Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Suze Fisher wrote: >> lol! this is so great having old pals from the barf and other canine lists here. we are taking over the *human* nutrition lists, guys!! lol << LOL, yes indeedy Suze. Today the list, tomorrow the world! wrote: >> I'll be ordering Nourishing Traditions soon, which was recommended to me a few weeks ago by a friend, I cannot wait to read it. Welcome to the list, ! I'm that friend, I hope you love it as much as I do! >> Are there any books or other sources of information I can peruse about feeding and caring for livestock naturally without the bagged grains they sell at the feedstore? << I love the book " The Complete Herbal Handbook for Farm and Stable " by tte de Bairacli Levy. It discusses horses and all kinds of livestock including sheep, chickens, cattle, and more. Even bees! It's very inspirational and contains lots of traditional nutritional and herbal remedies and foods. I think that the kind of farming you are talking about best matches Bio-dynamic farming, you might want to search for information on that. They use homeopathy, too, and there is a definite spiritual component, although many adherents do not observe that asepct of it. Here is a link: http://www.biodynamics.com/ Since you and I were talking about certifying agencies the other day, I'll add that the certifying agency for biodynamic farms is the Demeter Association at http://www.demeter-usa.org/. Heidi Schuppenhauer wrote: >> when I asked the vet why a chicken was laying soft eggs she didn't know. I asked a farmer and he said " because they need oyster shells!!! " (he left off the " silly lady " part, which was kind of him). << If you stop and think about it, when on earth would a chicken get OYSTER SHELL? It's not exactly " natural. " <G> What chickens with soft shells need is calcium, and oyster shell is a way to supplement it for them. But free ranging for insects is better. Christie Caber Feidh ish Deerhounds Holistic Husbandry Since 1986 http://www.caberfeidh.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 >If you stop and think about it, when on earth would a chicken get OYSTER >SHELL? It's not exactly " natural. " <G> What chickens with soft shells need >is calcium, and oyster shell is a way to supplement it for them. But free >ranging for insects is better. > >Christie I agree, but they DO free range, they eat a ton of insects, and if they don't get their oyster shell, they get thin shells! It isn't natural for a bird to lay constantly -- it's not good for them at all. But our land is glacial, and the soil is not good -- I was thinking about sprinkling azomite all over and letting the goats and chickens eat it too. -- Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 i remeber i could hardly drive for awhile. also my feet would swell so much i just wanted to cut them off for about 6 months. then i had my tarsal tunnel surgeries. my left foot still swells and gets painful, but nothing like it did before. i never threaten it's existance anymore. i'd always think i was losing my mind the way my pain used to travel. a nuclear bone scan told my story. it was the best test i could have taken. good luck, be persistant with the dr. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Welcome, Carole! Sorry you've not been well for so long. You're doing the right thing in having your symptoms investigated. The right diagnosis and medications can improve your situation tremendously. Having a caring and competent medical team is essential. I'm hoping that, once your results come back, your rheumatologist can come up with a plan to help you return to better health. There is no reason to think that you will have to live with all of the pain you have now. [ ] Introduction > Hi everyone - I have just joined this group, in the hope of learning > how others cope with their 'conditions'. > > I have been experiencing a number of problems with different joints, > over many years. I have mechanical back problems, and at present > waiting to see my Rheumatology Consultant, for results on some x-rays > (knees and right elbow) also blood tests. Next week I have an > appointment with an Occupational Therapist, (advice on lifting things > etc.) > > For approx. 4 months now, I have been experiencing problems with both > sholders. They are very painful and feel as though its more > ligaments or muscle, this causes me difficulty with driving. Also > recently, my feet and ankles have swollen up and I can't wear any of > my shoes. This also gives me problems walking. > > I am now beginning to wonder if there is more than one reason, for > all these things. Just wondering, how others cope and hoping for any > ideas please. > > All the best - Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi Kathy - hopefully soon I will have some answers. I get very depressed, although I try to be positive. Things like not being able to get shoes on, when deciding to go out, that seems to undo all my positive thinking. I stand there crying like a baby feeling sorry for myself. Also no 2 days are the same, I never know which bits are going to hurting, or giving way from one day to the next. So pleased your sugeries helped you - all the best Carole ^^~~ > i remeber i could hardly drive for awhile. also my feet would swell so much i > just wanted to cut them off for about 6 months. then i had my tarsal tunnel > surgeries. my left foot still swells and gets painful, but nothing like it did > before. i never threaten it's existance anymore. i'd always think i was losing > my mind the way my pain used to travel. a nuclear bone scan told my story. it > was the best test i could have taken. good luck, be persistant with the dr. > kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi - thanks for the welcome. I don't know how the others on the list feel, but sometimes, I have felt so alone. It's difficult to talk to other people who aren't going through similiar things. Not only that, I suppose it's pride, in not wanting people to know, what you can or can't do in the bathroom Many thanks - Carole > Welcome, Carole! > > Sorry you've not been well for so long. You're doing the right thing in > having your symptoms investigated. The right diagnosis and medications > can improve your situation tremendously. Having a caring and competent > medical team is essential. > > I'm hoping that, once your results come back, your rheumatologist can > come up with a plan to help you return to better health. There is no > reason to think that you will have to live with all of the pain you have > now. > > > > > > [ ] Introduction > > > > Hi everyone - I have just joined this group, in the hope of learning > > how others cope with their 'conditions'. > > > > I have been experiencing a number of problems with different joints, > > over many years. I have mechanical back problems, and at present > > waiting to see my Rheumatology Consultant, for results on some x- rays > > (knees and right elbow) also blood tests. Next week I have an > > appointment with an Occupational Therapist, (advice on lifting things > > etc.) > > > > For approx. 4 months now, I have been experiencing problems with both > > sholders. They are very painful and feel as though its more > > ligaments or muscle, this causes me difficulty with driving. Also > > recently, my feet and ankles have swollen up and I can't wear any of > > my shoes. This also gives me problems walking. > > > > I am now beginning to wonder if there is more than one reason, for > > all these things. Just wondering, how others cope and hoping for any > > ideas please. > > > > All the best - Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Yes, Carole, many people come here looking for others who will really understand. I know that's why I went searching for a group like this years ago. You aren't alone now. I know what you mean about pride. Feel free to tell us about bathroom activities if you wish though, LOL! [ ] Re: Introduction > > > Hi - thanks for the welcome. I don't know how the others on the > list feel, but sometimes, I have felt so alone. It's difficult to > talk to other people who aren't going through similiar things. Not > only that, I suppose it's pride, in not wanting people to know, what > you can or can't do in the bathroom > > Many thanks - Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Dear Carole: Have you had a regular routine checkup lately? You know with blood tests and urinalysis. I am hoping the swelling in your feet isn't from a kidney condition or heart problem. Probably it is not. It could be one of many minor things, but get a checkup soon. Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 welcome aboard angela im cindy well be here for you god bless cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Welcome, ! I'm very sorry about your mother's RA diagnosis, but it's wonderful that you are advocating for her. Fatigue is a very frustrating part of RA and can be debilitating. Fortunately, with the right disease-modifying antirheumatic drugs (DMARDs), the fatigue sometimes improves. Your mother's situation can get much better. Here are some good articles on fatigue that may help: " Mastering the Impact of Fatigue in Rheumatoid Arthritis " from the Hospital for Special Surgery: http://www.rheumatology.hss.edu/pat/eduPrograms/livingRA/fatigue_n_RA.asp " Fatigue: When You Don't Feel Like Fighting " from the Arthritis Foundation: http://www.arthritis.org/resources/arthritistoday/2002_archives/2002_05_06_Fatig\ ue_p2.asp From HealthTalk, " Living Well with RA: Managing Pain and Fatigue " : http://www.healthtalk.com/rheumatoidarthritis/programs/111202/index.cfm I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Introduction > Good Evening Everyone, > > My name is and my mother has just been diagnosed with RA. I > am on occupational therapist and as such am so happy to have found > this group! I am looking forward to learning from all of you and > broadening my knowledge of this dreaded disease. I am truly grateful > that you all take the time and energy to share your stories. You are > heroes in every sense of the word. > > We are anticipating Mom's first appointment with the rheumatologist > March 2nd with some real hope. At present she is taking Vioxx and > Tylenol with only a modicum of relief. I raced out and purchased a > wax bath unit and this seems to be working well for her in the > mornings. > > I am anxious to learn from this group about fatigue and to what > extent it interferes with daily acitivies. Mom is absolutely zonked > these days - I know some of it is from fear and anxiety and from > chronic pain, as well as from an inability to sleep at night due to > the pain, not to mention the sedating effect the Tylenol IIIs give > her. If all of that could be removed we might have a clearer picture > as to what degree the fatigue from the RA is affecting her. > > Any and all advice, tips, hints, suggestions, recommendations, > ideas, rumours etc. will be more than welcome and extrememly > appreciated. > > I wish you all an evening of relaxed peace and contentment. > > Sincerely, > > > St. Albert, AB > Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hello Lori, I'm glad you discovered this group, as I'm sure it will be a comfort to already " know " some people in Northeast Ohio when you get here. It's good to have you with us. I grew up in Shaker Hts. but did not attend their schools. However, they have always had a very strong reputation and they seem to do well by at least their younger students with special needs (I work with preschoolers with disabilities so I know more about services for that age group). They have even paid for dual placements for some students. We live in the Mayfield district and send all 4 of our children there, and we've been mostly satisfied with services for our 2 sons on the autism spectrum. The district serves four communities which are all fairly close to Willoughby (Mayfield Hts., Mayfield Village, Gates Mills and Highland Hts.) They have always ranked in the top 5 districts statewide, they pass all their levies and they pay their teachers extremely well (most have Master's degrees). They do very well with special education below middle school (they've recently opened up a specific unit for autism in one elementary), but things have been more challenging as the children moved into middle and high school. We have had to be much more proactive whereas before they practically threw services at us. If your sons have any behavioral issues, the middle school might be challenging. Also, since oldest son is gifted as well as autistic, we've discovered folks in the upper grade levels seemed to have a hard time understanding he really was a student with disabilities (he's out of school now). So that's something else to keep in mind. But I think with strong advocacy from parents (and since you found this group, I'll bet you're a terrific advocate), your children can receive a great education in this district. Because there are 4 communities, you'd have a wide choice of housing. Mayfield Hts. homes average around $100,000 to $150,000, Mayfield Village an, Highland Hts. are higher and Gates Mills is a luxury community. But while there is socio-economic diversity in the district, there is not much cultural diversity (this is changing though). Other east side districts I've heard good things about are Beechwood and Orange. They are pricey communities though. Euclid is a district that doesn't have the greatest genereal reputation but seems to do quite well with the special education needs, so you may want to consider it. Just stay away from city of Cleveland Public Schools - they are in huge financial crisis (the state may be taking over control of the district). They have cut teaching staff so drastically they may have 35+ kids in a classroom with no aide! One final suggestion would be to check out the Ohio Family Support Collaborative web page at http://olrs.ohio.gov/asp/olrs_SpecialEducation.asp. They have tons of information about services in Ohio, including the Autism scholarship, which gives parents money to educate their children with autism privately (of course...not ENOUGH money!). I hope this information is helpful to you. I'm sure it must be overwhelming making this decision. Best of luck to you and your family and keep in touch. Norah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Hello there, I lost my mom when she was 46 to breast cancer. however, I believe to have radiation or chemo is an individual choice. My mom had radiation which I don't believe affected her much at all, only made her a bit tired. The chemo made her sick and she lost her hair and her face was very swollen. However, now they have some meds that help with chemo and sickness. I have empathy with what you are going through and your mom. Please email me anytime heidisuzy7@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 i too am a breast cancer survivor. For me there was no side affects to my CMT with my radiation treatment, if any thing I actually felt better. Cathleen in Arkansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Welcome, ! You are a busy woman! Sorry that you are in a flare. What medications do you take? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Introduction > > > > My name is . I live in Houston, Texas and am raising 5 > children. my R.A. onset in 1991, so I have been 'coping' for 14 years > and I can think of a lot of things that I would rather be doing. I am > currently in a huge flare and naturally R.A. is foremost in my mind, > when I am not in a flare, I completely forget that I have it and just > tell myself that it is old age (I will be 40 this year). > > I was feeling so great a month ago, I really pushed myself to the > limits, driving hundreds of miles a day, working on the computer, and > chasing children over the snowy countryside. now I am fighting a > little cold and heavens to mercatroid, you would think that I had a > life threatening illness, I am so drained. > > I am a professional photographer on my good days and I love to take > pictures. I also do some family history, some sewing, some baking, and > some home schooling, interior remodeling, and travel. I really want > to see and do it all before I go. this condition however really does > get in the way of that! > > (Houston) > Magnus (6.27.01) > (9.29.99) > Naomi (12.7.90) > Krystal (9.25.85) > Jasmine (9.25.85) > > http://www.wretchedheathen.com (home) > http://www.barefootgiggles.com (work) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 - Welcome from another - in Michigan. I am 50 and have been dealing what was later diagnosed as RA since college. Glad to see you here- hope things get better for you. Your disability app was turned down like many in the first round- although age should work to your benefit in the appellate - usually 50 and over is good -55 and over better with regard to retraining. I am still working- poverty law firm that does social security disability benefits rights work-0 and have spent some time reviewing apps and the grid. I have been very fortunate inasmuch as my RA has been very slow progressing over the years- but understand the fatigue. Let's hope the Social Security reforms proposed won't work to the disadvantage of folks who rely on it. Welcome - this is a wonderful group of folks. Hugs and Hi, in MI -------------- Original message ---------------------- From: " " <kwendt@...> > > > > Hello, > Glad to have bumped into this group. > I was diagnosed with RA a little over two years ago. Started out > with methotrexate and large dose of steriod . . . then went to > Humira and am now on Remicaid, methotrexate, anti depression, > flexeril and vitamins. Ongoing symptoms led me to a recent diagnosis > of fibromyalgia and the dry eyes and mouth is thought to be > Sjorgens. I'm 55 and had to leave work because I couldn't function > on any level at my job . . . filed for disability and of course have > been turned down and now at the appeal stage. Have cataracts due to > the steriods I took for so long. > I wish I could say I've had a remission but no such luck - I have > good days here and there and I cherish them. > I finally changed my rheumatologist to one closer to me and > more " pro-active " He tested me for the HLA-B20? gene and I have it - > he hasn't told me much yet beyond that I was positive so I've been > trying to learn what I can about it. If anyone knows what that > means, I would love to hear. > I feel worse for my husband and my family - I look the same so it's > hard for them to understand why I can't do all the things I used to > and why I'm so tired . . . > Anyway - I'm looking forward to learning and sharing with others. > > Thanks so much! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 the whole buffet: celebrex 400 mg methotrexate 20 mg prednisone 10 mg folic acid 1 mg ibuprofen 800 mg chocolate as needed. ;-) --- In , " " <Matsumura_Clan@m...> wrote: > Welcome, ! You are a busy woman! > > Sorry that you are in a flare. What medications do you take? > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] Introduction > > > > > > > > > > My name is . I live in Houston, Texas and am raising 5 > > children. my R.A. onset in 1991, so I have been 'coping' for 14 years > > and I can think of a lot of things that I would rather be doing. I am > > currently in a huge flare and naturally R.A. is foremost in my mind, > > when I am not in a flare, I completely forget that I have it and just > > tell myself that it is old age (I will be 40 this year). > > > > I was feeling so great a month ago, I really pushed myself to the > > limits, driving hundreds of miles a day, working on the computer, and > > chasing children over the snowy countryside. now I am fighting a > > little cold and heavens to mercatroid, you would think that I had a > > life threatening illness, I am so drained. > > > > I am a professional photographer on my good days and I love to take > > pictures. I also do some family history, some sewing, some baking, and > > some home schooling, interior remodeling, and travel. I really want > > to see and do it all before I go. this condition however really does > > get in the way of that! > > > > (Houston) > > Magnus (6.27.01) > > (9.29.99) > > Naomi (12.7.90) > > Krystal (9.25.85) > > Jasmine (9.25.85) > > > > http://www.wretchedheathen.com (home) > > http://www.barefootgiggles.com (work) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 karen, we are about the same age and i have had sjogrens, fibromyalgia, osteo arthritis and now the big RA! it is hard because we do ~look~ the same... and we do not feel the same that is for sure... i have just started enbrel and i am feeling better already... my husband is giving me the injections... we need to read and educate our selves as much as we can.. and this is a very nice place to do it... gina and paula are very nice and verrrry knowledgeable on a lot of this... you can e-mail me anytime you want... rae [ ] Introduction Hello, Glad to have bumped into this group. I was diagnosed with RA a little over two years ago. Started out with methotrexate and large dose of steriod . . . then went to Humira and am now on Remicaid, methotrexate, anti depression, flexeril and vitamins. Ongoing symptoms led me to a recent diagnosis of fibromyalgia and the dry eyes and mouth is thought to be Sjorgens. I'm 55 and had to leave work because I couldn't function on any level at my job . . . filed for disability and of course have been turned down and now at the appeal stage. Have cataracts due to the steriods I took for so long. I wish I could say I've had a remission but no such luck - I have good days here and there and I cherish them. I finally changed my rheumatologist to one closer to me and more " pro-active " He tested me for the HLA-B20? gene and I have it - he hasn't told me much yet beyond that I was positive so I've been trying to learn what I can about it. If anyone knows what that means, I would love to hear. I feel worse for my husband and my family - I look the same so it's hard for them to understand why I can't do all the things I used to and why I'm so tired . . . Anyway - I'm looking forward to learning and sharing with others. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Hi Everyone I too am glad to find this group and so many familiar names. I am glad to find this group works the same, group email and no nonsense. I was disappointed to see the other group fail, but am glad so many of the oldtimers are now here. When i first had need of support I got so much from many of you. I would like to briefly introduce myself to this group, sorry if you already know my history. i was first diagnosed with cml in 1992. In 1993 I had a bmt using my brother's marrow. I relapsed in November, 2003, but due to a hospital muck up, this was not discovered until July 2004. Thanks to some great help from people in this group, I learned about Gleevec and all the other options open to me now. I began taking gleevec last july, but had a hard time at first and had to stop. I began again in October 2004, and am now established on gleevec 400mg. At relapse a bmb showed 100% ph+, 11% blasts and the vast majority of my marrow was mine, with very little donor marrow. After 3 months on gleevec, the bmb showed 93% of my marrow is now normal male, 3 out of 40 cells are ph+, and the protien bcr has dropped from 87% to a little over 1%, so I have shown a good reaction to gleevec. I am so grateful to the people on this group who helped me through some very difficult times, coming to terms with my illness again, and helping cope with side effects of gleevec. I am looking forward to the time when I too can become a member of Zavie's zero club. Having the opportunity to chat with some of you has also been great therapy for me and I look forward to that continuing. I have not been able to meet many people here in Melbourne who take gleevec, and it has been great to have such a knowlegable group here who help when I have a side effect my doctor has never encountered. Thanks to those responsible for setting this group up. Judy Telford Melbourne Australia --------------------------------- Find local movie times and trailers on Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 > > Hi again, I mentioned here that the cml support group had failed, I'm sorry I said that, it hasn't failed, just changed and I did not like the way it had changed. I have tried to follow what went wrong with the group and why it needed to shift. I have been receiving mail from the new google group, but do not like the way it sends individual mails. i have asked to have this stopped and will now visit the cml hope site from now on. Also I do not agree with anybody being banned from the site because they have a disagreement with the mediator. I hope this explains my postion, as i have been emailed privately from the other group, saying i posted things on this site about the cml google group that were not true. Judy Telford > Hi Everyone > I too am glad to find this group and so many familiar names. I am glad to find this group works the same, group email and no nonsense. I was disappointed to see the other group fail, but am glad so many of the oldtimers are now here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Judy, Thank you so much for joining the group and sharing your story. I'm sorry about the relapse but am surely grateful to god that the gleevec is working for you. I want to apologize for the email you received about the other group and expressing your feelings. Please feel free to express how you feel about anything in here. I have written the owners of the other groups and ask that they not address those sort of issues on a private basis, that we can express freely here and that is how it should be. Welcome to , I sincerely hope that the support we give and receive is all it needs to be. Blessed Be! Amy B. cml 4/03 CCR 9/03 PCR .09 6/04 Going back in June! > > > > Hi again, I mentioned here that the cml support group had failed, > I'm sorry I said that, it hasn't failed, just changed and I did not > like the way it had changed. I have tried to follow what went wrong > with the group and why it needed to shift. I have been > receiving mail from the new google group, but do not like the way it > sends individual mails. i have asked to have this stopped and will > now visit the cml hope site from now on. Also I do not agree with > anybody being banned from the site because they have a disagreement > with the mediator. I hope this explains my postion, as i have been > emailed privately from the other group, saying i posted things on > this site about the cml google group that were not true. > Judy Telford > > Hi Everyone > > I too am glad to find this group and so many familiar names. I am > glad to find this group works the same, group email and no > nonsense. I was disappointed to see the other group fail, but am > glad so many of the oldtimers are now here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Welcome ! I completely understand about the fatigue you described and some people not understanding what it's like. I feel the same way about my boyfriend. Sometimes he gives me looks like 'oh stop you can't be that tired'. He doesn't understand but then again how could he. I told him to wear 20 pound leg weights on each leg for a day and then tell me how you feel. He did. But his legs are very strong and it was no problem for him. So that experiment turned out to be a bust. (maybe someone could give me some advice on how to show him what CMT feels like?) I sometimes feel very bad for him when I'm so tired because I feel like I'm not the girlfriend he expected to have. I used to go out all the time, dance and have a great time. Now I can't get into bed fast enough. It gives me quite a guilt trip at times. He trys to be understanding but sometimes he'll let a wise comment slip out which cuts like a knife. The advice that I received from these great people in the group was to learn your limitations to try and avoid fatigue. I'm still working on it as I've always been an over achiever. But I sure do know when I've over worked myself. Best wishes and keep posting! Elaina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Hi Sandy, It is amazing that your dr suggested ldn. Most of us have had to find drs who would presribe ldn. For me, I think ldn is the best thing out there. I wish my dr told me about it 6 yrs ago when I was first dx'ed. I experimented with different doses 3 or 4.5 mg...and decided 3 is best for me. I could tell from stiffness. When I started ldn, my mind became so much clearer. At tax time this year my husband and I were laughing. In the past he would ask me questions about where different forms where...and I would say, I don't know...this year- after a year on ldn - I did our taxes on Turbo tax .com. I still want to be pain free, stronger and more balanced....and hopefully that will come in time. I also started on glyconutrients and am going through a lot of detox.... My advice, get on ldn. I get mine from skips RX is FL and it is only $15 a month. The dr who prescribed it for me is on it now as a cancer prevention. I would not wait another day. Lori [low dose naltrexone] Introduction Hello,My Name is Sandy and I'm looking for information on LDN. I have MS and my doctor suggested I look at the website, and join this group - so here I am.:-) Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Sandy, You have come to the right place. There are people here who have a great deal of knowledge and experience with LDN. (I am not one of them yet because I have only been using LDN for about a month.) I would suggest that it would be very good for you to do a bit of research into LDN before you make a decision about whether or not to give it a try. There are two web sites that have a lot of information that I think you will find very helpful. One is www.low dose naltrexone.org and the other is www.ldners.org . Do your research first, but I agree with Lori when she says that LDN is the best thing out there for MS. Vali From: " daherbmama " <herbmama@...> Date: Sun Apr 17, 2005 8:30 pm Subject: Introduction Hello, My Name is Sandy and I'm looking for information on LDN. I have MS and my doctor suggested I look at the website, and join this group - so here I am. :-) Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 --- In low dose naltrexone , " daherbmama " <herbmama@v...> wrote: > > Hello, > My Name is Sandy and I'm looking for information on LDN. I have MS > and my doctor suggested I look at the website, and join this group - > so here I am. > :-) Sandy here Sandy, this tells you how to make your own in liquid form. It's easier to try out different dosages this way. http://goodshape.net/HomemadeLDN.html Johanne F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 Sandy, You have a good doctor most of them are not familiar with LDN. Regards, Tom [low dose naltrexone] Introduction > > > Hello, > My Name is Sandy and I'm looking for information on LDN. I have MS > and my doctor suggested I look at the website, and join this group - > so here I am. > :-) Sandy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.