Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Hi, that's not to far to drive for lunch, maybe we can do that some day? Bobby p miller <pmiller789@...> wrote: Hi Bobby, Noticed your from Cleveland, OH I'm from Warren, OH. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 That would be great! My Mom lives in Mentor. In Cleve area quite a bit. ROBERTA DOYLE <rcd1929@...> wrote: Hi, that's not to far to drive for lunch, maybe we can do that some day? Bobby p miller <pmiller789@...> wrote: Hi Bobby, Noticed your from Cleveland, OH I'm from Warren, OH. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 Great, we can kill two birds with one stone, we can meet and you can visit your mom. You can come to Mentor, so can I, or I can pick up your mom and come to you.. we can work on that, sounds like fun...Bobby p miller <pmiller789@...> wrote: That would be great! My Mom lives in Mentor. In Cleve area quite a bit. ROBERTA DOYLE <rcd1929@...> wrote: Hi, that's not to far to drive for lunch, maybe we can do that some day? Bobby p miller <pmiller789@...> wrote: Hi Bobby, Noticed your from Cleveland, OH I'm from Warren, OH. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008  You can request a copy of the results from the hospital - you will then know what tests they did. I find that test results from the hospital are a lot clearer than those from the doctor. Lilian Yes, THEY is the NHS. You know, as someone who likes to think of himself as an informed patient I'm ashamed to admit I forgot to make a note of all the tests, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Off point, But… A child has autism. Saying a child is autistic is like saying a person is cancerous. A person has cancer is not cancerous. A child has autism. My son is wonderful, and clever and bright and smart as heck My son also has autism. My son’s autism is not nearly as important as his loving energy and smarts. But when parson is called autistic, there is no room left to see the true wonder of a child. So no more autistic please! A mom, on a different list raised the point and awareness of children with Downs Syndrome. Not a downs kid, but a great kid that happens to have downs syndrome. So no more downs kid please! It is taking a Childs weakness and making it front and center – the title of the book rather than a footnote at the bottom on the very last page! Kate Myers Kate Myers www.brooklynplayspot.com Indoor, Drop in Play, Classes, Events & Parties Bring your class to " PLAY " Class Trips & Graduation Celebrations 718-852-2494 (unknown) Hello, My name is . I am a Therapist that works with Autistic and Asperger patients. I enjoy the challenges, I am sure you all are aware of. The purpose of my wanting to join this group is to listen and share common experiences and goals. I have had good success with different methods, but I feel most success is with mimicry and dietary. Asperger is often given to a personal program that needs to be tailored to each individual. I have a website that explains the philosophy and approach. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Lynn, How sweet, thanks for sharing. I went to a neurologist in Ft. today, who is having a scan done on my legs and feet and referring me for a sympathetic nerve block for the RSD. I am SO relieved that I found someone who knew what pain I was in. I can get the block about 2 weeks after they get the results of the scan, which will be done Friday. Had to schedule it in Boulder to get it done this week, as I do chemo again next week. Lynda At 03:29 PM 3/26/2008, you wrote: >My sweet co-workers sent me flowers today. How sweet.... I wanted >to share, as they are so pretty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Lynda, This is wonderful news! Much shorter drive as well. Please let me know if you need a ride after the nerve block. I will pray it takes your RSD pain away, you have other things to worry about right now. I had a nerve block on my finger last night, I am sure yours will be much different - it felt so strange but it worked. How many more chemos to go? Are they going to do a smaller dose of the doxil? Love, Lynn > > >My sweet co-workers sent me flowers today. How sweet.... I wanted > >to share, as they are so pretty > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Beautiful flowers sweetie ! ! How sweet of your co-workers to send those to you. How is your finger feeling today? Love DedeCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Beautiful flowers sweetie ! ! How sweet of your co-workers to send those to you. How is your finger feeling today? Love DedeCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Wonderful Lynda! . . . How long do they expect the nerve block to give you relief? . . . Can they continue doing these as long as necessary?Hugs,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Lynn, The nerve block is painful, I think, and I probably will have my sister here to take me. But, to have my foot and ankle (and the pain moving up my leg) gone will be a Godsend. Probably at least 4 more chemos, and they are going to do a 3/4 dose, only I don't know if they know it yet. Lynda At 04:07 PM 3/26/2008, you wrote: >Lynda, > >This is wonderful news! Much shorter drive as well. Please let me >know if you need a ride after the nerve block. I will pray it takes >your RSD pain away, you have other things to worry about right now. > >I had a nerve block on my finger last night, I am sure yours will be >much different - it felt so strange but it worked. > >How many more chemos to go? Are they going to do a smaller dose of >the doxil? > >Love, Lynn > > > > > > >My sweet co-workers sent me flowers today. How sweet.... I wanted > > >to share, as they are so pretty > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Rogene, When my former son in law had one, it was permanent. I pray for the same results that he had. Sometimes they remove a small piece of the nerve. It is painful, I may have to be on pain pills for a few days. I am pretty sure they can do it again if necessary, but as painful as they are, I hope one is enough. I will not be driving that day. Lynda At 04:29 PM 3/26/2008, you wrote: >Wonderful Lynda! . . . > >How long do they expect the nerve block to give you relief? . . . > >Can they continue doing these as long as necessary? > >Hugs, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Wow Lynda! . . . That would be an answer to your prayers if it works as well for you! If they remove a piece of the nerve, it should be permanent!It's a shame they didn't offer you this solution before! I suppose you'll have some numbness . .. but after RSD, that would be welcome, I'm sure!Love,Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Rogene, It is the sympathetic nervous system, so I probably won't have numbness. I will find out more in the next few weeks. But, I am willing to undergo the risks to get rid of the pain, which has expanded and increased at a rapid rate. I think it may not be in my other foot, but certainly not to the extent it is in this foot. I may have to do this again later on the other leg. Lynda At 05:17 PM 3/26/2008, you wrote: >Wow Lynda! . . . > >That would be an answer to your prayers if it works as well for you! >If they remove a piece of the nerve, it should be permanent! > >It's a shame they didn't offer you this solution before! > >I suppose you'll have some numbness . .. but after RSD, that would >be welcome, I'm sure! > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Lynda, I am glad your sister will be here to take care of you. The nerve block they did on my finger was painful for about 30 seconds - mainly the injection and burning but then everything went numb and felt quite strange. Okay, so one more out of the way next week - good. I hope the 3/4 dose helps with the side effects! Lynn > > > > > > >My sweet co-workers sent me flowers today. How sweet.... I wanted > > > >to share, as they are so pretty > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Rogene, I think they try the block several times and hope it does the trick before they remove a piece of the nerve. Often this works and they don't have to do anything more. Sometimes it only lasts a few days and sometimes it lasts a few months, but when they repeat it, sometimes it becomes permanent. That would be the hope. If it keeps returning, then the consider the more permanent procedure. Lynda At 05:17 PM 3/26/2008, you wrote: >Wow Lynda! . . . > >That would be an answer to your prayers if it works as well for you! >If they remove a piece of the nerve, it should be permanent! > >It's a shame they didn't offer you this solution before! > >I suppose you'll have some numbness . .. but after RSD, that would >be welcome, I'm sure! > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Rogene, I think they try the block several times and hope it does the trick before they remove a piece of the nerve. Often this works and they don't have to do anything more. Sometimes it only lasts a few days and sometimes it lasts a few months, but when they repeat it, sometimes it becomes permanent. That would be the hope. If it keeps returning, then the consider the more permanent procedure. Lynda At 05:17 PM 3/26/2008, you wrote: >Wow Lynda! . . . > >That would be an answer to your prayers if it works as well for you! >If they remove a piece of the nerve, it should be permanent! > >It's a shame they didn't offer you this solution before! > >I suppose you'll have some numbness . .. but after RSD, that would >be welcome, I'm sure! > >Love, > >Rogene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 It was unexpected and super sweet. I am back at work today. Finger bled again this morning when I washed it - they should have just stitched it! I can honestly say my arm where I got the dpt shot hurts worse than my finger. I can barely lift it - feels like I got sucker punched. How are you? CLynn > > Beautiful flowers sweetie ! ! How sweet of your > co-workers to send those to you. > How is your finger feeling today? > Love Dede > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 It was unexpected and super sweet. I am back at work today. Finger bled again this morning when I washed it - they should have just stitched it! I can honestly say my arm where I got the dpt shot hurts worse than my finger. I can barely lift it - feels like I got sucker punched. How are you? CLynn > > Beautiful flowers sweetie ! ! How sweet of your > co-workers to send those to you. > How is your finger feeling today? > Love Dede > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Hey girl, I cannot believe they didnt suture your finger ! ! Usually they do because of useage. Crazy..... Ouch on the injection ! ! DT's are notorious for making a very sore muscle. One trick tho is for you to cough when they give it, as it relaxes the muscle as tensing up makes it hurt worse. We all tense some as a reflex. Hope it continues to get better ! ! I am hanging in best I can. . . . Dad is doing pretty good getting past his last chemo treatment and getting out and about some. Love you ~ DedeCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Hey girl, I cannot believe they didnt suture your finger ! ! Usually they do because of useage. Crazy..... Ouch on the injection ! ! DT's are notorious for making a very sore muscle. One trick tho is for you to cough when they give it, as it relaxes the muscle as tensing up makes it hurt worse. We all tense some as a reflex. Hope it continues to get better ! ! I am hanging in best I can. . . . Dad is doing pretty good getting past his last chemo treatment and getting out and about some. Love you ~ DedeCreate a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 I agree with the distinction in terms, and would take it further. A person with cancer can be completely healed (not just remission of symptoms. A person with autism can be completely healed. (See Recovered Autistic Children and Waking Up Baxter) And -- although the belief is stronger yet with Downs Syndrome, they can be healed to. (The World of Nigel Hunt)(patterning). And healing is freedom. Francine In a message dated 3/28/2008 11:33:22 PM Eastern Standard Time, zrenner@... writes: Off point, But… A child has autism. Saying a child is autistic is like saying a person is cancerous. A person has cancer is not cancerous. A child has autism. My son is wonderful, and clever and bright and smart as heck My son also has autism. My son’s autism is not nearly as important as his loving energy and smarts. But when parson is called autistic, there is no room left to see the true wonder of a child. So no more autistic please! A mom, on a different list raised the point and awareness of children with Downs Syndrome. Not a downs kid, but a great kid that happens to have downs syndrome. So no more downs kid please! epiousianGod is giving Us enough this moment for all of Eternity. And in the next moment, enough for all of Eternity. Every moment of Now is full and running over with Good.Create a Home Theater Like the Pros. Watch the video on AOL Home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 See where it is from LaJolla. Walk on the shore for me. I have to get back there and do it again. Lynda At 09:21 PM 4/1/2008, you wrote: >Oh, here is the hotel.... > >[] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Have you considered that all your problems just might be caused by mercury poisoning from all those little balls of mercury you played with Dawn. This is a fact , and may be the answer to what is happening to you . Bo to the website run by Mikle's siter and see if you can pick anything up there. There is a contact you can write to in the hope of finding answers. http://www.mercurymadness.org/ Let me know how you get on, and good luck. luv - Sheila I had no idea of the toxicity of it at the time. I was only around 11years old.Oh dear. No idea what happened to it eventually I do not remember.lotsa luvDawn No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 01/04/2008 17:37 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Bit more on Mercury being banned in Norway http://www.wddty.com/03363800370836367819/amalgam-fillings-norway-is-first-to-ban-mercury-in-teeth.html Anne On 04/04/2008, sheilaturner <sheilaturner@...> wrote: Have you considered that all your problems just might be caused by mercury poisoning from all those little balls of mercury you played with Dawn. This is a fact , and may be the answer to what is happening to you . Bo to the website run by Mikle's siter and see if you can pick anything up there. There is a contact you can write to in the hope of finding answers. http://www.mercurymadness.org/ Let me know how you get on, and good luck. luv - Sheila I had no idea of the toxicity of it at the time. I was only around 11years old.Oh dear. No idea what happened to it eventually I do not remember.lotsa luvDawn No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 01/04/2008 17:37 Quote Link to comment Share on other sites More sharing options...
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