hello everyone

[Guest guest]

Judi,

You poor girl! I hope you find out what is causing the hives. It's bad

enough that you suffer with the dercum's bumps and now the hives.

I don't know how you cope with such an attitude.

I've never had Cold Stone ice cream. There is a Cold Stone store close by

but I didn't know what it was. I have the feeling I am going to regret

finding out LOL!

a

>

>

> Dear All,

>

> Have been off line for awhile, recovering from a bout of pneumonia

> and dealing with a mysterious case of recurring hives. The pneumonia

> is better, nearly gone, the hives keep popping up (sorry about the

> pun) and my doctor thinks it may just be my body's reaction to the

> bacteria in my system, as we can find no logical reason--no new

> laundry soap, meds, foods, etc. Of course, the whole event caused a

> flare-up of Dercum's symptoms, new tumors, more pain, etc. But I'm

> on the road back, even went to Oxford (Ohio) yesterday to the Miami

> U. art museum and stopped for some Cold Stone ice cream on the way

> home. Ah, ice cream--the great cure all! )

>

> I've read some of the information about Vioxx--my old doctor had me

> try that 2 years ago but it upset my stomach so terribly (it wouldn't

> even stay down no matter how I took it!) that he switched me to

> Celebrex with the same result. A lady in our church started taking

> Vioxx at the same time, and had a heart attack about 6 months later

> though she never had heart problems before. I tried Bextra but am

> allergic to the sulfa. Currently taking diclofenac (Voltaren) 50 mg

> once a day which does help with the pain.

>

> That's about it from me. Welcome to the new members, hello to the

> old, and I wish you all a happy autumn.

>

> Judi in cold, windy Indiana

>

>

>

>

>

>

>

[Guest guest]

>

> Dear Stimulator Members,

>

> I am sorry for not getting your postings up right away I have been

> sick and have a really bad shoulder that I will be having surgery

on

> soon. I will be writing Mike to make sure that your postings will

be

> posted more often, since the group is growing I am gonna see if we

> can get another moderator. I truley am sorry about not getting

your

> messages posted fast enough. I hope that all of you are doing well

> and I wish you all the best with the stimulator.

>

> Sincerley,

> Holly Group Moderator

Holly,

here, I feel really bad for you and your medical issues. It's

because of you we are able to express our thoughts here in this

forum, so I am grateful for this. Please be well and I look forward

to hearing of your recovery. Another moderator might be a good idea

for the time beeing, untill you feel better.

Please let us know if we can help!!

[Guest guest]

Holly,

I was wondering about that, but don't worry, #1 is getting yourself feeling

better. Sorry about that shoulder and best wishes for speedy recovery.

Jeff-NY/PA

Hello Everyone

Dear Stimulator Members,

I am sorry for not getting your postings up right away I have been

sick and have a really bad shoulder that I will be having surgery on

soon. I will be writing Mike to make sure that your postings will be

posted more often, since the group is growing I am gonna see if we

can get another moderator. I truley am sorry about not getting your

messages posted fast enough. I hope that all of you are doing well

and I wish you all the best with the stimulator.

Sincerley,

Holly Group Moderator

[Guest guest]

Hi Deanna, I'm glad that your here, your Mother is very lucky to have

a supporting daughter. I have been on the Humira for almost a year,

and it isn't doing as much as I would like it to do. I just started

the Methotrexate with the Humira, and hopefully both will do well.

They say doing both the MTX with the Humira works great. Were all

here for you, and your Mom, hugs Tawny

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Thank you and thanks for the information. It is just so frustrating to watch and

not be able to do anything about it. It seems to be a waiting game - waiting to

see which drug or combo of drugs brings relief. Best to you,

DEANNA

[ ] Re: Hello everyone

Hi Deanna, I'm glad that your here, your Mother is very lucky to have

a supporting daughter. I have been on the Humira for almost a year,

and it isn't doing as much as I would like it to do. I just started

the Methotrexate with the Humira, and hopefully both will do well.

They say doing both the MTX with the Humira works great. Were all

here for you, and your Mom, hugs Tawny

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Hi and welcome to the group. MTX worked very well for me until my RA

progressed and it wasn't enough any more. Then we added Humira and

I've had my RA under control for the most part for 11 months. I hope

she can get it approved through her insurance. Was she at the

maximum dose of mtx (25mgs)?

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Ice packs should help with the pain.

I am confused....you still have the lead wires in your back don't

you?

>

> I hope everyone is well. I went to my doc. yesterday and the trial

> was a success. However the down side is the one he wants to use

isn't

> available until June. My body had little pain during the trial and

> now I'm dealing with the rebound effect. I'm telling you this is

some

> sort if punishment. When the doc. took out the temp I think he

put in

> a golf ball. I am having such a hard time laying on my back. Has

> anyone had to deal with this if so what can I do? Also has anyone

> ever taken Kadian my doc wrote a script for it and all the drug

stores

> won't have it untill Thursday. So I'm back to playing the waiting

> game , not sleeping , and being very grumpy. Please does anyone

have

> any advice or ideas.

>

> Thanks in advance.

> ~Stacey

[Guest guest]

--Hi sorry for confusing you. The way my doctor works is the trial

lasts for about a week. He then takes it out including the lead

wires. From there he gives you two weeks to make up your mind as to

if you think the stim. will work. This part I was able to pretty much

skip. However the down side is the permanate one that he wants to put

in is not going to be available until the end of May. If anyone has

more questions or are still confused please let me know.

Thanks

~Stacey

- In Stimulator , " shantihhh " <shantihhh@S...> wrote:

> Ice packs should help with the pain.

>

> I am confused....you still have the lead wires in your back don't

> you?

>

>

> >

> > I hope everyone is well. I went to my doc. yesterday and the trial

> > was a success. However the down side is the one he wants to use

> isn't

> > available until June. My body had little pain during the trial and

> > now I'm dealing with the rebound effect. I'm telling you this is

> some

> > sort if punishment. When the doc. took out the temp I think he

> put in

> > a golf ball. I am having such a hard time laying on my back. Has

> > anyone had to deal with this if so what can I do? Also has anyone

> > ever taken Kadian my doc wrote a script for it and all the drug

> stores

> > won't have it untill Thursday. So I'm back to playing the waiting

> > game , not sleeping , and being very grumpy. Please does anyone

> have

> > any advice or ideas.

> >

> > Thanks in advance.

> > ~Stacey

[Guest guest]

Hi Helen,

I read that you give Nick 3mg of folic acid. I am just giving

Aundrea one plus there is a little in her folic acid. Do you think

increasing the folic acid might help at all with the abdominal

cramps/diarhea or is it strictly to help with the mouth ulcers?

(Aundrea 9 systemic)-

-- In , " hburger64 " <hburger64@h...> wrote:

> -..

>

> Im sorry you wont be there too... i would have LOVED to meet you.

>

> Glad to hear Drea's shot went a little better this week. I hope this

> is a continuing trend.

>

> Hugs Helen and (7,systemic)

>

> -- In , " sonia1md " <sonia1md@y...> wrote:

> > Hearing everyone talking about going to AJAO has me a little bit

> > jealous. I would love to meet all of you, but we have our hands

> full

> > with still trying to sell our home and moving to Arizona in July.

> >

> > Things went a little better with the mtx inj. this week. I had

> > Aundrea not eat anything after supper and gave her the inj. a

couple

> > of hours later.

> >

> > She still woke up in the night with painful abdominal cramps but

at

> > least she didn't have any problems with diarhea. I guess we are

at

> > least heading in the right direction!

> >

> > Hope you all had a nice Mother's Day!

> >

> > (Aundrea 9 systemic)

[Guest guest]

I believe that the folic acid helps with various side effects of MTX. It

is supposed to help with the effects on the liver, so why not the

stomach effects? I agree with Helen, can't hurt to try. Just don't

exceed the recommended dose with the vitamin and folic acid combined. My

mom did this with her niacin pill the dr gave her (she took niacin and a

multi vitamin with niacin in it) and she overdosed. She had to go off

the extra niacin. Good luck, Michele ( 18! (yesterday; can't

believe it!) pauci & spondy)

Re: Hello Everyone

Hi Helen,

I read that you give Nick 3mg of folic acid. I am just giving

Aundrea one plus there is a little in her folic acid. Do you think

increasing the folic acid might help at all with the abdominal

cramps/diarhea or is it strictly to help with the mouth ulcers?

(Aundrea 9 systemic)-

-- In , " hburger64 " <hburger64@h...> wrote:

> -..

>

> Im sorry you wont be there too... i would have LOVED to meet you.

>

> Glad to hear Drea's shot went a little better this week. I hope this

> is a continuing trend.

>

> Hugs Helen and (7,systemic)

>

> -- In , " sonia1md " <sonia1md@y...> wrote:

> > Hearing everyone talking about going to AJAO has me a little bit

> > jealous. I would love to meet all of you, but we have our hands

> full

> > with still trying to sell our home and moving to Arizona in July.

> >

> > Things went a little better with the mtx inj. this week. I had

> > Aundrea not eat anything after supper and gave her the inj. a

couple

> > of hours later.

> >

> > She still woke up in the night with painful abdominal cramps but

at

> > least she didn't have any problems with diarhea. I guess we are

at

> > least heading in the right direction!

> >

> > Hope you all had a nice Mother's Day!

> >

> > (Aundrea 9 systemic)

[Guest guest]

Shucks! I wish you were going! I would love for Gabi to meet ! I told

her the time that was praying for her. She thought that was really nice.

By the way, we haven't had any problems with her injections since we have a new

" routine " . Also, when she went to the Dr. a couple of weeks ago, she had her

blood drawn like a champ! My husband was the one with her, because I was on a

girl's trip with my friends, and she called me so proud that she didn't get

sick! So tell that she is a very good prayer warrior! Now it's our turn

to pray for you and your family. I pray that you get your house sold and I pray

that 's stomach problems start to get better after her methotrexate

injections.

Summer Gabi poly

sonia1md <sonia1md@...> wrote:

Hearing everyone talking about going to AJAO has me a little bit

jealous. I would love to meet all of you, but we have our hands full

with still trying to sell our home and moving to Arizona in July.

Things went a little better with the mtx inj. this week. I had

Aundrea not eat anything after supper and gave her the inj. a couple

of hours later.

She still woke up in the night with painful abdominal cramps but at

least she didn't have any problems with diarhea. I guess we are at

least heading in the right direction!

Hope you all had a nice Mother's Day!

(Aundrea 9 systemic)

---------------------------------

[Guest guest]

Dear Group

Would anyone be able to help me?

I'm taking a Diploma in Natural Nutrition and then, once finished, am making plans go on for the BSc in Nutritional Therapy. While doing the Diploma, I need to do a few Investigative Health Histories (Student Case Studies). These are quite lengthy, but very important to my studies.

I need to conduct telephone and face-to-face interviews, or failing that, can do it over the internet via email through a tick box questionnaire that I have prepared.

I'm not selling anything and this would provide you with a good opportunity to have a Nutritional analysis (by a student) for free. At the end of the study, if you feel this investigation benefits you and you feel you'd like to know more you could always investigate further from that point by contacting a professional Nutritional Therapist in your own area.

If you are interested in this, I would be very happy to hear from you - you can respond to my personal email if you prefer: bestherapies3@... and I'll give you all the information you need.

Thanks in anticipation.

Kind regards

Kaye Bewley

<ngerdts@...> wrote:

Hi!I just wanted to take a moment to introduce myself. I am married and the mother of two beautiful daughters ages 6 and 8. I was diagnosed with hypothyroidism in 2000. I have been on Synthroid since then. I work full-time as a nurse. I was initially diagnosed with Post Partum depression when I asked my OB-Gyn to humor me and check my thyroid...low and behold I was right! I struggle daily with my weight which leads to being depressed. I have joined this group to hopefully get some advice and feel some support from those who deal with this frustrating condition.IowaFor support and training in helping each other to a better way of life, visit ...

bestherapies3

How much free photo storage do you get? Store your holiday snaps for FREE with Photos. Get Photos

[Guest guest]

the doctors treat patients like fast food customers

because of the HMO and managed care .

--- rdeang4109 <robgehle@...> wrote:

> Hello,

> My name is Rob, im thirty yrs old. Last year was

> my first back

> surgury. It's been about 10 mos, and they want to

> go back in. First

> they have to fix some cut or " nick " as the doctor

> calls it, that is

> leaking spinal fluid. This happened while trying to

> give me an

> epideral block. Ive been on my stomach trying to

> let it fix itself

> for the past couple of days.

> Ive been dealing with back pain for about three

> years now. it is very

> disheartening. My doctors treat their patients like

> restaurant

> customers; get em in and out. do they ever get it

> right?

> im looking for ideas for pain management, and ideas

> on what might keep

> causing my discs to bulge out. my doctor is stuck

> on the idea that im

> 30 and i shouldnt need back surgury, let alone twice

> in under a year,

> but seems to not be interested in why.

>

> thank you for listening

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

Hey guys

it is funny you phrase it like that. I have always said it is like a bad service at a restaurant. You go in and wait and wait and wait. They come assess your order for a brief second. perscribe what you need a while later but not until they see other patients (customers) Then they bring you your notes for work or pharmacy or Disability (that would be when they bring your food) that could take up to many minutes. Then they want your money send you bills ( in a restaurant they give you the bill and expect to be tipped) Doctors expect you to reffer them It is all the same if you ask me they are never personable and they just want the money. Smokie1952 <smokie1952@...> wrote:

the doctors treat patients like fast food customersbecause of the HMO and managed care . ____________________________________________________Start your day with - make it your home page http://www./r/hs __________________________________________________

[Guest guest]

Hi Rob

I am Janine I am 34 I have had 2 back surgeries so far. my first one was when I was 31. I have been injured since I was 23. Things that have helped me we aqua arobics strengthen your stomach muscles as much as you can. (this is for lower back) I am not sure where you are injured at. Walking as much as you can if at all possible is something else that helped me before I started the surgeries. There is also PT (physical ther.) I know they have other preventative measures but I have not experienced those but others in the group has I know though the thing that make s me feel sooooo much better is the water. if you can swim do it as much as you can. I dont know about the spinal leak you have though I have never experienced that. Doesnt that give you a real bad headache too??? Well welcome to the group and I hope you like it has much as I do.

Sincerely Janine In Cali rdeang4109 <robgehle@...> wrote:

Hello,My name is Rob, im thirty yrs old. Last year was my first back surgury. It's been about 10 mos, and they want to go back in. First they have to fix some cut or "nick" as the doctor calls it, that is leaking spinal fluid. This happened while trying to give me an epideral block. Ive been on my stomach trying to let it fix itself for the past couple of days. Ive been dealing with back pain for about three years now. it is very disheartening. My doctors treat their patients like restaurant customers; get em in and out. do they ever get it right?im looking for ideas for pain management, and ideas on what might keep causing my discs to bulge out. my doctor is stuck on the idea that im 30 and i shouldnt need back surgury, let alone twice in under a year, but seems

to not be interested in why.thank you for listening

Start your day with - make it your home page

[Guest guest]

Thank you Janine

my problem is in my lower back. i have even lost 30 lbs, taking me down to

180 in the hopes of relief; it has helped some. I have had aquatic therapy

sessions and they were my favorite. My problem with pt is im just too plain

tired and sore after 12 hrs at work, then i have two boys as well. I try to

do my excersises and everything but....

and yes the spinal leak gives you headaches like you wouldn't believe.

Today my ass of a doctor was supposed to to do a blood patch to fix my leak,

and all he did was set me up for another appointment in a few days. I had

my kids with me and he gave me grief about that; i was in shock at his whole

attitude. sorry, had to get that out.

i am off to a new doctor tomorrow for a second opinion (about the actual

back surgury my doctor wants to do) wish me luck

i hope everyone has a good night's sleep.

(we all need it)

rob

>From: Janine Newman <jnewmans1@...>

>Reply-neck pain

>neck pain

>Subject: Re: hello everyone

>Date: Sun, 17 Jul 2005 11:43:21 -0700 (PDT)

>

>Hi Rob

>I am Janine I am 34 I have had 2 back surgeries so far. my first one was

>when I was 31. I have been injured since I was 23. Things that have helped

>me we aqua arobics strengthen your stomach muscles as much as you can.

>(this is for lower back) I am not sure where you are injured at. Walking as

>much as you can if at all possible is something else that helped me before

>I started the surgeries. There is also PT (physical ther.) I know they have

>other preventative measures but I have not experienced those but others in

>the group has I know though the thing that make s me feel sooooo much

>better is the water. if you can swim do it as much as you can. I dont know

>about the spinal leak you have though I have never experienced that. Doesnt

>that give you a real bad headache too??? Well welcome to the group and I

>hope you like it has much as I do.

>Sincerely Janine In Cali

>

>rdeang4109 <robgehle@...> wrote:

>Hello,

>My name is Rob, im thirty yrs old. Last year was my first back

>surgury. It's been about 10 mos, and they want to go back in. First

>they have to fix some cut or " nick " as the doctor calls it, that is

>leaking spinal fluid. This happened while trying to give me an

>epideral block. Ive been on my stomach trying to let it fix itself

>for the past couple of days.

>Ive been dealing with back pain for about three years now. it is very

>disheartening. My doctors treat their patients like restaurant

>customers; get em in and out. do they ever get it right?

>im looking for ideas for pain management, and ideas on what might keep

>causing my discs to bulge out. my doctor is stuck on the idea that im

>30 and i shouldnt need back surgury, let alone twice in under a year,

>but seems to not be interested in why.

>

>thank you for listening

>

>

>

>

>

[Guest guest]

Hi Rob

You still are able to work with all of this going on?? My goodness you need to rest. What kind of Doc are you seeing he sounds like a real jerk???? I would definately put him in his place and let him know how you feel about what and how he is acting and telling you. Make him be more thurough with you you are the one that is going and is making him rich with all that he is doing to you and the money you and your insurance is paying him. That is what kills me is these doctors out there that just think they rule the world but if it wasnt for us paying them to rule they would be nowhere. Dont worry about venting this group is wonderful and are GREAT listeners believe me I have vented quite a bit in here and they have all been wonderful to me. How old are your boys?? I still cant believe that they have you working with a spinal leak and the pain you must be having that is just CRAZY. You try and take it easy and I am glad you are here have a good evening and I look forward to getting

to know you like wise goes for the rest in the group that I havent gotten the pleasure to meet yet.

Sincerely Janine In Cali Gehle <robgehle@...> wrote:

Thank you Janinemy problem is in my lower back. i have even lost 30 lbs, taking me down to 180 in the hopes of relief; it has helped some. I have had aquatic therapy sessions and they were my favorite. My problem with pt is im just too plain tired and sore after 12 hrs at work, then i have two boys as well. I try to do my excersises and everything but....:)and yes the spinal leak gives you headaches like you wouldn't believe. Today my ass of a doctor was supposed to to do a blood patch to fix my leak, and all he did was set me up for another appointment in a few days. I had my kids with me and he gave me grief about that; i was in shock at his whole attitude. sorry, had to get that out. :)i am off to a new doctor tomorrow for a second opinion (about the actual back surgury my doctor wants to do) wish me lucki hope everyone has a good

night's sleep.(we all need it)rob

Start your day with - make it your home page

[Guest guest]

good morning,

i guess i was a little misleading. i was working with the spinal leak,

until i realized that my headaches were not natural. This was last week. i

went to my doctor and thats when he told me to lay on my stomach for a few

days that he had " nicked " my spine, and that if it didn't go away then

monday (yesterday) he would do a blood patch; which he didn't. He just

charged up another visit to my insurance all to make an appointment furthur

on in the week. My wife is usually very good about letting the doctors know

what is going on and to get them to do something, but this guy is just

really good at being arrogant and making you feel stupid. He is a

neurosurgeon, and i guess lower back problems are too trivial for him. I

have an appointment with someone new today, so we'll see. Except for the

spinal leak I do still have to work with the lower back pain, and really the

only thing that keeps me at work is the pain meds, anti depressants, muscle

relaxers, and the antiinflamatories. My wife is getting ready to go back to

work so that I might be able to get everything straightened out with my

back. I am excited to spend more time with my boys. Gavin just turned 5 in

July and turned 1 in June. I have definately not spent enough quality

time with them since this all started. Actually within months of scott

being born i had to go in for my first surgury so...

Ive noticed a lot of talk about mattresses, has anybody found one that lasts

longer than a year? I just spent 900.00 last year on a matress and it's

already a lumpy piece of s@#t.

baby scott is calling.

bye for now

rob

>From: Janine Newman <jnewmans1@...>

>Reply-neck pain

>neck pain

>Subject: Re: hello everyone

>Date: Mon, 18 Jul 2005 23:11:03 -0700 (PDT)

>

>Hi Rob

>You still are able to work with all of this going on?? My goodness you need

>to rest. What kind of Doc are you seeing he sounds like a real jerk???? I

>would definately put him in his place and let him know how you feel about

>what and how he is acting and telling you. Make him be more thurough with

>you you are the one that is going and is making him rich with all that he

>is doing to you and the money you and your insurance is paying him. That is

>what kills me is these doctors out there that just think they rule the

>world but if it wasnt for us paying them to rule they would be nowhere.

>Dont worry about venting this group is wonderful and are GREAT listeners

>believe me I have vented quite a bit in here and they have all been

>wonderful to me. How old are your boys?? I still cant believe that they

>have you working with a spinal leak and the pain you must be having that is

>just CRAZY. You try and take it easy and I am glad you are here have a good

>evening and I look forward to getting to

> know you like wise goes for the rest in the group that I havent gotten

>the pleasure to meet yet.

>Sincerely Janine In Cali

>

> Gehle <robgehle@...> wrote:

>Thank you Janine

>my problem is in my lower back. i have even lost 30 lbs, taking me down to

>180 in the hopes of relief; it has helped some. I have had aquatic therapy

>sessions and they were my favorite. My problem with pt is im just too plain

>tired and sore after 12 hrs at work, then i have two boys as well. I try to

>do my excersises and everything but....

>and yes the spinal leak gives you headaches like you wouldn't believe.

>Today my ass of a doctor was supposed to to do a blood patch to fix my

>leak,

>and all he did was set me up for another appointment in a few days. I had

>my kids with me and he gave me grief about that; i was in shock at his

>whole

>attitude. sorry, had to get that out.

>i am off to a new doctor tomorrow for a second opinion (about the actual

>back surgury my doctor wants to do) wish me luck

>i hope everyone has a good night's sleep.

>(we all need it)

>rob

>

>

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[Guest guest]

Hey Rob

Well it is good to know that you are resting. Good luck with the doctors today. Its nice to hear that your wife is there helping you with the doctors and everything. I had a Neuro Doc he was the one that did my first surgery. This guy was a real joke. When he did the first surgery he told me that the nerve damage I had was real bad. He had to remove fragments of my shattered disc out of many nerves. I had lost all feeling in my right leg at this time and my left leg was a big mess. He had to cut through bone and muscle to get to some of the fragments so my recovery was slow. He told me to take my time and rest before I went under then when I came out and into a hospital room he told me all that he found and how bad it was and that there was a possibility that my nerve damage in most areas was going to be permanent or long and drawn out. I was on a pain med drip while recovering in the hosp. He told me to not be afraid to use it because the pain was going to be pretty bad. I

didnt at first becasue I have always been in fear of addiction ( one of my anal fears i guess) So the nurses would come in and push the med button and told me to start using it that is what it was there for. Well the doctor came in on the second day after surgery and started to rant and rave that I was using it too much. I lost it. Drugs are a great thing when you have something on your mind and you need to express yourself. So I told him to back the heck up His bedside manner sucked and his instructions were a little confusing and I cant be expected to read his frickin mind. I was not pushing the button the nurses were under his instruction if I hadnt used it enough and felt my pain levels were to high. Now all of a sudden he was expecting a miraculous recovery so that I caould start PT so i could get out of the hospital. I told him if he wanted me off the drip he should have taken it away if he didnt want me to use soooo much he could have computed that in the little drip

monitor so it would not give me toooo much. I also told him that I just forked out over 50,000 dollars to his nice little bank account for a surgery that in my eyes was not successful. So the least he could do was to be nice and show a little compassion to someone he hacked up and the outcome was a failure. The only thing that I could say he did was remove the fragments. He pushed the bad disc that was left back in knowing darn well it needed to come out and I found out later that he had anticipated this and was wanting the money so planned on another surgery to do a fusion instead of doing it right then. Well needless to say after surgery and hospital stay I went home he had me in PT within 2 weeks I couldnt even walk very well and this PT he had perscribed was intense. Within a month I had lost all feeling in my leg again I called him and the PT called him he told the PT it was all in my head and I would be fine. Told me to stop complaining and do the exersises or I would never

get better. The PT refused to proceed told me to find another doctor well come to find out the damage was already done and I went in for my fusion 9 months later. My hubby was ticked off. That doctor was so lucky he was far away. Well anyways since that Doctor I tend to not tolerate any kind of misconduct when it comes to doctors. I love the one I have as far as the compassion he has and being very thurough but he is sooooooooooooooooooooo busy and does not have the time anymore and is way overbooked to spend any quality time to really hash out what is going on I drive over an hour to get there (VERY PAINFUL) To wait 2 hours or longer to only be able to see him for 5 minutes. The waiting room seats are horrid I never could understand that one either. You are in a Ortho office you would think the chairs would be comfortable enough for all the people in there with back problems. Well anyways I am done venting Have a great day

Sincerely Janine IN Cali Gehle <robgehle@...> wrote:

good morning,i guess i was a little misleading. i was working with the spinal leak, until i realized that my headaches were not natural. This was last week. i went to my doctor and thats when he told me to lay on my stomach for a few days that he had "nicked" my spine, and that if it didn't go away then monday (yesterday) he would do a blood patch; which he didn't. He just charged up another visit to my insurance all to make an appointment furthur on in the week. My wife is usually very good about letting the doctors know what is going on and to get them to do something, but this guy is just really good at being arrogant and making you feel stupid. He is a neurosurgeon, and i guess lower back problems are too trivial for him. I have an appointment with someone new today, so we'll see. Except for the spinal leak I do still have to work

with the lower back pain, and really the only thing that keeps me at work is the pain meds, anti depressants, muscle relaxers, and the antiinflamatories. My wife is getting ready to go back to work so that I might be able to get everything straightened out with my back. I am excited to spend more time with my boys. Gavin just turned 5 in July and turned 1 in June. I have definately not spent enough quality time with them since this all started. Actually within months of scott being born i had to go in for my first surgury so...Ive noticed a lot of talk about mattresses, has anybody found one that lasts longer than a year? I just spent 900.00 last year on a matress and it's already a lumpy piece of s@#t.baby scott is calling.bye for now>

Start your day with - make it your home page

[Guest guest]

wow,

that is so crazy. i got angry just reading about it. im glad you have a

doctor now that cares, but that sucks that he has over extended himself with

too many patients.

i found out yesterday that my neuro doc did the same thing to me that yours

did to you. he went in for my surgury and when he was done told my wife

that it was worse than he thought, but made it sound like he took care of

it. while i did get better for about 6 months and the siatic (?) pain in my

right leg is gone; he left a mess in my back. also, recently he wanted to

go in and do the same thing to another disc. but it's weird because he

didn't really want to do the surgury, and because of his attitude i went to

another doctor. so i cant say he wanted the money, but it was either that

or he didn't want to go back in because of his previous failure. anyway my

new doc said that the disc that was first operated on should have come out,

and he couldn't believe that he just wanted to shave off a little on the new

problem disc. my new doc said i need a lumbar spinal fusion, for my bottom

three vertabrae, and that if the other doc had gone in, i would have been in

and out of surgury at least once more in the next two years. freakin

ridiculous.

your care after that first surgury, with the pt and your doctor not

listening or caring about your continued pain sounds familiar too. it's

like they do the surgury and are done with you; thanks for stopping in and

don't come back. no more neuro surgeons for me. my wife is actually going

to write a letter to the medical board about this guy, cuz it's just not

right that they get away with this crap.

how did your fusion go? was the recovery easier? im a little worried about

the lack of mobility. he said he could just fuse two, but that the floating

fusion, as he called it, would eventually put too much pressure on the last

one, probably resulting in yet another operation, so we're doing them all at

once. it's almost bedtime for me, i went back to work today and im beat.

ill talk to you soon

rob

>From: Janine Newman <jnewmans1@...>

>Reply-neck pain

>neck pain

>Subject: Re: hello everyone

>Date: Tue, 19 Jul 2005 08:56:40 -0700 (PDT)

>

>Hey Rob

>Well it is good to know that you are resting. Good luck with the doctors

>today. Its nice to hear that your wife is there helping you with the

>doctors and everything. I had a Neuro Doc he was the one that did my first

>surgery. This guy was a real joke. When he did the first surgery he told me

>that the nerve damage I had was real bad. He had to remove fragments of my

>shattered disc out of many nerves. I had lost all feeling in my right leg

>at this time and my left leg was a big mess. He had to cut through bone and

>muscle to get to some of the fragments so my recovery was slow. He told me

>to take my time and rest before I went under then when I came out and into

>a hospital room he told me all that he found and how bad it was and that

>there was a possibility that my nerve damage in most areas was going to be

>permanent or long and drawn out. I was on a pain med drip while recovering

>in the hosp. He told me to not be afraid to use it because the pain was

>going to be pretty bad. I didnt at

> first becasue I have always been in fear of addiction ( one of my anal

>fears i guess) So the nurses would come in and push the med button and told

>me to start using it that is what it was there for. Well the doctor came in

>on the second day after surgery and started to rant and rave that I was

>using it too much. I lost it. Drugs are a great thing when you have

>something on your mind and you need to express yourself. So I told him to

>back the heck up His bedside manner sucked and his instructions were a

>little confusing and I cant be expected to read his frickin mind. I was not

>pushing the button the nurses were under his instruction if I hadnt used it

>enough and felt my pain levels were to high. Now all of a sudden he was

>expecting a miraculous recovery so that I caould start PT so i could get

>out of the hospital. I told him if he wanted me off the drip he should have

>taken it away if he didnt want me to use soooo much he could have computed

>that in the little drip monitor so it

> would not give me toooo much. I also told him that I just forked out over

>50,000 dollars to his nice little bank account for a surgery that in my

>eyes was not successful. So the least he could do was to be nice and show a

>little compassion to someone he hacked up and the outcome was a failure.

>The only thing that I could say he did was remove the fragments. He pushed

>the bad disc that was left back in knowing darn well it needed to come out

>and I found out later that he had anticipated this and was wanting the

>money so planned on another surgery to do a fusion instead of doing it

>right then. Well needless to say after surgery and hospital stay I went

>home he had me in PT within 2 weeks I couldnt even walk very well and this

>PT he had perscribed was intense. Within a month I had lost all feeling in

>my leg again I called him and the PT called him he told the PT it was all

>in my head and I would be fine. Told me to stop complaining and do the

>exersises or I would never get better. The

> PT refused to proceed told me to find another doctor well come to find

>out the damage was already done and I went in for my fusion 9 months later.

>My hubby was ticked off. That doctor was so lucky he was far away. Well

>anyways since that Doctor I tend to not tolerate any kind of misconduct

>when it comes to doctors. I love the one I have as far as the compassion he

>has and being very thurough but he is sooooooooooooooooooooo busy and does

>not have the time anymore and is way overbooked to spend any quality time

>to really hash out what is going on I drive over an hour to get there (VERY

>PAINFUL) To wait 2 hours or longer to only be able to see him for 5

>minutes. The waiting room seats are horrid I never could understand that

>one either. You are in a Ortho office you would think the chairs would be

>comfortable enough for all the people in there with back problems. Well

>anyways I am done venting Have a great day

>Sincerely Janine IN Cali

>

> Gehle <robgehle@...> wrote:

>good morning,

>i guess i was a little misleading. i was working with the spinal leak,

>until i realized that my headaches were not natural. This was last week. i

>went to my doctor and thats when he told me to lay on my stomach for a few

>days that he had " nicked " my spine, and that if it didn't go away then

>monday (yesterday) he would do a blood patch; which he didn't. He just

>charged up another visit to my insurance all to make an appointment furthur

>on in the week. My wife is usually very good about letting the doctors know

>what is going on and to get them to do something, but this guy is just

>really good at being arrogant and making you feel stupid. He is a

>neurosurgeon, and i guess lower back problems are too trivial for him. I

>have an appointment with someone new today, so we'll see. Except for the

>spinal leak I do still have to work with the lower back pain, and really

>the

>only thing that keeps me at work is the pain meds, anti depressants, muscle

>relaxers, and the antiinflamatories. My wife is getting ready to go back to

>work so that I might be able to get everything straightened out with my

>back. I am excited to spend more time with my boys. Gavin just turned 5 in

>July and turned 1 in June. I have definately not spent enough quality

>time with them since this all started. Actually within months of scott

>being born i had to go in for my first surgury so...

>Ive noticed a lot of talk about mattresses, has anybody found one that

>lasts

>longer than a year? I just spent 900.00 last year on a matress and it's

>already a lumpy piece of s@#t.

>baby scott is calling.

>bye for now

>

> >

>

>

>

>

>---------------------------------

> Start your day with - make it your home page

_________________________________________________________________

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[Guest guest]

Congratulations! We are al so grateful for our new lives, more energy and happy

to be THIN! (or someof us, happy to be thinner, with a ways to go yet.)

Marilyn in Vermont

249/176/150???

hello everyone

Hi there everyone. Just wanted to say hi and hope everyone is great.

It has been a long time since I have posted here, I have been so busy

lately. I still can't get over how I have lost the weight of a whole

person. I feel so much better and am now more active and alive and I

owe it all to the great Doctors. All I can say is never give up hope

there is always someone that will come to your rescue.

Thanks again Dr. Rutledge and Dr. Doroghazi

April

June 30th 2004

277/147

[Guest guest]

Hello, Dana!

Be assured that learning from the posts in this group will make you

better able to participate in your recovery. Welcome!

You are getting ahead of yourself, Dana. First you'll want to

finish the tx, THEN you can decide what to do afterward. Right now,

you need all of your energy for staying on the tx! Yes, I took the

48 week tx and I did clear the virus. I had every side effect

listed, and then some. You can email me if you'd like some links;

there are soooo many of them out there for us.

As for liver cancer or cirrhosis, remember that most of us will NOT

die from HCV. Only a small percentage of us progress to those

stages. Much of it has to do with the shape of your liver right

now. What were the results of your biopsy? Do you know how long

you've had the virus?

I am now 49 and got HCV when I was sixteen. I had hardly any liver

damage. We are all different. Just make sure you drink lots of

water and rest as much as you can.

Hugs, Suzy

>

> Hello everyone my name is Dana im 40 yrs old and live in

Nashville.

> I was just diagnosed with Hep C about 3 months ago, I just started

> the interferon and copegus 42 week " treatmeant " about 8 weeks ago,

> well my last " shot " was this past Thursday and it was just my 8th

> one, Just 40 more to go!!!!lol, anyway ive never been in

a " support

> group " b4 so bear with me.....I was told the chances of this

> treatment working was 60% in my favor 40% not......i guess time

will

> tell, I dont know anyone with Hep C so anyone out there that has

any

> suggestions or comments feel free, i need all the info i can

> get........of course these side effects are no walk in the park,

> since starting treatmeant ive been very disoriented, and feel like

> ive got the flu, the worse are the first 3 days after the

> shot...then i get to feeling a " little " better as the week

> progrsses, then by the time i feel half way normal its a week

later

> and time for that good 'ol shot again..lol...i try to see the

humor

> in it, its better to laugh than cry i guess...anyway can anyone

give

> me any advice on what happens if this treatmeant does not work???

> what next?? will i for sure get scerrosis (i mispelled that one)

or

> cancer? ive been told by some of my " friends " that thats what

would

> happen if this treatmeant doesnt work..(?) well ive probably

rambled

> on enough for my " first post " any concerns, comments, questions,

and

> or suggestions would be greatly appreciated,,,,,,Thanks Dana in

Nash.

>

[Guest guest]

>

> Hello everyone my name is Dana im 40 yrs old and live in Nashville.

> I was just diagnosed with Hep C about 3 months ago, I just started

> the interferon and copegus 42 week " treatmeant " about 8 weeks ago,

> well my last " shot " was this past Thursday and it was just my 8th

> one, Just 40 more to go!!!!lol, anyway ive never been in a " support

> group " b4 so bear with me.....I was told the chances of this

> treatment working was 60% in my favor 40% not......i guess time will

> tell, I dont know anyone with Hep C so anyone out there that has any

> suggestions or comments feel free, i need all the info i can

> get........of course these side effects are no walk in the park,

> since starting treatmeant ive been very disoriented, and feel like

> ive got the flu, the worse are the first 3 days after the

> shot...then i get to feeling a " little " better as the week

> progrsses, then by the time i feel half way normal its a week later

> and time for that good 'ol shot again..lol...i try to see the humor

> in it, its better to laugh than cry i guess...anyway can anyone give

> me any advice on what happens if this treatmeant does not work???

> what next?? will i for sure get scerrosis (i mispelled that one) or

> cancer? ive been told by some of my " friends " that thats what would

> happen if this treatmeant doesnt work..(?) well ive probably rambled

> on enough for my " first post " any concerns, comments, questions, and

> or suggestions would be greatly appreciated,,,,,,Thanks Dana in Nash.

>

Hi, Dana, I'm new to this group, but not, unfortunately, to HepC. You must have

genotype

3 to be on such a short treatment - lucky you! If you'd like, write back and

I'll give you the

website address (I'll have to go find it in my files) for The Combo Survival

Guide which has

good suggestions for all sorts of side effects. I've gone through the treatment

3 times and

believe me, I've had most of the side effects!

If the treatment does not work, you might try a longer treatment time. I have

genotype 3a

which is supposed to be the easiest one to treat, and I tried the 6-month

treatment first.

I relapsed after 4 months, so we tried 48 weeks. I relasped after 2 months, so

then I tried

15 months. Then I relapsed. But my labs look better and I feel better than I did

before, so

we believe that we slowed down or maybe even stopped the progress of the

disease. So

now I'm waiting for one of the protease or polyermase inhibitors that are in

trial now.

No, you won't necessarily get cirrhosis or cancer if you don't treat it - you

may be what

my doctor calls " a slow scleroser " and never may progress very much. Remember,

this is a

slow virus. Now me, I have end-stage cirrhosis and AM at high risk to develope

cancer, so

I get a AFP level and a sonogram done every 6 months. I am content that should

pick it up.

If you do not have cirrhosis, you shouldn't be worrying about it. Your friend

are probably

trying to be helpful.

A really helpful guide is " Hepatitis C for Dummies " - I found it at Border's

bookstore and

laughed, but when I looked through it I found it really reader-friendly, simple

to

understand, and comprehensive.

So DON'T worry more than you have to - remember, we heppers should keep our

stress

level down. Get enough rest, don't get too hungry or tired or angry or thirsty.

Drink TONS

of water, and write any time you have any questions, OK?

sincerely,

Michele

[Guest guest]

Hi Newbie, Welcome. You will be glad you had the surgery. I am anxiously awaiting my first fill. Looking forward to seeing a strong, healthy me in the mirror.

Tami D

208/198/148

Banded

10/21/05

[Guest guest]

Congraulations Dori on your decision for a new life, you have made a great choice.

Tracie Bartek - Aledo, Texas Dr. Aceves Lap Band Doll - (one of many)248/201/150DOB - 6/24/05

Hello everyone

I'm a newbie here, but I've definitely decided to have Dr Aceves do my

surgery. Hopefully, Dec 12 will be my date. I've been reading posts

for a couple days now and I'm really excited to be a part of this group!

Just sign me 'Deliriously Happy' that I have found my way to Dr Aceves!!!