Re: (unknown)

April 4, 2008

More on mercury. Make sure that you don't dispose of your energy

saving fluorescent light globes by putting them in your weekly rubbish

collection. If you accidentally smash an energy saving light globe,

call your local EPA office or council for advice or have a look at the

site that Sheila suggested or the one that I previously posted (the US

EPA). The energy saving light globes contain mercury and I can see

that mercury contamination of landfill is going to be a major issue in

the future. Mark my words! Everyone thinks they are being 'green' by

using them and saving power, however they are a looming environmental

problem just waiting to happen.

April 4, 2008

>

> Have you considered that all your problems just might be caused by

mercury poisoning http://www.mercurymadness.org/

>

Very interested in your history Dawn and the site Sheila. My Mother

was a dental surgeon and her first baby was deformed and died. Both

my sister and I who came along later have had back operations, I have

had two. One case history talks about back surgery and mercury

poisoning. My Mother had no protection from mercury - I remember her

mixing the amalgams and mercury spilling onto the floor in the

surgery. Also when the first Keri was conceived she had no protection

from x rays either .... I had my fillings replaced in 2005.

luv Keri

April 9, 2008

Dear Anne,

I'm so glad that you were finally diagnosed correctly and I'm so pleased

that it was tv that helped with that diagnosis. For the folks who have been

writing to the various news/medical drama/talk shows to get segments on stills

produced, (I'm sorry - I just have too much on my plate these days), you may

want to mention Anne in your letters and the relief she indicated in finally

getting a proper diagnosis.

I've been fortunate enough to have had 2 really terrific rhuemy's (several

bad ones that I had queasy feelings about and dropped pretty quickly - I've

learned to trust that gut feeling sometimes). The first one was when I lived in

Orlando and I continued to see her even after I moved 4 hours away as I

heard the awful doctor stories on this loop. She was very professional, but

rather difficult to get to open up. Al and I get really goofy at the doctors

and

little by little she started to open up and make jokes occasionally and by

the end of our relationship, I was crying to have to leave her.

On a regular basis, I would ask about symptoms that she had never heard of

but would be rather common on stilligan's island. She was always honest and

would say she just didn't know. One time I complained about something or

another, don't even remember anymore. She looked at me in dead seriousness, and

acting like she really knew the answer to my latest symptom, said, " well

Carole, I just read a study on that and they indicated that the best treatment

would be a lobotomy! " . It took a second to register and we all laughed like

crazy, and she was so proud to have made us laugh as we always were making her

laugh.

Guess it was all in my head!

Carole in Hollywood FL

In a message dated 4/8/2008 4:53:15 P.M. Eastern Daylight Time,

annebettencourt@... writes:

Hi everyone, I'm new to the group. My name is Anne; I'm a 58 year old mom

and grandma. I first heard of Stills on an episode of Mystery Diagnosis on

Discovery Health.

Edited By Moderator

April 13, 2008

Hi Robin,

You do not mention what you do for

exercise. My suggestion would be to get with a personal trainer. I started

seeing a person trainer in January and 3 months later I have lost 38lbs and 38

inches. It has been worth every penny. Even if you do not work out with one

weekly just to go every few weeks and have them get on track will be worth

while. Diet wise I would check how many carbs you are eating and what kind and

of course to make sure you are getting enough protein. The website www.thedailyplate.com is a wonderful

tool to track your food intake as well as your exercise.

Hope that helps.

Nadine

DOB 3/24/07

372(346)/246/size 6

From: [mailto: ] On Behalf Of Robin Sohler

Sent: Sunday, April 13, 2008 12:35

PM

Subject:

(unknown)

Hello,

I am interested in getting some information on what a person should do

once they have hit a plateau. I am filled as much as I can be filled so I

can't get another fill. I lost 30 lbs and have stopped. I am a

diabetic and inject insulin 4 times a day and I am on alot of med.s.

Lately my Dr. took me off some meds for my diabetus that I took by mouth and

now I need more insulin. I am looking for a diet that will kick

start my Weight lose again. Any suggestions. I have 50lbs to go and

I need to get it off this year as I have to have a complete knee surgery next

spring. I would appreciate any suggestions.

Thank You,

Robin

__________________________________________________

April 13, 2008

Hi Robin, Have you used any online tracking program? In addition to the band, I use thedailyplate.com. I paid the (small) fee to get the whole works and I LOVE it. You enter your weight, your goal weight and how fast you want to lose the weight. Then, you enter every bite you take. It takes discipline and honesty with yourself. You can enter exercise, as well. I don't enter it, but I try to walk most days. If you stay around 60 grams of protein per day, stay away from white carbs, try to take in 64 oz per water, and stay within the guidelines, it will work for you. It's kind of fun, visual, and very informative. My daughter is using it w/out a band, and she is finding it very helpful as well. Hope this was helpful. Robin Sohler <rbnsohlercalif@...>

wrote: Hello, I am interested in getting some information on what a person should do once they have hit a plateau. I am filled as much as I can be filled so I can't get another fill. I lost 30 lbs and have stopped. I am a diabetic and inject insulin 4 times a day and I am on alot of med.s. Lately my Dr. took me off some meds for my diabetus that I took by mouth and now I need more insulin. I am looking for a diet that will kick start my Weight lose again. Any suggestions. I have

50lbs to go and I need to get it off this year as I have to have a complete knee surgery next spring. I would appreciate any suggestions. Thank You, Robin __________________________________________________

April 14, 2008

HI My husband is on Provigil he has sleep apnea and he falls asleep like a person with Narcolepsy. It is used for narcolepsy patients. I was told it was a upper to make you stay awake all day then go to sleep at night. He does not have fibro. I do. the provigil website will explain about it more. One pill is about $22.00 a piece most insurances will NOT cover it. I do know be very careful with that. When they started my husband out with it they did samples and when he ran out while waiting for insurance approval he was literally out (sleeping) all the time. which is very serious. I am shocked on how much control this drug had on him. He is 6'5 330lbs andd on 200mg. Be careful

Lots of Love from a Fibro Friend

(unknown)

Has anyone out there heard of Provigil? My dr gave me a prescription for it but I don't know anything about it. Thanks all you wonderful ladies out there if "fibroland" ha ha! It is good to laugh because as the scripture says "laughter does good like a medicine". Any info would help. Shirley Godbout

April 14, 2008

Hello , I have been working out about 4 times a week and I try to walk on the days off excersize. I have been away from Oregon for 6 months now and been eating out with friends. I don't eat much because my fill keeps me limited. I am a diabetic and inject insulin 4 times a day. I have only lost 30 lbs and I had surgery in Jan of 07. The first 30 came off very easy and I have been stopped at this point for over a year. I will go to what you suggested and start keeping track of what I eat. I can't eat much so, I must be eating the wrong thing. Have you lost everything you needed to lose? I still need to lose another 50 lbs and I will do it this year. I know it will come off. I do have a belly flap that just doesn't seem to go away. Is there something I can do about that? Thanks . G'Day, Robin Payette <c_bergle@...> wrote: Hi Robin, Have you used any online tracking program? In addition to the band, I use thedailyplate.com. I paid the (small) fee to get the whole works and I LOVE it. You enter your weight, your goal weight and how fast you want to lose the weight. Then, you enter every bite you take. It takes discipline and honesty with yourself. You can enter exercise, as well. I don't enter it, but I try to walk

most days. If you stay around 60 grams of protein per day, stay away from white carbs, try to take in 64 oz per water, and stay within the guidelines, it will work for you. It's kind of fun, visual, and very informative. My daughter is using it w/out a band, and she is finding it very helpful as well. Hope this was helpful. Robin Sohler <rbnsohlercalif > wrote: Hello, I am interested in getting some information on what a person should do once they have hit a plateau. I am filled as much as I can be filled so I can't get another fill. I lost 30 lbs and have stopped. I am a diabetic and inject insulin 4 times a day and I am on alot of med.s. Lately my Dr. took me off

some meds for my diabetus that I took by mouth and now I need more insulin. I am looking for a diet that will kick start my Weight lose again. Any suggestions. I have 50lbs to go and I need to get it off this year as I have to have a complete knee surgery next spring. I would appreciate any suggestions. Thank You, Robin __________________________________________________

April 14, 2008

It's been one of those days! Yes, Shirley is a medication used in narcolepsy. I know several FMS and CFS friends who have been on it and it has helped them to have a little more energy during the day, and more restful sleep at night. A lot of the time insurance will not pay for it, unless you have a diagnosis of narcolepsy. Sandie -- (unknown) Has anyone out there heard of Provigil? My dr gave me a prescription for it but I don't know anything about it. Thanks all you wonderful ladies out there if "fibroland" ha ha! It is good to laugh because as the scripture says "laughter does good like a medicine". Any info would help. Shirley Godbout Letter created by Graphics are snagged.

April 23, 2008

Ingrid I highly recommend 2 books both by Rosner. Use the tinyurl

links if the others don't go through.

http://tinyurl.com/3h86fv

http://www.amazon.com/Top-Lyme-Disease-Treatments-Conventional/dp/0976379716

/ref=pd_bbs_sr_1?ie=UTF8

<http://www.amazon.com/Top-Lyme-Disease-Treatments-Conventional/dp/097637971

6/ref=pd_bbs_sr_1?ie=UTF8 & s=books & qid=1208980493 & sr=8-1>

& s=books & qid=1208980493 & sr=8-1

http://www.amazon.com/2008-Lyme-Disease-Annual-Report/dp/0976379724/ref=pd_b

bs_sr_3?ie=UTF8

<http://www.amazon.com/2008-Lyme-Disease-Annual-Report/dp/0976379724/ref=pd_

bbs_sr_3?ie=UTF8 & s=books & qid=1208980493 & sr=8-3>

& s=books & qid=1208980493 & sr=8-3

http://tinyurl.com/484x7p

> [ ] (unknown)

>

> Hello,

> My name is Ingrid and I was diagnosed with Lyme

> November 2007. I live in Alaska but I'm originally

> from Andover, MA. I could not get a diagnosis for my

> illness in AK so I had to fly to the eastcoast for

> medical treatment. My diagnosis came from the lyme

> test at Igenex Labs. My sister has Lyme, a does my mom

> and two nephews. It was my sister who basically

> diagnosed me from my symptoms and told me about the

> Igenex test. The doctors in AK. diagnosed me with

> anxiety disorders and told me the symptoms were in my

> head. I saw Dr. Sam Donta in Boston last December and

> I'm currently under his care. I'm taking tetracycline

> (1000 mg per day) and I most definitely feel better. I

> remember being bit by a tick as a teen and getting

> very sick, however, I received no treatment and the

> bacteria must have went dormant until I was 41 and

> then it reemerged. I'm just looking to find out more

> about this condition and information about how to

> better manage it.

> Thanks,

> Ingrid

>

April 23, 2008

Congrats on getting properly diagnosed; though this is one of the worst type of

diseases to have to deal with. You probably have " chronic Lyme " since you have

gone so long without proper treatment. I'm glad to hear that you are starting to

feel better. I was finally diagnosed with not only Lyme, but also one of the

co-infections called Babesia. Did you have any of the co-infection tests done as

well? It may be a good idea to bring up to your LLMD (Lyme Literate Medical

Doctor) because Babesia has to be treated or treatment for such much begin

before start before the actual Lyme to be effective. As my LLMD explained to me,

if we didn't start treatment for the Babesia first, it would be like knownly

fighting a losing battle because both Lyme and Babesia contribute to immune

deficiencies and if we started the Lyme treatment before the Babesia treatment,

I would end up even sicker. I was on oral Docylcycline 1200mg per day as well as

600mg Azithromycin and Malarone for the first 6 months. I started to feel better

and then I became very ill with an opportunistic infection of unknown origin,

which made my Babesia and Lyme relapse. I'm now having to receive IV Rocephin

every day at the outpatient IV therapy unit of the hospital. I live in FL, my

LLMD is in LA, and I got bit in 2006 in TN. My LLMD told me that sometimes, even

after a patient reaches " remission " , any traumatic or opportunistic infection

can send us back to square one because such trauma whether it be physical or

emotional, can lower one's natural defenses and that gives the Lyme bacteria the

opportunity to " over-take " the body again. I'mglad that you had knowledgable and

caring relatives to direct you to getting properly tested by IGenex and

diagnosed. Here are some websites to check out for further information.

www.lymediseaseassociation.org

www.turnthecorner.org

www.ilads.org

www.jemsekclinic.com

www.lymenet.com

I hope these sites help you. Self education is one of the best weapons you can

use when fighting Lyme. Good luck to you and feel free to email me directly if

you like at speedybak@...

Your Lyme Buddy,

Barb

-

> Hello,

> My name is Ingrid and I was diagnosed with Lyme

> November 2007. I live in Alaska but I'm originally

> from Andover, MA. I could not get a diagnosis for my

> illness in AK so I had to fly to the eastcoast for

> medical treatment. My diagnosis came from the lyme

> test at Igenex Labs. My sister has Lyme, a does my mom

> and two nephews. It was my sister who basically

> diagnosed me from my symptoms and told me about the

> Igenex test. The doctors in AK. diagnosed me with

> anxiety disorders and told me the symptoms were in my

> head. I saw Dr. Sam Donta in Boston last December and

> I'm currently under his care. I'm taking tetracycline

> (1000 mg per day) and I most definitely feel better. I

> remember being bit by a tick as a teen and getting

> very sick, however, I received no treatment and the

> bacteria must have went dormant until I was 41 and

> then it reemerged. I'm just looking to find out more

> about this condition and information about how to

> better manage it.

> Thanks,

> Ingrid

April 24, 2008

Hi Tenisha,

Are you leaving on? Does on not have an option for you?

________________________________

From: on behalf of tenisha tavares

Sent: Thu 4/24/2008 3:12 PM

Subject: (unknown)

Hello Everyone,

My name is Tenisha Miles, I'm a registered dietitian,

I work for on Management, in a hospital in Canon

City Colorado. I spend most of my time with the

bariatric population. I have been working with these

patients since 2003. I found out about this web group

through Today's Dietitian and was happy to know I had

a place to go for questions, to share my knowlodge,

and meet others in this field.

I'm in the process of moving to Denver and looking to

continue working with this population if anyone knows

of a job in that area, please let me know.

Thanks

Tenisha Miles

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

<http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ>

DISCLAIMER Important! This message is intended for the above named person(s)

only and is CONFIDENTIAL AND PROPRIETARY. If you are not the intended recipient

of this e-mail and have received it in error, please immediately notify the

sender by return email and then delete it from your mailbox. This message may be

protected by the attorney-client privilege and/or work product doctrine.

Accessing, copying, disseminating or re-using any of the information contained

in this e-mail by anyone other than the intended recipient is strictly

prohibited. Finally, you should check this email and any attachments for the

presence of viruses, as the sender accepts no liability for any damage caused by

any virus transmitted by this email. Thank you.

April 24, 2008

Yes I'm leaving on, they do not have any

openings in Denver, if we wanted to move to another

state they could help me.

Tenisha

--- " Warner, " <Warner@...>

wrote:

> Hi Tenisha,

> Are you leaving on? Does on not have

> an option for you?

>

> ________________________________

>

> From:

> on behalf of tenisha tavares

> Sent: Thu 4/24/2008 3:12 PM

>

> Subject: (unknown)

>

> Hello Everyone,

> My name is Tenisha Miles, I'm a registered

> dietitian,

> I work for on Management, in a hospital in

> Canon

> City Colorado. I spend most of my time with the

> bariatric population. I have been working with these

> patients since 2003. I found out about this web

> group

> through Today's Dietitian and was happy to know I

> had

> a place to go for questions, to share my knowlodge,

> and meet others in this field.

> I'm in the process of moving to Denver and looking

> to

> continue working with this population if anyone

> knows

> of a job in that area, please let me know.

> Thanks

> Tenisha Miles

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

<http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ>

>

> DISCLAIMER Important! This message is intended for

> the above named person(s) only and is CONFIDENTIAL

> AND PROPRIETARY. If you are not the intended

> recipient of this e-mail and have received it in

> error, please immediately notify the sender by

> return email and then delete it from your mailbox.

> This message may be protected by the attorney-client

> privilege and/or work product doctrine. Accessing,

> copying, disseminating or re-using any of the

> information contained in this e-mail by anyone other

> than the intended recipient is strictly prohibited.

> Finally, you should check this email and any

> attachments for the presence of viruses, as the

> sender accepts no liability for any damage caused by

> any virus transmitted by this email. Thank you.

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

April 24, 2008

I have a contact in the Denver area with another company. I'll make some calls

and see what I can find. When are you moving?

________________________________

From: on behalf of tenisha tavares

Sent: Thu 4/24/2008 5:15 PM

Subject: RE: (unknown)

Yes I'm leaving on, they do not have any

openings in Denver, if we wanted to move to another

state they could help me.

Tenisha

--- " Warner, " <Warner@...

<mailto:Warner%40IAmon.com> >

wrote:

> Hi Tenisha,

> Are you leaving on? Does on not have

> an option for you?

>

> ________________________________

>

> From:

<mailto:%40>

> on behalf of tenisha tavares

> Sent: Thu 4/24/2008 3:12 PM

>

<mailto:%40>

> Subject: (unknown)

>

> Hello Everyone,

> My name is Tenisha Miles, I'm a registered

> dietitian,

> I work for on Management, in a hospital in

> Canon

> City Colorado. I spend most of my time with the

> bariatric population. I have been working with these

> patients since 2003. I found out about this web

> group

> through Today's Dietitian and was happy to know I

> had

> a place to go for questions, to share my knowlodge,

> and meet others in this field.

> I'm in the process of moving to Denver and looking

> to

> continue working with this population if anyone

> knows

> of a job in that area, please let me know.

> Thanks

> Tenisha Miles

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

<http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ>

>

<http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

<http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> >