Re: (unknown)

May 21, 2001

hello Kramer Family,

This is quite great that u r taking so much time for

us and giving replys. Thanks alot. And one I want to

ask is we undergone tests for our kid after starting

dieting intervention one month ago. Does it make the

difference. If blood tests are normal then is it the

indicationthat kid is upto normal and dont have

siviour symptoms. if so we are lucky. By the do you

also have an autistic kid in your family. If so since

how log u started intervention and how is the

improvement. Pleaselet me know.

O.k., Once again thanks to you all,

bye

swapna.v

--- The Kramer Family <nmkramer@...> wrote:

> Hi Swapna,

>

> I hope someone else can help with this, since I

> don't know much about the

> behavioral interventions. But I do know of a couple

> of sites that probably

> discuss these:

> o Autism Research Institute (ARI) ,

> www.autism.com/ari ARI is a non-profit

> organization established in 1967 by Dr. Bernard

> Rimland to conducting research

> on the causes of autism and on methods of

> preventing, diagnosing and treating

> autism and other severe behavioral disorders of

> childhood. Autism ATEC scoring

> form. Many nutrition-oriented articles. DAN! doctor

> list. Conference tapes.

> Newsletter. Extensive links.

> o Center for the Study of Autism , www.autism.org

> Dr. M. Edelson. Many

> articles on related disorders, therapeutic and

> nutritional interventions, and

> social issues. Exclusive interviews. Extensive

> links.

> o Oops... Wrong Planet! Syndrome,

> www.isn.net/~jypsy/ Parent maintained site.

> Book list. Many articles, links.

> o Beyond Autism, http://trainland.tripod.com Parent

> maintained site. Many

> articles, links. Many autism WebRing links.

>

> If somebody else has ideas, please post them - I'm

> no expert on this subject.

>

> I was surprised to learn that the blood tests were

> all normal. That's usually

> not the case!

>

> Good luck, K.

>

> | I am very thankful to you for sending the

> | information which is very useful for me. ACtually

> I am

> | from India and till now we could not findout the

> right

> | dcotor for our kid, and we feel the information

> | provided in websites is so useful. We conducted

> all

> | blood tests for our kid and everything is

> normal.how

> | can we start intervention programs. can u please

> | suggest some behaviour intervention programs, or

> | clues, they wil be very useful for me.

>

__________________________________________________

May 22, 2001

If your child is young, I would recommend looking into a discrete trial

training program. I probably would look if he is older too, but the best

success with DTT is with young children. DTT is the only behavior program

that has scientific data to back up its results. Schools will often try to

steer you in the direction of TEACCH, which, in my opinion, is not nearly as

effective, but much more cost effective. I have been very impressed with

some incidental teaching programs I have observed, and although there is not

much scientific data to back up their rate of success, I am sure they will

do very well once the data is compiled. I am a teacher of children who have

the dual diagnosis of autism and blindness, and a foster parent of a boy who

is blind and has autistic-like symptoms, secondary to cerebral malaria. I

have found DTT to be a much more effective way to go, but it takes a lot of

commitment from the family and the school system.

My other advice is to not let the school bully you into going along with

whatever program they have in place. They are legally required to develop a

program for each individual child. Unfortunately, schools very often try to

save money and take the easy way out, even if that means overriding the

parent. If they refuse to go along with DTT, don't lose heart though. Most

research shows that comprehensive early intervention, whatever the approach,

is the key. In other words, 40 hours of direct therapy, using almost any

approach, is going to yield results, as long as the approach is consistent.

From: " The Kramer Family " <nmkramer@...>

Reply-

Date: Sun, 20 May 2001 06:26:40 -0500

< >

Subject: Re: (unknown)

Hi Swapna,

I hope someone else can help with this, since I don't know much about the

behavioral interventions. But I do know of a couple of sites that probably

discuss these:

o Autism Research Institute (ARI) , www.autism.com/ari ARI is a non-profit

organization established in 1967 by Dr. Bernard Rimland to conducting

research

on the causes of autism and on methods of preventing, diagnosing and

treating

autism and other severe behavioral disorders of childhood. Autism ATEC

scoring

form. Many nutrition-oriented articles. DAN! doctor list. Conference tapes.

Newsletter. Extensive links.

o Center for the Study of Autism , www.autism.org Dr. M. Edelson.

Many

articles on related disorders, therapeutic and nutritional interventions,

and

social issues. Exclusive interviews. Extensive links.

o Oops... Wrong Planet! Syndrome, www.isn.net/~jypsy/ Parent maintained

site.

Book list. Many articles, links.

o Beyond Autism, http://trainland.tripod.com Parent maintained site. Many

articles, links. Many autism WebRing links.

If somebody else has ideas, please post them - I'm no expert on this

subject.

I was surprised to learn that the blood tests were all normal. That's

usually

not the case!

Good luck, K.

| I am very thankful to you for sending the

| information which is very useful for me. ACtually I am

| from India and till now we could not findout the right

| dcotor for our kid, and we feel the information

| provided in websites is so useful. We conducted all

| blood tests for our kid and everything is normal.how

| can we start intervention programs. can u please

| suggest some behaviour intervention programs, or

| clues, they wil be very useful for me.

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

May 22, 2001

Would you please post what web site you found this diet on? I would like to read more about it.

Thank you,

~Karma ---------------------------------------http://loaves-n-fishes.com/ Health care items, over 200 manufacturers, over 5,000 products including vitamins, herbs, passive aerobic exercisers, body-fat scales, camping and storage food, plus more, at 10-30% off retail prices!http://www.karma.awarenesshealth.com/ Awareness Products, parasite and colon cleanses, Mediterranean botanicals

-----Original Message-----From: Carol Hammitt [mailto:carolhammitt@...]Sent: Tuesday, May 22, 2001 5:46 PMbowel cleanse Subject: (unknown)Greetings all, I am late in posting this so hope it is still needed.I have just come off a 20 day stint on the lemonade diet. Came off because it was easier than explaining repeatedly (large family reunion) why I was not eating. Still, will go back on in a few days, need to resupply grade b maple syrup (large family reunion thought it great on waffles, pancakes and french toast). No I did not eat any of that. Stuck to raw vegetables and fruits.First, I was NEVER hungry. Second, I had a tremdous amount of energy. Cannot say whether or not I lost weight (do not own scales) but clothes are falling off . It is very important to take the laxative tea in the morning and evening AND to do the sea salt/water cleanses. It is strongly advised that NO enema or colonics be done. As important as that is, it is just as necessary to break the diet correctly. All the instructions are on the gateway to health page under Stanley B lemonade diet.I passed one large very hard black mass and at least one identifible fluke. Found a mass on my left side disappeared too.Will be happy to answer any questions and looking forward to restarting this diet._________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com

May 24, 2001

, and how do you deal with it? I think I drive everyone crazy with it.

I mean I can't have ANY sound! otherwise can't think.

FrancineRN NJ(ie)

May 24, 2001

Hi Swapna,

My daughter is ADD with sensory issues and behavior issues. She's more of a

borderline kid. She still has very imbalanced blood work, which is why I'm

surprised that yours is OK. One of our doctors thinks that blood work should

show results near the center of the 'good' range of values, while generally

you'll be told that something is OK even if the value is right on the edge of

'bad'. So 'good' bloodwork might really show imbalances if you look more

closely. Also I wonder which blood work was done - if they don't do the right

tests, or if the blood is damaged (by heat, for example) in transit, then you

can get a false " OK " result. The DAN! protocol is helpful (See the ARI

website). It includes urine and stool tests.

I think if you have concerns about your child, then keep looking for answers,

even if the blood work is " OK " .

Good luck with the diet! My daughter has been on the GFCF diet for 4 years now

(she was 6 when we started), and she's also additive free, salicylate free,

yeast free, hydrogenated oil free and allergen free. Eating a nutrient rich

diet is best for all. She primarily eats meats and vegetables. Digestive

enzymes and yeast fighters (Nystatin and probiotics like acidolphilus) are

helpful. I started her on Monolaurin and garlic as antivirals a while ago. Her

improvements are gradual but wonderful. She's still suffering, though, and we

hope to chelate metals soon. If your child is younger, you should see better

results sooner.

BTW, There's a new peptidase enzyme product out now along the same lines as

SerenAid and EnzymAid. Devin Houston's website is at www.houstonni.com. He has

2 enzymes - Peptizyde and HN-Zyme Prime. Peptizyde is for peptides (the GFCF

peptide problem) and HN-Zyme Prime is for general digestion.

K.

May 25, 2001

Welcome Pam. You've come to the right place to talk to

other with RA. We have a great group of caring and

supportive people here. I'm looking forward to getting to

know you.

a

-----Original Message-----

From: Pamela [mailto:pss30@...]

Sent: Thursday, May 24, 2001 12:58 PM

Subject: [ ] (unknown)

HELLO EVERYONE,

MY NAME IS PAM AND I HAVE ENTERED THIS GROUP BECAUSE I

HAVE RA, AND I

AM 31, I HAVE HAD IT FOR 4 YEARS NOW. I LOOK FORWARD TO

TALKING TO

YOU ALL.

PAM

May 25, 2001

> , and how do you deal with it? I think I drive everyone crazy with it.

> I mean I can't have ANY sound! otherwise can't think.

> FrancineRN NJ(ie)

>

May 25, 2001

> > , and how do you deal with it? I think I drive everyone crazy with it.

> > I mean I can't have ANY sound! otherwise can't think.

> > FrancineRN NJ(ie)

> >

May 30, 2001

hello Eileen,

thanks a lot for giving me the best information. But

please tell me how cani proceed with DTT. And where

can I get the information, and software if required.

Please give the website name.

Thankyou,

swapna

--- Eileen Siple <eileen266@...> wrote:

> If your child is young, I would recommend looking

> into a discrete trial

> training program. I probably would look if he is

> older too, but the best

> success with DTT is with young children. DTT is the

> only behavior program

> that has scientific data to back up its results.

> Schools will often try to

> steer you in the direction of TEACCH, which, in my

> opinion, is not nearly as

> effective, but much more cost effective. I have

> been very impressed with

> some incidental teaching programs I have observed,

> and although there is not

> much scientific data to back up their rate of

> success, I am sure they will

> do very well once the data is compiled. I am a

> teacher of children who have

> the dual diagnosis of autism and blindness, and a

> foster parent of a boy who

> is blind and has autistic-like symptoms, secondary

> to cerebral malaria. I

> have found DTT to be a much more effective way to

> go, but it takes a lot of

> commitment from the family and the school system.

>

> My other advice is to not let the school bully you

> into going along with

> whatever program they have in place. They are

> legally required to develop a

> program for each individual child. Unfortunately,

> schools very often try to

> save money and take the easy way out, even if that

> means overriding the

> parent. If they refuse to go along with DTT, don't

> lose heart though. Most

> research shows that comprehensive early

> intervention, whatever the approach,

> is the key. In other words, 40 hours of direct

> therapy, using almost any

> approach, is going to yield results, as long as the

> approach is consistent.

>

> From: " The Kramer Family " <nmkramer@...>

> Reply-

> Date: Sun, 20 May 2001 06:26:40 -0500

> < >

> Subject: Re: (unknown)

>

> Hi Swapna,

>

> I hope someone else can help with this, since I

> don't know much about the

> behavioral interventions. But I do know of a couple

> of sites that probably

> discuss these:

> o Autism Research Institute (ARI) ,

> www.autism.com/ari ARI is a non-profit

> organization established in 1967 by Dr. Bernard

> Rimland to conducting

> research

> on the causes of autism and on methods of

> preventing, diagnosing and

> treating

> autism and other severe behavioral disorders of

> childhood. Autism ATEC

> scoring

> form. Many nutrition-oriented articles. DAN! doctor

> list. Conference tapes.

> Newsletter. Extensive links.

> o Center for the Study of Autism , www.autism.org

> Dr. M. Edelson.

> Many

> articles on related disorders, therapeutic and

> nutritional interventions,

> and

> social issues. Exclusive interviews. Extensive

> links.

> o Oops... Wrong Planet! Syndrome,

> www.isn.net/~jypsy/ Parent maintained

> site.

> Book list. Many articles, links.

> o Beyond Autism, http://trainland.tripod.com Parent

> maintained site. Many

> articles, links. Many autism WebRing links.

>

> If somebody else has ideas, please post them - I'm

> no expert on this

> subject.

>

> I was surprised to learn that the blood tests were

> all normal. That's

> usually

> not the case!

>

> Good luck, K.

>

> | I am very thankful to you for sending the

> | information which is very useful for me. ACtually

> I am

> | from India and till now we could not findout the

> right

> | dcotor for our kid, and we feel the information

> | provided in websites is so useful. We conducted

> all

> | blood tests for our kid and everything is

> normal.how

> | can we start intervention programs. can u please

> | suggest some behaviour intervention programs, or

> | clues, they wil be very useful for me.

>

> Responsibility for the content of this message lies

> strictly with

> the original author, and is not necessarily endorsed

> by or the

> opinion of the Research Institute.

>

June 1, 2001

I'm not sure where to begin. First of all, how old is your son and where do

you live? The first thing probably is to get him identified by the school

system, if you have not already done that. The school may offer a DTT

program. If not, check with colleges and other private school programs to

see if you can find one in your area.

DTT usually involves 1:1 sessions with the child for about 40 hours a week.

Tasks are learned through repetition, after having been broken into very

small parts. Parents often use college students to do much of the teaching,

but each staff person must be trained in the program. Parents can also do

much of the teaching.

This link should help to answer some of your questions.

> http://www.isn.net/~jypsy/aba.htm

----------

>From: veldanda swapna <swapna_vs@...>

>

>Subject: Re: (unknown)

>Date: Wed, May 30, 2001, 10:37 AM

>

> hello Eileen,

> thanks a lot for giving me the best information. But

> please tell me how cani proceed with DTT. And where

> can I get the information, and software if required.

> Please give the website name.

> Thankyou,

> swapna

> --- Eileen Siple <eileen266@...> wrote:

>> If your child is young, I would recommend looking

>> into a discrete trial

>> training program. I probably would look if he is

>> older too, but the best

>> success with DTT is with young children. DTT is the

>> only behavior program

>> that has scientific data to back up its results.

>> Schools will often try to

>> steer you in the direction of TEACCH, which, in my

>> opinion, is not nearly as

>> effective, but much more cost effective. I have

>> been very impressed with

>> some incidental teaching programs I have observed,

>> and although there is not

>> much scientific data to back up their rate of

>> success, I am sure they will

>> do very well once the data is compiled. I am a

>> teacher of children who have

>> the dual diagnosis of autism and blindness, and a

>> foster parent of a boy who

>> is blind and has autistic-like symptoms, secondary

>> to cerebral malaria. I

>> have found DTT to be a much more effective way to

>> go, but it takes a lot of

>> commitment from the family and the school system.

>>

>> My other advice is to not let the school bully you

>> into going along with

>> whatever program they have in place. They are

>> legally required to develop a

>> program for each individual child. Unfortunately,

>> schools very often try to

>> save money and take the easy way out, even if that

>> means overriding the

>> parent. If they refuse to go along with DTT, don't

>> lose heart though. Most

>> research shows that comprehensive early

>> intervention, whatever the approach,

>> is the key. In other words, 40 hours of direct

>> therapy, using almost any

>> approach, is going to yield results, as long as the

>> approach is consistent.

>>

>> From: " The Kramer Family " <nmkramer@...>

>> Reply-

>> Date: Sun, 20 May 2001 06:26:40 -0500

>> < >

>> Subject: Re: (unknown)

>>

>> Hi Swapna,

>>

>> I hope someone else can help with this, since I

>> don't know much about the

>> behavioral interventions. But I do know of a couple

>> of sites that probably

>> discuss these:

>> o Autism Research Institute (ARI) ,

>> www.autism.com/ari ARI is a non-profit

>> organization established in 1967 by Dr. Bernard

>> Rimland to conducting

>> research

>> on the causes of autism and on methods of

>> preventing, diagnosing and

>> treating

>> autism and other severe behavioral disorders of

>> childhood. Autism ATEC

>> scoring

>> form. Many nutrition-oriented articles. DAN! doctor

>> list. Conference tapes.

>> Newsletter. Extensive links.

>> o Center for the Study of Autism , www.autism.org

>> Dr. M. Edelson.

>> Many

>> articles on related disorders, therapeutic and

>> nutritional interventions,

>> and

>> social issues. Exclusive interviews. Extensive

>> links.

>> o Oops... Wrong Planet! Syndrome,

>> www.isn.net/~jypsy/ Parent maintained

>> site.

>> Book list. Many articles, links.

>> o Beyond Autism, http://trainland.tripod.com Parent

>> maintained site. Many

>> articles, links. Many autism WebRing links.

>>

>> If somebody else has ideas, please post them - I'm

>> no expert on this

>> subject.

>>

>> I was surprised to learn that the blood tests were

>> all normal. That's

>> usually

>> not the case!

>>

>> Good luck, K.

>>

>> | I am very thankful to you for sending the

>> | information which is very useful for me. ACtually

>> I am

>> | from India and till now we could not findout the

>> right

>> | dcotor for our kid, and we feel the information

>> | provided in websites is so useful. We conducted

>> all

>> | blood tests for our kid and everything is

>> normal.how

>> | can we start intervention programs. can u please

>> | suggest some behaviour intervention programs, or

>> | clues, they wil be very useful for me.

>>

>> Responsibility for the content of this message lies

>> strictly with

>> the original author, and is not necessarily endorsed

>> by or the

>> opinion of the Research Institute.

>>

June 1, 2001

sorry about your little one.. she is in our prayers please keep us postedGod BlessCarol

June 1, 2001

Helen I sympathize with you my 15 yr. old just had the flu like you are

talking about this last week, she was sick for 3 days. A little trick that

I use with my kids is to get them to nibble on saltine crackers. The baking

soda in them seem to help settle the stomach. Whenever I have sick kids I

push the liquids, I know they are throwing up but some of the water absorbs

as they are drinking it. I hope you little one gets better.

June 4, 2001

hai Eileen,

Thanyou for givingme reply. My son is 3 years old.

Andwe are living in India in a place where dtt is not

available. But we are taking councilling from our

peadiatrist every week and following her instructions.

But I cam eto know that if I can get dtt software then

i can manage it myself and can give intervention of 40

hours per week.he is not that much hyperacttive and

got only slight autism, hence our doctor suggested

that with minimum intervention he will become normal.

We are sending him to normal school. Is there any

problem with this. Just he will become socialised I

think. This is about my son. We started gfcf diet and

found a change. BUt is sugar also must be restricted.

If so please reply me as soon as possible.

bye

swapna

--- Eileen Siple <eileen266@...> wrote:

> I'm not sure where to begin. First of all, how old

> is your son and where do

> you live? The first thing probably is to get him

> identified by the school

> system, if you have not already done that. The

> school may offer a DTT

> program. If not, check with colleges and other

> private school programs to

> see if you can find one in your area.

>

> DTT usually involves 1:1 sessions with the child for

> about 40 hours a week.

> Tasks are learned through repetition, after having

> been broken into very

> small parts. Parents often use college students to

> do much of the teaching,

> but each staff person must be trained in the

> program. Parents can also do

> much of the teaching.

>

> This link should help to answer some of your

> questions.

>

> > http://www.isn.net/~jypsy/aba.htm

>

> ----------

> >From: veldanda swapna <swapna_vs@...>

> >

> >Subject: Re: (unknown)

> >Date: Wed, May 30, 2001, 10:37 AM

> >

>

> > hello Eileen,

> > thanks a lot for giving me the best information.

> But

> > please tell me how cani proceed with DTT. And

> where

> > can I get the information, and software if

> required.

> > Please give the website name.

> > Thankyou,

> > swapna

> > --- Eileen Siple <eileen266@...> wrote:

> >> If your child is young, I would recommend looking

> >> into a discrete trial

> >> training program. I probably would look if he is

> >> older too, but the best

> >> success with DTT is with young children. DTT is

> the

> >> only behavior program

> >> that has scientific data to back up its results.

> >> Schools will often try to

> >> steer you in the direction of TEACCH, which, in

> my

> >> opinion, is not nearly as

> >> effective, but much more cost effective. I have

> >> been very impressed with

> >> some incidental teaching programs I have

> observed,

> >> and although there is not

> >> much scientific data to back up their rate of

> >> success, I am sure they will

> >> do very well once the data is compiled. I am a

> >> teacher of children who have

> >> the dual diagnosis of autism and blindness, and a

> >> foster parent of a boy who

> >> is blind and has autistic-like symptoms,

> secondary

> >> to cerebral malaria. I

> >> have found DTT to be a much more effective way to

> >> go, but it takes a lot of

> >> commitment from the family and the school system.

> >>

> >> My other advice is to not let the school bully

> you

> >> into going along with

> >> whatever program they have in place. They are

> >> legally required to develop a

> >> program for each individual child.

> Unfortunately,

> >> schools very often try to

> >> save money and take the easy way out, even if

> that

> >> means overriding the

> >> parent. If they refuse to go along with DTT,

> don't

> >> lose heart though. Most

> >> research shows that comprehensive early

> >> intervention, whatever the approach,

> >> is the key. In other words, 40 hours of direct

> >> therapy, using almost any

> >> approach, is going to yield results, as long as

> the

> >> approach is consistent.

> >>

> >> From: " The Kramer Family " <nmkramer@...>

> >> Reply-

> >> Date: Sun, 20 May 2001 06:26:40 -0500

> >> < >

> >> Subject: Re: (unknown)

> >>

> >> Hi Swapna,

> >>

> >> I hope someone else can help with this, since I

> >> don't know much about the

> >> behavioral interventions. But I do know of a

> couple

> >> of sites that probably

> >> discuss these:

> >> o Autism Research Institute (ARI) ,

> >> www.autism.com/ari ARI is a non-profit

> >> organization established in 1967 by Dr. Bernard

> >> Rimland to conducting

> >> research

> >> on the causes of autism and on methods of

> >> preventing, diagnosing and

> >> treating

> >> autism and other severe behavioral disorders of

> >> childhood. Autism ATEC

> >> scoring

> >> form. Many nutrition-oriented articles. DAN!

> doctor

> >> list. Conference tapes.

> >> Newsletter. Extensive links.

> >> o Center for the Study of Autism , www.autism.org

> >> Dr. M. Edelson.

> >> Many

> >> articles on related disorders, therapeutic and

> >> nutritional interventions,

> >> and

> >> social issues. Exclusive interviews. Extensive

> >> links.

> >> o Oops... Wrong Planet! Syndrome,

> >> www.isn.net/~jypsy/ Parent maintained

> >> site.

> >> Book list. Many articles, links.

> >> o Beyond Autism, http://trainland.tripod.com

> Parent

> >> maintained site. Many

> >> articles, links. Many autism WebRing links.

> >>

> >> If somebody else has ideas, please post them -

> I'm

> >> no expert on this

> >> subject.

> >>

> >> I was surprised to learn that the blood tests

> were

> >> all normal. That's

> >> usually

> >> not the case!

> >>

> >> Good luck, K.

> >>

> >> | I am very thankful to you for sending the

> >> | information which is very useful for me.

> ACtually

> >> I am

> >> | from India and till now we could not findout

> the

> >> right

> >> | dcotor for our kid, and we feel the information

> >> | provided in websites is so useful. We conducted

> >> all

> >> | blood tests for our kid and everything is

> >> normal.how

> >> | can we start intervention programs. can u

> please

> >> | suggest some behaviour intervention programs,

> or

> >> | clues, they wil be very useful for me.

> >>

> >> Responsibility for the content of this message

> lies

> >> strictly with

> >> the original author, and is not necessarily

> endorsed

> >> by or the

> >> opinion of the Research Institute.

> >>

June 5, 2001

Hi Merry and welcome to our goup! I think you will like it a lot and find a lot of supportive friends here. I'd love to see some pictures of your kids, and I'm sure others would as well. Do you have any you'd like to share? I'm not familiar with your daughters condition, "neonatal abstinence syndrome"

can you share any information about that? I look forward to hearing more about your family.

Casey, mom to (DS) and , 19mo.

June 5, 2001

I'm not to good at aeding pictures, but I do have a

link somewhere to some pictures that I will try to

find. My daughter was born drug addicted...Merry

--- stephaniesmom200@... wrote:

> Hi Merry and welcome to our goup! I think you will

> like it a lot and find a

> lot of supportive friends here. I'd love to see

> some pictures of your kids,

> and I'm sure others would as well. Do you have any

> you'd like to share? I'm

> not familiar with your daughters condition,

> " neonatal abstinence syndrome "

> can you share any information about that? I look

> forward to hearing more

> about your family.

>

> Casey, mom to (DS) and , 19mo.

>

=====

and Merry Low, Proud parents of 9 (Down syndrome,Leukemia in

remission,congenital heart defect,congestive heart failure,chronic lung disease,

asthma,tube fed,etc,; Kate 7 (neonatal abstinence syndrome, ADHD); Jaykob 5

(Down syndrome)

_______________________________________________________

June 5, 2001

Hiya Merry! Welcome to the " family " ! I look forward to hearing more about

you and your family!! I hope you enjoy it here!

I'm Sara. 21year old pre-med student in Buffalo NY. Engaged to Aref (PhD

student at Buffalo) and no kids.. YET! ) I am the list owner, so if you

have any tech questions or anything.. shoot them on over here! I am working

for an adoption agency in Buffalo this Summer and loving the experience...

have any adoption stories you want to share? I love to hear them!

Welcome, again!

Sara

www.DSyndrome.com

--On Tuesday, June 05, 2001, 1:23 PM -0400 Merry Low

<lowco_canada@...> wrote:

> Hi my name is Merry and I have 2 boys with DS and a

> daughter as well. All my children are adopted.

>

> =====

> and Merry Low, Proud parents of 9 (Down syndrome,Leukemia in

> remission,congenital heart defect,congestive heart failure,chronic lung

> disease, asthma,tube fed,etc,; Kate 7 (neonatal abstinence syndrome,

> ADHD); Jaykob 5 (Down syndrome)

>

> _______________________________________________________

>

June 5, 2001

Hi Merry! Welcome to the list! I'm Judi, mom to Sam

and , 4 year old identical twins w/DS. So glad

you found us. Look forward to hearing more about your

family.

Judi

__________________________________________________

June 5, 2001

Hi Merry! Welcome!!

I'm wife to Dennis, mom to TJ 17, twins Rudy (ds) & 14 and

step to Misty 24 & 23. We live in North Texas. Lots of great people

here! Full of warmth, info, hugs, and support.

Cant wait to hear more about you and the kiddos.

June 5, 2001

Hi Judy and All,

Thanks for the welcome. My family started in 1992

when my husband and I adopted , we new he had DS

and also a congenital heart defect. He had closed

heart surgery at 6 months and open heart surgery at 20

months. Life then seemed rosey and we adopted Kate in

1995 she was 17 months old at the time so we were in

for a lot of fun. Everything continued smoothly and

in 1996 we adopted Jayk he was 6 months old. We

thought all was Jolly and then 3 months after we got

Jayk, Josh was diagnosed with leukemia. We had about

4 horrendous years where Josh's life was continually

on the brink. Finally he is in remission and of

treatment and life is beginning to return to

normal..............Merry

--- Judi Grossman <judig2@...> wrote:

<HR>

<tt>

Hi Merry! Welcome to the list! & nbsp; I'm Judi, mom to

Sam

and , 4 year old identical twins w/DS. & nbsp; So

glad

you found us. & nbsp; Look forward to hearing more about

your

family.

Judi

__________________________________________________

June 6, 2001

HI ,

Glad to see someone with a DS child older than mine so

I'll have a been there done that freind. Is your son

in a mainstream classroom or alternate

program?...........Merry

--- lesfevr21@... wrote:

<HR>

<tt>

Hi Merry! & nbsp; Welcome!!

I'm wife to Dennis, mom to TJ 17, twins Rudy

(ds) & amp; 14 and

step to Misty 24 & amp; 23. & nbsp; We live in

North Texas. & nbsp; Lots of great people

here! & nbsp; Full of warmth, info, hugs, and

support.

Cant wait to hear more about you and the kiddos.

</tt>

<td align=center><font size= " -1 "

color=#003399>

June 6, 2001

Mabel, Thanks for the welcome. So there are two of

you on here that have triplets with one of the three

having DS. You must really notice the difference in

dev. when you see the three together. My three

children are close together three children 92,93, &

95; I find it hard to imagine though having three the

same age. Wishing you all the best ....Merry

--- Mabel Aixa <mafalda03@...> wrote:

<HR>

<tt>

Hello Merry,

& nbsp; & nbsp; Welcome to the list, a great place to

find support, answers and a lot of

love and caring people. My name is Mabel Comas mom to

a 26 months old

triplets, Carolina, Cristian and a-ds. a

never had heart

problems and so far no health problems. A month and a

half ago she started

walking and is really a bless seen her walking all the

time. She looks so

cute. I saw the picture of your son , he is so

handsome. That was a

nice picture. Lokking forward to hear more from you

all.

Mabel, mom to Carolina, Cristian and a-ds (26

months old)

& gt;From: Merry Low & lt;lowco_canada@... & gt;

& gt;Reply-Multiples-DS

& gt;Multiples-DS

& gt;Subject: (unknown)

& gt;Date: Tue, 5 Jun 2001 13:23:46 -0400 (EDT)

& gt;

& gt;Hi my name is Merry and I have 2 boys with DS and

a

& gt;daughter as well. & nbsp; All my children are

adopted.

& gt;

& gt;=====

& gt; and Merry Low, Proud parents of 9

(Down syndrome,Leukemia in

& gt;remission,congenital heart defect,congestive heart

failure,chronic lung

& gt;disease, asthma,tube fed,etc,; Kate 7 (neonatal

abstinence syndrome, ADHD);

& gt;Jaykob 5 (Down syndrome)

& gt;

& gt;_______________________________________________________

& gt;

June 6, 2001

Hi Merry -

Rudy is classified as a ninth grader (2nd yr) in high school and is in a

living skills class. He isnt very strong at all in any academics so, for

him, its the best situation. He will be in a modified art class next year,

which we are thrilled about. He is very artistic so hopefully this will

expand his horizons. He is in special olympics and loves it. Very social

kid!! lol Adores the women!!! Must be those raging hormones! Puberty has

not been an easy thing but we are making it thru and seem to have hit a happy

medium now. Unfortunately (I know that sounds bad but...) he and his sister

are going to see their dad for a month and I'm worried our hard work will be

regressed but gotta do what they tell me. Sorry I'm rambling! lol If you

have any questions, just shoot. I also belong to another list for parents of

teens that you might be interested in. The posting address is:

DS_Teens_Plus There arent a whole lot of parents with sons

so though I love them all and have gotten great advice, its still nice to

talk with someone who has a son close to Rudys age.

Hugs

June 6, 2001

Merry,

It hasn't been easy, now they are 26 months and a is walking, is

never easy but at least they all are walking and if we go out all I have to

do is open the door and let them go to the van and they go to their car

seats and all I have to do is put the straps. The other day I ordered

chinesse food and went to pick it up, we park the van close to the place and

I told them we are going to hold hands and walk to the restaurant, they did

exactly what I said, they looked so cute. Everything with them is getting

easy, feeding, bathing them, getting them dress,. In my neighborhood there

is a lake and the other day we went on a picnic, I grab my basket and put

some stuff in there put the kids in their wagon and went there, we found a

nice area with lots of trees we sat down there for half and hour and ate and

they were asking so many questions, then we played for a while in the

playground, they had a lot of fun. For been in the terribles twos they are

good kids. The other day I was watching the kids playing in the front of the

house and we have new neighbors and they came to meet us and they have a one

year old girl, she was sticking her tongue out to Carolina and Carolina did

the same to her. I didn't like what I saw but at least I know Carolina won't

allow nobody to mess with her. I don't know is that is good or bad. All I

can say I have a lot of fun with them and never gets tire of been around

them. Been a mom to triplets is good, I really love it. And I believe to

been raising my kids on my own Iam doing a good job.

Mabel, mom to Carolina, Cristian and a-ds (26 months)

>From: Merry Low <lowco_canada@...>

>Reply-Multiples-DS

>Multiples-DS

>Subject: Re: (unknown)

>Date: Wed, 6 Jun 2001 12:07:19 -0400 (EDT)

>

>Mabel, Thanks for the welcome. So there are two of

>you on here that have triplets with one of the three

>having DS. You must really notice the difference in

>dev. when you see the three together. My three

>children are close together three children 92,93, &

>95; I find it hard to imagine though having three the

>same age. Wishing you all the best ....Merry

>--- Mabel Aixa <mafalda03@...> wrote:

>

><HR>

><html><body>

><tt>

>Hello Merry,

>

> & nbsp; & nbsp; Welcome to the list, a great place to

>find support, answers and a lot of

>love and caring people. My name is Mabel Comas mom to

>a 26 months old

>triplets, Carolina, Cristian and a-ds. a

>never had heart

>problems and so far no health problems. A month and a

>half ago she started

>walking and is really a bless seen her walking all the

>time. She looks so

>cute. I saw the picture of your son , he is so

>handsome. That was a

>nice picture. Lokking forward to hear more from you

>all.

>

>Mabel, mom to Carolina, Cristian and a-ds (26

>months old)

>

> & gt;From: Merry Low & lt;lowco_canada@... & gt;

> & gt;Reply-Multiples-DS

> & gt;Multiples-DS

> & gt;Subject: (unknown)

> & gt;Date: Tue, 5 Jun 2001 13:23:46 -0400 (EDT)

> & gt;

> & gt;Hi my name is Merry and I have 2 boys with DS and

>a

> & gt;daughter as well. & nbsp; All my children are

>adopted.

> & gt;

> & gt;=====

> & gt; and Merry Low, Proud parents of 9

>(Down syndrome,Leukemia in

> & gt;remission,congenital heart defect,congestive heart

>failure,chronic lung

> & gt;disease, asthma,tube fed,etc,; Kate 7 (neonatal

>abstinence syndrome, ADHD);

> & gt;Jaykob 5 (Down syndrome)

> & gt;

> & gt;_______________________________________________________

> & gt;

June 7, 2001

Hi Merry,

Welcome to our group. I am Marcia, Mom to Sara, who has Down Syndrome and

who does not. They were born in November of 94 and are 6. Our other

son is Lucas and he is 10.

I just returned from San Diego, where one of my sisters ran the San Diego

Marathon. Her mission was to raise money for the leukemia society, as her

daughter, Lynn, who is now 9, was diagnosed with leukemia when she was 5.

She, too, is in remission. Nearly half of the 22,000 runners were raising

money for leukemia research, so millions of dollars were raised. It was

awesome! I understand a little of what you must have been through with Josh.

Thank heavens, he is in remission.

I look forward to hearing more about you and your family.

Marcia

Mom to Sara (DS) and 6 and Lucas 10

June 7, 2001

Mabel, from your message I can tell you must be very

organized to get all that done. They are still little

enough to like having playmates all the time. My kids

are at the age where they argue a lot because somebody

is always anoying somebody else. If the worst your

daughter has done is poke her tongue out at someone I

think your doing okay, besides at her age it is more

of an I can do it to thing not a Nasty thing. I

usually have a very busy house because on top of mine

I have three daycare kids; so I usually have 6 kids

from 20months to 9years running around here. And 5

out of the 6 have special or behavioural needs, and

that only leaves the baby and his mom has just left an

abusive husband so he is a bit confused....Merry

--- Mabel Aixa <mafalda03@...> wrote:

<HR>

<tt>

Merry,

& nbsp; It hasn't been easy, now they are 26 months and

a is walking, is

never easy but at least they all are walking and if we

go out all I have to

do is open the door and let them go to the van and

they go to their car

seats and all I have to do is put the straps. The

other day I ordered

chinesse food and went to pick it up, we park the van

close to the place and

I told them we are going to hold hands and walk to the

restaurant, they did

exactly what I said, they looked so cute. Everything

with them is getting

easy, feeding, bathing them, getting them dress,. In

my neighborhood there

is a lake and the other day we went on a picnic, I

grab my basket and put

some stuff in there put the kids in their wagon and

went there, we found a

nice area with lots of trees we sat down there for

half and hour and ate and

they were asking so many questions, then we played for

a while in the

playground, they had a lot of fun. For been in the

terribles twos they are

good kids. The other day I was watching the kids

playing in the front of the

house and we have new neighbors and they came to meet

us and they have a one

year old girl, she was sticking her tongue out to

Carolina and Carolina did

the same to her. I didn't like what I saw but at least

I know Carolina won't

allow nobody to mess with her. I don't know is that is

good or bad. All I

can say I have a lot of fun with them and never gets

tire of been around

them. Been a mom to triplets is good, I really love

it. And I believe to

been raising my kids on my own Iam doing a good

job.

Mabel, mom to Carolina, Cristian and a-ds (26

months)

& gt;From: Merry Low & lt;lowco_canada@... & gt;

& gt;Reply-Multiples-DS

& gt;Multiples-DS

& gt;Subject: Re: (unknown)

& gt;Date: Wed, 6 Jun 2001 12:07:19 -0400 (EDT)

& gt;

& gt;Mabel, Thanks for the welcome. & nbsp; So there are

two of

& gt;you on here that have triplets with one of the

three

& gt;having DS. & nbsp; You must really notice the

difference in

& gt;dev. when you see the three together. & nbsp; My

three

& gt;children are close together three children 92,93,

& amp;

& gt;95; I find it hard to imagine though having three

the

& gt;same age. & nbsp; Wishing you all the best

.....Merry

& gt;--- Mabel Aixa & lt;mafalda03@... & gt;

wrote:

& gt;

& gt; & lt;HR & gt;

& gt; & lt;html & gt; & lt;body & gt;

& gt; & lt;tt & gt;

& gt;Hello Merry, & lt;BR & gt;

& gt; & lt;BR & gt;

& gt; & amp;nbsp; & amp;nbsp; Welcome to the list, a great

place to

& gt;find support, answers and a lot of & lt;BR & gt;

& gt;love and caring people. My name is Mabel Comas mom

to

& gt;a 26 months old & lt;BR & gt;

& gt;triplets, Carolina, Cristian and a-ds.

a

& gt;never had heart & lt;BR & gt;

& gt;problems and so far no health problems. A month

and a

& gt;half ago she started & lt;BR & gt;

& gt;walking and is really a bless seen her walking all

the

& gt;time. She looks so & lt;BR & gt;

& gt;cute. I saw the picture of your son , he is

so

& gt;handsome. That was a & lt;BR & gt;

& gt;nice picture. Lokking forward to hear more from

you

& gt;all. & lt;BR & gt;

& gt; & lt;BR & gt;

& gt;Mabel, mom to Carolina, Cristian and a-ds

(26

& gt;months old) & lt;BR & gt;

& gt; & lt;BR & gt;

& gt; & amp;gt;From: Merry Low

& amp;lt;lowco_canada@... & amp;gt; & lt;BR & gt;

& gt; & amp;gt;Reply-To:

Multiples-DS & lt;BR & gt;

& gt; & amp;gt;To:

Multiples-DS & lt;BR & gt;

& gt; & amp;gt;Subject:

(unknown) & lt;BR & gt;

& gt; & amp;gt;Date: Tue, 5 Jun 2001 13:23:46 -0400

(EDT) & lt;BR & gt;

& gt; & amp;gt; & lt;BR & gt;

& gt; & amp;gt;Hi my name is Merry and I have 2 boys with

DS and

& gt;a & lt;BR & gt;

& gt; & amp;gt;daughter as well. & amp;nbsp; All my

children are

& gt;adopted. & lt;BR & gt;

& gt; & amp;gt; & lt;BR & gt;

& gt; & amp;gt;===== & lt;BR & gt;

& gt; & amp;gt; and Merry Low, Proud parents of

9

& gt;(Down syndrome,Leukemia in & lt;BR & gt;

& gt; & amp;gt;remission,congenital heart

defect,congestive heart

& gt;failure,chronic lung & lt;BR & gt;

& gt; & amp;gt;disease, asthma,tube fed,etc,; Kate 7

(neonatal

& gt;abstinence syndrome, ADHD); & lt;BR & gt;

& gt; & amp;gt;Jaykob 5 (Down syndrome) & lt;BR & gt;

& gt; & amp;gt; & lt;BR & gt;

& gt; & amp;gt;_______________________________________________________ & lt;BR & gt;<BR\

>

& gt; & amp;gt;

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