Guest guest Posted April 5, 1999 Report Share Posted April 5, 1999 Aloha, Everyone! I've been lurking for awhile, but have missed several lists due to family difficulties, etc. I am wondering about the Kutapressin " cocktails " and $80.00 injections. As I've mentioned before, I use Kutapressin --only 1cc per day. I can't afford the 2cc's that Cheney recommended. I give myself the injection and it isn't mixed with anything else. Sorry to ask you all to repeat this, but what is the mixture and does it really work better than straight Kutapressin? One vial of it, which lasts about 3 weeks, costs me $150.00 here--$40.00 more than in California, where I used to live. I save money if I order it through the AARP pharmacy, though, but delivery is slow. Also, I have been taking the stuff for over a year. I didn't know whether it was helping, so I went off it for a month and seemed to get worse, so I started back with it. It has only been two weeks, so I don't know yet if it's helping. Seem to have more pain, especially leg pain, without it. I'm going tomorrow to see my local Dr. and discuss taking oral alpha interferon. He isn't familiar with its use for CFIDS, but promises me he'll research it. My NK cell count is low--or was, a year or so ago. But I feel it's worth a try. I';m so happy for and the others who've had a good response from it. I found Clements comments about having a life very interesting and moving, as well. I'm 50 and have been ill for 23 years, but really ill for 12 years, and unable to work for 7 years. (Even though I have NMH I am no longer bedridden and can usually sit up for hours at a time. Walking around a lot, however, is an unpredictable thing--sometimes i can, sometimes I can't.) I already dye my hair (even if it might be bad for me--who knows?), because I hate the idea of getting old without having been middle-aged.I was very lucky to have my youth, I know. Anyway, I've wondered, too, what I'll do when I'm well, or almost well. Even though I had a very good life until I was in my late 30s, I am now much older and very different, I think, because of the experience of chronic illness. My values have in some ways changed, and some things just aren't nearly as important. sometimes I think it will be enough just to feel GOOD again, and go back to ANY kind of job. At other times, I want to be able to do all the things I ever longed to do, as well as so many other things. Climb mountains, scuba dive, paint, travel anywhere i want, have a real career again, etc. I agree that the prospect of recovery is a scary one. On occasion I think, " What if I get well, but I'm 75 years old and feel great but only have, say, 5 years left to live? " Crazy thoughts, but many of us have the feeling that we've lost so much time. maybe we've gained other things, but the time can't be reclaimed. I hope this isn't negative-sounding. I don't feel that way. There are just so many thoughts... Sorry for rambling on this way. All of you are such an encouragement. I pray for everyone everyday and try to remember the children with this illness especially. Love and peace, Teeza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 1999 Report Share Posted September 26, 1999 Rick send me your address so I can send you $4 --- when does the subscription start? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2000 Report Share Posted March 12, 2000 Please change my email address to heathabatherapis@.... Please discontinue sending it to lawladies@.... Thank you. onelist wrote: > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2121/1/_/659983/_/952683048/ > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 In a message dated 4/8/00 12:10:38 AM Pacific Daylight Time, egroups writes: << Please email me your old post. Thanks very much. >> This goes for me, too! I would love to have it too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2000 Report Share Posted April 9, 2000 Thanks duffy48 for the 18 tips. Sorry I don't know your first name. I just haven't been connected for long enough yet. This chart line is so exciting. My son is older but I want to try adapting the floor time idea for adults with serious communication challenges Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Patty, I fight the Silicone Issues and it does not affect my family one bit...other than when they are interested in what is going on...they are never neglected because of my wish to fight big greedy corporations that have harmed me and my daughter. I guess I will do so on another forum since this one is strictly for healing ideas. I don't see how you can separate the two. I can't. I have to warn the next generation of women about the horrors of all implants in a forum such as this when they come in here asking about the safety of implants. There have been several posts with new ladies coming in here and asking what the dangers of saline implants are. So...right there...if you warn them, you are fighting the manufacturers and the FDA's faulty decision to keep saline implants on the market. Because they are on the market now, doesn't mean that they won't take them off of the market in the future. As a matter of fact, once this next generation begins to fall ill, they will have no alternative but to remove them from the market. My fight is not with you. You are my sister in this mess, and I will not fight you. If you don't want me to post my true feelings on this board, then I don't need to be here. If you want to silence me...I am sorry, but I won't be silenced. My fight is not only for myself--my fight is for you and everyother woman in this mess and the hoards to come. Perhaps you should edit your description to reflect that this board will not tolerate any discussion about anything other than healing ideas. Period. No discussion about the other controversies surrounding this issue. Nothing about Dow, the pending cases, what they have done and continue to get away with....nothing other than healing. If you can separate them....To me it all goes together.... Lany SBIPrayerForum Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Hi all Does any one have a nice or not so nice way to tell ppl to stay away from you if they are sick? I have been fighting a cold now for a week and i can't seem to get over it. Guess i need to hand a sign on the door saying NO GERMS ALLOWED!!! lol But something needs to give i start treatment soon and i know it will be worse then. Have a good day all Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Terri I know how you feel. When I first found out I had Hep C I wanted to lock myself up in a room and pretend no one needed to know... I was embrassed.......Now when I hear someone sneeze or know they have a bug I just look and laugh and say I sure hope I don't get it cause my immune system really sucks and if I get a bug it's like 10 times worse on me.........They don't need to know everything.................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Dave while you have been on TX has it effected your nerves.........Mine seem shot all to hell lately. Sure the family thing doesn't help but I can remember before ever getting on TX I seemed to handle things so much better. Please let me know ok........... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Dave the other day I dropped a bag of sugar and of course it broke.......instead of me being me and cursing and wanting to throw it across the room I cried like a damn baby.......that is not me......I wouldn't be letting my family get to me like they are doing either.......I would have already done them something but I am going according to the law Dave. I don't take a step withouot knowing my rights first......then I am accused of bothering someone that has something that isn't hers....How can she wear an 11yr. olds clothes????What good will Kristy's adoption papers and SS# and birthcertificate do her since I now have complete legal custody and guardianship of her..Sorry so long bue see what I mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 That's a tough one. It's a fine line, because many people want us to stay away from them because we are sick, not realizing that we are not contagious under normal social interaction. You might mention that you are more susceptible to colds/flu without directing it personally to them. -dz- > Hi all > Does any one have a nice or not so nice way to > tell ppl to stay away > from you if they are sick? I have been fighting a > cold now for a week > and i can't seem to get over it. Guess i need to > hand a sign on the door > saying NO GERMS ALLOWED!!! lol But something needs > to give i start > treatment soon and i know it will be worse then. > Have a good day all > Terri > > __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews./fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Hi Terri, I have a way of telling people.... I just come right out and tell them not to come near me if they are sick.... Tell them that you have a low immune system and it takes you forever to get over something that would be out of their systems in a day.... In other words just tell them that if they are sick , that you would very much appreciate it if they just called instead of coming by...... You can't take the chance of stressing your liver worse than it is.... Angel Hugs, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Anxiety is a common side effect. It seems to me that while many of the sides affect some and not others, this one seems almost without exception. It is compounded with the problems we all experience in day to day living. I notice that my temper is shorter, I have barked at my wife and son over things I would have taken in stride before I started this tx. I hope your family troubles will work themselves out. Good luck. -dz- --- Jannewilms42@... wrote: > Dave while you have been on TX has it effected your > nerves.........Mine seem > shot all to hell lately. Sure the family thing > doesn't help but I can > remember before ever getting on TX I seemed to > handle things so much better. > Please let me know ok........... > __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews./fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 I do have a journal but it seems I don't get the chance to write each day even though I do try. Thanks for the message. Now I don't feel so alone with this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Hi Jan Dave is right on. When I was on combo I was not a nice person and I knew it so I stayed away. Don't blame yourself for anything. Don't take on their attitudes. I had to find things just for me that I liked. No question, it gets scary at times, lonely, and no fun. Do things you enjoy - some of mine were: ice cream, getting out in the woods, reading, and plunking on the banjo. I spent a lot of time on this message board and got a lot of comfort here. I also kept a daily journal and recorded shots, how I felt, etc. Try meditation for your nerves, it should help. Love yourself ! You are a good person and don't forget it. Dennis from NH Re: [ ] Digest Number 107 Dave while you have been on TX has it effected your nerves.........Mine seem shot all to hell lately. Sure the family thing doesn't help but I can remember before ever getting on TX I seemed to handle things so much better. Please let me know ok........... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 , It is just so aggrevating knowing she has things that are of no use to her........She kept her clothes until I had to go with the authorities.......Boy talk about irritable. That's me today.....I can't even spell right this morning....It is the morning after though.......After a shot..last thing I like to do first thing in the morning is make a major decision........Hubby tried....didn't work today. Let me wake up and catch that ole brain of mine first. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Hi Jan Try not to let things get to you. I know that while on the treatments it isn't easy though. The last couple of weeks I have been a little irritable myself. You can always get a copy of the birth certificate. I think all states have some kind of fee for this though. The social security office should be able to issue a duplicate card also. Hang in their. Re: [ ] Digest Number 107 Dave the other day I dropped a bag of sugar and of course it broke.......instead of me being me and cursing and wanting to throw it across the room I cried like a damn baby.......that is not me......I wouldn't be letting my family get to me like they are doing either.......I would have already done them something but I am going according to the law Dave. I don't take a step withouot knowing my rights first......then I am accused of bothering someone that has something that isn't hers....How can she wear an 11yr. olds clothes????What good will Kristy's adoption papers and SS# and birthcertificate do her since I now have complete legal custody and guardianship of her..Sorry so long bue see what I mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 You can only hold so much stress and frustration before the floodgates open. It's good to get it out. It's too bad when family members have to resort to legal measures. I guess if people don't listen to reason, that is our only recourse. Hang in there, better days are coming. We don't yet know when.. -dz- --- Jannewilms42@... wrote: > Dave the other day I dropped a bag of sugar and of > course it > broke.......instead of me being me and cursing and > wanting to throw it across > the room I cried like a damn baby.......that is not > me......I wouldn't be > letting my family get to me like they are doing > either.......I would have > already done them something but I am going according > to the law Dave. I don't > take a step withouot knowing my rights > first......then I am accused of > bothering someone that has something that isn't > hers....How can she wear an > 11yr. olds clothes????What good will Kristy's > adoption papers and SS# and > birthcertificate do her since I now have complete > legal custody and > guardianship of her..Sorry so long bue see what I > mean? > __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews./fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Dennis, Good message. I have found solace in many more solitary activities also. So you plunk the banjo? I should get the sheet music to dueling banjos (which was actually a guitar and a banjo). That would be fun. I'm not that good at fingerpicking, though. I had to give up my lessons for monetary reasons (besides the fact that I was too tired after work to go). I am taking the time to perfect what I do know, it's pretty good therapy for me, though I'm not sure my wife always appreciates it... -dz- --- Dennis <dhuber@...> wrote: > Hi Jan > > Dave is right on. When I was on combo I was not a > nice person and I knew it so I stayed away. Don't > blame yourself for anything. Don't take on their > attitudes. I had to find things just for me that I > liked. No question, it gets scary at times, lonely, > and no fun. Do things you enjoy - some of mine > were: ice cream, getting out in the woods, reading, > and plunking on the banjo. I spent a lot of time on > this message board and got a lot of comfort here. > I also kept a daily journal and recorded shots, how > I felt, etc. Try meditation for your nerves, it > should help. > Love yourself ! You are a good person and don't > forget it. > > Dennis from NH > > > Re: [ ] Digest Number > 107 > > > Dave while you have been on TX has it effected > your nerves.........Mine seem shot all to hell > lately. Sure the family thing doesn't help but I can > remember before ever getting on TX I seemed to > handle things so much better. Please let me know > ok........... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 I have always wanted to journal, too. I have started many times, but I never stick with it too long. I wanted to journal my tx for the benefit of others, but I kind of let it go after a few weeks. -dz- --- Jannewilms42@... wrote: > I do have a journal but it seems I don't get the > chance to write each day > even though I do try. Thanks for the message. Now I > don't feel so alone with > this. > __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews./fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 hahaha..I remember when my first hubby played the guitar......OMG...I was miserable....Bet ya this one don't play any instrument!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Dave I could keep up with the first part of Dueling Banjos where it is REAL SLOW but I don't play fast - and most banjo is 4 fingers flying. It has been a few years since I have done anything with it. I should make it a project for the winter. Those blue grass guys are so neat. I will send you a web site address where you can get tablature for your gitfiddle. >I'm not sure my wife always appreciates it... < I've found it helps to play in the garage. :-) Dennis Re: [ ] Digest Number > > 107 > > > > > > Dave while you have been on TX has it effected > > your nerves.........Mine seem shot all to hell > > lately. Sure the family thing doesn't help but I can > > remember before ever getting on TX I seemed to > > handle things so much better. Please let me know > > ok........... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Hey -dz- Where's the song?????????? Hi everyone. I hope you are all well and doing fine!!!! Jan I have the allergies also and I'm not on treatment! It gets worse every year.... Allergies and sinus' none stop!!!! Hang in there Jan.... Things will fall into place...... I can just picture Dennis plucking the bango and -dz- picking his heart out on the guitar!!!! Would make me sit up and pay attention...... Might be fun... ;o Angel Hugs, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 Hey Diane while they would be playing you and I could be tapping our feet...Yee Haw!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 Once they hear this voice they'd run for their lives and give up playing.....lol Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.