Advice needed

March 20, 2002

In a message dated 3/20/02 6:47:57 AM Central Standard Time,

gboughton@... writes:

> <<The more you can say " what's best for Zeb " and focus them back to him

> and>>

> I saw this and I was told by my attorneys to use the word appropriate. The

> schools don't care about what is best...but the law says they should do

> what

> is appropriate. I know it is semantics but I just thought I'd throw this

> in.

> Gail

>

Good point Gail. This is a huge point with our district. They use it (word -

best) against parents if they end up in due process.

Karyn

March 20, 2002

In a message dated 3/20/02 8:13:35 AM Central Standard Time,

joan@... writes:

> Petechae (I think)

> not sure about the first two 'e's

>

I can never spell it either. That is why I left it out of my post. LOL

Karyn

March 20, 2002

<< I really didn't exactly know what had happened that day and if they held

him too tightly etc. I stayed with him at school for the rest of the day and

did show the teacher his face. The both of us had no idea what it was and

she

never offered anything.>>

This really hits a raw nerve with me! Last year Ted was being held and I

objected LOUDLY! I even had to get an attorney and I pulled him out of

school and filed for homeschooling. One afternoon he came home with all the

same red spots you talk about. I took pictures and took him to the urgent

care and then to his own dr. the next day. (I do day care and could not go

out until the evening) The spots are called (forgive me if I mess up the

spelling) pecachue...which I did!

It was from the hold and him struggling I was told. Running out of time to

get Ted ready for school but I get so angry when I read about people doing

this to our kids!

Gail, mom to Ted (10) who had been sick since the 9th of March and went to

school yesterday (after Drs. approval) and was sent home! He is going to go

today.

March 20, 2002

<<The more you can say " what's best for Zeb " and focus them back to him

and>>

I saw this and I was told by my attorneys to use the word appropriate. The

schools don't care about what is best...but the law says they should do what

is appropriate. I know it is semantics but I just thought I'd throw this

in.

Gail

March 20, 2002

At 11:33 PM 3/19/2002 EST, you wrote:

>In a message dated 3/19/2002 11:06:46 PM Eastern Standard Time,

>KVanRyzin@... writes:

>

>> Do you need the political mileage that an apology would get? If so then do

>> it. If not then forget it and move on to requesting what you need.

>>

>

>Hi Karyn,

>Thanks for the input. I'm not looking for the milage at this point just

>what's best.

One subtle way to use an " apology " is to explain *why* you left. I'm sorry

so many were upset that I left. While I didn't mean to offend you, it is

very difficult for me to work through difficult meetings. One issue must

fully be resolved with Zeb at the center before I can move on to another

(placement). I hope we can all work for Zeb's best interests.

Not really an apology, but lets them know their behavior is just as

culpabale for the negotiations ending as yours. I think that is a *very*

important thing to get on the table.

j

March 20, 2002

The school staff

used inappropriate restraints causing the dots.My worse fear is going to

school and finding him dead. They are also not following the behavioral plan

and punishing him twice for the same infraction. I

---------------

Have you looked this group in the eye and said this? This is a very

powerful, reasonable statement coming from a parent whose child is being

inappropriately restrained. Force them to see what they've done in a way

that is so " removed " from emotion that they cannot argue.

Did you take pictures?

j

March 20, 2002

In a message dated 3/20/02 9:53:50 AM Eastern Standard Time,

charlyne1121@... writes:

> . I

> would sent him someplace else but I don't have any options.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

What a bummer Charlyne!!! Keep us updated on Zeb, and the investigation as

well. In the meantime, {{{{{{{{{{{{{hugs}}}}}}}}}}} I know this has to be

comsuming you completely!!! Hang in there.

Donna

March 20, 2002

" )

Petechae (I think)

not sure about the first two 'e's

March 20, 2002

In a message dated 3/20/2002 2:12:41 PM Eastern Standard Time,

duffey48@... writes:

> What a bummer Charlyne!!! Keep us updated on Zeb, and the investigation

> as

> well. In the meantime, {{{{{{{{{{{{{hugs}}}}}}}}}}} I know this has to

> be

> comsuming you completely!!! Hang in there.

Hi Donna,

Thanks for the kind words. I went to school today to bring Zeb a happy meal.

He has been the perfect kid since, go figure. He asked last night and I just

couldn't refuse. I hated walking into school but just grew 10' and did it. I

don't think they had been contacted yet. They were all too pleasant. I will

let you know. I was told that they would interview me as well.

Charlyne

Mom to Zeb 9 DS/OCD ?

March 20, 2002

In a message dated 3/19/02 8:15:39 PM US Eastern Standard Time,

charlyne1121@... writes:

<< he pschologists recommended that I apologize in a letter for leaving

the meeting that day and call for a PPT meeting asking for an independant

educational consultant. I have been asking for the past 3 yrs but now I will

head for due process. I have a friend also with a child with special needs

and she feels that I need not apologize for anything and the school may use

that against me. What's your input? I walked out of the meeting because the

topic had turned to a placement issue rather than finding an appropriate

behavioral plan. >>

Charlyne, I certainly wouldn't apologize. You were right. The purpose of

your meeting was to discuss the PBS plan not change of placement.

Lauri

March 20, 2002

In a message dated 3/20/2002 5:26:42 PM Eastern Standard Time,

joan@... writes:

> But when we're talking about behavior mgt or safety (which currently is a

> biggie here) they should use " best practices. " They want all teachers to

> use " best practices " in the classrooms everywhere else.......... Less than

> best puts everyone at risk for injury.

Hi Joan,

That is a good point. I 've got the terminology down well but that is

something I must remember for future use.

Charlyne

Mom to Zeb 9 DS/OCD ?

March 20, 2002

At 11:40 AM 3/20/2002 EST, you wrote:

>Good point Gail. This is a huge point with our district. They use it (word -

>best) against parents if they end up in due process.

To be honest, in terms of behavior mgt and safety, I dont' care what they

say, i want *best practices*. I don't want Old, but formerly acceptable

practicies.

Usually what *I* do to avoid word games is I use the word " right. " And I

always say that we have to find a solution that is right for Andy and right

for the district. That is, when talking about educatinal methods.

But when we're talking about behavior mgt or safety (which currently is a

biggie here) they should use " best practices. " They want all teachers to

use " best practices " in the classrooms everywhere else.......... Less than

best puts everyone at risk for injury.

j

March 20, 2002

In a message dated 3/20/2002 7:16:20 PM Eastern Standard Time,

timothytlstein@... writes:

> I certainly wouldn't apologize. You were right. The purpose of

> your meeting was to discuss the PBS plan not change of placement.

Hi Lauri,

Yeh, that's how I felt but was thinking my pride was in the way.

Charlyne

Mom to Zeb 9 DS/OCD ?

March 20, 2002

In a message dated 3/20/2002 7:16:20 PM Eastern Standard Time,

timothytlstein@... writes:

> I certainly wouldn't apologize. You were right. The purpose of

> your meeting was to discuss the PBS plan not change of placement.

Hi Lauri,

Yeh, that's how I felt but was thinking my pride was in the way.

Charlyne

Mom to Zeb 9 DS/OCD ?

March 21, 2002

In a message dated 3/21/2002 1:56:50 PM Eastern Standard Time,

Strider3@... writes:

> I can give you some stuf about abuse, or behavioral

> plan that's in my book if you need it, or just give

> you the book title.

Hi ,

How sweet of you to offer. I think we have all the info but just need to get

the school to follow it.

Charlyne

Mom to Zeb 9 DS/OCD ?

March 21, 2002

I hope they can fingure out ,and treat to Zeb's

behavior, etc. soon. Hope that he'll be able to

learn, etc. quickly so he can learn quick and just be

his normal self.

--- charlyne1121@... wrote:

> In a message dated 3/20/2002 7:44:48 AM Eastern

> Standard Time,

> gboughton@... writes:

>

> > Gail, mom to Ted (10) who had been sick since the

> 9th of March and went to

> > school yesterday (after Drs. approval) and was

> sent home! He is going to go

> > today.

>

> Hi Gail,

> Thanks for letting me know about Ted. It is exactly

> what Zeb had. Zeb was

> sent home once a few years ago and the school cannot

> refuse him with a drs

> note. The office of protection and advocacy has to

> investigate within 24 hrs.

> will keep everyone posted.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

> [Non-text portions of this message have been

> removed]

>

March 21, 2002

I can give you some stuf about abuse, or behavioral

plan that's in my book if you need it, or just give

you the book title.

--- Joan Guthrie Medlen <joan@...>

wrote:

> The school staff

> used inappropriate restraints causing the dots.My

> worse fear is going to

> school and finding him dead. They are also not

> following the behavioral plan

> and punishing him twice for the same infraction. I

> ---------------

>

> Have you looked this group in the eye and said this?

> This is a very

> powerful, reasonable statement coming from a parent

> whose child is being

> inappropriately restrained. Force them to see what

> they've done in a way

> that is so " removed " from emotion that they cannot

> argue.

>

> Did you take pictures?

>

> j

>

March 21, 2002

Thanks a

Charlyne

March 21, 2002

Chrlene, you sitck to your guns, i wouldnt write an

apologyletter either, i agree it may come backand bite

you in the butt later on. prayers for some good

outcomes soon. shawna.

=====

shawna

__________________________________________________

March 22, 2002

Your welcome. Anytime.

--- charlyne1121@... wrote:

> In a message dated 3/21/2002 1:56:50 PM Eastern

> Standard Time,

> Strider3@... writes:

>

> > I can give you some stuf about abuse, or

> behavioral

> > plan that's in my book if you need it, or just

> give

> > you the book title.

>

> Hi ,

> How sweet of you to offer. I think we have all the

> info but just need to get

> the school to follow it.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

> [Non-text portions of this message have been

> removed]

>

April 16, 2002

Hi Andy,

Craig has some excellent advice on advertising in his 'Building Your

Practice' notes at www.emofree.com

Onwards & Upwards!

*********************************************

O'Connor MRIAI

MIAAMT: Master Practitioner & Trainer

sfort House, Clonmellon,

Navan, Co. Meath, Ireland

tel: (046) 33128 fax: (01) 453 0280

m: (087) 8149663 e: oconnor@...

*********************************************

________________________________________________________________________

:

: Message: 2

: Date: Mon, 15 Apr 2002 23:12:33 +0100

: From: " " <ajohnsonbsch@...>

: Subject: advice needed

:

: Hi All,

:

: I would like to ask the group for advice on newspaper ads.

:

April 23, 2003

Peggy

I don't believe that anyone on here is going to be willing to

give you medical advice with your husbands life at stake. However,

you can educate yourself and make an educated decision on your own. I

think Ralph Moss is a good source and you can call him directly and

discuss your husbands problem with him. It would be worth whatever he

might charge and it could be the difference between life and death.

There is a gross misconception amongst physicians and

pharmacists regarding vitamins , minerals and antioxidents. First of

all, todays pharmacists contrary to what you may have been told

receive exactly zero hours of education in nutrition. The average

physician receives approximately 12 hours during 6 years of medical

training and then only when it relates to specific diseases.

You must remember the important axiom ''that the absence of

disease does not equal health''. The USDA ''minimum daily

requirements'' of vitamins and minerals are constantly being

increased as more and more is being discovered in the connection

between disease and nutrition. Particularly with respect to

degenerative disease such as cancer and heart disease.

To most doctors the world of supplements is like vodoo, they

havn't a clue. There was a time back in the 1940's when the doctor

for whom Dana Farber Cancer institute in Boston was named discovered

a chemo drug that fooled the body's cells into thinking that the drug

(I don't recall the name) was the essential vitamin Folic Acid. To

this very day most doctors will tell patients being treated for

cancer not to take Folic Acid or not to take any B vitamins. This is

absolutely crazy because Folic Acid is an ''essential'' vitamin and

you will die if you don't take it at some point. The whole idea was

to suspend Folic Acid only while being treated with this specific

drug and then of course you had to have it. Your body stores about a

4 month supply of Folic Acid and once that is depleted you are in

serious trouble. Anyway , the point is, the doctors are like a bunch

of old cronies spouting off old wives tales because they simply don't

know the facts.

Doctors worry that the vitamins, minerals and supplements you

are taking may interfere with the action of the drugs that they are

giving you. As for the Pharmacist, what you were told is absolutely

insane. Virtually all drugs being given to cancer patients

are ''experimental'' by their very nature. If they were not, then

everyone would be cured and we know that not to be the case. I assure

you that whatever drugs they have your husband on ''are part of some

study''. There are no drugs that I know of that are part of a

standard ''cure'' for colon cancer. There are many drugs being used

to treat colon cancer and they will work to a degree up to and

including perhaps 100 percent depending on the nature of the strain

of cancer, the patients general age, health and strength of immune

system.

What you need to do is to find a support group specifically

on or some other site that relates to colon cancer and has

people who are familiar with vitamins, antioxidents and other

supplements. I don't mean to disparage your sister but by the very

nature of her occupation she is committed to and a ferverent believer

in drug based treatment, whether it works or doesn't. That is the

nature of the beast. I know a man who just recently passed away who

graduated from the Massachusettes college of Pharmacy back in 1938.

He knew every herb and herb mixture imaginable. The man's mind was as

sharp as a tack. I asked him if any of those things worked and he

told me that ''of course they did, you didn't think I studied all

that stuff for nothing do you''. So, I asked him what happened and he

matter of factly told me ''well, the drug companies took over and I

was the last graduating class to have studied herbal medicines''.

This man went on to be a pharmacist for 50 years and died at the age

of 90. He lived in both worlds and knew them both. Unfortunately

people like your sister and those being educated today know only one,

and that is truely unfortunate.

Pharmacists and physicians today are essentially taught only

drug based medicine so they are simply not the people to be asking

about vitamins, minerals and herbs other than to find out if they

know for sure and specifically if any of the drugs they are giving

you will be interfered with by any supplement you are taking. In fact

that is all they care about.

Find some support group on colon cancer and ask around and see

what others are doing before you make any snap decisions. At least

interview your doctor to find out if he actually knows anything about

vitamins and supplements. Most will B.S. their way through a

converstaion because they don't know anything and are only worried

that it may interfere with the drugs. You need more information than

that because you simply do not want your husbands name to be included

as a statistic in an experimental protocol that failed. Your concern

is not your husband's doctor's protocol, your concern is to save your

husband's life by any means possible. Some doctors are very

knowledgable and will work with you, others are just orthodox

allopathic doctors who administer the required drugs for the protocol

and accept whatever happens to their patients as all that can be done.

If you want to push the envelope you have to get involved and

learn all that your huspand's doctor knows and then learn a whole lot

more from as many sources as you can get access to.

Best of luck and God bless.

bob

> Hi,

>

> I just found this group by typing in " antioxidants & chemotherapy "

in a

> Google search and have a question I am quite sure has been discussed

> here before. I know I could search the 20,000+ posts but I

wondered if

> some consensus has been reached by this group on the question of

whether

> antioxidants cause chemotherapy to be less effective?

>

> My husband just started his second course of chemo for colon cancer

> yesterday and someone asked him what he is taking. He has been

taking

> supplements recommended by our family doctor since he was diagnosed

in

> February which include vitamins, minerals, antioxidants, flaxseed

oil

> and hyperimmune egg powder. When we mentioned the antioxidants, we

were

> told he must stop them immediately and not resume again until after

his

> final chemo treatments are over in August.

>

> We need to make a decision pretty quickly (yesterday he didn't

take the

> antioxidants, today he did....) and I hope I'm not out of line in

asking

> for your opinions on this subject. I did read the recent Moss

Report

> post on this site regarding the Vit E studies and it was

> encouraging....but I mentioned this to my sister who is a

pharmacist in

> charge of oncology drug therapy for a regional hospital and she said

> 'randomized isn't the same as double blind' and that I shouldn't

> necessarily trust some of the stuff I've been digging up on the

internet

> about the subject. She also said to be careful before disregarding

the

> " conventional wisdom " of the majority of oncologists on the subject.

>

> Thanks in advance for any light you can shed on the subject which

will

> help us make the decision.

>

> Peggy

April 23, 2003