Guest guest Posted February 27, 1999 Report Share Posted February 27, 1999 Dear , I am glad that all went well; I'm sure all our thoughts are with you as we wish you a speedy recovery. AntJoan ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 1999 Report Share Posted February 27, 1999 Dear , I'm so glad to hear that you are feeling better. I am so proud of you for making such a brave decision. I'm happy that you are breathing better, and that you have made a big obstacle be gone from your life. My best wishes to you! Love, ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 1999 Report Share Posted March 1, 1999 Hello Everyone, is a real sweetheart and a very good friend of ours. We want to CONGRATULATE on her courage and determination. We are very proud of her and what she has accomplished. deserves a huge round of hugs from everyone. Just the thought of surgery can be quite frightening and intimidating. I, Ron, have undergone four surgeries where general anesthesia was required. It never gets any easier, at least it didn't for me. I want to thank God and everyone on the board here who contributed their prayers, support, and encouragement to to help her through this most difficult time in her life. I urge you all to pray for a speedy recovery for and to thank the Lord for His hand in the success of 's surgery. WAY TO GO LISA!! WE LOVE YOU!! God Bless, Ron & ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 1999 Report Share Posted March 1, 1999 Hi , What a courage you have ! Glad all went well ! I'm having surgery on the 22 of March and I'm scared like hell ! They will remove my gland entirely. First I'm going to see some other doctors to have their point of view. First one now Thursday. I hope that a lot of my questions will be answered then ! Recover well and please let us know how you are feeling ! Take care, Mieke ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Ron and --That was such a nice and encouraging note to . Does anyone know the normal TSH level? Thanks, Lori ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 <<Overall, I'm very proud of today. He is so terrified of hospitals but was very brave (which he keeps telling me!!!) We love him so much and I love that the volume on my television tonight is at 15 and not 22!!!!!!!! Jackie, Mom to 13ds, 10, and Bradley 6>> Hi ! Glad you are home and I hope you get plenty of what you like! You are so brave! Send me your address privately and Ted and I will write to you. Jackie, lol about the tv volume! Glad it went well. hugs, Gail and Theodore Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 had t & a removed and tubes placed back in October. We knew beforehand that he would be spending the night because he has a history of pulmonary problems. Following the surgery, he had trouble keeping his O2 levels up so had to remain on the nasal canula an extra day. That, followed by some steroid medication to help reduce the inflammation and we were released late the following evening. The most important thing is to make sure they monitor him long enough to know that his 02 levels are fine and if he is able to drink. Those are the two criteria they explained to me. did fine with the drinking, they think his breathing was impaired because of post surgery swelling. He has trachialmalasia (sp), so that probably didnt help either. The good news is the surgery worked wonders for him. LOTS fewer sinus infections, and NO ear infections since October. Yeah! Jodi mom to 4 DS and Spencer 2 NDA (aka Danger Boy) re: 's surgery >My son had tubes in and adnoids out about 10 years ago - he didn't >stay over night either we were home that afternoon. I had prepared >for a 4 day recovery for him - he had different ideas - he was >jumoing around by the next morning However he did not have his >tonsils out - I've heard that is painful. i would make sure that if >he needs to stay that the doctor is willing to advocate and push for >that for him - most insurance companies will listen if the doctor >pushes hard enough. > > >Please edit posts when replying! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 , when my son was scheduled to have the same surgery (T & A) the doctor said the same thing. That this was an outpatient surgery and that the insurance co would not pay for overnight stay so what his office does is what he calls a 23:59 procedure. This means that the doctor keeps the child in the hospital for 23 hours and 59 minutes and the insurance cannot do anything about it since the child in not in the hospital for 24 hours. You may want to suggest the same thing to your doctor. My son ended up not having the procedure but I haven't completely ruled it out yet. I'm just doing some additional research. Good luck! Kim. 's surgery Hi all is having surgery June 14th, to have ear tubes put in and to have his adeniods and tonsils removed. I have heard on this list that he should be kept overnight. His doc isn't planning on doing that. Should I insist on him staying overnight and what are the reasons for it? Thanks Please edit posts when replying! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 My son had tubes in and adnoids out about 10 years ago - he didn't stay over night either we were home that afternoon. I had prepared for a 4 day recovery for him - he had different ideas - he was jumoing around by the next morning However he did not have his tonsils out - I've heard that is painful. i would make sure that if he needs to stay that the doctor is willing to advocate and push for that for him - most insurance companies will listen if the doctor pushes hard enough. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 had this surgery just done on Holy Thrusday. They were supposed to keep her on a 23 hour hold,too. But she was doing so well after the surgery the ENT let her come home after about 5 hours or so. I was glad she was able to come home because other wise that 24 hour hold was going to be on the repiratory ward and I didn't want her exposed to any up there. Every time my 3 year old who has asthma has been admitted to that ward she comes home worse than when she went in. Good luck with 's surgery I will pray for him. Laurie mom to 20 month(ds) and four other girls ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 Hi, amanda had tonsils and adnoids removed when she was 5 years old. They didnt want to keep her over night either, but her doctor was really good about keeping under observation and if he felt medically that she needed to stay, he would have kept her. She did stay as long as she could. I like that 23 hours 59 minutes suggestions. talk to the doctor about that. As it turned out, amanda didnt stay and she was fine at home. The good news, no ear infections since then - 5 years ago! ~ Mom to 10 1/2 and 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Hi Folks, Thought I'd write all of you with the good news at one time. 's appointment with the cardiologist went better than we expected. Apparantly what the EKG showed is not truly a serious left branch blockage, but an electrical impusle annomoly, which was probably caused by the very high fevers he has had during bouts of malaria. has always said that Vietnam would kill him one way or the other. I'm beginning to believe him. At any rate, the blockage isn't serious enough to warrant angioplasty and there is nothing that can be done about the annomoly..........so he is cleared for his ingual hernia surgery which will be done on June 5th. While all of this isn't great news, it certainly is better than some of the things the cardiologist could have said. Love to all, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Hi Folks, Thought I'd write all of you with the good news at one time. 's appointment with the cardiologist went better than we expected. Apparantly what the EKG showed is not truly a serious left branch blockage, but an electrical impusle annomoly, which was probably caused by the very high fevers he has had during bouts of malaria. has always said that Vietnam would kill him one way or the other. I'm beginning to believe him. At any rate, the blockage isn't serious enough to warrant angioplasty and there is nothing that can be done about the annomoly..........so he is cleared for his ingual hernia surgery which will be done on June 5th. While all of this isn't great news, it certainly is better than some of the things the cardiologist could have said. Love to all, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 Anne, I haven't been keeping up with email lately... but I wanted to let you know is in my prayers and I wish him the best. Keep us up to date when you can / Andromeda Gurl/ Alleypat Grand Prairie, Tx, USA, Earth http://members.home.com/andromedagurl ICQ: 12631861 AOL IM: DallasAlleyPat MSN: PJHauldren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Thanks, all. If nothing gets stupid on us. will be fine. He's just scared. Despite the fact that he's been shot once and strafed twice (he sutured the shot himself). He's having his problems with this. In his words: when that happened a. I had a gun. b. I was awake. For this surgery, I will be neither.I can see his point. However, the hernias are hurting badly enough that he's beginning to look forward to this......a little. Beats walking around holding your scrotum all day:-) His words not mine. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Thanks, all. If nothing gets stupid on us. will be fine. He's just scared. Despite the fact that he's been shot once and strafed twice (he sutured the shot himself). He's having his problems with this. In his words: when that happened a. I had a gun. b. I was awake. For this surgery, I will be neither.I can see his point. However, the hernias are hurting badly enough that he's beginning to look forward to this......a little. Beats walking around holding your scrotum all day:-) His words not mine. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Anne, Glad to hear that doesn't need angiop;asty but good luck on the hernia surgery and recooperation afterwards. Hope you are both doing fine otherwise. Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Anne, Glad to hear that doesn't need angiop;asty but good luck on the hernia surgery and recooperation afterwards. Hope you are both doing fine otherwise. Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Anne, Glad to hear that doesn't need angiop;asty but good luck on the hernia surgery and recooperation afterwards. Hope you are both doing fine otherwise. Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Anne, Glad to hear that doesn't need angiop;asty but good luck on the hernia surgery and recooperation afterwards. Hope you are both doing fine otherwise. Suzy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Dear Sandi, I don't want to sound overly optimistic, but had a homograft (valve and conduit) replacement which was quite calcified when she was 6 and in addition at the time the surgeon did some vavuloplasty on her aortic valve because it was quite leaky and rather incompetent. That particular valvuloplasty had not been too many times before and our cardiologist sees every 6 months for the echo and EKG and pacer check. Our cardiologist however always says to us that will need open heart surgery again " soon " . He has been saying that now for about 3 years. I don't know if that is because he is conservative or whether because it is hard to tell if the fluid dynamics and/or heart muscle will change because growth is so variable among children. I know that he is really serious when he wants to do a cardiac catheterization--and he hasn't asked for that yet. Still, we were able to delay her 2nd open heart surgery for about 1 year from the time the cardiologist stated that the surgery was a good idea. Of course every situation is different but I thought I'd share our experience with you. Martha (mom the Chrissy IgA deficiency etc.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Martha, I asked the Cardio if a PID would keep a child from calcifying as quickly. He said he has one case of a girl who had the same valve replaced when she was 3, and is still going strong ten years later--no signs of calcification. I wonder if that's what's going on with ? When I inquired about this, he told me it was possible, but not to count on it. What made me think of it is that rarely runs a temp, because his immune system just doesn't respond. The Doc assured me that most of his immuno compromised kids calcify at a normal rate. The other thing is, has a huge calcification on his chest where they went in the first time. It kind of looks and feels like a pacemaker that was put in the middle of his scar. So, I know his body is capable of reacting this way. Sandi, 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Dear Sandi, I'm sorry I wasn't clear about . did have signs of calcification when she had her 2nd open heart surgery. Because her first open heart surgery was done at one month of age, the conduit and replacement valve were extremely small and of course since the transplant doesn't grow that necessitated the 2nd surgery at 7 years of age. I suspect that with 's having IgA deficiency, there is more likely to be calcification because with there just seems to be more inflammation with allergies, weird reactions to food, bug bites and other reactions in general. I also remember the 2nd open heart operation being quite long because the surgeon had a hard time cutting through all the scar tissue to get down to the heart. --Martha (mom to Chrissy, IgA deficiency etc.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Hello Everyone, I have made my decision regarding ' heart surgery: we are going to wait. I had pretty much decided by Thursday, but then called his Ped because I wanted another opinion. I have known him for 27 years and he is an awesome person, someone I trust. So, he called the Cardio and they got their heads together and agreed with me that it should probably wait. The main thing for me is that most of the things that bother Bri are related to his PID, not his heart. If we replaced the valve now, and " started the clock ticking for a replacement " I'm not convinced he would feel much differently than he does now. So, WHEW, done with that for now. Maybe, being , he will surprise us all and it will be five years (before he needs the replacement)!!!! Thanks for the prayers and support. You guys are awesome. I hope everyone is having a great weekend. I think we are going to unwind from our week!! Sandi--Mom to , age 9. Suspected IgA def., Tetrology of Falot, chronic sinusitis, chronic ear infections, asthma, severe allergies, GERD. Ten surgeries, heart surgery pending. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 I'm glad you have a decision. The debating-what-to-do-stage can be excruciating. Hope continue to be stable! Pam wife to (15 years) mother to , 8, Hannah, 6, Rebekah, 2, and Leah, 1 Re: 's Surgery Hello Everyone, I have made my decision regarding ' heart surgery: we are going to wait. I had pretty much decided by Thursday, but then called his Ped because I wanted another opinion. I have known him for 27 years and he is an awesome person, someone I trust. So, he called the Cardio and they got their heads together and agreed with me that it should probably wait. The main thing for me is that most of the things that bother Bri are related to his PID, not his heart. If we replaced the valve now, and " started the clock ticking for a replacement " I'm not convinced he would feel much differently than he does now. So, WHEW, done with that for now. Maybe, being , he will surprise us all and it will be five years (before he needs the replacement)!!!! Thanks for the prayers and support. You guys are awesome. I hope everyone is having a great weekend. I think we are going to unwind from our week!! Sandi--Mom to , age 9. Suspected IgA def., Tetrology of Falot, chronic sinusitis, chronic ear infections, asthma, severe allergies, GERD. Ten surgeries, heart surgery pending. Quote Link to comment Share on other sites More sharing options...
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