Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Hi Ruth.. I haven't posted in awhile but your note caught my eye. My daughter Clare is almost 15 and has had psoriatic arthritis for the last 3 years. I would be more than happy to talk about our journey through the diagnosis to the different meds that she is currently on. This is a hard road and like your daughter, there were not alot of signs/symptoms that made it a definite diagnosis. I am sorry that you are on this road but happy that you found the group. You will find lots of love and care here and great information. PLease feel free to email me at : murphyrose@... and I can give you more details about our situation. Best of luck to you and your family. (Clare 15 psoriatic) > > Hello, I posted yesterday, but it must have gotten lost in the ether. > Probably it will show up about the same time as this one. LOL > > We are in the process of seeking a diagnosis for my thirteen year old > daughter. About three months ago, I was trying to help her learn to > type with the correct fingering when I realized that she had very > limited flexibility. When she held her hands out, she could not > straighten some of her fingers. > > She has psoriasis, so the probable diagnosis will be psoriatic > arthritis. Our only leads are a positive ANA and slightly high > thyroid. X-rays were negative. I thought at first that meant she > didn't have arthritis, but apparently that's not the case. She is > having more blood work taken the first of next week which hopefully > will give us some more information. > > I just wanted to introduce myself to the group. I will probably have > lots of questions later on, but right now I know so little I don't > know what to ask. > > Ruth in TN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Wow, this is the first post I wrote. I knew it would show up sooner or later. LOL! Ruth in TN > > Hello, I joined about a month ago, but have not posted as yet. We are > now in the process of clarifying a diagnosis for my 13 year old > daughter. About three months ago, I noticed that the flexibility in > her fingers was limited and that several of them were noticeably > twisted. From her blood tests, she does not appear to have rheumatoid > arthritis. X-rays were also negative. I thought at first that this > meant she did not have arthritis at all. She saw a dermatologist today > who said she definitely has psoriasis as well as some type of > arthritis. Because of the skin rash, he is leaning towards psoriatic > arthritis. She had high ANA as well as high thyroid on her blood > tests. These are being redone next week with some additional > screenings to help us focus in on the cause of her problems and what > we need to do to treat them. > > Thanks for letting me join! > > Ruth in TN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Welcome Ruth. There are a few people here whose kids have psoriatic arthritis. You have come to a place of great support and info. FYI- one thing to remember, there is no blood test to detect jra, unfortunately. The diagnosis is made by symptoms. Blood work can check levels of inflammation, reactions to meds, things like that, but there is no way to say yes or no to jra by the blood work. Not sure if anyone mentioned it, but you should have her eyes checked as well. There is a form of arthritis, uveitis, which can affect the eyes. It is best to have them checked periodically to make sure there is no inflammation there. It is done with a slit lamp test. Again, welcome to the group. Let us know how things are going when you can, Michele ( 21, spondy) ________________________________ From: [mailto: ] On Behalf Of Ruth Sent: Tuesday, November 18, 2008 12:32 PM Subject: New Member Hello, I joined about a month ago, but have not posted as yet. We are now in the process of clarifying a diagnosis for my 13 year old daughter. About three months ago, I noticed that the flexibility in her fingers was limited and that several of them were noticeably twisted. From her blood tests, she does not appear to have rheumatoid arthritis. X-rays were also negative. I thought at first that this meant she did not have arthritis at all. She saw a dermatologist today who said she definitely has psoriasis as well as some type of arthritis. Because of the skin rash, he is leaning towards psoriatic arthritis. She had high ANA as well as high thyroid on her blood tests. These are being redone next week with some additional screenings to help us focus in on the cause of her problems and what we need to do to treat them. Thanks for letting me join! Ruth in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Thanks Michele, She did have the slit lamp test done. Her eyes are inflammation free. Thankfully! Her eye doctor said she would need to have them checked every six months. I am already convinced of the great support here. I hope I can be as helpful to others in the future. Ruth in TN Not sure if anyone > mentioned it, but you should have her eyes checked as well. There is a > form of arthritis, uveitis, which can affect the eyes. It is best to > have them checked periodically to make sure there is no inflammation > there. It is done with a slit lamp test. > Again, welcome to the group. Let us know how things are going when you > can, Michele ( 21, spondy) > > > > > > > > ________________________________ > > From: [mailto: ] On > Behalf Of Ruth > Sent: Tuesday, November 18, 2008 12:32 PM > > Subject: New Member > > > > Hello, I joined about a month ago, but have not posted as yet. We are > now in the process of clarifying a diagnosis for my 13 year old > daughter. About three months ago, I noticed that the flexibility in > her fingers was limited and that several of them were noticeably > twisted. From her blood tests, she does not appear to have rheumatoid > arthritis. X-rays were also negative. I thought at first that this > meant she did not have arthritis at all. She saw a dermatologist today > who said she definitely has psoriasis as well as some type of > arthritis. Because of the skin rash, he is leaning towards psoriatic > arthritis. She had high ANA as well as high thyroid on her blood > tests. These are being redone next week with some additional > screenings to help us focus in on the cause of her problems and what > we need to do to treat them. > > Thanks for letting me join! > > Ruth in TN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Welcome Ruth! My son Grant also has psoriatic. He was dx about a year and a 1/2 ago. He is being treated with MTX and ever since we started the MTX 1 year ago he hasn't had any psoriasis. We were just at both doc's yesterday and he is currently free of all inflammation in joints and eye's. We are very excited about this. When we were going through the diagnosing stage, our rheumy wasn't that concerned about the blood tests or even whether it was psoriatic or rheumatoid since they are both treated the same. But since Grant had already been dx with psoriasis he dx him as psoriatic. & Grant (11, PsA/Uveitis) > > > > Hello, I joined about a month ago, but have not posted as yet. We are > > now in the process of clarifying a diagnosis for my 13 year old > > daughter. About three months ago, I noticed that the flexibility in > > her fingers was limited and that several of them were noticeably > > twisted. From her blood tests, she does not appear to have rheumatoid > > arthritis. X-rays were also negative. I thought at first that this > > meant she did not have arthritis at all. She saw a dermatologist today > > who said she definitely has psoriasis as well as some type of > > arthritis. Because of the skin rash, he is leaning towards psoriatic > > arthritis. She had high ANA as well as high thyroid on her blood > > tests. These are being redone next week with some additional > > screenings to help us focus in on the cause of her problems and what > > we need to do to treat them. > > > > Thanks for letting me join! > > > > Ruth in TN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Hi , Reading of your experience makes me wonder if I need to just have my pediatrician go ahead and do a referral. We have gotten several bits of information, but no diagnosis on what's going on with her fingers which is what I was initially concerned about. We did find out she had hypothroidism and Sjogrens. She is taking medication for the thyroid as well as a psoriasis creme. Thanks for the welcome! Ruth in TN > > Welcome Ruth! My son Grant also has psoriatic. He was dx about a > year and a 1/2 ago. He is being treated with MTX and ever since we > started the MTX 1 year ago he hasn't had any psoriasis. We were > just at both doc's yesterday and he is currently free of all > inflammation in joints and eye's. We are very excited about this. > When we were going through the diagnosing stage, our rheumy wasn't > that concerned about the blood tests or even whether it was > psoriatic or rheumatoid since they are both treated the same. But > since Grant had already been dx with psoriasis he dx him as > psoriatic. > > & Grant (11, PsA/Uveitis) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Yes- If you haven't seen a ped rheumy yet, I would get to one asap. The sooner they can start treating the inflammation the better. A person needs to have inflammation in a joint for 6 weeks in order to be diagnosed with juvenile arthritis. On our initial visit with the ped rheumy, he found that grant had inflammation in his ankle. He then ordered blood tests and had us come back in 6 weeks. At that time Grant still had inflammation in his ankle so he was diagnosed and started on medication. Naproxen first then after 8-12 weeks we added MTX (although we only added the MTX because of his uveitis). Hope this helps! Feel free to ask more questions! & Grant (11, PsA/Uveitis) > > > > Welcome Ruth! My son Grant also has psoriatic. He was dx about a > > year and a 1/2 ago. He is being treated with MTX and ever since we > > started the MTX 1 year ago he hasn't had any psoriasis. We were > > just at both doc's yesterday and he is currently free of all > > inflammation in joints and eye's. We are very excited about this. > > When we were going through the diagnosing stage, our rheumy wasn't > > that concerned about the blood tests or even whether it was > > psoriatic or rheumatoid since they are both treated the same. But > > since Grant had already been dx with psoriasis he dx him as > > psoriatic. > > > > & Grant (11, PsA/Uveitis) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 > > Hey guys, > after much browsing i'm finally deciding to post for help. > i am currently suffering from a lot of skin problems due to candida and > after many failed regimens i'm looking for help on something that will > really work like " Daily Plan for Healthy Me, " i'm confident this > regimen will work. I just have trouble adjusting it to fit my schedule > being that I can only eat three 30 min. meals a day. > I also have trouble with die-off symptoms causing me to binge on carbs. > Anyways, if anyone has any advice or reccommendations for a > fellow newbie I would highly appreciate it. +++Hi MARS. Welcome to our group. I'm glad you are confident this program will work. It has worked for so many people because the only way to cure candida is with " proper nutrients " (diet plus supplements), which includes eliminating foods and toxins that feed candida, and by eliminating other toxins so your immune system will become normal. +++For inspiration see these many Success Stories: http://www.healingnaturallybybee.com/success/index.php +++It is common for candida sufferers to have cravings and withdrawal symptoms. There are suggestions that will help you: http://www.healingnaturallybybee.com/articles/menu_2_5_3.php +++Why can you only eat three 30 min. meals a day? If that's the case you will need to be properly prepared ahead of time, i.e. weekends. +++Please ensure you read these 2 important articles: How to Successfully Overcome Candida Curing Candida, How to Get Started Both articles are on this menu on my website: http://www.healingnaturallybybee.com/candida/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 i'm looking for help on something that > will > > really work like " Daily Plan for Healthy Me, " i'm confident this > > regimen will work. I just have trouble adjusting it to fit my > schedule > > being that I can only eat three 30 min. meals a day. *** I make two egg drinks every morning. One I drink for breakfast, one I put in a thermos for later. When you get the carb cravings, it will be great for you to have something you can reach for immediately. Also, I take half my supps right then at breakfast. I pack the other half in a pill container with my HCl. I pack 1 1/2 teaspoons of sea salt and a lemon. Then I can make up my electrolyte drink at work, but you could easily make it all up right then in a sports drink bottle and carry with you. As for meals, I make a chili and roasted chicken parts and a soup once every week and I use that to create my lunches. I end up cooking only my dinner every few days, because the stew meals and baked chicken and soups are just warmed up. Something like this might help you eat well on the go. Plus always have hard-boiled eggs handy. You can make a bunch at once and then keep them in the fridge until you want to use them. Hope this helps, Marissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 My daughter was diagnosed with Uvietis first then JRA, I have not seen that alot here in the room...We are year 8 for iritis and year 6 for JRA>....Terri and AUbrey New Member I am so glad I found a group, these are great! My daughter was diagnosed this past July(age 13) she has had uveitis since she was 5, but never any hint of arthritis. But she was already on meds(humira) so the flare didn't last to long. Thanks for the welcome! andra ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1834 - Release Date: 12/6/2008 4:55 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Welcome to the group andra! My son was dx with Uveitis before the jra too. He was dx at age 9 but had it several years before that without it being detected. We know that because of the damage that was done to his eye. 6 months later he was dx with psoriatic. & Grant (11, PsA/Uveitis) > > I am so glad I found a group, these are great! My daughter > was diagnosed this past July(age 13) she has had uveitis since she was > 5, but never any hint of arthritis. But she was already on meds (humira) > so the flare didn't last to long. > Thanks for the welcome! > andra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Hello and welcome to the group. I am very sorry you have to be here under these cirmunstances, but you have come to the right place. There are some wonderful people here and a great deal of knowledge. If I were you, I would contact the ped. rheumy first thing Monday and let him know what is going on. It is not uncommon to have a flare with sickness. My daughter does and so do I. If the joints are red and swollen, I would take pictures to show the ped. rheumy. To get the best picture, put the area over a dark colored (black or brown) sheet or towel and put the camera setting on close-up (the little flower setting). Then take the picture with no flash. I actually take one with flash and one without. These were the instruction give to me by our ped. rheumy. Hope this helps. Please keep us updated. (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > Hi, just want to introduce my three year old Harry. Last year when > he was still two, or just turned three, he had a significant episode > where he had knee swelling, limp, inability to bear wt, and some > pain. His sed rate was just over 50. The ortho guys couldn't find > anything, and, since it was the first incident, the rheumy said we > would watch him. This past week he has had a virus and had some more > knee inflammation and complaints but not as bad as last time. I told > me ped's office staff and I'm not sure if they told the ped or not, > but we didn't do labs today and it is already 3 days after the event, > so by Monday, not sure if anything would show up anymore. Our follow- > up with the rheumy just happens to be in two weeks anyway on March > 4th. I have not been given a diagnosis for Harry yet bc of the > isolated nature of the first event- we were all hoping it was a > synovitis. Anyway, he has had a long history of ankle and knee > discomfort so I am pretty sure it is an arthritic process. His GM's > sister had RA, but I understand it is not often inherited. Both my > twins have been very sick this week and we are remodeling, so I > haven't had much time to read. I looked at the polls and voted. > Hope to gain some support here- thanks to my friend on BBC that > showed me this site. It helps to know there are other parents > dealing with this in their little ones. > mom to three boys, a teen and twin threes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 , I wrote to them about the flare and they called me back and asked if I remember I had my follow-up on March 4th anyway. I was a bit shocked, bc I pretty much forgot about my follow- up, hoping it was a synovitis. I had no idea I had kept that appt, I thought we had cancelled it and I was to call if there was another problem. So, as fate would have it, I had an appt already set up. They didn't say anything about doing labs before I got there. Not sure how long sed rates stay up. His ANA last yr was neg, so was his C-reactive proteins. The only thing showing up last yr was his high sed rate and some effusion on one hip, besides the other clinical findings- swelling, limp, not standing, pain related to not standing (he didn't seem to have pain at rest). Thanks for the reply, glad to know someone cares. Sorry about all your symptoms and problems, they seem like too much to handle, honestly. I feel like our problems are minor when I read your list. My Harry does have a chronic skin condition, I think it is exczema, but I really don't know. They gave me Eucerin and some other stuff that helps, but the sun and pool water helped the most this summer- now it is back. I have been up changing bed sheets. Gotta try to get some more sleep, tomorrow could be another long day with this virus, it seems particularly nasty this time around. take care and thanks again, Chris ---- " J. Cassady " <j_cassady25@...> wrote: > > > Hello and welcome to the group. I am very sorry you have to be here > under these cirmunstances, but you have come to the right place. > There are some wonderful people here and a great deal of knowledge. > > If I were you, I would contact the ped. rheumy first thing Monday and > let him know what is going on. It is not uncommon to have a flare > with sickness. My daughter does and so do I. If the joints are red > and swollen, I would take pictures to show the ped. rheumy. To get > the best picture, put the area over a dark colored (black or brown) > sheet or towel and put the camera setting on close-up (the little > flower setting). Then take the picture with no flash. I actually take > one with flash and one without. These were the instruction give to me > by our ped. rheumy. Hope this helps. Please keep us updated. > > (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) > 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) > Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > he was still two, or just turned three, he had a significant > episode > > where he had knee swelling, limp, inability to bear wt, and some > > pain. His sed rate was just over 50. The ortho guys couldn't find > > anything, and, since it was the first incident, the rheumy said we > > would watch him. This past week he has had a virus and had some > more > > knee inflammation and complaints but not as bad as last time. I > told > > me ped's office staff and I'm not sure if they told the ped or not, > > but we didn't do labs today and it is already 3 days after the > event, > > so by Monday, not sure if anything would show up anymore. Our > follow- > > up with the rheumy just happens to be in two weeks anyway on March > > 4th. I have not been given a diagnosis for Harry yet bc of the > > isolated nature of the first event- we were all hoping it was a > > synovitis. Anyway, he has had a long history of ankle and knee > > discomfort so I am pretty sure it is an arthritic process. His > GM's > > sister had RA, but I understand it is not often inherited. Both my > > twins have been very sick this week and we are remodeling, so I > > haven't had much time to read. I looked at the polls and voted. > > Hope to gain some support here- thanks to my friend on BBC that > > showed me this site. It helps to know there are other parents > > dealing with this in their little ones. > > mom to three boys, a teen and twin threes > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Hi, Nik, Just a quick notes about Effexor...if and when you choose to wean off of it, I suggest you do it VERY carefully and very slowly and under a doctor's supervision. ( I did too, but still had terrible withdrawal and side effects for six months, even doing as my doctor told me to wean off.) Look on the Internet for blogs about Effexor and what you can expect to experience and how to lessen your symptoms. I didn't know what to expect and felt so awful, I could hardly crawl to the bathroom. I'm happy to share what my experience was, but it sounds like you have other things to focus on first. Kirsten Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 Hi, welcome to the list, although I am sorry to hear of another little with this disease. Just a thought about your Harry's rash - could it be psoriasis? Psoriatic arthritis sometimes comes across with the rash as well as the joint issues. Has the dr ever mentioned that possibility? The rheumy would look for pits in his nails and see if his tendons are inflamed. There is not a whole lot of difference in how it is treated from other forms of arthritis, but there are certain meds that are traditionally thought to work better for it. Glad you have found the list, there is lots of info here and plenty of shoulders to lean on if you need it. Let us know how Harry is doing, Michele ( 21, spondy) ________________________________ From: [mailto: ] On Behalf Of ryznicbc@... Sent: Saturday, February 14, 2009 2:26 AM Cc: J. Cassady Subject: Re: Re: New member , I wrote to them about the flare and they called me back and asked if I remember I had my follow-up on March 4th anyway. I was a bit shocked, bc I pretty much forgot about my follow- up, hoping it was a synovitis. I had no idea I had kept that appt, I thought we had cancelled it and I was to call if there was another problem. So, as fate would have it, I had an appt already set up. They didn't say anything about doing labs before I got there. Not sure how long sed rates stay up. His ANA last yr was neg, so was his C-reactive proteins. The only thing showing up last yr was his high sed rate and some effusion on one hip, besides the other clinical findings- swelling, limp, not standing, pain related to not standing (he didn't seem to have pain at rest). Thanks for the reply, glad to know someone cares. Sorry about all your symptoms and problems, they seem like too much to handle, honestly. I feel like our problems are minor when I read your list. My Harry does have a chronic skin condition, I think it is exczema, but I really don't know. They gave me Eucerin and some other stuff that helps, but the sun and pool water helped the most this summer- now it is back. I have been up changing bed sheets. Gotta try to get some more sleep, tomorrow could be another long day with this virus, it seems particularly nasty this time around. take care and thanks again, Chris ---- " J. Cassady " <j_cassady25@... <mailto:j_cassady25%40> > wrote: > > > Hello and welcome to the group. I am very sorry you have to be here > under these cirmunstances, but you have come to the right place. > There are some wonderful people here and a great deal of knowledge. > > If I were you, I would contact the ped. rheumy first thing Monday and > let him know what is going on. It is not uncommon to have a flare > with sickness. My daughter does and so do I. If the joints are red > and swollen, I would take pictures to show the ped. rheumy. To get > the best picture, put the area over a dark colored (black or brown) > sheet or towel and put the camera setting on close-up (the little > flower setting). Then take the picture with no flash. I actually take > one with flash and one without. These were the instruction give to me > by our ped. rheumy. Hope this helps. Please keep us updated. > > (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) > 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) > Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > he was still two, or just turned three, he had a significant > episode > > where he had knee swelling, limp, inability to bear wt, and some > > pain. His sed rate was just over 50. The ortho guys couldn't find > > anything, and, since it was the first incident, the rheumy said we > > would watch him. This past week he has had a virus and had some > more > > knee inflammation and complaints but not as bad as last time. I > told > > me ped's office staff and I'm not sure if they told the ped or not, > > but we didn't do labs today and it is already 3 days after the > event, > > so by Monday, not sure if anything would show up anymore. Our > follow- > > up with the rheumy just happens to be in two weeks anyway on March > > 4th. I have not been given a diagnosis for Harry yet bc of the > > isolated nature of the first event- we were all hoping it was a > > synovitis. Anyway, he has had a long history of ankle and knee > > discomfort so I am pretty sure it is an arthritic process. His > GM's > > sister had RA, but I understand it is not often inherited. Both my > > twins have been very sick this week and we are remodeling, so I > > haven't had much time to read. I looked at the polls and voted. > > Hope to gain some support here- thanks to my friend on BBC that > > showed me this site. It helps to know there are other parents > > dealing with this in their little ones. > > mom to three boys, a teen and twin threes > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 , I have no idea what the rash it, it doesn't look like typical psoriasis- no flakes and crusts. It is a little red, very broad in patches, slightly raised, very dry and causes a lot of itching. One time last year Harry came to me in the night just scratching himself raw. That is when I realized how bad it really was and took him in for that, but we had a new NP and she had no idea, just treated it like a dermatitis. It helped a little. The sun this summer wiped it out, that and the pool. That sort of points to psoriasis. Thanks for the suggestion about considering it, I never would have linked the joint disease with psoriasis. I will be sure to go over the rash with the rheumy on the 4th. The rheumy did add a repeat CRP to the ESR with a CBC, diff and plts. I am waiting for those results, we did them last night. I don't expect anything to be that out of normal. This event was so mild compared to the last one where the sed rate was only 51. I say only, but it was obviously high enough for alarm. Thanks for the information and taking time to reply. Strange how I am not as upset as last time even though now I feel more sure about what is going on. I still feel uncomfortable with the whole diagnostic period. I feel like I am waiting while he could be on some better preventative vitamins or something. Chris ---- " Tepper wrote: > Hi, welcome to the list, although I am sorry to hear of another > little with this disease. Just a thought about your Harry's rash - could > it be psoriasis? Psoriatic arthritis sometimes comes across with the > rash as well as the joint issues. Has the dr ever mentioned that > possibility? The rheumy would look for pits in his nails and see if his > tendons are inflamed. There is not a whole lot of difference in how it > is treated from other forms of arthritis, but there are certain meds > that are traditionally thought to work better for it. > > Glad you have found the list, there is lots of info here and plenty of > shoulders to lean on if you need it. > > Let us know how Harry is doing, Michele ( 21, spondy) > > > > > > > > > > > > ________________________________ > > From: [mailto: ] On > Behalf Of ryznicbc@... > Sent: Saturday, February 14, 2009 2:26 AM > > Cc: J. Cassady > Subject: Re: Re: New member > > > > , > I wrote to them about the flare and they called me back and asked if I > remember I had my follow-up on March 4th anyway. I was a bit shocked, bc > I pretty much forgot about my follow- up, hoping it was a synovitis. I > had no idea I had kept that appt, I thought we had cancelled it and I > was to call if there was another problem. So, as fate would have it, I > had an appt already set up. They didn't say anything about doing labs > before I got there. Not sure how long sed rates stay up. His ANA last yr > was neg, so was his C-reactive proteins. The only thing showing up last > yr was his high sed rate and some effusion on one hip, besides the other > clinical findings- swelling, limp, not standing, pain related to not > standing (he didn't seem to have pain at rest). Thanks for the reply, > glad to know someone cares. > Sorry about all your symptoms and problems, they seem like too much to > handle, honestly. I feel like our problems are minor when I read your > list. My Harry does have a chronic skin condition, I think it is > exczema, but I really don't know. They gave me Eucerin and some other > stuff that helps, but the sun and pool water helped the most this > summer- now it is back. > I have been up changing bed sheets. Gotta try to get some more sleep, > tomorrow could be another long day with this virus, it seems > particularly nasty this time around. > take care and thanks again, > Chris > ---- " J. Cassady " <j_cassady25@... > <mailto:j_cassady25%40> > wrote: > > > > > > Hello and welcome to the group. I am very sorry you have to be here > > under these cirmunstances, but you have come to the right place. > > There are some wonderful people here and a great deal of knowledge. > > > > If I were you, I would contact the ped. rheumy first thing Monday and > > let him know what is going on. It is not uncommon to have a flare > > with sickness. My daughter does and so do I. If the joints are red > > and swollen, I would take pictures to show the ped. rheumy. To get > > the best picture, put the area over a dark colored (black or brown) > > sheet or towel and put the camera setting on close-up (the little > > flower setting). Then take the picture with no flash. I actually take > > one with flash and one without. These were the instruction give to me > > by our ped. rheumy. Hope this helps. Please keep us updated. > > > > (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) > > 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) > > Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > > > > > > > > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > > he was still two, or just turned three, he had a significant > > episode > > > where he had knee swelling, limp, inability to bear wt, and some > > > pain. His sed rate was just over 50. The ortho guys couldn't find > > > anything, and, since it was the first incident, the rheumy said we > > > would watch him. This past week he has had a virus and had some > > more > > > knee inflammation and complaints but not as bad as last time. I > > told > > > me ped's office staff and I'm not sure if they told the ped or not, > > > but we didn't do labs today and it is already 3 days after the > > event, > > > so by Monday, not sure if anything would show up anymore. Our > > follow- > > > up with the rheumy just happens to be in two weeks anyway on March > > > 4th. I have not been given a diagnosis for Harry yet bc of the > > > isolated nature of the first event- we were all hoping it was a > > > synovitis. Anyway, he has had a long history of ankle and knee > > > discomfort so I am pretty sure it is an arthritic process. His > > GM's > > > sister had RA, but I understand it is not often inherited. Both my > > > twins have been very sick this week and we are remodeling, so I > > > haven't had much time to read. I looked at the polls and voted. > > > Hope to gain some support here- thanks to my friend on BBC that > > > showed me this site. It helps to know there are other parents > > > dealing with this in their little ones. > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 - " Anyway, he has had a long history of ankle and knee > > > > discomfort so I am pretty sure it is an arthritic process. " That statement concerns me along with you stating the rheumy thought it was synovitis. From what I've learned, synovitis is a symtpom of JRA. If your rheumy has felt inflammation in any of Harry's joints (which it sounds like he has)then he should be seeing him more often than yearly. If inflammation has been found and is lasting 6 weeks or more then that is considered some form of Juvenile arthritis. Medication can be started at that time. The diagnostic testing doesn't determine a diagnosis it just maybe helps confirm the diagnosis and xrays can determine if joint damage has occured. Hope this helps some! & Grant (12, Psa/Uveitis) > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > > > he was still two, or just turned three, he had a significant > > > episode > > > > where he had knee swelling, limp, inability to bear wt, and some > > > > pain. His sed rate was just over 50. The ortho guys couldn't find > > > > anything, and, since it was the first incident, the rheumy said we > > > > would watch him. This past week he has had a virus and had some > > > more > > > > knee inflammation and complaints but not as bad as last time. I > > > told > > > > me ped's office staff and I'm not sure if they told the ped or not, > > > > but we didn't do labs today and it is already 3 days after the > > > event, > > > > so by Monday, not sure if anything would show up anymore. Our > > > follow- > > > > up with the rheumy just happens to be in two weeks anyway on March > > > > 4th. I have not been given a diagnosis for Harry yet bc of the > > > > isolated nature of the first event- we were all hoping it was a > > > > synovitis. Anyway, he has had a long history of ankle and knee > > > > discomfort so I am pretty sure it is an arthritic process. His > > > GM's > > > > sister had RA, but I understand it is not often inherited. Both my > > > > twins have been very sick this week and we are remodeling, so I > > > > haven't had much time to read. I looked at the polls and voted. > > > > Hope to gain some support here- thanks to my friend on BBC that > > > > showed me this site. It helps to know there are other parents > > > > dealing with this in their little ones. > > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Hi there. My son that does not have jra has terrible eczema that soundas just like that! Could it possibly be that plus some other culprit for the joint pain? Arvada mom to lexi (7, pauci jra, hypothyroid) Sent from my Verizon Wireless BlackBerry Re: Re: New member > > > > , > I wrote to them about the flare and they called me back and asked if I > remember I had my follow-up on March 4th anyway. I was a bit shocked, bc > I pretty much forgot about my follow- up, hoping it was a synovitis. I > had no idea I had kept that appt, I thought we had cancelled it and I > was to call if there was another problem. So, as fate would have it, I > had an appt already set up. They didn't say anything about doing labs > before I got there. Not sure how long sed rates stay up. His ANA last yr > was neg, so was his C-reactive proteins. The only thing showing up last > yr was his high sed rate and some effusion on one hip, besides the other > clinical findings- swelling, limp, not standing, pain related to not > standing (he didn't seem to have pain at rest). Thanks for the reply, > glad to know someone cares. > Sorry about all your symptoms and problems, they seem like too much to > handle, honestly. I feel like our problems are minor when I read your > list. My Harry does have a chronic skin condition, I think it is > exczema, but I really don't know. They gave me Eucerin and some other > stuff that helps, but the sun and pool water helped the most this > summer- now it is back. > I have been up changing bed sheets. Gotta try to get some more sleep, > tomorrow could be another long day with this virus, it seems > particularly nasty this time around. > take care and thanks again, > Chris > ---- " J. Cassady " <j_cassady25@... > <mailto:j_cassady25%40> > wrote: > > > > > > Hello and welcome to the group. I am very sorry you have to be here > > under these cirmunstances, but you have come to the right place. > > There are some wonderful people here and a great deal of knowledge. > > > > If I were you, I would contact the ped. rheumy first thing Monday and > > let him know what is going on. It is not uncommon to have a flare > > with sickness. My daughter does and so do I. If the joints are red > > and swollen, I would take pictures to show the ped. rheumy. To get > > the best picture, put the area over a dark colored (black or brown) > > sheet or towel and put the camera setting on close-up (the little > > flower setting). Then take the picture with no flash. I actually take > > one with flash and one without. These were the instruction give to me > > by our ped. rheumy. Hope this helps. Please keep us updated. > > > > (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) > > 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) > > Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > > > > > > > > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > > he was still two, or just turned three, he had a significant > > episode > > > where he had knee swelling, limp, inability to bear wt, and some > > > pain. His sed rate was just over 50. The ortho guys couldn't find > > > anything, and, since it was the first incident, the rheumy said we > > > would watch him. This past week he has had a virus and had some > > more > > > knee inflammation and complaints but not as bad as last time. I > > told > > > me ped's office staff and I'm not sure if they told the ped or not, > > > but we didn't do labs today and it is already 3 days after the > > event, > > > so by Monday, not sure if anything would show up anymore. Our > > follow- > > > up with the rheumy just happens to be in two weeks anyway on March > > > 4th. I have not been given a diagnosis for Harry yet bc of the > > > isolated nature of the first event- we were all hoping it was a > > > synovitis. Anyway, he has had a long history of ankle and knee > > > discomfort so I am pretty sure it is an arthritic process. His > > GM's > > > sister had RA, but I understand it is not often inherited. Both my > > > twins have been very sick this week and we are remodeling, so I > > > haven't had much time to read. I looked at the polls and voted. > > > Hope to gain some support here- thanks to my friend on BBC that > > > showed me this site. It helps to know there are other parents > > > dealing with this in their little ones. > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 , It could be; he hasn't been seen by a dermatologist. My ped brushed off my comment about the rash. It started before the knee flare up, so I don't think they are related, but I don't know how psoriatic arthritis presents. I was reading the NOV/DEC issue of Arthritis magazine at my allergy clinic yesterday while getting my shot, and on the last page there is an article about STILL disease. My child sounded exactly like that, fever that comes and goes with the flare. It said it can go away in a year or be chronic. There are so many things it could be, I guess I just have to be patient and take it a day at a time. Thanks for sharing your story. What do you find works best for your son's dryness? I don't want to wash my child in clorox, LOL, but supposedly that works for many people. Chris ---- redfeather03@... wrote: > Hi there. My son that does not have jra has terrible eczema that soundas just like that! Could it possibly be that plus some other culprit for the joint pain? > > Arvada mom to lexi (7, pauci jra, hypothyroid) > Sent from my Verizon Wireless BlackBerry > > Re: Re: New member > > > > > > > > , > > I wrote to them about the flare and they called me back and asked if I > > remember I had my follow-up on March 4th anyway. I was a bit shocked, bc > > I pretty much forgot about my follow- up, hoping it was a synovitis. I > > had no idea I had kept that appt, I thought we had cancelled it and I > > was to call if there was another problem. So, as fate would have it, I > > had an appt already set up. They didn't say anything about doing labs > > before I got there. Not sure how long sed rates stay up. His ANA last yr > > was neg, so was his C-reactive proteins. The only thing showing up last > > yr was his high sed rate and some effusion on one hip, besides the other > > clinical findings- swelling, limp, not standing, pain related to not > > standing (he didn't seem to have pain at rest). Thanks for the reply, > > glad to know someone cares. > > Sorry about all your symptoms and problems, they seem like too much to > > handle, honestly. I feel like our problems are minor when I read your > > list. My Harry does have a chronic skin condition, I think it is > > exczema, but I really don't know. They gave me Eucerin and some other > > stuff that helps, but the sun and pool water helped the most this > > summer- now it is back. > > I have been up changing bed sheets. Gotta try to get some more sleep, > > tomorrow could be another long day with this virus, it seems > > particularly nasty this time around. > > take care and thanks again, > > Chris > > ---- " J. Cassady " <j_cassady25@... > > <mailto:j_cassady25%40> > wrote: > > > > > > > > > Hello and welcome to the group. I am very sorry you have to be here > > > under these cirmunstances, but you have come to the right place. > > > There are some wonderful people here and a great deal of knowledge. > > > > > > If I were you, I would contact the ped. rheumy first thing Monday and > > > let him know what is going on. It is not uncommon to have a flare > > > with sickness. My daughter does and so do I. If the joints are red > > > and swollen, I would take pictures to show the ped. rheumy. To get > > > the best picture, put the area over a dark colored (black or brown) > > > sheet or towel and put the camera setting on close-up (the little > > > flower setting). Then take the picture with no flash. I actually take > > > one with flash and one without. These were the instruction give to me > > > by our ped. rheumy. Hope this helps. Please keep us updated. > > > > > > (Lupus, MCTD, IBS, fibromyalgia, PCOS, carpel tunnel) > > > 15 (RF+ Poly JRA, asthma, IBS, chronic hives, back issues) > > > Jayna 12 (ADHD, OCD, ODD, now positive ANA) > > > > > > > > > > > > > > > > > > > > > > > Hi, just want to introduce my three year old Harry. Last year when > > > > he was still two, or just turned three, he had a significant > > > episode > > > > where he had knee swelling, limp, inability to bear wt, and some > > > > pain. His sed rate was just over 50. The ortho guys couldn't find > > > > anything, and, since it was the first incident, the rheumy said we > > > > would watch him. This past week he has had a virus and had some > > > more > > > > knee inflammation and complaints but not as bad as last time. I > > > told > > > > me ped's office staff and I'm not sure if they told the ped or not, > > > > but we didn't do labs today and it is already 3 days after the > > > event, > > > > so by Monday, not sure if anything would show up anymore. Our > > > follow- > > > > up with the rheumy just happens to be in two weeks anyway on March > > > > 4th. I have not been given a diagnosis for Harry yet bc of the > > > > isolated nature of the first event- we were all hoping it was a > > > > synovitis. Anyway, he has had a long history of ankle and knee > > > > discomfort so I am pretty sure it is an arthritic process. His > > > GM's > > > > sister had RA, but I understand it is not often inherited. Both my > > > > twins have been very sick this week and we are remodeling, so I > > > > haven't had much time to read. I looked at the polls and voted. > > > > Hope to gain some support here- thanks to my friend on BBC that > > > > showed me this site. It helps to know there are other parents > > > > dealing with this in their little ones. > > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Hi Bradford, Welcome to our group! We have a lot of members who are dealing with candida and are healing their bodies naturally using foods and natural antifungals. You can overcome candida without using Nystatin. The most important way to do it is to increase your body's immune system by giving it proper nutrition and supplements as outlined on Bee's website. Two articles should have been sent to you when you joined this forum, but if you didn't get them for some reason, here they are: - " How to Successfully Overcome Candida " http://www.healingnaturallybybee.com/articles/intro2.php - " Curing Candida, How to Get Started " http://www.healingnaturallybybee.com/articles/intro1.php Once you read and understand how Bee's program works, you will see that Nystatin isn't the most important thing in healing your candida overgrowth, so if you don't happen find a doctor to prescribe it for you, don't worry. Many people on this forum have healed themselves using this program. Take a look at some of the Success Stories members have posted so far. http://www.healingnaturallybybee.com/success/index.php Once you read and understand the program, please get back to us with any questions you may have. We're here to help! > <snip> > In short I suffer with Candida and am looking for a good MD/ND > physician and one who will perscribe Nystatin powder form (which can be used orally and topically.) <snip> > Bradford > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 , I can't say Harry's problems have been severe for 6 weeks straight, but when he wasn't even two yet his dad and I would comment all the time about how he would stand on one foot or complain about his ankles. He would sit at unusual times and places and want to be carried. He is not one to sit around and generally is the one I have to chase after. But he has had issues with basic mobility as he learned to walk. We were happy when he started running. Most parents take that for granted. I have been very proactive about his care, esp after last August's episode where he awoke in the night screaming in pain with a swollen, inflamed knee and couldn't walk for several days without a limp. I hope the rheumy gives me more of an outline about what to expect, but I understand a lot of this is wait and see in the beginning. Esp now with such a mild second occurrence, I am not expecting much, but we'll see. I already give motrin once in awhile if I think Harry has done a lot on his legs where he might have an event. That first one occurred about 36 hours after we jumped at one of those bounce places. Thanks for your concern and comments. Chris ---- toivonen4 <toivonen4@...> wrote: > - " Anyway, he has had a long history of ankle and knee > > > > > discomfort so I am pretty sure it is an arthritic process. " > > That statement concerns me along with you stating the rheumy thought > it was synovitis. From what I've learned, synovitis is a symtpom of > JRA. If your rheumy has felt inflammation in any of Harry's joints > (which it sounds like he has)then he should be seeing him more often > than yearly. If inflammation has been found and is lasting 6 weeks > or more then that is considered some form of Juvenile arthritis. > Medication can be started at that time. The diagnostic testing > doesn't determine a diagnosis it just maybe helps confirm the > diagnosis and xrays can determine if joint damage has occured. > > Hope this helps some! > > & Grant (12, Psa/Uveitis) > > > > > > > > > > > Hi, just want to introduce my three year old Harry. Last > year when > > > > > he was still two, or just turned three, he had a significant > > > > episode > > > > > where he had knee swelling, limp, inability to bear wt, and > some > > > > > pain. His sed rate was just over 50. The ortho guys couldn't > find > > > > > anything, and, since it was the first incident, the rheumy > said we > > > > > would watch him. This past week he has had a virus and had > some > > > > more > > > > > knee inflammation and complaints but not as bad as last > time. I > > > > told > > > > > me ped's office staff and I'm not sure if they told the ped > or not, > > > > > but we didn't do labs today and it is already 3 days after > the > > > > event, > > > > > so by Monday, not sure if anything would show up anymore. > Our > > > > follow- > > > > > up with the rheumy just happens to be in two weeks anyway on > March > > > > > 4th. I have not been given a diagnosis for Harry yet bc of > the > > > > > isolated nature of the first event- we were all hoping it > was a > > > > > synovitis. Anyway, he has had a long history of ankle and > knee > > > > > discomfort so I am pretty sure it is an arthritic process. > His > > > > GM's > > > > > sister had RA, but I understand it is not often inherited. > Both my > > > > > twins have been very sick this week and we are remodeling, > so I > > > > > haven't had much time to read. I looked at the polls and > voted. > > > > > Hope to gain some support here- thanks to my friend on BBC > that > > > > > showed me this site. It helps to know there are other > parents > > > > > dealing with this in their little ones. > > > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Hi Chris- The problems don't have to be severe for 6 weeks. I'm not sure that we would know to this day that Grant had arthritis if it wasn't for his Uveitis and us having to go to the ped rheumy to see if something else was going on with him. By that I mean that he had a swollen ankle that we didn't even know about with absolutely no pain with it. 6 weeks later it was still there and we were put on 250 mg naproxen twice/day. From what you've said (or typed) it sounds to me like HArry needs to be on some medication that will stop the progression of the disease (like MTX). Maybe your rheumy will discuss that with you on your next appt. Keep us posted! & Grant (12, PsA/Uveitis) > > > > > > > > > > > > Hi, just want to introduce my three year old Harry. Last > > year when > > > > > > he was still two, or just turned three, he had a significant > > > > > episode > > > > > > where he had knee swelling, limp, inability to bear wt, and > > some > > > > > > pain. His sed rate was just over 50. The ortho guys couldn't > > find > > > > > > anything, and, since it was the first incident, the rheumy > > said we > > > > > > would watch him. This past week he has had a virus and had > > some > > > > > more > > > > > > knee inflammation and complaints but not as bad as last > > time. I > > > > > told > > > > > > me ped's office staff and I'm not sure if they told the ped > > or not, > > > > > > but we didn't do labs today and it is already 3 days after > > the > > > > > event, > > > > > > so by Monday, not sure if anything would show up anymore. > > Our > > > > > follow- > > > > > > up with the rheumy just happens to be in two weeks anyway on > > March > > > > > > 4th. I have not been given a diagnosis for Harry yet bc of > > the > > > > > > isolated nature of the first event- we were all hoping it > > was a > > > > > > synovitis. Anyway, he has had a long history of ankle and > > knee > > > > > > discomfort so I am pretty sure it is an arthritic process. > > His > > > > > GM's > > > > > > sister had RA, but I understand it is not often inherited. > > Both my > > > > > > twins have been very sick this week and we are remodeling, > > so I > > > > > > haven't had much time to read. I looked at the polls and > > voted. > > > > > > Hope to gain some support here- thanks to my friend on BBC > > that > > > > > > showed me this site. It helps to know there are other > > parents > > > > > > dealing with this in their little ones. > > > > > > mom to three boys, a teen and twin threes > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 > > Hi Bee, > I'm new to the group and I just wanted to thank you for all the wonderful information. My daughter is 16 years old and has candida. She has been very sick since September and she has not attended school for over two months (she is receiving home instruction). I found a wonderful doctor that has been able to help her and a wonderful friend that has been able to help me. Her name is Bee. So thank you Bee and I hope someday I get to meet you. > With much respect and admiration. +++Hi Yris. Welcome to our wonderful group my friend. I'm so happy you are getting so much from my website and group to help your lovely daughter! Hooray! I am honored to be able to help. Luv & Hugs, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 > > Hi everyone. I am new to this group and have been doing my own candida diet for a week until I came across Bee's. Now I am going to follow this method. I have lost about 7lbs in a week and I feel like Dawn-- a bit nervous about the rapid weight loss but also excited about the possibility of getting rid of my scalp dermatitis. I've suffered for too long with it and I am desperate for a change. > > I really look forward to chatting with you all and hearing where everyone is on their healing journey. +++Hi there. Welcome to our group. What is your name please? Please ensure you read 2 very important articles: 1) How to Successfully Overcome Candida 2) Curing Candida, How to Get Started http://www.healingnaturallybybee.com/candida/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2009 Report Share Posted March 21, 2009 > > Hi again all, > Bee, my name is Zisca. I did read your articles from Nourish magazine, and I'm making my way through all the rest of the really helpful info. I am enjoying the reading and the fact that I'm learning so much. > Stocked up today at Whole Foods and found the organic sauerkraut today among other items. > Thanks for all the help. +++Hi Zisca. It's good to know your name since I don't remember people by their email address. That's great you are getting the right foods! Onward & upward! The best, Bee Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.