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Dear tammie

I posted my thought on our experience on oct 12. @ 11:24pm (sorry not

up to re-typing. plus I already deleted it. if you can't find my post, ask

me to write again.

yvonne and bryan

Re: [ ] (unknown)

>Has anyone done Dr. Goldberg's protocal? It makes

>sense to me but so does chelation.

>

>Thanks,

>Tammie

>

>>

>>

>> __________________________________________________

>>

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Tammie - This is from another , also with a Dr. G. experience - one and

a half years' worth. If you're interested, feel free to e-mail me. I feel bad

criticizing a doctor on a list, but not so bad one-to-one.

(in California)

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Thank you for your post. I found it and appreciate

your experience. We are to go to Dr. G. in a couple

of weeks and I am having second thoughts. I believe

that he is only piece of the whole puzzle. I also

believe in supplements. I think that he is great at

working with gut issues. In your opinion would you

suggest still going to see him? Or, could a gastr dr.

do the same things? I have had trouble communicating

with that office and that has bothered me some.

I really appreciate your input.

Tammie

--- Marco <moncherie@...> wrote:

> Dear tammie

>

> I posted my thought on our experience on oct

> 12. @ 11:24pm (sorry not

> up to re-typing. plus I already deleted it. if you

> can't find my post, ask

> me to write again.

>

> yvonne and bryan

>

>

> Re: [ ] (unknown)

>

>

> >Has anyone done Dr. Goldberg's protocal? It makes

> >sense to me but so does chelation.

> >

> >Thanks,

> >Tammie

> >

> >>

> >>

> >>

> __________________________________________________

> >>

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In a message dated 10/21/01 1:32:07 PM Pacific Daylight Time, ccmcphe@... writes:

Not the places I lost! Under my arms, chest, legs, and other places I

can't mention! Head hair still there (last time I looked)

-Clyde

Last time you looked? I find that I can go several days without looking in the mirror. (However, I'm a jobless female with a short haircut, so keeping clean is and tidy is all I need to do.) I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look." Maybe next month I'll get around to boxing up my fancy work clothes and high heels and sending them off. I've been saying that for quite a while, of course.

Harper (AIH 5/00)

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I've done the fatty acid test...very helpful, except the dr's rarely know

how to interpret them. Purchase " THE ZONE " which talks about fatty acids

Kathy

[ ] (unknown)

> Hi,

>

> Has anyone here in the group had any experience with BodyBio? The

> tests sound very promising. The link is at

> http://www.bodybio.com/products.html

>

> Thanks,

>

>

>

>

>

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In a message dated 10/21/2001 6:05:00 PM Eastern Daylight Time, flatcat9@... writes:

I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look."

Oh how I wish I had that outlook early on! Seven years & I'm still working on it! Thanks! I'll paste that one on the computer as a reminder.

Hugs

Judie

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In a message dated 10/22/01 4:12:54 PM Pacific Daylight Time, JudieV@... writes:

:

I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look."

Oh how I wish I had that outlook early on! Seven years & I'm still working on it! Thanks! I'll paste that one on the computer as a reminder.

Hugs

Judie

Hey, I'm still working on it. This week I will visit relatives I haven't seen in a long time, and I feel strange packing those huge pants with elastic waists, big overblouses, and lace-up shoes I bought this year, instead of the little red skirt and heels I liked last year. I don't look forward to the look of surprise on their faces. My brain knows that's silly, but still - - -. Other times I feel pleasantly in disguise, as if I could go anywhere, see anything, without being noticed. I once heard Ella Fitzgerald, in her later years, sing Girl from Ipanema, lingering wryly on the line "but you don't see me." I'm working toward recognizing the freedom in being inconspicuous, or being noticed only as that fat lady with the sunhat. I can be a neighborhood character! And I'm alive!

Harper

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I haven't got any miracles for you. But I can tell you that all behavior is

communication. Is your son verbal? Even if he's verbal he may not be able to

tell you exactly what is going on. That's the hard part about autism.

(my son, who is 11) is verbal, using mostly full sentences now (from just a

couple words 2 years ago), but he still doesn't volunteer information easily and

can't tell me when he's having trouble. Some times he acts out because the

material I am trying to teach him is too hard, some times it's because he's

bored because the material is too easy. Some times it's because of a break in

his routine (I just posted about something as small as me taking him to Sunday

school instead of his dad). Maybe your son is like mine, in that he can tell

the people that are honestly interested in him and want the best for him from

the people who are " putting in their time " and can't wait to be done.

I can't imagine a school suspending someone for behaviors. I would think you

have a case for not getting the free and appropriate education. That would just

prove that he needs a *qualified* person to be his aide, not someone off the

street, but someone who is skilled in handling autistic children.

I know I can't really offer any good advice, but just know I'm pulling for you.

I'll pray that this gets straightened out and you find out what's bothering your

son, and can fix it.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

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In a message dated 10/22/01 8:26:33 PM Pacific Daylight Time, scott_p@... writes:

I like the idea of being in costume because this is not us.

I'm getting to the point where I can say maybe that is me, and that's just fine. It took a while, though.

On another subject, I spoke with my gastroenterologist today, following my every-two-months (now) lab tests. He said he advises that I continue at 5 mg Prednisone for quite a while longer, perhaps forever. He said that 90% of the AIH patients he's had who've stopped Prednisone have relapsed, and dealing with the relapse is always difficult, requiring higher dosages than before.

I asked him why I began Prednisone at 80 mg (with 100 mg Imuran -- supposed to be 150, but the pharmacy made a mistake), when I hear many people speak of much lower doses. He said he finds that when people are quite ill, as I was, it seems to work well to begin at a high dose, monitor frequently, and then drop as soon as possible.

Harper (AIH 5/00)

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Ok, anybody have any thoughts. I am on the phone to our doctor regularly.

We are trying to find the right meds (if that's possible, I'm beginning to

wonder). I just can't believe this. From 2 1/2 years of successful full

inclusion to homebound to...what?

[Hochrein, Wayne]

Hello

In some ways this sounds very similar to our son, Zac, age 11.

Zac is a very nice kid, very happy, likes to please people and be helpful.

Not that he is always an angel. We began to notice un-acceptable behavior

during 3rd grade. Things like sitting down when asked to do something,

yelling, some aggressive things like pinching. School noticed some things as

well. It continued to get worse in 4th grade.

We got a behaviorist involved. We started by recording all inappropriate

behaviors and what was immediately before. We think in part he was

frustrated. I don't think he understood how long a task would be, when

doing something he would be doing forever, '5 more minutes' would mean the

same as '5 more years'. or maybe he just couldn't handle the 5 year wait.

Started rewarding good behavior. We struggled with the idea that we were

bribing him. We used the definition that if the reward is offered before

bad behavior it's a re-enforcement. For instance, if he comes in the door

from school, takes off his shoes, hangs his coat up, washes hands, then he

gets a juice box, that's a re-enforcer. So a reward up front is ok. Saying

'if you get off the floor' in the grocery store you'll get a pop is a bribe.

Another thing we did is set clear expectations. We made a visual list of

things that had to be done and then he would get a reward.

So we just made a list of things that he had to do, then would get his break

or his choice of activity.

We also but red dots behind the activities, and as he completed a task he

got to cover the red dots with green dots. When the dots were all green he

could move on. We also used allot of praise, like 'good job'. We had a list

of things to do before he got a juice box, after he put away his shoes he

got a green dot. Got him to check the list, hang up the coat, another dot.

etc.

In some ways it was more work, green dots here and there, but it was less

stressful and less of a power struggle.

We started this full force in around January of this year. The visual

schedule helped immediately in school. The dots for daily activities helped

but needed allot of reminders. I did notice an improvement when we did his

homework. He was more willing to sit down and do it when he knew how many

pages, what activities etc. This year in school they are using the dots in

a couple of places/activities otherwise he is working better for longer

periods of time. So we did this for about 6 months on allot of things. Now

we do it for things that we think might be a power struggle.

I hope this helps.

Wayne

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Hi ,

I hated to even read your post as I felt I was reliving my year from ----

last year with my 8 yr old son Zeb. I was running back and forth to school

sometimes 15 times a week. I can feel your desperation . He also was in a

inclusive placement and was doing well until. Has the school done a

functional behavioral assessment? Have you asked for a behavioral consult? We

had many reasons for Zeb's behaviors, an inappropriate aide that fueled his

anger and a control issue. The teachers actually lost control by giving in to

his wishes rather than giving a few appropriate choses. The reward system was

not done correctly and not enough constant praise, no cueing of transitions,

not enough sensory breaks, no peer tutoring and I could go on. Anytime a

child is placed on homebound tutoring consitutes a change of placement which

is the most restrictive. Did you agree to this placement? Were you home to

see him try to hit the aide? What exactly happened, get answers. Zeb would do

whatever it took to get mom to school. I was his comfort and represented

security. He hated school and had all kinds of escape behaviors.He had been

very successful in prior years and I knew there were valid resons for these

behaviors. I thought many times of just homeschooling but I can't fill that

social void. He is a very social child and enjoys his classmates. You didn't

give very much information on what grade he is in and to what degree he is

included in the general curriculum. Zeb was actually made to feel like a

visitor in his classroom and this did nothing to help him feel self

accomplished. I have worked very closely with the school to develop a good

program but having the only elementary student in this type of placement in

our district is not easy. Our district has no program to model from. Does

your district have a set program? I think you need to find out what goes on

in that classroom and get specifics on the behaviors and when.The school can

suspend him legally for up to ten days but I would get as much info as I

could and call a PPT meeting.It is hard enough to deal and work with our kids

but when your battling the district it is sometimes more than anyone can

handle.I pray you find some answers.

Charlyne

Mom to Zeb DS-? 8

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Harper,

Tonight I

was going through pictures as I am putting together a website of my experiences

with AIH and transplant. I am basically (in my mind) a regular, physically fit

person. Starting in 1992 I started blowing up then down (mostly up) from

prednisone. I never considered this blown up person myself, as I know who I am.

My sister and others have complimented me on how I coped with it. Actually I

ignored it because it isn’t me. I was comfortable enough with myself and enjoyed

being with people enjoy. I was not sexy and gorgeous anymore, but hat was ok, I

like the idea of being in costume because this is not us. It is the drugs, the

drugs that keep us alive. So relax, wear something comfortable and large and

have fun with your relatives. The point is you are alive! There is nothing

damaged about us. Just tired.

Patty aih

80 transplant 98

-----Original

Message-----

From: flatcat9@...

[mailto:flatcat9@...]

Sent: Monday, October 22, 2001

9:34 PM

Subject: Re: [ ]

(unknown)

In a

message dated 10/22/01 4:12:54 PM Pacific Daylight Time, JudieV@... writes:

:

I view my current

appearance as " being in costume " for a new role. I find that

approach to be much more comfortable than seeing myself as a damaged version of

" how I'm supposed to look. "

Oh how I wish I had that

outlook early on! Seven years & I'm still working on it! Thanks! I'll paste

that one on the computer as a reminder.

Hugs

Judie

Hey, I'm still working on it. This week I will visit relatives I haven't

seen in a long time, and I feel strange packing those huge pants with elastic

waists, big overblouses, and lace-up shoes I bought this year, instead of the little

red skirt and heels I liked last year. I don't look forward to the look

of surprise on their faces. My brain knows that's silly, but still - - -.

Other times I feel pleasantly in disguise, as if I could go anywhere, see

anything, without being noticed. I once heard Ella Fitzgerald, in her

later years, sing Girl from Ipanema, lingering wryly on the line " but you

don't see me. " I'm working toward recognizing the freedom in being

inconspicuous, or being noticed only as that fat lady with the sunhat. I

can be a neighborhood character! And I'm alive!

Harper

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Wayne ,

Just wanted to thank you for sharing this information on what you're

doing with Zac , I read something about the dots , but I did not

pursue the issue . This is amazing news , what an accomplishment .

Thanks.

Irma, 13,DS/ASD.

>

>

> Ok, anybody have any thoughts. I am on the phone to our doctor

regularly.

> We are trying to find the right meds (if that's possible, I'm

beginning to

> wonder). I just can't believe this. From 2 1/2 years of

successful full

> inclusion to homebound to...what?

> [Hochrein, Wayne]

>

> Hello

> In some ways this sounds very similar to our son, Zac, age 11.

> Zac is a very nice kid, very happy, likes to please people and be

helpful.

> Not that he is always an angel. We began to notice un-acceptable

behavior

> during 3rd grade. Things like sitting down when asked to do

something,

> yelling, some aggressive things like pinching. School noticed some

things as

> well. It continued to get worse in 4th grade.

>

> We got a behaviorist involved. We started by recording all

inappropriate

> behaviors and what was immediately before. We think in part he was

> frustrated. I don't think he understood how long a task would be,

when

> doing something he would be doing forever, '5 more minutes' would

mean the

> same as '5 more years'. or maybe he just couldn't handle the 5 year

wait.

>

> Started rewarding good behavior. We struggled with the idea that we

were

> bribing him. We used the definition that if the reward is offered

before

> bad behavior it's a re-enforcement. For instance, if he comes in

the door

> from school, takes off his shoes, hangs his coat up, washes hands,

then he

> gets a juice box, that's a re-enforcer. So a reward up front is ok.

Saying

> 'if you get off the floor' in the grocery store you'll get a pop is

a bribe.

>

> Another thing we did is set clear expectations. We made a visual

list of

> things that had to be done and then he would get a reward.

>

> So we just made a list of things that he had to do, then would get

his break

> or his choice of activity.

>

> We also but red dots behind the activities, and as he completed a

task he

> got to cover the red dots with green dots. When the dots were all

green he

> could move on. We also used allot of praise, like 'good job'. We

had a list

> of things to do before he got a juice box, after he put away his

shoes he

> got a green dot. Got him to check the list, hang up the coat,

another dot.

> etc.

>

> In some ways it was more work, green dots here and there, but it

was less

> stressful and less of a power struggle.

>

> We started this full force in around January of this year. The

visual

> schedule helped immediately in school. The dots for daily

activities helped

> but needed allot of reminders. I did notice an improvement when we

did his

> homework. He was more willing to sit down and do it when he knew

how many

> pages, what activities etc. This year in school they are using the

dots in

> a couple of places/activities otherwise he is working better for

longer

> periods of time. So we did this for about 6 months on allot of

things. Now

> we do it for things that we think might be a power struggle.

>

> I hope this helps.

>

> Wayne

>

>

>

>

>

>

>

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Wayne,

thanks for the info on the red and green dots. I recall learning that a few

years ago but had forgotten it. I cut up parts of your post and sent it to my

slp, minus your name and all. I am thinking we can use the same strategies to

get Angel through speech sessions and other undesired activities. your note

about whether your son could understand the length of time a task would take

really made me assess this in my daughter. I have been using an egg timer to

help her to understand how long she will need to wait for her turn on the

computer, as well as when her turn is has completed. I am thinking that using

the egg timer to complete speech activities (beginning with very short intervals

and then increasing) as well as giving her a visual schedule of speech

activities, along with the dots, will likely be a great help to her. I also

liked the explanation of rewards vs bribes.

Thanks for sharing this strategy.

Cheryl,

mom to Angel, 5, DS-ASD

RE: (unknown)

Ok, anybody have any thoughts. I am on the phone to our doctor regularly.

We are trying to find the right meds (if that's possible, I'm beginning to

wonder). I just can't believe this. From 2 1/2 years of successful full

inclusion to homebound to...what?

[Hochrein, Wayne]

Hello

In some ways this sounds very similar to our son, Zac, age 11.

Zac is a very nice kid, very happy, likes to please people and be helpful.

Not that he is always an angel. We began to notice un-acceptable behavior

during 3rd grade. Things like sitting down when asked to do something,

yelling, some aggressive things like pinching. School noticed some things as

well. It continued to get worse in 4th grade.

We got a behaviorist involved. We started by recording all inappropriate

behaviors and what was immediately before. We think in part he was

frustrated. I don't think he understood how long a task would be, when

doing something he would be doing forever, '5 more minutes' would mean the

same as '5 more years'. or maybe he just couldn't handle the 5 year wait.

Started rewarding good behavior. We struggled with the idea that we were

bribing him. We used the definition that if the reward is offered before

bad behavior it's a re-enforcement. For instance, if he comes in the door

from school, takes off his shoes, hangs his coat up, washes hands, then he

gets a juice box, that's a re-enforcer. So a reward up front is ok. Saying

'if you get off the floor' in the grocery store you'll get a pop is a bribe.

Another thing we did is set clear expectations. We made a visual list of

things that had to be done and then he would get a reward.

So we just made a list of things that he had to do, then would get his break

or his choice of activity.

We also but red dots behind the activities, and as he completed a task he

got to cover the red dots with green dots. When the dots were all green he

could move on. We also used allot of praise, like 'good job'. We had a list

of things to do before he got a juice box, after he put away his shoes he

got a green dot. Got him to check the list, hang up the coat, another dot.

etc.

In some ways it was more work, green dots here and there, but it was less

stressful and less of a power struggle.

We started this full force in around January of this year. The visual

schedule helped immediately in school. The dots for daily activities helped

but needed allot of reminders. I did notice an improvement when we did his

homework. He was more willing to sit down and do it when he knew how many

pages, what activities etc. This year in school they are using the dots in

a couple of places/activities otherwise he is working better for longer

periods of time. So we did this for about 6 months on allot of things. Now

we do it for things that we think might be a power struggle.

I hope this helps.

Wayne

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Hi tammie,

It a hard call for me to know if Dr G is right for you? I can't offer any

help with a castro Dr. We have never used one. Before we went to see Dr G.,

I already had some friends who had great success with Dr G. protocols. That

is why we went to see Dr G. As time went one, I also had other parents who

had some improvements, just like us. We all have been seeing Dr G for the

same amount of time(1year to 1 1/2). Every one of these kids are using

differnt protocols. I can only tell you our story.

I think Dr G has the right idea about the virals and fungal are the cause

for some problems our kids have. I think he is a good choice if you can't

find a Dr who will work with you on gut bugs and get the immune system

healthy. All the blood work before the first office visit is worth getting.

It's a lot of test but you get a lot of information. I also liked the fact

that Dr G did run blood work to see how our son was doing with the meds. We

started out slow and added meds and took meds out based on how our son was

doing. Dr G does want to make the kids better. I was about to begin

kutapressin but found the list group. I thought why keep giving him

something stronger and stronger to get the viruses/fungal undercontrol. I

think 1 year is plenty of time to give Dr G. Why isn't he getting better? I

finally figured out my son will never be able to keep yeast, viruse ect...

under control on his own. I have to get rid of the mercury and all the other

metals in his system.

We got our hair test back and we meet the counting rules. We are in the 97%

range with heavy metals. It made sense the more and more I read about

chelation. My son never had ear infections, developed just fine for about 12

months. Walked, sat, crawled all on time. I guess by the time he was 18

months I knew something was wrong....no talking and weird behavior popped

up. I really poisned my son by vaccacions.(we got them all).

Get the hair test done. It might help you make a decision and is easy to do.

Again, I do not regret the time spent w/ Dr G. it has helped us. Also if you

do go see Dr G, DO NOT mention Chelation. He might drop you as a patient. I

never had a problem getting info from Dr G. One parent said they always gave

him a hard time about getting copies on lab test. On one occassion, they

missed an appointment.....the office hassled him about re-newing is meds for

the month.

We have not stared chelation. we are still pre-loading w/supp. We also need

to get lab test ordered to check out liver and kidney function. keep reading

the list to get more infor on chelation. Like moria says: " it will make

sense " Other parent use chelation and SSRI together. Both protocols can

compliment each other. but Dr G will not be the Dr to help you.

Please ask any questions you might have. I don't mind. Sometimes I take a

while. not reading posts everyday. My kids keep me busy,

best wishes...yvonne

Re: [ ] (unknown)

>>

>>

>> >Has anyone done Dr. Goldberg's protocal? It makes

>> >sense to me but so does chelation.

>> >

>> >Thanks,

>> >Tammie

>> >

>> >>

>> >>

>> >>

>> __________________________________________________

>> >>

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In a message dated 10/22/01 5:07:57 PM Eastern Daylight Time,

naylorj@... writes:

<< Jon has been suspended for 10 days- no particular incident but cited for

harming school personnel due to extreme behaviors. This is so out of

control. Jon is out of control and right now I could be to. I can't believe

they didn't call me and talk to me at least- I've been at school morning,

noon, and night daily trying to work through this and they can't even talk to

me about this. What a bunch of chiken..... >>

Hi :

My son, Gene, is 13. When he turned about 10, after pretty smooth sailing

in a general ed classroom, he started shouting more, refusing to do things,

and in general we needed to start grappling with what was causing this.

There is definately a reason why Jon is not liking school and is having

difficulties. Where do you live? Are there any people who you could ask to

come in and look at the situation? any inclusion specialists? any people

like an autism consultant from an ASA chapter? With our son, we noticed that

when his behavior started to get worse, no one had a clue what to do. The

social worker was sold on time out....which I fought against. I don't

believe that teaches Gene anything. They were putting him in time out alot

and he was not happy. At this time, we also had no ongoing daily schedule

board for him that could be carried around by his aide. What I mean is, he

needs to know in an ongoing fashion what is coming next. We did not go to a

reward system, rather three activities like reading, math and writing was

followed by a " preferred " activity on his schedule that he might

choose...like take a walk, look at the fish, etc.

So, now he uses a board with velcoed word cards that state the subjects.

After he completes the task, he takes it off and puts it in the " all finished

- pocket " If he is struggling to get through, we show him the thing he

wants to do is coming up..this is even lunch or snack time inaddition to look

at fish or take a walk. In addition to that, we count Gene down to finish a

task and this year use a visual timer.

His sensory needs were also being overlooked at that time. He had trouble

focusing and sitting and he was rocking alot. So, we needed to put a good

inclusive sensory diet in place for him.which included getting a good sensory

integration evaluation.

There could be many reasons Jon is acting up. They are undoubtedly somehow

related to how they are handling things at school...and if he is pretty

nonverbal...related to his inability to communicate his wants and needs and

thoughts.

Re: his suspension, I believe you need to request a manifestation

determination meeting. First, they cannot just suspend him with out giving

you a copy of an incident report that led to the suspension or a copy of the

behavior log that they are keeping apparently. You need to get a complete

copy of his records to review and this is your right definately under FERPA.

The purpose of the manifestation determination meeting is to determine if his

disabilitiy is the cause of the behavior.. If it is, they should not be

suspending him, but instead calling an IEP to discuss completeing a positive

behavior support plan. In IDEA 97, PBS plans were emphasized as a way to keep

children from being suspended. If they tell you that his behavior is not

related to his disabiltiy, strongly object and do it in writing.

The problem here is they don't know what is going on with Jon and their

answer is to take him out of the picture instead of working hard to figure

out what is causing it. They should be considering in the IEP. a functional

behavior assessment, to really look at what is going on in his day. I am

sure if you could spend a day there, you would be able to spot what is

setting him off.

There are two good sites to go to in help with this suspension problem and to

help you move forward in getting your district to create and put a positive

behavior support plan in place. This plan should include all the strategies,

like picture boards, transitions, etc that it will take to help him. Here

are the sites: www.reedmartin.com. is one of the best civil

rights attorneys around and his site is packed with info. You can sign in

and chat with him on Thursday evenings at 9PM. Go in early because it is

hard to get in after 9. Also, try http://advocacyservices.homestead.com/

This is the site of a disability advocate who is wonderful. She lives in GA

and has a son with autism who is 9 I think. She not only knows the law, but

knows alot of strategies that help kids with autism be successful in school.

Her son is in general ed too.

Hope this is helpful.

Lauri in MI

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At 03:25 PM 10/23/01 -0500, you wrote:

>The one thing that I do think that we have issue with is that Jon has a

functional behavior plan and they didn't really follow it and instead let

things spiral totally out of control. What was the point of writing it if

they weren't going to use it. We'll see.

>

:

What did the slip on the suspension notice say the reason was for the

suspension? I believe they have to give a timeline for a meeting and a plan

for bringing Jon back to school as well. (I'm not well-versed in this area).

If they did not follow the behavior plan that was written based on a

functional behavior analysis, get that on the table fast. And then document

the meeting either by notes, tape, or whateve.r Take your own notes/minutes

of any phone conversations and meetings. Send them around and give them 10

days to let you know if these minutes are inaccurate. IF they don't

respond, you can assume it to be true. While it can be argued about in

court (usually saying they didn't receive it), you can point to the

sentence that gave them 10 days to offer corrections. Keep a log of

conversations and phone calls.

Behavior is the big loophole in IDEA for excluding kids with disabilities.

They're trying to use it--whether justified or not. And yes, they're going

to tell you that htis is not the " least restrictive environment " for Jon

because his behavior is inappropriate......it's pretty clear where they're

heading. Your option is to establish that positive supports are not in

place......

I'm so sorry.

j

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I used to live in Southeast Missouri (Cape Girardeau), and I went through a few

hard times. had hurt his ankle the weekend before and on Monday had

refused to walk the half a block to the babysitter's house so they had asked

that someone come pick him up from school (I didn't know he hurt his ankle until

that incident - he had been jumping down a small flight of 3 stairs house at my

mother in law's house). My mom went to pick him up and overheard the teacher

singling him out (in a self contained class of 8 total students and a teacher

and one aide). I was so upset that I called the school for the severely

disabled for advice. They said first, with an IQ of 69 would never be

placed there. The second thing they told me is that there is NEVER just one

placement for a child. At this time, we didn't know was PDD-NOS also. He

was non-verbal with being able to communicate with his approximations of signs.

I had tried to get an interpreter to be with at all times (they were also

having trouble with his behaviors). His district refused to provide an

interpreter. His teacher (a 27 year veteran teacher in the special ed program)

refused to learn sign language - because she didn't sign for her other Down's

children. But the important thing is there is never just one placement. When

we were trying to get an interpreter, I requested 5 disinterested observers to

observe him on 5 different days to document his behaviors. Even though most (if

not all, it's been about 5 years) admitted that was trying to communicate

with sign language, but wasn't able to be understood, the district refused an

interpreter. So when this incident came up, I flat out told the principal that

would not come back to school until this was resolved and WOULD NOT go

back to her class. In 2 days we had another placement in a multiple handicap

class, with a teacher that the previous year had been one of the observers and

had asked if she could take . She turned out to be the best thing that

ever happened to him.

Now, to relate that to your situation. Demand the same thing, that 5

DISINTERESTED observers watch and document him on 5 different occasions. But

they have to be people who aren't biased either way. Like they can't use the

behavior teacher from the same school, who would likely just say what the school

wanted them to say.

The biggest thing I learned from my situation, is that the PARENT is in control.

We don't have to accept whatever the school system says about our children, we

can fight. Get someone to go with you to be on your side, even if it's a

relative. I had an uncle who was a child advocate; but I don't know how he was

listed to find another one.

And I'll get off my soap box now. You have to forgive the rant, I've been sick

for 2 days, and have both my kids alone.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

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Great way to celebrate Christmas Dave!!!! I wish you the best..Keep us informed on the results....I have great respect for anyone that can go through treatment and stay with it till the end...

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Give yourself the pat on your back that you deserve Dave..It is a great accomplishment to go through..Like I said I have tried it twice and I am a very strong minded person or was at one time and it kicked my butt but that is me not just anyone who tries it..Terri don't think the sides I had would affect you too..Each of us has different ones and maybe if my situation were different I could have handled it better...But Dave you need to throw a party afterwards..Just think...NO MORE SHOTS!!!!

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Thank you. I've been pretty lucky. I had 5 weeks

medical leave when I started and I don't have a

physically demanding job. I get support at home and

here. Although I have had the usual sides, I haven't

had to suffer through the additional trials that many

of us have had to face. Don't get me wrong, I have

some pride that I have given it my best shot, but I've

had lots of help. -dz-

--- Jannewilms42@... wrote:

> Great way to celebrate Christmas Dave!!!! I wish you

> the best..Keep us

> informed on the results....I have great respect for

> anyone that can go

> through treatment and stay with it till the end...

>

__________________________________________________

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Hey Dave!!!! Well be optimistic.....I know it is hard to get your hopes up because with this we never know from one day to the next what will happen..I do wish you all the best and I know you'll let us know what he says...It is 49 over here and I find it cold so I know it is real cold where you are...Diane must not be up yet..Yesterday it seemed she felt better so I hope she still is today..Have a good Friday Dave...

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That is my hope (no more shots). I still have to pass

my last test (PCR) and take 13 more shots, so I'll

hold off on the party! But, should everything work out

as I hope, I will be one happy camper! -dz-

--- Jannewilms42@... wrote:

> Give yourself the pat on your back that you deserve

> Dave..It is a great

> accomplishment to go through..Like I said I have

> tried it twice and I am a

> very strong minded person or was at one time and it

> kicked my butt but that

> is me not just anyone who tries it..Terri don't

> think the sides I had would

> affect you too..Each of us has different ones and

> maybe if my situation were

> different I could have handled it better...But Dave

> you need to throw a party

> afterwards..Just think...NO MORE SHOTS!!!!

>

__________________________________________________

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Diane I had gone back to bed myself...I am not feeling that great myself..Got alot to do today and sure don't feel up to it but it won't get done if I don't do it...Woman's work is never done that's why we can never have any fun..hahaha..Did you check out the sight I sent you?? Get in touch when ya get the chance....Got to run.....

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