Re: (unknown)

[Guest guest]

Happy Bithday . Nice to have you here. Remember onething if you feel

old you gonna make sombody 41 older youknowwaddameanbud? Love Turk

>From: " Pete @ Healthy Heart Market " <peiden@...>

>Reply-

>< >

>Subject: RE: (unknown)

>Date: Fri, 12 Jul 2002 07:13:17 -0500

>

>I like this group. I just turned 40 and instead of feeling over the hump

>you guys make me feel like a teenager. Being I am arguably the most

>sought

>after (male) date for this ordeal bidding of some sort should ensue. Who

>wants to open with a low sodium meal and a rose for my lapel?

>

>Pete

>

>

>____________________________________________

> " If you want to live a long and happy life, get a chronic disease and

>manage it. "

>Oliver ll Holmes

>

>

>

> Re: (unknown)

>

>age is a state of mind.....by the way has anyone found mine?

>

>Gail

>

> Re: (unknown)

>

>

>

>

>

>

>shawn,,,,,

>

>turk and i are single,,,,not sure about any of the others...

>

> bob in pa,,,,dont know how old turk is,,,but im old

>

>

>

>

>At 03:21 PM 7/11/2002 -0400, you wrote:

>

>

>ok Sue and Turk...whats the scoop on the prom?

>Do i need a date...or will there be other single people there?

>I am seriously thinking about coming but i need to make

>plans....babysitter,

>dancing lessons, visit to my hairdresser, floral

>arrangement...ect.....(kidding people!)

>

>Hope to hear soon..

>

>Please visit the Zapper homepage at

>http://www.ZapLife.org

>

>

[Guest guest]

I am all for it Bob. LOL TURK

>From: " RJS " <bobbyj85@...>

>Reply-

>< >

>Subject: (unknown)

>Date: Sun, 14 Jul 2002 15:08:35 -0400 (Eastern Standard Time)

>

>hey turk,,,,

>

>what do think,,,,prom attire for the ladies as shown here... oh my.......

>

>yes, i have the vision problems as well.... doc says it is another side

>effect of amio... at night there is a halo around every light i look at.

>

>fishing on this lake is tough...most weekends i dont bother to untie the

>boat....there are more boats out there then there is room for them.....

>

>would you beleive i bought a fish finder...to new rods, 23.50 for the

>license and havent been fishing yet this year...i dont seem to be able to

>get up early in tghe morning anymore......

>

>and ive been sick for the past two days....severe pain in both

>legs,,,ankles

>as big as softballs, and so tired i dont want to get out of my recline...

>see three of the docs this week,,,maybe one of them will be able to help

>me.

>.

>

> by for now,,,

>

> bob in pa

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

I take 10mg of Prinivil. I have meet people in the same boat as you. With

just a little CHF you can live a pretty normal life. Did your doc mention

what your EF is or your Vo2?

Pete

____________________________________________

" If you want to live a long and happy life, get a chronic disease and

manage it. "

Oliver ll Holmes

Visit www.healthyheartmarket.com/

Re: (unknown)

>

>

>

>Pete...who ever offers you a low-sodium meal and a rose for your

>lapel...had better be ready for some competition...

>First, of all i have been working on my tan..(see mustard mail!!) so I

>WILL , as your date, stand out in a crowd. Secondly, and i don't mean to

>evoke any jealousy here---but, i went ahead and purchased that hot little

>number that i had my eye on a Goodwill...pink taffeta with matching

>shoes..you may have heard me speak about it!! And i am prepared for just

>about anything...you see, I strung up my meds and made a beautiful necklace

>(earrings to match)......from a healthy distance it almost looks like

>pearls!!!! So if the beat gets out of control..we can always suck on a few

>nitro...always good to be ready for anything!!

>Finally ( and here is the clincher) i am a seriously superior dancer..in

>high school i won three out of four dance contests....sooo, i am bound to

>make you look good!!Of course, modern dance has changed a little...but if

>you don't mind me doing the more traditional.....we can be the envy of

>all....( although i better be careful....taffeta is flamable and it would

>be a shame to combust while i am doing the twist....probably better select

>a dance with less friction).

>So Pete, i think you can see i am putting alot of thought into this

>event....now, if someone would just tell me where and when.....it could be

>a date....that is, If The Price Is Right.......(next bidder please!!)

>Take care....

>

>

>

>Please visit the Zapper homepage at

>http://www.ZapLife.org

>

>

[Guest guest]

Hi Turk,

Nice to talk to you. I have been on amiodarone for over 5 years and just

started having all sorts of eye problems. I have the halo's that Bob talks

about and I have dry, red, irratated, eyes. I have had my yearly eye exams for

the amio, but they continue to say it has nothing to do with the meds......go

figure. Maybe it's from the sun that bothers my skin so much. I'll have to get

out my sunglasses.

in Vermont

Quoting " Gurhan G. Ozdemir " <goturk1@...>:

> Hey ;

> This is the first i heard about vision problems with amio. I constantly

> have

> vision problems(never had it until 5 months ago and im on amio for 1 1/2

>

> years). Does anyoneelse have the same problem. Sometimes as if i feel

> like

> somebody tied string at the backs of my eyes and pulling them in. How do

> you

> feel.? Love TURK

>

>

> >From: belanger@...

> >Reply-

> >

> >Subject: Re: (unknown)

> >Date: Thu, 11 Jul 2002 14:25:52 -0400 (EDT)

> >

> >Hi Bob,

> >

> >I have funky vision problems too. Of course my doctors swears it has

> >nothing

> >to do with the amiodarone. Maybe he would believe me if I told him I

> >couldn't

> >see his doctors bills clearly.......didn't it say " no charge " .

> >

> >Nice to meet you, but since I have been here so long, I feel I already

> know

> >you. I think the prom would be to far for me to travel, but I would

> truly

> >enjoy a picture of Turk and yourself.

> >

> > in Vermont

> >

> >Quoting RJS <bobbyj85@...>:

> >

> > >

> > >

> > >

> > > cant fly on my boat,,,,its one of those pontoon party boats....

> > >

> > > and ive heard many mention the amiodarone. i have no trouble with

> the

> > > sun

> > > at all...years ago i had to do chemotherapy and with those meds i

> became

> > >

> > > intolerant of the sun. i had to move back to pa from florida it got

> so

> > > bad...

> > >

> > > i do have purple blotches on my chest,,,,i think it is the beginning

> of

> > > me

> > > becoming a giant smurf. doc says that is normal...... the one side

> > > effect

> > > i do have is the halo around lights at night..

> > >

> > > bob in pa

> > >

> > >

> > >

> > >

> > > At 10:20 AM 7/11/2002 -0400, you wrote:

> > > >Bob, in your e-mail the other day, you asked if anyone had a

> reaction

> > > to

> > > >the amiodarone...wanted to let you know i take it, and react

> severely

> > > to

> > > >the sun..i can get quite a burn on my arms just from driving. When

> i am

> > >

> > > >out in the sun, it feels like little pin-pricks when i start to

> fry..i

> > >

> > > >totally sympathize with bacon now!!!

> > > >Anyway, i use 45 spf and stay out of the sun..seems to alleviate

> the

> > > >problem! So, i am a lovely shade of pale ivory..but it makes me

> look

> > > >delicate..(half albino is more like it!!) I did try that spray on

> tan

> > >

> > > >that you can get at salons...that was an experience!! Stripped me

> > > >naked..covered my hair, put me in a booth, and sprayed self tanner

> all

> > >

> > > >over me with these steel-like hoses (like the ones in a car

> wash)...and

> > >

> > > >wha-lah!!! I looked like i had rolled around in mustard, of course

> the

> > >

> > > >advertisement said i would look like i spent a week in Aruba, but

> i

> > > >looked more like Miss Plochmans (a brand of mustard for those of

> you

> > > who

> > > >are anti-mustard)

> > > >Another interesting experience!!! Bob you had no idea such a

> little

> > > >question would lead to this...i keep telling myself there is such

> a

> > > thing

> > > >as TOO MUCH INFORMATION......ohh some day i will learn to figure

> > > itout!!

> > > >Glad to hear you are a bronzed god...bet you look smashin on your

> boat,

> > >

> > > >flyin down the lake/river/pond/puddle...

> > > >have fun and be careful!

> > > >

> > > >Please visit the Zapper homepage at

> > > ><http://www.ZapLife.org>http://www.ZapLife.org

> > > >

> > > >

[Guest guest]

Iris,

I am so sorry that you are in so much pain right now. We all usually try to

stay a few steps ahead of the real " bad " pain, however, sometimes " it " does

catch up with us. When the " bad " stuff sets in, be good to yourself. Do

things that usually bring you enjoyment.....a favorite movie, a CD, a special

aroma candle, a book or maybe nothing at all, just quiet. A soothing bubble

bath with bubbling salts, or if you can't get into the tub, then take a nice

long hot shower with a fragrant candle burning. Make a favorite meal or have

your favorite junk food or chocolate that you save just to pamper yourself.

Unfortunately, the medical profession doesn't always have what we need to

make US feel better. They have the stuff for the structural US, but don't

have anything for the inner US. That is only something that we know.

We are all entitled to our time on the pity potty. It is part of this

disease. And you know that we serve whine and cheese here everyday with no

limit on whine! When your feet go numb from sitting on the pity potty, then

you know it is time to get off or contact your doctor. We have ALL been on

the pity potty here before and the rings in our cheeks to prove it! LOL.

The pain medication and the other medication for this disease all work their

best when your body is working along with them and is receptive to their

properties. Otherwise, the body is in chaos, you are fighting the

medications and nobody wins or gets better because it causes us less sleep

and then the whole cycle repeats itself the next day.

I run a cabana boy camp here in southern Florida. When members have been

really good or when they are in dire need of some special loving.....I send

one of my guys off and they do their magic. We are trying to make plans for

a convention in my backyard by the pool and spa where the guys can really

show you their stuff. How they fan me daily with large palm fronds, the pina

coladas, the proper application of suntan oil (with only the highest SPF),

making sure that our robes are ready for us when we exit the pool and making

sure that the bubbles in the spa are bubbling at the proper speed at the

proper temperature. They also organize activities while we are out of the

water. We play limbo at 2:00pm and then at 4:00 pm, we do the Conga Line and

then it is time for a tasty dinner. We are in the process of installing a

dunking booth for our doctors. I have a waiting list for that game already!

LOL. Now, if we are unable to assemble here in south Florida, then I am

thinking of getting a Cabana Boy bus that can pull up right in front of your

house and nurse you back to health.

You are a fairly new member and I haven't been posting too much due to some

family and physical problems. But I think today I made the turn and should

be slowly getting back to my old self! LOOK OUT EVERYBODY!!!!!!!

Oooooh, one thing I forgot. The party is a BYOM (bring your own

medication)party and all orthopedic devices need to be checked at the door.

I hope that this has brought a tiny smile to you this evening. This disease

does suck, but as the saying goes....when you get lemons, you make lemonade

with your cabana boys!!!!! LOL.

Hope you are feeling better soon, sweetie. Give us a yell if you can't sleep

tonight, I am sure one or more of us will be up!

Gentle, tender, summertime angel hugs,

Debs in FL

[Guest guest]

sorry to hear of you flare. i know how you feel. i hope you got the rest you

needed so you can feel better. kathy in il

[Guest guest]

<<. We are in the process of installing a

dunking booth for our doctors. I have a waiting list for that game already!

>>

Debs, that gave me such a good laugh. Thanks!

Hugs,

Carol

Re: [ ] (unknown)

Iris,

I am so sorry that you are in so much pain right now. We all usually try to

stay a few steps ahead of the real " bad " pain, however, sometimes " it " does

catch up with us. When the " bad " stuff sets in, be good to yourself. Do

things that usually bring you enjoyment.....a favorite movie, a CD, a

special

aroma candle, a book or maybe nothing at all, just quiet. A soothing bubble

bath with bubbling salts, or if you can't get into the tub, then take a nice

long hot shower with a fragrant candle burning. Make a favorite meal or

have

your favorite junk food or chocolate that you save just to pamper yourself.

Unfortunately, the medical profession doesn't always have what we need to

make US feel better. They have the stuff for the structural US, but don't

have anything for the inner US. That is only something that we know.

We are all entitled to our time on the pity potty. It is part of this

disease. And you know that we serve whine and cheese here everyday with no

limit on whine! When your feet go numb from sitting on the pity potty, then

you know it is time to get off or contact your doctor. We have ALL been on

the pity potty here before and the rings in our cheeks to prove it! LOL.

The pain medication and the other medication for this disease all work their

best when your body is working along with them and is receptive to their

properties. Otherwise, the body is in chaos, you are fighting the

medications and nobody wins or gets better because it causes us less sleep

and then the whole cycle repeats itself the next day.

I run a cabana boy camp here in southern Florida. When members have been

really good or when they are in dire need of some special loving.....I send

one of my guys off and they do their magic. We are trying to make plans for

a convention in my backyard by the pool and spa where the guys can really

show you their stuff. How they fan me daily with large palm fronds, the

pina

coladas, the proper application of suntan oil (with only the highest SPF),

making sure that our robes are ready for us when we exit the pool and making

sure that the bubbles in the spa are bubbling at the proper speed at the

proper temperature. They also organize activities while we are out of the

water. We play limbo at 2:00pm and then at 4:00 pm, we do the Conga Line

and

then it is time for a tasty dinner. We are in the process of installing a

dunking booth for our doctors. I have a waiting list for that game already!

LOL. Now, if we are unable to assemble here in south Florida, then I am

thinking of getting a Cabana Boy bus that can pull up right in front of your

house and nurse you back to health.

You are a fairly new member and I haven't been posting too much due to some

family and physical problems. But I think today I made the turn and should

be slowly getting back to my old self! LOOK OUT EVERYBODY!!!!!!!

Oooooh, one thing I forgot. The party is a BYOM (bring your own

medication)party and all orthopedic devices need to be checked at the door.

I hope that this has brought a tiny smile to you this evening. This disease

does suck, but as the saying goes....when you get lemons, you make lemonade

with your cabana boys!!!!! LOL.

Hope you are feeling better soon, sweetie. Give us a yell if you can't

sleep

tonight, I am sure one or more of us will be up!

Gentle, tender, summertime angel hugs,

Debs in FL

[Guest guest]

Iris:

Everyone needs a good cry now and then - this is a

terrible illness and it is so frustrating to live

with.

Sometimes it just overwhelms us. Believe me, I know

we have all been in that place before and will be

again no doubt - hang in there - we're all with you.

Hope that you are able to see a doctor soon so that he

can hopefully find some cocktail that will help you.

Kathe in CA

__________________________________________________

[Guest guest]

Debs you are such a sweetheart with a great sense of humor. I¹m standing in

line for that dunking tank.

I¹m so glad you are coming back to us. The pity pot gets old after awhile.

I hope this means you are feeling a little better.

Hugs,

a

[Guest guest]

Iris,

Yep, you hit the nail on the head. There is a shortage of rheumatologists

nationwide. I guess not enough of an enticement for med students to go into

the field. My rheumatologist is also an immunologist, not the give the

allergy shots type, but the auto immunology part of it. Very bright young

man (pretty easy on the eyes too)....see I am always looking for ways to

enlarge my cabana boy staff! LOL!

Choose your physician, make the appointment and then ask to be put on their

cancellation list. In case someone cancels, your name is right there for the

person to call. Nothing may come of it, but then again, you never know.

Now for more important matters, never thought of a cabana boy franchise. If

Social Security continues to deny my claim, this may be my only source of

income! So I will keep you on my list!

Next time a crisis hits, just remember that we all go thru them from time to

time and you can reach out and touch one of us just by hitting the " send now "

key.

Have a good evening........hopefully pain free!

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

a,

I am feeling better about myself, but having a devil of a time with

adhesions. I don't want to have two surgeries back to back, but I need to

know what the ortho doc is going to do when I see him on Monday. Right now,

I am kinda existing on clear liquids and things like egg drop soup so that I

don't dehydrate while I see what this obstruction is going to do. If things

get much worse, the decision will be made for me to go to the hospital for

their intervention (IV's, NG tube and emergency surgery) Right now, though I

can somewhat tolerate the pain (actually it takes my mind of my knee) and

occasionally I can feel my GI tract move. So I am keeping my fingers

crossed.

I already have quite a line for that doctor dunking booth, may have to build

two of them so that my guests don't have to wait! LOL!

Talk to you soon.....

Deb

[Guest guest]

Dear Debs,

Is there a franchise fee on the cabana boys; I want to

start one here in Texas. Also, I am going to contact

Bros. to develop the Dunk The Doctor game; of

course you'll be credited as the inventor. All

proceeds could go for an annual cabanna boys fest.

Thanks for great advice. These are probably things I

should have thought of but wasn't in the frame of mind

to do so -- I guess that's why we have our group.

I haven't laughed out loud like that for a while - it

felt good!

Today I called 10 different Rheumy practices that had

about 40 doctors and none of them could see me until 6

weeks from now. What gives? Are there just not

enough of them around?

I seem to have passed my crises for now. I appreciate

your kindness. Wishing you laughter. Iris

--- Carol <carol@...> wrote:

> <<. We are in the process of installing a

> dunking booth for our doctors. I have a waiting

> list for that game already!

> >>

>

> Debs, that gave me such a good laugh. Thanks!

>

> Hugs,

> Carol

>

> Re: [ ] (unknown)

>

> Iris,

>

> I am so sorry that you are in so much pain right

> now. We all usually try to

> stay a few steps ahead of the real " bad " pain,

> however, sometimes " it " does

> catch up with us. When the " bad " stuff sets in, be

> good to yourself. Do

> things that usually bring you enjoyment.....a

> favorite movie, a CD, a

> special

> aroma candle, a book or maybe nothing at all, just

> quiet. A soothing bubble

> bath with bubbling salts, or if you can't get into

> the tub, then take a nice

> long hot shower with a fragrant candle burning.

> Make a favorite meal or

> have

> your favorite junk food or chocolate that you save

> just to pamper yourself.

> Unfortunately, the medical profession doesn't always

> have what we need to

> make US feel better. They have the stuff for the

> structural US, but don't

> have anything for the inner US. That is only

> something that we know.

>

> We are all entitled to our time on the pity potty.

> It is part of this

> disease. And you know that we serve whine and

> cheese here everyday with no

> limit on whine! When your feet go numb from sitting

> on the pity potty, then

> you know it is time to get off or contact your

> doctor. We have ALL been on

> the pity potty here before and the rings in our

> cheeks to prove it! LOL.

>

> The pain medication and the other medication for

> this disease all work their

> best when your body is working along with them and

> is receptive to their

> properties. Otherwise, the body is in chaos, you

> are fighting the

> medications and nobody wins or gets better because

> it causes us less sleep

> and then the whole cycle repeats itself the next

> day.

>

> I run a cabana boy camp here in southern Florida.

> When members have been

> really good or when they are in dire need of some

> special loving.....I send

> one of my guys off and they do their magic. We are

> trying to make plans for

> a convention in my backyard by the pool and spa

> where the guys can really

> show you their stuff. How they fan me daily with

> large palm fronds, the

> pina

> coladas, the proper application of suntan oil (with

> only the highest SPF),

> making sure that our robes are ready for us when we

> exit the pool and making

> sure that the bubbles in the spa are bubbling at the

> proper speed at the

> proper temperature. They also organize activities

> while we are out of the

> water. We play limbo at 2:00pm and then at 4:00 pm,

> we do the Conga Line

> and

> then it is time for a tasty dinner. We are in the

> process of installing a

> dunking booth for our doctors. I have a waiting

> list for that game already!

> LOL. Now, if we are unable to assemble here in

> south Florida, then I am

> thinking of getting a Cabana Boy bus that can pull

> up right in front of your

> house and nurse you back to health.

>

> You are a fairly new member and I haven't been

> posting too much due to some

> family and physical problems. But I think today I

> made the turn and should

> be slowly getting back to my old self! LOOK OUT

> EVERYBODY!!!!!!!

>

> Oooooh, one thing I forgot. The party is a BYOM

> (bring your own

> medication)party and all orthopedic devices need to

> be checked at the door.

>

> I hope that this has brought a tiny smile to you

> this evening. This disease

> does suck, but as the saying goes....when you get

> lemons, you make lemonade

> with your cabana boys!!!!! LOL.

>

> Hope you are feeling better soon, sweetie. Give us

> a yell if you can't

> sleep

> tonight, I am sure one or more of us will be up!

>

> Gentle, tender, summertime angel hugs,

>

> Debs in FL

>

>

>

>

[Guest guest]

Dear ,

My advice is to get on the web and research an LLMD ( " Lyme Literate MD " )

in your area. You can ask people on this board for help to find one, and

you can also go to the " Seeking a doctor " boards on the Lyme Flash

Discussion at Lymenet.org. It, BTW, is also an excellent site.

You *must* see a doctor knowledgeable ab. Lyme. As you read, you will

learn more ab. the controversy in treating Lyme: there's a camp of docs

that say you will be cured in 4 weeks of antibiotic treatment (an old,

outdated view, but one that docs have based careers and research grants

on) and the camp that knows Lyme is not that simplistic.

I can recommend a doc for you in Boston, but there are good ones in NY,

and NJ, and there must be some in CT.

You may have to pay out of pocket at first, altho many times they will

work w. patients in diff. systems.

Believe me, your health and future life depends on your getting treatment

NOW. As you research on the web, you will find lots of articles and

research studies that you can print out and take to the doc you are seeing

now (if you want to try to keep relations w. her cordial and good, and

explain why you are doing this).

Many of us have had to fire our primary care docs and entrust ourselves to

Lyme Literate docs. It is imperative for getting treatment we need.

Sometimes the PCP is interested in being educated ab. Lyme. (It's amazing

that what they are still teaching in medical schools is so medieval).

Send out the email notes for help finding a doc.

Others can fill you in more. That's my writing energy for now.

BTW - you may not have seen my earlier post. Did you say you're a grad

student? Me, too.

Healing to you,

Marie

[Guest guest]

In a message dated 7/18/2002 3:05:03 PM Eastern Standard Time,

lsabadini@... writes:

> But I'm worried. Am I wasting precious time waiting for my doctor

> to take action? I haven't seen an actual doctor since all this

> started over a month ago. I have no idea if how I feel is due to

> Lyme or is due to some lingering effect of the Doxy. And I have no

> clue how serious these symptoms are.

> Which brings me to this one small question. Has anyone out there

> dealt with something like this, and if so, how did it turn out?

>

-

You have every right to be concerned and if I were you....I WOULD NOT WAIT!

I did and ended up severely sick from lyme.....my husband nearly died and now

all 6 of my kids are chronic. Do we live IN the woods?? (as ignorant people

ask) NO.

I live in NJ, in a nice suburb of NYC.

If you call me, I can explain all. It gets to the point that to type all the

info takes forever. It is easier to talk.

sue in nj

sue massie

732 933-4011

and that goes for anyone that would like to talk

[Guest guest]

In a message dated 7/18/2002 5:08:44 PM Eastern Standard Time,

wmeyer@... writes:

> since you had treatment with doxy and symptoms seemed to continue, i

> would suggest that either you wait a bit and see if you improve OR

> you go on another oral

Problem is that anyone that is initially bit and thinks that a few weeks of

abx will 'take care of it'......is sadly mistaken. There is NOT just lyme

(borrelia bacteria) that one has to be concerned with. At this point, we ONLY

know about lyme, babesia, ehrlichia, bartonella, mycoplasma fermentan, HHV-6

and Epstein barr--which are all co-infections (OR IN ADDITON TO) the lyme.

One MUST see a LLMD (Lyme literate dr.) and be tested and treated for all.

One month of abx will NOT cure lyme, Period.

This is from personal as well as over 7,000 people that I have communicated

with over the past 7 yrs.

Please get the correct info.

It could save your life.

sue in nj

sue massie

[Guest guest]

Bob, I am sooooooo glad to hear from you!!! I was starting to think i was in the twilight zone and i was the only zapper not invited on some cruise...somewhere in the Mediteranean (sp?) and I have been soooo lonely.

But now i know that you all are here stuck in your homes like me and not on some exotic trip together...or God forbid....AT THE PROM!!!! with-out me!!!

Bob, that is great news about getting off the amiodarone, be sure and let us know when the Docs decide for sure..

Please take care.....

My Bounty is as boundless as the Sea,

My Love as deep; the more I give to thee

The more I have, for both are infinite.

Shakespeare

Romeo and t

[Guest guest]

Bob you are one brave man!!! I haven't poked my nose out of my little air conditioned apartment for days!!! You know, i hate summer....i had a heat stroke when i was 13, and have never been able to handle it..and then with chf....it just is the frosting on the cake. Speaking of cake...that sounds pretty good...maybe i will cuddle next to my vents (have central air) and slice a few pieces....

Have a great day and stay as cool as you are!!

[Guest guest]

dear laura

here is what i went thru:

had tick bite and stiff neck within two days. had increasing fatique.

researched lyme and certainly developed

" lyme anxiety " .

this comes from:

horror stories of lyme illness

lack of clear treatment of lyme

and most importantly -EVERYONE SAYS TREAT IT AS QUICKLY AS POSSIBLE!

i got oral doxy after two weeks. did 21 days and fatigue releived

with just one worse day on fifth day of treatment. it has been 2 1/2

months since bite and i still have a " crackling " , but useable stiff

neck. i am a very sensitive person (physically), but in my case doxy

had no noticeable side effects.

since you had treatment with doxy and symptoms seemed to continue, i

would suggest that either you wait a bit and see if you improve OR

you go on another oral, like Zithromax and see the effects.

to get this, you would have to see an LLMD.

--

sincerely

william meyer

[Guest guest]

laura, i want to welcome you to the list. you definitely need an LLMD RIGHT

AWAY!! dont waste any more time with current dr's. please someone on this

list who knows of a LLMD in conn post it for laura mmediately. pj

[Guest guest]

Hi Bob,

I was just telling that it felt like ghost town.....

Be careful when they take you off the amiodarone. After a year of no problems,

the doctor's lowered my dosage with plans to stop altogether, I started having

episodes of VTach. The doctors put me right back on the original dosage and

have been there ever since. Their answer to that? " I guess you really need

that medicine huh. " So reassuring.

in Vermont

Quoting RJS <bobbyj85@...>:

> where have all the zappers gone,,,,,,,????????

>

> having withdrawal symptoms here from no funnies or

> converstions.......sue,

> sharon, jess, shawn, turk, bill....stacie,,,tom,,lisa,,,where is all

> you

> guys....beccas away so i forgive her.. how bout you pete...where is

> ya??

> and colin, and all i cant think of right now........

>

> saw the e.p today....he is going to talk it over with the cardio and

> possibly take me off amiodarone...no zaps in a year and a half. sure

> hope

> it works.

>

>

>

>

>

>

[Guest guest]

Hi ,

You are in the confusion of do I have it? Sounds like you do. My LLMD told

me the two orals they are having the most success with currently (with the

ticks this summer)........is Doxycycline and Ceftin.

Since the Spirochete cycles in its replication, not sure if that's the right

word........you should really be on abx for at least two cycles of the

spirochete.........and maybe even three with symptoms disappearing.

I'm just repeating my LLMD's words.

3-4 weeks for a cycle...........so that's at least six weeks to about

12weeks..........and then you have a long talk with your LLMD....to decide

what to do next...........might be done, might need another abx, might need

different testing...........etc.

Connieknwj

[Guest guest]

Bob,

I agree, it is worth a try. I wanted so badly to get rid of the drugs, but at

least now I know it is necessary.

in Vermont

Quoting RJS <bobbyj85@...>:

> hi kelly,

>

> the doc mentioned that could possibly happen.....

>

> guess it is worth the try though...

>

> bob in pa

[Guest guest]

I kind of had the same thing happen. They were thinking of taking me off

it. I started a cardio pulmonary stress test and lasted about 30 seconds

before they stopped it. I was having couplets and triplets. The funny

thing was the doctor in training who was monitoring the test. He said it

was ok to start before my cardiologist came. It was a humbling experience

for him.

I had my dose doubled. Now I get a sunburn if I look out the window.

Pete

____________________________________________

" If you want to live a long and happy life, get a chronic disease and

manage it. "

Oliver ll Holmes

Visit www.healthyheartmarket.com/

Re: (unknown)

Hi Bob,

I was just telling that it felt like ghost town.....

Be careful when they take you off the amiodarone. After a year of no

problems,

the doctor's lowered my dosage with plans to stop altogether, I started

having

episodes of VTach. The doctors put me right back on the original dosage and

have been there ever since. Their answer to that? " I guess you really need

that medicine huh. " So reassuring.

in Vermont

Quoting RJS <bobbyj85@...>:

> where have all the zappers gone,,,,,,,????????

>

> having withdrawal symptoms here from no funnies or

> converstions.......sue,

> sharon, jess, shawn, turk, bill....stacie,,,tom,,lisa,,,where is all

> you

> guys....beccas away so i forgive her.. how bout you pete...where is

> ya??

> and colin, and all i cant think of right now........

>

> saw the e.p today....he is going to talk it over with the cardio and

> possibly take me off amiodarone...no zaps in a year and a half. sure

> hope

> it works.

>

>

>

>

>

>

Please visit the Zapper homepage at

http://www.ZapLife.org

[Guest guest]

Janet,

I just saw your post about your having a thallium stress test. YOU

definately need to tell YOUR surgeon your concerns here about your heart

before HE does any type of surgery on you?

Can I ask what you meant by haveing a " very bad heart day " ??? Are you

talking chest pain, or what type of pain are you talking about:? Who

did order that stress test, the surgeon. and Did a cardiologist see

you?? A good surgeon will have a cardiologist do a work up on you

before you have an surgery scheduled, I would think anyhow.

Esp if you have heart problems and they do not know why? I am going

through that right now. My surgeon will NOT touch me until the

cardiologist gives the ok. That just makes good sense.

I have read some of your posts and my mind is kinda blank right now. Do

youhave high bp, irregular heart rate? anything like that?

I suggest you call your family doc, or that surgeon and ask him to get a

cardiac consult on YOU BEFORE any surgery takes place. I am not trying

to scare you but that just sounds like it should be done, and most of us

here would tell you the same thing.

That is the first thing they do IF you go to ER with chest discomfort,

Run all types of tests to rule out heart problems, because A symptoms

are just like having a heart attack. So HEART problems HAVE to be ruled

OUT before getting A taken care of.

Please get your surgeon to have a cardiologist evaluate you first.....

janers

let me know will you, even if it is at home addy

rojakort@...

i don't mean to sound like a smart ass, or bossy, just worried sometimes

that heart problems are over looked a lot. Been there and done that

too.

[Guest guest]

AHHHHHHHHHHHHH i'm here just hideing thats all

stacie,18 having withdraw to

-----Original Message-----From: RJS [mailto:bobbyj85@...]Sent: Thursday, July 18, 2002 9:38 AM Subject: (unknown)

where have all the zappers gone,,,,,,,????????

having withdrawal symptoms here from no funnies or converstions.......sue, sharon, jess, shawn, turk, bill....stacie,,,tom,,lisa,,,where is all you guys....beccas away so i forgive her.. how bout you pete...where is ya?? and colin, and all i cant think of right now........

saw the e.p today....he is going to talk it over with the cardio and possibly take me off amiodarone...no zaps in a year and a half. sure hope it works.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit the Zapper homepage athttp://www.ZapLife.org