Re: (unknown)

[Guest guest]

Our menus range from 90 to 130 grams per day of CHO, I don't feel it is

excessive. It is tough to get adequate dairy, minimal fruits/veg and a

small amount of starch/grain for less than this.

JB

Jeanne Blankenship, MS RD

Bariatric Surgery Nutrition Coordinator

UC Medical Center

Sacramento, CA 95817

916-734-7260

.D.Letendre@Hi

tchcock.ORG

cc:

05/10/2004 12:07 PM Subject: Re:

(unknown)

Please respond to

BariatricNutritionDiet

itians

I got the number from an article in a diabetes management publication,

which stated a minimum of 130 g CHO daily. I think it was an increase from

100 g previously. I figure pts eat ~1000-1200 kcal per day, provided 50%

of kcal come from CHO it adds up to somewhere around 130 g daily.

Letendre, MS,RD,LD

Bariatric Surgery Program

Dept. of General Surgery

(603)650-8810

[Guest guest]

The RDA for CHO is 130 g/day for good brain function.

Sandi Birch, RD LD

EIRMC, Idaho Falls

neilandsandi@...

Re: (unknown)

> I got the number from an article in a diabetes management publication,

which stated a minimum of 130 g CHO daily. I think it was an increase from

100 g previously. I figure pts eat ~1000-1200 kcal per day, provided 50% of

kcal come from CHO it adds up to somewhere around 130 g daily.

>

> Letendre, MS,RD,LD

> Bariatric Surgery Program

> Dept. of General Surgery

> (603)650-8810

>

>

>

>

>

[Guest guest]

I recently went to a Diabetes Review course for the CDE and they stated

that the brain needs at least 6 g carbohydrates per hour for normal

function. I guess that means at least 144 gram of carbohydrates per day

is needed for proper brain function. Patients probably will be eating at

least 1200 kcal by one year, this would equal to 150 g carbohydrate per

day if 50% kcal come for CHO. I found this statement very interesting

and it has actually helped us with some of our Diabetics who believe and

follow a low carb diet (Atkin's or South Beach where they restrict to

only 20 g CHO per day).

Beth Whelan, MS,RD,LD

Outpatient Dietitian

Harbin Clinic

office: (706) 378-8163

fax: (706) 238-8037

 

Re: (unknown)

I got the number from an article in a diabetes management publication,

which stated a minimum of 130 g CHO daily. I think it was an increase

from 100 g previously. I figure pts eat ~1000-1200 kcal per day,

provided 50% of kcal come from CHO it adds up to somewhere around 130 g

daily.

Letendre, MS,RD,LD

Bariatric Surgery Program

Dept. of General Surgery

(603)650-8810

[Guest guest]

Dear ,

What a beautiful tribute to your daughter and her family. We will be praying

for her - and for you.

I was unable to figure out how to send this to you privately, but I did want to

pass along some information. This isn't a product endorsement, but I did

recently see something related to cancer that I wanted to pass along

I would encourage you to research glyconutrients and cancer.

www.glycoscience.com . I recently saw a Cancer video describing research on

glyconutrients and cancer that I would want someone to tell me about if I had

cancer...This is a relatively new science, but was recently included in Harper's

Anatomy (I'm not sure this is the right book) that medical students study.

Doctors who graduated in the class of 2002 would be familiar with it; other

doctors may or may not know about it.

Mannatech is the company that is doing research on glyconutrients

www.mannatech.com . A German scientist won the Nobel prize several years ago

for discovering that sugars are used by the body for intracellular

communication. This has been found to be especially important in the immune

system and how the body identifies and gets rid of the cells that aren't

supposed to be there - like cancer cells. (As you can tell, I'm not a biologist

or physician, and I don't fully understand this technology. I do know that if I

had cancer, I would want someone to tell me about this because it has helped a

lot of people).

I wish I could better explain this. It is not meant as a treatment for cancer,

but as a way to enhance the body's immune functioning to help the body heal

itself. In the tape I saw, it talked about people who use it while they are

doing chemo or other therapies, and how many found the side effects from

conventional therapies were less of a problem than otherwise...It is also used

in non-cancer situations where the body needs to work toward healing itself.

If you would like more information, let me know...I know people who can explain

this much better than I can. Again, I apologize for using the group to post

this, but I didn't know how to get in touch with you individually. I would want

someone to tell me about this if I had cancer or was in a similar situation to

your daughters; that is my only motivation.

May God bless , her children, and your whole family during this time. We

will also pray for the doctors' discernment and wisdom as they figure out what

needs to be done next.

, mom to and

www.creativespark@...

[ ] (unknown)

Garrett Neugent is a very special young man. He is 7. Spastic Quad

CP. He needs a lot of special care. He is my Grandson and the reason

that the Miracle Mountain Treatment Center was founded.

Neugent is a very special Mom (divorced) who provides that

special care. She is 35. is my daughter. She also has two other

children, (2) with her black stars for eyes and Trey (4), far

advanced in his intelligence who made the statement when asked if he

wrote a letter telling Santa what he wanted " I don't need to ask Santa

for anything, Jesus provides everything I need. "

On Wednesday, will be having surgery. She has an ingrowing

tumor on her lower spine. It is almost 1 1/4 inches in diameter and

it has eaten into the nerves. She is now in a lot of pain. We will

not know if it is malignant until the surgery. If it is not, they

will remove it. If it is, they cannot complete the surgery. We do

not know why these things happen, we certainly do not blame God. We

do know the power of prayer, especially when many join together with

the same prayer.

We are asking for your prayers for . We do not want pity, only

prayers. is one of the strongest women I have ever known,

providing such a wonderful example for so many others. She has so

much love for all Mothers of Special needs children. She is needed by

Garrett and her other children.

I will be putting this on other lists today. Some of them will scorn

me or get upset because this is off subject. However, if it generates

prayer from one more person who will pray for my daughter, it has

served its purpose.

Hartsoe, proud Father of

=======================================================

[Guest guest]

What about the conversion of stored fat? does it count towards brain function?

Cheryl

-----Original Message-----From: Neil and Sandi Birch [mailto:festus@...]Sent: Monday, May 10, 2004 2:47 PM Subject: Re: (unknown)The RDA for CHO is 130 g/day for good brain function.Sandi Birch, RD LDEIRMC, Idaho Fallsneilandsandi@... Re: (unknown)> I got the number from an article in a diabetes management publication,which stated a minimum of 130 g CHO daily. I think it was an increase from100 g previously. I figure pts eat ~1000-1200 kcal per day, provided 50% ofkcal come from CHO it adds up to somewhere around 130 g daily.>> Letendre, MS,RD,LD> Bariatric Surgery Program> Dept. of General Surgery> (603)650-8810>>>>>

[Guest guest]

8 ounces of juice daily is exactly what we recommend in weight mgmt. this appears to be right on the money. also, within intervention materials that i have written for our local university, we recommended no more than 6 ounces ( a serving) on the food guide pyramid.

-----Original Message-----From: .D.Letendre@... [mailto:.D.Letendre@...]Sent: Monday, May 10, 2004 2:12 PM Subject: Re: (unknown)We rec. no more than 8 oz. juice daily, preferably closer to 4 oz. daily. Generally pts don't have fresh fruit until they are ~4-6 weeks out. 4 weeks out for melons and soft fruits. 6+ weeks for apples, etc. - I think the guidelines look good. You may consider adding an explanation about what you mean by a serving of CHO, vegetable, etc. Do you think this meal plan provides enough CHO? I generally rec. 130 g CHO daily. Maybe separating out dairy from the meats would provided the extra CHO needed. Letendre, MS,RD,LDBariatric Surgery ProgramDept. of General Surgery(603)650-8810

[Guest guest]

It can, but "fat burns best in the flame of carbohydrate." It requires at least 100 gm of CHO/d for complete combustion of Fat. Without this minimum CHO you have incomplete breakdown of fat, resulting in ketones instead of glucose. While ketones can be used as fuel they are not preferred by the brain.

Sally Hara, MS, RD, CDEPrivate practiceKirkland, WAsallyhara@...

Re: (unknown)> I got the number from an article in a diabetes management publication,which stated a minimum of 130 g CHO daily. I think it was an increase from100 g previously. I figure pts eat ~1000-1200 kcal per day, provided 50% ofkcal come from CHO it adds up to somewhere around 130 g daily.>> Letendre, MS,RD,LD> Bariatric Surgery Program> Dept. of General Surgery> (603)650-8810>>>>>

[Guest guest]

MacKechnie-

I read through your education materials and thought it was great- an awsome

tool! The only thing I had trouble with was the second stage may read better if

you say-- " dont eat and drink at the same time " instead of the sip word-etc..

Great Job!

Eva H. RD LD CNSD NeighborCare Nutrtition Support Coordinator

301-362-7840

[Guest guest]

As professionals we know that ketosis is an abnormal state of metabolism and is not the preferred fuel for the brain. Does anyone know the detrimental effects of using ketones as the major fuel source for the brain? This is the first question one usually gets when we relay this info. to the general public.

-----Original Message-----From: Sally Hara [mailto:sphara@...]Sent: Tuesday, May 11, 2004 2:00 AM Subject: Re: (unknown)

It can, but "fat burns best in the flame of carbohydrate." It requires at least 100 gm of CHO/d for complete combustion of Fat. Without this minimum CHO you have incomplete breakdown of fat, resulting in ketones instead of glucose. While ketones can be used as fuel they are not preferred by the brain.

Sally Hara, MS, RD, CDEPrivate practiceKirkland, WAsallyhara@...

Re: (unknown)> I got the number from an article in a diabetes management publication,which stated a minimum of 130 g CHO daily. I think it was an increase from100 g previously. I figure pts eat ~1000-1200 kcal per day, provided 50% ofkcal come from CHO it adds up to somewhere around 130 g daily.>> Letendre, MS,RD,LD> Bariatric Surgery Program> Dept. of General Surgery> (603)650-8810>>>>>

[Guest guest]

As a person with Diastrophic Dwarfism, I have a difficult time doing Pilates.

I can do some of it and I do feel much better afterwards, but there's alot

that I just cannot do.

I found that doing water aerobics in my pool last summer was easy, enjoyable,

and I got good results! So.. water aerobics may be something some of yall

might want to look into...

Amy

[Guest guest]

HI kim,

here, I just read your post. I do not believe the school can legally turn

down your request for a 504 plan. that is your daughters right under the No

child Left behind Act. As for the advocate I don't think there is a charge, you

should tell the school you want an Impartial Hearing , ASAP if they won't give

you a 504 plan that you put in place, you ask for the accommodations your

daughter needs and they do it, no choice. The Impartial Hearing you will ask for

what your daughter needs, and it won't be very much( there are kids out there

that need much more than our kids, and get it) you will most likely win it and

the school had to pay your lawyers fees as well as theirs. Schools usually don't

want to go this route. I cannot understand a schools reluctance to do this

simple thing. And if you get a note from her Dr, saying what accommodations

he/she/you want they don't have a leg to stand on. Obviously we have been very

lucky with our school, has had a 504 plan since Kindergarten and we

update and usually add to it each year. They have tried to say no to certain

things and I stand firm and don't budge, we get what we want. My mom is an

Education Lawyer, she says schools can try, but they cannot not give your child

what she needs. they may try to modify things but that is all. If you need any

help please let me know, I can ask Mom for any advice needed. good luck, don't

let them push you around. In my opinion( and I am a nurse) your school nurse

knows very little about PID's and needs to look at what is in the best interest

of the child. Sorry for spouting off, schools make life so hard for a lot of us,

when it isn't much we are asking.

, mom to - was Sel IgA, now CVID( new), asthma, gerd

(unknown)

Sandy,

Thank you for setting up the digest. I fowarded 's e-mail to

you through the moderator's address. She looks forward to

participating.

,

Jess has had aseptic menengitis several times. The only way we found

to avoid it is to run her infusions very, very, very slowly, heavily

hydrate before, during, and after infusions, and we pre-medicate with

motrin, benedryl, and zofran. I hope that you can find a combination

of things that work for your child. It took us awhile to figure out

the right combo for Jess.

Martha,

I hope that your daughter and Jess can get connected through the

digest. Hopefully, they can help each other deal with being in high

school and having a serious chronic illness. I hope that all

the 'teenage' kids can get to know each other and offer each other

support.

As for 's 504. The school totally turned down a 504. They

were fairly rude to begin with. The nurse wanted to know what

's current Igg level was ... I patiently replied that it did

not matter what her total Igg level was since the antibodies that her

body produces do not work and that the only working antibodies are

the ones that are given to her. About half an hour into the meeting

they seemed to warm up a little. They did agree to make some

accomodations. (Although they did this year too!) The administration

apologized for the problems we had and assured me that things would

be different next year, but they would not change 's grades

this semester or write a 504. I don't know what to think. They

sound sincere, but I don't know if I can trust them. I have gotten a

lot of mixed reactions from people. Some think that I should give

them one more chance and some think that I should just get an

advocate or attorney (like I can afford that!). I AM SO CONFUSED!!!

In the meantime, Jess is running a temp again and feels like crap AND

has finals beginning on Tuesday! I am soooooo tired of this. Enough

griping!

Kim, mom to , selective antibody deficiency

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

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ID/messages>

[Guest guest]

venice beach is a blast! the older ones will enjoy it, especially on

weekends, but, lots of crowds. lots happening. hold on to the kids and your

purse.

not to sound paranoid, but, it is l.a. and just regular stuff like any other

major city. enjoy! vicki in los angeles

[Guest guest]

Jodie, please visit our message archives on the groups PNW_Bandster

website, and also visit our calendar there. If you go back and only read

a week or two of the posts, you'll be all caught up on our events.

Announcements come out regularly, too, so you won't miss a thing.

Barb S., one of the moderatorsOn Sun, 30 May 2004 19:18:11 -0000, babejod

<jodie0119@...> wrote:

> When is the picnic, and what is Everett Soup Night?? I really want

> to get involved in everything I can, so please fill me in!!!!!

> Jodie

>

[Guest guest]

Isn't easy bruising a sign of mercury poisoning?

In a message dated 5/30/2004 9:33:31 PM Eastern Daylight Time,

cgetino@... writes:

He has low Vit. C and B5, and also he needs glutathione. Is bruising

a red flag for something else? Could it be due to enzymes (he has

been taking Zyme Prime and Peptizyde for about 2 weeks and a half,

started No Fenol yesterday)

[Guest guest]

Dans un e-mail daté du 30/05/2004 21:46:31 Romance Standard Time,

beewilder@... a écrit :

> - Use whole grains that are allowed, i.e. buckwheat, millet, brown

> rice, quinoa and amaranth and nuts (except peanuts and pistachio that

> are loaded with fungi) that have been prepared by soaking, sprouting

> or sour leavening to neutralize phytic acid (blocks minerals) and

> other anti-nutrients. Exceptions are millet and brown rice that have

> long cooking times, which removes phytic acid, etc.

I beg to differ on this point: when candidiasis results in severe food

allergies, whole cereals are not good because they are allergenic.

Allergies are not random: they can vary individually but I have never heard

people being allergic to pears for instance. Some foods are known to be

allergenic, and although you might not be allergic to all allergenic foods, it

usually to some known allergenic foods one develops an allergy to.

francine

[Guest guest]

Congratulations on your upcoming surgery, Mark! I love the "Lap with a Wrap"!!! lol! I'm sorry you have A, but I'm glad you know what it is & are getting excellent care. Keep us posted! Cindi in PA

[Guest guest]

If you can read this, you are getting the messages. All you have to do

is send an email to , and we all see your

message. When we send messages, you get those too.

Welcome!

Hugs,

(unknown)

How would I get messages from people? I don't understand.

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[Guest guest]

Excuse ME??? They can do inclusion in ANY class if they know how to modify and

adapt curriculum and they most assuredly should. was included in middle

school for 4 hours--science, social studies, music, and an elective (art one

semester, computer the next). He was in the sped class for reading and math

only. The teachers would use the state guidelines and we would meet (or they

would call) to discuss what things we felt absolutely MUST know from his

planned lesson. He or she would then adapt. He had a para go with him and

another child to the regular class. It worked exceptionally well and

has a really good grasp of U.S. geography and the solar system. They need some

workshops on inclusion.

Elaine

(unknown)

My son just finished his first year in middle school. He was

fully included in elementary school but this year he was put in a 12

to1/1 class. 12 students ,1 teacher at least 1 aide. He had pull outs

to science and social studies. Everything else was self contained.

Next year is slotted for full selfcontained class. I am making

waves because I want him included into the school as much as

possible. They are trying to tell me he can't do it because he is

over whelmed and it causes bad behaviors. i know it didn't because

his behaviors were in the spec. ed settings and not in the pull out

classes. They say he needs consistancy or he will shut down. They are

laying a heavey guilt trip on me saying its in his best interest to

put him in this class full time. In my heart i am not sure whats

right But I feel as though I don't want to give up on having him

included in the school. So I would like some comments on how middle

school inclusion is working for your child. It could be for partial

inclusion or full. I am not sure i want fully included because

he does some very good acedemic work in this class. I have to come up

with my expectations from inclusion by june 20. My mistake was I

missed the IEP meeting in march because Iwas sick and my mom has had

many health problems scince nov. and did not pay attention to what

was going on. Never again will That happen. But they are going to

find out I won't give up. I am having a lot of trouble getting

thoughts together so am asking for your letters to show or pick some

key thoughts from. I will be looking back in the past posts also.

Thanks in advance for any help.....Pam mom to 12 going into 7th

grade.

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

[Guest guest]

Dear ,

We have been praying for and I wondered how things are going...

Blessings on your family -

[ ] (unknown)

Garrett Neugent is a very special young man. He is 7. Spastic Quad

CP. He needs a lot of special care. He is my Grandson and the reason

that the Miracle Mountain Treatment Center was founded.

Neugent is a very special Mom (divorced) who provides that

special care. She is 35. is my daughter. She also has two other

children, (2) with her black stars for eyes and Trey (4), far

advanced in his intelligence who made the statement when asked if he

wrote a letter telling Santa what he wanted " I don't need to ask Santa

for anything, Jesus provides everything I need. "

On Wednesday, will be having surgery. She has an ingrowing

tumor on her lower spine. It is almost 1 1/4 inches in diameter and

it has eaten into the nerves. She is now in a lot of pain. We will

not know if it is malignant until the surgery. If it is not, they

will remove it. If it is, they cannot complete the surgery. We do

not know why these things happen, we certainly do not blame God. We

do know the power of prayer, especially when many join together with

the same prayer.

We are asking for your prayers for . We do not want pity, only

prayers. is one of the strongest women I have ever known,

providing such a wonderful example for so many others. She has so

much love for all Mothers of Special needs children. She is needed by

Garrett and her other children.

I will be putting this on other lists today. Some of them will scorn

me or get upset because this is off subject. However, if it generates

prayer from one more person who will pray for my daughter, it has

served its purpose.

Hartsoe, proud Father of

=======================================================

[Guest guest]

Hi Jim,

I don't know anything about taking a airplane I had my operations five years a TRHR and TRKR two years ago I never been on a airplane but I did get this card from my dr that has on it what type of operation you had I guess you show it to the guy that takes care of the metal machine . where you walk through . Well I wish you luck on your operation and a speedy recovering.

juneflower60 or SusieJim <davisjj@...> wrote:

I'm wondering how soon after my THR I might be able to travel by plane. I'd like to visit my son in Tucson, which is a four-hour ride from here in Atlanta. I imagine one of the big concerns would be sitting upright that long. Getting out to his house would take care of a lot of my post-op care concerns about living alone. I realize that everyone recovers at different rates, but I'm wondering if anyone out there has any ideas or experience with airline travel after a THR.Jim Gainesville, GA

[Guest guest]

>I'm wondering how soon after my THR I might be able to travel by

>plane.

Jim,

If you were past some of the initial recovery and were say using a cane, I think a short plane trip wouldn’t be too bad. The thing with a THR is that you get tired of sitting in one position. There are good days and bad days too. One day I felt great. The next day I had pain. The muscles take time to heal and they can get very achy when you are in one position. I was 6 weeks post op and drove a friend of mine around Miami Beach which is a good ways from my house. I was exhausted when I got home. I am 47. So I’m young. I haven’t had much need of my cane now. I have had some bad days though where I was in pain. I think more than anything, I like to take it a bit easy just so that I know I can take a nap if I need to and I don’t feel stressed out. IOW, I would hate to be expected to move around and go and do. I want to be close to a place where I feel like I can rest and recover. It isn’t worth it to me to go through this only to ruin it because I’m in a hurry. I am speaking about this from experience. I was going to go to visit my parents and we are postponing that trip for a while.

Just my experience,

Vera

[Guest guest]

Jim: you need to check w/ your surgeon to see what he suggests. You

may be on restrictions post-op anesthesia, and w/ blood thinners. But

your son could come stay w/ you for a while, and then drive you back to

Tucson....taking lots of breaks to get out and walk around, and doing

isometric exercises in the car to prevent blood clots. That would really

be a long drive....

A call to your doctors office would answer your question quickly.

Marilyn

Jim wrote:

>I'm wondering how soon after my THR I might be able to travel by

>plane. I'd like to visit my son in Tucson, which is a four-hour ride

>from here in Atlanta. I imagine one of the big concerns would be

>sitting upright that long. Getting out to his house would take care

>of a lot of my post-op care concerns about living alone. I realize

>that everyone recovers at different rates, but I'm wondering if

>anyone out there has any ideas or experience with airline travel

>after a THR.

>

>Jim

>Gainesville, GA

>

>

>

>

>

>

>

[Guest guest]

Hi Vera,

I too live in Florida. If you were happy with your surgeon I would appreciate his name. Thanks.

Betty

[Guest guest]

Betty and Vera, where do you live in Florida? I live near Winter Haven and know a couple of good sugeons.

Helen

Re: (unknown)

Hi Vera,I too live in Florida. If you were happy with your surgeon I would appreciate his name. Thanks.Betty

[Guest guest]

hAD MY knee done on Mon, a nd a friend brought in a laptop.....but I can't get used to the keyboard, so pardon the mistakes, yet all. Can fully straighten the knee, straight leg raise, no swelling to slpeak of, walking when i WANT

TO and am on rehab for a cxouple of days.

No pain meds cuz they drop my pressure.....terrible IV access, so off those. A couple of words of advice.....

do three things as soon as you;re out of recovery room.......begin moving your leg in and out, pumping your ankle, and doing quad sets....even if its just when the CPM machine is at full extension. this is what keeps the swelling down. The cuff they use at your thigh from the CPM machine make an excellent exercise device.....you can hook it under your foot and move your leg anywhere.

can't talk any longer as the guy who lent me the laptop needs to get online.....

y