Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 I don't know why you would think she was getting smart. She has always been the nicest person, never says anything caddy or funny... In all reality. She is WONDERFUL if you ever get to meet her or if you already have you will quickly discover she is AWESOME and very much dedicated to helping people reach/make goals to better their lives. (she didn't even pay me to say the nice things about her he he) She just tries from every direction to help people. Only think i can say about your ankle.... is hope nothing is broke... I was home 2 days from surgery and broke a bone in my foot. If that is enough to make a non drinker want to have a BIG drink. Good luck on your journey and hope that your ankle is just an ouchy and not a BIg hurt! soniaJane Moss <joy4jane66@...> wrote: , Are you trying to get smart or something?????? Surgery is scheduled, I just have to figure out what to do about the Warfarin!!!!! I left a message Friday with my pcp but he won't be in until Monday. So, all I can do this weekend is wait.....Now, I wish that all I had done was sit on my fat butt at home. Instead I got out and about with my husband and by doing so got hurt!!! I stepped out of the truck right into a damn hole and twisted my ankle! Boy does that puppy hurt!!! I can't put any of my massive weight on it!! If it is not better by Monday I may be personally seeing my pcp! Actually, that might be a better idea anyway. Jane..........ooch, ooch, ooch......................... Bipley <Bipleygmail> wrote: Jane... If you wait much longer to have this surgery you are going to be scheduling with Nina's great great great grandaughter! Dr. Aceves' great great great grandson will be operating! LOL On 6/1/07, Jane Moss <joy4jane66 > wrote: Jenni, We will arrive Wed. June 20. Surgery is the 21st. I have a problem that I am trying to get worked out in the next week or I may have to wait. Hopefully everything will work out. J Currie <giftedtch > wrote: I am having my port put in on Wed. June 20 and will be at the hospital overnight. You? JenniJane Moss <joy4jane66 > wrote: Jenni, When will you be in Mexico? J Currie <giftedtch > wrote: Oh my GOD! SHelly! I would so give you a high five and huge hug! 70 pounds is incredible! And then, running in a 3k??? Absolutely fantastic! You go girl! What else are you doing this summer??? I'm heading out to Long Beach, CA for a conference and then on to Mexico to have my port put back in. Tell me what your workout routine is now. Did you start with the weights? Jenni del Bosque <SDelBosquesheltonschools (DOT) org> wrote: I finally hit 70 lbs. gone!! I am so proud and am so happy with my band. It has changed my life! I am doing my first run at the end of June. Who would of thought I would be doing a 3k run!! Keep posting everyone, I am proud of all of you! del BosqueDOB 12/28/2006300/230/150 Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. Ready for the edge of your seat? Check out tonight's top picks on TV. Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center. oneSearch: Finally, mobile search that gives answers , not web links. Get your own web address.Have a HUGE year through Small Business. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Hey , I am sure you know that I was just teasing her a little bit. I think she is a wonderful person.........even though I have never, yet, met her in person. If I don't meet her in Mexico I may just travel to Phoenix and crash one of your lunches. She is but one of the many on this board that have given me such hope and motivation to get on with this..... Sorry to hear about your foot! Ooch! Thankfully mine isn't broken! I don't know what I would have done. I did damage it quite a bit though. Dr. said it would take several weeks of nursing it to heal. I have had a broken bone in my other foot and clearly remember how horrible it was to not be able to shower! I have a hard enough time doing that as it is.... sonia larimore <kssooner@...> wrote: I don't know why you would think she was getting smart. She has always been the nicest person, never says anything caddy or funny... In all reality. She is WONDERFUL if you ever get to meet her or if you already have you will quickly discover she is AWESOME and very much dedicated to helping people reach/make goals to better their lives. (she didn't even pay me to say the nice things about her he he) She just tries from every direction to help people. Only think i can say about your ankle.... is hope nothing is broke... I was home 2 days from surgery and broke a bone in my foot. If that is enough to make a non drinker want to have a BIG drink. Good luck on your journey and hope that your ankle is just an ouchy and not a BIg hurt! soniaJane Moss <joy4jane66 > wrote: , Are you trying to get smart or something?????? Surgery is scheduled, I just have to figure out what to do about the Warfarin!!!!! I left a message Friday with my pcp but he won't be in until Monday. So, all I can do this weekend is wait.....Now, I wish that all I had done was sit on my fat butt at home. Instead I got out and about with my husband and by doing so got hurt!!! I stepped out of the truck right into a damn hole and twisted my ankle! Boy does that puppy hurt!!! I can't put any of my massive weight on it!! If it is not better by Monday I may be personally seeing my pcp! Actually, that might be a better idea anyway. Jane..........ooch, ooch, ooch......................... Bipley <Bipleygmail> wrote: Jane... If you wait much longer to have this surgery you are going to be scheduling with Nina's great great great grandaughter! Dr. Aceves' great great great grandson will be operating! LOL On 6/1/07, Jane Moss <joy4jane66 > wrote: Jenni, We will arrive Wed. June 20. Surgery is the 21st. I have a problem that I am trying to get worked out in the next week or I may have to wait. Hopefully everything will work out. J Currie <giftedtch > wrote: I am having my port put in on Wed. June 20 and will be at the hospital overnight. You? JenniJane Moss <joy4jane66 > wrote: Jenni, When will you be in Mexico? J Currie <giftedtch > wrote: Oh my GOD! SHelly! I would so give you a high five and huge hug! 70 pounds is incredible! And then, running in a 3k??? Absolutely fantastic! You go girl! What else are you doing this summer??? I'm heading out to Long Beach, CA for a conference and then on to Mexico to have my port put back in. Tell me what your workout routine is now. Did you start with the weights? Jenni del Bosque <SDelBosquesheltonschools (DOT) org> wrote: I finally hit 70 lbs. gone!! I am so proud and am so happy with my band. It has changed my life! I am doing my first run at the end of June. Who would of thought I would be doing a 3k run!! Keep posting everyone, I am proud of all of you! del BosqueDOB 12/28/2006300/230/150 Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. Ready for the edge of your seat? Check out tonight's top picks on TV. Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center. oneSearch: Finally, mobile search that gives answers , not web links. Get your own web address.Have a HUGE year through Small Business. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. joy4jane D.O.B. 6/21/07 BMI - 66.9 current - my secret goal - ?? Dear God, If you can't make me thin please make my friends fat! NOT Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Jane - I believe I wrote a few days ago, but perhaps you did not receive it. Also, we do not know where you are located. That would help. I think to be a well informed patient and to take part in ones treatment is excellent. I always advocate it. Within limitations. I have seen patients medicate themselves to an premature death. To walk around with fear of imminent death, and deal with an inexperienced doctor waiting for the sword to drop based on interpretation of wishy-washy prognostics, is not the way to fight this disease. I'm sorry. You've already lived longer than you were told you would. You have a cupboard full of bandaids and are sticking them on yourself without seeking a long term cure. Sybil is right, perhaps you should consider a transplant. Perhaps you should consider a trial, HumAx-20 or Revlimid. And if you're so convinced you're going to die anyway, why not try something like FCR? According to your theory, it can't make things any worse then just sitting around with the bandaids and waiting to die. If CLB means Chlorambucil (and I asked you before about some of your abbreviations), then CLB may be the wrong way to go. People say CLB is mild, and not a chemo. Not so. Chlorambucil is a chemo. As for AIHA, you may or may not have it. Your positive Haptoglobin says you don't, your positive Coombs and elevated LDH say you do. Spleen is more likely. But your messing around with very low platelets also. Jane, you're going to hurt yourself, you're not doing yourself any favors by messing around and waiting to die. Sooner or later our Dr. Furman will pick up on this and offer an opinion as well. But my advice, even if you're on Medicaid, is to do something serious and proactive, get yourself together, get a better attitude, and deal with this disease with a big gun rather than slingshots. I do apologize, I do not mean to offend, and I rarely get aggressive with patients posting on this list. But in your case, I think someone needs to shake you by the shoulders and get you on a fast track, somehow. We're all trying to help, but few of us have experience with the exact solutions you have been trying to follow, a little of this, a little of that, wait a bit, numbers up, numbers down, etc. All the best, Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 From what the consultants have told me in the past, Chlorambucil is more damaging to the marrow than cychlophosphymide. I did chlorambucil because I used low doses and after the first treatment we had intentions to keep the chlorambucil going for longer, but we stopped due to neutropenia, which fortunately recover very fast. regards Chonette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Jane, I was a nurse's aide before I became a nurse, so I did some heavy lifting. In the 70's we weren't shown good body mechanics, or allowed physical, or mechanical assistance to lift, & transfer patients. I transferred a 300 pound man to a chair by myself, & he had his arms around my neck. Even as a nurse on an orthopedic floor, I was body lifting patients myself, or with another nurse. or orderly. I feel that this lifting took a toll on my body. My MD did not want me to work in the hospital anymore lifting patients. I ended up working in nursing homes where the nurse's aides lifted the patients, usually with a mechanical lift. Now I lift heavy items as a cashier at Walmart, but I would say I rarely lift more than 30 pounds. Standing in one place is a killer, thank God we get breaks almost every 2 hours. Yes, I lost 2 jobs , because they felt I couldn't handle it physically, or emotionally. One of them gave me severance pay, & health insurance for 2 months. Chronic pain would effect anyone emotionally. I also have sleep apnea, & before I was diagnosed, I was falling asleep at work, & on the road. I was 1st diagnosed with DDD at 39 years old, & now I am 57 years old. I do enjoy reading now, watching TV, & using the computer. I use to feel guilty, & lazy doing these things, but now they help ease my pain. I feel as if I am retired, because I went from working 48- 56 hours a week to 30 hours a week. I was also working nights, & 12 hour shifts. My job is less stressful, & I actually get out on time. Everything happens for a reason. I try to remain upbeat. I have lost my career, home, & comfortable income. I am now living with my elderly mother, who I am most grateful for. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 June, I remember those days as a nurses aide. My first 2 jobs were in a hospital and a nursing home. Lifting those patients was bad. As bad as things are now I am glad I am not back there! Â Jane H. From: birdcrazy624@... <birdcrazy624@...> Subject: re: Jane neck pain Date: Monday, August 31, 2009, 11:44 PM Â Jane, I was a nurse's aide before I became a nurse, so I did some heavy lifting. In the 70's we weren't shown good body mechanics, or allowed physical, or mechanical assistance to lift, & transfer patients. I transferred a 300 pound man to a chair by myself, & he had his arms around my neck. Even as a nurse on an orthopedic floor, I was body lifting patients myself, or with another nurse. or orderly. I feel that this lifting took a toll on my body. My MD did not want me to work in the hospital anymore lifting patients. I ended up working in nursing homes where the nurse's aides lifted the patients, usually with a mechanical lift. Now I lift heavy items as a cashier at Walmart, but I would say I rarely lift more than 30 pounds. Standing in one place is a killer, thank God we get breaks almost every 2 hours. Yes, I lost 2 jobs , because they felt I couldn't handle it physically, or emotionally. One of them gave me severance pay, & health insurance for 2 months. Chronic pain would effect anyone emotionally. I also have sleep apnea, & before I was diagnosed, I was falling asleep at work, & on the road. I was 1st diagnosed with DDD at 39 years old, & now I am 57 years old. I do enjoy reading now, watching TV, & using the computer. I use to feel guilty, & lazy doing these things, but now they help ease my pain. I feel as if I am retired, because I went from working 48- 56 hours a week to 30 hours a week. I was also working nights, & 12 hour shifts. My job is less stressful, & I actually get out on time. Everything happens for a reason. I try to remain upbeat. I have lost my career, home, & comfortable income. I am now living with my elderly mother, who I am most grateful for. June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Jane, I can bet working as a nurses aide started the wear, & tear in our spines. I was in denial about my back. I had moved, & had done a lot of lifting of boxes, & stair climbing, so I really thought my knee, & leg discomfort was a strain. When I 1st when to my orthopedic MD, he wasn't sure if my pain was related to my knee, & mentioned my back. I insisted that I never had problems with my back. When I started developing foot numbness, then I knew he was right, & my source of leg pain was my back. He had an MRI done, to confirm that I had DDD, & spinal stenosis. June In a message dated 8/31/2009 11:53:03 P.M. Eastern Daylight Time, borlan9191962@... writes: June, I remember those days as a nurses aide. My first 2 jobs were in a hospital and a nursing home. Lifting those patients was bad. As bad as things are now I am glad I am not back there! Jane H. From: _birdcrazy624@birdcra_ (mailto:birdcrazy624@...) <_birdcrazy624@birdcra_ (mailto:birdcrazy624@...) > Subject: [PainInTheNeck-Subject: [ _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Date: Monday, August 31, 2009, 11:44 PM Jane, I was a nurse's aide before I became a nurse, so I did some heavy lifting. In the 70's we weren't shown good body mechanics, or allowed physical, or mechanical assistance to lift, & transfer patients. I transferred a 300 pound man to a chair by myself, & he had his arms around my neck. Even as a nurse on an orthopedic floor, I was body lifting patients myself, or with another nurse. or orderly. I feel that this lifting took a toll on my body. My MD did not want me to work in the hospital anymore lifting patients. I ended up working in nursing homes where the nurse's aides lifted the patients, usually with a mechanical lift. Now I lift heavy items as a cashier at Walmart, but I would say I rarely lift more than 30 pounds. Standing in one place is a killer, thank God we get breaks almost every 2 hours. Yes, I lost 2 jobs , because they felt I couldn't handle it physically, or emotionally. One of them gave me severance pay, & health insurance for 2 months. Chronic pain would effect anyone emotionally. I also have sleep apnea, & before I was diagnosed, I was falling asleep at work, & on the road. I was 1st diagnosed with DDD at 39 years old, & now I am 57 years old. I do enjoy reading now, watching TV, & using the computer. I use to feel guilty, & lazy doing these things, but now they help ease my pain. I feel as if I am retired, because I went from working 48- 56 hours a week to 30 hours a week. I was also working nights, & 12 hour shifts. My job is less stressful, & I actually get out on time. Everything happens for a reason. I try to remain upbeat. I have lost my career, home, & comfortable income. I am now living with my elderly mother, who I am most grateful for. June [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 I may not agree that this country sucks but I will certainly agree that it is not treating you and others I am sure poorly... I am sorry for your circumstance.. hang in there Tom In a message dated 2/27/2010 9:11:53 P.M. Mountain Standard Time, i_ownaberner@... writes: Jane, I am not sure that you are aware....and I thought the same thing till I was granted benefits...from the date they call you disabled....call you disabled....<WBR>.which is 6 months after the last day you worked....then add 24 months....so i claim approved voila you already have medicare benefits which will back pay your medical. They really dont explaiu that and had gotten engaged because I thought my cobra insurance would run out.....I applied for the first time the end of February 2007 and before I had heard anything about my claim my fiance said uh, there is a whole lot of money in your account after he deposited a check for me......my backpay was deposited in less then 8 weeks after I applied. I applied on line....my date of onset of disability was august 05 (i waited to apply for SSD because i was in the process of a divorce and it would have been considered marital property) I didnt realize that my minor children were entitlted to benefits until I spoke with a woman on the internet.... I didnt realize that my minor children were entitlted I Obviously, your situation has been more difficult then mine related to the benefits. I am shocked that the GA doc could fire you....I would think that you would be covered by FMLA...so that you would have been entitled to std or ltd.... There was a member of another listserv telling members that they will have to go to all of these social security docs etc....I never had to see one of their docs....the fact of it is people that have cases where its not definitive..There was a member of another listserv telling members that they will have to go to all of these social security docs eTh As far as people dying before getting benefits....As far as people dying before getting benefits....<WBR>.SSA just added 32 diagnosis that with any of these diagnosis one will get immediate callAs far as people dying before getting benefits....<WBR>.SSA just added 32 diagnosis that with any of these diagnosis one will get immediate called compassionate care its listed under As far as SSI I have limited knowledge as I have never qualified for it.....I only have knowledge in dealing with patients applying for it...... My ex fiance's brother was a gaurd in colorado and was stabbed or something like that and ended up with hep c....and I became friend with a woman who was a police officer that had hep c...did the year of treatments and has completely recovered from the hep c but now has been diagnosed with MS....i know the treatment sucks.... Deb RN Debra ________________________________ From: Jane <_borlan9191962@borlan919_ (mailto:borlan9191962@...) > _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Sent: Sat, February 27, 2010 8:32:48 PM Subject: Re: [PainInTheNeck-Subject: Re: [PainI Deb, According to SS since my " lover " and I are not married so his income does not count against my getting SSI. It does though for foodstamps and a few other state programs.He is on disability himself,so no, even if we were to marry I would still not have healthcare. My last job was with the GA. Dept. of Corrections. As a condition of employment I had to be physically fit to retain the job. They were not in violation of the law. My understanding is not incorrect. I have been through this process with a former husband, my current " lover " and my mother, all of which I handled most of the correspondence between them and SS due to their poor health. I am more than familiar with how SS works. The form you spoke of has been completed as has a range of motion report done by a doctor that SS sent me too. Yes I agree the narrative from my doctor is not enough but it with all the other evidence is more than enough. I have read the SS's list of impairments and by their own admission I qualify for SSD with 3 firm impairments (muscoskeletal) not including several other impairments that are on the brink of qualifying. I have been through 10 months of a 12 month combination therapy for Hep C. It had to be stopped early because of a dangerous drop in white and red cells as well as elevated amonia, bilurubin, etc. According to the last blood work my liver was not any worse but no better than it was 3 years ago when I completed the treatment. I have known people with AIDS, terminal cancers, etc. who had lawyers and died before getting approved for SSD. Just because you meet their guidelines does not mean you will automatically be approved. They prolong this process in hopes that you will either die or have to take some form of work to afford food and other necessities. I will eventually get SSD but it will take a while longer to get it. After it is approved it will still be 24 months before I am able to get Medicare. Makes sense, why should a medically disabled person need immediate medical care anyway? In the process I will lose much of what I have amassed through my lifetime. I have already had to sell my jewelry and many of my collectibles and I am sure I will have to sell more before it is over. This is causing a strain in my relationship with my " lover " (the best man I have ever known), my family and my friends. I firmly stand by my earlier comment that this country sucks. I have worked since I was 16 years old and paid into SS out of every paycheck yet now that I need help it is not there. I had to rant a little too! Jane H. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > [Non-text portions of this message have been removed] > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > ------------ --------- --------- ------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 I may not agree that this country sucks but I will certainly agree that it is not treating you and others I am sure poorly... I am sorry for your circumstance.. hang in there Tom In a message dated 2/27/2010 9:11:53 P.M. Mountain Standard Time, i_ownaberner@... writes: Jane, I am not sure that you are aware....and I thought the same thing till I was granted benefits...from the date they call you disabled....call you disabled....<WBR>.which is 6 months after the last day you worked....then add 24 months....so i claim approved voila you already have medicare benefits which will back pay your medical. They really dont explaiu that and had gotten engaged because I thought my cobra insurance would run out.....I applied for the first time the end of February 2007 and before I had heard anything about my claim my fiance said uh, there is a whole lot of money in your account after he deposited a check for me......my backpay was deposited in less then 8 weeks after I applied. I applied on line....my date of onset of disability was august 05 (i waited to apply for SSD because i was in the process of a divorce and it would have been considered marital property) I didnt realize that my minor children were entitlted to benefits until I spoke with a woman on the internet.... I didnt realize that my minor children were entitlted I Obviously, your situation has been more difficult then mine related to the benefits. I am shocked that the GA doc could fire you....I would think that you would be covered by FMLA...so that you would have been entitled to std or ltd.... There was a member of another listserv telling members that they will have to go to all of these social security docs etc....I never had to see one of their docs....the fact of it is people that have cases where its not definitive..There was a member of another listserv telling members that they will have to go to all of these social security docs eTh As far as people dying before getting benefits....As far as people dying before getting benefits....<WBR>.SSA just added 32 diagnosis that with any of these diagnosis one will get immediate callAs far as people dying before getting benefits....<WBR>.SSA just added 32 diagnosis that with any of these diagnosis one will get immediate called compassionate care its listed under As far as SSI I have limited knowledge as I have never qualified for it.....I only have knowledge in dealing with patients applying for it...... My ex fiance's brother was a gaurd in colorado and was stabbed or something like that and ended up with hep c....and I became friend with a woman who was a police officer that had hep c...did the year of treatments and has completely recovered from the hep c but now has been diagnosed with MS....i know the treatment sucks.... Deb RN Debra ________________________________ From: Jane <_borlan9191962@borlan919_ (mailto:borlan9191962@...) > _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Sent: Sat, February 27, 2010 8:32:48 PM Subject: Re: [PainInTheNeck-Subject: Re: [PainI Deb, According to SS since my " lover " and I are not married so his income does not count against my getting SSI. It does though for foodstamps and a few other state programs.He is on disability himself,so no, even if we were to marry I would still not have healthcare. My last job was with the GA. Dept. of Corrections. As a condition of employment I had to be physically fit to retain the job. They were not in violation of the law. My understanding is not incorrect. I have been through this process with a former husband, my current " lover " and my mother, all of which I handled most of the correspondence between them and SS due to their poor health. I am more than familiar with how SS works. The form you spoke of has been completed as has a range of motion report done by a doctor that SS sent me too. Yes I agree the narrative from my doctor is not enough but it with all the other evidence is more than enough. I have read the SS's list of impairments and by their own admission I qualify for SSD with 3 firm impairments (muscoskeletal) not including several other impairments that are on the brink of qualifying. I have been through 10 months of a 12 month combination therapy for Hep C. It had to be stopped early because of a dangerous drop in white and red cells as well as elevated amonia, bilurubin, etc. According to the last blood work my liver was not any worse but no better than it was 3 years ago when I completed the treatment. I have known people with AIDS, terminal cancers, etc. who had lawyers and died before getting approved for SSD. Just because you meet their guidelines does not mean you will automatically be approved. They prolong this process in hopes that you will either die or have to take some form of work to afford food and other necessities. I will eventually get SSD but it will take a while longer to get it. After it is approved it will still be 24 months before I am able to get Medicare. Makes sense, why should a medically disabled person need immediate medical care anyway? In the process I will lose much of what I have amassed through my lifetime. I have already had to sell my jewelry and many of my collectibles and I am sure I will have to sell more before it is over. This is causing a strain in my relationship with my " lover " (the best man I have ever known), my family and my friends. I firmly stand by my earlier comment that this country sucks. I have worked since I was 16 years old and paid into SS out of every paycheck yet now that I need help it is not there. I had to rant a little too! Jane H. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > [Non-text portions of this message have been removed] > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > ------------ --------- --------- ------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Thanks Tom.  Jane H. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Thanks Tom.  Jane H. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2010 Report Share Posted June 20, 2010 Hi Jane Thank you. Im glad we all are willing to help each other. Thank you for the info too about attitude and juicing. I need to get pumped up sometimes too. love don in ks Don, The best giv-a shit happy pill you have is the will and determination to take care of yourself and prove to Marla that she made a huge mistake. I have liver damage, they say stage II, I have varicies and portal hypertension, enlarged spleen at 20cm. Gloria is right, I have had ultrasounds and CT scan, the CT was the one that picked up on everything and a follow up ultrasound with dopplers to determine the severity of the varices and portal hypertension. During that they found I had new veins forming on their to relieve some of the pressure. All of this scared the shit out of me and the hepc seemed minor. The pain and swelling was horrific and I can tolorate a lot of pain. When I found all this out I changed my diet and eating habits, I did so much research on all fruits and veggies and made a list of the ones that even came close to helping. I juice once a week and freeze in 20oz bottles and I drink at least 3 a day sometimes more. The juice will only keep its nutricinal value 4 hours in fridge, but for awhile frozen. Since I started this my pain level is now very low and my last ultrasound showed my spleen had acutally shrunk to 18.8cm, which the doc said would never happen and my swelling is minimal. My labs have even returned to normal, I had low RBC, WBC and Platelet's. If it wasn't for getting the WHOOP-ASS attitude in me I would still be lying around feeling sorry for myself ( because that is exactly what I was doing ) and slowly letting the hepc take over and control me, I would never have been able to start TX this week. No matter how bad this TX gets I will keep going, I refuse to go backwards. Don, joining this group has been one of my greatest blessing. You have given me so much great info, advice, encouragement and support ALL of you. I pray you find that WHOOP-ASS in you and Drink, drink, drink...LOL, and it wouldn't hurt to make some of that Juice, juice, juice!!! I feel every ounces of your pain just don't give into it and don't wait on the doc to feel your pain either. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 I have found that simplicity is the key. I have made cauliflower soup most of my life-always involved stock, onions, veggies, seasonings, etc. When faced with allergies, I decided I WOULD find a way to still enjoy cauliflower soup-and I did. Now, I make cauliflower soup by just steaming lightly sea salted cauli, then pureeing it in the Vitamix with just enough water or nut milk to thin it a bit, and adjusting the salt-nothing more (I do sometimes add homemade cheese, but I like the soup all on its own. If is thick, creamy, and unadulterated-absolutely delicious and every bit as satisfying as the multi ingredient soup I used to make. I find I really enjoy tasting single foods as opposed to ones with loads of ingredients that confuse each other.From: Kathleen <health@...>Subject: Jane Date: Saturday, June 18, 2011, 2:11 PM Thanks Jane. I'm looking forward to finding things I can eat that will taste good and use the vitamix to prepare. Your soup sounds delicious, unfortunately that's what keeps happening to me...I see something that I would enjoy but then find many of the ingredients I can't have right now. In your soup, I can't have the butternut squash, nor onions. I like all of those things. The interesting thing is that the majority of vegetables I can have don't appeal to me much ...but hoping I will find something that they taste good in. It certainly is a challenge, isn't it? The day after finding out about the sensitivites, I woke up and sat there and thought "I have no idea what to eat today. Kathleen Re: Intro and Seriously need help > Hi Kathleen: > > I am glad you posted to the group and hope that you can keep this topic > here > rather than privately because you are not the only one with food allergies > and I for one like to glean as much as I can. I am just like you finding > out I have food allergies, trying to food-combine and keep the > sugar-intake > down. One thing as you begin this is you will not do it perfectly but > begin > somewhere. The vitamix is a great tool, so you are on the road already > starting. > > One thing I began doing is making soup with the vegetables I could have. > Steaming butternut squash with an apple, onions, water and seasoning... > Great soup, and in the realm of what I can have. Food has to taste good > to > me....at least for now, while I am transitioning. > > My doctor reccomended xylitol for sweetener, and I have tried that with a > recipe on her for key-lime pie made with avocados...Turned out terriffic!! > So as you see recipes here...make minor change to them to fit the rules > you > have to follow. It then becomes fun to see that you really can make alot > of > things, but you got a jumping off point and idea board with this group. > > I will post so more recipes I found recently as well. But I understand > the > deer with the headlights. I think the first time I went grocery shopping > after finding all this out, I wanted to cry. But then I realized I was > paying the doctor for her help and I was going to do what she asked me to > do. It will get easier. I have started this new diet about 4 months ago, > and I am still learning and making changes. I am one who cannot do it > cold > turkey...but have made great strides since then. You will too. > > Hang in there!! > > Jane > > -- > Jane Recker > GreenRock Village Apartments > 700 Crossbow #101 > Green River, Wyoming 82935 > Phone 307-875-1616 > Fax 307-875-0208 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 I'm like brenda - I eat a lot of mono-ingredient meals. My lunch today wasn't mono, but it consisted of 3.75 oz. of lamb, Kale and Spinach (cooked with one slice of Maverick brand, preservative free, natural bacon) in water with a cube of Rapunzel brand vegetable bullion with Sea Salt.This is pretty much how I eat lately. Lean, organic meats and LOADS of cooked veggies (I even had steamed lima beans for breakfast today)I LOVE the cauliflower soup just like makes and I do the same thing with pumpkin, sweet potatoes, cooked collards, carrots, tomatoes, etc. You can take LOTS of individual veggies and with just a few spices or salt blend them into a wonderful, hot, creamy soup! Blessings,Lea Ann SavageSatellite Beach, FL(321) 773-7088 (home)(321-961-9219 (cell)))><'>www.VitamixLady.comwww..com<))>< On Jun 18, 2011, at 2:35 PM, Berry wrote: I have found that simplicity is the key. I have made cauliflower soup most of my life-always involved stock, onions, veggies, seasonings, etc. When faced with allergies, I decided I WOULD find a way to still enjoy cauliflower soup-and I did. Now, I make cauliflower soup by just steaming lightly sea salted cauli, then pureeing it in the Vitamix with just enough water or nut milk to thin it a bit, and adjusting the salt-nothing more (I do sometimes add homemade cheese, but I like the soup all on its own. If is thick, creamy, and unadulterated-absolutely delicious and every bit as satisfying as the multi ingredient soup I used to make. I find I really enjoy tasting single foods as opposed to ones with loads of ingredients that confuse each other.From: Kathleen <health@...>Subject: Jane Date: Saturday, June 18, 2011, 2:11 PM Thanks Jane. I'm looking forward to finding things I can eat that will taste good and use the vitamix to prepare. Your soup sounds delicious, unfortunately that's what keeps happening to me...I see something that I would enjoy but then find many of the ingredients I can't have right now. In your soup, I can't have the butternut squash, nor onions. I like all of those things. The interesting thing is that the majority of vegetables I can have don't appeal to me much ...but hoping I will find something that they taste good in. It certainly is a challenge, isn't it? The day after finding out about the sensitivites, I woke up and sat there and thought "I have no idea what to eat today. Kathleen Re: Intro and Seriously need help > Hi Kathleen: > > I am glad you posted to the group and hope that you can keep this topic > here > rather than privately because you are not the only one with food allergies > and I for one like to glean as much as I can. I am just like you finding > out I have food allergies, trying to food-combine and keep the > sugar-intake > down. One thing as you begin this is you will not do it perfectly but > begin > somewhere. The vitamix is a great tool, so you are on the road already > starting. > > One thing I began doing is making soup with the vegetables I could have. > Steaming butternut squash with an apple, onions, water and seasoning... > Great soup, and in the realm of what I can have. Food has to taste good > to > me....at least for now, while I am transitioning. > > My doctor reccomended xylitol for sweetener, and I have tried that with a > recipe on her for key-lime pie made with avocados...Turned out terriffic!! > So as you see recipes here...make minor change to them to fit the rules > you > have to follow. It then becomes fun to see that you really can make alot > of > things, but you got a jumping off point and idea board with this group. > > I will post so more recipes I found recently as well. But I understand > the > deer with the headlights. I think the first time I went grocery shopping > after finding all this out, I wanted to cry. But then I realized I was > paying the doctor for her help and I was going to do what she asked me to > do. It will get easier. I have started this new diet about 4 months ago, > and I am still learning and making changes. I am one who cannot do it > cold > turkey...but have made great strides since then. You will too. > > Hang in there!! > > Jane > > -- > Jane Recker > GreenRock Village Apartments > 700 Crossbow #101 > Green River, Wyoming 82935 > Phone 307-875-1616 > Fax 307-875-0208 > Quote Link to comment Share on other sites More sharing options...
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