Jo

[Guest guest]

In a message dated 2/17/2004 11:42:30 PM Central Standard Time,

moobabies@... writes:

Jo

who is thinking " it's a good thing I don't sleep much cuz I got a

ton of praying to do "

_________________________________

Think of me Jo....Today has been a hell day. The truck quit workinglast

week, and Tom and a buddy has been trying to get it started and they are

stumped as to what is up.

Today we went to pick up the friend so he could help, and my Stratus was

leaking water like a sifter and another place looked like oil. Tom's friend

() checked and said there wasn't water in the oil. so I think we're looking

at 2 eperate problems. My daughter brought my sis home yesterday and Sharon

said she hit a dip in the roads hard and fast last night....I've done told her

if she busted the oil pan or whatever from that she is going to pay to fix it.

Maybe that will teach her a lesson in being careful in my car.

So 's son had a little 94 lumina for sale for 500 dollars, and we

are going to get that for now and help get around until the car and truck are

fixed then it will be 's car. I gave him 100 dollars today and he's

getting the rest in the next few weeks. The car's not much with a dent in the

drivers side, but it runs...LOL. But we have got to have 2 cars as some

nights

Tom drives at work and the kids have to got to school and to work.

To top it off they have scheduled my Hyst for March 19th, and I have to

have 800+ dollars to pay for the deductible an the day of surgery, so now I'm

regretting that purchase of the computer. I knew if I bought it things would

start falling apart...Story of my life....LOL.

in Bama

VBG 1982 (lost from 433lbs to 270's)

VBG -RNY1996 revision(Lost from 343 to 299)

RNY-DS revision Dec 2002 -down 122 lbs (377.7 to 255.6 and still going)

Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html

Many thanks to Dr. K willing to take on a 3rd timer....LOL

[Guest guest]

Thanks Pat for the card, your such a doll, Joe is in room 307.

And thanks for the spelling correction of Anne name!!!

And dear heart I hope your feeling better real soon.

I have also been wondering....I have Melisa for HR/tt and Bonnie for

arms tomorrow...I was wondering if they cancelled someone to work

Joe in or if they are going to do all three tomorrow? Joe said

that Doctors K & Z would be doing his surgery Plus the new guy who

has been coming from UCLA....Does anyone know about this New guy?

Melisa...Bonnie...you gals still on for tomorrow????

Pat...get some rest, feel better tomorrow.

Jo

who is thinking " it's a good thing I don't sleep much cuz I got a

ton of praying to do "

[Guest guest]

I knew if I bought it things would

> start falling apart...Story of my life....LOL.

++++++++++++++++++++++++++

Geeze Mel you even ate your blackeyed peas on New Years,therefore

your not supposed to be having money problems!

I've already sent prayers your way.

Jo

I'm glad you have a computer...otherwise you'd be going through all

this without a place to come and get a ((((((((Heart Hug))))))))

[Guest guest]

> Thanks Pat for the card, your such a doll, Joe is in room 307.

>

> And thanks for the spelling correction of Anne name!!!

>

> And dear heart I hope your feeling better real soon.

>

> I have also been wondering....I have Melisa for HR/tt and Bonnie

for

> arms tomorrow...I was wondering if they cancelled someone to work

> Joe in or if they are going to do all three tomorrow? Joe said

> that Doctors K & Z would be doing his surgery Plus the new guy who

> has been coming from UCLA....Does anyone know about this New guy?

>

> Melisa...Bonnie...you gals still on for tomorrow????

>

> Pat...get some rest, feel better tomorrow.

>

> Jo

> who is thinking " it's a good thing I don't sleep much cuz I got a

> ton of praying to do "

~~~~~~~~~~~~~~

Bonnie tells me she is now on for the 24th,so she is getting her

card a little early..lol at home cause the arms are just an

overnight thing if all goes ok.

I am still have the chills at nite,but I do feel better,woke up

around 3am and you would have thought I had washed my hair it was so

wet,so maybe it is finally going away.

See you soon,Prayers for Joe today

Pat

[Guest guest]

> Thanks Pat for the card, your such a doll, Joe is in room 307.

>

> And thanks for the spelling correction of Anne name!!!

>

> And dear heart I hope your feeling better real soon.

>

> I have also been wondering....I have Melisa for HR/tt and Bonnie

for

> arms tomorrow...I was wondering if they cancelled someone to work

> Joe in or if they are going to do all three tomorrow? Joe said

> that Doctors K & Z would be doing his surgery Plus the new guy who

> has been coming from UCLA....Does anyone know about this New guy?

>

> Melisa...Bonnie...you gals still on for tomorrow????

>

> Pat...get some rest, feel better tomorrow.

>

> Jo

> who is thinking " it's a good thing I don't sleep much cuz I got a

> ton of praying to do "

~~~~~~~~~~~~~~

Bonnie tells me she is now on for the 24th,so she is getting her

card a little early..lol at home cause the arms are just an

overnight thing if all goes ok.

I am still have the chills at nite,but I do feel better,woke up

around 3am and you would have thought I had washed my hair it was so

wet,so maybe it is finally going away.

See you soon,Prayers for Joe today

Pat

[Guest guest]

> Bonnie tells me she is now on for the 24th,so she is getting her

> card a little early..

Thanks Pat, I had a feeling someone was going to get changed.

Fever, fever go away!

Jo

[Guest guest]

> Bonnie tells me she is now on for the 24th,so she is getting her

> card a little early..

Thanks Pat, I had a feeling someone was going to get changed.

Fever, fever go away!

Jo

[Guest guest]

Jo,my surgery was rescheduled for the 24th. Which was ok with me, I

know

Joe needs the time far more than I do. I wish him well.

Bonnie

- In , " moobabies2003 "

<moobabies@h...> wrote:

> Thanks Pat for the card, your such a doll, Joe is in room 307.

>

> And thanks for the spelling correction of Anne name!!!

>

> And dear heart I hope your feeling better real soon.

>

> I have also been wondering....I have Melisa for HR/tt and Bonnie

for

> arms tomorrow...I was wondering if they cancelled someone to work

> Joe in or if they are going to do all three tomorrow? Joe said

> that Doctors K & Z would be doing his surgery Plus the new guy who

> has been coming from UCLA....Does anyone know about this New guy?

>

> Melisa...Bonnie...you gals still on for tomorrow????

>

> Pat...get some rest, feel better tomorrow.

>

> Jo

> who is thinking " it's a good thing I don't sleep much cuz I got a

> ton of praying to do "

[Guest guest]

Jo,my surgery was rescheduled for the 24th. Which was ok with me, I

know

Joe needs the time far more than I do. I wish him well.

Bonnie

- In , " moobabies2003 "

<moobabies@h...> wrote:

> Thanks Pat for the card, your such a doll, Joe is in room 307.

>

> And thanks for the spelling correction of Anne name!!!

>

> And dear heart I hope your feeling better real soon.

>

> I have also been wondering....I have Melisa for HR/tt and Bonnie

for

> arms tomorrow...I was wondering if they cancelled someone to work

> Joe in or if they are going to do all three tomorrow? Joe said

> that Doctors K & Z would be doing his surgery Plus the new guy who

> has been coming from UCLA....Does anyone know about this New guy?

>

> Melisa...Bonnie...you gals still on for tomorrow????

>

> Pat...get some rest, feel better tomorrow.

>

> Jo

> who is thinking " it's a good thing I don't sleep much cuz I got a

> ton of praying to do "

[Guest guest]

> Jo,my surgery was rescheduled for the 24th. Which was ok with me, I

> know

> Joe needs the time far more than I do. I wish him well.

> Bonnie

>

Hey Bonnie

I have missed you so much! Come back and join us on our Tues! The

24th will be here before you know it. I will keep you in my prayers

and of course Joe and Joy too.

love you

Sharon in Onyx

[Guest guest]

Jo - I am also 38 and have had 4 dilations & just had a Heller Myotomy with Toupet Fundiplication 2 weeks ago. They did the dilations because they thought I had strictures. One of the dilations was with a weighted tube & that one helped the most, but I still had a lot of difficulty. The last dilation was with a balloon & lasted about 6 hours. No joke.

There is no cure-all. From what I have found, the dilations vary in effectiveness. They can be a temporary help to many. A few are helped longer-term. Botox is also temporary & can make surgery less effective (some say dilations can, too). Typically, the injections last 6-12 months. The myotomy also varies, but results are longer range. it can be repeated in many cases. I have read that it lasts an average of 10 yrs. My surgeon said if you are under 40 & not as far along in the disease, it can last decades. He also said that about 50% of myotomy patients "backslide" to some degree after 3 yrs. He said that they will not become worse than before surgery, though.

I have no regrets thus far about the myotomy. I feel semi-normal again. I just had a small lunch (my portions are reduced & I eat about 6 little meals a day) & said to my hubby, "Look, NO DRINK!" But I do usually wash with a cup of water anyway at the end. Once in awhile I have "stickage" or a spasm if I eat too much. But overall, I would put myself at 90%+ improvement. I can sleep with one pillow like a "normal person" again, too!!!!!

Here are some questions I asked my laproscopic surgeon:

How many myotomies have you done?

What is your success rate? (average is 93%)

Can I talk to someone who has had you do this procedure? (I did...and that was GREAT).

What kind of diet before and after?

How long am I going to be off work?

How many lapro myotomies have you had turn into open myotomies (when he said ONE and told me why, I was sold!).

What GI docs do you know that treat A?

Hope this helps. If you want to email me personally & we can talk on the phone, I would be glad to. I was only diagnosed in January (after being mis-diagnosed for over 3 yrs) and this is all still fresh in my mind. My personal email is cindiscandles@....

Keep reading & asking questions. Best Wishes -

Cindi Wilmot

PS - I got depressed about this to. I have to say that the surgery really alleviated that. I am accepting the disease as part of my life & trying to find the good in it....staying thin (hopefully! hahahah!), not being terminally ill, understanding others with chronic disease, learning to accept help & support from true friends. It is a growth process. Unfortunately, growth usually comes with growing pains!!!!! Hang in there!

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Ann

That is really great to hear - and Pippa has been great already!

I'd love to be one of the crowd for christmas - but what I lack in eating

ability I'll make up for in having fun!

I hope you're well and its great to hear that you don't regret the op.

Jo

>From: Ann Higgs <lilac_blossom_lady@...>

>Reply-achalasia

>achalasia

>Subject: Jo

>Date: Thu, 21 Dec 2006 17:21:50 +0000 (GMT)

>

>Dear Jo,

>

> I just want to let you know how lucky you are to have got to know Pippa.

> She and I have become firm friends over the last few months. She is

>funny and lovely and kind and very supportive. If the two of you can get

>to meet, that will be wonderful for both of you.

>

> Good Luck with making your decision. I was daft enough to wait 16 years

>before having the myotomy this last May. Last Christmas Day I had soup and

>one Yorkshire pudding for my Dinner. This year I will be one of the crowd.

> Can you imagine how that is going to feel??

>

> I sympathise with the waiting thing. I had to wait 6 months between my

>last endoscopy and the surgery.

>

> And incidentally, I haven't regretted it for a nanosecond.

>

> Love from Ann up North XXX

>

>

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[Guest guest]

Hi Jo! I apologize for taking so long to email you back. Hell hath

no fury like a freaking hurricane in the Atlantic! And you know I'm

feeling every bit of it!

Honey, I wish I had an answer for you. I wish there were some magic

words or potion so we wouldn't have to suffer like we do but I'm

afraid it's all trial and error.

I've yet to try kineret myself but I've been informed by people on

this site that it does leave it's " mark " and that it usually subsides

after a while. If it's such a problem for you call you RD and

explain it as clearly as you can.

Now, in the meantime, I used to use an Aveeno " paste " on my son when

he had chicken pox and when he gets bee or mesquito bites. Check and

make sure your doctor is OK with it first, of course, but if he/she

is then buy the powdered Aveeno and just add a little water to a

little bit of the powder and put it on the welt.

The only other thing I can suggest to you honey, is putting ice on

the welt but I'm sure if that would help at all.

One last one for you. If you live in the States have you applied for

or are you getting SSI/D? Since you're not working at the moment you

might be able to get disability and that's always a help financially.

I have a phone call to make but I'm always checking my email.

Although I've been very bad about it for the past few days and now I

have 110 emails. The point being, if you want to email with me

personally, you're more than welcome to. I'm sure there are a lot of

people on here that would say the same.

Take care and be well.

Ellen

[Guest guest]

Hi Jo - You're having your surgery (TKR) just one day before I have mine (THR)on

June 3rd. I've got you in my prayers. I too, am very happy with my choice of

a surgeon. I wish you the very best of luck from one " impatient " to another.

Hugs, Di/Upstate NY