New to group

[Guest guest]

My son's (16 mo. old) pediatrician also strongly recommends *all*

vaccines. I think most doctors do. However, I did tell him what my

concerns are with the vaccines, and especially the MMR, and I thought

he had good advice (for a doctor). I told him I was concerned because

1 in 166 children have autism, and they still really don't know why. I

expressed to him that I have not seen adequate proof as of yet that the

vaccines are not a factor in it. I know some folks say it's not, but

usually they have money tied to it somehow. Anyway, so he said, " If

that is what you are concerned about, then I would wait until your son

is 4 or 5 before you do the MMR because he just needs them before

school. " (okay, but most likely we're not doing it at all). His

thinking is that we would at least *know* by now if he is speaking, is

developing " normally, " etc., and would " know " if it was the vaccines if

something happened to him.

At any rate, I don't get why your child's doctor would make you leave

because you didn't stick right to the schedule (which is just

a " recommendation " anyway)?!? I guess it's better that you go to a

different doc if they're going to be that way.

Hope things work out,

>

> HI - My name is Debbi.

> Our peditrician said we can get them done seperately -a month apart-

but if we don't get them done by the time she is 18 months, we must

leave their practice. So we left and found another peditrician. they

don't push as much but still STRONGLY recommend them.

[Guest guest]

> Anyway, so he said, " If

>that is what you are concerned about, then I would wait until your son

>is 4 or 5 before you do the MMR because he just needs them before

>school. " (okay, but most likely we're not doing it at all). His

>thinking is that we would at least *know* by now if he is speaking, is

>developing " normally, " etc., and would " know " if it was the vaccines if

>something happened to him.

This doctor is in good company then!

I saw Tony Attwood (one of the top experts in Asperger's syndrome) speak

last week. He always spends an hour answering questions from the audience.

One question came from a family where the eldest son had Asperger's, and the

younger son had high functioning autism. Their question was should they

give the MMR to their 13 month old daughter!

He said there were two answers, which did we want. He then gave the

official answer which sounded like he had memorised the blurb given out by the

government. Then he went on to say that if it was his child, he wouldn't give

them the MMR until they were over three. By then the brain would have sorted

itself out. he also suggested that they find someone who is experienced in

spotting the very early signs of ASDs. Then he told us not to tell anyone that

he said that!

Cheers,

in the UK

[Guest guest]

My pediatrician also " recommends " all vaccines but he also left a

practice and began his own over the issue of refusing service to those

parents who choose not to vaccinate. In AZ it is our right to choose

while in some states it can be cosidered criminal not to - now there's

the real crime. But in any case - I have found that a vast majority

of Asian doctors take a very moderate stand. But that's just been my

personal experience.

Alice

mother of 2.

> >

> > HI - My name is Debbi.

> > Our peditrician said we can get them done seperately -a month apart-

> but if we don't get them done by the time she is 18 months, we must

> leave their practice. So we left and found another peditrician. they

> don't push as much but still STRONGLY recommend them.

>

[Guest guest]

At 02:41 AM 5/29/2006 -0000, you wrote:

>My son's (16 mo. old) pediatrician also strongly recommends *all*

>vaccines. I think most doctors do. However, I did tell him what my

>concerns are with the vaccines, and especially the MMR, and I thought

>he had good advice (for a doctor). I told him I was concerned because

>1 in 166 children have autism, and they still really don't know why. I

>expressed to him that I have not seen adequate proof as of yet that the

>vaccines are not a factor in it. I know some folks say it's not, but

>usually they have money tied to it somehow. Anyway, so he said, " If

>that is what you are concerned about, then I would wait until your son

>is 4 or 5 before you do the MMR because he just needs them before

>school. " (okay, but most likely we're not doing it at all).

And I have seen children regress at 4 and 5. No safety there.

His

>thinking is that we would at least *know* by now if he is speaking, is

>developing " normally, " etc., and would " know " if it was the vaccines if

>something happened to him.

Yeah, you'd know. Some comfort.

>

>At any rate, I don't get why your child's doctor would make you leave

>because you didn't stick right to the schedule (which is just

>a " recommendation " anyway)?!? I guess it's better that you go to a

>different doc if they're going to be that way.

This happens all the time. You challenge their authority basically - how

dare you.

OVER and over people tell me this.

Sheri

>PS - you really don't need a PED for anything (I'm a former peds nurse)

Find a homeopath or naturopath or chiropractor for primary care. Or next

best a family practice doctor who is older and not so steeped in all of this

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

[Guest guest]

At 04:21 AM 5/29/2006 -0000, you wrote:

>My pediatrician also " recommends " all vaccines but he also left a

>practice and began his own over the issue of refusing service to those

>parents who choose not to vaccinate. In AZ it is our right to choose

>while in some states it can be cosidered criminal not to - now there's

>the real crime. But in any case - I have found that a vast majority

>of Asian doctors take a very moderate stand. But that's just been my

>personal experience.

>

>Alice

>mother of 2.

Good for him. Would you email me privately his name - do not put it on the

list.

All the vaccines laws have to do with school attendance, not being able to

live on the planet. And there are exemptions as you all know to the laws

in most states.

But again, the vaccine laws are related to school.

Yes, it should be your right to choose. Interesting idea about asian doctors.

Sheri

>>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

[Guest guest]

At 09:57 PM 5/28/2006 -0400, you wrote:

>Do you have any idea on how much of these a baby should get daily on top

of a healthy diet & breastmilk?

I wouldn't do any of these things in a baby with a healthy diet (whatever

that is ;-) and on breastmilk, unless there are symptoms of problems.

Sheri

>

>) ~ mom to Gavin ~ 07.09.05 ~ 10 Months Old (can somebody slow

him down?!?) ~ http://www.thelucastribe.com

>

>~ KUSTOMIZED KIDS ~ http://www.cafepress.com/kustomizedkids

>Featuring Personalized Baby & Children's Clothing + Natural

Parenting/Breastfeeding Advocacy Products

>

>~ Visit Us on LiveJournal (ask to be my friend!)

http://rachellucas6.livejournal.com

>

>

> Omega 3 oils (like Nordic Naturals)

> Probiotics

> Cod Liver Oil for the Vitamin A

>>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

[Guest guest]

LOL well by healthy diet I mean whole foods, no processed stuff (except the

occasional cheerio while we are shopping!). Mostly fruits and veggies, and some

meats.

) ~ mom to Gavin ~ 07.09.05 ~ 10 Months Old (can somebody slow him

down?!?) ~ http://www.thelucastribe.com

~ KUSTOMIZED KIDS ~ http://www.cafepress.com/kustomizedkids

Featuring Personalized Baby & Children's Clothing + Natural

Parenting/Breastfeeding Advocacy Products

~ Visit Us on LiveJournal (ask to be my friend!)

http://rachellucas6.livejournal.com

At 09:57 PM 5/28/2006 -0400, you wrote:

>Do you have any idea on how much of these a baby should get daily on top

of a healthy diet & breastmilk?

I wouldn't do any of these things in a baby with a healthy diet (whatever

that is ;-) and on breastmilk, unless there are symptoms of problems.

Sheri

[Guest guest]

> Anyway, so he said, " If

>that is what you are concerned about, then I would wait until your son

>is 4 or 5 before you do the MMR because he just needs them before

>school. " (

Sounds like he wants to do his own private study on your kid. Lets see if

we delay shots and see a trend of late on-set autism developing....

L.

[Guest guest]

Would *love* to find one in our area. Would any chiropractor work?

There is a naturopath over an hour away (not doing that). You had

recommended a homeopath, but he is out of state. My husband (and I

both) like going to someone (at the least, for our children) and having

a paper trail that they are healthy, normal, and cared for, etc.

Sheri wrote:

> >PS - you really don't need a PED for anything (I'm a former peds

nurse) Find a homeopath or naturopath or chiropractor for primary

care. Or next best a family practice doctor who is older and not so

steeped in all of this

>

[Guest guest]

Very interesting!

Then he went on to say that if it was his child, he wouldn't give

them the MMR until they were over three. By then the brain would have

sorted itself out. he also suggested that they find someone who is

experienced in spotting the very early signs of ASDs. Then he told us

not to tell anyone that he said that!

>

> Cheers,

> in the UK

>

>

>

[Guest guest]

At 03:11 AM 5/29/2006 EDT, you wrote:

>> Anyway, so he said, " If

>>that is what you are concerned about, then I would wait until your son

>>is 4 or 5 before you do the MMR because he just needs them before

>>school. " (okay, but most likely we're not doing it at all). His

>>thinking is that we would at least *know* by now if he is speaking, is

>>developing " normally, " etc., and would " know " if it was the vaccines if

>>something happened to him.

>

>This doctor is in good company then!

>

>I saw Tony Attwood (one of the top experts in Asperger's syndrome) speak

>last week. He always spends an hour answering questions from the audience.

>

>One question came from a family where the eldest son had Asperger's, and

the

>younger son had high functioning autism. Their question was should they

>give the MMR to their 13 month old daughter!

>

>He said there were two answers, which did we want. He then gave the

>official answer which sounded like he had memorised the blurb given out by

the

>government. Then he went on to say that if it was his child, he wouldn't

give

>them the MMR until they were over three. By then the brain would have

sorted

>itself out. he also suggested that they find someone who is experienced in

>spotting the very early signs of ASDs. Then he told us not to tell

anyone that

>he said that!

and there is no guarantee over 3

The one right before school at age 4 or 5 puts some over the edge,

especially is slight or greater reaction from first one.

Sheri

>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

[Guest guest]

At 05:31 PM 5/29/2006 -0000, you wrote:

>Would *love* to find one in our area. Would any chiropractor work?

No, you need one that is recommended. Know anyone to ask? Health food

store? Midwife? Places like that.

>There is a naturopath over an hour away (not doing that). You had

>recommended a homeopath, but he is out of state. My husband (and I

>both) like going to someone (at the least, for our children) and having

>a paper trail that they are healthy, normal, and cared for, etc.

Remind me where you live.

Sheri

>

>

>

>

>Sheri wrote:

>> >PS - you really don't need a PED for anything (I'm a former peds

>nurse) Find a homeopath or naturopath or chiropractor for primary

>care. Or next best a family practice doctor who is older and not so

>steeped in all of this

>>

>

>

>\

>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

[Guest guest]

The female Ped. from India that we took are 1st son to just one time

had no problem with not vaxing. She asked, I said no, she wrote in

the file and said nothing about it.

Why Sheri can we not name docs on here?

Dan

> >My pediatrician also " recommends " all vaccines but he also left a

> >practice and began his own over the issue of refusing service to

those

> >parents who choose not to vaccinate. In AZ it is our right to

choose

> >while in some states it can be cosidered criminal not to - now

there's

> >the real crime. But in any case - I have found that a vast

majority

> >of Asian doctors take a very moderate stand. But that's just been

my

> >personal experience.

> >

> >Alice

> >mother of 2.

>

> Good for him. Would you email me privately his name - do not put

it on the

> list.

> All the vaccines laws have to do with school attendance, not being

able to

> live on the planet. And there are exemptions as you all know to

the laws

> in most states.

> But again, the vaccine laws are related to school.

>

> Yes, it should be your right to choose. Interesting idea about

asian doctors.

> Sheri

>

> >>

>

> --------------------------------------------------------

> Sheri Nakken, R.N., MA, Hahnemannian Homeopath

> Vaccination Information & Choice Network, Nevada City CA & Wales UK

> $$ Donations to help in the work - accepted by Paypal account

> earthmysteriestours@... voicemail US 530-740-0561

> (go to http://www.paypal.com) or by mail

> Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

> Vaccine Dangers On-Line course -

http://www.nccn.net/~wwithin/vaccineclass.htm

> Reality of the Diseases & Treatment -

> http://www.nccn.net/~wwithin/vaccineclass.htm

> Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

>

[Guest guest]

Hi Dan, I know that I am not Sheri. But I remember this issue coming up a while

back. It is mainly so that doctors who are supportive to our choices, are not

victimised. There are spies on this list who could cause problems for some of

these doctors if their details are given to everyone. And unfortunately it is

this kind of thing that sometimes prevents doctors from being supportive. Could

elaborate more, but hopefully that explains it.

Fieldman

Re: New to group

The female Ped. from India that we took are 1st son to just one time

had no problem with not vaxing. She asked, I said no, she wrote in

the file and said nothing about it.

Why Sheri can we not name docs on here?

Dan

> >My pediatrician also " recommends " all vaccines but he also left a

> >practice and began his own over the issue of refusing service to

those

> >parents who choose not to vaccinate. In AZ it is our right to

choose

> >while in some states it can be cosidered criminal not to - now

there's

> >the real crime. But in any case - I have found that a vast

majority

> >of Asian doctors take a very moderate stand. But that's just been

my

> >personal experience.

> >

> >Alice

> >mother of 2.

>

> Good for him. Would you email me privately his name - do not put

it on the

> list.

> All the vaccines laws have to do with school attendance, not being

able to

> live on the planet. And there are exemptions as you all know to

the laws

> in most states.

> But again, the vaccine laws are related to school.

>

> Yes, it should be your right to choose. Interesting idea about

asian doctors.

> Sheri

>

> >>

>

> --------------------------------------------------------

> Sheri Nakken, R.N., MA, Hahnemannian Homeopath

> Vaccination Information & Choice Network, Nevada City CA & Wales UK

> $$ Donations to help in the work - accepted by Paypal account

> earthmysteriestours@... voicemail US 530-740-0561

> (go to http://www.paypal.com) or by mail

> Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

> Vaccine Dangers On-Line course -

http://www.nccn.net/~wwithin/vaccineclass.htm

> Reality of the Diseases & Treatment -

> http://www.nccn.net/~wwithin/vaccineclass.htm

> Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

>

[Guest guest]

At 04:20 AM 5/30/2006 -0000, you wrote:

>The female Ped. from India that we took are 1st son to just one time

>had no problem with not vaxing. She asked, I said no, she wrote in

>the file and said nothing about it.

>

>Why Sheri can we not name docs on here?

>

>Dan

I try to screen for who is on this list.

But it is not good to publicly share names that don't push vax as they

could be 'gone after' by the powers that be.

Best to only share names with people you know who are not spies.

Sheri

>

>

>> >My pediatrician also " recommends " all vaccines but he also left a

>> >practice and began his own over the issue of refusing service to

>those

>> >parents who choose not to vaccinate. In AZ it is our right to

>choose

>> >while in some states it can be cosidered criminal not to - now

>there's

>> >the real crime. But in any case - I have found that a vast

>majority

>> >of Asian doctors take a very moderate stand. But that's just been

>my

>> >personal experience.

>> >

>> >Alice

>> >mother of 2.

>>

>> Good for him. Would you email me privately his name - do not put

>it on the

>> list.

>> All the vaccines laws have to do with school attendance, not being

>able to

>> live on the planet. And there are exemptions as you all know to

>the laws

>> in most states.

>> But again, the vaccine laws are related to school.

>>

>> Yes, it should be your right to choose. Interesting idea about

>asian doctors.

>> Sheri

>>

>> >>

>>

>> --------------------------------------------------------

>> Sheri Nakken, R.N., MA, Hahnemannian Homeopath

>> Vaccination Information & Choice Network, Nevada City CA & Wales UK

>> $$ Donations to help in the work - accepted by Paypal account

>> earthmysteriestours@... voicemail US 530-740-0561

>> (go to http://www.paypal.com) or by mail

>> Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

>> Vaccine Dangers On-Line course -

>http://www.nccn.net/~wwithin/vaccineclass.htm

>> Reality of the Diseases & Treatment -

>> http://www.nccn.net/~wwithin/vaccineclass.htm

>> Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

>

> Had read a reference to EFT online and was wondering what it could

> do for someone suffering form the symptoms of premenopause and the

> anxiety that came with it. Any info would help, as I know there is

> an EFT Practitioner in my area.

>

Hi M,

Welcome to the board )

To answer your question, three words: Quite a Lot. O.K., to get just a

wee bit more detailed, there a a lot of examples of EFT being used

with success on pre/peri menopausal women. My wife is starting to go

through this 'joyous' occasion herself and we've used EFT for her hot

flashes with good success. I suspect that if men had to go through

this, we'd most probably jump out in front of a speeding locomotive )

What I'd suggest is to head on over to Craig's website and

download his free starter package and give EFT a try for yourself.

Here's the link:

http://www.emofree.com/downloadeftmanual.asp

I think that you'll be surprised with just how much you can accomplish

on your own with this simple technique. You may find that, after

working with it for a time, you don't need a practioner after all.

Now, I not trying to discourage the use of a practitioner, just trying

to save you some time and expense initially. If you feel more

comfortable using one, then by all means make an appointment to see

him or her.

-Jef

P.S. I just Googled on the keywords " menopause " and " EFT " and got

37,300 hits. So the information is out there )

[Guest guest]

Lilli, is there a way you can contact another GI doctor? OR call and see if they can fit you in sooner. See if they have a cancellation or tell them you are having real trouble and need some help fast. Could you even have you GP set you up with a barium swallow or something? Where are you from? Maybe we can find another GI that can get you in sooner too. Have you been told you have Achalasia?

I hope you can get some help soon. If you cannot get some help soon you could be getting dehydrated or malnourished and that is not good.

Please let us know what you find out.

in SuffolkVisit www.achalasia.us

In a message dated 6/6/2006 4:08:17 PM GMT Standard Time, beadqueenlilli@... writes:

Hi! I am new to this group. I feel as if I have reached maximum frustration level with the doctors. If I am given one more script for Nexium, I may cry. The nurse practitioner at my doc's office gave me a prescription for nitroglycerin. This seems to make me throw up(actual vomiting as opposed to the stuck food coming back up) and she gave me Xanax, which doesn't help my throat in any appreciable manner. I was hoping to get pregnant this summer, but have not been able to eat more than once every three days since late April. The GI doc can't see me until July. Has anyone else had any other helpful treatments?? Please help! I am open to all suggestions! Homeopathic rememdies, acupuncture, reflexology-anything!! Thanks! Lilli

[Guest guest]

You can go see other doctors. They work for you are do not belong to them. I would look into going to the Cleveland Clinic since you are in Ohio. You could even call there to see if they could get you in. I am sure others will pipe in and suggest the same thing. You need to get yourself looked at properly and that way you can get the help you need.

in SuffolkVisit www.achalasia.us

In a message dated 6/6/2006 6:05:03 PM GMT Standard Time, beadqueenlilli@... writes:

Thank you for the welcome everyone!It is a relief to have found a place where I can talk to people who know what this is like! I have called the GI doc twice and have gotten no response-an answering machine. I have seen this doc twice before and both times he did a scope and gave me a script for Nexium. My GP says that I can't really see another GI doc since I have a history with this one. Which frankly, sounds a little fishy to me. I have not been diagnosed with achalasia, but I feel as if I am reading my own posts when I have skipped around and read what others are saying. I have been reading everything I can find on the internet for two days and I see myself in everything I read about achalasia.Someone asked me to tell a little bit about myself-so here goes! I am 32, I have a two and a half yr. old son. My husband and I have been married nearly 10years! I live in southeastern Ohio (relatively close to Wheeling, WV). I work in the area high schools doing drug/alcohol prevention and mental health work with the students! I love my job. I also make jewelry in my spare time.I have been having trouble with swallowing for the last 4 years, but it has gotten progressively worse and now I am just really tired and have no energy or stamina-not a fun thing with a two year old dynamo to chase!! :)Will keep you posted! I am off to call my GP and GI doc again!Lilli >> > Lilli, is there a way you can contact another GI doctor? OR call and see if > they can fit you in sooner. See if they have a cancellation or tell them > you are having real trouble and need some help fast. Could you even have you > GP set you up with a barium swallow or something? Where are you from? Maybe > we can find another GI that can get you in sooner too. Have you been told > you have Achalasia? > > I hope you can get some help soon. If you cannot get some help soon you > could be getting dehydrated or malnourished and that is not good. > > > Please let us know what you find out.> > > > in Suffolk> Visit _www.achalasia.us_ (http://www.achalasia.us/) > > > > > > In a message dated 6/6/2006 4:08:17 PM GMT Standard Time, > beadqueenlilli@... writes:> > > > > Hi! I am new to this group. I feel as if I have reached maximum > frustration level with the doctors. If I am given one more script for > Nexium, I may cry. The nurse practitioner at my doc's office gave me > a prescription for nitroglycerin. This seems to make me throw up> (actual vomiting as opposed to the stuck food coming back up) and she > gave me Xanax, which doesn't help my throat in any appreciable manner. > I was hoping to get pregnant this summer, but have not been able to > eat more than once every three days since late April. The GI doc can't > see me until July. Has anyone else had any other helpful treatments?? > Please help! I am open to all suggestions! Homeopathic rememdies, > acupuncture, reflexology-acupunctuacupuncture, r> > > > > > > > (http://www.achalasia.us/)>

[Guest guest]

Lilli, I agree with and you are so close to Cleveland

too. Many people in this group have driven long distances to

go there. If it is an insurance thing, they will know how to

work around that too.

Go girl and good luck.

Maggie

Alabama

[Guest guest]

Hi Lilli,

Welcome to the group and thank you for telling us more about yourself. I certainly hope you don't have achalasia (unless what you do have is worse than achalasia).

Contrary to old values (which still have "value"), doctors today are like "products." If you are not happy with one, you get yourself another one. What can possibly be more important than your own health? (Yes, I know. The health of your 2 1/2 year old son). If you were taking him to a pediatrician, and that doctor was not responsive to your needs when your son was sick, what would you do?

I think you know, and the same applies to yourself. Achalasia is a deceptively complex disease. Unless you have the best GI doctor (for achalasia) in your area, or within 100 miles you could be doing yourself a disservice.

I agree with everything that my good friend said a few minutes ago in response to your question, and as he said about other voices piping in, I thought I would share my feelings about this.

Good luck and please stay in touch with us. We are your support group!

In a message dated 6/6/2006 1:05:03 P.M. Eastern Daylight Time, beadqueenlilli@... writes:

Thank you for the welcome everyone!It is a relief to have found a place where I can talk to people who know what this is like! I have called the GI doc twice and have gotten no response-an answering machine. I have seen this doc twice before and both times he did a scope and gave me a script for Nexium. My GP says that I can't really see another GI doc since I have a history with this one. Which frankly, sounds a little fishy to me. I have not been diagnosed with achalasia, but I feel as if I am reading my own posts when I have skipped around and read what others are saying. I have been reading everything I can find on the internet for two days and I see myself in everything I read about achalasia.Someone asked me to tell a little bit about myself-so here goes! I am 32, I have a two and a half yr. old son. My husband and I have been married nearly 10years! I live in southeastern Ohio (relatively close to Wheeling, WV). I work in the area high schools doing drug/alcohol prevention and mental health work with the students! I love my job. I also make jewelry in my spare time.I have been having trouble with swallowing for the last 4 years, but it has gotten progressively worse and now I am just really tired and have no energy or stamina-not a fun thing with a two year old dynamo to chase!! :)Will keep you posted! I am off to call my GP and GI doc again!Lilli >> > Lilli, is there a way you can contact another GI doctor? OR call and see if > they can fit you in sooner. See if they have a cancellation or tell them > you are having real trouble and need some help fast. Could you even have you > GP set you up with a barium swallow or something? Where are you from? Maybe > we can find another GI that can get you in sooner too. Have you been told > you have Achalasia? > > I hope you can get some help soon. If you cannot get some help soon you > could be getting dehydrated or malnourished and that is not good. > > > Please let us know what you find out.> > > > in Suffolk> Visit _www.achalasia.us_ (http://www.achalasia.us/) > > > > > > In a message dated 6/6/2006 4:08:17 PM GMT Standard Time, > beadqueenlilli@... writes:> > > > > Hi! I am new to this group. I feel as if I have reached maximum > frustration level with the doctors. If I am given one more script for > Nexium, I may cry. The nurse practitioner at my doc's office gave me > a prescription for nitroglycerin. This seems to make me throw up> (actual vomiting as opposed to the stuck food coming back up) and she > gave me Xanax, which doesn't help my throat in any appreciable manner. > I was hoping to get pregnant this summer, but have not been able to > eat more than once every three days since late April. The GI doc can't > see me until July. Has anyone else had any other helpful treatments?? > Please help! I am open to all suggestions! Homeopathic rememdies, > acupuncture, reflexology-acupunctuacupuncture, r> >

[Guest guest]

Lilli,

Welcome to our community! I'm sorry about your condition, having

problems with eating is so frustrating. Like said, try to

see if you can find someone else to help you. You need a

diagnosis. Also, be VERY careful with nitro because it will drop

your bloodpressure causing nasuea/vomiting/headache. So take your

bloodpressure before and after nitro. Please tell us more about

yourself.

All the best

in Michigan

>

> Hi! I am new to this group. I feel as if I have reached maximum

> frustration level with the doctors. If I am given one more script

for

> Nexium, I may cry. The nurse practitioner at my doc's office gave

me

> a prescription for nitroglycerin. This seems to make me throw up

> (actual vomiting as opposed to the stuck food coming back up) and

she

> gave me Xanax, which doesn't help my throat in any appreciable

manner.

> I was hoping to get pregnant this summer, but have not been able

to

> eat more than once every three days since late April. The GI doc

can't

> see me until July. Has anyone else had any other helpful

treatments??

> Please help! I am open to all suggestions! Homeopathic rememdies,

> acupuncture, reflexology-anything!! Thanks! Lilli

>

[Guest guest]

Dear Lilli,

Scream, cry, whimper, yell, scratch and claw until you get an appointment sooner. Call every day to see if there is a cancellation. The noisy ones gets the service. Of course there are openings.

Suggestions to ask for at your first visit. Anti depressants seem to help many of us and some of us feel it helps with the spasms even if you aren't feeling depressed, however many of us suffer from some issues with depression. You might also consider taking Motrin or some other pain meds often if spasms are a constant for you.

If you have classic, primary achalasia and no treatment the Nexium etc. probably won't do anything.

Some of us have some relief from drinking fizzy drinks, even though it may hurt slighlty it pushes the food down. As Ann mentioned, the fizzy stuff probably isn't good right after surgery, but otherwise it helps many of us. I saw it work on a barium x-ray, otherwise I wouldn't have believed it because it isn't a comfortable drink.

Keep copies of all your tests, keep a book. Read all you can on this website, it has summaries of all medical articles. Educate yourself.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

Most of all insist on absolutely the best doctors, that is the key to long term success.

Good luck...

Sandy in So Cal.... School gets out next week, worry worry.

>> Hi! I am new to this group. I feel as if I have reached maximum > frustration level with the doctors. If I am given one more script for > Nexium, I may cry. The nurse practitioner at my doc's office gave me > a prescription for nitroglycerin. This seems to make me throw up> (actual vomiting as opposed to the stuck food coming back up) and she > gave me Xanax, which doesn't help my throat in any appreciable manner. > I was hoping to get pregnant this summer, but have not been able to > eat more than once every three days since late April. The GI doc can't > see me until July. Has anyone else had any other helpful treatments?? > Please help! I am open to all suggestions! Homeopathic rememdies, > acupuncture, reflexology-anything!! Thanks! Lilli >

[Guest guest]

Thank you for the welcome everyone!It is a relief to have found a

place where I can talk to people who know what this is like!

I have called the GI doc twice and have gotten no response-an

answering machine. I have seen this doc twice before and both times

he did a scope and gave me a script for Nexium. My GP says that I

can't really see another GI doc since I have a history with this

one. Which frankly, sounds a little fishy to me. I have not been

diagnosed with achalasia, but I feel as if I am reading my own posts

when I have skipped around and read what others are saying. I have

been reading everything I can find on the internet for two days and

I see myself in everything I read about achalasia.

Someone asked me to tell a little bit about myself-so here goes! I

am 32, I have a two and a half yr. old son. My husband and I have

been married nearly 10years! I live in southeastern Ohio (relatively

close to Wheeling, WV). I work in the area high schools doing

drug/alcohol prevention and mental health work with the students! I

love my job. I also make jewelry in my spare time.

I have been having trouble with swallowing for the last 4 years, but

it has gotten progressively worse and now I am just really tired and

have no energy or stamina-not a fun thing with a two year old dynamo

to chase!!

Will keep you posted! I am off to call my GP and GI doc again!

Lilli

>

>

> Lilli, is there a way you can contact another GI doctor? OR call

and see if

> they can fit you in sooner. See if they have a cancellation or

tell them

> you are having real trouble and need some help fast. Could you

even have you

> GP set you up with a barium swallow or something? Where are you

from? Maybe

> we can find another GI that can get you in sooner too. Have you

been told

> you have Achalasia?

>

> I hope you can get some help soon. If you cannot get some help

soon you

> could be getting dehydrated or malnourished and that is not good.

>

>

> Please let us know what you find out.

>

>

>

> in Suffolk

> Visit _www.achalasia.us_ (http://www.achalasia.us/)

>

>

>

>

>

> In a message dated 6/6/2006 4:08:17 PM GMT Standard Time,

> beadqueenlilli@... writes:

>

>

>

>

> Hi! I am new to this group. I feel as if I have reached maximum

> frustration level with the doctors. If I am given one more script

for

> Nexium, I may cry. The nurse practitioner at my doc's office gave

me

> a prescription for nitroglycerin. This seems to make me throw up

> (actual vomiting as opposed to the stuck food coming back up) and

she

> gave me Xanax, which doesn't help my throat in any appreciable

manner.

> I was hoping to get pregnant this summer, but have not been able

to

> eat more than once every three days since late April. The GI doc

can't

> see me until July. Has anyone else had any other helpful

treatments??

> Please help! I am open to all suggestions! Homeopathic rememdies,

> acupuncture, reflexology-acupunctuacupuncture, r

>

>

>

>

>

>

>

> (http://www.achalasia.us/)

>

[Guest guest]

Lilli,

Welcome to the group! I can echo the opinion of many others in

the group in recommending the Cleveland Clinic. I think the main

thing for you to do at this point is to get a good diagnosis. I'm

part of the group because my husband has Diffuse Esophageal Spasm

(also an esophagus motility problem). What tests have they done for

you? The ones that help the most with diagnosis are manometry, barium

swallow, and sometimes 24 ph probe. My husband had these tests done

at a nearby hospital, but the results were inconclusive. When he had

them repeated at U of M, they showed some sort of motility problem and

ruled out acid reflux. Then, when they did them again at Cleveland

Clinic, they were able to confirm the diagnosis. Since achalasia and

motility disorders are rare, sometimes it's best to just skip the

middle-man and have the tests done by the skilled doctors and staff at

a place like Cleveland Clinic. I think the skill of the people

performing the tests makes a difference, also.

I wish you lots of luck! You need to take care of yourself so

that you can take care of others (keeping up with your son and doing

your valuable work at the schools)! By the way, I'm also into

beading. You need energy to do the things you like, including

beading, too )! Please keep us posted. You will gets lots of

support and information from this group!

in Michigan

> >

> >

> > Lilli, is there a way you can contact another GI doctor? OR call

> and see if

> > they can fit you in sooner. See if they have a cancellation or

> tell them

> > you are having real trouble and need some help fast. Could you

> even have you

> > GP set you up with a barium swallow or something? Where are you

> from? Maybe

> > we can find another GI that can get you in sooner too. Have you

> been told

> > you have Achalasia?

> >

> > I hope you can get some help soon. If you cannot get some help

> soon you

> > could be getting dehydrated or malnourished and that is not good.

> >

> >

> > Please let us know what you find out.

> >

> >

> >

> > in Suffolk

> > Visit _www.achalasia.us_ (http://www.achalasia.us/)

> >

> >

> >

> >

> >

> > In a message dated 6/6/2006 4:08:17 PM GMT Standard Time,

> > beadqueenlilli@ writes:

> >

> >

> >

> >

> > Hi! I am new to this group. I feel as if I have reached maximum

> > frustration level with the doctors. If I am given one more script

> for

> > Nexium, I may cry. The nurse practitioner at my doc's office gave

> me

> > a prescription for nitroglycerin. This seems to make me throw up

> > (actual vomiting as opposed to the stuck food coming back up) and

> she

> > gave me Xanax, which doesn't help my throat in any appreciable

> manner.

> > I was hoping to get pregnant this summer, but have not been able

> to

> > eat more than once every three days since late April. The GI doc

> can't

> > see me until July. Has anyone else had any other helpful

> treatments??

> > Please help! I am open to all suggestions! Homeopathic rememdies,

> > acupuncture, reflexology-acupunctuacupuncture, r

> >

> >

> >

> >

> >

> >

> >

> > (http://www.achalasia.us/)

> >

>

[Guest guest]

Hello Lilli and welcome to a Group of people who will help you all they can.

First of all it seems to me it would be wise to delay starting a baby until you have this sorted out. It is a lot to cope with all at once and you need to be well nourished to have a healthy pregnancy. July is just a month away and the time will pass, although it does not feel like it now. What you need is some help to get you through the next few weeks. Can you get fluids down successfully? If so, you can be ok for a great length of time on fortified liquids. Try very hard to teach yourself relaxation, because we all to the last man on this Board believe that stress exacerbates the symptoms.

Could you tell us if you are losing a lot of weight and some details about what you can get down. Sometimes achalasians (if that is what it is) can eat the same foods in a different form, for instance made into soups or mashed up.

Love from Ann in England xx>> Hi! I am new to this group. I feel as if I have reached maximum > frustration level with the doctors. If I am given one more script for > Nexium, I may cry. The nurse practitioner at my doc's office gave me > a prescription for nitroglycerin. This seems to make me throw up> (actual vomiting as opposed to the stuck food coming back up) and she > gave me Xanax, which doesn't help my throat in any appreciable manner. > I was hoping to get pregnant this summer, but have not been able to > eat more than once every three days since late April. The GI doc can't > see me until July. Has anyone else had any other helpful treatments?? > Please help! I am open to all suggestions! Homeopathic rememdies, > acupuncture, reflexology-anything!! Thanks! Lilli >