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Re: What does everyone do.......................

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Junediann, i am sorry for what you are going thru. Have u gone for 2nd, 3rd,

4th. And 5th opinions? Also if you are able to get out of the house, it will

help to take your mind off the pain. If you can,t leave the house. You can do

volunteer work from home. Again it will take your mind off your. Good luck,

marsha

Sent via BlackBerry from T-Mobile

What does everyone do.......................

I have to ask....What does everybody do all day when you can't do

anything. The chronic pain and not sleeping at night is really wearing

on me. When I do sleep it is usually between 3am to 8am then I will

get up but because of the pain I will be on the couch by 9 or 9:30.

Then it is up and down all day. There have been some days when I am on

the couch all day. I want to get up do things but I can't handle the

pain.

I had a car accident and broke 32 bones in my back. My worst pain is

in the upper back, T4-T7 are pushing on the spinal cord. No surgery

without putting me in a wheelchair for the rest of my life. They say

my back will collapse and then I will be in the chair but I want to

walk as long as possible. It's like my upper back will not hold my

upper body up even with the braces on.

junediann

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Junediann, i am sorry for what you are going thru. Have u gone for 2nd, 3rd,

4th. And 5th opinions? Also if you are able to get out of the house, it will

help to take your mind off the pain. If you can,t leave the house. You can do

volunteer work from home. Again it will take your mind off your. Good luck,

marsha

Sent via BlackBerry from T-Mobile

What does everyone do.......................

I have to ask....What does everybody do all day when you can't do

anything. The chronic pain and not sleeping at night is really wearing

on me. When I do sleep it is usually between 3am to 8am then I will

get up but because of the pain I will be on the couch by 9 or 9:30.

Then it is up and down all day. There have been some days when I am on

the couch all day. I want to get up do things but I can't handle the

pain.

I had a car accident and broke 32 bones in my back. My worst pain is

in the upper back, T4-T7 are pushing on the spinal cord. No surgery

without putting me in a wheelchair for the rest of my life. They say

my back will collapse and then I will be in the chair but I want to

walk as long as possible. It's like my upper back will not hold my

upper body up even with the braces on.

junediann

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Guest guest

, I am speaking for myself but there is not one person here who

would be medically qualified to try and diagnose any of your symptoms and if

they did they would be doing you a great injustice!!

I feel the group is more of a support of what goes on day to day and to try

and give each other a keep your chin up kind of thing. I do feel you need to

get an EMG and a complete scan done to figure out why and what is causing your

problems??

Best of luck,

Mark from Boston

************************************** See what's free at http://www.aol.com.

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, I am speaking for myself but there is not one person here who

would be medically qualified to try and diagnose any of your symptoms and if

they did they would be doing you a great injustice!!

I feel the group is more of a support of what goes on day to day and to try

and give each other a keep your chin up kind of thing. I do feel you need to

get an EMG and a complete scan done to figure out why and what is causing your

problems??

Best of luck,

Mark from Boston

************************************** See what's free at http://www.aol.com.

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June,

I took up quilting. I do hand piecing if I cant sit up and sew. And I

also scrap book, crochet, knit, and when I have really bad days, I rent

movies and lay down all day.

JP

What does everyone

do.......................

I have to ask....What does everybody do all day when you can't do

anything. The chronic pain and not sleeping at night is really wearing

on me. When I do sleep it is usually between 3am to 8am then I will

get up but because of the pain I will be on the couch by 9 or 9:30.

Then it is up and down all day. There have been some days when I am on

the couch all day. I want to get up do things but I can't handle the

pain.

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No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007 6:43

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June,

I took up quilting. I do hand piecing if I cant sit up and sew. And I

also scrap book, crochet, knit, and when I have really bad days, I rent

movies and lay down all day.

JP

What does everyone

do.......................

I have to ask....What does everybody do all day when you can't do

anything. The chronic pain and not sleeping at night is really wearing

on me. When I do sleep it is usually between 3am to 8am then I will

get up but because of the pain I will be on the couch by 9 or 9:30.

Then it is up and down all day. There have been some days when I am on

the couch all day. I want to get up do things but I can't handle the

pain.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007 6:43

PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007 6:43

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June,

I am so sorry to hear about your difficulties. I will be praying for you.

A lot of people who can't sleep because of pain have their docs prescribe Xanax.

It

tranquilizes the muscles in the body as well as the mind.

If you haven't tried it, you might talk to your doc.

I am not as bad off as you, but I am limited in many ways and I " feel " your

frustration.

God bless you, June.

(Pastor) Jim

<

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

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June,

I am so sorry to hear about your difficulties. I will be praying for you.

A lot of people who can't sleep because of pain have their docs prescribe Xanax.

It

tranquilizes the muscles in the body as well as the mind.

If you haven't tried it, you might talk to your doc.

I am not as bad off as you, but I am limited in many ways and I " feel " your

frustration.

God bless you, June.

(Pastor) Jim

<

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

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can someone please answer this for me please??? I have posted my symptoms here

before and noone ever replied I just want to know if anyone else has these same

symptoms from what I have read most of you do but ive been trying to find out

for 16 yrs now what is wrong with me and no doctors figured it out yet my next

step is going to see a rheumotologist . I have had chronic pain on my right side

for about 16 years now....

It started with my right shoulder then to my spine and to my right hip.

I have seen several Doctors and have had many tests done on me... including

checking for lupus and MS

Not to mention surgeries done... on neck and rotator... The pain is from head to

toe on my right side right down to my fingertips and down to my toes

I get pins and needles, numbness, sharp aching pain, loss of feeling and usage.

It feels like several nerves are being pinched.

One being in my neck one in my shoulder one in my right buttuck.

I noticed I have more pain in my lower back when I have excess gas or am

constipated. The whole spine dont hurt constanly just sections of it...

sometimes the entire spine hurts and it feels like its on fire. I feel so

useless n ot being able to do any of my hiouse work and not go to work...

someone please HELP!!!

---------------------------------

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Guest guest

can someone please answer this for me please??? I have posted my symptoms here

before and noone ever replied I just want to know if anyone else has these same

symptoms from what I have read most of you do but ive been trying to find out

for 16 yrs now what is wrong with me and no doctors figured it out yet my next

step is going to see a rheumotologist . I have had chronic pain on my right side

for about 16 years now....

It started with my right shoulder then to my spine and to my right hip.

I have seen several Doctors and have had many tests done on me... including

checking for lupus and MS

Not to mention surgeries done... on neck and rotator... The pain is from head to

toe on my right side right down to my fingertips and down to my toes

I get pins and needles, numbness, sharp aching pain, loss of feeling and usage.

It feels like several nerves are being pinched.

One being in my neck one in my shoulder one in my right buttuck.

I noticed I have more pain in my lower back when I have excess gas or am

constipated. The whole spine dont hurt constanly just sections of it...

sometimes the entire spine hurts and it feels like its on fire. I feel so

useless n ot being able to do any of my hiouse work and not go to work...

someone please HELP!!!

---------------------------------

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Check out fun summer activities for kids.

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Oh JP do I envy your ability to slow down like that. How does one come to

the conculsion that life just has to stop for these damn back problems.

Not to mention convince everyone else that we can't keep going. My husband

is still trying to find me jobs. I used to go 110 mph daily until about

2-3 yrs ago (didn't know I had the problems I did then) slowed down to

about 90 mph and now I feel like I'm at about 20 trying to get to 90...LOL

Last night I tried to work at the bar, no 'tenders and two teams of

volleyball, on my feet from 4pm-1:10am, had to lay down at the bar, then

take our business partner home 20 min drive both ways, and ended up

crashing at his place cause I was in tears with the excruciating pain.

This has to get better.......

Jackie

> June,

>

> I took up quilting. I do hand piecing if I cant sit up and sew. And I

> also scrap book, crochet, knit, and when I have really bad days, I rent

> movies and lay down all day.

>

> JP

>

>

>

> What does everyone

> do.......................

>

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007

> 6:43

> PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007

> 6:43

> PM

>

>

>

>

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Guest guest

Oh JP do I envy your ability to slow down like that. How does one come to

the conculsion that life just has to stop for these damn back problems.

Not to mention convince everyone else that we can't keep going. My husband

is still trying to find me jobs. I used to go 110 mph daily until about

2-3 yrs ago (didn't know I had the problems I did then) slowed down to

about 90 mph and now I feel like I'm at about 20 trying to get to 90...LOL

Last night I tried to work at the bar, no 'tenders and two teams of

volleyball, on my feet from 4pm-1:10am, had to lay down at the bar, then

take our business partner home 20 min drive both ways, and ended up

crashing at his place cause I was in tears with the excruciating pain.

This has to get better.......

Jackie

> June,

>

> I took up quilting. I do hand piecing if I cant sit up and sew. And I

> also scrap book, crochet, knit, and when I have really bad days, I rent

> movies and lay down all day.

>

> JP

>

>

>

> What does everyone

> do.......................

>

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007

> 6:43

> PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date: 6/4/2007

> 6:43

> PM

>

>

>

>

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Guest guest

I only wish I could do things like that my hands wont let me... they get all

cramped up and arthritic

---------------------------------

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I only wish I could do things like that my hands wont let me... they get all

cramped up and arthritic

---------------------------------

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Guest guest

June I am so sorry to hear about your accident.... you are in my thoughts and

prayers luv.... May God Bless You.....

---------------------------------

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June I am so sorry to hear about your accident.... you are in my thoughts and

prayers luv.... May God Bless You.....

---------------------------------

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Guest guest

thank you Mark..... I know noone here can diagnose me here was asking if anyones

symptoms were similar or even exactly the same.... I definitely feels yalls pain

though and I know it is hard to handle...

---------------------------------

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thank you Mark..... I know noone here can diagnose me here was asking if anyones

symptoms were similar or even exactly the same.... I definitely feels yalls pain

though and I know it is hard to handle...

---------------------------------

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with for Mobile. Get started.

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Hi Marsha,

We live in a rural town of about 2500 so there is not much to do. I do

live by the park and try to get out and walk around for a bit. I have

seen 9 neurosurgeons and go to pain management but they all say the

same thing. I just got disability. I can't walk or sit very long at a

time. I would have no idea as to volunteer work since I can't even sit..

be well,

June

>

> Junediann, i am sorry for what you are going thru. Have u gone for

2nd, 3rd, 4th. And 5th opinions? Also if you are able to get out of

the house, it will help to take your mind off the pain. If you can,t

leave the house. You can do volunteer work from home. Again it will

take your mind off your. Good luck, marsha

>

>

> Sent via BlackBerry from T-Mobile

>

> What does everyone

do.......................

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

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Guest guest

Hi Marsha,

We live in a rural town of about 2500 so there is not much to do. I do

live by the park and try to get out and walk around for a bit. I have

seen 9 neurosurgeons and go to pain management but they all say the

same thing. I just got disability. I can't walk or sit very long at a

time. I would have no idea as to volunteer work since I can't even sit..

be well,

June

>

> Junediann, i am sorry for what you are going thru. Have u gone for

2nd, 3rd, 4th. And 5th opinions? Also if you are able to get out of

the house, it will help to take your mind off the pain. If you can,t

leave the house. You can do volunteer work from home. Again it will

take your mind off your. Good luck, marsha

>

>

> Sent via BlackBerry from T-Mobile

>

> What does everyone

do.......................

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

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Guest guest

Have they done a MRI yet? It does sound like pinched nerves somewhere.

Have you looked at the WebMD.com site. They have a symptom checker

there on the front page that might help.

keep well,

june

>

> can someone please answer this for me please??? I have posted my

symptoms here before and noone ever replied I just want to know if

anyone else has these same symptoms from what I have read most of you

do but ive been trying to find out for 16 yrs now what is wrong with

me and no doctors figured it out yet my next step is going to see a

rheumotologist . I have had chronic pain on my right side for about 16

years now....

> It started with my right shoulder then to my spine and to my right hip.

> I have seen several Doctors and have had many tests done on me...

including checking for lupus and MS

> Not to mention surgeries done... on neck and rotator... The pain is

from head to toe on my right side right down to my fingertips and down

to my toes

> I get pins and needles, numbness, sharp aching pain, loss of feeling

and usage.

> It feels like several nerves are being pinched.

> One being in my neck one in my shoulder one in my right buttuck.

> I noticed I have more pain in my lower back when I have excess gas

or am constipated. The whole spine dont hurt constanly just sections

of it... sometimes the entire spine hurts and it feels like its on

fire. I feel so useless n ot being able to do any of my hiouse work

and not go to work... someone please HELP!!!

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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Guest guest

Have they done a MRI yet? It does sound like pinched nerves somewhere.

Have you looked at the WebMD.com site. They have a symptom checker

there on the front page that might help.

keep well,

june

>

> can someone please answer this for me please??? I have posted my

symptoms here before and noone ever replied I just want to know if

anyone else has these same symptoms from what I have read most of you

do but ive been trying to find out for 16 yrs now what is wrong with

me and no doctors figured it out yet my next step is going to see a

rheumotologist . I have had chronic pain on my right side for about 16

years now....

> It started with my right shoulder then to my spine and to my right hip.

> I have seen several Doctors and have had many tests done on me...

including checking for lupus and MS

> Not to mention surgeries done... on neck and rotator... The pain is

from head to toe on my right side right down to my fingertips and down

to my toes

> I get pins and needles, numbness, sharp aching pain, loss of feeling

and usage.

> It feels like several nerves are being pinched.

> One being in my neck one in my shoulder one in my right buttuck.

> I noticed I have more pain in my lower back when I have excess gas

or am constipated. The whole spine dont hurt constanly just sections

of it... sometimes the entire spine hurts and it feels like its on

fire. I feel so useless n ot being able to do any of my hiouse work

and not go to work... someone please HELP!!!

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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JP,

Thanks for the ideas. I just have a lot of my pain in the upper back

and it's hard to deal with the pain when I use my arms all the time. I

do have an embroidery machine and love to use it but it takes sitting

up all the time. Maybe I could get back to doing it in little splurts.

be well,

June

>

> June,

>

> I took up quilting. I do hand piecing if I cant sit up and sew. And I

> also scrap book, crochet, knit, and when I have really bad days, I rent

> movies and lay down all day.

>

> JP

>

>

>

> What does everyone

> do.......................

>

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007 6:43

> PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007 6:43

> PM

>

>

>

>

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JP,

Thanks for the ideas. I just have a lot of my pain in the upper back

and it's hard to deal with the pain when I use my arms all the time. I

do have an embroidery machine and love to use it but it takes sitting

up all the time. Maybe I could get back to doing it in little splurts.

be well,

June

>

> June,

>

> I took up quilting. I do hand piecing if I cant sit up and sew. And I

> also scrap book, crochet, knit, and when I have really bad days, I rent

> movies and lay down all day.

>

> JP

>

>

>

> What does everyone

> do.......................

>

>

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007 6:43

> PM

>

>

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007 6:43

> PM

>

>

>

>

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(cause I was in tears with the excruciating pain.)

Boy do I know what you mean by this statement. I had to lie down in

WalMart once because I just couldn't take it any longer. Try finding a

place in a store like that. lol

No way could I go as long as you do. Wish I could. I hate being able

to do nothing.

be well,

June

>

> Oh JP do I envy your ability to slow down like that. How does one

come to

> the conculsion that life just has to stop for these damn back problems.

> Not to mention convince everyone else that we can't keep going. My

husband

> is still trying to find me jobs. I used to go 110 mph daily until about

> 2-3 yrs ago (didn't know I had the problems I did then) slowed down to

> about 90 mph and now I feel like I'm at about 20 trying to get to

90...LOL

> Last night I tried to work at the bar, no 'tenders and two teams of

> volleyball, on my feet from 4pm-1:10am, had to lay down at the bar, then

> take our business partner home 20 min drive both ways, and ended up

> crashing at his place cause I was in tears with the excruciating pain.

> This has to get better.......

> Jackie

>

>

>

>

> > June,

> >

> > I took up quilting. I do hand piecing if I cant sit up and sew.

And I

> > also scrap book, crochet, knit, and when I have really bad days, I

rent

> > movies and lay down all day.

> >

> > JP

> >

> >

> >

> > What does everyone

> > do.......................

> >

> >

> >

> > I have to ask....What does everybody do all day when you can't do

> > anything. The chronic pain and not sleeping at night is really wearing

> > on me. When I do sleep it is usually between 3am to 8am then I will

> > get up but because of the pain I will be on the couch by 9 or 9:30.

> > Then it is up and down all day. There have been some days when I am on

> > the couch all day. I want to get up do things but I can't handle the

> > pain.

> >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007

> > 6:43

> > PM

> >

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.5.472 / Virus Database: 269.8.9/832 - Release Date:

6/4/2007

> > 6:43

> > PM

> >

> >

> >

> >

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