Another Question

[Guest guest]

Peggy,

I have osteoporosis as well. I'm not sure if I'll end up with revision

surgery since they don't talk about it much in Canada. But if it comes

to that, I'm also worried about how my osteoporosis will impact on the

surgery.

Anyone else have any comments?

Diane Popiuk

& Peggy Greene wrote:

>

>

> I woke up in the middle of the night with a thought racing through my head. I

also have osteoporosis so I'm not sure I could have surgery. My bone may be too

thin. Does anyone else suffer from osteoporosis?

>

> Peggy Greene

> JPG Unlimited

> Antiques & Collectibles

> jpgreene@...

>

> Jesus laid down His life for us, so that He could give His life to us, so that

He could live His life through us!

>

> Simplify your life with Tupperware! Check out my site at

http://my.tupperware.com/pgreene. When you place your order, please use my

Consultant number 00577000619. Thanks!

>

> Join AllAdvantage.com and get paid to surf the Web! Please use my ID (HGD-969)

when asked if someone referred you. Thanks!

> http://www.alladvantage.com/go.asp?refid=HGD-969

>

>

[Guest guest]

----- Original Message -----

From: Busch The school he goes to is a school that has both normal (whatever that means) kids and kids with disabilities. Two weeks ago when he started he was worried about "catching" the disabilities from the other kids. I think we got over that, but this may be a result of that as well. I don't know.

Not too long ago on this list there was a discussion of our children having problems with "different" people, everything from hippies to drug addicts to the mentally retarded (my own daughter worries about those with foreign accents.) You might want to search the archives for this thread for some insight into this type of obsession/compulsion.

Kathy R. in Indiana

[Guest guest]

Thank you Kathy. I will research that.

Kathy <klr@...> wrote:

----- Original Message -----

From: Busch The school he goes to is a school that has both normal (whatever that means) kids and kids with disabilities. Two weeks ago when he started he was worried about "catching" the disabilities from the other kids. I think we got over that, but this may be a result of that as well. I don't know.

Not too long ago on this list there was a discussion of our children having problems with "different" people, everything from hippies to drug addicts to the mentally retarded (my own daughter worries about those with foreign accents.) You might want to search the archives for this thread for some insight into this type of obsession/compulsion.

Kathy R. in IndianaYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

Hi:

I would also like to encourage all of you to consider going beyond what

" typically " people would do during exposures. Dr. Foa's treatment manual

discusses this and it really helped Steve for me to read this part to him.

Before then he would refuse to do an exposure which was a bit over the top

as he felt someone without OCD would not do things that way.

The kinds of things he did include: cleaning the toilet without gloves,

licking his shoes (yes the soles!), not washing his hands after using the

toilet, eating of plates with utensils used by someone else, and the list

goes on. This has helped him tremendously with his contamination OCD which

is a very stubborn variety in our experience.

ALoha, Kathy (H)

kathyh@...

At 04:58 AM 09/19/2000 -0400, you wrote:

>Hi --

>

>Just adding my vote to Kathy's about CBT. After successfully doing CBT on

>her counting OCD, and being fairly OCD free for a month, I also noticed

>contamination fears creeping in. wouldn't sit on a bench in a

>cafeteria because it was sticky, wouldn't fold her Dad's socks after they

>came from the laundry because it was icky, was examining the silverware

>before she would eat with it.

>

>With her knowledge of ERP and how to use it, I finally pointed out to her

>what she was doing, and explained how worrying about contamination was going

>to limit her life even more than the counting had. She understood stopping

>it at this point would be way easier than waiting until it became a habit.

>She was able to stop it immediately, within a few days, by using ERP--

eating

>off a dish that didn't totally get clean from the dishwasher, sitting in

>public places even though it was filthy, etc.

>

>Can't stress enough how well ERP works.

>

>Ellen/NY

[Guest guest]

HI :

An untreated germ worry can be very limiting. THe trick is to get some

exposure and response prevention (E & RP) therapy, a very specific form of

cognitive behavior therapy (CBT) which involves facing their fears/ocd

triggers

and agreeing not to perform their usual rituals/responses to reduce anxiety.

By facing their fears they can overcome them. It needs to be done in a

graduated fashion and it works like magic.

My son, Steve, now 13, was dxed at 10, and has had many contamination fears.

MR kids are a big part of this. He could not eat in the cafeteria at

school as

he had to sit at the bench where the MR kids had sat at an earlier sitting of

the meal. So he charmed his way into eating in the sick room which was

adjacent to the cafeteria. You can imagine how chagrined the school was that

my son was reporting to the sick room and they had not even called me.

Such is

the skill of OCDers at covering up their rituals and symptoms. Now he does

self initiated E & RP and walks by the MR kids classroom during recess and tell

me about it. ALso I am thinking of getting him to volunteer with MR adults.

This summer we were at a party with some of his relatives in Minnesota. One

has a job taking care of MR adults at a care home. So she brought two of them

to the family reunion. I socialized with them extensively, particularly

within

Steve's view and made a point of going up to him and hugging him and asking

him

not to wash. What was amazing was how many of the other relatives were asking

me who those people were and why they were there and what was wrong with

them.

They also were very reluctant to have anything to do with them. And to think

the OCD is from my side of the family!!

Steve thinks he will get brain damage and die sometimes when he is around

people who are MR or have mental disabilities. Go figure how this works

rationally for a kid with three DSM-IV diagnoses <VBG> SO I just kid him and

tell him he is already dead and talking to me through the 900# psychic

hotline. He also has ocd around hippies and people living an alternative

lifestyle, which is practically everyone where we live!! When you don't take

their fears seriously, although you treat them very respectfully, this helps

them to recognize them as unusual and OCD. THen when they know the

techniques

of E & RP they can boss back these fears.

I also joke with Steve that he is a master in coping with people with brain

problems as he lives with us and seems to have survived that! Keeping it

light

really helps. Hang in there, things will get a lot better, take care, aloha,

Kathy (H)

kathyh@...

At 10:29 AM 09/19/2000 -0700, you wrote:

>

> Kathy~

>

> I do think my biggest concern is how limiting a germ worry can be. There

are

> germs everywhere and I just don't want him to be so worried that he stops

> doing everything and ends up constantly washing.

>

> The school he goes to is a school that has both normal (whatever that means)

> kids and kids with disabilities. Two weeks ago when he started he was

> worried about " catching " the disabilities from the other kids. I think we

> got over that, but this may be a result of that as well. I don't know.

>

> Thanks again~

>

>

[Guest guest]

I have osteoporosis and take Fosamax (and lots of calcium). I had a major

revision surgery in January and appear to be fusing adequately.

>

> Peggy,

>

> I have osteoporosis as well. I'm not sure if I'll end up with revision

> surgery since they don't talk about it much in Canada. But if it comes

> to that, I'm also worried about how my osteoporosis will impact on the

> surgery.

>

> Anyone else have any comments?

>

> Diane Popiuk

[Guest guest]

, yes, carrots are high-glycemic. You may find this site useful:

http://www.nutrinews.com/public/recipesfood/referencedatabases/glycemi

cindex/index.cfm

Andy

> Are there any foods that are commonly mistaken for not too bad that

you

> would definately avoid? I was just told for example that carrots

are high

> glycemic or something to that effect and I eat them all the time

especially

> at night! I was just wondering if there are any I should

definately leave

> for my free day that most would consider healthy that I might not

know.

> Also does caffine free beverages such as pop, tea, coffee interfere

with

> bfl? Should I treat them as regular and add a cup of water or can

they

> maybe not count but not really matter either way? Thanks for your

time

>

>

______________________________________________________________________

___

> Get Your Private, Free E-mail from MSN Hotmail at

http://www.hotmail.com.

[Guest guest]

I wouldn't avoid carrots nor overdo it. They have lots of fiber and are a

good source of betacarotene. If you are preparing a bunch of raw veggies to

eat just include lots of others as well such as celery, cucumbers,

cauliflower, broccoli, snow peas, radishes, zucchini, etc. Just my opinion.

I really doubt it will impact your results. I would put this into the small

details that make up 80% of what doesn't matter compared with the 20% of

things that really do matter. In the 20% I would include the six balanced

meals off the authorized food list, the six days of training using the high

point techniques, practicing good form and safety, the crossing the abyss

process, lots of water, planning, tracking progress and staying inspired

through as many means as possible. Most of the rest is nuances that may or

may not make a difference and certainly won't make up for not doing the 20%.

Focus on the basics. If you have time and money to burn after mastering the

basics and you aren't 100% delighted with the results, then look at other

high yield strategies or other tweaks.

Many have made tremendous progress with carrots, bread, bagels, regular

pasta, and yes potatoes too. If you have a medical issue that requires you

to avoid them then do so. listen to your body. If you have hunger pangs

and hour or so after a spud and not after an apple then it may be that you

are getting too big a spike of insulin. If you are very low energy an hour

or so after a meal your spike may have been too high, see if a lower

Glycemic index carb makes a difference. Don't necessarily blindly follow

these rules. The key is small balanced meal with portion control six times

a day. People have been successful with 5 and with 7 with suitable

adjustments on portions. 4 is more difficult and less efficient. Eating

lots of veggies is good as it helps with fiber and the feeling of fullness.

Just some thoughts from my view of the world.

Kit

[Guest guest]

In a message dated 2/23/01 1:06:33 AM Eastern Standard Time,

smilinggail@... writes:

<< Well, actually a few more! LOL

What are the components of the words " most appropriate placement " ? How do I

make home the most appropriate placement, or do I make all their other

choices not appropriate? I found out that the district will provide

services

if I homeschool Seth, but he would have to go to school to get them!

DUH!!!!!!! What's wrong with this picture? LOL Do you think I could use

" least restrictive environment " to make home the best place because he

wouldn't have to be taken out of class to have all his needs met? I have a

meeting with Seth's advocate tomorrow, but I don't think she will have the

answers to these questions. >>

Gail,

You have to demonstrate to them why their choices are NOT appropriate.

When we had Maddie's IEP, they kept yapping up down left and right about how

they could place her appropriately and that there were plenty of kids like

Maddie currently attending their schools. (OH BOY, did this comment get me

hot, since the one yelling the most had NEVER EVEN MET MADDIE---DID I TELL

YOU GUYS THIS BEFORE??????????????? LOLOL) They wanted to know WHAT

Melmark had to offer Maddie that they couldn't provide. THAT'S the piece we

had defend. Also Gail, something that might help is a letter from Seth's

developmental ped. We had letters from our ped and from Dr. Capone, backing

up our reasoning for approved private school.

Good luck girlfriend!!!! We're cyberly with you!!!!

Donna

[Guest guest]

I think " most appropiat placement " is to put the child

where they belong in public schooling. They should

have all the modifications that they need in the

placement that their in. You should start right when

the child is diagnosed with a disibility, etc. to

start placing them in a school, etc. All the school

systems, etc. will mostly cover the costs, of when you

intervian a child into an apooropiate placement at any

age. I'll going to have to look and see if I have any

captionsist notes about appropiate placement, if I'll

do then I'll send them.

=====

Friends Till The End

__________________________________________________

[Guest guest]

In a message dated 2/23/01 2:15:23 PM Eastern Standard Time, duffey48@...

writes:

<< What are the components of the words " most appropriate placement " ? How do

I

make home the most appropriate placement, >>

Gail,

I personally think the most appropriate placement is the place that you think

is most appropriate for your child. That is how I have always approached

that question.

Lauri

[Guest guest]

I had to do something similar but then i got prescritions from his special

needs peds for the things he needs ST and OT and they had a letter that

showed where he was now etc, with it and then through a company which we got

our SCL and Respite services we got in home services, and they were way

longer and more productive than what they get from AEA, and you get copies

form each visit to keep in your homeschooling record too. We continue to go

through the hospital rehab program during the summer, they dont have summer

school really here, he does qualify and will get a few weeks extra this year

but AEA closes during the summer and he continues to need great work in his

speech and FMS. shawna.

another question

>

> Well, actually a few more! LOL

> What are the components of the words " most appropriate placement " ? How do

I

> make home the most appropriate placement, or do I make all their other

> choices not appropriate? I found out that the district will provide

services

> if I homeschool Seth, but he would have to go to school to get them!

> DUH!!!!!!! What's wrong with this picture? LOL Do you think I could

use

> " least restrictive environment " to make home the best place because he

> wouldn't have to be taken out of class to have all his needs met? I have

a

> meeting with Seth's advocate tomorrow, but I don't think she will have the

> answers to these questions. LOL

> Gail-another year older today, but alas, no wiser!

>

>

>

>

>

[Guest guest]

In a message dated 2/23/01 11:29:37 AM Eastern Standard Time,

Strider3@... writes:

<< I'll going to have to look and see if I have any

captionsist notes about appropiate placement, if I'll

do then I'll send them.

>>

Thanks

Gail

[Guest guest]

In a message dated 2/23/01 11:29:37 AM Eastern Standard Time,

Strider3@... writes:

<< I'll going to have to look and see if I have any

captionsist notes about appropiate placement, if I'll

do then I'll send them.

>>

Thanks

Gail

[Guest guest]

In a message dated 2/23/01 2:10:38 PM Eastern Standard Time, duffey48@...

writes:

<< Also Gail, something that might help is a letter from Seth's

developmental ped. We had letters from our ped and from Dr. Capone,

backing

up our reasoning for approved private school.

Good luck girlfriend!!!! We're cyberly with you!!!!

Donna >>

Donna,

Seth doesn't have a developmental pediatrician. He only goes to his regular

ped. for yearly checkups and ear infections. I was shocked to find out that

he was supposed to be tested for his thyroid! Never had that done. Other

than the heart surgeries, his medical exposure has been very limited to say

the least. Eye doctors once, hearing test once and neck x-ray once. That's

really about it. LOL Do you think his doc is too lax? LOL

Gail

[Guest guest]

In a message dated 2/23/01 4:30:02 PM Eastern Standard Time,

timothytlstein@... writes:

<< Gail,

I personally think the most appropriate placement is the place that you

think

is most appropriate for your child. That is how I have always approached

that question.

Lauri >>

Hope you're right Lauri! LOL That would make home the most appropriate! LOL

Gail

[Guest guest]

Gail...I am sure his pediatrician is not too lax...nick has a dev. ped mainly

because of his eating issues and because we knew his behaviors were not just a

result of the ds and we wanted to get a formal dagnosis for school reasons. our

reg. ped has been very good.

it might be a bonus that seth has not had to have lots of medical visits...it be

so unnerving to kids, don't you think? cheri

Re: another question

In a message dated 2/23/01 2:10:38 PM Eastern Standard Time, duffey48@...

writes:

<< Also Gail, something that might help is a letter from Seth's

developmental ped. We had letters from our ped and from Dr. Capone,

backing

up our reasoning for approved private school.

Good luck girlfriend!!!! We're cyberly with you!!!!

Donna >>

Donna,

Seth doesn't have a developmental pediatrician. He only goes to his regular

ped. for yearly checkups and ear infections. I was shocked to find out that

he was supposed to be tested for his thyroid! Never had that done. Other

than the heart surgeries, his medical exposure has been very limited to say

the least. Eye doctors once, hearing test once and neck x-ray once. That's

really about it. LOL Do you think his doc is too lax? LOL

Gail

[Guest guest]

This was a video about IDEA and testing, and other

stuff that we saw on Feb. 6 2001.

Placeamn and related services:

When a decision is made to put a child in special

education one of two things can happen. The child can

be physically moved to another location where they

receive related services. But most likely they will

stay in the classroom and services will be brought to

them. ThE law provided that children be provided these

services as much aE possible. So Congress strengthened

the requirement for look at special education not as a

place but as a set of services that should be able to

follow a student wherever they are. Related services

are far reaching and can be individual speech,

language and audiology; physical psychological or

occupational therapy, support of learning and

recreational opportunities; parent counseling and

training; special training for the regular education

teacher; sensitivity training for the nondisabled

students who are in a class where a child with a

disability wil' be included. Those are examples of

possible related services that are not specifically

named in the law but provided if the student needs it.

Inclusion:

Under the 1997 IDEA, the concept of inclusion plays a

more important part than it did in 1975. It means to

include the student in the main stream curriculum. It

is believed that it is less obstructive in the

educational experience. It has been found when special

education services

are brought in the classroom nondisabled students'

benefit as well. The priority of the law is that

services be delivered as much as possible in the

classroom, so that persons with disabilities can

interact with others. The district has to offer a full

continuum of placement options: Regular class with

support; resource room; self contained class; private

schools for children with special needs;lresidential

placement and home or hospital instruction.

You don't want the classification to drive the

placement, the IEP needs to drive that. In keeping

with the parent education partnership, the IEP should

address not only the school agenda but how the school

will provide for how long. And parents and teachers

and guidance counselors should be involved in that

process. That needs to be set out in the IEP exactly

what resources the school is committing to this

student and who is responsible to make sure those

services are provided.

The individualized programs is developed at meeting

with the parent and student when appropriate. The law

requires a student's progress to be regularly

reevaluated by mixture of the team and provide

accordingly. For some this is once a year and others

every three years. Once they are receiving these

services an IEP cannot be changed without a member of

the family. And that indicates that a reevaluation

should be done to see how a student's progress has

changed. The child is getting older arid what kind of

services are now necessary. What skills should they be

gaining at this point?

Transitions: Transitioning is a word that means

change and preparing students for it. They can

include moving from general to special education;

preschool to kindergarten through grade 12 and high

school and to post secondary school. At age 14 the

component that they have in their IEP focuses on the

courses they should be taking as they get older.

Independent living skills, recreation, other

opportunities that will help the student be ready when

they leave school and go on to adult life. If a

student plans to go to college involves the guidance

counselor in the planning. Find out about the

requirements and provide modifications for testing.

Visit different campuses and ask about students with

special needs.

____________-

--- smilinggail@... wrote:

> In a message dated 2/23/01 11:29:37 AM Eastern

> Standard Time,

> Strider3@... writes:

>

> << I'll going to have to look and see if I have any

> captionsist notes about appropiate placement, if

> I'll

> do then I'll send them.

>

> >>

>

> Thanks

> Gail

>

>

[Guest guest]

In a message dated 2/26/01 6:10:54 PM Eastern Standard Time,

Strider3@... writes:

<< This was a video about IDEA and testing, and other

stuff that we saw on Feb. 6 2001.

>>

Wow !

Thanks for all the info.

Gail

[Guest guest]

In a message dated 2/23/01 9:11:50 PM Eastern Standard Time,

smilinggail@... writes:

<< Donna,

Seth doesn't have a developmental pediatrician. He only goes to his regular

ped. for yearly checkups and ear infections. I was shocked to find out that

he was supposed to be tested for his thyroid! Never had that done. Other

than the heart surgeries, his medical exposure has been very limited to say

the least. Eye doctors once, hearing test once and neck x-ray once. That's

really about it. LOL Do you think his doc is too lax? LOL >>

Gail,

Did you ever go to Len's site and print out the DS Preventive Medical

Guidelines? Give them to your doc and then that way, he'll have something

to follow. My ped had only had one other child with DS in his practice who

was older, but I liked my ped, so I kept him. Still, you could write the

letter for the doc and have him sign it.

Donna

[Guest guest]

In a message dated 2/27/01 2:43:17 PM Eastern Standard Time, duffey48@...

writes:

<< Gail,

Did you ever go to Len's site and print out the DS Preventive Medical

Guidelines? Give them to your doc and then that way, he'll have something

to follow. My ped had only had one other child with DS in his practice who

was older, but I liked my ped, so I kept him. Still, you could write

the

letter for the doc and have him sign it.

Donna >>

I did that Donna, and will take them when he goes for his yearly checkup next

week. I don't think the doc is going to take it too well. This is the only

group of peds. that we have in our city. Well, actually, they do about 3

cities here. No other peds. for miles, and miles, and miles! LOL

Gail

[Guest guest]

Hi Cheryl The database I used came up with this information:

1 raw ck liver(1oz); 40 calories, 1g fat, 1g carb, 6g protein.

~~

Does anyone know if it is ok to eat chicken livers and what the nutritionalvalues are? I'd love to throw some in a pan with a little Pam!! Not sureof the value and if it is worth it!Cheryl

[Guest guest]

YEA!! Then it was okay that I ate it!!

I made chicken livers with new potatoes - I fried them up in a pan using Garlic Pam and then sprinkled a little Cajun seasoning on them.

They were delicious - looks like I did ok.

What database did you use? I couldn't find anything anywhere!

THANKS!!

Cheryl 2

[Guest guest]

That sounds yummy I dont have chicken livers in the freezer, but I have beef liver...I might consider beef liver and onions, sauteed in Pam....yum! LOLI used the link Kit gave here awhile back..... www.kitchenlink.com

Blessings,

~~

YEA!! Then it was okay that I ate it!!

I made chicken livers with new potatoes - I fried them up in a pan using Garlic Pam and then sprinkled a little Cajun seasoning on them.

They were delicious - looks like I did ok.

What database did you use? I couldn't find anything anywhere!

THANKS!!

Cheryl 2

[Guest guest]

Oh Boy! I love liver... calves liver, chicken liver... yum yum!

Next time I go to the store I know what I'm gonna buy. I wonder how

I will disguise it so that my 14 year old son will eat it... if I

could only make it look like a steak or a pizza!

Kathy

> Hi Cheryl The database I used came up with this information:

> 1 raw ck liver(1oz); 40 calories, 1g fat, 1g carb, 6g protein.

> ~~

> --------------------------------------------------------------------

------------

>

> Does anyone know if it is ok to eat chicken livers and what the

nutritional

> values are? I'd love to throw some in a pan with a little Pam!!

Not sure

> of the value and if it is worth it!

>

> Cheryl

> --------------------------------------------------------------------

------------