Jo

[Guest guest]

The egroups have finally loaded the groups into the chat room!!! Do you guys

have a regular time to chat? Love Jo

[Guest guest]

In a message dated 6/15/00 12:25:23 AM Eastern Daylight Time,

aisha@... writes:

<< Life is a bitch sometimes. "

Agreed. How are you doing now? Are you less stressed? How is your hand? What

happened to it???

Gentle hugs to you Jo, go easy on yourself. You are having a rough time just

now. Be at peace within and know that we are all here for you always. >>

Aisha,

I guess I am less stressed. The migraine continues to roar.

I lost my balance and started to fall, caught the handled of a pan onthe

stove with my arm and knocked it off the stove. The burner was set on HIGH,

so the bottom of the pan, which landed inthe palm of my hand, was damn hot.

My thumb, forefinger and the palm of my hand are badly burned and blistered.

Packing them with Vitamin E and bandages, today it is much better.

Spent some time with my wonderful Joe and that is a great destressor. The

man is a wonder. Mostly because he loves me. Go figure?

My sons are doing better, things are looking up. I am just worn down.

Hugs,

Jo

[Guest guest]

In a message dated 8/6/00 2:28:50 AM Eastern Daylight Time,

country_desire@... writes:

<< It is very important for every asthmatic to take

control of their asthma. As soon as you let the

asthma take control of you, it is extremely hard to

understand and prevent. Once your sons and ex know

their asthma, they can prevent it before it happens.

well, they might not prevent it from happening, but

they can certainly prevent it from getting severe.

>>

Leigh

You are welcome for the compliments - you deserve them.

Thankfully my ex and my sons have all had great control over their asthma for

many many years. But I know that sometimes they get lax,

we all do with chronic illnesses, especially when we are doing well for long

periods of time. That is when it sneaks up and grabs you in the butt.

But I also think your post is important for PARENTS of children with asthma -

because as parents we must take the responsibility for the monitoring until

our kids are able to do it on their own.

I know that is what helped my sons. Having lived with my ex and his asthma,

I was able to gain some control over it for the boys when they were small.

Thanks again for the post and I hope that parents of asthmatics take your

information to heart.

Hugs

Jo

[Guest guest]

Definately a Golden lab or retrever is the way to go for a dog thats going

to be around kids. And yep i think having a dog makes alot of people feel

safer.

Hang in there,

Melinda

Jo

Jo,

This is not the first time I've been stalked.

has been talking to police and lawyers. The police

are still saying that I do not have enough evidence on

him to get a restraining order. is working on

it.

has made sure I have two cel. phones in my car

with a recorder. All the phones in the house have a

recorder now too. I have been bugging about

getting a few dogs. I grew up with dogs and I want my

kids too. He always told me that he is not

comfortable having big dogs with three little ones.

But now, he is going to take me out tonight to look

for some dogs. I'm thinking about getting two black

labs or maybe one golden. Labs are very very good

with children and are very protective too.

Since I have been in this situation and once in it

again, I fully understand how you feel about it. I

thank you very much for still writing me, advising me,

and wishing me well when this is a topic that is

difficult for you. Thank you!

love,

leigh

__________________________________________________

[Guest guest]

Jo,

You need a complete echocardiogram including stress treadmill test. MVP is

most often caused by neuroendocrine disorders of which CFS is one. Echo

will tell you if there are any vegetations on your mitral valve leaflets

(unlikely). If so, your cause is viral or bacterial infection. If leaflets

just show uniform thickening then the cause is most likely neuroendocrine or

possibly due to a connective tissue disease. I would avise you to buy

Sharon 's book _Mitral Valve Prolapse_. Another way to reduce

symptoms is to keep head of the bed raised 3-4 inches. For some reason this

lessens my symptoms. Steve B.

Re: more heart stuff/Co Q 10

> Again, my thanks for all of your comments. You are really helping me

> understand what is going on so that I can deal with it! You are all

> great!More " stuff " from me below...

>

>

> > If you have heart damage, the side of your heart that has the

> damage will be

> > compressed when you lay on that side. People with Mitral Valve

> Prolapse,

> > which is on the left side of the heart, experience more symptoms

> when they

> > lie on their left side. Does it happen when you lay a certain way

> at night?

>

> ***Yes! I can not be on my left side, it is very bad then, I can

> never sleepon this side. On my back, less bad but many nights I have

> problems on my back and must turn to right side. On right side is

> best, but it seems that even the " angle " I am at makes a difference.

> What is the dx test for MVP?

>

> > Mitral Valve Prolapse is not the only kind of heart damage that

> >could cause this.

>

> ***I have wondered whether it might be both structural and neural (if

> one can make that distinction). Sometimes I have even felt

> a " gurgling or gushing " as though an impeded flow has been released.

> As for neural, there is the viral and microorganism concerns, as well

> as the fact that I have been in buildings overtreated with

> organophosphate pesticides. Exposure to this stuff will cause cardio

> symptoms now, as will having stood or " done " too much that day.

> I also seem to have jawbone infection which goes into tmj on that

> side, lymph glands, finger joints (wasn't going to mention that lest

> you all wonder re all these things going on, but there it is! I guess

> I will go into that infection and Hg situation in a separate post to

> .) The heart stuff predates the jawbone infection, but an

> already damaged heart I read here is prone to further injury.

>

> > Another thought I had was that if it is just happening at night,

> >it may be related to adrenal function.

> ***That could be as well. I have not had the cortico-adrenal saliva

> test recently, but in past my circadian rhythm was way off - night is

> day, hormonally . Was near adrenal exhaustion on levels, needless to

> say thyroid not especially lively either, so like lots of us

> I'm " off " endocrinologically.

>

> > Do you take a magnesium supplement?

> ***I am fumbling wih this...I am taking Neurontin (idea to address

> any focal brain injury, and for pain) and have read that Mg is

> contraindicated ...not for harmful interaction, but reason something

> like occupying same receptor site, but have not re-found that

> explanation. Before Neurontin, I had some IVs w Mg in them (also vit

> C, B complex, Ca) and the Mg was wonderful, felt it in muscles, body

> strength, heart, sleep. Have had same IVs minus Mg since Neurontin,

> and can feel its lack. I have tried oral Mg in between Neurontin

> doses, concern re blocking one or other. Last night I took 1600mg of

> chelated Mg and it seemed to help. I read here I should take a Ca/Mg

> though, will look into that and welcome suggestions.

>

> ***Thank you all for your help and posts, and for wading through mine!

>

> Cheers,

> Jo

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

I am stressed out to the max. There is way to much happening in my life rite now. I wish it was June, the weather is so nice and warm at that time of year. The flowers will be in full bloom.

yah, i've got some... but not enough it was all worth it though!

how are you today michelle4?

Lots of love,

Jo

[Guest guest]

Jo,

I just tried to get into the chat room, however it won't let me. Do you use ?

4

[Guest guest]

yah, i've got some... but not enough it was all worth it though!

how are you today michelle4?

Lots of love,

Jo

> Jo,

>

> Just curious if you have gotten any rest today?

> *hugs*

> 4

[Guest guest]

ohh, I'm sorry to hear you are so stressed... I wish you had had a

day like me Is there anything I can do for you... probably not,

but oh well. I'm in the chatroom btw, if you wanna chat for a few

minutes... everybody else is welcome as well!

I can tell you that some of the flowers are already in bloom here, I

love it!

Many hugs,

Jo

> I am stressed out to the max. There is way to much happening in my

life rite

> now. I wish it was June, the weather is so nice and warm at that

time of

> year. The flowers will be in full bloom.

>

[Guest guest]

Nope, all I use is IRC... try paranoia.dal.net or ced.dal.net

I can't use anything else because I'm behind a very annoying firewall

*beats the firewall up*

Love,

Jo

[Guest guest]

> Thanks for that info on the pills. I haven't been able to find

a " regime " that doesn't have me constantly sticking something in my

mouth. (ie calcium

> 3x a day)

==============================

Melisa...you are not going to find a regime that does not include

taking something 3 times a day....the simple fact that we have to

break up taking our calcium makes it a fact of our lives.

With the Vita-4-life I take the max. dosage for distal bypass...so

that means I take 12 capsules a day....It would be best if I took

them in 4 divided doses of 3 capsules...but that is toooooo many

times to remember a day....so I take 4 capsules 3times a day....what

makes it easier for me is I don't have to remember WHEN and WHAT I

took...I just have to have my little dish empty of those capsules

before I go to bed.

Jo

Thanks for the prayers

[Guest guest]

> I still dont feel pretty but I am working on accepting myself

everyday.

> Kristy

> P.S Tell Joe I may be skinner, but I'm still a smart ass!!!!

well Kristy,

We wouldnt have you any other way....lol

But you really need to keep working on the feeling pretty part,

because you are not only pretty, but as I emailed you privately, You

are drop dead gorgeous! Seriously. I want you to be very picky if

you choose one of those blind as a bat Aussie guys, cause you only

deserve the best. (Read AJ's book again, it might help. give you

some chuckles anyways.)

Sharon in Onyx

[Guest guest]

In a message dated 6/5/2003 10:20:19 PM Pacific Daylight Time,

s4052475@... writes:

> I still dont feel pretty

That's because you aren't " pretty " you are drop-dead gorgeous, girl! Get

used to it!

Hugs and blessings, Ann

[Guest guest]

> Have been missing you and wondering if you went camping

> again without asking us..LOL

> Pat in Taft

===============================

uhhhhh...no, I didn't go camping....I went to Disneyland....and I

forgot to ask permission again...hitting palm to forehead...bad

girl, bad, bad, bad girl.

I had a great time seeing Disneyland through my Katey's eyes. I

bought Katey (2 1/2) and her 5 month old sister Lexi, Red and white

polka dot Minnie mouse dresses. Then off we paraded through

Disneyland with my personal Minnie Mouse and mini Minnie. Katey

took her role as Minnie Mouse serious and would give a " parade wave "

and blow kisses as we traveled through the magical kingdom.

It was wonderful to have the stamina to be on my feet all day for 2

1/2 days with a Mouse on my hip.

Jo

It was nice to be missed

[Guest guest]

In a message dated 6/23/2003 3:10:41 AM Central Daylight Time,

moobabies@... writes:

> I had a great time seeing Disneyland through my Katey's eyes. I

> bought Katey (2 1/2) and her 5 month old sister Lexi, Red and white

> polka dot Minnie mouse dresses.

Oh Jo,

I so much wanted to see Disney through my kids eyes....But we never

could go until my kids were 14 and 11....So it wasn't Magical like for little

kids. We had fun, but I wish we could have done it when they were younger.

in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

12/17 - 346.5 ( minus 31lbs)

02/12-330.0 (minus 47.5 lbs)

05/12- 304.8 (minus 72.7 lbs)-BMI now 48

06/22- 290.8 (minus 86.7)BMI 46.

[Guest guest]

> In a message dated 6/23/2003 3:10:41 AM Central Daylight Time,

> moobabies@h... writes:

>

> > I had a great time seeing Disneyland through my Katey's eyes. I

> > bought Katey (2 1/2) and her 5 month old sister Lexi, Red and

white

> > polka dot Minnie mouse dresses.

>

> Oh Jo,

> I so much wanted to see Disney through my kids eyes....But

we never

> could go until my kids were 14 and 11....So it wasn't Magical like

for little

> kids. We had fun, but I wish we could have done it when they were

younger.

> in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

> 12/17 - 346.5 ( minus

31lbs)

>

> 02/12-330.0 (minus 47.5

lbs)

> 05/12- 304.8 (minus 72.7 lbs)-BMI now 48

> 06/22- 290.8 (minus 86.7)BMI 46.

~~~~~~~~~~~~~~````

I didn't get to take my son there until he was 8 yrs old,

but wouldn't have missed it for the world. It was just

like going from the real world into a make believe world

for him.I loved every minute of it...When Mickey Mouse

walked up to him, his eyes got so big..lol

Pat in Taft

[Guest guest]

In a message dated 6/23/2003 1:12:37 AM Pacific Daylight Time,

moobabies@... writes:

> It was wonderful to have the stamina to be on my feet all day for 2

> 1/2 days with a Mouse on my hip.

>

Oh Jo, what a wonderful way to spend your time! Congratulations on having so

much fun and being able to be out and about with a Mouse on your hip and

another at your side!

Hugs and blessings, Ann

[Guest guest]

> Jo, what is this Beyond Change? WHere from? What for? Sounds

like the afterlife...

=============================

Beyond Change is a monthly newpaper type publication Information

regarding obesity and obesity surgery. They try not to favor any

particular surgery and stay very " general " in the info they put

out. But often there is interesting articles on things like

vitamins, lab work, protein....

http://www.beyondchange-obesity.com/

Not sure, but the subscription rate is something like $20 per year.

Jo

[Guest guest]

> hi jo-

>

> i was reading your post about how you prayed right before your

> surgery. that really touched me. not just that you prayed with the

> Dr but because he stood right beside you and supported you. Thats

> why I really love these 2 doctors. I have not had my surgery yet,

> but after the meeting the other night, I can see the relationship

> that the doctors have with their patients. I fully agree that God

> will be with me and Dr Z when he does this surgery. Any doctors

that

> can give life back to people are definitely angels in my book.

These

> 2 doctors are the best!!!!!!!!!!

>

> Vicki

wrong name- that post was from pat....sorry!!!!

[Guest guest]

Good Morning, Jo. Don't you know when it's time to sleep? LOL

Hugs and blessings, Ann

[Guest guest]

> putting my bent up old arms around you{{{{Jo}}}},glad you

> are home and see you Sunday...

> Pat

========================

Gosh that hug feels good!! I only have 76 more post to go to get

caught up....now for something that I have been dreading facing up

to.....I might not make it Sunday....I'm worried....Let me explain.

Joe is celebrating his 50th birthday Saturday...lots of folks

coming from out of town/state. We will have several Overnighters.

At least 6 Motor homes and I don't know how many in the house...Then

there is talk of taking the out of state visitors to Marine World or

something...Don't know if that is going to happen for sure or If we

are going to join them. The point is I'm greiving about the

possibility of missing the pool party. Let me state...If I can make

it at all, even if just for a short time I WILL be there....

Jo

[Guest guest]

> Now I had this conversation with Marta the other night Jo...why

are you up? It is about 4am your time so you should either be in

bed or milking a cow!!

>

> Kristy

> -only 8pm here

=====================================

Haven't gone to bed yet...I'm determined to get caught up on the

list....it's ok...I'll get to sleep in until 7:30 a.m.... If i'm

lucky.

Jo

[Guest guest]

The point is I'm greiving about the

> possibility of missing the pool party. Let me state...If I can

make

> it at all, even if just for a short time I WILL be there....

>

> Jo

I have been waiting for you to chose between your hubby and us!

LOL! Was getting nervous...

Marta

[Guest guest]

Hi Jo.- I'm flying all this way to see you and you won't be

there? Betsy

========================================

Ouch...stick the knife in and twist! Love, you are one of the

reasons that I will be standing on my head trying to get there.

I'll know alittle better what the plans are going to be for Sunday

(and beyond) Friday night. Besides I want to meet your brother.

Jo

[Guest guest]

> Jo- you seem to be a healthy pup!!!! did you have any

complications

> or " major " discomfort after sugery?? i mean besides pain, were you

> sick or did your incision get infected??

>

> vicki

====================================

I'm the recovery you pray to have. Never puked, Never ran a fever,

Never sprung a leak, incision healed well.....The only thing, when I

had my tummy tuck the Doctor said I had a hernia the size of a

nickel that he fixed...The Doctors and I were completely unaware of

it....I never even had to call the office with a concern. Follow-up

visits were pretty boring...no challenge to dr. K at all.

Jo