Re: Digest Number 107

[Guest guest]

Aloha, Everyone!

I've been lurking for awhile, but have missed several lists due to family

difficulties, etc.

I am wondering about the Kutapressin " cocktails " and $80.00 injections. As

I've mentioned before, I use Kutapressin --only 1cc per day. I can't

afford the 2cc's that Cheney recommended. I give myself the injection and

it isn't mixed with anything else. Sorry to ask you all to repeat this,

but what is the mixture and does it really work better than straight

Kutapressin? One vial of it, which lasts about 3 weeks, costs me $150.00

here--$40.00 more than in California, where I used to live. I save money if

I order it through the AARP pharmacy, though, but delivery is slow.

Also, I have been taking the stuff for over a year. I didn't know whether

it was helping, so I went off it for a month and seemed to get worse, so I

started back with it. It has only been two weeks, so I don't know yet if

it's helping. Seem to have more pain, especially leg pain, without it.

I'm going tomorrow to see my local Dr. and discuss taking oral alpha

interferon. He isn't familiar with its use for CFIDS, but promises me

he'll research it. My NK cell count is low--or was, a year or so ago. But

I feel it's worth a try. I';m so happy for and the others who've had

a good response from it.

I found Clements comments about having a life very interesting and

moving, as well. I'm 50 and have been ill for 23 years, but really ill for

12 years, and unable to work for 7 years. (Even though I have NMH I am no

longer bedridden and can usually sit up for hours at a time. Walking

around a lot, however, is an unpredictable thing--sometimes i can,

sometimes I can't.) I already dye my hair (even if it might be bad for

me--who knows?), because I hate the idea of getting old without having been

middle-aged.I was very lucky to have my youth, I know.

Anyway, I've wondered, too, what I'll do when I'm well, or almost well.

Even though I had a very good life until I was in my late 30s, I am now

much older and very different, I think, because of the experience of

chronic illness. My values have in some ways changed, and some things just

aren't nearly as important. sometimes I think it will be enough just to

feel GOOD again, and go back to ANY kind of job. At other times, I want to

be able to do all the things I ever longed to do, as well as so many other

things. Climb mountains, scuba dive, paint, travel anywhere i want, have a

real career again, etc. I agree that the prospect of recovery is a scary

one.

On occasion I think, " What if I get well, but I'm 75 years old and feel

great but only have, say, 5 years left to live? " Crazy thoughts, but many

of us have the feeling that we've lost so much time. maybe we've gained

other things, but the time can't be reclaimed. I hope this isn't

negative-sounding. I don't feel that way. There are just so many

thoughts...

Sorry for rambling on this way. All of you are such an encouragement. I

pray for everyone everyday and try to remember the children with this

illness especially.

Love and peace,

Teeza

[Guest guest]

Rick

send me your address so I can send you $4 --- when does the subscription

start? Thanks

[Guest guest]

Please change my email address to heathabatherapis@.... Please

discontinue sending it to lawladies@.... Thank you.

onelist wrote:

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[Guest guest]

In a message dated 4/8/00 12:10:38 AM Pacific Daylight Time,

egroups writes:

<< Please email me your old post. Thanks very much.

>>

This goes for me, too! I would love to have it too!

[Guest guest]

Thanks duffy48 for the 18 tips. Sorry I don't know your first name. I just

haven't been connected for long enough yet. This chart line is so exciting. My

son is older but I want to try adapting the floor time idea for adults with

serious communication challenges

[Guest guest]

Patty,

I fight the Silicone Issues and it does not affect my family one

bit...other than when they are interested in what is going on...they are

never neglected because of my wish to fight big greedy corporations that

have harmed me and my daughter. I guess I will do so on another forum

since this one is strictly for healing ideas. I don't see how you can

separate the two. I can't. I have to warn the next generation of women

about the horrors of all implants in a forum such as this when they come

in here asking about the safety of implants. There have been several

posts with new ladies coming in here and asking what the dangers of

saline implants are. So...right there...if you warn them, you are

fighting the manufacturers and the FDA's faulty decision to keep saline

implants on the market. Because they are on the market now, doesn't

mean that they won't take them off of the market in the future. As a

matter of fact, once this next generation begins to fall ill, they will

have no alternative but to remove them from the market. My fight is not

with you. You are my sister in this mess, and I will not fight you. If

you don't want me to post my true feelings on this board, then I don't

need to be here. If you want to silence me...I am sorry, but I won't be

silenced. My fight is not only for myself--my fight is for you and

everyother woman in this mess and the hoards to come. Perhaps you

should edit your description to reflect that this board will not

tolerate any discussion about anything other than healing ideas.

Period. No discussion about the other controversies surrounding this

issue. Nothing about Dow, the pending cases, what they have done and

continue to get away with....nothing other than healing. If you can

separate them....To me it all goes together....

Lany

SBIPrayerForum

[Guest guest]

Hi all

Does any one have a nice or not so nice way to tell ppl to stay away

from you if they are sick? I have been fighting a cold now for a week

and i can't seem to get over it. Guess i need to hand a sign on the door

saying NO GERMS ALLOWED!!! lol But something needs to give i start

treatment soon and i know it will be worse then. Have a good day all

Terri

[Guest guest]

Terri I know how you feel. When I first found out I had Hep C I wanted to lock myself up in a room and pretend no one needed to know... I was embrassed.......Now when I hear someone sneeze or know they have a bug I just look and laugh and say I sure hope I don't get it cause my immune system really sucks and if I get a bug it's like 10 times worse on me.........They don't need to know everything..................

[Guest guest]

Dave while you have been on TX has it effected your nerves.........Mine seem shot all to hell lately. Sure the family thing doesn't help but I can remember before ever getting on TX I seemed to handle things so much better. Please let me know ok...........

[Guest guest]

Dave the other day I dropped a bag of sugar and of course it broke.......instead of me being me and cursing and wanting to throw it across the room I cried like a damn baby.......that is not me......I wouldn't be letting my family get to me like they are doing either.......I would have already done them something but I am going according to the law Dave. I don't take a step withouot knowing my rights first......then I am accused of bothering someone that has something that isn't hers....How can she wear an 11yr. olds clothes????What good will Kristy's adoption papers and SS# and birthcertificate do her since I now have complete legal custody and guardianship of her..Sorry so long bue see what I mean?

[Guest guest]

That's a tough one. It's a fine line, because many

people want us to stay away from them because we are

sick, not realizing that we are not contagious under

normal social interaction. You might mention that you

are more susceptible to colds/flu without directing it

personally to them. -dz-

> Hi all

> Does any one have a nice or not so nice way to

> tell ppl to stay away

> from you if they are sick? I have been fighting a

> cold now for a week

> and i can't seem to get over it. Guess i need to

> hand a sign on the door

> saying NO GERMS ALLOWED!!! lol But something needs

> to give i start

> treatment soon and i know it will be worse then.

> Have a good day all

> Terri

>

>

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[Guest guest]

Hi Terri,

I have a way of telling people.... I just come right out and tell

them not to come near me if they are sick.... Tell them that you have a

low immune system and it takes you forever to get over something that

would be out of their systems in a day.... In other words just tell them

that if they are sick , that you would very much appreciate it if they

just called instead of coming by...... You can't take the chance of

stressing your liver worse than it is....

Angel Hugs,

Diane

[Guest guest]

Anxiety is a common side effect. It seems to me that

while many of the sides affect some and not others,

this one seems almost without exception. It is

compounded with the problems we all experience in day

to day living. I notice that my temper is shorter, I

have barked at my wife and son over things I would

have taken in stride before I started this tx. I hope

your family troubles will work themselves out. Good

luck. -dz-

--- Jannewilms42@... wrote:

> Dave while you have been on TX has it effected your

> nerves.........Mine seem

> shot all to hell lately. Sure the family thing

> doesn't help but I can

> remember before ever getting on TX I seemed to

> handle things so much better.

> Please let me know ok...........

>

__________________________________________________

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[Guest guest]

I do have a journal but it seems I don't get the chance to write each day even though I do try. Thanks for the message. Now I don't feel so alone with this.

[Guest guest]

Hi Jan

Dave is right on. When I was on combo I was not a nice person and I knew it so I stayed away. Don't blame yourself for anything. Don't take on their attitudes. I had to find things just for me that I liked. No question, it gets scary at times, lonely, and no fun. Do things you enjoy - some of mine were: ice cream, getting out in the woods, reading, and plunking on the banjo. I spent a lot of time on this message board and got a lot of comfort here. I also kept a daily journal and recorded shots, how I felt, etc. Try meditation for your nerves, it should help.

Love yourself ! You are a good person and don't forget it.

Dennis from NH

Re: [ ] Digest Number 107

Dave while you have been on TX has it effected your nerves.........Mine seem shot all to hell lately. Sure the family thing doesn't help but I can remember before ever getting on TX I seemed to handle things so much better. Please let me know ok...........

[Guest guest]

,

It is just so aggrevating knowing she has things that are of no use to her........She kept her clothes until I had to go with the authorities.......Boy talk about irritable. That's me today.....I can't even spell right this morning....It is the morning after though.......After a shot..last thing I like to do first thing in the morning is make a major decision........Hubby tried....didn't work today. Let me wake up and catch that ole brain of mine first.

[Guest guest]

Hi Jan

Try not to let things get to you. I know that while on the treatments it isn't easy though. The last couple of weeks I have been a little irritable myself.

You can always get a copy of the birth certificate. I think all states have some kind of fee for this though. The social security office should be able to issue a duplicate card also.

Hang in their.

Re: [ ] Digest Number 107

Dave the other day I dropped a bag of sugar and of course it broke.......instead of me being me and cursing and wanting to throw it across the room I cried like a damn baby.......that is not me......I wouldn't be letting my family get to me like they are doing either.......I would have already done them something but I am going according to the law Dave. I don't take a step withouot knowing my rights first......then I am accused of bothering someone that has something that isn't hers....How can she wear an 11yr. olds clothes????What good will Kristy's adoption papers and SS# and birthcertificate do her since I now have complete legal custody and guardianship of her..Sorry so long bue see what I mean?

[Guest guest]

You can only hold so much stress and frustration

before the floodgates open. It's good to get it out.

It's too bad when family members have to resort to

legal measures. I guess if people don't listen to

reason, that is our only recourse. Hang in there,

better days are coming. We don't yet know when..

-dz-

--- Jannewilms42@... wrote:

> Dave the other day I dropped a bag of sugar and of

> course it

> broke.......instead of me being me and cursing and

> wanting to throw it across

> the room I cried like a damn baby.......that is not

> me......I wouldn't be

> letting my family get to me like they are doing

> either.......I would have

> already done them something but I am going according

> to the law Dave. I don't

> take a step withouot knowing my rights

> first......then I am accused of

> bothering someone that has something that isn't

> hers....How can she wear an

> 11yr. olds clothes????What good will Kristy's

> adoption papers and SS# and

> birthcertificate do her since I now have complete

> legal custody and

> guardianship of her..Sorry so long bue see what I

> mean?

>

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[Guest guest]

Dennis, Good message. I have found solace in many more

solitary activities also. So you plunk the banjo? I

should get the sheet music to dueling banjos (which

was actually a guitar and a banjo). That would be fun.

I'm not that good at fingerpicking, though. I had to

give up my lessons for monetary reasons (besides the

fact that I was too tired after work to go). I am

taking the time to perfect what I do know, it's pretty

good therapy for me, though I'm not sure my wife

always appreciates it... -dz-

--- Dennis <dhuber@...> wrote:

> Hi Jan

>

> Dave is right on. When I was on combo I was not a

> nice person and I knew it so I stayed away. Don't

> blame yourself for anything. Don't take on their

> attitudes. I had to find things just for me that I

> liked. No question, it gets scary at times, lonely,

> and no fun. Do things you enjoy - some of mine

> were: ice cream, getting out in the woods, reading,

> and plunking on the banjo. I spent a lot of time on

> this message board and got a lot of comfort here.

> I also kept a daily journal and recorded shots, how

> I felt, etc. Try meditation for your nerves, it

> should help.

> Love yourself ! You are a good person and don't

> forget it.

>

> Dennis from NH

>

>

> Re: [ ] Digest Number

> 107

>

>

> Dave while you have been on TX has it effected

> your nerves.........Mine seem shot all to hell

> lately. Sure the family thing doesn't help but I can

> remember before ever getting on TX I seemed to

> handle things so much better. Please let me know

> ok...........

>

[Guest guest]

I have always wanted to journal, too. I have started

many times, but I never stick with it too long. I

wanted to journal my tx for the benefit of others, but

I kind of let it go after a few weeks. -dz-

--- Jannewilms42@... wrote:

> I do have a journal but it seems I don't get the

> chance to write each day

> even though I do try. Thanks for the message. Now I

> don't feel so alone with

> this.

>

__________________________________________________

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http://dailynews./fc/US/Emergency_Information/

[Guest guest]

hahaha..I remember when my first hubby played the guitar......OMG...I was miserable....Bet ya this one don't play any instrument!!!!!!!!

[Guest guest]

Dave

I could keep up with the first part of Dueling Banjos where it is REAL SLOW

but I don't play fast - and most banjo is 4 fingers flying. It has been a

few years since I have done anything with it. I should make it a project

for the winter. Those blue grass guys are so neat. I will send you a web

site address where you can get tablature for your gitfiddle.

>I'm not sure my wife always appreciates it... < I've found it helps

to play in the garage. :-)

Dennis

Re: [ ] Digest Number

> > 107

> >

> >

> > Dave while you have been on TX has it effected

> > your nerves.........Mine seem shot all to hell

> > lately. Sure the family thing doesn't help but I can

> > remember before ever getting on TX I seemed to

> > handle things so much better. Please let me know

> > ok...........

> >

[Guest guest]

Hey -dz-

Where's the song?????????? Hi everyone. I hope you are all well and

doing fine!!!!

Jan I have the allergies also and I'm not on treatment! It gets worse

every year.... Allergies and sinus' none stop!!!! Hang in there Jan....

Things will fall into place...... I can just picture Dennis plucking the

bango and -dz- picking his heart out on the guitar!!!! Would make me

sit up and pay attention...... Might be fun... ;o

Angel Hugs,

Diane

[Guest guest]

Hey Diane while they would be playing you and I could be tapping our feet...Yee Haw!!!!!!!!

[Guest guest]

Once they hear this voice they'd run for their lives and give up playing.....lol