Re: (unknown)

[Guest guest]

Gabby !

I would like to say, thank you, oh and of course, Annie and Jim.

It is nice to keep warm and good feelings to others, it perpetuates good

health .

I mean if you can't beat this decease with the drugs, then lets attack it

with, laughter and love!

Even if it doesn't get rid of the decease , It sure feels, GOOD!

Oh yeah, I dropped a ten dollar bill on the floor, so if you find it,

just mail it to me...Ok!

On Tue, 24 Jul 2001 19:03:48 -0700 (PDT) pablo cruise

<nikki228@...> writes:

> First of all I just love your messages! You'll

> never know how much they brighten my day - they always

> seem to come when I'm in need of them the most. Thank

> you for your quick wit and for the information

> suggestions that you give! They come in handy!

>

> I wanted to make a suggestion to the parents of the

> Stills' children (systemic JRA). I've been keeping a

> daily log on Gabby for over 1 1/2 years now. In that

> daily journal (computer, of course) I list her eating

> habits, activity level, other symptoms, whether it was

> a good day or not for her, fevers, etc. Even if she

> had a good day, that was uneventful, I note that. I

> take these daily journals to the pediatric rheumy -

> sometimes faxing them the day before our visits so the

> dr can review them before she sees Gabs. It has

> helped tremendously. Both the ped & the rheumy have

> said they wish more parents with children of chronic

> illnesses would do this so they can refer back to them

> to see a possibly pattern, etc. and compare them to

> any test results. That way I also can read them and

> remind myself that I'm not crazy...well, not when it

> comes to Gabby anyway! Hugs to all! Love, Tammy (Jim,

> Annie and especially Gabby too!)

>

> __________________________________________________

>

[Guest guest]

I had two spinal taps.............very painful..........

my result..........nothing.........but its a great test to rule out any

thing else going on........good luck

Connie

Leave no stone unturned.......

[Guest guest]

--- dvinovich@... wrote:

>

> --

> Getting losts of emails and now am trying to figure

> out how to send.

> Hope this works and if so will be undulating you

> with questions.

>

We got your message to the liver support group.If you

go to the @... it is easy to

post from there.

Ann AIH 4/1/01 pred 25mg imuran100mg

__________________________________________________

[Guest guest]

Go here and sign in:

(unknown)

i forgot how to get to my groups can some one help me?

__________________________________________________

[Guest guest]

I'm thrilled to hear that little is doing so well. Yes, we'll keep our fingers crossed and pray that she improves with each passing day. Glad to hear you tried a Homeopathic Doctor who specializes in Dr. Hulda 's methods. I think Dr. is doing such a great work for humanity. It's a crying shame she gets little credit for all the lives she's saved from Cancer and Aids, etc. The best of luck to and you.

Kind Regards,

Sharon Myers

[ ] (unknown)

[Guest guest]

Dear all:

Here are some excellent websites:

-----------Quote:

and ,

Thanks for the excellent info.!

>From: " Machado" <adriancmvd@...>

>Reply-biofeedback

><biofeedback >

>Subject: Re: [biofeedback] website information

>Date: Fri, 27 Jul 2001 21:44:57 -0300

>

>,

>Excellent bibliography on your site! It is nice to have the references all

>grouped

>together. My browser's biofeedback folder in "favorites" is rounding out

>nicely.

>

>folder: articles & cases

> http://www.7hz.com/

> http://www.epub.org.br/cm/n04/tecnologia/biofeed_i.htm

> http://www.stressfx.com/effects.htm

> http://www.eegspectrum.com/articles/casehx/joylunt3.htm

> http://www.snr-jnt.org/JournalNT/JNT(1-1)3.html

> http://www.snr-jnt.org/JournalNT/JNTtoc.htm

> http://www.eegspectrum.com/onepage/epilepsy.htm

> http://www.richardcosta.com/biblio.htm

> http://www.alphatalker.com/motor_vehicle_accident_rehabilit.htm

>

>folder: didactic

> http://members.aol.com/aduial/1020sys.html

> http://faculty.washington.edu/chudler/1020.html

>

>http://server.bmod.athabascau.ca/html/Psych289/Biotutorials/20/part1.html

> http://www.bhs.mq.edu.au/~tbates/imaging_techniques/EEG/EEG.html

> http://www.trans4mind.com/metercourse/Course.html

> http://www.brainmaster.com/brain/vision/freqs

> http://www.mindfitness.com/freemodule.htm

> http://www2.rpa.net/~lrandall/painscale.html

> http://www.eegspectrum.com/research/dakdiss/diss3.htm

>

>folder: orgs

> http://www.aapb.org/

> http://www.opeiu.org/bbhpguild/index.asp

> http://www.bfe.org/

> http://www.biofeedback.net/brs/

> http://home.mindspring.com/~pvdadp/

> http://www.biofeedback-bsdcmdva.org/

> http://www.eegspectrum.com/

> http://www.futurehealth.org/

> http://www.snr-jnt.org/

>

>folder: pmp

> http://www.baylorhealth.com/proceedings/13_3/13_3_clark_cme.htm

> http://www.staff.ncl.ac.uk/r.j.hayes/appen.html

> http://www.richardcosta.com/

>

>folder: poparticles

> http://www.aapb.org/public/AAPBpuses.html

> http://www.aapb.org/public/magazine/F00/F2000.html

>

>http://www.cnn.com/2000/HEALTH/alternative/02/17/neuro.feedback.wmd/index.ht

>ml

> http://www.greatbrain.com/key2success.htm

> http://www.greatbrain.com/

> http://www.kansasrehab.com/spin.cord.html

> http://webmd.lycos.com/content/dmk/dmk_article_58201

> http://webmd.lycos.com/content/article/3187.10502

>

>folder: products

> http://www.biofeedbackzone.com/

> http://www.freezeframer.com/

> http://www.mindgrowth.com/

> http://www.mindpeak.com/prices.htm

> http://www.brainwavetx.com/tech/nt/

> http://www.cliving.org/sale.htm

>

>folder: psyphy

> http://listserve.apa.org/cgi-bin/wa.exe

> http://www.hhpub.com/catalogue/JOP.html

> http://www.brainwavebiofeedback.org/neocortex.htm

> http://rcf.usc.edu/~vanman/psyphy.html

> http://www.clarku.edu/~jlaird/psy145.htm

> http://liberty.uc.wlu.edu/~spr/

>

>for more:

> http://www.pubmed.gov/entrez/query.fcgi

> http://www.google.com

> http://www.dogpile.com

>

>Oh there is SO much on the web about biofeedback.

>So why have so few people heard of this fascinating form?

>

>Looking forward,

> Machado- V.D.

>

>

>

> [biofeedback] website information

>

>

> > Thanks for website reference as I will bookmark this. I have some

>information on my website at www.richardcosta.com

> >

> > I also have an annotated bibliography at www.richardcosta.com/biblio.htm

>for clients, doctors, and for insurance companies. I am working on getting

>a one page sheet of references for individual types of disorders or >symptoms

>that I can fax to managed care case mangers along with my tx extension

>requests.

> >

> > Costa

> > Sacramento, Ca

[Guest guest]

our kids blood reports are right and everythingis

normal, should we continue diet or not pleasse let me

know

--- The Kramer Family <nmkramer@...> wrote:

> Hi Swapna,

>

> My daughter is ADD with sensory issues and behavior

> issues. She's more of a

> borderline kid. She still has very imbalanced blood

> work, which is why I'm

> surprised that yours is OK. One of our doctors

> thinks that blood work should

> show results near the center of the 'good' range of

> values, while generally

> you'll be told that something is OK even if the

> value is right on the edge of

> 'bad'. So 'good' bloodwork might really show

> imbalances if you look more

> closely. Also I wonder which blood work was done -

> if they don't do the right

> tests, or if the blood is damaged (by heat, for

> example) in transit, then you

> can get a false " OK " result. The DAN! protocol is

> helpful (See the ARI

> website). It includes urine and stool tests.

>

> I think if you have concerns about your child, then

> keep looking for answers,

> even if the blood work is " OK " .

>

> Good luck with the diet! My daughter has been on

> the GFCF diet for 4 years now

> (she was 6 when we started), and she's also additive

> free, salicylate free,

> yeast free, hydrogenated oil free and allergen free.

> Eating a nutrient rich

> diet is best for all. She primarily eats meats and

> vegetables. Digestive

> enzymes and yeast fighters (Nystatin and probiotics

> like acidolphilus) are

> helpful. I started her on Monolaurin and garlic as

> antivirals a while ago. Her

> improvements are gradual but wonderful. She's still

> suffering, though, and we

> hope to chelate metals soon. If your child is

> younger, you should see better

> results sooner.

>

> BTW, There's a new peptidase enzyme product out now

> along the same lines as

> SerenAid and EnzymAid. Devin Houston's website is

> at www.houstonni.com. He has

> 2 enzymes - Peptizyde and HN-Zyme Prime. Peptizyde

> is for peptides (the GFCF

> peptide problem) and HN-Zyme Prime is for general

> digestion.

>

> K.

>

>

__________________________________________________

[Guest guest]

Thanks for your prompt reply. Yeah our kid is hjust 3

years old and even heard that chances of improvement

are good. I recently heard evendmg will work out a

lot. HAve you tried out that. Regarding food he is out

of gfcf diet now and then, will it be problem. Is it

required to stop sugar completely.our kid wont have

any hyperactive or any major symptoms of

aggressiveness. So we feel it is curable alot.

Expecting a early reply fromu

swapna

--- veldanda swapna <swapna_vs@...> wrote:

> our kids blood reports are right and everythingis

> normal, should we continue diet or not pleasse let

> me

> know

>

> --- The Kramer Family <nmkramer@...> wrote:

> > Hi Swapna,

> >

> > My daughter is ADD with sensory issues and

> behavior

> > issues. She's more of a

> > borderline kid. She still has very imbalanced

> blood

> > work, which is why I'm

> > surprised that yours is OK. One of our doctors

> > thinks that blood work should

> > show results near the center of the 'good' range

> of

> > values, while generally

> > you'll be told that something is OK even if the

> > value is right on the edge of

> > 'bad'. So 'good' bloodwork might really show

> > imbalances if you look more

> > closely. Also I wonder which blood work was done

> -

> > if they don't do the right

> > tests, or if the blood is damaged (by heat, for

> > example) in transit, then you

> > can get a false " OK " result. The DAN! protocol is

> > helpful (See the ARI

> > website). It includes urine and stool tests.

> >

> > I think if you have concerns about your child,

> then

> > keep looking for answers,

> > even if the blood work is " OK " .

> >

> > Good luck with the diet! My daughter has been on

> > the GFCF diet for 4 years now

> > (she was 6 when we started), and she's also

> additive

> > free, salicylate free,

> > yeast free, hydrogenated oil free and allergen

> free.

> > Eating a nutrient rich

> > diet is best for all. She primarily eats meats

> and

> > vegetables. Digestive

> > enzymes and yeast fighters (Nystatin and

> probiotics

> > like acidolphilus) are

> > helpful. I started her on Monolaurin and garlic

> as

> > antivirals a while ago. Her

> > improvements are gradual but wonderful. She's

> still

> > suffering, though, and we

> > hope to chelate metals soon. If your child is

> > younger, you should see better

> > results sooner.

> >

> > BTW, There's a new peptidase enzyme product out

> now

> > along the same lines as

> > SerenAid and EnzymAid. Devin Houston's website is

> > at www.houstonni.com. He has

> > 2 enzymes - Peptizyde and HN-Zyme Prime.

> Peptizyde

> > is for peptides (the GFCF

> > peptide problem) and HN-Zyme Prime is for general

> > digestion.

> >

> > K.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi Tammy,

I'm so sorry to hear that Gabby hasn't been feeling very well. You just

never know sometimes, from one day to the next, exactly what to expect.

Sometimes things can change so drastically overnight. I'm a fairly

organized person. I used to be almost obsessed with long-term planning

and scheduling, figuring everything out way in advance right down to the

last detail. After got JRA, I realized in a big way that

everything wasn't able to be laid out in black and white. One positive

thing that came out of it was that I think it helped me learn to become

more flexible and spontaneous. I'm not obsessed with my calendar and

planner, anymore

I do know what you mean, about letting your guard down only to have to

face yet another round. Maybe, hopefully, Gabby will be feeling lots

better by vacation time? Or maybe just the change in scenery will perk

her up and even if the family trip needs to be a bit more low-keyed than

you had expected, with less walking and other strenuous activity, you'll

all still have a nice time? I sure hope it works out. Please let us

know, okay?

Take care,

Georgina

pablo cruise wrote:

>

> Dear JRA Gang;

>

> Just when you thought it was safe to go back in the

> water...I let my guard down with this JRA thing Gabby

> has - AGAIN! Just when we had such GREAT sedrate news

> she's limping today. She hasn't done that for such a

> long time. I know it's damp and ucky out and the

> weather changes do make a difference. I suppose I'm

> just a bit down to see her in pain-again, yet,

> still...She's basically slept today. I did give her a

> nice warm bath and made her some homemade chicken

> soup, which she refused to eat along with anything

> else for the past 3 days. Her fever is up a bit and

> both her knees are very swollen.

>

> I hope the vacation we have scheduled for the beach

> wasn't a mistake for her due to the climate change ...

> anyone have any thoughts on this?

>

> Thanks for listening to me rattle...I know we're so

> lucky that it's not a terminal illness, she's just had

> so many good days in a row I suppose I thought the bad

> ones would never come back... : ) Hugss!

>

> Tammy

[Guest guest]

Hello Ron,

I also have the same experience you have when first eating and swallowing.

If I forget to think and to be careful of what I'm doing, my food will get

stuck and I will get dizzy and feel like I will pass out. I will need to

upchuck, then I can continue to eat.

I need to take a sip or two of water(or tea) then a small bite of food, chew

it till it's mush, swallow, then another sip of water, feel it pass down,

then I'm pretty well all set for the rest of my meal. Eating can be very

tiring for me and can take forever because of all the chewing. I have to be

sure not to be stressed when having a meal or I can run into trouble. I also

feel I may need another dilation before too long. My last one was about 2

years ago.

>From: ronn@...

>Reply-achalasia

>achalasia

>Subject: (unknown)

>Date: Wed, 01 Aug 2001 02:15:37 -0000

>

>Hello all,I forget what your survey questions were ,so I will just

>give some info about myself.

>My name is Ron.

>I am 53 years old.

>I am a firefighter in Maine,yes we get that achalasia thing up here

>also.

>I have had it for about10 years now.

>Tried a baloon dilation no relief.

>Had the Botox ,helped some ,but not much,now cotemplating the Myotomy.

>What seems to help a little is the nifedipine capsules under the

>tongue for a half hour before meals ,but I often forget them.

>Somewhat pleased with my doctor,as this is a difficult thing to

>treat ,as we all see here our symptoms are all so different.

>I have experienced one symptom that i wonder if others have also,at

>times when i first eat ,and come to try to swallow it seems to get

>stuck in the upper throat and at times I get very dizzy and feel as

>though im going to pass out,has anyone felt this before?

>Just want to thank you all for your support and for being

>here........Ron

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hello ,I never heard of anyone else having that dizzy experience ,I

guess Ill have to slow down when eating ,its hard being a firefighter I take

a bite and the alarm goes off ,and im off running when i should be drinking

water to get the food down .

So your french and from where ? My last name is Fournier and I am french

also ,haver a great day .......Ron

(unknown)

> >Date: Wed, 01 Aug 2001 02:15:37 -0000

> >

> >Hello all,I forget what your survey questions were ,so I will just

> >give some info about myself.

> >My name is Ron.

> >I am 53 years old.

> >I am a firefighter in Maine,yes we get that achalasia thing up here

> >also.

> >I have had it for about10 years now.

> >Tried a baloon dilation no relief.

> >Had the Botox ,helped some ,but not much,now cotemplating the Myotomy.

> >What seems to help a little is the nifedipine capsules under the

> >tongue for a half hour before meals ,but I often forget them.

> >Somewhat pleased with my doctor,as this is a difficult thing to

> >treat ,as we all see here our symptoms are all so different.

> >I have experienced one symptom that i wonder if others have also,at

> >times when i first eat ,and come to try to swallow it seems to get

> >stuck in the upper throat and at times I get very dizzy and feel as

> >though im going to pass out,has anyone felt this before?

> >Just want to thank you all for your support and for being

> >here........Ron

> >

> >

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

>

>

[Guest guest]

Hi Ron & ( & everyone else too)

This doesn't happen much to me anymore because I've had a long love/hate relationship with this disease, 22 years and I'm still kicking and more contrary than it. I have to concur with on point of eating slowly and chewing well. It can be so easy to forget if you are really hungry or don't have much time. If time is an issue I eat very little and wait until I can when more time permits. One thing I have become accustomed to doing is taking several sips of liquid before I even begin to eat. Ron, I can only imagine how often you must find yourself running right when you're eating and then suffer the consequences. Try a few sips to start yourself off. I also find I need to drink something before I take any meds because they stick very easily and if they dissolve before entering the stomach, well ... that's another problem for esophageal irritation and a major annoyance. See - I'm just plain stubborn.

I know this is off the topic but I chuckled a little at your "French" question to . Although living in New York (for 20 yrs) I'm originally from Montreal, Que. Crazing thing is I was an English Quebec'er and had to find and marry an American with a French name. :-)

Best regards, .

(unknown)> >Date: Wed, 01 Aug 2001 02:15:37 -0000> >> >Hello all,I forget what your survey questions were ,so I will just> >give some info about myself.> >My name is Ron.> >I am 53 years old.> >I am a firefighter in Maine,yes we get that achalasia thing up here> >also.> >I have had it for about10 years now.> >Tried a baloon dilation no relief.> >Had the Botox ,helped some ,but not much,now cotemplating the Myotomy.> >What seems to help a little is the nifedipine capsules under the> >tongue for a half hour before meals ,but I often forget them.> >Somewhat pleased with my doctor,as this is a difficult thing to> >treat ,as we all see here our symptoms are all so different.> >I have experienced one symptom that i wonder if others have also,at> >times when i first eat ,and come to try to swallow it seems to get> >stuck in the upper throat and at times I get very dizzy and feel as> >though im going to pass out,has anyone felt this before?> >Just want to thank you all for your support and for being> >here........Ron> >> >>>> _________________________________________________________________> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp>>>>>>

[Guest guest]

I'm from New Bedford Ma. Ron, not too far from the sea shore and yes I am

french of Canadian descent.

>From: " Fournier " <ronn@...>

>Reply-achalasia

><achalasia >

>Subject: Re: (unknown)

>Date: Wed, 1 Aug 2001 20:14:32 -0400

>

>Hello ,I never heard of anyone else having that dizzy experience ,I

>guess Ill have to slow down when eating ,its hard being a firefighter I

>take

>a bite and the alarm goes off ,and im off running when i should be drinking

>water to get the food down .

>So your french and from where ? My last name is Fournier and I am french

>also ,haver a great day .......Ron

> (unknown)

> > >Date: Wed, 01 Aug 2001 02:15:37 -0000

> > >

> > >Hello all,I forget what your survey questions were ,so I will just

> > >give some info about myself.

> > >My name is Ron.

> > >I am 53 years old.

> > >I am a firefighter in Maine,yes we get that achalasia thing up here

> > >also.

> > >I have had it for about10 years now.

> > >Tried a baloon dilation no relief.

> > >Had the Botox ,helped some ,but not much,now cotemplating the Myotomy.

> > >What seems to help a little is the nifedipine capsules under the

> > >tongue for a half hour before meals ,but I often forget them.

> > >Somewhat pleased with my doctor,as this is a difficult thing to

> > >treat ,as we all see here our symptoms are all so different.

> > >I have experienced one symptom that i wonder if others have also,at

> > >times when i first eat ,and come to try to swallow it seems to get

> > >stuck in the upper throat and at times I get very dizzy and feel as

> > >though im going to pass out,has anyone felt this before?

> > >Just want to thank you all for your support and for being

> > >here........Ron

> > >

> > >

> >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi again

I know the feeling of wanting for it to end. I had it on my first round of

treatment and have it now as I near the end of this round also. I'll have

been on the treatment a year at the end if this month. I have about 4 or

five refills left and am trying to decide if I want to continue until they

are used up. I probably will, but it sure would be nice to take a break from

all of the hassles.

[ ] (unknown)

> In 141 days I will take my last shot. And counting. At

> this point it is almost more important that it ends

> than whether or not it worked. Quite a state to be in,

> eh? I admire anybody who has gone through this twice,

> I'm not sure if I could. Maybe after a LONG break.

> I've lost 20 pounds (maybe only 18 taking off for

> hair), I'm just over half way done. If I do this tx a

> couple of more times I will dissappear. I better take

> my antidepressant and shut up. -dz-

>

>

>

> __________________________________________________

>

[Guest guest]

It's tough. I have my son every other weekend and on

vacations, etc. Being a little older (I was 36 when he

was born) it has been a challenge to keep up with him

anyway. I feel bad that I can't do some of the things

with him that we used to do. We were always biking and

hiking and swimming, etc. That hurts. I did motivate

myself to go to church this morning, I'm glad I did

that. It helps me feel a little more normal to at

least keep up some social contact. -dz-

--- <ralexan@...> wrote:

> Hi again

>

> I know the feeling of wanting for it to end. I had

> it on my first round of

> treatment and have it now as I near the end of this

> round also. I'll have

> been on the treatment a year at the end if this

> month. I have about 4 or

> five refills left and am trying to decide if I want

> to continue until they

> are used up. I probably will, but it sure would be

> nice to take a break from

> all of the hassles.

>

>

> [ ] (unknown)

>

>

> > In 141 days I will take my last shot. And

> counting. At

> > this point it is almost more important that it

> ends

> > than whether or not it worked. Quite a state to be

> in,

> > eh? I admire anybody who has gone through this

> twice,

> > I'm not sure if I could. Maybe after a LONG break.

> > I've lost 20 pounds (maybe only 18 taking off for

> > hair), I'm just over half way done. If I do this

> tx a

> > couple of more times I will dissappear. I better

> take

> > my antidepressant and shut up. -dz-

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Flo, Is she o.k. ? Liz

[Guest guest]

Liz, Blair is doing fine. There are several of us in contact with her. We'll

tell her that she should post and that you asked about her.

Flo

> ** Original Subject: RE: (unknown)

> ** Original Sender: smittyx03@...

> ** Original Date: Thu, 09 Aug 2001 19:19:27 -0400

> ** Original Message follows...

>

> I was just wondering if anyone on here remembers Blair and if so do

> you know how she is doing? I have not seen her post in months and she

> use to post almost everyday. Also I was wondering if anyone remembers

> a lady from Ill. I think her name was Debbie and she had the MGB

> along with her daughter Chris. was only around 16 years old.

> They had the MGB done last year. Has anyone heard from these people?

> If so could you please let me know how they are doing? Thanks, Liz

>

>

>

>

[Guest guest]

Blair is good, but really busy! She just may post on

here herself, as she does read the list occasionally.

I just saw her in June, and she was doing great! I

just love her!

I'll let her know you asked.

I don't know about Debbie and but I wonder

about them, too!

~Amy.

--- smittyx03@... wrote:

> I was just wondering if anyone on here remembers

> Blair and if so do

> you know how she is doing? I have not seen her post

> in months and she

> use to post almost everyday. Also I was wondering if

> anyone remembers

> a lady from Ill. I think her name was Debbie and she

> had the MGB

> along with her daughter Chris. was only around

> 16 years old.

> They had the MGB done last year. Has anyone heard

> from these people?

> If so could you please let me know how they are

> doing? Thanks, Liz

>

>

=====

Amy Poe

MGB 5/22/00 Dr. Rutledge

280/170/goal=160 or size 12 after tummy tuck!

__________________________________________________

[Guest guest]

welldone, . I always admire your capacity for writing succinctly and so

enthusuastically!

Toity

On Thu, 09 Aug 2001 06:57:23 +0100 Houston

<annamhouston@...> wrote:

> Copy of letter sent to Nursing Times regarding the recent brick bats on

> their pages directed at health visiting. It is over 200 words has too many

> references for the NT - anyway

>

>

> Mending the Fence

> It is always most interesting to have unreserved criticism even of the

> unconstructive kind. (Gooch NT July 12th, Radcliffe August 2nd). Health

> visiting must redouble efforts in helping people, not least other

> professionals, to understand what it is that we do within the boundary of

> the health visiting role. How simplistic to suggest that it is only about

> weighing babies and assessing development, it is clearly about so much more

> as Elkan et al demonstrate(1). Condemning the entire profession is harsh in

> the extreme. Health visiting suffered badly at the hands of the previous

> administration, when manpower cuts severely affected community services(2),

> alongside a reduction in length of training(3). With the current regime we

> now have the paradox of health visiting being valued by ministers as the

> title of the new council is shortened to exclude them. At the same time

> government policy documents champion the cause of health visiting(4,5).

> Professionals are accountable to the public as well as their governing body,

> it is less than transparent if the public dont know where to go to

> complain!

> Health visiting has a remit for prevention: it isnt about placing an

> ambulance at the bottom of the cliff but is much more about mending the

> fence at the top. The trick is once you have mended the fence how many lives

> do you know you have saved? How do you prove the worth of boring old fence

> mending when the ambulance at the bottom of the cliff with the blue light

> flashing seems so much more exciting?

> As a profession health visitors need to be able to accept criticism, however

> it isnt time to show health visiting the door, nor is it all round

> pointless as a profession. However, we need to address the really difficult

> matter of measuring outcomes in the health visiting service, so that we can

> demonstrate that prevention really is better than cure?

>

> References

> 1. Elkan R, Kendrick D, Hewitt M, J, Tolley K, Blair M, Dewey M,

> D, Brummell K (2000) The effectiveness of domiciliary health

> visiting: a systematic review of international studies and a selective

> review of the British literature Health Technology Assessment 4, 13

>

> 2. Cowley S & Houston A (1999) Health visiting and school nursing: the

> Croydon story Research Report, School of Nursing and Midwifery, Kings

> College London; Croydon Community Health Council London

>

> 3.UKCC (2000) A first steps project to scope the current and future

> regulatory issues for health visiting Cowley S, Buttigieg M, Houston A

> (Report directly available from the UKCC)

>

> 4. Acheson D (chair) (1998) Inquiry into Inequalities in Health London:

> TSO

>

> 5. Department for Education and Employment (DfEE) (1999) Making a difference

> for children and families: Surestart DfEE London

>

> (Letter copied to ) a web discussion and

> information group on policy and practice in health visiting and school

> nursing.)

>

>

>

> Yours sincerely

> Houston BSc(Hons) MA., RGN., RM., RHV

> Research Associate

> Florence Nightingale School of Nursing and Midwifery

> Kings College London

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

[Guest guest]

In a message dated 8/12/01 6:40:36 PM Pacific Daylight Time, dvinovich@... writes:

Can anyone give me the directions to get to the PSC support group, I saw it mentioned on you emails and did not jot it down. I have been following your many wonderful emails and want to go to PSC site because my husband has been diagnosed 1999 and has had some ups and downs and I need to be more informed when the next down comes.

dee

I think you go back to and then click onto PSC. I'm not sure of the exact process once you get to . Also, look for the Hepatitis and Liver Disease book by Dr. Palmer, $15 or less through amazon.com or some bookstores. Its ISBN is 0-89529-922-4. This book covers PSC as well as AIH.

Harper (AIH 5/00)

[Guest guest]

Hi Conrad,

Laryngeal spasm sounds like a plausible explanation to me.

I can't really think of anything else off the top of my head that would

explain it.

Best Wishes

Ian

(unknown)

> One of the lads on the rig a few days ago came to see me:

>

> " I woke up last night and was thirsty so I sat up and picked up a bottle

of

> water and had a drink. I put the bottle down and tried to take a breath,

no

> luck, I couldn't breath "

>

> He then went on to describe a frantic few seconds when he was struggling

to

> breath. Then as quickly as it happened he was able to breath again.

>

> He is adamant that it was not a dream(Or Nightmare!!)

>

> He is a 45 year old male, non smoker and is a physically fit individual

who

> had been on the running machine earlier that evening as is in training for

a

> marathon (His fifth)!!

>

> No pmh of note.

>

> Any ideas or has anyone heard of anything similar?

>

> I was thinking along the lines of some sort of laryngeal spasm brought on

> possibly by drinking relatively cold water whilst still half asleep?

>

> Ideas?

>

> Had no problems since but I'm interested

>

> Conrad

>

>

>

>

>

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

[Guest guest]

Try emu oil. That was the advice given to one of my customers with the same

problem.

<< Since she is black,

they are very noticeable. I am going to try changing her shampoos and maybe

using a conditioner. I tried olive oil, calendula oil, almond oil, and a

leave in conditioner. >>

[Guest guest]

I manage a health food store and I had a customer come in with the same

problem with her child. She was looking for emu oil because that is what she

was told would fix the problem. Emu oil is very healing for the skin and is

also great for arthritis. It is from animal source though.

<< where do you getg this >>

[Guest guest]

where do you getg this

>From: wolfkty@...

>Reply-Vaccinations

>Vaccinations

>Subject: Re: (unknown)

>Date: Fri, 17 Aug 2001 20:12:31 EDT

>

>Try emu oil. That was the advice given to one of my customers with the

>same

>problem.

>

><< Since she is black,

> they are very noticeable. I am going to try changing her shampoos and

>maybe

> using a conditioner. I tried olive oil, calendula oil, almond oil, and a

> leave in conditioner. >>

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Maybe someone can suggest an alternative to try first, Shanna?! :-) You know,

something thats not from an animal?! Hope you dont mind me suggesting that and I

hope some of the girls here throw a few alternatives atcha!

:-D

SUE, Ruby(2)

>

> From: wolfkty@...

> Date: Fri, 17 Aug 2001 23:01:52 EDT

> Vaccinations

> Subject: Re: (unknown)

>

> I manage a health food store and I had a customer come in with the same

> problem with her child. She was looking for emu oil because that is what she

> was told would fix the problem. Emu oil is very healing for the skin and is

> also great for arthritis. It is from animal source though.

>

> << where do you getg this >>

>

>

>

>

>

>