Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Thanks for writing to Amazon.com. You should find the answers to most of your questions in our online Help department: http://www.amazon.com/help/ To view any order, or to make changes to an order that has yet to enter the shipping process, visit Your Account: http://www.amazon.com/your-account/ You can also access Your Account by clicking the link at the top of any page of our store. Once there, you can cancel or combine items from orders that have not yet entered the shipping process, as well as change the shipping address, payment method, or shipping method of most pending orders. Thank you again for shopping at Amazon.com. Sincerely, Amazon.com Customer Service http://www.amazon.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Sat, 18 Dec 2004 01:52:25 EST From: foxhillers@... Subject: Re: [ ] Digest Number 1700 Barb I do not know about this diet, but we make yoghurt here. I let it culture at least 24 hours to assure complete conversion of the milk sugars, then let it sit overnight before eating it. You can try to culture cream or half and half. Remember, the bacteria need sugar in order to replicate and turn dairy into yoghurt. Did you do a web search for the directions? mjh In a message dated 12/17/04 9:15:01 PM Eastern Standard Time, writes: > Message: 1 > Date: Thu, 16 Dec 2004 20:02:55 -0700 > From: Barb Hunte <bhunte@...> > Subject: Specific Carb Diet--Question > > Hello All, > > Does anyone have the directions for the Specific Carb Diet YOGURT---the > library has a three week wait for the book, I've gone to two book stores > with no luck, and now I've got the flu and can't keep hunting. > > Can I make it with cream because my little one is on a ketogenic diet? It > would help her oil count. > > How much should I serve a 6 year old each day? > > She's been dairy free since 4 months of age, should she be able to tolerate > this yogurt, will it help recolonize her gut? > > Thank you, > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Sun, 19 Dec 2004 22:32:17 -0800 (PST) From: Elise Strong <elisestrong@...> Subject: Re: [ ] Re: s Reiter clinic? Hi there- I'd just like to issue a small warning regarding Donna s. She may be wonderful, and she may have a lot of help to offer people, but that was not our experience. She gave us some incorect information, she was INTENSE and seemed to have a bit of an agenda. Our first experience with her was good and actually helpful, but the second time around, VERY bad experience. Wishing you all the best, but just thought this may be helpful. my best- --- mcpitza <mcpitza@...> wrote: > > I can vouch for Donna s being wonderful. > However my son was too > immature to try her program. She works with > Rieter M.D. who is > one of the most respected Neurologists in the > country so that says > something too. There used to be a man in this group > - I think his > name was Lamar ( I know his first name began > with an L) He was > a patient there and became seizure free. He no > longer seems to post. > I guess he has gotten over epilepsy and gotten on > with his life. It's > nice to think there will come a time in everyone > here's life where > seizures will just be a footnote and not a focal > point. > > MIchael > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Thanks for writing to Amazon.com. You should find the answers to most of your questions in our online Help department: http://www.amazon.com/help/ To view any order, or to make changes to an order that has yet to enter the shipping process, visit Your Account: http://www.amazon.com/your-account/ You can also access Your Account by clicking the link at the top of any page of our store. Once there, you can cancel or combine items from orders that have not yet entered the shipping process, as well as change the shipping address, payment method, or shipping method of most pending orders. Thank you again for shopping at Amazon.com. Sincerely, Amazon.com Customer Service http://www.amazon.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Tue, 21 Dec 2004 04:53:19 EST From: foxhillers@... somiarea19 , , orthomolecular , ADD_ADHD Subject: [ ] Seizure drugs and bone problems Hiya all I just found this report and know a number of our athletes are on seizure drugs. Cod liver oil, sunsine and exercise help with vitamin D to keep bones healthy. I will talk to Charlie's neurologist about this as soon as possible. Happy holidays to you all Charlie's Mom mjh > From: Foxhillers@... > Foxhillers@... ; zll@... > Sent: Monday, December 20, 2004 4:34 PM > Subject: AEDs and bone problems > > > http://www.docguide.com/news/content.nsf/news/8525697700573E1885256F690054ECD > 7?OpenDocument & id=48dde4a73e09a969852568880078c249 & c=Epilepsy & count=10 > > AES: Fracture Risk Increases With Antiepileptics, Especially in Women > > By Bonnie Darves > > NEW ORLEANS, LA -- December 13, 2004 -- Bone disorders, especially low bone > mineral density (BMD), are especially prevalent in patients with epilepsy > and often goes be unrecognized, according to study results presented here > December 7th during the American Epilespy Society Annual Meeting. > > Although both men and women who take antiepilepctic drugs are at higher risk > for osteoporosis and fracture, incidence is especially high among older > women, said Jouko Isojarvi, MD, PhD, researcher, Utrecht Institute for > Pharmaceutical Sciences, Utrecht, The Netherlands. > > " The risk of fracture is almost twice as high in patients with epilepsy than > in those who don't have [the disorder], and there is a striking increase in > bone disorders and fracture rates among females after age 50, " Dr. Isojarvi > said. > > Allowing that menopause is likely a contributing factor to low BMD in this > population, he said that antiepileptic drugs clearly exacerbate the hormonal > effect on bone loss. As such, clinicians should be on the lookout for bone > disorders and encourage patients with low BMD to seek appropriate treatment, > he said. > > The large multicentre study involved an extensive review of patient records > from a United Kingdom primary care database that included 40,485 patients > diagnosed with epilepsy and 80,970 controls. Patients were included in the > epilepsy cohort if their records indicated previous use of antiepilepctics > or a diagnosis of epilepsy. The study covered records of patients treated > from 1990 to 1998. > > The researchers found 3,489 fractures among the epilepsy patients, whose > mean age was 39.1 years, for an incidence of 241.9 per 10,000 person > years -- nearly twice that found in the control group. > > The incidence density ratio of 1.96 declined slightly, to 1.89, when > researchers adjusted for age and gender, Dr. Isojarvi said. In women with > epilepsy who were older than 50 years, fracture rates, especially in the hip > and femur, were more than 20% higher than in non-epilepsy control, > suggesting that antiepilepctic drugs might be a major contributing factor. > > > [Presentation title: " A Population Based Cohort Study on the Incidence of > Fractures Among Patients With Epilepsy. " Abstract F.03] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Tue, 21 Dec 2004 09:56:03 GMT From: " Amazon.com " <order-update@...> Subject: [ ] Re: Your Amazon.com Inquiry Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Tue, 21 Dec 2004 04:53:19 EST From: foxhillers@... somiarea19 , , orthomolecular , ADD_ADHD Subject: [ ] Seizure drugs and bone problems Hiya all I just found this report and know a number of our athletes are on seizure drugs. Cod liver oil, sunsine and exercise help with vitamin D to keep bones healthy. I will talk to Charlie's neurologist about this as soon as possible. Happy holidays to you all Charlie's Mom mjh > From: Foxhillers@... > Foxhillers@... ; zll@... > Sent: Monday, December 20, 2004 4:34 PM > Subject: AEDs and bone problems > > > http://www.docguide.com/news/content.nsf/news/8525697700573E1885256F690054ECD > 7?OpenDocument & id=48dde4a73e09a969852568880078c249 & c=Epilepsy & count=10 > > AES: Fracture Risk Increases With Antiepileptics, Especially in Women > > By Bonnie Darves > > NEW ORLEANS, LA -- December 13, 2004 -- Bone disorders, especially low bone > mineral density (BMD), are especially prevalent in patients with epilepsy > and often goes be unrecognized, according to study results presented here > December 7th during the American Epilespy Society Annual Meeting. > > Although both men and women who take antiepilepctic drugs are at higher risk > for osteoporosis and fracture, incidence is especially high among older > women, said Jouko Isojarvi, MD, PhD, researcher, Utrecht Institute for > Pharmaceutical Sciences, Utrecht, The Netherlands. > > " The risk of fracture is almost twice as high in patients with epilepsy than > in those who don't have [the disorder], and there is a striking increase in > bone disorders and fracture rates among females after age 50, " Dr. Isojarvi > said. > > Allowing that menopause is likely a contributing factor to low BMD in this > population, he said that antiepileptic drugs clearly exacerbate the hormonal > effect on bone loss. As such, clinicians should be on the lookout for bone > disorders and encourage patients with low BMD to seek appropriate treatment, > he said. > > The large multicentre study involved an extensive review of patient records > from a United Kingdom primary care database that included 40,485 patients > diagnosed with epilepsy and 80,970 controls. Patients were included in the > epilepsy cohort if their records indicated previous use of antiepilepctics > or a diagnosis of epilepsy. The study covered records of patients treated > from 1990 to 1998. > > The researchers found 3,489 fractures among the epilepsy patients, whose > mean age was 39.1 years, for an incidence of 241.9 per 10,000 person > years -- nearly twice that found in the control group. > > The incidence density ratio of 1.96 declined slightly, to 1.89, when > researchers adjusted for age and gender, Dr. Isojarvi said. In women with > epilepsy who were older than 50 years, fracture rates, especially in the hip > and femur, were more than 20% higher than in non-epilepsy control, > suggesting that antiepilepctic drugs might be a major contributing factor. > > > [Presentation title: " A Population Based Cohort Study on the Incidence of > Fractures Among Patients With Epilepsy. " Abstract F.03] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Wed, 22 Dec 2004 07:22:45 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: [ ] Stevia , Call me old fashioned, but I like to use regular store bough granulated sugar. My family has been using it for many many years and they've been doing just fine. Only the ones who've changed to equal or other types of sugar have been having problems so I'm sticking to my regular sugar and that's that. I find that everytime they come out with a different more improved type of sugar that's supposed to be better for you, turns out to be the worst thing you could put into your body and eventually is taken off the shelves, but not so with reguard old fashioned granulated sugar, but this is just my opinion. Grace angel_lts@... wrote: Stevia how safe is it? I am always afraid to start new things, afraid of a seizure will happen. I would not take aspertame, equal... because they are toxic.... But very cautious of stevia, but have not found anything bad about it. I would like to buy it. How do I buy it(powder, liquid) and where do I buy? How expensive? ANd is there a table of the diffence for usage for regular sugar and stevia, in case I am going to bake with it?? Thanks -epilepsy approach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Wed, 22 Dec 2004 15:23:05 GMT From: " Amazon.com " <order-update@...> Subject: [ ] Re: Your Amazon.com Inquiry Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Wed, 22 Dec 2004 07:22:45 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: [ ] Stevia , Call me old fashioned, but I like to use regular store bough granulated sugar. My family has been using it for many many years and they've been doing just fine. Only the ones who've changed to equal or other types of sugar have been having problems so I'm sticking to my regular sugar and that's that. I find that everytime they come out with a different more improved type of sugar that's supposed to be better for you, turns out to be the worst thing you could put into your body and eventually is taken off the shelves, but not so with reguard old fashioned granulated sugar, but this is just my opinion. Grace angel_lts@... wrote: Stevia how safe is it? I am always afraid to start new things, afraid of a seizure will happen. I would not take aspertame, equal... because they are toxic.... But very cautious of stevia, but have not found anything bad about it. I would like to buy it. How do I buy it(powder, liquid) and where do I buy? How expensive? ANd is there a table of the diffence for usage for regular sugar and stevia, in case I am going to bake with it?? Thanks -epilepsy approach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Thanks for writing to Amazon.com. You should find the answers to most of your questions in our online Help department: http://www.amazon.com/help/ To view any order, or to make changes to an order that has yet to enter the shipping process, visit Your Account: http://www.amazon.com/your-account/ You can also access Your Account by clicking the link at the top of any page of our store. Once there, you can cancel or combine items from orders that have not yet entered the shipping process, as well as change the shipping address, payment method, or shipping method of most pending orders. Thank you again for shopping at Amazon.com. Sincerely, Amazon.com Customer Service http://www.amazon.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Thu, 23 Dec 2004 22:16:34 -0000 From: " lwm311962 " <lwm31@...> Subject: [ ] Re: Nystagmus Dear Grace, My son was on Lamictal years ago and it increased his seizures to 18 a day!!!!!!!!!!!!!!!!!!!!!! He doesn't have 18 in 3 months. The neuro said it was highly unlikely that an AED would do that but take him off of it. The seizures went back to their normal pattern immediately. I HATE Lamictal. My son has been on Dilantin -- it caused a severe dystonic reaction in him and drug toxicity. He's also been on Topamax, Depakote, phenobarbital, and I think one other, but I can't remember it. They all made him dopey. I weaned my son off of all meds two years ago. I did it over a period of a year and a half without the neuro's consent because he said, and I quote, " He has to be on something. " Can you believe that? Even though he had these horrible side effects and they didn't control the seizures. I have no more respect for neuros. And this guy is supposed to be the best in the country for pediatric epileptology. My foot! That having been said, this is my opinion only. You follow your gut, girl. Once I started doing that, I slept a lot better, and had less anxiety. And no, weaning my son slowly off the meds did not cause an increase in his seizures, so that way I knew for sure they weren't helping him even one-half of a percent. I hope this helped. Lori > > > > I just finished taking to the eye doctor and I was told that she has rotational nystagmus and when I asked her what this was, she told me that it is when the eyes make rotating movements. Now, goes to the eye doctor once a year and I have never been told this and so when I got home, I went on the net and did a search on nystagmus and Lamictal and sure enough it is one of the side effects. When I asked the doc what it's doing to she said that it feels like the world is spinning or moving in rotating motion, this is crazy, another crazy side effect my daughter has had to endure because of these AEDs. I am so glad that I'm weaning her off of them. I feel she has done worse on these drugs and things just continue to get worse. I wish I had never put her on AEDs. My poor baby is developmentally delayed and is not able to tell me what she's feeling. I did notice that since she's been on Lamictal that whenever she does certain letters or numbers that she's > like stuck in a circular motion for example, whenever she writes the letter C she repeats the beginning part of the C over and over again until I stop her and then she'll continue with the rest of the letter. This has been very frustrating to watch and it also is what finally led me to the point where I told her neuro that I want her off of the meds. > > Has anyone had this happen or know of someone who had this happen to them and can you describe what it felt like. > > Thanks for your help! > > Grace > > > > When fear and worry test your faith and anxious thoughts assail, remember God is in control and He will never fail. > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2004 Report Share Posted December 25, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Fri, 24 Dec 2004 18:46:51 -0800 (PST) From: mark hogue <markhogue2002@...> Subject: Re: [ ] Merry Christmas and a Blessed New Year. SAME TO YOU SOPHIE,MARK HOGUE amkurious <amkurious@...> wrote: So very little time to spare these last few days... just sending a quick note to wish everyone a very " wonder " ful and safe Christmas with family and friends. I hope that the New Year brings much Happiness and HEALTH to all of us. Sophie (mom to a) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2004 Report Share Posted December 25, 2004 Thanks for writing to Amazon.com. You should find the answers to most of your questions in our online Help department: http://www.amazon.com/help/ To view any order, or to make changes to an order that has yet to enter the shipping process, visit Your Account: http://www.amazon.com/your-account/ You can also access Your Account by clicking the link at the top of any page of our store. Once there, you can cancel or combine items from orders that have not yet entered the shipping process, as well as change the shipping address, payment method, or shipping method of most pending orders. Thank you again for shopping at Amazon.com. Sincerely, Amazon.com Customer Service http://www.amazon.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Sun, 26 Dec 2004 08:35:39 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: [ ] Re: Nystagmus , I absolutely agree that AEDs can cause you to have many more seizures and my daughter is also proof of this. Doctors are either ignorant of this fact or just don't want to admit that this is true. Just like they can help some reduce or eliminate their seizures, they can also increase or make them worse for others. Grace angel_lts@... wrote: Lori, Lamictal gave me gave me insomnia so I had more seizures because of the lack of sleep. That is not true about not giving you seizures these medication. I was on topamax and it gave me 20 seizures a day twice and I had to be hospitalized to get me off immediately. How is your son now with his seizures? > > > > > > > > I just finished taking to the eye doctor and I was told > that she has rotational nystagmus and when I asked her what this was, > she told me that it is when the eyes make rotating movements. Now, > goes to the eye doctor once a year and I have never been > told this and so when I got home, I went on the net and did a search > on nystagmus and Lamictal and sure enough it is one of the side > effects. When I asked the doc what it's doing to she said > that it feels like the world is spinning or moving in rotating > motion, this is crazy, another crazy side effect my daughter has had > to endure because of these AEDs. I am so glad that I'm weaning her > off of them. I feel she has done worse on these drugs and things > just continue to get worse. I wish I had never put her on AEDs. My > poor baby is developmentally delayed and is not able to tell me what > she's feeling. I did notice that since she's been on Lamictal that > whenever she does certain letters or numbers that she's > > like stuck in a circular motion for example, whenever she writes > the letter C she repeats the beginning part of the C over and over > again until I stop her and then she'll continue with the rest of the > letter. This has been very frustrating to watch and it also is what > finally led me to the point where I told her neuro that I want her > off of the meds. > > > > Has anyone had this happen or know of someone who had this happen > to them and can you describe what it felt like. > > > > Thanks for your help! > > > > Grace > > > > > > > > When fear and worry test your faith and anxious thoughts assail, > remember God is in control and He will never fail. > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Sun, 26 Dec 2004 16:37:03 GMT From: " Amazon.com " <order-update@...> Subject: [ ] Re: Your Amazon.com Inquiry Greetings from Amazon.com. We're sorry. You replied to a notification-only address that cannot accept incoming e-mail. But that's OK--this automated response will direct you to the right place at Amazon.com to answer your question or help you make changes to your order. To change any unshipped orders, make changes to your account, or view your order history, visit: http://www.amazon.com/your-account For answers to questions about how to order, our shipping rates, and how to use any of our services, visit: http://www.amazon.com/help We hope our online resources meet all your needs. If you've explored the above links but find you still need to get in touch with us, please use the e-mail form available in our online Help department. Thanks for shopping at Amazon.com! Sincerely, Amazon.com Customer Service http://www.amazon.com P.S. You received this message because Amazon.com received the following message: Date: Sun, 26 Dec 2004 08:35:39 -0800 (PST) From: Grace <foxyfoxgrace@...> Subject: Re: [ ] Re: Nystagmus , I absolutely agree that AEDs can cause you to have many more seizures and my daughter is also proof of this. Doctors are either ignorant of this fact or just don't want to admit that this is true. Just like they can help some reduce or eliminate their seizures, they can also increase or make them worse for others. Grace angel_lts@... wrote: Lori, Lamictal gave me gave me insomnia so I had more seizures because of the lack of sleep. That is not true about not giving you seizures these medication. I was on topamax and it gave me 20 seizures a day twice and I had to be hospitalized to get me off immediately. How is your son now with his seizures? > > > > > > > > I just finished taking to the eye doctor and I was told > that she has rotational nystagmus and when I asked her what this was, > she told me that it is when the eyes make rotating movements. Now, > goes to the eye doctor once a year and I have never been > told this and so when I got home, I went on the net and did a search > on nystagmus and Lamictal and sure enough it is one of the side > effects. When I asked the doc what it's doing to she said > that it feels like the world is spinning or moving in rotating > motion, this is crazy, another crazy side effect my daughter has had > to endure because of these AEDs. I am so glad that I'm weaning her > off of them. I feel she has done worse on these drugs and things > just continue to get worse. I wish I had never put her on AEDs. My > poor baby is developmentally delayed and is not able to tell me what > she's feeling. I did notice that since she's been on Lamictal that > whenever she does certain letters or numbers that she's > > like stuck in a circular motion for example, whenever she writes > the letter C she repeats the beginning part of the C over and over > again until I stop her and then she'll continue with the rest of the > letter. This has been very frustrating to watch and it also is what > finally led me to the point where I told her neuro that I want her > off of the meds. > > > > Has anyone had this happen or know of someone who had this happen > to them and can you describe what it felt like. > > > > Thanks for your help! > > > > Grace > > > > > > > > When fear and worry test your faith and anxious thoughts assail, > remember God is in control and He will never fail. > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 I just emailed amazon about that. I have been woundering also. Once I here something I'll let you know. momwlol41 momwlol41 <momwlol41@...> wrote:what is the deal with all these amazon e-mails? " Amazon.com " <store-news@...> wrote:Thanks for writing to Amazon.com. You should find the answers to most of your questions in our online Help department: http://www.amazon.com/help/ To view any order, or to make changes to an order that has yet to enter the shipping process, visit Your Account: http://www.amazon.com/your-account/ You can also access Your Account by clicking the link at the top of any page of our store. Once there, you can cancel or combine items from orders that have not yet entered the shipping process, as well as change the shipping address, payment method, or shipping method of most pending orders. Thank you again for shopping at Amazon.com. Sincerely, Amazon.com Customer Service http://www.amazon.com/ Quote Link to comment Share on other sites More sharing options...
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