Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Dear tammie I posted my thought on our experience on oct 12. @ 11:24pm (sorry not up to re-typing. plus I already deleted it. if you can't find my post, ask me to write again. yvonne and bryan Re: [ ] (unknown) >Has anyone done Dr. Goldberg's protocal? It makes >sense to me but so does chelation. > >Thanks, >Tammie > >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Tammie - This is from another , also with a Dr. G. experience - one and a half years' worth. If you're interested, feel free to e-mail me. I feel bad criticizing a doctor on a list, but not so bad one-to-one. (in California) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Thank you for your post. I found it and appreciate your experience. We are to go to Dr. G. in a couple of weeks and I am having second thoughts. I believe that he is only piece of the whole puzzle. I also believe in supplements. I think that he is great at working with gut issues. In your opinion would you suggest still going to see him? Or, could a gastr dr. do the same things? I have had trouble communicating with that office and that has bothered me some. I really appreciate your input. Tammie --- Marco <moncherie@...> wrote: > Dear tammie > > I posted my thought on our experience on oct > 12. @ 11:24pm (sorry not > up to re-typing. plus I already deleted it. if you > can't find my post, ask > me to write again. > > yvonne and bryan > > > Re: [ ] (unknown) > > > >Has anyone done Dr. Goldberg's protocal? It makes > >sense to me but so does chelation. > > > >Thanks, > >Tammie > > > >> > >> > >> > __________________________________________________ > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 In a message dated 10/21/01 1:32:07 PM Pacific Daylight Time, ccmcphe@... writes: Not the places I lost! Under my arms, chest, legs, and other places I can't mention! Head hair still there (last time I looked) -Clyde Last time you looked? I find that I can go several days without looking in the mirror. (However, I'm a jobless female with a short haircut, so keeping clean is and tidy is all I need to do.) I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look." Maybe next month I'll get around to boxing up my fancy work clothes and high heels and sending them off. I've been saying that for quite a while, of course. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Not the places I lost! Under my arms, chest, legs, and other places I can't mention! Head hair still there (last time I looked) -Clyde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 I've done the fatty acid test...very helpful, except the dr's rarely know how to interpret them. Purchase " THE ZONE " which talks about fatty acids Kathy [ ] (unknown) > Hi, > > Has anyone here in the group had any experience with BodyBio? The > tests sound very promising. The link is at > http://www.bodybio.com/products.html > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 In a message dated 10/21/2001 6:05:00 PM Eastern Daylight Time, flatcat9@... writes: I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look." Oh how I wish I had that outlook early on! Seven years & I'm still working on it! Thanks! I'll paste that one on the computer as a reminder. Hugs Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 In a message dated 10/22/01 4:12:54 PM Pacific Daylight Time, JudieV@... writes: : I view my current appearance as "being in costume" for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of "how I'm supposed to look." Oh how I wish I had that outlook early on! Seven years & I'm still working on it! Thanks! I'll paste that one on the computer as a reminder. Hugs Judie Hey, I'm still working on it. This week I will visit relatives I haven't seen in a long time, and I feel strange packing those huge pants with elastic waists, big overblouses, and lace-up shoes I bought this year, instead of the little red skirt and heels I liked last year. I don't look forward to the look of surprise on their faces. My brain knows that's silly, but still - - -. Other times I feel pleasantly in disguise, as if I could go anywhere, see anything, without being noticed. I once heard Ella Fitzgerald, in her later years, sing Girl from Ipanema, lingering wryly on the line "but you don't see me." I'm working toward recognizing the freedom in being inconspicuous, or being noticed only as that fat lady with the sunhat. I can be a neighborhood character! And I'm alive! Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 I haven't got any miracles for you. But I can tell you that all behavior is communication. Is your son verbal? Even if he's verbal he may not be able to tell you exactly what is going on. That's the hard part about autism. (my son, who is 11) is verbal, using mostly full sentences now (from just a couple words 2 years ago), but he still doesn't volunteer information easily and can't tell me when he's having trouble. Some times he acts out because the material I am trying to teach him is too hard, some times it's because he's bored because the material is too easy. Some times it's because of a break in his routine (I just posted about something as small as me taking him to Sunday school instead of his dad). Maybe your son is like mine, in that he can tell the people that are honestly interested in him and want the best for him from the people who are " putting in their time " and can't wait to be done. I can't imagine a school suspending someone for behaviors. I would think you have a case for not getting the free and appropriate education. That would just prove that he needs a *qualified* person to be his aide, not someone off the street, but someone who is skilled in handling autistic children. I know I can't really offer any good advice, but just know I'm pulling for you. I'll pray that this gets straightened out and you find out what's bothering your son, and can fix it. Loriann Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2 years and Strong Willed Both homeschooled. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 In a message dated 10/22/01 8:26:33 PM Pacific Daylight Time, scott_p@... writes: I like the idea of being in costume because this is not us. I'm getting to the point where I can say maybe that is me, and that's just fine. It took a while, though. On another subject, I spoke with my gastroenterologist today, following my every-two-months (now) lab tests. He said he advises that I continue at 5 mg Prednisone for quite a while longer, perhaps forever. He said that 90% of the AIH patients he's had who've stopped Prednisone have relapsed, and dealing with the relapse is always difficult, requiring higher dosages than before. I asked him why I began Prednisone at 80 mg (with 100 mg Imuran -- supposed to be 150, but the pharmacy made a mistake), when I hear many people speak of much lower doses. He said he finds that when people are quite ill, as I was, it seems to work well to begin at a high dose, monitor frequently, and then drop as soon as possible. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Ok, anybody have any thoughts. I am on the phone to our doctor regularly. We are trying to find the right meds (if that's possible, I'm beginning to wonder). I just can't believe this. From 2 1/2 years of successful full inclusion to homebound to...what? [Hochrein, Wayne] Hello In some ways this sounds very similar to our son, Zac, age 11. Zac is a very nice kid, very happy, likes to please people and be helpful. Not that he is always an angel. We began to notice un-acceptable behavior during 3rd grade. Things like sitting down when asked to do something, yelling, some aggressive things like pinching. School noticed some things as well. It continued to get worse in 4th grade. We got a behaviorist involved. We started by recording all inappropriate behaviors and what was immediately before. We think in part he was frustrated. I don't think he understood how long a task would be, when doing something he would be doing forever, '5 more minutes' would mean the same as '5 more years'. or maybe he just couldn't handle the 5 year wait. Started rewarding good behavior. We struggled with the idea that we were bribing him. We used the definition that if the reward is offered before bad behavior it's a re-enforcement. For instance, if he comes in the door from school, takes off his shoes, hangs his coat up, washes hands, then he gets a juice box, that's a re-enforcer. So a reward up front is ok. Saying 'if you get off the floor' in the grocery store you'll get a pop is a bribe. Another thing we did is set clear expectations. We made a visual list of things that had to be done and then he would get a reward. So we just made a list of things that he had to do, then would get his break or his choice of activity. We also but red dots behind the activities, and as he completed a task he got to cover the red dots with green dots. When the dots were all green he could move on. We also used allot of praise, like 'good job'. We had a list of things to do before he got a juice box, after he put away his shoes he got a green dot. Got him to check the list, hang up the coat, another dot. etc. In some ways it was more work, green dots here and there, but it was less stressful and less of a power struggle. We started this full force in around January of this year. The visual schedule helped immediately in school. The dots for daily activities helped but needed allot of reminders. I did notice an improvement when we did his homework. He was more willing to sit down and do it when he knew how many pages, what activities etc. This year in school they are using the dots in a couple of places/activities otherwise he is working better for longer periods of time. So we did this for about 6 months on allot of things. Now we do it for things that we think might be a power struggle. I hope this helps. Wayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi , I hated to even read your post as I felt I was reliving my year from ---- last year with my 8 yr old son Zeb. I was running back and forth to school sometimes 15 times a week. I can feel your desperation . He also was in a inclusive placement and was doing well until. Has the school done a functional behavioral assessment? Have you asked for a behavioral consult? We had many reasons for Zeb's behaviors, an inappropriate aide that fueled his anger and a control issue. The teachers actually lost control by giving in to his wishes rather than giving a few appropriate choses. The reward system was not done correctly and not enough constant praise, no cueing of transitions, not enough sensory breaks, no peer tutoring and I could go on. Anytime a child is placed on homebound tutoring consitutes a change of placement which is the most restrictive. Did you agree to this placement? Were you home to see him try to hit the aide? What exactly happened, get answers. Zeb would do whatever it took to get mom to school. I was his comfort and represented security. He hated school and had all kinds of escape behaviors.He had been very successful in prior years and I knew there were valid resons for these behaviors. I thought many times of just homeschooling but I can't fill that social void. He is a very social child and enjoys his classmates. You didn't give very much information on what grade he is in and to what degree he is included in the general curriculum. Zeb was actually made to feel like a visitor in his classroom and this did nothing to help him feel self accomplished. I have worked very closely with the school to develop a good program but having the only elementary student in this type of placement in our district is not easy. Our district has no program to model from. Does your district have a set program? I think you need to find out what goes on in that classroom and get specifics on the behaviors and when.The school can suspend him legally for up to ten days but I would get as much info as I could and call a PPT meeting.It is hard enough to deal and work with our kids but when your battling the district it is sometimes more than anyone can handle.I pray you find some answers. Charlyne Mom to Zeb DS-? 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Harper, Tonight I was going through pictures as I am putting together a website of my experiences with AIH and transplant. I am basically (in my mind) a regular, physically fit person. Starting in 1992 I started blowing up then down (mostly up) from prednisone. I never considered this blown up person myself, as I know who I am. My sister and others have complimented me on how I coped with it. Actually I ignored it because it isn’t me. I was comfortable enough with myself and enjoyed being with people enjoy. I was not sexy and gorgeous anymore, but hat was ok, I like the idea of being in costume because this is not us. It is the drugs, the drugs that keep us alive. So relax, wear something comfortable and large and have fun with your relatives. The point is you are alive! There is nothing damaged about us. Just tired. Patty aih 80 transplant 98 -----Original Message----- From: flatcat9@... [mailto:flatcat9@...] Sent: Monday, October 22, 2001 9:34 PM Subject: Re: [ ] (unknown) In a message dated 10/22/01 4:12:54 PM Pacific Daylight Time, JudieV@... writes: : I view my current appearance as " being in costume " for a new role. I find that approach to be much more comfortable than seeing myself as a damaged version of " how I'm supposed to look. " Oh how I wish I had that outlook early on! Seven years & I'm still working on it! Thanks! I'll paste that one on the computer as a reminder. Hugs Judie Hey, I'm still working on it. This week I will visit relatives I haven't seen in a long time, and I feel strange packing those huge pants with elastic waists, big overblouses, and lace-up shoes I bought this year, instead of the little red skirt and heels I liked last year. I don't look forward to the look of surprise on their faces. My brain knows that's silly, but still - - -. Other times I feel pleasantly in disguise, as if I could go anywhere, see anything, without being noticed. I once heard Ella Fitzgerald, in her later years, sing Girl from Ipanema, lingering wryly on the line " but you don't see me. " I'm working toward recognizing the freedom in being inconspicuous, or being noticed only as that fat lady with the sunhat. I can be a neighborhood character! And I'm alive! Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Wayne , Just wanted to thank you for sharing this information on what you're doing with Zac , I read something about the dots , but I did not pursue the issue . This is amazing news , what an accomplishment . Thanks. Irma, 13,DS/ASD. > > > Ok, anybody have any thoughts. I am on the phone to our doctor regularly. > We are trying to find the right meds (if that's possible, I'm beginning to > wonder). I just can't believe this. From 2 1/2 years of successful full > inclusion to homebound to...what? > [Hochrein, Wayne] > > Hello > In some ways this sounds very similar to our son, Zac, age 11. > Zac is a very nice kid, very happy, likes to please people and be helpful. > Not that he is always an angel. We began to notice un-acceptable behavior > during 3rd grade. Things like sitting down when asked to do something, > yelling, some aggressive things like pinching. School noticed some things as > well. It continued to get worse in 4th grade. > > We got a behaviorist involved. We started by recording all inappropriate > behaviors and what was immediately before. We think in part he was > frustrated. I don't think he understood how long a task would be, when > doing something he would be doing forever, '5 more minutes' would mean the > same as '5 more years'. or maybe he just couldn't handle the 5 year wait. > > Started rewarding good behavior. We struggled with the idea that we were > bribing him. We used the definition that if the reward is offered before > bad behavior it's a re-enforcement. For instance, if he comes in the door > from school, takes off his shoes, hangs his coat up, washes hands, then he > gets a juice box, that's a re-enforcer. So a reward up front is ok. Saying > 'if you get off the floor' in the grocery store you'll get a pop is a bribe. > > Another thing we did is set clear expectations. We made a visual list of > things that had to be done and then he would get a reward. > > So we just made a list of things that he had to do, then would get his break > or his choice of activity. > > We also but red dots behind the activities, and as he completed a task he > got to cover the red dots with green dots. When the dots were all green he > could move on. We also used allot of praise, like 'good job'. We had a list > of things to do before he got a juice box, after he put away his shoes he > got a green dot. Got him to check the list, hang up the coat, another dot. > etc. > > In some ways it was more work, green dots here and there, but it was less > stressful and less of a power struggle. > > We started this full force in around January of this year. The visual > schedule helped immediately in school. The dots for daily activities helped > but needed allot of reminders. I did notice an improvement when we did his > homework. He was more willing to sit down and do it when he knew how many > pages, what activities etc. This year in school they are using the dots in > a couple of places/activities otherwise he is working better for longer > periods of time. So we did this for about 6 months on allot of things. Now > we do it for things that we think might be a power struggle. > > I hope this helps. > > Wayne > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Wayne, thanks for the info on the red and green dots. I recall learning that a few years ago but had forgotten it. I cut up parts of your post and sent it to my slp, minus your name and all. I am thinking we can use the same strategies to get Angel through speech sessions and other undesired activities. your note about whether your son could understand the length of time a task would take really made me assess this in my daughter. I have been using an egg timer to help her to understand how long she will need to wait for her turn on the computer, as well as when her turn is has completed. I am thinking that using the egg timer to complete speech activities (beginning with very short intervals and then increasing) as well as giving her a visual schedule of speech activities, along with the dots, will likely be a great help to her. I also liked the explanation of rewards vs bribes. Thanks for sharing this strategy. Cheryl, mom to Angel, 5, DS-ASD RE: (unknown) Ok, anybody have any thoughts. I am on the phone to our doctor regularly. We are trying to find the right meds (if that's possible, I'm beginning to wonder). I just can't believe this. From 2 1/2 years of successful full inclusion to homebound to...what? [Hochrein, Wayne] Hello In some ways this sounds very similar to our son, Zac, age 11. Zac is a very nice kid, very happy, likes to please people and be helpful. Not that he is always an angel. We began to notice un-acceptable behavior during 3rd grade. Things like sitting down when asked to do something, yelling, some aggressive things like pinching. School noticed some things as well. It continued to get worse in 4th grade. We got a behaviorist involved. We started by recording all inappropriate behaviors and what was immediately before. We think in part he was frustrated. I don't think he understood how long a task would be, when doing something he would be doing forever, '5 more minutes' would mean the same as '5 more years'. or maybe he just couldn't handle the 5 year wait. Started rewarding good behavior. We struggled with the idea that we were bribing him. We used the definition that if the reward is offered before bad behavior it's a re-enforcement. For instance, if he comes in the door from school, takes off his shoes, hangs his coat up, washes hands, then he gets a juice box, that's a re-enforcer. So a reward up front is ok. Saying 'if you get off the floor' in the grocery store you'll get a pop is a bribe. Another thing we did is set clear expectations. We made a visual list of things that had to be done and then he would get a reward. So we just made a list of things that he had to do, then would get his break or his choice of activity. We also but red dots behind the activities, and as he completed a task he got to cover the red dots with green dots. When the dots were all green he could move on. We also used allot of praise, like 'good job'. We had a list of things to do before he got a juice box, after he put away his shoes he got a green dot. Got him to check the list, hang up the coat, another dot. etc. In some ways it was more work, green dots here and there, but it was less stressful and less of a power struggle. We started this full force in around January of this year. The visual schedule helped immediately in school. The dots for daily activities helped but needed allot of reminders. I did notice an improvement when we did his homework. He was more willing to sit down and do it when he knew how many pages, what activities etc. This year in school they are using the dots in a couple of places/activities otherwise he is working better for longer periods of time. So we did this for about 6 months on allot of things. Now we do it for things that we think might be a power struggle. I hope this helps. Wayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Hi tammie, It a hard call for me to know if Dr G is right for you? I can't offer any help with a castro Dr. We have never used one. Before we went to see Dr G., I already had some friends who had great success with Dr G. protocols. That is why we went to see Dr G. As time went one, I also had other parents who had some improvements, just like us. We all have been seeing Dr G for the same amount of time(1year to 1 1/2). Every one of these kids are using differnt protocols. I can only tell you our story. I think Dr G has the right idea about the virals and fungal are the cause for some problems our kids have. I think he is a good choice if you can't find a Dr who will work with you on gut bugs and get the immune system healthy. All the blood work before the first office visit is worth getting. It's a lot of test but you get a lot of information. I also liked the fact that Dr G did run blood work to see how our son was doing with the meds. We started out slow and added meds and took meds out based on how our son was doing. Dr G does want to make the kids better. I was about to begin kutapressin but found the list group. I thought why keep giving him something stronger and stronger to get the viruses/fungal undercontrol. I think 1 year is plenty of time to give Dr G. Why isn't he getting better? I finally figured out my son will never be able to keep yeast, viruse ect... under control on his own. I have to get rid of the mercury and all the other metals in his system. We got our hair test back and we meet the counting rules. We are in the 97% range with heavy metals. It made sense the more and more I read about chelation. My son never had ear infections, developed just fine for about 12 months. Walked, sat, crawled all on time. I guess by the time he was 18 months I knew something was wrong....no talking and weird behavior popped up. I really poisned my son by vaccacions.(we got them all). Get the hair test done. It might help you make a decision and is easy to do. Again, I do not regret the time spent w/ Dr G. it has helped us. Also if you do go see Dr G, DO NOT mention Chelation. He might drop you as a patient. I never had a problem getting info from Dr G. One parent said they always gave him a hard time about getting copies on lab test. On one occassion, they missed an appointment.....the office hassled him about re-newing is meds for the month. We have not stared chelation. we are still pre-loading w/supp. We also need to get lab test ordered to check out liver and kidney function. keep reading the list to get more infor on chelation. Like moria says: " it will make sense " Other parent use chelation and SSRI together. Both protocols can compliment each other. but Dr G will not be the Dr to help you. Please ask any questions you might have. I don't mind. Sometimes I take a while. not reading posts everyday. My kids keep me busy, best wishes...yvonne Re: [ ] (unknown) >> >> >> >Has anyone done Dr. Goldberg's protocal? It makes >> >sense to me but so does chelation. >> > >> >Thanks, >> >Tammie >> > >> >> >> >> >> >> >> __________________________________________________ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 In a message dated 10/22/01 5:07:57 PM Eastern Daylight Time, naylorj@... writes: << Jon has been suspended for 10 days- no particular incident but cited for harming school personnel due to extreme behaviors. This is so out of control. Jon is out of control and right now I could be to. I can't believe they didn't call me and talk to me at least- I've been at school morning, noon, and night daily trying to work through this and they can't even talk to me about this. What a bunch of chiken..... >> Hi : My son, Gene, is 13. When he turned about 10, after pretty smooth sailing in a general ed classroom, he started shouting more, refusing to do things, and in general we needed to start grappling with what was causing this. There is definately a reason why Jon is not liking school and is having difficulties. Where do you live? Are there any people who you could ask to come in and look at the situation? any inclusion specialists? any people like an autism consultant from an ASA chapter? With our son, we noticed that when his behavior started to get worse, no one had a clue what to do. The social worker was sold on time out....which I fought against. I don't believe that teaches Gene anything. They were putting him in time out alot and he was not happy. At this time, we also had no ongoing daily schedule board for him that could be carried around by his aide. What I mean is, he needs to know in an ongoing fashion what is coming next. We did not go to a reward system, rather three activities like reading, math and writing was followed by a " preferred " activity on his schedule that he might choose...like take a walk, look at the fish, etc. So, now he uses a board with velcoed word cards that state the subjects. After he completes the task, he takes it off and puts it in the " all finished - pocket " If he is struggling to get through, we show him the thing he wants to do is coming up..this is even lunch or snack time inaddition to look at fish or take a walk. In addition to that, we count Gene down to finish a task and this year use a visual timer. His sensory needs were also being overlooked at that time. He had trouble focusing and sitting and he was rocking alot. So, we needed to put a good inclusive sensory diet in place for him.which included getting a good sensory integration evaluation. There could be many reasons Jon is acting up. They are undoubtedly somehow related to how they are handling things at school...and if he is pretty nonverbal...related to his inability to communicate his wants and needs and thoughts. Re: his suspension, I believe you need to request a manifestation determination meeting. First, they cannot just suspend him with out giving you a copy of an incident report that led to the suspension or a copy of the behavior log that they are keeping apparently. You need to get a complete copy of his records to review and this is your right definately under FERPA. The purpose of the manifestation determination meeting is to determine if his disabilitiy is the cause of the behavior.. If it is, they should not be suspending him, but instead calling an IEP to discuss completeing a positive behavior support plan. In IDEA 97, PBS plans were emphasized as a way to keep children from being suspended. If they tell you that his behavior is not related to his disabiltiy, strongly object and do it in writing. The problem here is they don't know what is going on with Jon and their answer is to take him out of the picture instead of working hard to figure out what is causing it. They should be considering in the IEP. a functional behavior assessment, to really look at what is going on in his day. I am sure if you could spend a day there, you would be able to spot what is setting him off. There are two good sites to go to in help with this suspension problem and to help you move forward in getting your district to create and put a positive behavior support plan in place. This plan should include all the strategies, like picture boards, transitions, etc that it will take to help him. Here are the sites: www.reedmartin.com. is one of the best civil rights attorneys around and his site is packed with info. You can sign in and chat with him on Thursday evenings at 9PM. Go in early because it is hard to get in after 9. Also, try http://advocacyservices.homestead.com/ This is the site of a disability advocate who is wonderful. She lives in GA and has a son with autism who is 9 I think. She not only knows the law, but knows alot of strategies that help kids with autism be successful in school. Her son is in general ed too. Hope this is helpful. Lauri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 At 03:25 PM 10/23/01 -0500, you wrote: >The one thing that I do think that we have issue with is that Jon has a functional behavior plan and they didn't really follow it and instead let things spiral totally out of control. What was the point of writing it if they weren't going to use it. We'll see. > : What did the slip on the suspension notice say the reason was for the suspension? I believe they have to give a timeline for a meeting and a plan for bringing Jon back to school as well. (I'm not well-versed in this area). If they did not follow the behavior plan that was written based on a functional behavior analysis, get that on the table fast. And then document the meeting either by notes, tape, or whateve.r Take your own notes/minutes of any phone conversations and meetings. Send them around and give them 10 days to let you know if these minutes are inaccurate. IF they don't respond, you can assume it to be true. While it can be argued about in court (usually saying they didn't receive it), you can point to the sentence that gave them 10 days to offer corrections. Keep a log of conversations and phone calls. Behavior is the big loophole in IDEA for excluding kids with disabilities. They're trying to use it--whether justified or not. And yes, they're going to tell you that htis is not the " least restrictive environment " for Jon because his behavior is inappropriate......it's pretty clear where they're heading. Your option is to establish that positive supports are not in place...... I'm so sorry. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 I used to live in Southeast Missouri (Cape Girardeau), and I went through a few hard times. had hurt his ankle the weekend before and on Monday had refused to walk the half a block to the babysitter's house so they had asked that someone come pick him up from school (I didn't know he hurt his ankle until that incident - he had been jumping down a small flight of 3 stairs house at my mother in law's house). My mom went to pick him up and overheard the teacher singling him out (in a self contained class of 8 total students and a teacher and one aide). I was so upset that I called the school for the severely disabled for advice. They said first, with an IQ of 69 would never be placed there. The second thing they told me is that there is NEVER just one placement for a child. At this time, we didn't know was PDD-NOS also. He was non-verbal with being able to communicate with his approximations of signs. I had tried to get an interpreter to be with at all times (they were also having trouble with his behaviors). His district refused to provide an interpreter. His teacher (a 27 year veteran teacher in the special ed program) refused to learn sign language - because she didn't sign for her other Down's children. But the important thing is there is never just one placement. When we were trying to get an interpreter, I requested 5 disinterested observers to observe him on 5 different days to document his behaviors. Even though most (if not all, it's been about 5 years) admitted that was trying to communicate with sign language, but wasn't able to be understood, the district refused an interpreter. So when this incident came up, I flat out told the principal that would not come back to school until this was resolved and WOULD NOT go back to her class. In 2 days we had another placement in a multiple handicap class, with a teacher that the previous year had been one of the observers and had asked if she could take . She turned out to be the best thing that ever happened to him. Now, to relate that to your situation. Demand the same thing, that 5 DISINTERESTED observers watch and document him on 5 different occasions. But they have to be people who aren't biased either way. Like they can't use the behavior teacher from the same school, who would likely just say what the school wanted them to say. The biggest thing I learned from my situation, is that the PARENT is in control. We don't have to accept whatever the school system says about our children, we can fight. Get someone to go with you to be on your side, even if it's a relative. I had an uncle who was a child advocate; but I don't know how he was listed to find another one. And I'll get off my soap box now. You have to forgive the rant, I've been sick for 2 days, and have both my kids alone. Loriann Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2 years and Strong Willed Both homeschooled. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Great way to celebrate Christmas Dave!!!! I wish you the best..Keep us informed on the results....I have great respect for anyone that can go through treatment and stay with it till the end... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Give yourself the pat on your back that you deserve Dave..It is a great accomplishment to go through..Like I said I have tried it twice and I am a very strong minded person or was at one time and it kicked my butt but that is me not just anyone who tries it..Terri don't think the sides I had would affect you too..Each of us has different ones and maybe if my situation were different I could have handled it better...But Dave you need to throw a party afterwards..Just think...NO MORE SHOTS!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Thank you. I've been pretty lucky. I had 5 weeks medical leave when I started and I don't have a physically demanding job. I get support at home and here. Although I have had the usual sides, I haven't had to suffer through the additional trials that many of us have had to face. Don't get me wrong, I have some pride that I have given it my best shot, but I've had lots of help. -dz- --- Jannewilms42@... wrote: > Great way to celebrate Christmas Dave!!!! I wish you > the best..Keep us > informed on the results....I have great respect for > anyone that can go > through treatment and stay with it till the end... > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Hey Dave!!!! Well be optimistic.....I know it is hard to get your hopes up because with this we never know from one day to the next what will happen..I do wish you all the best and I know you'll let us know what he says...It is 49 over here and I find it cold so I know it is real cold where you are...Diane must not be up yet..Yesterday it seemed she felt better so I hope she still is today..Have a good Friday Dave... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 That is my hope (no more shots). I still have to pass my last test (PCR) and take 13 more shots, so I'll hold off on the party! But, should everything work out as I hope, I will be one happy camper! -dz- --- Jannewilms42@... wrote: > Give yourself the pat on your back that you deserve > Dave..It is a great > accomplishment to go through..Like I said I have > tried it twice and I am a > very strong minded person or was at one time and it > kicked my butt but that > is me not just anyone who tries it..Terri don't > think the sides I had would > affect you too..Each of us has different ones and > maybe if my situation were > different I could have handled it better...But Dave > you need to throw a party > afterwards..Just think...NO MORE SHOTS!!!! > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Diane I had gone back to bed myself...I am not feeling that great myself..Got alot to do today and sure don't feel up to it but it won't get done if I don't do it...Woman's work is never done that's why we can never have any fun..hahaha..Did you check out the sight I sent you?? Get in touch when ya get the chance....Got to run..... Quote Link to comment Share on other sites More sharing options...
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