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Its so much easier to simply find another doctor, one who won't PUSH the

issue.....

Perhaps we could start somekind of referal list to doctors who don't push

vaccines ? ? ?

Chelly

Re: RE: another question

At 10:04 AM 02/16/2004 -0600, you wrote:

><< But you will be in over your head if you think you can explain this

>to the doctor.>>

>

>I so agree with this statement! I can't believe what a wimpy idiot I

>become when my son's doctor starts in on me about vaccines.

YOu are not alone . Even those of us who are nurses are bowled over

by them, even with as much as I know. I don't even try anymore. They will

only wake up when one of their own is damaged and not even then sometimes

due to the denial

I have so

>admired her care of my older two kids (she is very reluctant to use

>antibiotics or do invasive things) yet she has used every trick, and I

>do mean " trick " , in the book to jab this baby. The GUILT they induce is

>enormous.

>

Exactly

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

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At 11:03 AM 02/16/2004 -0800, you wrote:

>Its so much easier to simply find another doctor, one who won't PUSH the

issue.....

>Perhaps we could start somekind of referal list to doctors who don't push

vaccines ? ? ?

>Chelly

Yes, it is easier to find another doctor, but we don't want a 'list' as

they can become targets if there is such a list.

So we do it discreetly

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

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Dear ,

Just the thought that your Isaiah may be diagnosed autistic (vaccine

injured children is my definition) is enough to sound the ALARM. I

have an autistic son and when he was diagnosed it wasn't long after my

husband and I suspected vaccines even before we knew what we know

today. I stopped vaccinating ALL my children in 98 not long after I

received the news about my son.

If your daughter is healthy, SKIP the check up. More than likely your

doc wants her there in the hopes of making money by vaccinating her with

a poison that about 80% of most docs don't do to their own children!

When I get those little reminders in the mail for my infant, I tear them

up and in the garbage they go. The doc I have now though knows that if

he even mentions vaccines, I'll pull my whole family out.

Why take your healthy baby to be exposed to those that may be sick (flu,

etc.) only to be pressured into what I would consider a barbaric

practice--vaccination. (BTW-all vaccines are poisonous--if it isn't

anti-freeze, formaldehyde, etc., its aluminum or mercury )

My baby is 10 months old and has only been to ONE check up and she

didn't need that one. She is completely unvaxed, NO vit. K shot,

breastfeed, organic food as much as possible, have a homeopath if

needed. etc. She is developing at an unbeleivable rate and has been

very healthy since birth.

If your daughter is healthy and growing and developing normally, you

might benefit by canceling the appointment and/or reschedule at a later

date in order for you and your husband to research the issue more with

out being pressured by your doc. If you choose not to vax, you may get

pressured. That is why I sought out a physician (our family doc.) and

gave him an all or nothing. I went to his office and layed out my

terms, not his, and he accepted.

We are rarely at his office though because we don't vax! (And we use

preventative med. )

Lynda

ERIN CORN wrote:

>I hope I do not aggravate you ladies to much but someone mentioned that baby

shots have anti freeze and formaldehyde in them can someone tell me which ones.

>

>Right now I am at a very difficult cross road. is 11 months old today.

Before all the things surfaced that Isaiah may have autism we are currently

going through the testing I blindly let both of my children receive every

vaccination that the doctor said they should have. We will be going in for her

12 months check up in 1 month I have to decide in now what I want to do. I told

my husband I did not know if I would let get the vaccinations or not and

he wanted to know why. So I told him of some of the things I have been learning.

I want to be armed with as much knowledge as possible when we go in for that

visit. Any suggestions are appreciated. Thank you for listening. I just hope I

did not allow my children to be damaged by something I thought was good for

them.

>

>May God bless you and yours.

>

>

>

>

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  • 1 month later...
Guest guest

Pam,

I have been following your thread with Dr Grim and I just had a

couple of comments. I am not sure where you are at but there is one

lab in the USA that can differentiate the spironolactone from the

aldosterone and it may be worth your doctors looking into. That was

a major issue with my daughter because each time we tried to back

down the Spironolactone in anticipation of the vein sampling her BP

would skyrocket and it took some investigative work by ther endo to

find the lab. Sorry I don't know the name of it though. Secondly

they can do the dexamethesone suppression test while they wait for

the results from Dr Lifton's lab at Yale. You should be able to get

an idea it will work or not in 5-6 days although my daughters

nephrology team was dead set on the fact that she had GRA when she

did not that they tried it for 9 months. Additionally there is an

additional type of familial aldostronism. It is reffered to as

Familial aldostronism Type II. My daughter and I had this and it is

not dexamethesone supressible. It also has a charteristically higher

or more severe BP. It is much more difficult to control. If you go

to the pubmed website and type in aldostrone then you should pull up

some articles refrencing GRA and those same articles will generally

also outline the type II. Unfortunaltly there is no DNA testing as

yet for type two and it is generally discovered by the eliminatin

method. Good luck, W

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In a message dated 3/23/04 11:42:58, tn_weldys@... writes:

Pam,

I have been following your thread with DR Grim and I just had a

couple of comments.   I am not sure where you are at but there is one

lab in the USA that can differentiate the spironolactone from the

aldosterone and it may be worth your doctors looking into.  That was

a major issue with my daughter because each time we tried to back

down the Spironolactone in anticipation of the vein sampling her BP

would skyrocket and it took some investigative work by ther endo to

find the lab.  Sorry I don't know the name of it though.  Secondly

they can do the dexdexamethasone suppression test while they wait for

the results from Dr Lifton's lab at Yale.  You should be able to get

an idea it will work or not in 5-6 days although my daughters

nephrology team was dead set on the fact that she had GRA when she

did not that they tried it for 9 months.  Additionally there is an

additional type of familial aldostronism.  It is reffered to as

Familial aldostronism Type II.  My daughter and I had this and it is

not dexamethesone supressible.  It also has a charteristically higher

or more severe BP.  It is much more difficult to control.  If you go

to the pubmed website and type in aldostrone then you should pull up

some articles refrencing GRA and those same articles will generally 

also outline the type II.  Unfortunaltly there is no DNA testing as

yet for type two and it is generally discovered by the eliminatin

method.  Good luck,  W 

We have published that the Dex test can be done overnight. Give 2 mg at midnight and check aldo and cortisol thenex am. Aldo will be donw to nearly zero.

The BP effect takes longer but is usually there in a couple of weeks.

The Australian Group (Tom Stowasser) thought they had a geneitc test for type 2 but I havent seen anything lately. Dr. Lfiton's lab does the testing for free or GRA

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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Guest guest

The reasons to suspect GRA in your son are:

1. You have PA and it may be GRA.

2. Your son has enough HTN to get LVH and so is a good candidate.'

3. The "normal" aldo is seen many times and it is the renin you need to index the aldo with to get the ratio. So ask what the renin was. Aldo alone is almost useless.

Thanks for helping us train more Drs. to know what this is and how to diagnose it.

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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In a message dated 3/22/04 17:48:18, spirlhelix@... writes:

I just realized that when I came up with that "normal"

aldosterone-renin test, it was only three weeks before

my diagnosis with congestive heart failure.  I wonder

how the usual increase in aldosterone secondary to

heart failure might have affected my test results?

Depends on what was causing your heart failure. I dont know what levels to expect in CHF but this is usually secondary aldosteronism where the aldo is high becasure the renin is high. Also blood sodium tends to be low not high as it is in PA.

What did the think caused your CHF and what were the Sx you were having?

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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In a message dated 3/23/04 19:42:43, leslie@... writes:

A couple other questions from what I've read...  Is there a relationship between pyelonephritis and hyperaldosteronism?  Also, can long term low K cause permanent muscle damage?

Yes-Pyleo can cause seconday aldo

Low K can damage kidneys

Some pyleo become K losers and some Na losers.

Severe low K will cause enought muscle weakness that people become paralyzed all over and can diet from not being aboe to breathe.

Severe low K will increase muscle damamge and can be reflected by very high CPKs.

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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Hi, I've been reading several threads with much interest and learning a lot, but I'm a bit lost on some of the acronyms. Could someone please list the most commonly used ones and what they mean? The below message is a good example.

A couple other questions from what I've read... Is there a relationship between pyelonephritis and hyperaldosteronism? Also, can long term low K cause permanent muscle damage?

Thanks!

PS - I'm collecting records from my previous physicians. Dr. Grim, when your clinic is up and running in Milwaukee, I'd like to schedule a visit.

Re: Re: Another Question

The reasons to suspect GRA in your son are:1. You have PA and it may be GRA.2. Your son has enough HTN to get LVH and so is a good candidate.'3. The "normal" aldo is seen many times and it is the renin you need to index the aldo with to get the ratio. So ask what the renin was. Aldo alone is almost useless.Thanks for helping us train more Drs. to know what this is and how to diagnose it. May your pressure be low!Clarence E. Grim, BS, MS, MD, FACP, FACCProfessor of Medicine and EpidemiologyBoard Certified in Internal Medicine, Geriatrics and HypertensionFocusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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Guest guest

Having suffered with PA bi lateral adrenal hyperplasia for over 7 years now with relatively low K, I developed hypokalaemic myopathy which led to some permanent muscle damage in hands and legs. My professors game plan is to try and keep my K level around 4.0 - but hasn't yet achieved it. I hover around 3.5 and below.

Kind Regards,

Grahamlowerbp2@... wrote:

In a message dated 3/23/04 19:42:43, leslie@... writes:

A couple other questions from what I've read... Is there a relationship between pyelonephritis and hyperaldosteronism? Also, can long term low K cause permanent muscle damage?Yes-Pyleo can cause seconday aldoLow K can damage kidneys Some pyleo become K losers and some Na losers.Severe low K will cause enought muscle weakness that people become paralyzed all over and can diet from not being aboe to breathe. Severe low K will increase muscle damamge and can be reflected by very high CPKs. May your pressure be low!Clarence E. Grim, BS, MS, MD, FACP, FACCProfessor of Medicine and EpidemiologyBoard Certified in Internal Medicine,

Geriatrics and HypertensionFocusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now

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Guest guest

Pam, there are differing levels of the sevarity of the disease. My

daughter was aparently much more severe than I was. Her BP has been

recorded at 237/123 while in the hospital, asleep when she was only

15 months old. THis was confirmed by a very stressed doc by every

mechanical BP machine he could get his hands on and by manual BP .

Thankfully they have many more medicines with which to control BP mow

than back when I had my diagnosis. Nearly thirty years ago had my BP

been that high I have been told that I most likley would not have

made it long enough to have the surgery. I wish you luck in your

search, W.

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In a message dated 3/25/04 5:14:27, spirlhelix@... writes:

> stressed doc by every

> mechanical BP machine he could get his hands on and

> by manual BP . 

> Thankfully they have many more medicines with which

> to control BP mow

> than back when I had my diagnosis.  Nearly thirty

> years ago had my BP

> been that high I have been told that I most likley

> would not have

> made it long enough to have the surgery.  I wish you

> luck in your

> search, W. 

that is the reason even today to do BP the real way. Not machine beats a trained human.

May your pressure be low!

Clarence E. Grim, BS, MS, MD, FACP, FACC

Professor of Medicine and Epidemiology

Board Certified in Internal Medicine, Geriatrics and Hypertension

Focusing on difficult to control high blood pressure and high cholesterol especially in the African Diaspora

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  • 1 month later...
Guest guest

Not sure. I've been on 10 mg for a couple months, but if your situation is

different, maybe it's not too fast.

Thea

another question

> also my doctor started me right out at 10mg of lexapro and then

> wanted me to go up to 20mg in a couple of weeks was this too fast????

>

>

>

>

>

>

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  • 6 months later...

Hi Dawn,

The only way to tell if your oesophagus is getting bigger is to compare barium x-rays a couple of years apart. I can't say with certainty if there are more or less symptoms before and after but there is more collected food sitting there to ferment and cause acid and burping.

Joan

another question

how do you know if you have end stage achalasia??? and can you tell if your esoph is getting bigger?? are there symptoms?dawn

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The endoscopy or camera inserted into your esop. You will have to have several tests to make a comparison but a trained doctor can tell if it is enlarged.

another question

how do you know if you have end stage achalasia??? and can you tell if your esoph is getting bigger?? are there symptoms?dawn

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  • 2 weeks later...

> My question is about the DS community. Are you all involving yourselves

> in the DS community such as the buddy walks and picnics etc... and making

> that part of his/her life or are you informing yourselves but raising your

> childeren solely in the typical society. <<

i am raising Fiona with as much contact to mainstream kids and to ds kids as

possible. i am trying to get in " the best of both worlds " .

as much as i see the benefits of her learning from other kids and being a

part of the " normal " everyday world, her chances of a partnership later on

or of lasting friendships will be among her " own kind " , among kids or young

adults who understand each other, know what the other is going thru, someone

who is really tuned in.

this is true for every young person looking for a partner or a friend. you

look for someone on your wave-length, someone who will understand you,

someone who shares your interests, someone who laughs and cries about the

same things you do. for a person with down syndrom (or any other special

person for that matter) this holds true too. so the chances of finding

someone for a lasting friendship will be greater the more kids they know who

share their interests and their way of experiencing life.

this means i do a lot of networking within the down syndrom community,

trying to build up many many contacts and relationships. just think of how

many people an average person gets to know before they pick their soul-mate.

how much more limited is the choice our special kids have. i am trying to

make the choice options as large as possible. my daughter hopefully won't

pick someone just because there is no other choice. that never is a good

reason for a relationship, with ds or without.

gundula

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On one thing. We haven't seen Santa at a mall the last few years

but it hasn't been long. He will be 40 next month. One year he " asked " Santa

for an electric beard trimmer and the next year when we went back it was the

same guy and he remembered and the beard trimmer. I don't imagine

Santa gets too many requests for those. of course hasn't " believed " for

years but we still have a lot of fun with it. I believe tho. Jessie

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Hi

And like Jessie, I believe too. And I have more fun with my Santa Claus

suit than just about anything I own. I was Santa at 's party

yesterday. and were elves who helped me give out presents to

the kids.

This year we went to see both Santa and the Fairy Princess in Kansas City.

I plan to take them to see Santa as long as they want to go, regardless of

how old they are. Same goes for other holiday stuff. Make glad the hearts

of childhood. says I am just a big kid too. I think that is one of

the nicest things she's called me (and she only calls me nice things). I

can hardly wait to our nieces move here from California. They are younger

than our four here and still into all this stuff 100 percent.

Dad to , Kristi, (all three Down syndrome ages 12-13-14) and

Cri du chat (age 7)

Husband to C. in Mo.

Uncle Daddy to and in Calif. (Down syndrome)

Re: another question

>

> On one thing. We haven't seen Santa at a mall the last few years

> but it hasn't been long. He will be 40 next month. One year he " asked "

Santa

> for an electric beard trimmer and the next year when we went back it was

the

> same guy and he remembered and the beard trimmer. I don't imagine

> Santa gets too many requests for those. of course hasn't

" believed " for

> years but we still have a lot of fun with it. I believe tho. Jessie

>

>

>

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Quite a few years ago, at Easter had said he didn't want a

stuffed bunny that year so I hadn't got one. When the time came my husband was

in the hospital and decided he wanted a bunny after all. I couldn't

leave him alone to shop so I asked a friend to find one for us. I knew he'd

enjoy shopping for one. But he said something like, " are you telling me the

Easter bunny isn't real? " He acted so shocked. And I said, " you mean I asked

the wrong person? " Of course he found a great bunny for . This guy was

about 40 at the time. So it's not just our kids. It's our friends too. or

mine anyway. Jessie

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Quite a few years ago, at Easter had said he didn't want a

stuffed bunny that year so I hadn't got one. When the time came my husband was

in the hospital and decided he wanted a bunny after all. I couldn't

leave him alone to shop so I asked a friend to find one for us. I knew he'd

enjoy shopping for one. But he said something like, " are you telling me the

Easter bunny isn't real? " He acted so shocked. And I said, " you mean I asked

the wrong person? " Of course he found a great bunny for . This guy was

about 40 at the time. So it's not just our kids. It's our friends too. or

mine anyway. Jessie

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  • 1 month later...

Hope Bri had a GREAT birthday. Oh my goodness. One more year and you'll have a

TEENAGER!!!!! 8-)

Following site is St Jude's take on CVID

http://www.stjude.org/disease-summaries/0,2557,449_2164_6532,00.html

This is from Lucile Packard's Children's Hospital at Stanford

http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/allergy/cvid.html

But I really have to snicker at this quote found at

http://www.utoronto.ca/kids/Hypogam.htm

" Hypogammaglobulinemia (Common Variable Immunodeficiency) "

But I really didn't have time to look at what it was saying in context.....

I just put " CVID " and " Hypogammaglobulinemia " in a Google search. Love the info

highway!

Wenoka

Another Question

Hi Everyone,

has Ig1 subclass deficiency and Polysaccharide antibody deficiency.

Is this technically CVID?? His Immuno is telling me that CVID is only

referring to patients who also have t-cell issues. He did diagnose him with

Hypogammaglobulinemia.

Sandi, Mom to , age 12.

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Sandi:

Don't quote me but I think I recall the doc saying CVID was a combination of

more than one Ig deficit, like low IgG AND low IgA?

Then alot of times you'll see the combination of a subclass def and an IgA

def but they don't call that CVID?

I don't think it has to have a t-cell component.

(mom to , age 6, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 2, more dairy intolerant but very healthy!)

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Sandi:

Don't quote me but I think I recall the doc saying CVID was a combination of

more than one Ig deficit, like low IgG AND low IgA?

Then alot of times you'll see the combination of a subclass def and an IgA

def but they don't call that CVID?

I don't think it has to have a t-cell component.

(mom to , age 6, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 2, more dairy intolerant but very healthy!)

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has the dx of CVID but has normal levels of all his IgG, IgA, IgM.

He had no response to the intra-dermal testing, and if I remember right

there was something wrong with his b cells? I can't remember now. other

than that it was just his titers that showed no immunity. When I called the

IDF to question the dx they said that CVID used to be IgG, IgA and or IgM

but now it is being used to encompass a larger group of things. I then

questioned the immuno and he said that when Nick was first tested he had low

everything and then he gained all his IgG, IgA, IgM. but since he still

wasn't making antibodies to the titers they were like shooting blanks.

Amy,

mom to , 2 years old, CVID, asthma, GERD, on prophalatic abx

(rotating Septra and Amoxicillin) and IVIG (Carimune NF) every 4 weeks,

flovent, xopenex, albuterol and claritin. Allergic to latex.. among other

things. Visit Nick's Caringbridge site at

http://www3.caringbridge.org/ne/nicholasb/

Re: Another Question

>

> Sandi:

>

> Don't quote me but I think I recall the doc saying CVID was a combination

> of

> more than one Ig deficit, like low IgG AND low IgA?

>

> Then alot of times you'll see the combination of a subclass def and an IgA

> def but they don't call that CVID?

>

> I don't think it has to have a t-cell component.

>

> (mom to , age 6, dairy intolerant-related GERD -- currently has

> polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

> other

> defs... and also to Kate, age 2, more dairy intolerant but very healthy!)

>

>

>

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In a message dated 2/8/2005 10:13:16 PM Pacific Standard Time,

yhwhworship@... writes:

http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/allergy/cvid.html

Wenoka,

Thank you for the links...this is exactly what I thought!! I have no idea

where this Immuno is coming from most of the time.

Sandi, Mom to , age 12. Polysaccharide deficiency, IgG1 subclass

deficiency, Tetrology of Fallot, Pulmonary valve transplant (2003), Mitral valve

stenosis, COPD, asthma, Carnitine deficiency, GERD, suspected Velocardiofacial

syndrome.

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