Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Sometimes the interferon stimulates my system, and sometimes it slows me down. Just never know from month to month alley/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Sometimes the interferon stimulates my system, and sometimes it slows me down. Just never know from month to month alley/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Jenn, have they checked you for possible Fibromyalgia? That was the first thing they dxed me with?.....Take Care, Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Jenn, have they checked you for possible Fibromyalgia? That was the first thing they dxed me with?.....Take Care, Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Jenn, have they checked you for possible Fibromyalgia? That was the first thing they dxed me with?.....Take Care, Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Jenn, have they checked you for possible Fibromyalgia? That was the first thing they dxed me with?.....Take Care, Connie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear Carol, It does seem that you have cirrhosis but if your ALT is high with +ve HCV-RNA you should go for treatment with Combo albeit with lower dose of IFN Dr Sharat Misra MD,DM,FACG Hi gang I am not amused. Biopsy isn't very good at all. Will post this as it reads: The core needle biopsy of liver shows marked distortion of normal liver architecture. There is severe fatty change present. There is periportal fibrosis with well-established cirrhosis present. The portal triad shows mild chronic inflammatory cell infiltrate including lymphocytes and macrophages present. The bile ductules and vessels are unremarkable. There is no PAS diastase positive granules present. There is mild parenchymal injury, less than four injured cells (acidophilic bodies, ballooning degeneration) seen /10hpf. The central venules are unremarkable. The iron stain is negative. There is no bile stasis present. Dammmmmmmmm. If you recall, I live in Canada where treatment is the old one, not peg. Doc, am I too far gone to even bother with treatment? Especially with the old combo, not peg. I'm geno 1b of course. I guess I should at least try treatment. Any thoughts? I think I'm still rather stunned at this report. Thanks all Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear Carol, It does seem that you have cirrhosis but if your ALT is high with +ve HCV-RNA you should go for treatment with Combo albeit with lower dose of IFN Dr Sharat Misra MD,DM,FACG Hi gang I am not amused. Biopsy isn't very good at all. Will post this as it reads: The core needle biopsy of liver shows marked distortion of normal liver architecture. There is severe fatty change present. There is periportal fibrosis with well-established cirrhosis present. The portal triad shows mild chronic inflammatory cell infiltrate including lymphocytes and macrophages present. The bile ductules and vessels are unremarkable. There is no PAS diastase positive granules present. There is mild parenchymal injury, less than four injured cells (acidophilic bodies, ballooning degeneration) seen /10hpf. The central venules are unremarkable. The iron stain is negative. There is no bile stasis present. Dammmmmmmmm. If you recall, I live in Canada where treatment is the old one, not peg. Doc, am I too far gone to even bother with treatment? Especially with the old combo, not peg. I'm geno 1b of course. I guess I should at least try treatment. Any thoughts? I think I'm still rather stunned at this report. Thanks all Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear Carol, It does seem that you have cirrhosis but if your ALT is high with +ve HCV-RNA you should go for treatment with Combo albeit with lower dose of IFN Dr Sharat Misra MD,DM,FACG Hi gang I am not amused. Biopsy isn't very good at all. Will post this as it reads: The core needle biopsy of liver shows marked distortion of normal liver architecture. There is severe fatty change present. There is periportal fibrosis with well-established cirrhosis present. The portal triad shows mild chronic inflammatory cell infiltrate including lymphocytes and macrophages present. The bile ductules and vessels are unremarkable. There is no PAS diastase positive granules present. There is mild parenchymal injury, less than four injured cells (acidophilic bodies, ballooning degeneration) seen /10hpf. The central venules are unremarkable. The iron stain is negative. There is no bile stasis present. Dammmmmmmmm. If you recall, I live in Canada where treatment is the old one, not peg. Doc, am I too far gone to even bother with treatment? Especially with the old combo, not peg. I'm geno 1b of course. I guess I should at least try treatment. Any thoughts? I think I'm still rather stunned at this report. Thanks all Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear Carol, It does seem that you have cirrhosis but if your ALT is high with +ve HCV-RNA you should go for treatment with Combo albeit with lower dose of IFN Dr Sharat Misra MD,DM,FACG Hi gang I am not amused. Biopsy isn't very good at all. Will post this as it reads: The core needle biopsy of liver shows marked distortion of normal liver architecture. There is severe fatty change present. There is periportal fibrosis with well-established cirrhosis present. The portal triad shows mild chronic inflammatory cell infiltrate including lymphocytes and macrophages present. The bile ductules and vessels are unremarkable. There is no PAS diastase positive granules present. There is mild parenchymal injury, less than four injured cells (acidophilic bodies, ballooning degeneration) seen /10hpf. The central venules are unremarkable. The iron stain is negative. There is no bile stasis present. Dammmmmmmmm. If you recall, I live in Canada where treatment is the old one, not peg. Doc, am I too far gone to even bother with treatment? Especially with the old combo, not peg. I'm geno 1b of course. I guess I should at least try treatment. Any thoughts? I think I'm still rather stunned at this report. Thanks all Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Thanks Doc. You're the only one who answered my email, I guess no one knows what to say to me. The cirrhosis was probably caused by my 20 years of party life, heavy, heavy drinking...no drugs, no tylenol. I wasn't surprised that I had it, I have the red palms and upper chest rash, have had it for years, just didn't know what it meant. To add insult to injury...I also have an abcessed tooth...started taking penicillin last Tuesday and have felt great ever since. Must have had a lot of infection in my body to make such a difference in how I feel. I feel great! Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the cirhossis will not continue. My alt level is one and 1/2 higher than normal, still in double digits. They don't do viral load tests in Canada anymore, DUH. Carol Doc wrote: > Dear Carol, > It does seem that you have cirrhosis but if your ALT is high with +ve > HCV-RNA you should go for treatment with Combo albeit with lower dose > of IFN > > Dr Sharat Misra MD,DM,FACG > > > > Hi gang > > I am not amused. Biopsy isn't very good at all. Will post this as > it > reads: > > The core needle biopsy of liver shows marked distortion of normal > liver architecture. There is severe fatty change present. There is > > periportal fibrosis with well-established cirrhosis present. The > portal triad shows mild chronic inflammatory cell infiltrate > including > lymphocytes and macrophages present. The bile ductules and vessels > are unremarkable. There is no PAS diastase positive granules > present. > There is mild parenchymal injury, less than four injured cells > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > central venules are unremarkable. The iron stain is negative. > There > is no bile stasis present. > > Dammmmmmmmm. If you recall, I live in Canada where treatment is the > > old one, not peg. Doc, am I too far gone to even bother with > treatment? Especially with the old combo, not peg. I'm geno 1b of > course. I guess I should at least try treatment. Any thoughts? I > think I'm still rather stunned at this report. > > Thanks all > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Thanks Doc. You're the only one who answered my email, I guess no one knows what to say to me. The cirrhosis was probably caused by my 20 years of party life, heavy, heavy drinking...no drugs, no tylenol. I wasn't surprised that I had it, I have the red palms and upper chest rash, have had it for years, just didn't know what it meant. To add insult to injury...I also have an abcessed tooth...started taking penicillin last Tuesday and have felt great ever since. Must have had a lot of infection in my body to make such a difference in how I feel. I feel great! Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the cirhossis will not continue. My alt level is one and 1/2 higher than normal, still in double digits. They don't do viral load tests in Canada anymore, DUH. Carol Doc wrote: > Dear Carol, > It does seem that you have cirrhosis but if your ALT is high with +ve > HCV-RNA you should go for treatment with Combo albeit with lower dose > of IFN > > Dr Sharat Misra MD,DM,FACG > > > > Hi gang > > I am not amused. Biopsy isn't very good at all. Will post this as > it > reads: > > The core needle biopsy of liver shows marked distortion of normal > liver architecture. There is severe fatty change present. There is > > periportal fibrosis with well-established cirrhosis present. The > portal triad shows mild chronic inflammatory cell infiltrate > including > lymphocytes and macrophages present. The bile ductules and vessels > are unremarkable. There is no PAS diastase positive granules > present. > There is mild parenchymal injury, less than four injured cells > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > central venules are unremarkable. The iron stain is negative. > There > is no bile stasis present. > > Dammmmmmmmm. If you recall, I live in Canada where treatment is the > > old one, not peg. Doc, am I too far gone to even bother with > treatment? Especially with the old combo, not peg. I'm geno 1b of > course. I guess I should at least try treatment. Any thoughts? I > think I'm still rather stunned at this report. > > Thanks all > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Thanks Doc. You're the only one who answered my email, I guess no one knows what to say to me. The cirrhosis was probably caused by my 20 years of party life, heavy, heavy drinking...no drugs, no tylenol. I wasn't surprised that I had it, I have the red palms and upper chest rash, have had it for years, just didn't know what it meant. To add insult to injury...I also have an abcessed tooth...started taking penicillin last Tuesday and have felt great ever since. Must have had a lot of infection in my body to make such a difference in how I feel. I feel great! Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the cirhossis will not continue. My alt level is one and 1/2 higher than normal, still in double digits. They don't do viral load tests in Canada anymore, DUH. Carol Doc wrote: > Dear Carol, > It does seem that you have cirrhosis but if your ALT is high with +ve > HCV-RNA you should go for treatment with Combo albeit with lower dose > of IFN > > Dr Sharat Misra MD,DM,FACG > > > > Hi gang > > I am not amused. Biopsy isn't very good at all. Will post this as > it > reads: > > The core needle biopsy of liver shows marked distortion of normal > liver architecture. There is severe fatty change present. There is > > periportal fibrosis with well-established cirrhosis present. The > portal triad shows mild chronic inflammatory cell infiltrate > including > lymphocytes and macrophages present. The bile ductules and vessels > are unremarkable. There is no PAS diastase positive granules > present. > There is mild parenchymal injury, less than four injured cells > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > central venules are unremarkable. The iron stain is negative. > There > is no bile stasis present. > > Dammmmmmmmm. If you recall, I live in Canada where treatment is the > > old one, not peg. Doc, am I too far gone to even bother with > treatment? Especially with the old combo, not peg. I'm geno 1b of > course. I guess I should at least try treatment. Any thoughts? I > think I'm still rather stunned at this report. > > Thanks all > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Thanks Doc. You're the only one who answered my email, I guess no one knows what to say to me. The cirrhosis was probably caused by my 20 years of party life, heavy, heavy drinking...no drugs, no tylenol. I wasn't surprised that I had it, I have the red palms and upper chest rash, have had it for years, just didn't know what it meant. To add insult to injury...I also have an abcessed tooth...started taking penicillin last Tuesday and have felt great ever since. Must have had a lot of infection in my body to make such a difference in how I feel. I feel great! Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the cirhossis will not continue. My alt level is one and 1/2 higher than normal, still in double digits. They don't do viral load tests in Canada anymore, DUH. Carol Doc wrote: > Dear Carol, > It does seem that you have cirrhosis but if your ALT is high with +ve > HCV-RNA you should go for treatment with Combo albeit with lower dose > of IFN > > Dr Sharat Misra MD,DM,FACG > > > > Hi gang > > I am not amused. Biopsy isn't very good at all. Will post this as > it > reads: > > The core needle biopsy of liver shows marked distortion of normal > liver architecture. There is severe fatty change present. There is > > periportal fibrosis with well-established cirrhosis present. The > portal triad shows mild chronic inflammatory cell infiltrate > including > lymphocytes and macrophages present. The bile ductules and vessels > are unremarkable. There is no PAS diastase positive granules > present. > There is mild parenchymal injury, less than four injured cells > (acidophilic bodies, ballooning degeneration) seen /10hpf. The > central venules are unremarkable. The iron stain is negative. > There > is no bile stasis present. > > Dammmmmmmmm. If you recall, I live in Canada where treatment is the > > old one, not peg. Doc, am I too far gone to even bother with > treatment? Especially with the old combo, not peg. I'm geno 1b of > course. I guess I should at least try treatment. Any thoughts? I > think I'm still rather stunned at this report. > > Thanks all > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Carol... I must have missed your original email....I did see doc's response when I logged in tonight.. Everyone must be glued to their tv's watching the Olympics and that's why no one responded...I'm sure with all the wonderful people in this group that no one was ignoring your message. But when I read the thread, I couldn't have offered any advice...but I am so sorry you got such bad news. It must have been just devastating to you when you got the results of your biopsy...and none of us were here to help you through all the changes you must have been experiencing. It's so hard to be faced with our mortality...I'm sure that each of us in this group has has gone through that. But we still can live each day to the fullest and hold on to hope. Hope and positive thinking...they are so important to all of us. Please don't think that any one was ignoring you. It's been awfully quiet here lately and I think everyone must be preoccupied with the olympics. We are here for each other so lean on us when you need to. Blessings Tatezi Carol wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had > a > lot of infection in my body to make such a difference in how I feel. > I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > -- If you talk to the animals they will talk with you and you will know each other. If you do not talk to them, you will not know them, And what you do not know you will fear. What one fears one destroys. ~Chief Dan ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Carol... I must have missed your original email....I did see doc's response when I logged in tonight.. Everyone must be glued to their tv's watching the Olympics and that's why no one responded...I'm sure with all the wonderful people in this group that no one was ignoring your message. But when I read the thread, I couldn't have offered any advice...but I am so sorry you got such bad news. It must have been just devastating to you when you got the results of your biopsy...and none of us were here to help you through all the changes you must have been experiencing. It's so hard to be faced with our mortality...I'm sure that each of us in this group has has gone through that. But we still can live each day to the fullest and hold on to hope. Hope and positive thinking...they are so important to all of us. Please don't think that any one was ignoring you. It's been awfully quiet here lately and I think everyone must be preoccupied with the olympics. We are here for each other so lean on us when you need to. Blessings Tatezi Carol wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had > a > lot of infection in my body to make such a difference in how I feel. > I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > -- If you talk to the animals they will talk with you and you will know each other. If you do not talk to them, you will not know them, And what you do not know you will fear. What one fears one destroys. ~Chief Dan ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Carol... I must have missed your original email....I did see doc's response when I logged in tonight.. Everyone must be glued to their tv's watching the Olympics and that's why no one responded...I'm sure with all the wonderful people in this group that no one was ignoring your message. But when I read the thread, I couldn't have offered any advice...but I am so sorry you got such bad news. It must have been just devastating to you when you got the results of your biopsy...and none of us were here to help you through all the changes you must have been experiencing. It's so hard to be faced with our mortality...I'm sure that each of us in this group has has gone through that. But we still can live each day to the fullest and hold on to hope. Hope and positive thinking...they are so important to all of us. Please don't think that any one was ignoring you. It's been awfully quiet here lately and I think everyone must be preoccupied with the olympics. We are here for each other so lean on us when you need to. Blessings Tatezi Carol wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had > a > lot of infection in my body to make such a difference in how I feel. > I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > -- If you talk to the animals they will talk with you and you will know each other. If you do not talk to them, you will not know them, And what you do not know you will fear. What one fears one destroys. ~Chief Dan ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Carol... I must have missed your original email....I did see doc's response when I logged in tonight.. Everyone must be glued to their tv's watching the Olympics and that's why no one responded...I'm sure with all the wonderful people in this group that no one was ignoring your message. But when I read the thread, I couldn't have offered any advice...but I am so sorry you got such bad news. It must have been just devastating to you when you got the results of your biopsy...and none of us were here to help you through all the changes you must have been experiencing. It's so hard to be faced with our mortality...I'm sure that each of us in this group has has gone through that. But we still can live each day to the fullest and hold on to hope. Hope and positive thinking...they are so important to all of us. Please don't think that any one was ignoring you. It's been awfully quiet here lately and I think everyone must be preoccupied with the olympics. We are here for each other so lean on us when you need to. Blessings Tatezi Carol wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had > a > lot of infection in my body to make such a difference in how I feel. > I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully > the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > > > Dear Carol, > > It does seem that you have cirrhosis but if your ALT is high with > +ve > > HCV-RNA you should go for treatment with Combo albeit with lower > dose > > of IFN > > > > Dr Sharat Misra MD,DM,FACG > > -- If you talk to the animals they will talk with you and you will know each other. If you do not talk to them, you will not know them, And what you do not know you will fear. What one fears one destroys. ~Chief Dan ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 --- Carol <csean@...> wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. Hi Carol, I'm sorry I didn't answer your email! I wanted to say the 'right' thing, and I've just been rushing through my emails lately, and your's did not deserve to be rushed through. My grandmother has been in the hospital for the past 4 weeks and I have spent most of my time at the hospital. I had 93 emails in my 'In' box when I got online tonight!!! And, while your's was pretty obvious, with the out-right statement of cirrhosis, I find the biopsy reports confusing. We are so lucky to have Doc! I was pretty bummed to read your biopsy results, and I'm sure you are too. Don't they use the peg on ANYONE in Canada? If so it sure seems like you would qualify! But if not, the old combo is certainly better than nothing, and can still help you a lot. Don't go around blaming yourself for past behaviors! It's just a waste of your energy. Don't look back, look forward. Concentrate on what you can do NOW to help yourself. You are already on the right track just by the change in your lifestyle. So what has your doctor said about treatment now? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 --- Carol <csean@...> wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. Hi Carol, I'm sorry I didn't answer your email! I wanted to say the 'right' thing, and I've just been rushing through my emails lately, and your's did not deserve to be rushed through. My grandmother has been in the hospital for the past 4 weeks and I have spent most of my time at the hospital. I had 93 emails in my 'In' box when I got online tonight!!! And, while your's was pretty obvious, with the out-right statement of cirrhosis, I find the biopsy reports confusing. We are so lucky to have Doc! I was pretty bummed to read your biopsy results, and I'm sure you are too. Don't they use the peg on ANYONE in Canada? If so it sure seems like you would qualify! But if not, the old combo is certainly better than nothing, and can still help you a lot. Don't go around blaming yourself for past behaviors! It's just a waste of your energy. Don't look back, look forward. Concentrate on what you can do NOW to help yourself. You are already on the right track just by the change in your lifestyle. So what has your doctor said about treatment now? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 --- Carol <csean@...> wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. Hi Carol, I'm sorry I didn't answer your email! I wanted to say the 'right' thing, and I've just been rushing through my emails lately, and your's did not deserve to be rushed through. My grandmother has been in the hospital for the past 4 weeks and I have spent most of my time at the hospital. I had 93 emails in my 'In' box when I got online tonight!!! And, while your's was pretty obvious, with the out-right statement of cirrhosis, I find the biopsy reports confusing. We are so lucky to have Doc! I was pretty bummed to read your biopsy results, and I'm sure you are too. Don't they use the peg on ANYONE in Canada? If so it sure seems like you would qualify! But if not, the old combo is certainly better than nothing, and can still help you a lot. Don't go around blaming yourself for past behaviors! It's just a waste of your energy. Don't look back, look forward. Concentrate on what you can do NOW to help yourself. You are already on the right track just by the change in your lifestyle. So what has your doctor said about treatment now? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 --- Carol <csean@...> wrote: > Thanks Doc. You're the only one who answered my email, I guess no > one > knows what to say to me. Hi Carol, I'm sorry I didn't answer your email! I wanted to say the 'right' thing, and I've just been rushing through my emails lately, and your's did not deserve to be rushed through. My grandmother has been in the hospital for the past 4 weeks and I have spent most of my time at the hospital. I had 93 emails in my 'In' box when I got online tonight!!! And, while your's was pretty obvious, with the out-right statement of cirrhosis, I find the biopsy reports confusing. We are so lucky to have Doc! I was pretty bummed to read your biopsy results, and I'm sure you are too. Don't they use the peg on ANYONE in Canada? If so it sure seems like you would qualify! But if not, the old combo is certainly better than nothing, and can still help you a lot. Don't go around blaming yourself for past behaviors! It's just a waste of your energy. Don't look back, look forward. Concentrate on what you can do NOW to help yourself. You are already on the right track just by the change in your lifestyle. So what has your doctor said about treatment now? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Carol- Just read your email this am-but I think probably everybody was waiting for Doc's input. I have to say (and I am willing to bet this goes for most of us) that I believe you should try treatment. Perhaps you can get a doc to do daily injections-which would be basically the same as Peg, you just get to stick yourself more often. I am sorry to hear of the crappy biopsy results-that kind of stuff really knocks a person on their butt! Go ahead and cry, but come back fighting! If I am remembering correctly, Doc posted something about treaing cirrhosis with alpha-lipoic acid and something else? Perhaps she can repost? Also lecithin would be very good for you to take, along with milk thistle and a good daily multi-without iron. gail ---------- >From: Carol <csean@...> >Hepatitis C >Subject: Re: biopsy results >Date: Sun, Feb 24, 2002, 7:42 PM > > Thanks Doc. You're the only one who answered my email, I guess no one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had a > lot of infection in my body to make such a difference in how I feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > >> Dear Carol, >> It does seem that you have cirrhosis but if your ALT is high with +ve >> HCV-RNA you should go for treatment with Combo albeit with lower dose >> of IFN >> >> Dr Sharat Misra MD,DM,FACG >> >> >> >> Hi gang >> >> I am not amused. Biopsy isn't very good at all. Will post this as >> it >> reads: >> >> The core needle biopsy of liver shows marked distortion of normal >> liver architecture. There is severe fatty change present. There is >> >> periportal fibrosis with well-established cirrhosis present. The >> portal triad shows mild chronic inflammatory cell infiltrate >> including >> lymphocytes and macrophages present. The bile ductules and vessels >> are unremarkable. There is no PAS diastase positive granules >> present. >> There is mild parenchymal injury, less than four injured cells >> (acidophilic bodies, ballooning degeneration) seen /10hpf. The >> central venules are unremarkable. The iron stain is negative. >> There >> is no bile stasis present. >> >> Dammmmmmmmm. If you recall, I live in Canada where treatment is the >> >> old one, not peg. Doc, am I too far gone to even bother with >> treatment? Especially with the old combo, not peg. I'm geno 1b of >> course. I guess I should at least try treatment. Any thoughts? I >> think I'm still rather stunned at this report. >> >> Thanks all >> Carol >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Carol- Just read your email this am-but I think probably everybody was waiting for Doc's input. I have to say (and I am willing to bet this goes for most of us) that I believe you should try treatment. Perhaps you can get a doc to do daily injections-which would be basically the same as Peg, you just get to stick yourself more often. I am sorry to hear of the crappy biopsy results-that kind of stuff really knocks a person on their butt! Go ahead and cry, but come back fighting! If I am remembering correctly, Doc posted something about treaing cirrhosis with alpha-lipoic acid and something else? Perhaps she can repost? Also lecithin would be very good for you to take, along with milk thistle and a good daily multi-without iron. gail ---------- >From: Carol <csean@...> >Hepatitis C >Subject: Re: biopsy results >Date: Sun, Feb 24, 2002, 7:42 PM > > Thanks Doc. You're the only one who answered my email, I guess no one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had a > lot of infection in my body to make such a difference in how I feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > >> Dear Carol, >> It does seem that you have cirrhosis but if your ALT is high with +ve >> HCV-RNA you should go for treatment with Combo albeit with lower dose >> of IFN >> >> Dr Sharat Misra MD,DM,FACG >> >> >> >> Hi gang >> >> I am not amused. Biopsy isn't very good at all. Will post this as >> it >> reads: >> >> The core needle biopsy of liver shows marked distortion of normal >> liver architecture. There is severe fatty change present. There is >> >> periportal fibrosis with well-established cirrhosis present. The >> portal triad shows mild chronic inflammatory cell infiltrate >> including >> lymphocytes and macrophages present. The bile ductules and vessels >> are unremarkable. There is no PAS diastase positive granules >> present. >> There is mild parenchymal injury, less than four injured cells >> (acidophilic bodies, ballooning degeneration) seen /10hpf. The >> central venules are unremarkable. The iron stain is negative. >> There >> is no bile stasis present. >> >> Dammmmmmmmm. If you recall, I live in Canada where treatment is the >> >> old one, not peg. Doc, am I too far gone to even bother with >> treatment? Especially with the old combo, not peg. I'm geno 1b of >> course. I guess I should at least try treatment. Any thoughts? I >> think I'm still rather stunned at this report. >> >> Thanks all >> Carol >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Carol- Just read your email this am-but I think probably everybody was waiting for Doc's input. I have to say (and I am willing to bet this goes for most of us) that I believe you should try treatment. Perhaps you can get a doc to do daily injections-which would be basically the same as Peg, you just get to stick yourself more often. I am sorry to hear of the crappy biopsy results-that kind of stuff really knocks a person on their butt! Go ahead and cry, but come back fighting! If I am remembering correctly, Doc posted something about treaing cirrhosis with alpha-lipoic acid and something else? Perhaps she can repost? Also lecithin would be very good for you to take, along with milk thistle and a good daily multi-without iron. gail ---------- >From: Carol <csean@...> >Hepatitis C >Subject: Re: biopsy results >Date: Sun, Feb 24, 2002, 7:42 PM > > Thanks Doc. You're the only one who answered my email, I guess no one > knows what to say to me. The cirrhosis was probably caused by my 20 > years of party life, heavy, heavy drinking...no drugs, no tylenol. I > wasn't surprised that I had it, I have the red palms and upper chest > rash, have had it for years, just didn't know what it meant. To add > insult to injury...I also have an abcessed tooth...started taking > penicillin last Tuesday and have felt great ever since. Must have had a > lot of infection in my body to make such a difference in how I feel. I > feel great! > > Btw, I am NOT drinking at all....haven't in 7-8 years. So hopefully the > cirhossis will not continue. My alt level is one and 1/2 higher than > normal, still in double digits. They don't do viral load tests in > Canada anymore, DUH. > > Carol > > Doc wrote: > >> Dear Carol, >> It does seem that you have cirrhosis but if your ALT is high with +ve >> HCV-RNA you should go for treatment with Combo albeit with lower dose >> of IFN >> >> Dr Sharat Misra MD,DM,FACG >> >> >> >> Hi gang >> >> I am not amused. Biopsy isn't very good at all. Will post this as >> it >> reads: >> >> The core needle biopsy of liver shows marked distortion of normal >> liver architecture. There is severe fatty change present. There is >> >> periportal fibrosis with well-established cirrhosis present. The >> portal triad shows mild chronic inflammatory cell infiltrate >> including >> lymphocytes and macrophages present. The bile ductules and vessels >> are unremarkable. There is no PAS diastase positive granules >> present. >> There is mild parenchymal injury, less than four injured cells >> (acidophilic bodies, ballooning degeneration) seen /10hpf. The >> central venules are unremarkable. The iron stain is negative. >> There >> is no bile stasis present. >> >> Dammmmmmmmm. If you recall, I live in Canada where treatment is the >> >> old one, not peg. Doc, am I too far gone to even bother with >> treatment? Especially with the old combo, not peg. I'm geno 1b of >> course. I guess I should at least try treatment. Any thoughts? I >> think I'm still rather stunned at this report. >> >> Thanks all >> Carol >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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