Introduction

[Guest guest]

Taryn,

Welcome to the group! Your in great hands with the tort board and plagio

board for great support and advice. I hope you can start on pt asap and I'm

sure the tort board has already offered you a ton of advice on stretching and

holds. Good luck and keep us posted!

' Mom (Severe tort, pt from 3-9/10 months, DOC band 5-8 months)

[Guest guest]

Thank you, . I have been welcomed with open arms by both groups and it has really helped me come to terms with 's dx. When she was first diagnosed I was just blaming myself and very upset about the whole thing and now I am still upset but have information and have gotten educated and I think that has helped to take away some of the fear. Knowing all of you are going through it at the same time helps to make it. We are starting PT next week. I got a call yesterday. I have gotten such great advice about stretching and holds. You guys are all great!!!

Taryn

Re: Introduction

Taryn, Welcome to the group! Your in great hands with the tort board and plagio board for great support and advice. I hope you can start on pt asap and I'm sure the tort board has already offered you a ton of advice on stretching and holds. Good luck and keep us posted!' Mom (Severe tort, pt from 3-9/10 months, DOC band 5-8 months)For more plagio info

[Guest guest]

In a message dated 8/14/2002 11:16:13 AM Eastern Daylight Time, devynskye1@... writes:

When she was first diagnosed I was just blaming myself and very upset about the whole thing and now I am still upset but have information and have gotten educated and I think that has helped to take away some of the fear. Knowing all of you are going through it at the same time helps to make it.

Taryn,

I know getting informed really helped me settle down and get more focused on the task of resolve. It sure does help to talk to other parents that have shared the same experiences, and I know I am also so grateful for this board and the tort board for helping me avoid pitfalls and for just settling all the fears of the unknown. Don't blame yourself at all, move forward with making things happen for your child and you will feel rewarded when all turns out well for your little one. Good luck!

' Mom

[Guest guest]

Thank you for the wonderful advice!!! I think we are all guilty of playing the blame game at different points in our children's recovery but I do agree the task at hand is getting better and putting this all behind us. We start PT next week and I am going to be talking to our PT to see what she thinks about her flattening and if I should get a consult. Do you advise a neuro or other person for getting plagio evaluated? I was considering taking to Shriners but I don't know who I would see if I went there.

Taryn

Taryn,I know getting informed really helped me settle down and get more focused on the task of resolve. It sure does help to talk to other parents that have shared the same experiences, and I know I am also so grateful for this board and the tort board for helping me avoid pitfalls and for just settling all the fears of the unknown. Don't blame yourself at all, move forward with making things happen for your child and you will feel rewarded when all turns out well for your little one. Good luck!' Mom

For more plagio info

[Guest guest]

Hi ,

Welcome and thanks for posting. My name is Al (or Alan, I respond to

either), and I am a 39 year old with Still's and RA.

I am glad you are doing well and that the Arava is working for you.

I'll keep my finger's crossed that it continues.

All my best,

Al in IL

[Guest guest]

Hi :

Welcome to the group! I too am on Arava, also

Methotrexate and Bextra, and have found it to be

helpful to me. I have been on it about six months

now.

I was dx with RA 3 years ago and also have Raynaud's.

Glad to hear that the Arava is working well for you.

Kathe in CA

__________________________________________________

[Guest guest]

Welcome . Glad to know you. Sorry your job had to be changed to

accommodate this nasty disease, but glad you are feeling better. I hope you

are well enough to return to what you like doing. I live in NJ and have RA

and FM. Enbrel is my drug of choice and although it helps a great deal, it

hasn¹t stopped the progression. Maybe it would have been worse without it,

who knows.

I hope your rheumatologist is good about ordering blood tests to monitor

your liver while on the Arava. May you have continued success with it.

a

> Hi...I've been a member of this group for a few weeks now but I have

> never introduced myself.....so, here goes. My name is and I

> live in Colorado. I have RA and OA. I use to work in law

> enforcement but because of my RA I had to go into clerical work. I

> am just glad that I can work, even if it is not what I would like to

> be doing. Right now, I am having a pretty decent time. My

> rheumatologist put me on arava and it has really worked wonders.

> But, I have only been on it for three months. Still, I hope it

> continues to work for quite some time. Anyway, that is a little bit

> about me....

>

>

>

>

[Guest guest]

Hi ,

Welcome to the group. I am happy to hear that your meds are helping you. We

love success stories here. I am looking forward to getting to know more

about you.

Love and Hugs

Stacey in PA

[Guest guest]

>If anyone knows of a source of raw milk anywhere close to Humboldt County, I'd

>like to hear.

Do you have Whole Foods in your neighborhood? Or does any store carry

Clover/Stornetta. Here in San , Whole Foods carries both Organic Pastures

and Claravale, the latter is distributed by Clover, I believe. It would seem

reasonable that anyone that carries Clover would be able to get the Claravale

without much problem.

FWIW, just this past week, WF in San has started to carry Organic

Pastures raw butter. $10 pound, which turns out to be cheaper than making it

ourselves with cream being $7 a pint. Yesterday, they had even put a sign up at

the dairy section promoting it, I found it earlier, by looking. So we bought 1

pound. Haven't tried it yet, still have some of the home made stuff to use, but

it is a pretty deep yellow color.

Mike E

[Guest guest]

Claravale dairy is in ville, CA. I don't know how close that is to

humbolt county.

Irene

At 12:50 PM 9/9/02, you wrote:

> >If anyone knows of a source of raw milk anywhere close to Humboldt

> County, I'd

> >like to hear.

>

>Do you have Whole Foods in your neighborhood? Or does any store carry

>Clover/Stornetta. Here in San , Whole Foods carries both Organic

>Pastures

>and Claravale, the latter is distributed by Clover, I believe. It would seem

>reasonable that anyone that carries Clover would be able to get the Claravale

>without much problem.

>

>FWIW, just this past week, WF in San has started to carry Organic

>Pastures raw butter. $10 pound, which turns out to be cheaper than making it

>ourselves with cream being $7 a pint. Yesterday, they had even put a sign

>up at

>the dairy section promoting it, I found it earlier, by looking. So we bought 1

>pound. Haven't tried it yet, still have some of the home made stuff to

>use, but

>it is a pretty deep yellow color.

>Mike E

>

>

[Guest guest]

test

[Guest guest]

Hi, I'm looking to see if anyone knows of a starter for fil mjolk.

I have family in Sweden and the milk is just delicious, piima culture make a

milk that is not anything like fil mjolk, real fil mjolk is almost like a

combination of buttermilk, yogurt

but has a sharper acidity and refreshing flavor.

piimaman

[Guest guest]

The only place I know to get Fil Mjolk starter commercially is at GEM

http://GEMCULTURES.COM If anyone else knows another place please share.

I'm not sure where you are. Though GEM will ship somethings overseas they

will not ship Fil Mjolk out of the United States, I don't know if this is

because of export restrictions or other reasons. The only other way I can

think to get it is from a fellow " microherdsman " , this is how kefir and

kombucha are shared a lot, but haven't heard of anyone doing this with Fil

Mjolk, I don't think it's quite as popular. And you are right Fil Mjolk is

delicious.

--

-----Original Message-----

From: zumicat@... [mailto:zumicat@...]

Sent: Tuesday, September 10, 2002 6:37 AM

Subject: Re:introduction

Hi, I'm looking to see if anyone knows of a starter for fil mjolk.

I have family in Sweden and the milk is just delicious, piima culture make a

milk that is not anything like fil mjolk, real fil mjolk is almost like a

combination of buttermilk, yogurt

but has a sharper acidity and refreshing flavor.

piimaman

[Guest guest]

Hi Jeanine...Welcome! My name is Tess...I live in NW Oregon. You got

to meet our Debs, although not under the cheeriest of

circumstances...she is a much loved member of this little family.

I hope you are blessed as much being here as I have been. God bless you

on this journey, and you sis as well.

Hugs of Hope...

Tess

[Guest guest]

Hi Jeanine,

Welcome to the group. Glad you are recovering at home, and that you

got to meet Deb in person. I am fairly new to this group too, but

can't think of a more supportive (and sometimes goofy) group of

people. It is a real rock to cling to in the hurricanes that beset

us. My prayers to you and your sister,

Judi

[Guest guest]

Welcome Jeanine. Lucky you to have met Debs! I¹ll bet she is as charming

in person as she is with our group. I wish the two of you could have met

under better circumstances. I hope you¹re recovering well from your

surgery. I will keep both you and yours sister in my prayers.

a

>

>

>

[Guest guest]

Hi Jeanine,

Welcome to the group! Sorry it's so late, but I have been swimming in my own

muck for a couple of weeks. Thank goodness I seem to be coming out of it. I

had surgery in May to repair a herniated disc at the lumbar level and it was

miraculous for me also. The pain level improved dramatically. Please listen

to your doctors and rest as they say you should. I learned from experience.

I didn't listen and ended up in the ER a week after my surgery in severe

pain. I hope you have a speedy recovery with lasting success.

Love and Hugs

Stacey in PA

[Guest guest]

Great to hear from you. Welcome

Rose

Introduction

I do not have ADHD or ADD but I do have something very similar

called Aspergers and was dxd at the age of 29.

I beleive like me that my Dad has AS. I never really noticed this

though, because as you know I myself have the condition. But now

come to think of it my Dad has always been more comfortable around

his family than out with the lads having a drink. He has not had

many close friends and my mother is the one that makes friends

easily. His mates have all been really through my Mom. He did have

a few mates he knew from work but they have petered off through the

years. He is happy to sit and watch is programs and is facinated

with wild life and nature of any kind. He is a brilliant artist but

of course would not tell you that or me You only get the truth

of my Dads childhood out of him when he relaxes and has a drink

inside him, otherwise forget it.

>>>>>>>>>>>>>>

[Guest guest]

Hello Robin! I'm Jenn and am a 28 years old single Mom and am

back in college for the 2nd time, so I know about busy

lifestyle and fatigue. I was diagnosed at the age of thirteen,

but the only symptoms that I had at that time was unusually

high arch and instep, severe leg and foot cramps, fatigue and

clumsiness.

As time went on (about early twenties) I started to develop the

tingling and numbness. I am not even near the point of paralysis,

but I do exerience with extreme numbness of my legs when I

fatige after exercising or when working on my feet for more

that 12 hrs. This does not mean that you have for certain CMT.

These are the signs of other types off neuropathies. If it is a

certain diagnoses of CMT, I can only tell you what works for me.

I stay as active as I can, such as walking, biking, or dancing.

Even less strenuous than contact sports/activites such as

bowling, frisbee, hiking, etc, etc.... I find this reduces

cramping and promotes muscle mass. Just don't overdo it and get

fatigued.

Utilize any tools to help you do the little things easier. I

have problems with grip due to the nerve damage in my hands. I

have cut-outs made of rubber that I used to grip the lids so

that I can twist it off, and I have a wine bottle opener that

you don't have to put out the cork yourself. Thirdly, ask questions, do

research, and choose the treatments that fit you. What works for someone else

may not work for you. The man who diagnosed me is a wonderful neurologist named

Dr. Dooly- he works out of the IWK Children's Hospital in Halifax, Nova Scotia.

If you are Canadian- contact your doctor(s) for an out of province referal. If

you are not in Canada, approch Health Canada to see if you can set up a private

insurance deal with the canadian gov't to be seen in this counry. Not real sure

how private insurance works, but that is what makes sense in my limited

knowledge of it.

Good luck and talk soon.

Jenn

So how do you feel about all the CMT Research being done? Is it enough? Are you

satisfied? Do

you believe arrestment is 2 - 5 years away? Take a few minutes

and participate in our current poll

at /polls

[Guest guest]

>Perhaps I'm assuming but considering my mother

>contracted salmonella from the dairy feed I just don't see how it can be the

>healthiest thing to feed livestock,

:

Nice to have you!

??? Your mother eats dairy feed? How did she get salmonella from dairy feed?

Also, I'd seriously like to know: what do they teach you in vet school? I

kind of picked up some animals and do the best I can, but when I asked the

vet why a chicken was laying soft eggs she didn't know. I asked a farmer

and he said " because they need oyster shells!!! " (he left off the " silly

lady " part, which was kind of him).

My chickens mostly find their own food, plus they get leftovers (soaked in

kefir), but right now, laying so much, they are SOOO hungry I give them

commercial feed. I'd like to give them more whole grains though, and I'm

working toward that (they prefer cracked corn over anything else, and I

figure they get enough greens with all the grass). I don't think grains are

normal food for a chicken, but laying an egg a day isn't normal either.

The goats mainly get grass, grass, and more grass. And blackberries and

salmonberries (I cut them for them, in the winter, when it rains too much

for them to be out -- they are angoras, and I don't think they like that

long hair getting wet). They get a handful of grain to entice them back to

the shed at night, but they don't seem to need it. I got them mainly for

brush control, which they do nicely.

The thing I notice about commercial feed is: THEY DON'T LIST THE

INGREDIENTS. I guess they don't have to. But it makes me nervous. I think

it is time to start mixing some bulk something. But grains really aren't

good for goats regardless (they are supposed to get less than a cup a day,

I've read).

-- Heidi

[Guest guest]

" ??? Your mother eats dairy feed? How did she get salmonella from dairy

feed? "

She didn't wash her hands after feeding the cows.

" Also, I'd seriously like to know: what do they teach you in vet school? "

I went to veterinary technician school and the most they teach about small

and

large livestock of any kind is mainly a few of the breeds, a little bit

about equine diseases, a touch

of porcine diseases and barely enough worth mentioning about ovines and

caprines.

Absolutely nothing about poultry.

In regard to the veterinarians knowing diddly....according to the vet I work

for

he had barely anything about chickens and after 25 years he couldn't tell

you more than

" yep, it's a chicken " . LOL Really, it's a specialty deal. Farm vets are

few and far between

this century. Pity isn't it? I coulda answered the question about the soft

eggs though,

so I feel a tiny bit better.

I learned what little I do know from my grandmother and I wish that she was

still alive

today as she was the smartest woman when it came to natural livin' that I

ever knew.

I even remember her having Mother Earth News on her coffee table years ago.

:-)

" My chickens mostly find their own food, plus they get leftovers (soaked in

kefir), but right now, laying so much, they are SOOO hungry I give them

commercial feed. I'd like to give them more whole grains though, and I'm

working toward that (they prefer cracked corn over anything else, and I

figure they get enough greens with all the grass). I don't think grains are

normal food for a chicken, but laying an egg a day isn't normal either. "

My chickens will have a much more free range than they do now. I don't like

having

them contained at all, but it's for their own safety, we live on a terribly

busy and fast

moving road...and one of my parents JRT's kills chickens. :-(

" The goats mainly get grass, grass, and more grass. And blackberries and

salmonberries (I cut them for them, in the winter, when it rains too much

for them to be out -- they are angoras, and I don't think they like that

long hair getting wet). They get a handful of grain to entice them back to

the shed at night, but they don't seem to need it. I got them mainly for

brush control, which they do nicely. "

I get to learn all the nasty weeds that make their milk taste bad. Right

now I don't

think I'd know a bad one if it bit me on the butt. Good to know that they'd

do alright

without that commercial garbage.

" The thing I notice about commercial feed is: THEY DON'T LIST THE

INGREDIENTS. I guess they don't have to. "

Unfortunately, no, not that I've ever known. There's just not enough

quality control,

too much molasses, IMHO, and why the heck are they adding meat protien?

I don't want to know. I'd rather just learn how to provide natural diets.

Thanks for the welcome!

RVT, VDT

Mailto: MinatoNeshoba@...

Owner/Moderator: NaturalFerret

" Never doubt that a small group of thoughtful,

committed citizens could change the world.

Indeed, it's the only thing that ever has. "

-------Margaret Mead

[Guest guest]

Hi ,

I just wanted to say welcome to the group. You're going to learn so

much from everyone here. I just started writing a few weeks ago, and

I've learned TONS.

I'm so jealous of all your animals. My dream is to one day buy a farm

here in Italy and have a small, biodynamic bed and breakfast with my

own chickens, goats, cows and organic veggies (and maybe a dog or two

just for some good snuggling )

Welcome again,

Dawn

..

> Greetings,

> I just wanted to briefly introduce myself to the list and say as

well that

> this is a wonderful list from which to learn. In just a short time I've

> gained so much and I hope that in the future I can give even a tenth

of what

> I've recieved.

> I'll be ordering Nourishing Traditions soon, which was recommended

to me a

> few weeks ago by a friend, I cannot wait to read it. I was really

happy to

> find this list.

> The more I learn the more confident I hope I will feel when my

husband Tim

> and I are able to have a place to call our own.

>

> I'll be 41 next month. I've been in the field of veterinary

medicine for

> about 4 years now, if you count volunteer time then it's closer to

5. :-)

> Tim and I have been married for 2 years next month. For the past 5

years

> I've lived in an a basement apartment of my parents home on 5 acres. I

> spent some of that time in vet-tech school and right now Tim is

going to The

> Art Institute for animation. He'll graduate in December. (Yes, my life

> didn't really start until 1998) We live in the Puget Sound area

Washington

> state.

> Currently we have a house full of canines, felines and mustelids.

Hey, I'm

> a vet-tech of course we're over-run. LOL

> We also have 2 cows that actually belong to my parents but we help with

> their care. Then there are my beloved chickens. Eventually I hope

to have

> some goats but will probably wait until we're on our own property as

I want

> them to be raised in a healthier environment. I might be taking on more

> than I can chew, but I sure do want to learn how to milk a goat, as

well as

> produce butter and cheese.

> Our goal is to have a completely healthy, organic and self-sustaining

> lifestyle for ourselves and our pets. As soon as he is out of

school and

> working I even hope to find a different veterinary hospital that

practices

> holisitic medicine so that my ideals touch my career as well.

>

> Are there any books or other sources of information I can peruse about

> feeding and caring for livestock naturally without the bagged grains

they

> sell at the feedstore? Perhaps I'm assuming but considering my mother

> contracted salmonella from the dairy feed I just don't see how it

can be the

> healthiest thing to feed livestock, there has to be a better more

natural

> way. Doesn't there? Not just goats and cows either...chickens and

ducks,

> too. :-)

>

> Also, for years I've been reading and learning about organic

gardening which

> has been helpful...except when my father sprays miracle-grow and other

> garbage on the vegetables...which now I want nothing to do with. *sigh*

> Anyway, I'm interested in a " full circle " organic

living/lifestyle...there's

> so much out there as for as books and such, I don't have a clue what to

> choose. ... suggestions would be great. Thanks!!

>

> Anyway, that's us....thanks for being here.

>

> That wasn't quite the short intro I had in mind *grin*.

>

> RVT, VDT

> Mailto: MinatoNeshoba@c...

> Owner/Moderator: NaturalFerret

> " Never doubt that a small group of thoughtful,

> committed citizens could change the world.

> Indeed, it's the only thing that ever has. "

> -------Margaret Mead

[Guest guest]

> My chickens mostly find their own food, plus they get leftovers

(soaked in

> kefir), but right now, laying so much, they are SOOO hungry I give

them

> commercial feed. I'd like to give them more whole grains though,

and I'm

> working toward that (they prefer cracked corn over anything else,

and I

> figure they get enough greens with all the grass). I don't think

grains are

> normal food for a chicken, but laying an egg a day isn't normal

either.

>

Chickens are domesticated. They don't exist except in conjunction

with agricultural foods. They started out as Jungle Fowl in southeast

Asia a few thousand years ago. They probably would have laid a clutch

of eggs a few times a year. But they've been bred by humans to

produce an egg 6 out of 7 days. They can do this only if they are fed

enough carbohydrate and protein. An acquaintance from Africa

described how chickens there wander freely and scrounge their own

food, but such chickens are *very skinny* and do not lay anywhere

near the number of eggs that my chickens do. I don't want to starve

my chickens. And how nutritious can those eggs from hungry chickens

be? Salatin, the high priest of pastured chickens, says chickens

only get about 20% of their food from greens and bugs. He supplies

the other 80% by feeding them grain. He has a big enough operation

that he can get his own whole grain mix made up. But what's a small

flock owner to do? I have to buy the organic commercial feed. Salatin

also doesn't think that soy is a problem (as long as it's heat-

treated to destroy the chicken anti-nutrients in legumes), and I have

no idea if this is true or not. His chickens seem healthy and their

meat and eggs nutritious for humans. For that matter, my chickens are

lovely and long-lasting. The egg yolks are dark yellow-orange even in

winter, and the meat birds I've raised have had beautiful yellow fat,

which Salatin says is a good sign. But chickens aren't cows--they

can't live on just grass. I also grow squash for them to eat in the

winter. I tried giving them alfalfa hay in the winter but they

weren't interested. So it's mostly grain, supplemented by meat

scraps, raw skim milk, and squash, through the long New England

winter.

Lierre

[Guest guest]

>>>>>Greetings,

I just wanted to briefly introduce myself to the list and say as well that

this is a wonderful list from which to learn.

----->lol! this is so great having old pals from the barf and other canine

lists here. we are taking over the *human* nutrition lists, guys!! lol

anyway, a BIG welcome to you nancy, hope you'll learn from and enjoy this

forum as much as i have :-)

Suze Fisher

Lapdog Design, Inc.

Web Design & Development

http://members.bellatlantic.net/~vze3shjg/

mailto:s.fisher22@...

[Guest guest]

At 11:41 PM 6/9/2003, you wrote:

>My chickens will have a much more free range than they do now. I don't like

>having

>them contained at all, but it's for their own safety, we live on a terribly

>busy and fast

>moving road...and one of my parents JRT's kills chickens. :-(

Mine die occasionally -- " free range " is decidedly a mixed bag. We are

likely going to build one of those " chicken tractors " and at least keep

them penned part-time. They eat toxic weeds occasionally too, I think, or

something -- I have seen them get poisoned, but I don't know what from.

They do look so happy though, running around loose, and they really get rid

of the bugs and weeds.

I get to learn all the nasty weeds that make their milk taste bad. Right

>now I don't

>think I'd know a bad one if it bit me on the butt. Good to know that they'd

>do alright

>without that commercial garbage.

Around here people often keep goats as blackberry vine control -- which is

what these were. They just let them loose on a fenced lot and leave them

there. I'm not sure how much " care " they need -- on islands were the goats

went feral they seem to multiply like crazy. Mine get tethered on a very

long chain during the day and they can eat what they want (our yard isn't

fenced, and they tend to eat the bedding plants and jump on cars if they

are loose).

As for milk quality ... that is a whole different ball park!

> " The thing I notice about commercial feed is: THEY DON'T LIST THE

>INGREDIENTS. I guess they don't have to. "

>

>Unfortunately, no, not that I've ever known. There's just not enough

>quality control,

>too much molasses, IMHO, and why the heck are they adding meat protien?

>I don't want to know. I'd rather just learn how to provide natural diets.

I hear they are thinking about using dried grubs now for turkey feed. Wow,

what a concept! Going back to bugs! Anyway, it would be easy enough to

raise a mess of bugs, dry them, and feed them to poultry. I give mine worms

from the worm bin too (worm bins are GREAT if you don't have one --

wonderful garbage control: what the chickens can't eat the worms get --

that only leaves onion skins and orange peels for the compost heap). But

chickens that have access to pasture get a lot of bugs I think, which would

be enough protien? It seems to be the starch they crave.

I was reading about the azomite powder -- I have never got any, but I

probably should. I'm thinking that would be good for minerals for chickens

and goats?

Thanks for the info about vet training. I guess people don't take their

chickens to the vet much. The 4H club keeps info about farming " alive "

around here, though it is very commercially oriented.

-- Heidi