Re: What does everyone do.......................

[Guest guest]

Cat, i. Have fibro and the brain doesn,t work so well when you have fibro.

Sometimes the words that come out of my mouth with fibro juat makes all laugh

hard.

There is some humour in illness sometimes. Best, marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Yes they have done a coupple of mri's in the neck thats where they found 2

herniated discs and did surgery for that and in my right shoulder where they

found a worn rotator and did surgery there but all the pain I had before both

surgeries is still there.... I have done tons of research even gone to webmd and

everything points to fibromyalgia or RA or Both together I even did a test one

time online that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as possible

fibromyalgia.... looks like I have to wait until I see a rheumotologist to know

whats up I hope and pray he has the answers......

is it just me or does anyone else here feel that the more pain youre in the

worse your memory is? that what it seems like to me atleast..... Like just a

couple weeks ago my neurologist put me on morphine for pain management.....

before that my memory was very poor but after going on it and the pain decreased

my memory got better.... and on days I feel lots of pain my memory goes poor

again.... I dont know was just wondering if anyone else was like this

take care and God Bless

Angel Hugs

Cat

---------------------------------

Don't be flakey. Get for Mobile and

always stay connected to friends.

[Guest guest]

Cat, i. Have fibro and the brain doesn,t work so well when you have fibro.

Sometimes the words that come out of my mouth with fibro juat makes all laugh

hard.

There is some humour in illness sometimes. Best, marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Yes they have done a coupple of mri's in the neck thats where they found 2

herniated discs and did surgery for that and in my right shoulder where they

found a worn rotator and did surgery there but all the pain I had before both

surgeries is still there.... I have done tons of research even gone to webmd and

everything points to fibromyalgia or RA or Both together I even did a test one

time online that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as possible

fibromyalgia.... looks like I have to wait until I see a rheumotologist to know

whats up I hope and pray he has the answers......

is it just me or does anyone else here feel that the more pain youre in the

worse your memory is? that what it seems like to me atleast..... Like just a

couple weeks ago my neurologist put me on morphine for pain management.....

before that my memory was very poor but after going on it and the pain decreased

my memory got better.... and on days I feel lots of pain my memory goes poor

again.... I dont know was just wondering if anyone else was like this

take care and God Bless

Angel Hugs

Cat

---------------------------------

Don't be flakey. Get for Mobile and

always stay connected to friends.

[Guest guest]

so this could be why my words sometimes come out jumbled or slurred or stuutered

even>>>> I was wondering what was doing that... its irritating because I cant

stand being laughed at.. heck I drool too this isnt much fun at all

I have applied for disability a couple of times but have been denied.... but if

they finally diagnos me with fibro then I will definitely be able to collect

because I cant help I cant work its not my fault i have whatever it is this is

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

so this could be why my words sometimes come out jumbled or slurred or stuutered

even>>>> I was wondering what was doing that... its irritating because I cant

stand being laughed at.. heck I drool too this isnt much fun at all

I have applied for disability a couple of times but have been denied.... but if

they finally diagnos me with fibro then I will definitely be able to collect

because I cant help I cant work its not my fault i have whatever it is this is

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

I would love to tell you that what you have is this or that - but there

are different symptoms for different people and different diseases. No

disease can be diagnosed on the internet - not even by a trained

Doctor. If you saw 16 Doctors with Training and they did not know - I

would hesitate to even guess. I am sure you are having pain - but for

one of us to tell you why is sort of hard. I do understand that it

leaves you frustrated and even angry - but as much as I hate to say it

- it will take a Doctor to tell you what's wrong. Hopefully you will

find one that can help you - and soon.

Megwin

On Jun 7, 2007, at 1:08 PM, Ayles wrote:

> can someone please answer this for me please??? I have posted my

> symptoms here before and noone ever replied I just want to know if

> anyone else has these same symptoms from what I have read most of you

> do but ive been trying to find out for 16 yrs now what is wrong with

> me and no doctors figured it out yet my next step is going to see a

> rheumotologist . I have had chronic pain on my right side for about 16

> years now....

> It started with my right shoulder then to my spine and to my right

> hip.

> I have seen several Doctors and have had many tests done on me...

> including checking for lupus and MS

> Not to mention surgeries done... on neck and rotator... The pain is

> from head to toe on my right side right down to my fingertips and down

> to my toes

> I get pins and needles, numbness, sharp aching pain, loss of feeling

> and usage.

> It feels like several nerves are being pinched.

> One being in my neck one in my shoulder one in my right buttuck.

> I noticed I have more pain in my lower back when I have excess gas or

> am constipated. The whole spine dont hurt constanly just sections of

> it... sometimes the entire spine hurts and it feels like its on fire.

> I feel so useless n ot being able to do any of my hiouse work and not

> go to work... someone please HELP!!!

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

[Guest guest]

I would love to tell you that what you have is this or that - but there

are different symptoms for different people and different diseases. No

disease can be diagnosed on the internet - not even by a trained

Doctor. If you saw 16 Doctors with Training and they did not know - I

would hesitate to even guess. I am sure you are having pain - but for

one of us to tell you why is sort of hard. I do understand that it

leaves you frustrated and even angry - but as much as I hate to say it

- it will take a Doctor to tell you what's wrong. Hopefully you will

find one that can help you - and soon.

Megwin

On Jun 7, 2007, at 1:08 PM, Ayles wrote:

> can someone please answer this for me please??? I have posted my

> symptoms here before and noone ever replied I just want to know if

> anyone else has these same symptoms from what I have read most of you

> do but ive been trying to find out for 16 yrs now what is wrong with

> me and no doctors figured it out yet my next step is going to see a

> rheumotologist . I have had chronic pain on my right side for about 16

> years now....

> It started with my right shoulder then to my spine and to my right

> hip.

> I have seen several Doctors and have had many tests done on me...

> including checking for lupus and MS

> Not to mention surgeries done... on neck and rotator... The pain is

> from head to toe on my right side right down to my fingertips and down

> to my toes

> I get pins and needles, numbness, sharp aching pain, loss of feeling

> and usage.

> It feels like several nerves are being pinched.

> One being in my neck one in my shoulder one in my right buttuck.

> I noticed I have more pain in my lower back when I have excess gas or

> am constipated. The whole spine dont hurt constanly just sections of

> it... sometimes the entire spine hurts and it feels like its on fire.

> I feel so useless n ot being able to do any of my hiouse work and not

> go to work... someone please HELP!!!

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

[Guest guest]

I do the same thing - a little at a time - a little every day. My House

is not as clean as it used to be - it does have the " lived in " look now

- but I am truly unable to do what I once could. Since nobody comes to

inspect - I can get away with it - and I do live alone - the dogs don't

seem to mind either. They never even clean up their own toys which I

think is terrible :-)

Megwin

On Jun 7, 2007, at 10:49 PM, Roni Molin wrote:

> I have lots of pain in my back and leg. I have found that if I break

> up the

> things I want to do into small pieces of time, and then rest in

> between,

> I can get some things accomplished. Sometimes it takes me a whole

> day to get done what used to take me about an hour, but little by

> little

> I manage to do it.

>

> Roni

>

[Guest guest]

I do the same thing - a little at a time - a little every day. My House

is not as clean as it used to be - it does have the " lived in " look now

- but I am truly unable to do what I once could. Since nobody comes to

inspect - I can get away with it - and I do live alone - the dogs don't

seem to mind either. They never even clean up their own toys which I

think is terrible :-)

Megwin

On Jun 7, 2007, at 10:49 PM, Roni Molin wrote:

> I have lots of pain in my back and leg. I have found that if I break

> up the

> things I want to do into small pieces of time, and then rest in

> between,

> I can get some things accomplished. Sometimes it takes me a whole

> day to get done what used to take me about an hour, but little by

> little

> I manage to do it.

>

> Roni

>

[Guest guest]

I did not expect someone here to give me a diagnosis I asked if anyone else had

these same symptoms

---------------------------------

We won't tell. Get more on shows you hate to love

(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

I did not expect someone here to give me a diagnosis I asked if anyone else had

these same symptoms

---------------------------------

We won't tell. Get more on shows you hate to love

(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

Hi Marsha,

I have been going to pain management for about 2 years now and have

tried just about everything. I have seen so many surgeons and done the

tens unit thing and bio feedback stuff and I am willing to try

anything. They just can't do anything yet with the bones pushing on

the spinal cord. I guess you could say that we are just waiting for my

back to collapse. It is just so upsetting to not be able to do

anything. I use to have a beautiful garden and vegetable garden also

and would can and freeze everything. I think I miss those the most.

No more golfing or doing crafts and I can not cook a meal any longer

without taking long breaks and needing lots of help. I just was

interested in what everyone else does to fill in the day when you can

do nothing.

Be Well,

june

> >

> > Junediann, i am sorry for what you are going thru. Have u gone for

> 2nd, 3rd, 4th. And 5th opinions? Also if you are able to get out of

> the house, it will help to take your mind off the pain. If you can,t

> leave the house. You can do volunteer work from home. Again it will

> take your mind off your. Good luck, marsha

> >

> >

> > Sent via BlackBerry from T-Mobile

> >

> > What does everyone

> do.......................

> >

> >

> > I have to ask....What does everybody do all day when you can't do

> > anything. The chronic pain and not sleeping at night is really

wearing

> > on me. When I do sleep it is usually between 3am to 8am then I will

> > get up but because of the pain I will be on the couch by 9 or 9:30.

> > Then it is up and down all day. There have been some days when I

am on

> > the couch all day. I want to get up do things but I can't handle the

> > pain.

> >

> > I had a car accident and broke 32 bones in my back. My worst pain is

> > in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> > without putting me in a wheelchair for the rest of my life. They say

> > my back will collapse and then I will be in the chair but I want to

> > walk as long as possible. It's like my upper back will not hold my

> > upper body up even with the braces on.

> >

> > junediann

> >

>

[Guest guest]

Hi Marsha,

I have been going to pain management for about 2 years now and have

tried just about everything. I have seen so many surgeons and done the

tens unit thing and bio feedback stuff and I am willing to try

anything. They just can't do anything yet with the bones pushing on

the spinal cord. I guess you could say that we are just waiting for my

back to collapse. It is just so upsetting to not be able to do

anything. I use to have a beautiful garden and vegetable garden also

and would can and freeze everything. I think I miss those the most.

No more golfing or doing crafts and I can not cook a meal any longer

without taking long breaks and needing lots of help. I just was

interested in what everyone else does to fill in the day when you can

do nothing.

Be Well,

june

> >

> > Junediann, i am sorry for what you are going thru. Have u gone for

> 2nd, 3rd, 4th. And 5th opinions? Also if you are able to get out of

> the house, it will help to take your mind off the pain. If you can,t

> leave the house. You can do volunteer work from home. Again it will

> take your mind off your. Good luck, marsha

> >

> >

> > Sent via BlackBerry from T-Mobile

> >

> > What does everyone

> do.......................

> >

> >

> > I have to ask....What does everybody do all day when you can't do

> > anything. The chronic pain and not sleeping at night is really

wearing

> > on me. When I do sleep it is usually between 3am to 8am then I will

> > get up but because of the pain I will be on the couch by 9 or 9:30.

> > Then it is up and down all day. There have been some days when I

am on

> > the couch all day. I want to get up do things but I can't handle the

> > pain.

> >

> > I had a car accident and broke 32 bones in my back. My worst pain is

> > in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> > without putting me in a wheelchair for the rest of my life. They say

> > my back will collapse and then I will be in the chair but I want to

> > walk as long as possible. It's like my upper back will not hold my

> > upper body up even with the braces on.

> >

> > junediann

> >

>

[Guest guest]

Cat,

Yes, 9 of them. We live in the corner of Nebraska and are close to

Denver, Co and Cheyenne, Wy so they send me everywhere without it

being too far. I even saw one doctor that the doctors in this area go

to for their back and neck problems, so I figure if he can't help me

now than no one can. My hip has been giving me problems also this

last year and they say it is because of my back and I might have to

have a hip replacement. The MRI will tell they say.

Be Well,

June

>

> wow June 9 neurosurgeons I have only one.... I cant stand or walk

long... my sciatica kicks in and when I walk it feels like my hip is

dislocating

> take care of you and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

>

[Guest guest]

Cat,

Yes, 9 of them. We live in the corner of Nebraska and are close to

Denver, Co and Cheyenne, Wy so they send me everywhere without it

being too far. I even saw one doctor that the doctors in this area go

to for their back and neck problems, so I figure if he can't help me

now than no one can. My hip has been giving me problems also this

last year and they say it is because of my back and I might have to

have a hip replacement. The MRI will tell they say.

Be Well,

June

>

> wow June 9 neurosurgeons I have only one.... I cant stand or walk

long... my sciatica kicks in and when I walk it feels like my hip is

dislocating

> take care of you and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

>

[Guest guest]

I have problems with my memory also but I thought it was from the

accident. I will go to say something and then lose whatever I talking

about. If you are going to apply for disability you better get going.

It took me 6 years to get it. They try to deny you on every little

thing. I have learned alot about how it works so if you need help let

me know. Just because your doctor says you are disabled doesn't mean

the SSD agrees.

Be Well,

June

>

> so this could be why my words sometimes come out jumbled or slurred

or stuutered even>>>> I was wondering what was doing that... its

irritating because I cant stand being laughed at.. heck I drool too

this isnt much fun at all

> I have applied for disability a couple of times but have been

denied.... but if they finally diagnos me with fibro then I will

definitely be able to collect because I cant help I cant work its not

my fault i have whatever it is this is

>

>

> ---------------------------------

> Shape in your own image. Join our Network Research Panel today!

>

>

[Guest guest]

I have problems with my memory also but I thought it was from the

accident. I will go to say something and then lose whatever I talking

about. If you are going to apply for disability you better get going.

It took me 6 years to get it. They try to deny you on every little

thing. I have learned alot about how it works so if you need help let

me know. Just because your doctor says you are disabled doesn't mean

the SSD agrees.

Be Well,

June

>

> so this could be why my words sometimes come out jumbled or slurred

or stuutered even>>>> I was wondering what was doing that... its

irritating because I cant stand being laughed at.. heck I drool too

this isnt much fun at all

> I have applied for disability a couple of times but have been

denied.... but if they finally diagnos me with fibro then I will

definitely be able to collect because I cant help I cant work its not

my fault i have whatever it is this is

>

>

> ---------------------------------

> Shape in your own image. Join our Network Research Panel today!

>

>

[Guest guest]

June,

I know what you mean about the garden. That was one thing that I didn’t

want to let go this year. I was lucky, I had covered the garden last year

with plastic and so over the winter it became this great soft soil with no

growth, it also helps that some of the stuff I have growing, grows on its

own like asparagus, and strawberries, raspberries etc. but I started seeds

inside in little containers and then planted a few here and there and

because the soil was so soft and wonderful, I didn’t need to work it at all,

just a little hole and the plant was in. I am thrilled to be able to see

all my vegetables growing. I know that some of them you can do in little

containers like the kind that you see in front of windows etc – could

someone help you to set that up? Or could someone rototill a space for you

to just do some planting? Sorry if this is even too hard for you. I just

really get a peace from even the little I can do there. Now weeding is a

real challenge but I get a little pad much like a pillow or a chair ( I have

a beach chair that is low to the ground) and I sit and pull a few after the

ground is soft, like when we had a rain. As long as the plants are taller

than the weeds or can still grow we are ok! I have been eating lettuce and

strawberries and asparagus from my garden and now have beets, carrots,

zucchini, watermelon, cucumbers, peppers, tomatoes and potatoes and some

herbs. My hubby has helped a lot of the set up- built the fence etc. I

also bought a garden weasel…I sort of just do it one handed. I know that

probably isn’t even an option and frankly probably not worth the effort it

requires but I wonder if you couldn’t get a window box and do a few things

in there? I have seen patio blueberries, strawberries and fruit plants too?

Another thing you could think about is getting books on tape and perhaps

that would be a great comfort and even learn a new language?

JP

Re: What does everyone

do.......................

I just was

interested in what everyone else does to fill in the day when you can

do nothing.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007

2:21 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007

2:21 PM

[Guest guest]

June,

I know what you mean about the garden. That was one thing that I didn’t

want to let go this year. I was lucky, I had covered the garden last year

with plastic and so over the winter it became this great soft soil with no

growth, it also helps that some of the stuff I have growing, grows on its

own like asparagus, and strawberries, raspberries etc. but I started seeds

inside in little containers and then planted a few here and there and

because the soil was so soft and wonderful, I didn’t need to work it at all,

just a little hole and the plant was in. I am thrilled to be able to see

all my vegetables growing. I know that some of them you can do in little

containers like the kind that you see in front of windows etc – could

someone help you to set that up? Or could someone rototill a space for you

to just do some planting? Sorry if this is even too hard for you. I just

really get a peace from even the little I can do there. Now weeding is a

real challenge but I get a little pad much like a pillow or a chair ( I have

a beach chair that is low to the ground) and I sit and pull a few after the

ground is soft, like when we had a rain. As long as the plants are taller

than the weeds or can still grow we are ok! I have been eating lettuce and

strawberries and asparagus from my garden and now have beets, carrots,

zucchini, watermelon, cucumbers, peppers, tomatoes and potatoes and some

herbs. My hubby has helped a lot of the set up- built the fence etc. I

also bought a garden weasel…I sort of just do it one handed. I know that

probably isn’t even an option and frankly probably not worth the effort it

requires but I wonder if you couldn’t get a window box and do a few things

in there? I have seen patio blueberries, strawberries and fruit plants too?

Another thing you could think about is getting books on tape and perhaps

that would be a great comfort and even learn a new language?

JP

Re: What does everyone

do.......................

I just was

interested in what everyone else does to fill in the day when you can

do nothing.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007

2:21 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.11/838 - Release Date: 6/7/2007

2:21 PM

[Guest guest]

I applied before for disability... got denied ... appealed it.... got denied and

forgot to appeal it again..... but this time I'm not gonna give up till I get

what I deserve.... who are ss to say I am not disabled when I cant even function

on a daily basis never mind go to work... I will just get a lawyer after I am

denied the 3rd time.... thats what I am told you have to do... A lawyer will not

step in till after they deny me 3 times...

Anywho... thats how it is in this state (Tennessee) at least .

Take care and May God Bless you and yours.

Angel Hugs

Cat

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

I applied before for disability... got denied ... appealed it.... got denied and

forgot to appeal it again..... but this time I'm not gonna give up till I get

what I deserve.... who are ss to say I am not disabled when I cant even function

on a daily basis never mind go to work... I will just get a lawyer after I am

denied the 3rd time.... thats what I am told you have to do... A lawyer will not

step in till after they deny me 3 times...

Anywho... thats how it is in this state (Tennessee) at least .

Take care and May God Bless you and yours.

Angel Hugs

Cat

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

June, S

So you must be somewhere near Kimball County then... I have in laws in Kimball

County.... Its beautiful out there ... we went there one yr on vacation...

I will probably have to have hip replacement on my right hip sometime in the

future all the women on my dad's side have bad right hips... never thought

something like that would be genetic...but mines been feeling likes its been

popping in and out of socket for about 10 yrs now... just nowadays I can't even

walk for 10 minutes down the road to my bank or to the library without being in

excruciating pain ...

Take Care and God Bless

Angel Hugs

Cat

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

[Guest guest]

June, S

So you must be somewhere near Kimball County then... I have in laws in Kimball

County.... Its beautiful out there ... we went there one yr on vacation...

I will probably have to have hip replacement on my right hip sometime in the

future all the women on my dad's side have bad right hips... never thought

something like that would be genetic...but mines been feeling likes its been

popping in and out of socket for about 10 yrs now... just nowadays I can't even

walk for 10 minutes down the road to my bank or to the library without being in

excruciating pain ...

Take Care and God Bless

Angel Hugs

Cat

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

[Guest guest]

June my heart goes out to you. Just don.t ever give up hope or give up fighting

back. Marsha

Sent via BlackBerry from T-Mobile

What does everyone

> do.......................

> >

> >

> > I have to ask....What does everybody do all day when you can't do

> > anything. The chronic pain and not sleeping at night is really

wearing

> > on me. When I do sleep it is usually between 3am to 8am then I will

> > get up but because of the pain I will be on the couch by 9 or 9:30.

> > Then it is up and down all day. There have been some days when I

am on

> > the couch all day. I want to get up do things but I can't handle the

> > pain.

> >

> > I had a car accident and broke 32 bones in my back. My worst pain is

> > in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> > without putting me in a wheelchair for the rest of my life. They say

> > my back will collapse and then I will be in the chair but I want to

> > walk as long as possible. It's like my upper back will not hold my

> > upper body up even with the braces on.

> >

> > junediann

> >

>

[Guest guest]

June my heart goes out to you. Just don.t ever give up hope or give up fighting

back. Marsha

Sent via BlackBerry from T-Mobile

What does everyone

> do.......................

> >

> >

> > I have to ask....What does everybody do all day when you can't do

> > anything. The chronic pain and not sleeping at night is really

wearing

> > on me. When I do sleep it is usually between 3am to 8am then I will

> > get up but because of the pain I will be on the couch by 9 or 9:30.

> > Then it is up and down all day. There have been some days when I

am on

> > the couch all day. I want to get up do things but I can't handle the

> > pain.

> >

> > I had a car accident and broke 32 bones in my back. My worst pain is

> > in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> > without putting me in a wheelchair for the rest of my life. They say

> > my back will collapse and then I will be in the chair but I want to

> > walk as long as possible. It's like my upper back will not hold my

> > upper body up even with the braces on.

> >

> > junediann

> >

>

[Guest guest]

Hi Junediann, and group.

This is my first post.

There were several years when I lived my life in a recliner. I live

alone, so I had to do for myself.

One of the things I did was put bookcases and tables around my chair

with everything I could think of that I might need, so I wouldn't

have to get up....water jugs, a jar of instant tea, coffee maker,

books, meds, cd player, walker, snacks, small microwave. I knew that

once I got to the chair I'd be there for hours, so I planned for that.

And once I got up, I did whatever needed to be done like quick meals,

feeding the cats etc. I had to break down everything I did into

steps. And sometimes all the steps to something like, emptying the

litter box, would take a couple days.

I made a list of the things I wanted to do, needed to do, and broke

it down over a week, and checked them off as I did them. And if I

couldn't do it on the day planned for that, I'd move it to another

day.

The list gave me a sense of order and accomplishment.

I put the chair by the picture window, and hung bird feeders so I

could watch the birds, and the seasons.

I spent hours each day listening to music with headphones, and

listened to the radio, to help make time pass.

This was before I had a computer, or cable and there's only one fuzzy

free tv station out here in the sticks, so the days were

long...especially if I didn't feel good enough to read.

I also journaled, just wrote down everything that was running through

my mind for 10 minutes or so.

What this forced me to do, was learn how to just be in the moment.

I had a small fish tank, and it may sound funny, but fish can be lots

of company, lol. I had get rid of the fish when I could no longer

clean the tank.

I also had water colors and brushes near my chair and played around

with those.

I also got one of those memory foam mattress pads and that really

helped with the pain at night. I made my own shoes from a pair of

those elastic water shoes, with foam shock absorbers and gel insoles.

These really helped my back and foot pain. I padded my recliner with

a piece of foam mattress pad. I also put throw rugs on the kitchen

floor because walking on tile was so painful. I should have had a

wheelchair, but my medical care at the time was woefully inadequate.

I hope some of this is helpful.

Maureen

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really

wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am

on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>