Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 > > But the waste products are not being channeled through your milk. > >Anything that goes in the blood system (which is the main transport >system within the body) has the potential of being absorbed into the >breast milk. The breast does have a pretty good filtration system, but >some things (like some toxins) do get through. > >Lizzie Thank you for your input, Lizzie, a La Leche League leader is a wonderful resource. I didn't want to sound like I thought nothing passed into milk, because it does of course. But there was a report on this list a while back about someone who had been trying to get pregnant and wondered if the KT would inhibit conception/implantation (because of its stimulation of the immune system) and in fact hadn't had any delay getting pregnant. And my reply is that if KT interfered with human reproduction it would not have lasted as a life form or a cultural tradition because when KT first became part of human culture, medicinal practices were tribal (and still are in some places in which KT is culturally widespread) and any pattern linked to KT would have been noticed and KT stamped out as a threat to survival. This is why I believe that such fears come from the propaganda against KT that is out there, propaganda quite a few of us believe we must combat. In general I don't think KT will release toxins that will harm a child. If the mother just started drinking KT and was in terrible condition then any healing modality she would use would potentially release toxins into her milk. KT is not exceptional in that. Where KT could be a great boon in such a case, however, is that if the mother's health is that impaired her milk will likely be impaired as well (this opinion is based on my experience with a rescued, starved mother cat), and KT contains nutrients that may improve the whole situation all around. I certainly defer to your opinion on this matter, but wanted to clear up why I said what I did. -- vbaker@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 I got a few wide mouth jars with lids from the dollar general store for $2.50 and I also use empty gallon pickle jars. CherylC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Yes, of course I'd take a cure. It's true that we've made lives with our disability, but let's be honest, does anyone chose having one? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 > Would you take an instant cure? Definately. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 I would take it at this point in my life, but only because I believe that I have been molded into a human being capable of maintaining my passions to continuing fighting for what is right. Like Nick said, I would be more productive. <3 Kendra > > I started to read an excerpt at Amazon the other day about disability > activism, and I disheartened to read an anecdote about a polio sufferer > who says she would not swallow a " magic pill " to make her disability go > away. Is this really the state of disability activism -- that it's been > hijacked by post modernists who believe that disability is just " another > mode of being " ? > > I strongly believe that disabled people should have the same rights as > anyone else: they are thinking, feeling, and (dare I say it?) sexual > beings who should be able to live their lives as anyone else would. > That said, they face many hurdles in life that they would not otherwise > face, and a lot of that isn't just a function of societies attitudes or > some BS about " power " . > > So, my question is this: Would you take an instant cure? > > Beyond that, how popular is the meme that disability is simply " another > mode of being " ? > > -- > Dion C. Detterer > Writer, philosopher, genius > Email: dion@t... > Blog: http://thewhimwham.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Hi Dion, I just wanted to say if the magic pill ever actually happens I would take it in a heartbeat. I would love to go in town and be able to go around all the shops not one is handicap accessible, they all have stairs and it would also be nice to be able to find a job where they don't have to worry about me being disabled. If the pill never happens I still will be happy, I have a great family who loves me for who I am and I think that is what should count for life. Tammy " Dion C. Detterer " <diond@...> wrote: I started to read an excerpt at Amazon the other day about disability activism, and I disheartened to read an anecdote about a polio sufferer who says she would not swallow a " magic pill " to make her disability go away. Is this really the state of disability activism -- that it's been hijacked by post modernists who believe that disability is just " another mode of being " ? I strongly believe that disabled people should have the same rights as anyone else: they are thinking, feeling, and (dare I say it?) sexual beings who should be able to live their lives as anyone else would. That said, they face many hurdles in life that they would not otherwise face, and a lot of that isn't just a function of societies attitudes or some BS about " power " . So, my question is this: Would you take an instant cure? Beyond that, how popular is the meme that disability is simply " another mode of being " ? -- Dion C. Detterer Writer, philosopher, genius Email: dion@... Blog: http://thewhimwham.com/ A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 In a message dated 10/10/2005 6:57:33 A.M. Eastern Daylight Time, diond@... writes: So, my question is this: Would you take an instant cure? I used to say I wouldn't change my life, nor take a " magic pill, " but that was when I was in hs and was not as DA as I am now. I had not faced a situation that I couldn't adapt to make it " normal. " Now I would do anything to gain back some strength, any strength- even if it was the ability to scratch my head myself or to be able to reach over and kiss my fiance when I first came into the room. To those who believe it would change them or go against " who they are " I say: You still will have the experiences and memories of the challenges you went thru being DA. I think you will be physically changed, but it wont change " who you truly are. " I do not believe we are defined just by our physical abilities, but by a combination of our physical, emotional, and experienced spiritual being. On the outside you will now be different, but the inside is still the same, and isn't it what is inside that counts the most? Also I think receiving the magic pill would make you more grateful for the abilities you would receive from it b/c of the experience of being DA, than the at large AB community. Am I making sense? Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Yes, I would. Am I who I am because of the special challenges I have faced? Of course, but I could do without those challenges too. Life is good but it would be a lot easier without a disability. Dion C. Detterer wrote: So, my question is this: Would you take an instant cure? > > -- > Dion C. Detterer > Writer, philosopher, genius > Email: dion@... > Blog: http://thewhimwham.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 I agree with you Kimi... I love who I am and am grateful for what I can do, but if given the chance to have a cure 'magic pill'... Id take it in a heart beat! I want more and I think I could be more if given the chance. That doesnt mean it would change who I am inside.... --- Ksmile96@... wrote: > > In a message dated 10/10/2005 6:57:33 A.M. Eastern > Daylight Time, > diond@... writes: > > So, my question is this: Would you take an instant > cure? > > > > > > I used to say I wouldn't change my life, nor take a > " magic pill, " but that > was when I was in hs and was not as DA as I am now. > I had not faced a > situation that I couldn't adapt to make it " normal. " > Now I would do anything to > gain back some strength, any strength- even if it > was the ability to scratch my > head myself or to be able to reach over and kiss my > fiance when I first came > into the room. To those who believe it would change > them or go against " who > they are " I say: You still will have the experiences > and memories of the > challenges you went thru being DA. I think you will > be physically changed, but > it wont change " who you truly are. " I do not > believe we are defined just by > our physical abilities, but by a combination of our > physical, emotional, and > experienced spiritual being. On the outside you > will now be different, but > the inside is still the same, and isn't it what is > inside that counts the > most? Also I think receiving the magic pill would > make you more grateful for the > abilities you would receive from it b/c of the > experience of being DA, than > the at large AB community. Am I making sense? > Kimi > > > [Non-text portions of this message have been > removed] > > __________________________________ Music Unlimited Access over 1 million songs. Try it free. http://music./unlimited/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 All I'd like to have an instant cure do is return my arms, hands and fingers, oh and neck, back to the level they were when I was 24yrs old. Angie On 2005.10.10 10:32, Jenn Malatesta wrote: > > Would you take an instant cure? > > Definately. > > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Kendra wrote: > I would take it at this point in my life, but only because I believe > that I have been molded into a human being capable of maintaining my > passions to continuing fighting for what is right. Like Nick said, I > would be more productive. I think, essentially, I'd be the same person had I never had my disability. I'd perhaps be more naive, more arrogant, etc., but I'd still be " me " . I'm a better person for my experiences, however. A very left-leaning friend of mine commented once, " I think you're a [conservative] whose life has turned you into a [liberal]. " I thought it was an interesting observation. OTOH, I think I'd still be the introspective, mathematical/artistic type I am today. -- Dion C. Detterer Writer, philosopher, genius Email: dion@... Blog: http://thewhimwham.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 TAMMY HASKELL wrote: > Hi Dion, I just wanted to say if the magic pill ever actually happens > I would take it in a heartbeat. I would love to go in town and be > able to go around all the shops not one is handicap accessible, they > all have stairs and it would also be nice to be able to find a job > where they don't have to worry about me being disabled. If the pill > never happens I still will be happy, I have a great family who loves > me for who I am and I think that is what should count for life. Yes, I think it's perfectly consistent to both be happy with where you are yet willing to improve it where possible. -- Dion C. Detterer Writer, philosopher, genius Email: dion@... Blog: http://thewhimwham.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Sue The first time this was brought up with was in the middle of the school year, about 3 years ago. At the time, I told them we could discuss it at the next IEP, and not to worry about doing it at the time. The issue was dormant for the next couple of years. I did poll this group about it, answers varied. At this time, after many talks about cursive, we are concentrating on learning her legal signature in cursive, and not really having to do cursive in anything else. Several teachers have told me that cursive is easier to learn than printing, not sure I agree there. But everyone is in agreement the signature is the most important thing for her to learn, so that is what we are doing. ly, looking at handwriting in my job every day (I am a nurse), many people print everything and only use cursive when they " sign " something, so I am comfortable where we are now. Sharon H. Mom to , (14, DS) and , (10) South Carolina Another question Ok, this one just kills me! Got a note in Alyssa's comm book saying that they are still working on her printing her name. It's still not clear and she's having a hard time (she has low muscle tone). The next thing the teacher says is that they will start teaching her cursive soon. Now they will mark her down when they can't read what she printed (numbers and letters) but they are going to teach her cursive?????? I know some of you have gone thru this. I know that if I ask that they not teach her, they will tell me it's part of the 3rd grade curriculum. I do have an IEP coming up after the holidays, and after her FBA and 3 years testing. Just wondering what anyone has done about this before. Sue & Alyssa-MI --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 My son prints in capital letters. He is still working on spacing. He does not use cursive. He is 18. He has NEVER had his grade changed because of his handwritting. My oldest is 20 he has ADHD and his handwritting was never marked off on because they just had to be able to work hard to figure it out. I assume your DD is on a modified ed plan so they can modify the handwritting portion too. Jean I so hate when school give you crap. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi, In third grade we put it in the IEP that amanda would not be required to write or read script. She also had an assistive tech evaluation around that time and got a lap top to use in addition to her handwriting or rather to help her along. She had gotten a lap top from the board of ed and since then has gotten a very cool Alpha Smart which she uses to word process and take notes on and it is very light weight and portable. There is also a book by the same people who wrote " Teaching Reading to Children with Down Syndrome " that is " Teaching Handwriting to Children with Down Syndrome. " You can get it in and Noble or any book store. I am quite sure they do not suggest teaching script until more tone is developed. is now in high school and signs her name in partial script and partial print. she still cant write in script and probably never will, but she can word process very well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 We have run into a similar problem. Ciarra writes quite nicely in terms of substance, it is clearly THERE. But they were writing over her letters to show her proper placement on the lines, etc. I asked them to please stop this and to grade for content, not style. It was a bit of a head butting experience, but she was feeling defeated on spelling tests she got 100 on SPELLING wise, they werent taking points off, but it was insulting to her. I feel really strongly that if we discourage her writing by criticizing it she will not want to keep doing it. So I ask them all to work on substance and let style come as it will. Oddly, the minute they backed off it, the style started being better. I would ask them to skip the cursive writing, it makes NO sense if shes struggling with print. Or perhaps to consider D'Nealian script, which is pre-cursive and easier to write than plain print. It also leads into cursive easily. But DON'T rush her or you will lose her. Just my 2 cents. http://img.photobucket.com/albums/v602/ciarrasmom/spelling.jpg this is a practice sheet from tonight, Ciarra angel sun the glasses a of lip and dog to the I go on stop boo up pop cat bird poop. (LOL scuse the words, we are working on OO sounds.) The 2 circled words are my writing. Another question Ok, this one just kills me! Got a note in Alyssa's comm book saying that they are still working on her printing her name. It's still not clear and she's having a hard time (she has low muscle tone). The next thing the teacher says is that they will start teaching her cursive soon. Now they will mark her down when they can't read what she printed (numbers and letters) but they are going to teach her cursive?????? I know some of you have gone thru this. I know that if I ask that they not teach her, they will tell me it's part of the 3rd grade curriculum. I do have an IEP coming up after the holidays, and after her FBA and 3 years testing. Just wondering what anyone has done about this before. Sue & Alyssa-MI --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Another thought is to let her legal signature be her printing. I had a Babynet Coordinator who had her checkbook stolen. She was able to hold the bank responsible for cashing/accepting checks because she prints her name and all in lower case. So, cursive could be up to the individual. mom to Bridget 12 wife to in upstate SC Another question Ok, this one just kills me! Got a note in Alyssa's comm book saying that they are still working on her printing her name. It's still not clear and she's having a hard time (she has low muscle tone). The next thing the teacher says is that they will start teaching her cursive soon. Now they will mark her down when they can't read what she printed (numbers and letters) but they are going to teach her cursive?????? I know some of you have gone thru this. I know that if I ask that they not teach her, they will tell me it's part of the 3rd grade curriculum. I do have an IEP coming up after the holidays, and after her FBA and 3 years testing. Just wondering what anyone has done about this before. Sue & Alyssa-MI --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Request (in writing) an eval from the OT (Occupational Therapist). The OT can make a determination whether Alyssa is physically ready to handle cursive. (Besides her weak grip, does she need trunk support? A slant board to work on?) Get it written into her IEP. Regardless of the " 3rd grade curriculum " , Alyssa is entitled to adaptions necessary to help her access the curriculm (a right under Section 504 of the Rehab Act of 1973 - which applies to anyone with a disability.) You might also consider requesting an " assistive technolgy " evaluation.If her handwriting is holding up her math and/or written communication skills and she has the ability to show her true capabilites better with assistive tech, then there is a strong case to allow her to use other techniques to communicate. " Assistive " tech doesn't have to mean electronics either - it could be as simple as using post-its and flashcards. A slant board (for writing on) would also be considered " assistive technology " . - Becky Ok, this one just kills me! Got a note in Alyssa's comm book saying that they are still working on her printing her name. It's still not clear and she's having a hard time (she has low muscle tone). The next thing the teacher says is that they will start teaching her cursive soon. Now they will mark her down when they can't read what she printed (numbers and letters) but they are going to teach her cursive?????? I know some of you have gone thru this. I know that if I ask that they not teach her, they will tell me it's part of the 3rd grade curriculum. I do have an IEP coming up after the holidays, and after her FBA and 3 years testing. Just wondering what anyone has done about this before. Sue & Alyssa-MI --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 In a message dated 12/15/2005 4:16:30 PM Eastern Standard Time, leslie-kerrigan@... writes: From what I've seen, a lot of teachers still have the idea that being " fair " to all the kids in the class means treating them exactly the same, and as a teacher, they must be " fair " . As a parent of a child with ds and also almost finished with my special ed degree, I have been told that fair is not equal, fair is treating each child individually and meeting his or her needs. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 I've had this one out with 's 2nd grade teacher, particularly on spelling tests. If the letter doesn't look quite right, is too big or too small in relation to the lines and/or other letters, or heaven forbid, CAPITALIZED (or contains a capital letter where it should be lower cased) when it shouldn't be, it's marked wrong. This week she spelled " railroad " correctly (one of the two challenge words, and she worked really hard on it!), but the second " a " was about half the size of the " o " so it was marked wrong..... the teacher noted that she " couldn't read it " . Arrrrrgggggggggg! On the one hand, they talk about how the are happy to accomodate , yet every time it seems like an obvious acomodation, they balk...... " we mark all the other children off if they do/don't do such and such " ..... they haven't figured out she isn't " all the other children " yet??? It's sad that every little nitpicky detail must be written in the IEP..... you'd think that they'd say " way to go, you spelled railroad! " From what I've seen, a lot of teachers still have the idea that being " fair " to all the kids in the class means treating them exactly the same, and as a teacher, they must be " fair " . I plan to wait for cursive for ...... her printing is just starting to get really nice (when she takes time and wants to do a good job)....... why learn a new skill in writing, when the expectations for content will keep increasing......... I'd rather her put the effort into the actual writing assignment, rather than having to " relearn " handwriting by learning cursive. Just my 2 cents. , mom to (10), (7, DS), and (6) wrote: >We have run into a similar problem. Ciarra writes quite nicely in terms >of substance, it is clearly THERE. But they were writing over her >letters to show her proper placement on the lines, etc. I asked them to >please stop this and to grade for content, not style. It was a bit of a >head butting experience, but she was feeling defeated on spelling tests >she got 100 on SPELLING wise, they werent taking points off, but it was >insulting to her. I feel really strongly that if we discourage her >writing by criticizing it she will not want to keep doing it. So I ask >them all to work on substance and let style come as it will. Oddly, the >minute they backed off it, the style started being better. > >I would ask them to skip the cursive writing, it makes NO sense if shes >struggling with print. Or perhaps to consider D'Nealian script, which is >pre-cursive and easier to write than plain print. It also leads into >cursive easily. But DON'T rush her or you will lose her. Just my 2 >cents. > >http://img.photobucket.com/albums/v602/ciarrasmom/spelling.jpg > >this is a practice sheet from tonight, Ciarra angel sun the glasses a of >lip and dog to the I go on stop boo up pop cat bird poop. (LOL scuse the >words, we are working on OO sounds.) The 2 circled words are my >writing. > > > > Another question > > > >Ok, this one just kills me! Got a note in Alyssa's comm book saying that >they are still working on her printing her name. It's still not clear >and she's having a hard time (she has low muscle tone). The next thing >the teacher says is that they will start teaching her cursive soon. Now >they will mark her down when they can't read what she printed (numbers >and letters) but they are going to teach her cursive?????? I know some >of you have gone thru this. I know that if I ask that they not teach >her, they will tell me it's part of the 3rd grade curriculum. I do have >an IEP coming up after the holidays, and after her FBA and 3 years >testing. Just wondering what anyone has done about this before. Sue & >Alyssa-MI > > >--------------------------------- > >Find Great Deals on Holiday Gifts at > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 As a parent of a child with ds and also almost finished with my special ed degree, I have been told that fair is not equal, fair is treating each child individually and meeting his or her needs. Dawn Wow Dawn, very well said. I am adding this line to my page of " Lines to Use in 's IEP " . Sharon H. Mom to , (14, DS) and , (10) South Carolina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Sue, I don't know what to say about the cursive. You may have to call an IEP and address these issues. 's team was relieved (back in 2nd grade) when I said cursive writing is something that we aren't going to worry about. is in middle school and his writing is horrible. His letters are all over the place - different sizes, etc. - but I can tell what he is writing. The school has never gone bonkers over his penmanship. They do want me to use a ruler here at home to help him stay on the line. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 That's exactly right! Now, how do I convince the teachers that don't see it this way? CandJsMom1@... wrote: > In a message dated 12/15/2005 4:16:30 PM Eastern Standard Time, > leslie-kerrigan@... writes: > > From what I've seen, a lot of > teachers still have the idea that being " fair " to all the kids in the > class means treating them exactly the same, and as a teacher, they > must > be " fair " . > > As a parent of a child with ds and also almost finished with my > special ed degree, I have been told that fair is not equal, fair is > treating each child individually and meeting his or her needs. > > Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 I just have to comment on this. You hit the nail on the head! My friend has a daughter with ADHD. She's having trouble accepting this is a disability. She also has a son with DS. Her daughter had testing done and it showed a lot of problems with short term memory (when it came to reading comprehension) and obviously, easily distracted.We were talking one day about ways to modify her curriculum and tests. I told her at work, some kids' tests are sometimes changed by deleting 1 or 2 choices from a multiple choice question. It helps with focus if there aren't as many to choose from. My friend said " That wouldn't be fair to the rest of the class. " I told her D's ADHD is a disability and if TJ's work can be modified, why not hers? She was finding it hard to explain why she didn't see the ADHD as a disability. So, I copied your response and sent it to her...I think you explained it better than I did. Thanks! Di Re: Another question > In a message dated 12/15/2005 4:16:30 PM Eastern Standard Time, > leslie-kerrigan@... writes: > From what I've seen, a lot of > teachers still have the idea that being " fair " to all the kids in the > class means treating them exactly the same, and as a teacher, they must > be " fair " . > As a parent of a child with ds and also almost finished with my special ed > degree, I have been told that fair is not equal, fair is treating each > child > individually and meeting his or her needs. > > Dawn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 you could have that quote printed on a T-shirt for the next IEP meeting! 80) Di That's exactly right! Now, how do I convince the teachers that don't see it this way? Quote Link to comment Share on other sites More sharing options...
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