hello everyone

July 14, 2003

,

This is great news. Always good to hear someone is doing well. Now, if you

only knew how to keep it up! If you find out.. Please share!

Patty

[ ] hello everyone

hello u guys,

i just thought i would tell u i had my every 3 months lab done and

looks good at this time. the ast and alt are at the lowest bottome

number i dont feel comfortable with that, but will have to call the

gi and see what he thinks. the glucose was high again-not sure if i

ate something before i had labs??? will just have to keep an eye on

it like all the rest of our symptoms...

i havent been reading digests recently had other fires burning and

this is a public pc so have to minimize my time. just have to get my

act together and get one for home or a laptop-some day.. sooner the

better... i did see that some of u r having a rough time, just know

that u all r always in my prayers and think of u all alot of the

time. just hang tough - is my motto - love u all for all the help

and support i have read over the past 2 years....those that r doing

well glad to hear this-congratulations

lots of warm huggs and love

AIH 0701 - ILLINOIS

August 27, 2003

Hi Sara....

I can't help as to whether it's a side of tx or not, but I've always had

problems with lymph gland tumors. Years ago I'd have them taken out...they were

always benign. Now I live with my various lumps...if they don't grow and

continue to grow I just ignore them. I too practice chinese medicine and hold a

firm belief in it.

Hopefully someone (probalby Claudine with her wealth of knowledge or Doc) will

have some info for you. My problem has been going on since the late 50s when I

was a kid so it certainly isn't a result of tx.

Good luck

Tatezi

Hello everyone

Hi there,

It's always awhile in between my posts, so you may or may not remember me. I

went through combo tx 10/99 - 4/00, and I'm still non-detectable, as of this

past February '03 anyway when I had my latest viral load test done.

Tat, I'm glad you're not experiencing heavy sides from the Peg. I hope it

works for you this time.

What I'm needing some input on is that I've been diagnosed with a lymphatic

problem where one to three lymph nodes in my right groin (in the crease

between

the thigh and groin/abdomen) have intermittent swelling and aching for the

past year or so. The western docs want to remove the most prominent offending

lymph node to do a biopsy on it to see if it's lymphoma (lymphatic cancer) or

not causing these problems. One hematology oncologist I saw yesterday for a

second opinion said there's about a 30% chance it is (70% chance it's not)

based

on my symptoms and the CT scan report I had done last month. My

acupuncturist / doctor of oriental medicine has me on some daily chinese herbs

and weekly

acupuncture tx for the past few weeks which has helped reduce the occurrence

of swelling and discomfort.

My question to all of you guys and gals is - have you ever experienced or

have you ever heard of any problems with the lymphatic system in relation to

having hep c without having had treatment or following hep c treatment in

reaction

to the treatment itself? This doc I saw yesterday said there may be a

connection, but we talked about that at the end of the whole exam and I was

not able

to ask more about that because I was in kind of a stupor after talking about

the " C " word. I thought I'd ask you for your hands on knowledge or

experiences first before calling him with more questions.

I'm trying to get the surgery scheduled as soon as possible...waiting to hear

back from the hospital (Kaiser).

Thanks everyone!

Peace, Sara

August 28, 2003

Hi.I hve lumps too,on my arms,went to the doctor,told me they are fat-lumps,as

long as you can move them there.s nothing to worry about.Chinese medicin ok,Mac

taboo/.Liefs,Willem.

Hello everyone

Hi there,

It's always awhile in between my posts, so you may or may not remember me.

I

went through combo tx 10/99 - 4/00, and I'm still non-detectable, as of this

past February '03 anyway when I had my latest viral load test done.

Tat, I'm glad you're not experiencing heavy sides from the Peg. I hope it

works for you this time.

What I'm needing some input on is that I've been diagnosed with a lymphatic

problem where one to three lymph nodes in my right groin (in the crease

between

the thigh and groin/abdomen) have intermittent swelling and aching for the

past year or so. The western docs want to remove the most prominent

offending

lymph node to do a biopsy on it to see if it's lymphoma (lymphatic cancer)

or

not causing these problems. One hematology oncologist I saw yesterday for a

second opinion said there's about a 30% chance it is (70% chance it's not)

based

on my symptoms and the CT scan report I had done last month. My

acupuncturist / doctor of oriental medicine has me on some daily chinese

herbs and weekly

acupuncture tx for the past few weeks which has helped reduce the occurrence

of swelling and discomfort.

My question to all of you guys and gals is - have you ever experienced or

have you ever heard of any problems with the lymphatic system in relation to

having hep c without having had treatment or following hep c treatment in

reaction

to the treatment itself? This doc I saw yesterday said there may be a

connection, but we talked about that at the end of the whole exam and I was

not able

to ask more about that because I was in kind of a stupor after talking about

the " C " word. I thought I'd ask you for your hands on knowledge or

experiences first before calling him with more questions.

I'm trying to get the surgery scheduled as soon as possible...waiting to

hear

back from the hospital (Kaiser).

Thanks everyone!

Peace, Sara

September 18, 2003

Hey Aron, good to hear things are back on an even keel, good luck on the

shoulder replacement.

Now as far as being normal my self, can't say that I am, not that I'm

abnormal, just march to the beat of me own drummer!

Got me own Rusty Rhythm going on too!

But thats the benefit of being different and unquiet, in me bumpy, rusty

and creeky body!

A regular symphony! of creeks, crackles and POPS!

And again, good luck on the upcoming surgery!

Rusty Limbs

September 18, 2003

-

Nice to hear from you again. I'm sorry to hear that you've been having so many health problems, but it's great to hear Humira is working so well for the arthritis. I've heard great things about it from other long-time arthritis sufferers for whom nothing else has worked! Keep us posted.

Diane (, 4, pauci)

September 18, 2003

Hi ! Long time no hear. Glad to hear the arthritis is trying to behave. Keep me posted on that shoulder. I need to have my right shoulder done someday. But to those who know me, know it will not likely be one day soon..lol..Donna

September 21, 2003

Hi ,

Thanks for stopping by. It's always so nice to see a message from you,

here. I'm also so happy to hear that you're continuing to have good

results with Humira. Let's hope that it continues doing the job for a

very long time! It must get so frustrating to try several meds and not

get the anticipated response from any of them or to have a positive

response, initially, only to find that over time it's no longer as

effective. That's why I'm always pleased to learn about trials for new

experimental meds. More possibilities for later on down the line.

Glad to hear that JRA World will be back up and running soon

Aloha,

Georgina

wrote:

> Hello Everyone,

> Just thought I would stop by and let you all know what has been going

> on with me the last year. Also wanted to let you all know that JRA

> World is going to start back up at the end of this month.

>

> This last year has been a very bumpy year for me. Seems like I have

> been getting one dx after another. But I think it has all finnally

> decided to slow down again. This last year I have been dx'ed with

> Acid Reflux, Sjogren's and the most recently one is Lung disease.

> Lucky for me they were all caused in one way or another from the

> still's disease. My arthritis part of things is doing so much better

> then I have in a long time. The credit for it has to go to Humira.

> Was starting to think that nothing was going to work for me and I was

> running out of meds real fast to take. I do have to have surgery yet

> again this winter though. This time it will be a left shoulder

> replacement.

>

> For those of you that don't know me. I will interduce myself to you

> now. My name is . I have had systemic onset JRA now for

> 20 years. But have had problems with it pretty much since I was born.

> I am now 29. I am also the Creator and admin to JRA World. This is

> the 6th year the site has been up and it has came a long way during

> that time. I have been on all meds now except for Kineret. I have had

> multi surgeries with 5 of them being joint replacements. I think that

> pretty much sums it up without going into details.

>

> Well I will go for now on that note. And will talk to u all real

> soon. I will do my best and try to come back a lot sooner then a

> year. Until next time take care.

>

> We are all normal, Just some of us have more bumps in our lives then

> others.

October 6, 2003

-Hi Larry, sorry your having such a hard time with them. Seems too

me that dr's, insurance companies, everyone gives us a hard time

too get anywhere. I have been in a LOT of pain and barely able too

sit here and read the notes, sorry everyone. I'm trying too get a

laptop set up so I can do it from the only chair that is comfortable

too me. But I might just fall asleep reading notes in that chair, I

sit down there and zonk out too easily. Mainly cause its one of the

few places I can sleep most the time. And since sleep alludes me so

often I'll take it anywhere I can get it. My dr is now talking about

putting a stimulator in my back. I haven't been able too read up on

it much but it sounds pretty scary too me. But then what are my

choices??? Live in all this pain or try something else. The scary

part is so far NOTHING has helped me very much and I just keep seem

too be getting worse and worse. I can't even drive anymore and

forget ridiing which I love. No way can I even get on any of my

horses :(I was thinking the other day how much I miss flying on the

back of one of my horses. That wonderful feeling of controling 1,000

lbs or more and feeling the wind rush by. Nothing compares too that

for me. Well I hope everyone else is doing better than me. Welcome

too all the new members, please share with us why you joined the

group and we'll all try too help you anyway we can.Sorry I'm not

much help today, just too little sleep and too much pain too be a

happy person today, sorry. S-

- In neck pain , " gulleywasher6869 "

<lagullahorn68-69@s...> wrote:

> WELL HELLO TO EVERYONE IN THE GROUP. I JUST WANTED TO TAKE THE

TIME

> TO SAY HELLO TO ALL IN THE GROUP. NOTHING NEW ON MY END. I'M STILL

> FIGHTING WITH WORK COMP,BUT WHAT ELSE IS NEW THERE RIGHT? IT

SEEMS

> THAT IT IS THE SAME EVERYWHERE WHEN IT COMES TO WORK COMP.RIGHT?

THEY

> ARE ALL

> THE SAME. IT SEEMS THAT THEY JUST WANT TO MAKE LIFE FULL OF

MISERY

> AND SUFFERING FOR ALL OF US THAT ARE HURT ON THE JOB.I DON'T SEE

HOW

> AN AJUSTER CAN SLEEP AT NIGHT KNOWING THAT THEY ARE MAKING LIFE SO

> HARD FOR THOSE OF US THAT HAVE BEEN HURT ON THE JOB,AND ARE IN

SUCH

> PAIN AND NEED HELP,NOT THE CRAP THAT THEY DISH OUT.

> WELL I GUESS THAT IS ENOUGH FOR ME TO SAY AT THIS TIME. THANKS FOR

> LETTING ME VENT MY FRUSTRATION TONIGHT.IT IS GOOD TO BE ABLE TO

SHARE

> WITH OTHERS THAT ARE GOING THROUGH THE SAME THING THAT I AM GOING

> THROUGH.THANKS FOR JUST BEING THERE. I HOPE THAT EVERYONE WILL BE

> ABLE TO GET THE HELP THAT YOU NEED. I HOPE THAT ALL WILL BE ABLE

TO

> REST AND GET A PEACEFUL NIGHTS SLEEP.

> THANKS,LARRY

December 5, 2003

Well since no one else welcomed you to the group, I will. Welcome

shortymul, hope you enjoy it here!

Bon

> Hello I'm a 21 male with achondroplasia dwarfism. I live in

Celina,

> ohio. I have a pic on my profile if ur interested to look. I am

> looking for friends to chat with on my messanger. I do work at

> wal-mart. It's fun too. I work back in electronics dept. so if any

> one wants to talk send me an e-mail at Shortymul@y... or catch

> me online see ya around, I hope!

February 21, 2004

Hi Rosemary.

Of course we still remember you.

I'm glad you're having a good time, but I can understand wanting to get

back home.

You'll have to tell us all about your vacation.

It'll be good to hear from you again.

Have a safe trip.

hello everyone

> Hello from Florida,

>

> I am still in Florida on vacation, be going home on thursday the

> 26h which is next week. Hope the weather in New York is good when I

> get home. I have had a nice time here but am really ready to go home

> now. I miss my children and grandchildren so much. I have a lot to

> read up on the lists when I get home. It has been a while since I

> have really read and wrote on the lists. When I get home it will

> back to the computer and all my emails. I promise. I need to get

> the exercise going and my food on track. Hope that everyone is doing

> well and I will be in touch soon. Just wanted to say hi to everyone

> and hope you guys still remember me.

>

> Rosemary Commisso (Dr R Jan 26,2001)

>

March 10, 2004

Larry,

I think that you are misreading silence of some members, for no pain. I have already shared many of my own problems with back pain, so I don't feel that I need to repeat it, unless of course I read about someone else that has some of the same problems. Then, I will share some of the things that I have found that help me. I stay on the list for, encouragement, and hopefully to be able to help someone that shares my type of back pain. The encouragement comes from those that have a positive attitude, in spite of their pain, which is what I am trying to cultivate.

So, if some members are a bit quiet, don't take that as a sign that they don't suffer with some sort of cronic pain.

Diane

Hello Everyone

Well,let me say that I am glad to have a place to come and share my chronic neck and back pain issues.

There is just something about being able to share with others who have chronic pain and understand what it is like to be in constant pain.

Those who do not have chronic pain do not understand and will never be able to understand what it is like to hurt all the time.

I have had some good responses to the postings that I have put up on the message board from folks who understand what I am going through and suffer in the same manner that I do. I want to say thank you for your time and encouragement in this area.

However there is something that I want to talk about that is not related to my pain issues. The thing that I want to address is that it seems that there are people who have joined this group and have not posted anything about having any pain issues to deal with.

I know that is may be difficult for some to talk about these kind of things.

If you are one of those who finds it difficult to talk about these issues let me urge you to try and find the ability to do so.

If you will do this you will find that there are people here who are willing to reach out to you and give you a helping hand. There are people here who understand and want to help you to get through the difficult times that you face,and to offer you the words of encouragement that you may need to get through the day or night.

You are not alone in your suffering with chronic pain.

We who are here in pain know what you are going through.

So I urge you to try and share what you are going through. If you do you will find that there are those who will give you the encouragement that may be just what you need.

There are some who have joined this group who appear not to have any pain issues to deal with. My question to you is,why did you join this group?

If you do not have any neck and back pain issues to deal with you should not be in this group.

There are many other groups that you could join beside this group.

So,if you fit into this category I ask again ,why are you here?

Just something to think about.

LARRY

DON'T WORRY ABOUT THE SMALL STUFF.

LIFE IS TOO SHORT FOR THAT

March 10, 2004

I WAS NOT DIRECTING MY COMMENTS TO THOSE WHO HAVE POSTED ON THIS GROUP,BUT TO THOSE WHO HAVE JOINED THE GROUP AND HAVE NOT POSTED ANYTHING AT ALL.

I ALSO STATED THAT THERE ARE THOSE WHO MAY FIND IT DIFFICULT TO TALK ABOUT THEIR PAIN. I SAID THAT IF SOMEONE FINDS IT DIFFICULT TO SHARE THAT I URGED THEM TO DO SO.

I SAID THAT THERE ARE THOSE HERE WHO WILL GIVE WORDS OF ENCOURAGEMENT AND WILL BE ABLE TO UNDERSTAND WHAT IT IS LIKE TO HAVE CHRONIC PAIN.

I SAID THAT NO NEEDS TO SUFFER ALONE.

THERE ARE PEOPLE HERE WHO KNOW WHAT IT IS LIKE TO HAVE CHRONIC PAIN ,AND UNDERSTAND WHAT IT IS LIKE. I SAID THAT THERE ARE PEOPLE WHO WILL BE ABLE TO HELP NO MATTER IF IT IS DAY OR NIGHT.

HOW CAN ANYONE OFFER HELP IF A PERSON DOES NOT SHARE WHAT IS GOING ON WITH THEM?

I ALSO SAID THAT IF A PERSON HAS JOINED THIS GROUP AND DOES NOT HAVE

NECK AND BACK PAIN ISSUES THAT THEY SHOULD NOT BE A MEMBER OF THIS GROUP. I STAND BY MY STATEMENT.

IT IS MY SINCERE WISH THAT THOSE IN THIS GROUP WHO SUFFER IN PAIN HAVE A BETTER DAY TOMORROW THAN THEY HAD TODAY

LARRY

Diane & Dallas <ftrotter@...> wrote: