

Good luck, he's great.

Mark from Dayton

<mandyw1011@...> wrote:

Hello everyone and Happy Mothers Day!

I was wondering if anyone could give me directions to Dr Vaezi's office

at TCC???? Because I was able to get my appointment early they had to

airmail me all the information and he said I would recieve it

saturday. Well, there was nothing in the mail. It will probably come

tomorrow but I can't chance it because my appointment is tuesday.

I'm comming from Detroit so I know I'll take the turnpike, I found the

directions to the campus online but I have no idea where Dr Vaezi's

office is.

Also I don't have a number to the office except for the appointment

schedueling center.

Thank you in advance!!!!

Michigan

---------------------------------

[Guest guest]

Thank you Mark, I appreciate your help!

> Hello everyone and Happy Mothers Day!

>

> I was wondering if anyone could give me directions to Dr Vaezi's

office

> at TCC???? Because I was able to get my appointment early they had

to

> airmail me all the information and he said I would recieve it

> saturday. Well, there was nothing in the mail. It will probably

come

> tomorrow but I can't chance it because my appointment is tuesday.

>

> I'm comming from Detroit so I know I'll take the turnpike, I found

the

> directions to the campus online but I have no idea where Dr Vaezi's

> office is.

>

> Also I don't have a number to the office except for the appointment

> schedueling center.

>

> Thank you in advance!!!!

>

>

> Michigan

>

>

>

>

> ---------------------------------

>

[Guest guest]

Do a search for New York Vaccine Information Center. They can help and have

monthly meetings. i believe you can claim religious exemption and you will

have to ask school for exemption form or acquire one through their county's

health dept. Don't give more info than required. I don't know what ASD is

but possibly a medical exemption could apply and that requires doc's

signature. I am in Ohio but my 18 yo dd is attending a 4 week workshop in

NY and hoping to continue in their 2 year program so I am looking into this.

Laurie>Oh

[Guest guest]

Thanks for the info. ASD--Autistic Spectrum Disorder--I am going to start with

the Health Dept. Good luck with your son.

BirthWarrior <llandes1@...> wrote:Do a search for New York Vaccine

Information Center. They can help and have

monthly meetings. i believe you can claim religious exemption and you will

have to ask school for exemption form or acquire one through their county's

health dept. Don't give more info than required. I don't know what ASD is

but possibly a medical exemption could apply and that requires doc's

signature. I am in Ohio but my 18 yo dd is attending a 4 week workshop in

NY and hoping to continue in their 2 year program so I am looking into this.

Laurie>Oh

[Guest guest]

I think you should call your doctor and have her evaluated. Whether

it is OCD or true depression, the doctor should know. I would imagine

that whatever the school would do or whomever they call will defer to

your licensed psychiatric caregiver. They may or may not want some

kind of doctor's note. Sorry that you are having a bad time right now.

Best wishes,

Bonnie

>

> Hi,

> I just picked up my daughter (11 yo) from school because the school

> counselor called and said that my daughter was upset and told her that

> she was having bad thoughts about killing herself. My daughter hasn't

> had these thoughts in over a year or so, but she has had them before.

> But they are ocd. She has " bad thought " ocd. At it's peak, she used

> to constantly think of getting an knife and killing herself. But, as

> most of us know, she would never do it, it's the thoughts that scare

> her.

>

> Anyway, I'm concerned now, that the school may call social services or

> something, am I overreacting? She's under a doctors care and a

> therapist, but I know how they are suppose to react when they hear a

> child say that.

>

> She told me that she was feeling really bad about herself because all

> the other kids at school are skinny. She is about 20 pounds

> overweight, basically because of medication. She is so hard to

> communicate with, it's hard to tell if this one is ocd or depression.

>

> Kathy

>

[Guest guest]

I think you should call your doctor and have her evaluated. Whether

it is OCD or true depression, the doctor should know. I would imagine

that whatever the school would do or whomever they call will defer to

your licensed psychiatric caregiver. They may or may not want some

kind of doctor's note. Sorry that you are having a bad time right now.

Best wishes,

Bonnie

>

> Hi,

> I just picked up my daughter (11 yo) from school because the school

> counselor called and said that my daughter was upset and told her that

> she was having bad thoughts about killing herself. My daughter hasn't

> had these thoughts in over a year or so, but she has had them before.

> But they are ocd. She has " bad thought " ocd. At it's peak, she used

> to constantly think of getting an knife and killing herself. But, as

> most of us know, she would never do it, it's the thoughts that scare

> her.

>

> Anyway, I'm concerned now, that the school may call social services or

> something, am I overreacting? She's under a doctors care and a

> therapist, but I know how they are suppose to react when they hear a

> child say that.

>

> She told me that she was feeling really bad about herself because all

> the other kids at school are skinny. She is about 20 pounds

> overweight, basically because of medication. She is so hard to

> communicate with, it's hard to tell if this one is ocd or depression.

>

> Kathy

>

[Guest guest]

I agree " call in the docs NOW!! " I remember when my son (non-OCD) had

" girlfriend " problems in middle school and said he wished he was dead...I was so

lucky the school police officer really liked him and put him in his office and

called me...he explained theirs a law out there that says if ANYONE threatens

there own life they have to be locked down in psych ward for 72 hours...and

theirs nothing a parent can do ...you cant even see them..I was lucky he was

there

for my son and knew he just needed to calm down. If that had happened to him

at age 16 he wouldn't be the same today...so I have explained all of this to

my daughter age 10 and told her no matter how bad things get NEVER say that in

public or to any friends...

Good Luck.

There was a post on here a few months back about a daughter getting locked up

for 3 days...it wasn't a nice story!! I even went as far as telling my

daughter about that case...just so she knows the circumstances!!

Shirley

[Guest guest]

I agree " call in the docs NOW!! " I remember when my son (non-OCD) had

" girlfriend " problems in middle school and said he wished he was dead...I was so

lucky the school police officer really liked him and put him in his office and

called me...he explained theirs a law out there that says if ANYONE threatens

there own life they have to be locked down in psych ward for 72 hours...and

theirs nothing a parent can do ...you cant even see them..I was lucky he was

there

for my son and knew he just needed to calm down. If that had happened to him

at age 16 he wouldn't be the same today...so I have explained all of this to

my daughter age 10 and told her no matter how bad things get NEVER say that in

public or to any friends...

Good Luck.

There was a post on here a few months back about a daughter getting locked up

for 3 days...it wasn't a nice story!! I even went as far as telling my

daughter about that case...just so she knows the circumstances!!

Shirley

[Guest guest]

I totally agree - bring in the doctor!

Also, when our son spoke to one of his friends on the phone just last

friday about wanting to hurt himself his friend called the police (it

was 1am). When he said the same thing to the police (calmly and

politely) it triggered their protocol to take him into custody until

evaluated by a qualified psychiatrist (Dad went with and they were

very kind). But, there was no other option left to police when he

said it to them.

Definitely talk to the doctor - and do it soon - and perhaps follow up

with the school so they know it's under your control.

[Guest guest]

I totally agree - bring in the doctor!

Also, when our son spoke to one of his friends on the phone just last

friday about wanting to hurt himself his friend called the police (it

was 1am). When he said the same thing to the police (calmly and

politely) it triggered their protocol to take him into custody until

evaluated by a qualified psychiatrist (Dad went with and they were

very kind). But, there was no other option left to police when he

said it to them.

Definitely talk to the doctor - and do it soon - and perhaps follow up

with the school so they know it's under your control.

[Guest guest]

,

For many individuals with asperger's, it is very difficult for them

to control their impulses. Trying to counsel them about not doing

it often does not carry over into the moment, because they have

difficulty reminding themselves. They can have self-control, but it

usually takes visual cues right in front of them and on the spot

interruption by the teacher. For example I had a child who had a

picture sequence taped to his desk. It was something like a picture

for raising hand, one of teacher saying it is ok, and than one of

him asking the question. The teacher made a class rule, " must raise

hand and wait for teacher's ok before asking questions " . Aspies

usually respond well to clear rules. The teacher would immediately

interrupt any student who would beginning talking without raising

his/her hand, and remind them of the rule. The teacher " never

responded " to the question without the hand being raised first.

Usually if there are very tight boundaries, with consistant follow

through, than the child learns quickly. However, teachers often let

things slide and than the child has no self-control. I also had a

child who asked way too many questions. The teacher used the same

technique but also hand a limit on how many questions the child

could ask. I think it was four. The child had a small chart of

four hands on it, representing questions. After each question the

child cross off one of the hands. When they were all crossed off,

he had reached his limit.

Bill

Bill

>

> Does anyone have any ideas or solutions or MEDICATION ideas that

would help

> with this problem.

> My son is 16, ADHD and ASPERGERS. He does well in school, smart,

good

> student. HE has a one on one aide, in the classroom. The aide is

in most of the

> classes, most of the time. Anyway, she does try to tell him to be

quiet when he

> talks too much or asks too many questions, etc.

> My son has always had problems with blurting out, asking too many

questions

> and sometimes just saying or asking something the minute something

comes to

> mind, while he is in the classroom, or anywhere else for that

matter.

>

> Lately, he has told me that he notices that some of the students

are making

> " sighs, " when he asks things. He said that sometimes he will ask

one or two

> questions and others might ask the same amount, but the sigh sound

comes from

> certain people only when he asks or makes a comment in class. I am

sure kids

> are tiring of him. I am sure also that my son might not ask at

the right time

> and ask/say the appropriate thing. We have worked on this at

home, the SLP

> and SW have addressed this for years, when they remember, or when

they can in

> their sessions in school.

>

> IT just breaks my heart and I wish there was a magical answer to

help.

>

> Anyway, so if you have a suggestion, please let me know. PLEASE do

not

> respond with something about having him or teaching him to control

himself, he

> simply CANT, and we do tell him things about self control over

and over and HE

> clearly says that if he could, he WOULD. This is not something

that he does

> on purpose.

>

> Thanks much.

>

> I am posting this message on a few lists that I am on because I

want to pick

> some brains and get some help. Thanks

> in IL

>

[Guest guest]

Hi ,

>>Lately, he has told me that he notices that some of the students are

>>making " sighs, " when he asks things. He said that sometimes he will ask

>>one or two questions and others might ask the same amount, but the sigh

>>sound comes from certain people only when he asks or makes a comment in

>>class.<<

This is not your son's problem, this is a problem with those other students

and the teacher should be coming down on them hard. They have got to learn

to tolerate others' differences. Your son has a different brain structure

and function and cannot help the way he is. They can help the way they are

responding to him and should.

in England

[Guest guest]

Hi Juls & welcome to our group!

Since the s are about to start, and I'm not home at the

moment to watch it, I'll be the first of many you are going to hear

from. You will find this to be a very lively, very supportive group,

one that shares many of the same opinions, and yet (and this is a

good thing), will not be afraid to voice contrary opinions.

There is only one question that you asked, but I want to make a

comment first. What are you thinking about with the botox? Save it

for your forehead! You are just upsetting your esophagus more by the

tiny amounts of time you are buying to put off the surgery! You have

to just leave it alone and address the issue that needs taking care

of. Its a debatable point whether or not botox might have a negative

effect on future surgeries.

There are others on this board who have had multiple surgeries.

You're going to hear from , one of the nicest guys around (at

least until he returns to the U.S. from England). However, I can

tell you that you are not going to get a surgeon or anyone else for

that matter who is going to give you some kind of warranty on your

operation, whether its going to be the last time, or you are going to

need another one. What is most important is that if you have already

gotten a second opinion that you must have the surgery, that you have

it done by the best surgeon out there. (Please take as much time as

you need to explore the " files, " " links, " and " databases " located on

the left hand side of this window. There is more information to be

had there, than perhaps any doctor could provide you. You just don't

know if there will be another surgery (after this), but the quality

of the surgeon might be an indicator if you will need another one or

not.

As you said, your stay in the hospital was not the norm

for this operation, and you were wise to point that out to others

thinking about having it done. I am curious, as will be others, how

old you are, where you had the surgery performed, and who did it?

As to the chest pain. If you reviewed the posts over the last 2

months, or clicked on some of the information files, you will see

that members here all have their ways of dealing with the pain. Some

much more successfully than others. Since you are in such a state,

what I do bears repeating.

As soon as you sense that the pain is going to begin, you must

take action. That is pretty much universal. Once you are in the

grip of it, it becomes much harder to get rid of.

There are the " home grown " methods. I drink Diet Coke (or any

carbonated beverage ASAP), but sometimes, just eating a cracker can

stop it. Others drink water of varying temperatures.

On a more medical level, I put a nifedipine capsule (also

known as Procardia) under my tongue, let it dissolve, then crunch it

with my teeth to empty out.

Usually within 3 minutes the pain is gone and does not repeat

until the next time (hours, days, or weeks later).

Now, don't get me wrong. Just because I can get rid of it so

easily, does not lessen the impact of what it would be like if I did

not have the means of dealing with it. The rare times that I have

forgotten to have my nifedipine with me, and not near anything to

drink, the pains have been so intense it felt like my chest would

explode, or like I was having a heart atttack (though I knew I

wasn't).

Juls, I am also curious about the knowledge of your

gastroenterologist, in that you are suffering so much chest pain from

the esophageal spasms, and yet he did not make any suggestions to you

as to how to handle it? Did you ask him (her) about it?

I hope that you are not offended by the directness of some of my

questions, but when you are not face to face, you just try the best

you can to get to the answers, and perhaps if there is something

along the way that just does not sound right.

Everyone on this board is here to help you (especially if the

s get boring, though I'm rooting for Jon to bring the

house down!). So, please check out the references I gave you, and

check back here for others to also respond (and stay off the botox).

>

> Hi everyone,

>

> I am a new member and amazed and excited to see there are others

> going through the same things l do (not that l wish this condition

> on anyone, but there is worse).

> A little into my background, l was diagnosed over 10 years ago.

> Finding it was getting worse l underwent 2 dilatations, with no

> change. Then finally after nothing would go down l was operated on

> in 1998, Hellers myotomy and nissen fundiplication. Unfortunately

> this resulted in a 2 month stay in hospital and several drain tubes

> for about two years, as l ended up having a perforation. Keeping

in mind anyone thinking of operating, what happened to me is a rare

> occurance, but life was hell for a while there, though there was

> still problems with swallowing the positive was food was passing

> with fluid.

> Now here l am again 2006 delaying another operation as l am

> having problems all over again. I am about to have my third round

> of botox, with the first course lasting about 2-3 months, then the

> second only lasting 1 month. Anything to delay the

> operation.....Basically l am after advice from anyone about the

> chest pain that can come on at any time and bring me to my knees

for a number of hours, and really to hear if others have had to

repeat operations. Then how am l to know that it will not happen

again.....

>

> Looking forward to hearing from anyone with any advice, thanx

>

> Juls

>

[Guest guest]

Juls, welcome to the group. Sorry to hear that you have such a difficult time with your first surgery. I would suggest you fine a specialist and go and have a consult with them if you have not already. I had a second surgery last May and I am really glad I did it. I also was having a lot of pain when I would eat and drink. I also got to the point again where I could not get water down. After having my second surgery I no longer have pain when I eat and I have not had any trouble eating anything I want. I hope this helps you out a little. If you would like to talk more you are very welcome to e-mail me privately. Where do you live?

Again welcome to the group and our little family. I hope you can get some relief soon.

in Suffolk

[Guest guest]

Hi Juls,

Welcome! I remember when I found this group, I was ecstatic. After

all I had been through then having to have a THIRD surgery. The

group that was here then nursed me through that surgery. That was in

2000.

WOW sounds like you have had a tough time!! I can see where you

would do just about anything to avoid another operation.

My history is in the files but I wil give you the short version. I

am sure I started having problems at 11 or 12 but I was not

correctly diagnosised until I was 17. I had a Heller myotomy with

no complications Praise God! I went about 15 years before I had a

wrap. I had chronic infections, bronchitis, pnuemonia ect during

that time. The answer was supposedly the wrap. The wrap lasted

about 9 years, then I started having problems again and after a

couple attempts at dilation doctors decided the wrap was too tight

and a take down of the wrap was the best deal. I put that off for a

year! That makes 3 open chest surgeries. I told the doctors they

better get it right cuz we are NEVER doing another surgery. All 3

surgeries were open, 2 of them through the front of my chest.

I did have complications because they damaged the diaphram. I spent

a week on a ventilator in ICU, then 3 weeks in the hospital trying

to get back to breathing on my own.

I don't know if it is the fact that they damamged the diaphram or

that they have done so many surgeries that I have no real muscle

strength in my chest, but I have very few spasms these days. I know

what brings them on and I avoid those things!! There is no way I

will lift over 10 pounds cuz that will put me out for a few hours!

In my earlier days, I had several spasms so bad, I was taken to the

Emergency Room because people thought I was having a heart attack.

If a spasm is really bad, and I can't stop it (which has happened a

few times) I know I can get into the ER quick by telling them I am

having chest pains.. :-)

My answer to spasms has been to take a couple of uncoated Tylenol

and put them under my tongue. Then drink lots of water. That's not

for everyone, but it works for me...LOL. Maybe others have some

additional ideas.

I don't know what your questions are, but feel free to ask away. I

do understand your hesitation at another surgery for sure!!

JC

>

> Hi everyone,

>

> I am a new member and amazed and excited to see there are others

> going through the same things l do (not that l wish this condition

> on anyone, but there is worse).

> A little into my background, l was diagnosed over 10 years ago.

> Finding it was getting worse l underwent 2 dilatations, with no

> change. Then finally after nothing would go down l was operated on

> in 1998, Hellers myotomy and nissen fundiplication. Unfortunately

> this resulted in a 2 month stay in hospital and several drain

tubes

> for about two years, as l ended up having a perforation. Keeping

in

> mind anyone thinking of operating, what happened to me is a rare

> occurance, but life was hell for a while there, though there was

> still problems with swallowing the positive was food was passing

> with fluid.

> Now here l am again 2006 delaying another operation as l am

> having problems all over again. I am about to have my third round

> of botox, with the first course lasting about 2-3 months, then the

> second only lasting 1 month. Anything to delay the

> operation.....Basically l am after advice from anyone about the

> chest pain that can come on at any time and bring me to my knees

for

> a number of hours, and really to hear if others have had to repeat

> operations. Then how am l to know that it will not happen

again.....

>

> Looking forward to hearing from anyone with any advice, thanx

>

> Juls

>