Re: (unknown)

July 19, 2002

I cannot answer your msgs. because of the backgrounds. I can't even see

what

i'm typing here. PLease stop the backgrounds! Please?

Sue

RJS wrote:

where

have all the zappers gone,,,,,,,???????? having withdrawal symptoms

here from no funnies or converstions.......sue, sharon, jess, shawn, turk,

bill....stacie,,,tom,,lisa,,,where is all you guys....beccas away so i

forgive her.. how bout you pete...where is ya?? and colin, and all

i cant think of right now........ saw the e.p today....he is going

to talk it over with the cardio and possibly take me off amiodarone...no

zaps in a year and a half. sure hope it works.

____________________________________________________

IncrediMail - Email has finally evolved - Click

Here

Please visit the Zapper homepage at

http://www.ZapLife.org

July 19, 2002

i cant figure that out sue.....i get messages like that and dont have a

problem...if one of the graphics is covering several words... i just

scroll down a bit and the words are exposed.

bob in pa

July 19, 2002

If you email me GGrom48@..., I have the Connecticut contact you need.

July 19, 2002

Hi there! don't worry, I don't think you are bossy or anything! I'm

actually touched by your concern ) anyway, I have been to the

cardiologist, had an emergency angiogram (where they put the wire

thing up through the femeral artery, and inject dye etc) it showed my

arteries are all clear, so I'm having more testing done. The

cardiologist forwarded all the test results, EKG readings etc. to my

Achalasia specialist, the cardiologist thought because he could not

see any problems in the angiogram that could be causing the bad EKG

readings, it might be caused by my achalasia. But my achalasia doctor

did not seem to think so, but he said you never know. He's quite

willing to go ahead with the surgery, I have to go in the day before

for a thorough workup with the anasthiesiologist (sorry for the

spelling) etc. I've had an echocardiogram, the angiogram, worn a

holter monitor, now I'll be going for the thallium stress test. When

I say bad heart day, I meant my heart kept having pvc's, lots of

them, and I was very tired, ill feeling. I am feeling a lot better

today, only one small pvc all day! Maybe I had a bug or something.

Anyway, my cardiologist and achalasia specialist are in contact about

me, so not to worry! I do enough for at least a hundred people! It's

funny, this came on quite suddenly, although I had been to see my

family dr. only 2 weeks before telling him how badly I had been

feeling for months now. Beyond tired, the expression " bone weary " is

more like it. sleeping at least 12 hours a day, with naps, and very

out of breath all the time. On mothers day, I was in er, with a

bygeminy tachycardia, which lasted about 1/2 hour altogether and

stopped when they gave me nitro. the EKG was normal after, and 4

hours later still normal. It was about 2 weeks later, when I went for

a regular stress test, they hooked me up to the EKG machine, and put

me in intensive care, and did the angiogram, they thought I had

severe coronary artery disease, but as I said the angiogram was

clear! I had another EKG last friday, and it's still showing the same

inverted t waves. I was hoping it would be gone! I'll keep you all up

to date, and believe me, when I go for surgery, I'll be asking for

lot's of prayers! Janet.

> Janet,

>

> I just saw your post about your having a thallium stress test. YOU

> definately need to tell YOUR surgeon your concerns here about your

heart

> before HE does any type of surgery on you?

> Can I ask what you meant by haveing a " very bad heart day " ??? Are

you

> talking chest pain, or what type of pain are you talking about:?

Who

> did order that stress test, the surgeon. and Did a cardiologist see

> you?? A good surgeon will have a cardiologist do a work up on you

> before you have an surgery scheduled, I would think anyhow.

> Esp if you have heart problems and they do not know why? I am going

> through that right now. My surgeon will NOT touch me until the

> cardiologist gives the ok. That just makes good sense.

> I have read some of your posts and my mind is kinda blank right

now. Do

> youhave high bp, irregular heart rate? anything like that?

> I suggest you call your family doc, or that surgeon and ask him to

get a

> cardiac consult on YOU BEFORE any surgery takes place. I am not

trying

> to scare you but that just sounds like it should be done, and most

of us

> here would tell you the same thing.

> That is the first thing they do IF you go to ER with chest

discomfort,

> Run all types of tests to rule out heart problems, because A

symptoms

> are just like having a heart attack. So HEART problems HAVE to be

ruled

> OUT before getting A taken care of.

> Please get your surgeon to have a cardiologist evaluate you

first.....

>

> janers

> let me know will you, even if it is at home addy

> rojakort@b...

> i don't mean to sound like a smart ass, or bossy, just worried

sometimes

> that heart problems are over looked a lot. Been there and done that

> too.

July 20, 2002

Oh ,

This in many ways sounds like my own story. I learned long ago that there are

many doctors who treat for money. I am not saying they don't have any heart but

mistakes are so common. I learned a long time ago to not trust all doctors. If

I had listened to my daughters pediatrician , who let her go on five months with

a seriuos infection, she would be dead. I won't go into big detail becuase this

case was not lyme related (well it was kind of but I hadn't heard of Lyme

Disease then).

I went through 16 doctors in Idaho and 4 here in Pennsylvania all insisting that

I did not have Lyme Disease or my children. Well I can tell you now my children

were born with it. My husband is also comming down sick. We are sure he has it

too. I have a positive pcr as well as my three beautiful daughters. One showed

up in the blood (Myesha) and the three of us others come back in our urine. My

husband has had two of the pcr tests so far. But looking back I had it since I

was fourteen after talking to my Mom. She said I had the rash on my right ankle

and it spread to my knee. I am now almost 29, I will be on the 30th. My

children got in utero.

If I were you I would find an LLMD a doctor who knows all about Lyme. I hope

things will get better for you. Please try and make it so you can get treated

now. Do not wait for the doctor to do something because you will be waiting a

long time and it sounds like you are running into late stage Lyme real

fast...don't wait.........I tried that method and now we are paying big for it.

I got this disease in the west probably from Wyoming or in

Idaho..possibly in Colorado.

Cyntha Landon Lititz, PA

[ ] (unknown)

I live in Connecticut now, but I didn't grow up in CT. So I didn't

spend the last 15 years hearing about Lyme. I knew only passing

stuff about it. My stats professor had it, has it? I didn't even

know enough to know if that statement should be chronically present

tense or safely tucked away in the past. I knew Lyme could be bad.

I read something at the school infirmary about how it can manifest

in any number of ways. They don't get terribly specific on those

posters, but the word " multisystemic " was used I think.

Then about a month ago I got this rash that looked just like the

picture on the Lyme Disease poster at the infirmary. I had no other

symptoms to speak of but I went to my doctor and said " hey is this

like one of those rashes that I should be worried about? " She said

yes, but reminded me that it could be things other than Lyme. She

drew a blood test anyhow. While we waited for results that week,

symptoms started popping up. The rash expanded every day....by the

hour it seemed... and I felt worse and worse. Headaches,

exhaustion, a low temp, and soreness here and there, but also this

general feeling of just overall bad. After putting up with this for

a few days, I saw her again and she put me on Doxycycline (despite

the test results still not being in). Then she called me that night

to tell me the test was negative. She said it made little sense for

me to continue with the antibiotic since the result was negative. I

expressed a concern it was a false negative, but I didn't insist. I

didn't know too much about the testing and the little window of

opportunity that catching an early infection might afford you.

Also, this woman is a new doctor for me. I had just met her in May

and I was trying to give her the benefit of the doubt, trying not to

get off on the wrong foot. I get onto the wrong foot with doctors

more often than not. It doesn't help having divorced one. I

know they're all too human, and they really hate that. But I also

know they have knowledge, information, and skills that can be quite

useful if you can find the right approach. And I hate that, because

it shouldn't have to be that way.

I followed her advice for one day. The rash got bigger and bigger.

I felt worse than ever that night. My boyfriend showed me some

stuff about Lyme tests and early false negatives he'd found online.

These were articles written by researchers, not just little " Lyme

fact sheets for kiddies " web sites (which I suppose are useful but

not what I needed). This all scared the hell out of me. I decided

I'd rather go against my doctor's advice and put up with doxy by

mouth now than chance this getting worse and needing IV antibiotics

right as the Fall semester is starting. So I started taking the

doxy again. My doc and I had a little chat about that on the phone

a few days later. I told her unless she could give a really good

medical reason for me to NOT take the doxy, I would prefer to take

it than to take my chances that the test was indeed a genuine

negative. She was not happy, but accepted it I guess. She asked me

to come back in for another test in a few weeks, which I did. I

didn't see her at that time, I saw only a nurse who didn't talk much

while she drew the blood. I was feeling crappy still, but I was not

sure how much of how I felt was the doxy and how much was Lyme.

Lots of headaches, and lots of nausea. Fatigue. I had about 4

hours of work in me a day, if I was lucky. Then I'd just fall apart

and have to go to bed (or couch, or chair, or floor). I asked the

nurse if Doxy side effects could cause this, and she said it could

be pretty bad. Upon reflection, it struck me that I was not

entirely sure that was an actual answer to my question, but I took

it to mean " yes " at the time. I didn't push her...I guess I kind of

worried she or someone would say something like " we TOLD you not to

take it! "

The second test was drawn July 1st, then came the big U.S.

Independence Day holiday, no offices open. I called the next week

and found out my doctor was on vacation. I was referred to a

covering physician who told me the test was positive and indicated

an early infection. She seemed relieved to hear that I had finished

all 21 days of my Doxy (100 mg 2x a day.*). The referring doctor

was not much help after hearing I took the whole course. She just

said " Oh good...you should be fine then " and hung up. That was a

week ago Monday and the problem is I'm not feeling fine.

(* = yes, I read the " doxy doesn't work " post just now.does it not

work on everyone or do you think its efficacy might depend at least

partly on weight and tetracycline exposure? I'm not a big person

and I'd never had cyclines before)

It's been almost two weeks since I finished the doxycyline. I am

still having these spells that I associated with the doxy when I was

taking it....nausea with periods of severe nausea, funny taste in my

mouth, headache, dizziness/lightheaded...and a few other symptoms

that seem rather like Lyme (fatigue, stiff neck/back, this sort of

fuzzy head feeling.hard to describe). A family member I just saw

who I hadn't seen in a few weeks told me I look " funny colored "

although I don't think my eyes look yellow so I don't think it's

jaundice, but who knows? I sure don't. Could be the doxy was not

so nice to my liver?

When I finally spoke to my doctor this Monday, she told me that the

levels from the second test were low and I think she said something

about " equivocal " results, which to me does not mean positive. But

then I think I also would be tempted to want to stress how low the

values were if I were her. It probably is more than a little

embarrassing to find out you were wrong about something like that.

She sounded concerned that I was still feeling bad but she didn't

say she could see me. Instead she wanted me to see a particular

neurologist for further testing. My insurance company was not to

pleased about this plan and insisted that I either see a neurologist

that was one of their providers (translation: really far away) or

that I just go to the E.R. if I felt " really bad " . But my doctor's

office seemed confident that they could get this overridden, and

told me to just sit tight.

I made an appointment I never kept with the neurologist. After

waiting two days for the answer from the insurance company, I found

out today that they won't cover it. And my doctor's office is

closed on Thursdays. So what do I do now? Over the past few weeks,

I've told myself that if I feel REALLY bad I will go to the

hospital, but then I feel really bad and all I want to do is stay in

bed. And I think, How bad is really bad anyhow? Is this bad enough

to make it worth the trouble? What if this is just " normal " ? Or

something they can't really treat anyhow? What if I run into that

seemingly ubiquitous old boys' network mentality, the one that would

label me a hysterical woman who is just looking for attention and

who is not really sick? That just drives me NUTS when I get that,

and you are likely to get that in some E.R.s if you show up with

anything less acute than an axe through the head. According to the

E.R. cowboy mentality as well as to the credo of the Managed Care

desk jockeys, you're supposed to go to your primary care doctor's

office for anything less acute than an axe in the head or a combo

stroke/heart attack/cat bite with cat still attached to arm. But

what do you do if your doctor is on vacation, on holiday, closed on

Thursday, or desperately trying to pawn you off on another service?

I feel I'm becoming immobilized. I just sit here feeling crappy,

deliberating and assessing myself as if I have some kind of training

to know what's serious and what can wait. And regardless of the

conclusions I reach, I end up waiting another day - trying to do

this the " right " (managed care) way because I just don't feel like I

have the strength to push my way through at the moment.

But I'm worried. Am I wasting precious time waiting for my doctor

to take action? I haven't seen an actual doctor since all this

started over a month ago. I have no idea if how I feel is due to

Lyme or is due to some lingering effect of the Doxy. And I have no

clue how serious these symptoms are.

Which brings me to this one small question. Has anyone out there

dealt with something like this, and if so, how did it turn out?

-

July 21, 2002

Jalilah.

I don't know how close you are to the Mexican border or if it's really

necessary---what you are doing is probably just fine---but if you decide

you want to try pharmaceuticals they are available in the border city

pharmacies for very low cost. Nizoral is $6 for abox of 30 tabs.

And you don't need a prescription---you just walk in and buy them from

the pharmacist over the counter---minus the BS the US requires.

As for dairy: I 've done quite abit of research for several years now

and although I know there's a ton of controversy among the " authorities "

Re diet, to my knowledge all cheeses are taboo except soy " cheeses " .

However, raw natural yogurt with the cultures like Mountain High,

Brown Cow or Stonyfield Farm are great and recommended if you're body

will tolerate them. Because of course it contains acidophilus to help

feed the friendly bacteria in your gut. I'm supposed to be allergic to

dairy and yet my body seems to like it so far.

Good Luck,

Diane

July 21, 2002

Bummer. I had 2oz of cream cheese today because I read a

diet/treatment plan by a doctor. hard cheeses are the only ones he

does not allow. Hmmn. I'm so confused. (

As for the border.. I'm in Mississippi.

Thanks for the heads-up, though.

Jalilah

> Jalilah.

>

> I don't know how close you are to the Mexican border or if it's

really

> necessary---what you are doing is probably just fine---but if you

decide

> you want to try pharmaceuticals they are available in the border

city

> pharmacies for very low cost. Nizoral is $6 for abox of 30 tabs.

> And you don't need a prescription---you just walk in and buy them

from

> the pharmacist over the counter---minus the BS the US requires.

>

> As for dairy: I 've done quite abit of research for several years

now

> and although I know there's a ton of controversy among

the " authorities "

> Re diet, to my knowledge all cheeses are taboo except

soy " cheeses " .

> However, raw natural yogurt with the cultures like Mountain High,

> Brown Cow or Stonyfield Farm are great and recommended if you're

body

> will tolerate them. Because of course it contains acidophilus to

help

> feed the friendly bacteria in your gut. I'm supposed to be

allergic to

> dairy and yet my body seems to like it so far.

>

> Good Luck,

> Diane

>

July 21, 2002

Thank you, Iris. I am going to take a nap here shortly, and will call

my Rheummy tomorrow. Thanks for the sweet note.

Much Love...

Tess

July 24, 2002

In a message dated 7/24/02 7:53:10 PM Pacific Daylight Time,

rebecca81r@... writes:

<< I was wondering if y'all could pray for me. I gave

blood this evening at 6 pm. I drank a bottle of water

afterrwards. At 7 pm, I felt dizzy so I sat down then

my head I guess went down. Which I didn't know till I

woke up 2-3 min later. So I figured that I passed out

for 3 min or so. Then after church I drank 2 bottles

of water. It hasn't happenend before, but hopefully

I'll be okay by tomorrow, I'm slowly better.

>>

Aw, . How nice you are to donate blood. Hope you are feeling better

soon. I'll keep you in my prayers tonight.

Gail :-)

July 24, 2002

The first sinus surgery I had was where the doctor cut me clear across the inside of my lip and went in that way. I have had some loss of feeling there ever since. I know it sounds silly but, you know how kids blow through their pressed lips and make that vibrating noise that sounds like you are giving someone the raspberries. I can't do that anymore.......Evie

(unknown)

Thanks everyone for replying to me. Yesterday I begged for someone to take another look at me and they sent me to an oral surgeon to see if something had gone wrong with the root canal. Years ago I had a Caldwell Luc procedure, which is where they slice your lip and go into your cheek sinus. Anyway, the surgeon looked to see where my infection was coming from and it wasn't the teeth so he went back into the sinuses and said it was a horrible mess and now I need some drain hole cut in there. Whatever. Its not so bad today, because I know I will be better now. Just looks like I have a golf ball in my cheek. I feel very fortunate that my asthma is still at rest and I appreciate all of your input. I will be asking for Singulair on Friday.

July 24, 2002

Good luck to you. It seems there are so many possible problems with

sinuses....for so many years I thought all I would have to go through is

a surgery every few years to clean out the polyps, then I got the allergy

to aspirin then asthma. Now I have a mucus sac that will require more

surgery (I just had one two months ago!) going in through my forehead!

I am so sick of all this, I wish they could just give me a total sinus

transplant.

At 12:35 AM 7/25/2002 +0000, you wrote:

>Thanks everyone for replying to me. Yesterday I begged for someone to

>take another look at me and they sent me to an oral surgeon to see if

>something had gone wrong with the root canal. Years ago I had a

>Caldwell Luc procedure, which is where they slice your lip and go

>into your cheek sinus. Anyway, the surgeon looked to see where my

>infection was coming from and it wasn't the teeth so he went back

>into the sinuses and said it was a horrible mess and now I need some

>drain hole cut in there. Whatever. Its not so bad today, because I

>know I will be better now. Just looks like I have a golf ball in my

>cheek. I feel very fortunate that my asthma is still at rest and I

>appreciate all of your input. I will be asking for Singulair on

>Friday.

>

July 24, 2002

Gail,

Thanks. I'm feeling a little better, just

lightheaded and just a pinch dizzy.

Yeah, it is a nice thing to do.

>

> >>

>

> Aw, . How nice you are to donate blood.

> Hope you are feeling better

> soon. I'll keep you in my prayers tonight.

> Gail :-)

>

__________________________________________________

July 25, 2002

In a message dated 7/24/02 10:53:09 PM Eastern Daylight Time,

rebecca81r@... writes:

> I was wondering if y'all could pray for me. I gave

> blood this evening at 6 pm. I drank a bottle of water

> afterrwards. At 7 pm, I felt dizzy so I sat down then

> my head I guess went down. Which I didn't know till I

> woke up 2-3 min later. So I figured that I passed out

> for 3 min or so. Then after church I drank 2 bottles

> of water. It hasn't happenend before, but hopefully

> I'll be okay by tomorrow, I'm slowly better.

>

You'll be ok . My daughter fainted her first time giving blood too.

It's not all that uncommon.

{{{{hugs}}}}}

Donna

July 25, 2002

Have you looked into a DAN doctor? Usually insurance will not pay for them,

but they really care about treating autism. I live in Missouri and there is

one in Independence, MO Dr. Bruce Stayton. He is very good.

July 25, 2002

Hi~~

I'm new and looking for information. What type of professional do people

commonly get their dx from for their child? We've been on this roller

coaster for over 4 year with no clear dx, and frankly I'm ready to make my

own dx. I just wonder what type of doctor could/should make the " official "

dx?

Thank you in advance.

Dumont

July 25, 2002

Rhonda I had the same problem in New Jersey. The problem is they

are money hungry! If you make an appointment with these jerks then its at

least $200. Its all about money and dont give a hoot about your child.

Its happened to me before and it inferiated me. My question was different

then yours. My question was do you do tubal reversals and how much? Since

military tricare wasnt to pay for anything well I didnt need a $200 plus out

of pocket fee just needed two questions asked. I ended up driving 9 hours

one way to get what I needed. I hate HMOs Rhonda because if your primary

doesnt agree with you or the doctor is not in the area then your hosed!

Right now Rocky mountain HMO refused us due to the NM move lie so now I am

in the process of trying to get this blue cross blue shield PPO plan. I

sure hope I get what I want. You have a right to be angry Rhonda and I

wouldnt take my daughter to them unless I had too! They care more about

money then customer services. Also what if you started a treatment plan

with them and you had some questions...........you couldnt get them answered

without an appointment. To make an appointment means more insurance

referals ect and time wasted! I have refused doctors because of there

attitude. I am now more into natural home therapies then dealing with

jerks.

I am so sorry your going through this Rhonda. What state do you live in?

Charlene

-- (unknown)

Just have to do a little whining, thanks to anyone who's listening. I am

trying to find a doctor, in my health plan, who specializes in autism and

so far have had zero luck. I called a neurologists office the other day

and wanted to ask some questions. Basically I just wanted to know if

they " treated " kids, you know, did the testing for toxins and that sort

of thing but they told me I'd have to make an appointment, they wouldn't

talk to me over the phone. Well, my child's already been dx'd so, as a

consumer, don't I have a right to ask questions about treatment before I

waste my time and their's making yet another appointment? Couldn't they

just say no, we don't treat but we know someone who does or mayybe they

could say, yes we do treat and whatever...It's so freakin frustrating

sometimes!!! These people act like they're volunteers, they get paid to

do their job so why can't they take 5 minutes just to answer a couple of

simple questions???? Ok, feeling a bit better now. Thanks.

Rhonda

July 25, 2002

thanks

>

> You'll be ok . My daughter fainted her

> first time giving blood too.

> It's not all that uncommon.

> {{{{hugs}}}}}

> Donna

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

July 25, 2002

Hi Connie:

I'm so sorry to hear what you're going through. My name is Robin (female).

I'm 43 and have been living with horrible back pain for 10 years. I went

misdiagnosed for 9 of those years. I live in Los Angeles and went from

" specialist " to " specialist " . I had many " MRI's " (which I think are the worst

tests that reveal nothing I'll tell you why in a minute), bone scans, cat

scans, spinal taps, 2 discograms (the 2nd which was done last year was read

correctly, thank God), x-rays, neurograms, nerve conductory studies, etc.

Every test pointed to abnormalities, but no two doctors could agree on an

exact diagnosis. I went through nearly 10 physical therapy programs (complete

with biofeedback, pain shrinks etc), healers, accupuncturers and all kinds of

medications and alternative things. NOTHING HELPED. The pain got worse and I

began spending more and more time in bed (virtually daily). I got very

depressed and went from pain medication to medication. A year and a half ago

I fell and broke and dislocated my foot (I've previously fell and torn up my

ankle many times and have had that same ankle operated on in 1995). In 1995 I

had 3 MRI's on that ankle, all the films were read by different people who

said I'd torn a tendon which needed to be surgically repaired. When I went

into the operating room, they found that the tendons were fine but that I'd

torn ALL the ligaments. The MRI's had not picked it up.

My orthopedic surgeon said I needed surgery. After the surgery he told me

that my back needed to be fixed once and for all. I told him that no one

doctor could agree and I'd just resigned myself to a pain management program

and living in pain (nerve pain and burning pain in middle of my back). He

sent me to see yet another orthopedist who he claimed was " the best " . That

doctor made me take another MRI. He also x-rayed me. He immediately told me I

had an instability and would need a spinal fusion. First he said I should try

and experimental, minimally invasive surgery called IDET and referred me to

the doctor who invented it up at Stanford (Northern CA). I first had to have

another Discogram. This time they found two significant tears on both the

inside and outside of my disc. I went and had the IDET. During the surgery

the doctor discovered the disc was completely shredded and leaking. After the

surgery he asked my father (who'd gone up north with me) how I'd been able to

walk around in so much pain. During my first Discogram in 1998, the doctor

said the disc was ruptured, then he changed his mind. All of the MRI's missed

my completely shredded/torn disc. So did every other test and doctor. The

reason I tell you this is because you just can't give up. Unfortunately for

me, it is almost a year and it doesn't appear that the IDET has worked. I am

terrified of having a spinal fusion and am going back to the orthopedist who

correctly diagnosed me to see what/if any options I have (as well as seeing a

neurosurgeon). My torn disc is at L4/L5. I also have a probable facet

abnormality at L5/S1 and some nerve impingement problems. But I'm not giving

up.

Also, Connie, have you tried BOTOX injections for your nerve problems? BOTOX

(which is expensive and not covered by some insurance) is a medication that

is injected into your muscle. It then paralyzes (for about three months and

is completely safe if done by a doctor who knows what he's doing) that

muscle. It can be really helpful, particularly if injected into the right

muscle that's impinging on a nerve. Once the muscle is paralyzed, it frees up

the nerve. What surgery did you have?

I don't know if this helps at all, but please know that you are not alone and

that there are new advancements being made and doctors out there that are

able to offer hope and options that perhaps other doctors have missed. One

last thing, a friend of mine is currently going through an amazing pain

management program at the Cleveland Clinic in OH. It is covered by Insurance.

I'm told that they ween you off of narcotic medication and teach you to live

with pain and give you your life back. She told me that one woman came in in

a wheelchair (unable to walk cuz of the pain) and is now walking. I don't

know how, but I hear it's an amazing program. There are things out there so

don't give up hope.

Robin

Bird3459@...

July 25, 2002

My daughters go to Dr. Arnold Brenner in land and he is a DAN doctor. We

have Blue Cross Blue Shield federal and all we have to paid is the $15.00

co-pay.

Beverly Weakley

Mom of Jen and Kim

Re: (unknown)

Have you looked into a DAN doctor? Usually insurance will not pay for them,

but they really care about treating autism. I live in Missouri and there is

one in Independence, MO Dr. Bruce Stayton. He is very good.

July 25, 2002

I just wonder what type of doctor could/should make the " official "

> dx?

Good question .. I think most of us arrive at a diagnosis

through a number of different " professionals " . The most common

probably being neurologists and developmental pediatricians. We got

our dx through an Autism Resource Center... they were the most

helpful and are still the people I turn to when all else fails. I

have no idea how many are around and in what states but see what you

can find.

Lyn

July 25, 2002

I just wonder what type of doctor could/should make the " official "

> dx?

Good question .. I think most of us arrive at a diagnosis

through a number of different " professionals " . The most common

probably being neurologists and developmental pediatricians. We got

our dx through an Autism Resource Center... they were the most

helpful and are still the people I turn to when all else fails. I

have no idea how many are around and in what states but see what you

can find.

Lyn

July 25, 2002

Hi Charlene. I live in New Hampshire but I have an HMO plan out of

Massachusetts so most doctors here won't take my insurance. However, try

as I may, I can't find a doc in my plan from Mass either. Not that I

can't find one, I just can't find one who specializes in autism.

Unfortunately, I can't afford a DAN doctor right now. I found one but he

charges 500 bucks for the initial visit and I just don't have it. It

kills me that I can't help my kid due to lack of funds. I have found a

naturopathic doctor who is reasonable, or sounds reasonable, she orders

all the " right " tests or whatever but I'm not sure where I should have

her begin. I know there are several different tests they do before you

start detoxing so you'll know what to detox for but I'm still too new to

know which ones are the most important. I'm hoping to see this woman

next week or the week after. This will come out of pocket but she's much

cheaper than anyone I've come across thus far. I asked my PCP to write a

referral for me so my HMO would reimburse us but he said I'd be wasting

my time seeing a naturopathic. He said he didn't want to see someone

benefiting from my desperation and that I'd just leave the office

spending a fortune on vitamins that don't work. I must confess, I " m a

skeptic at heart, but since I've begun the DMG I've noticed some subtle

changes. Her therapist has seen these changes as well so now my dilemma

is: are these changes due to the DMG or are they happening cause she's

almost 2 and they're supposed to happen?Either way, I don't dare stop,

just in case! Ok, I've written a book. Thanks for listening! Rhonda

July 25, 2002

I would personally say a neurologist pediatric neurologist. Now

here in Colorado everyone is falling towards a pediatric phyologist!

charlene

-- Re: (unknown)

Hi~~

I'm new and looking for information. What type of professional do people

commonly get their dx from for their child? We've been on this roller

coaster for over 4 year with no clear dx, and frankly I'm ready to make my

own dx. I just wonder what type of doctor could/should make the " official "

dx?

Thank you in advance.

Dumont

July 25, 2002

I use TMG on Jen. I did use DMG, but found that the TMG works better on Jen.

http://www.kirkmanlabs.com/

According to KirKman's... " Basically TMG is DMG with one more methyl group. TMG

stands for Trimethylglycine while DMG stands for Dimethylglycine.

DMG is well known in the autistic community. For many, it helps improve speech,

behavior and energy. Not many people however know about its " Big Brother " TMG.

In short, TMG provides several remarkable benefits and then becomes DMG!

TMG donates one methyl group (it has 3 while DMG has 2) that reduces harmful

homocysteins and increases beneficial serotonin by stimulating the production of

a precursor called SAMe, which acts as a natural antidepressant by increasing

the level of serotonin. The remaining two methyl are DMG. The powder has a

pleasant sweet taste and includes Folic Acid and Vitamin B12. "

Take Care and God Bless,