Re: (unknown)

[Guest guest]

I don't believe I cause allergic reaction in others. I am not sure

if I am allergic to something in the workplace or REACTING (i.e.

inhaling). Outside of work I see people who are highly allergic to

everything under the sun, but they don't react negatively when I

touch or hug them.

> do you cause allergies on others? i think i do.....

>

> <denb15@o...> escribió:V - funny you should mention

showering to remove " allergens " .

> Lately I've been going to work with wet hair, because it's so

humid

> in NY. I'm fine with wet hair until I walk into work. I get

> slammed hard, hard, hard with symptoms. I leave early and jump

> directly into the shower at home. My symptoms ease within a

couple

> of hours. (wet hair and all)

>

> I tried the whole shower cap, just bathe your body thing to see if

I

> didn't have to put forth so much effort. It failed. A full, hot

> shower has been necessary. I'm still in my experimental phase

> though.

>

>

>

>

> --- In , " " <toria@b...>

wrote:

> > i heard a doc on tv say the other day to wash your hair before

> going to bed.....to remove " allergens "

> > v.

> >

> > [] (unknown)

> >

> >

> > Can mold toxins cling to either your skin, hair or clothes in

> such a

> > way that your are causing severe allergic reactions, sniffles,

> > coughing

> > and wheezing, i other people you interact with opn a daily

> basis? If

> > so, what is the remedy?

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

> >

> >

> > -----------------------------------------------------------------

--

> -----------

> >

[Guest guest]

Hi Barb and ,

I have very long hair, which is why it's a process to wash it several

times a day. What is saying makes total sense to me (then again -

EVERYTHING says connects with me). If I am experiencing

follical fungus, it certainly explains some of my hair loss.

Long & short of it, I'd rather have over-shampooed hair than feel the

full effect of the nasty symptoms.

> > Might recall that Dr Klein and I had this " pillow talk " about

spores

> > in hair and that he went so far as to have his son shave his head

> > before visiting Dr Klein's " safe room " .

> >

[Guest guest]

Based on my experience and some of what I've read, spores absolutely

cling to skin and clothes. I'm sure others in this group can give

you an informed answer. I hope this helps you - feel better.

> I did shave mine, but it still did not work... what about clothes

and skin, can the spores cling on there? what can be done about it?

>

> erikmoldwarrior <erikmoldwarrior@e...> escribió:Might recall that

Dr Klein and I had this " pillow talk " about spores

> in hair and that he went so far as to have his son shave his head

> before visiting Dr Klein's " safe room " .

> I decided to keep the hair but just wash it before sleep.

> But I do wear a hat when I'm entering a known " bad " zone to reduce

> follicular fungal transport by just doffing the hat when I'm out

of

> the badness.

> Though I have had a coupl'a hats that I had to toss out after a

while.

> -

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

My sympotms have practically gone away and I am not experiencing hair loss, and

yet I am giving allergies to others..... is it still in my hair, my clothes, my

skin? I've tried shaving my head, buying new clothes, have moved to a new

apartment, have used borax, but nothing works.... I am confused and

overwhelmed..... any advise?

<denb15@...> escribió:Hi Barb and ,

I have very long hair, which is why it's a process to wash it several

times a day. What is saying makes total sense to me (then again -

EVERYTHING says connects with me). If I am experiencing

follical fungus, it certainly explains some of my hair loss.

Long & short of it, I'd rather have over-shampooed hair than feel the

full effect of the nasty symptoms.

> > Might recall that Dr Klein and I had this " pillow talk " about

spores

> > in hair and that he went so far as to have his son shave his head

> > before visiting Dr Klein's " safe room " .

> >

FAIR USE NOTICE:

---------------------------------

[Guest guest]

What makes you say you are giving allergies to other people? Need

more info. Do you see a change in them when you are present?

> > > Might recall that Dr Klein and I had this " pillow talk " about

> spores

> > > in hair and that he went so far as to have his son shave his

head

> > > before visiting Dr Klein's " safe room " .

> > >

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

>

> From: " " <denb15@...>

> Date: Wed Jun 15, 9:25 PM

>

> Subject: [] Re: (unknown)

>

> MAKES PERFECT SENSE TO ME, DENISE--

TAKE CARE,

V.

[Guest guest]

I do.... either they start wheezing, to sniffle or cough.... at work, on the

subway or when I interact with people.

<denb15@...> escribió:What makes you say you are giving

allergies to other people? Need

more info. Do you see a change in them when you are present?

> > > Might recall that Dr Klein and I had this " pillow talk " about

> spores

> > > in hair and that he went so far as to have his son shave his

head

> > > before visiting Dr Klein's " safe room " .

> > >

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

> I do.... either they start wheezing, to sniffle or cough.... at

work, on the subway or when I interact with people.

>

The only time I've ever seen anything like that was in the Army when

we trained for CBR warfare using CS gas, the military version of tear

gas.

Our clothing would have that type of effect on others and had to be

handled and washed separately to avoid cross contamination.

Are you consistently passing through any area that could be the

source for some type of contamination that you could be carrying with

you? Like an area downwind of a Meth lab?

-

[Guest guest]

I am not, .... I don't know what to do anymore... I have moved from the old

location, shaved my head (the hair is grown back), bought new clothes, washed

with all types of soap and shampoos, etc..... people still get the sniffles or a

cough when interacting with me..... the latest advice I got was to use a HEPA

vacuum cleaner with hand held nozzle on my clothes and hair..... I will also be

asking my doctor to set me up an appointment with a toxicologist but it will be

tough to convince him because according to him by moving out of the moldy

apartment the problem should have been solved....

erikmoldwarrior <erikmoldwarrior@...> escribió:

> I do.... either they start wheezing, to sniffle or cough.... at

work, on the subway or when I interact with people.

>

The only time I've ever seen anything like that was in the Army when

we trained for CBR warfare using CS gas, the military version of tear

gas.

Our clothing would have that type of effect on others and had to be

handled and washed separately to avoid cross contamination.

Are you consistently passing through any area that could be the

source for some type of contamination that you could be carrying with

you? Like an area downwind of a Meth lab?

-

FAIR USE NOTICE:

---------------------------------

[Guest guest]

Gerardo wrote:

> I am not, .... I don't know what to do anymore... I have moved

from the old location, shaved my head (the hair is grown back),

bought new clothes, washed with all types of soap and shampoos,

etc..... people still get the sniffles or a cough when interacting

with me..... the latest advice I got was to use a HEPA vacuum

cleaner with hand held nozzle on my clothes and hair..... I will

also be asking my doctor to set me up an appointment with a

toxicologist but it will be tough to convince him because according

to him by moving out of the moldy apartment the problem should have

been solved....

>

This is amazing.

OK, here's a little more wild speculation.

You say that personally you are doing fairly well.

Dr Shoemaker has identified those of us who succumb to mold with a

genetic susceptibility.

But what if you are a mold survivor who does NOT have the HLA-DR

susceptibility? I wonder if you might have a superlative RESISTANCE

in comparison to others. I wonder if it is possible that your body

is dealing fairly effectively with such a high level of toxins - and

releasing them now, that could have this effect on people who have

the HLA susceptibility when you get too close.

That would be one for the books!

-

[Guest guest]

Perhpas related.

Ive been out of my library since June 2nd 2004. Dizzy, coughing, numbness, brain

fog...very tired...the mold exposure classic symptoms. In the summer of 2004, my

husband had to service computers in that space and when he came home, i would

begin again with the symptoms.

He has not been in that space since Sept 23rd when I couldnt take the reactions

any longer as I healed. he was stripping and washing his clothes, coming in the

basement entrance.

Just yesterday he was in my library space (as NIOSH is touring) and came home,

forgetting the old proceedure. I got the old headache, the mucous stuck in my

throat, cough and brain fog and tiredness all over.

He was bringing it to me.

I wonder if your car, or something else in your life, is reexposing you???

[] Re: (unknown)

Gerardo wrote:

> I am not, .... I don't know what to do anymore... I have moved

from the old location, shaved my head (the hair is grown back),

bought new clothes, washed with all types of soap and shampoos,

etc..... people still get the sniffles or a cough when interacting

with me..... the latest advice I got was to use a HEPA vacuum

cleaner with hand held nozzle on my clothes and hair..... I will

also be asking my doctor to set me up an appointment with a

toxicologist but it will be tough to convince him because according

to him by moving out of the moldy apartment the problem should have

been solved....

>

This is amazing.

OK, here's a little more wild speculation.

You say that personally you are doing fairly well.

Dr Shoemaker has identified those of us who succumb to mold with a

genetic susceptibility.

But what if you are a mold survivor who does NOT have the HLA-DR

susceptibility? I wonder if you might have a superlative RESISTANCE

in comparison to others. I wonder if it is possible that your body

is dealing fairly effectively with such a high level of toxins - and

releasing them now, that could have this effect on people who have

the HLA susceptibility when you get too close.

That would be one for the books!

-

FAIR USE NOTICE:

[Guest guest]

I lived for almost three years at the moldy place with an unrepaired roof leak

as I was unaware of the dangers of molds and the existence of mycotoxins.... I

lived with terrible coughing fits that for the most part have gone away.... what

do you recommend in my situation? I refuse to believe there is no light at the

end of the tunnel.... how would I be releasing these spores or toxins? how would

I stop that from happening? Isn''t borax suppose to be effective in removing

this stuff from your clothes?

erikmoldwarrior <erikmoldwarrior@...> escribió:

Gerardo wrote:

> I am not, .... I don't know what to do anymore... I have moved

from the old location, shaved my head (the hair is grown back),

bought new clothes, washed with all types of soap and shampoos,

etc..... people still get the sniffles or a cough when interacting

with me..... the latest advice I got was to use a HEPA vacuum

cleaner with hand held nozzle on my clothes and hair..... I will

also be asking my doctor to set me up an appointment with a

toxicologist but it will be tough to convince him because according

to him by moving out of the moldy apartment the problem should have

been solved....

>

This is amazing.

OK, here's a little more wild speculation.

You say that personally you are doing fairly well.

Dr Shoemaker has identified those of us who succumb to mold with a

genetic susceptibility.

But what if you are a mold survivor who does NOT have the HLA-DR

susceptibility? I wonder if you might have a superlative RESISTANCE

in comparison to others. I wonder if it is possible that your body

is dealing fairly effectively with such a high level of toxins - and

releasing them now, that could have this effect on people who have

the HLA susceptibility when you get too close.

That would be one for the books!

-

FAIR USE NOTICE:

---------------------------------

[Guest guest]

I don't know, , I just don't know anymore..... what is puzzling as well

is, as stated by , is that I am feeling fairly well. I hope I can find a

toxicologist willing to explore this issue. This is mind boggling.

" Page, " <pageang@...> escribió:Perhpas related.

Ive been out of my library since June 2nd 2004. Dizzy, coughing, numbness, brain

fog...very tired...the mold exposure classic symptoms. In the summer of 2004, my

husband had to service computers in that space and when he came home, i would

begin again with the symptoms.

He has not been in that space since Sept 23rd when I couldnt take the reactions

any longer as I healed. he was stripping and washing his clothes, coming in the

basement entrance.

Just yesterday he was in my library space (as NIOSH is touring) and came home,

forgetting the old proceedure. I got the old headache, the mucous stuck in my

throat, cough and brain fog and tiredness all over.

He was bringing it to me.

I wonder if your car, or something else in your life, is reexposing you???

[] Re: (unknown)

Gerardo wrote:

> I am not, .... I don't know what to do anymore... I have moved

from the old location, shaved my head (the hair is grown back),

bought new clothes, washed with all types of soap and shampoos,

etc..... people still get the sniffles or a cough when interacting

with me..... the latest advice I got was to use a HEPA vacuum

cleaner with hand held nozzle on my clothes and hair..... I will

also be asking my doctor to set me up an appointment with a

toxicologist but it will be tough to convince him because according

to him by moving out of the moldy apartment the problem should have

been solved....

>

This is amazing.

OK, here's a little more wild speculation.

You say that personally you are doing fairly well.

Dr Shoemaker has identified those of us who succumb to mold with a

genetic susceptibility.

But what if you are a mold survivor who does NOT have the HLA-DR

susceptibility? I wonder if you might have a superlative RESISTANCE

in comparison to others. I wonder if it is possible that your body

is dealing fairly effectively with such a high level of toxins - and

releasing them now, that could have this effect on people who have

the HLA susceptibility when you get too close.

That would be one for the books!

-

FAIR USE NOTICE:

[Guest guest]

Hi Ann/Sue

I have been on enbrel for 3 weeks now and just had my 4th shot. I

have problem sleeping at night. I wake up in the middle of the night.

I never had that problem before. I need to feel energy during the day

and not feel so tired when I have to get up for work, that is a

struggle for me. So I have to say, my pain is the same, but it varies

day to day, so it is kind of hard to tell. The PA affects my si

joints, my breast bone and my neck. My rhumey told me it could take

any where from 2wks to a month to work. So I don't know if I am

supposed to wait longer and see what happens. I have to go back in 2

wks. I went for a second opinion in Manhattan NY to the Hospital for

joint diseases and I was told the same thing. That was good enough

for me to try it. Good luck with whatever you decide to do...

Debbie NY

> After being on Methotrexate for 2 1/2 years, My rheumy prescribed

me Enbrel. I talked to the pharmacist and my insurance company and

it will be $1520 a month. My insurance company (double cross/blue

weasel) will ultimately pay 70% of that, taking their sweet time, no

doubt. OK, so we can afford this but it would not be real easy. I

am wondering how long people here have been on it before finding out

if it works for them? How long before the side effects show up? My

Rheumy wrote me the script because I had a real bad three week period

which she first blamed on the rain and then responded with " well you

have a serious disease, what do you expect " {compassion maybe??} but

that's another issue. I've been very fortunate with Methotrexate -

although my ankle is pretty much destroyed, most of the time I

haven't had other problems, and no problem with my liver or other

side effects. Plus it is really affordable. So I'm hesitant. I

have a second opinion with an out of town

> rheumy (I live in a real small town with only the one) in July.

>

> I would like to know how long before you know if this stuff is

going to work its magic and when might the side effects show up......

>

> Thanks, Ann

[Guest guest]

Byetta is from heli monster spit and is in trials!

[Guest guest]

In our institution, we would not use EN ( NG into the pouch) for a patient that is less than 3 months out. Another alternative is to use clear liquid proteins -- such as Isopure or Amino 2222 mixed with Crystal light which have a thinner texture and can be tolerated by some patients. We would use TPN, probably 100 dextrose and 80 - 100 grams AA in 2 to 2.5 L depending on volume tolerance. We wouldn't add lipids unless we continued the TPN beyond three weeks. We would continue to encourage PO feeds despite the TPN unless contraindicated. I am surprised that they did the dilitation. Most surgeons wait for a longer period of time (3 mo) and ride out the stricture with TPN and minimal feeds.

Jeanne

(unknown)

This patient did have a upper GI, EDG and CT when she washospitalized and had the dilitation just a few days ago. She was diagnosed with a anastomotic stricture. I am concerned about her intake. Is TPN or TFa better option for her?

[Guest guest]

When do you start to get concerned about EFAs? Or are they a concern?Jeanne Blankenship <jbship@...> wrote:

In our institution, we would not use EN ( NG into the pouch) for a patient that is less than 3 months out. Another alternative is to use clear liquid proteins -- such as Isopure or Amino 2222 mixed with Crystal light which have a thinner texture and can be tolerated by some patients. We would use TPN, probably 100 dextrose and 80 - 100 grams AA in 2 to 2.5 L depending on volume tolerance. We wouldn't add lipids unless we continued the TPN beyond three weeks. We would continue to encourage PO feeds despite the TPN unless contraindicated. I am surprised that they did the dilitation. Most surgeons wait for a longer period of time (3 mo) and ride out the stricture with TPN and minimal feeds.

Jeanne

(unknown)

This patient did have a upper GI, EDG and CT when she washospitalized and had the dilitation just a few days ago. She was diagnosed with a anastomotic stricture. I am concerned about her intake. Is TPN or TFa better option for her?

Hillary Chrastil, RD, LMNT

Dietitian, Bariatric Surgery Team

VA Nebraska-Western Iowa Health Care System

Omaha, NE__________________________________________________

[Guest guest]

Historically we have not given them in the acute phase. The main goal is to provide adquate protein and second we work to prevent hyperglycemia. We would give fats if indicated -- for example if the patient already had gone several weeks without fat intake. If the patient is taking any po at all, it is feasible to meet the minimal amount needed through po intake. Otherwise, we would start after a couple of weeks and administer bi-weekly. Depending on discharge, sometimes the order is written earlier so that there is less confusion with the home care TPN pharmacy order.

Jeanne

(unknown)

This patient did have a upper GI, EDG and CT when she washospitalized and had the dilitation just a few days ago. She was diagnosed with a anastomotic stricture. I am concerned about her intake. Is TPN or TFa better option for her?

Hillary Chrastil, RD, LMNT

Dietitian, Bariatric Surgery Team

VA Nebraska-Western Iowa Health Care System

Omaha, NE

__________________________________________________

[Guest guest]

Very important point about kidney function. I have seen 3 pts with ESRD, and Hx of gastric bypass. It is important to check for BUN, and Cr. It will be a challenge with those two elevated, vs dehydration. If elevated; most definetely to recommend lower protein intake, and limit fluids to 1000 mL. (32 oz/day), work with MD to definite diagnosis for kidney dysfunction and if so, what stage ? (I, II, III, IV of V). Hopefully, it is not too late (stage V).

Araceli Vazquez, MS, RD, LDandreastalbot <andreastalbot@...> wrote:

I just spoke with a pt that is 6 weeks post-op and he is havingtrouble getting in his 64 oz of fluid in a day - he tries to sip slowlybetween meals, but after about 20 oz in the course of four hours - he has a full feeling and if he takes one more sip, it all comes back up. He had to get an IV, because he was so dehydrated this last week and his PCP is worried about his kidney function. He is also eating little, if any food most days - he can get downsome protein foods, but is having a hard time keeping that down as well. He has lost 70 lbs already and I am thinking he might have aconstriction and need a diliation? Any thoughts, or ideas on how to get things down - options he can try? Thanks, Talbot, RD CDBariatric DietitianSurgical Weight Loss Center of UtahSalt Lake

Regional Medical Center

[Guest guest]

I had a patient present today who has been on dialysis for 4 yrs and is wanting

a Roux-en-Y. If anyone has any references or information I can use, I would

certainly appreciate it. I have not had a chance to speak with our nurse mgr or

surgeon ( at ASBS ) yet.

Strathdee, RD, LD, LMHC

Genesis Bariatric Center, Davenport, IA 52803

>>> araxtapia@... 6/27/2005 7:43 PM >>>

Very important point about kidney function. I have seen 3 pts with ESRD, and Hx

of gastric bypass. It is important to check for BUN, and Cr. It will be a

challenge with those two elevated, vs dehydration. If elevated; most definetely

to recommend lower protein intake, and limit fluids to 1000 mL. (32 oz/day),

work with MD to definite diagnosis for kidney dysfunction and if so, what stage

? (I, II, III, IV of V). Hopefully, it is not too late (stage V).

Araceli Vazquez, MS, RD, LD

andreastalbot <andreastalbot@...> wrote:

I just spoke with a pt that is 6 weeks post-op and he is having

trouble

getting in his 64 oz of fluid in a day - he tries to sip slowly

between

meals, but after about 20 oz in the course of four hours - he has a

full feeling and if he takes one more sip, it all comes back up. He

had to get an IV, because he was so dehydrated this last week and his

PCP is worried about his kidney function.

He is also eating little, if any food most days - he can get down

some

protein foods, but is having a hard time keeping that down as well.

He

has lost 70 lbs already and I am thinking he might have a

constriction

and need a diliation? Any thoughts, or ideas on how to get things

down - options he can try?

Thanks,

Talbot, RD CD

Bariatric Dietitian

Surgical Weight Loss Center of Utah

Salt Lake Regional Medical Center

---------------------------------

[Guest guest]

,

At the bottom of each email is this information...

*---* *---* *---* *---* *---*

Mermaid mathematicians wear algae-bras.

--Anonymous

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

-- is all set. I helped her out this morning

Snoopy

Re: (unknown)

,

At the bottom of each email is this information...

[Guest guest]

Snoopy,

Good. I see this all the time on other lists. So I just do the copy

and paste. LOL

*---* *---* *---* *---* *---*

" Right is right, even if everyone is against it; and wrong is wrong, even if

everyone is for it. "

-- Penn

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

I was also told by many doctors that my child was to young to have sinus

infections because the sinuses are not fully developed. Then I saw a Ped

ENT and she couldn't believe how badly infected was. I think some

doctors go by certain beliefs when it comes to sinuses. We had been told by

a Pediatrician that we were over treating a runny nose.

Another note is X rays are a terrible way to check for sinus infection, a CT

scan is more accurate but has the radiation involved. I was told by our ENT

that a CT scan should only be done after maximum treatment is done and to

see if it is still there or if a defect is present in the sinus area, but

never just to see if it is a sinus infection. That should be treated on

symptoms and aggressively in anyone with a compromised immune system.

Just my 2 cents

Amy J

(unknown)

>Dawn,

> I would definitely question the doc about the 4 weeks. It is my

>understanding that the half-life of IVIg is 21 days, so that is why

>many patients need to be infused every 3 weeks or less. They lose

>enough of the anitbodies after 21 days that they are no longer

>adequately protected. My daughter has always had tons of issues with

>her sinus - from a very early age - and she has never had an x-ray of

>her sinuses...it is always a CT. I was told that an x-ray does not

>show infections the way a CT does. She has seen many doctors and

>each

>one always ordered a CT to check her sinuses. It sounds to me like

>you might want to consider finding another doc. Even if you have to

>drive a long way - good treatment is worth it. Sometimes if you live

>far, you can have them coordinate care with your primary doctor.

>'s doctor does a lot with us over the phone so we only have to

>make the drive a couple of times a year. I hope that you can find

>the

>help you need. I know how frustrating it is when your instincts tell

>you one thing and the doctor doesn't seem to be listening.

>

>Kim, mom to , selective antibody deficiency

>

>

>

>

>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>To unsubscribe -unsubscribegroups (DOT)

>To search group archives go to:

/messages

>

[Guest guest]

Hi, Regina,

My name is Tracie and I am just over a week and a half out of surgery, and yes it was a little hard, I was having to eat hot potato soup on a 100 degree day while everyone was eating BBQ, but I did come up with a low cal dessert that you can enjoy if you buy the sugar free jello any flavor I chose cherry and the lite cool whip or ff cool whip and mix them together (details later) if you want, it make a delious cherry fluff and very smooth to eat with no calories like maybe 10 per serving.

And for those out there I know I am still suppose to be on the clear liquids but I couldn't last the full two weeks, I had to go to full liquids and clear after a week, hope I didn't jeopardize my band.

Tracie B.