Re: What does everyone do.......................

[Guest guest]

Hi Junediann, and group.

This is my first post.

There were several years when I lived my life in a recliner. I live

alone, so I had to do for myself.

One of the things I did was put bookcases and tables around my chair

with everything I could think of that I might need, so I wouldn't

have to get up....water jugs, a jar of instant tea, coffee maker,

books, meds, cd player, walker, snacks, small microwave. I knew that

once I got to the chair I'd be there for hours, so I planned for that.

And once I got up, I did whatever needed to be done like quick meals,

feeding the cats etc. I had to break down everything I did into

steps. And sometimes all the steps to something like, emptying the

litter box, would take a couple days.

I made a list of the things I wanted to do, needed to do, and broke

it down over a week, and checked them off as I did them. And if I

couldn't do it on the day planned for that, I'd move it to another

day.

The list gave me a sense of order and accomplishment.

I put the chair by the picture window, and hung bird feeders so I

could watch the birds, and the seasons.

I spent hours each day listening to music with headphones, and

listened to the radio, to help make time pass.

This was before I had a computer, or cable and there's only one fuzzy

free tv station out here in the sticks, so the days were

long...especially if I didn't feel good enough to read.

I also journaled, just wrote down everything that was running through

my mind for 10 minutes or so.

What this forced me to do, was learn how to just be in the moment.

I had a small fish tank, and it may sound funny, but fish can be lots

of company, lol. I had get rid of the fish when I could no longer

clean the tank.

I also had water colors and brushes near my chair and played around

with those.

I also got one of those memory foam mattress pads and that really

helped with the pain at night. I made my own shoes from a pair of

those elastic water shoes, with foam shock absorbers and gel insoles.

These really helped my back and foot pain. I padded my recliner with

a piece of foam mattress pad. I also put throw rugs on the kitchen

floor because walking on tile was so painful. I should have had a

wheelchair, but my medical care at the time was woefully inadequate.

I hope some of this is helpful.

Maureen

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really

wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am

on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

[Guest guest]

Two b sailing

How are you doing now?

Marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Hi Junediann, and group.

This is my first post.

There were several years when I lived my life in a recliner. I live

alone, so I had to do for myself.

One of the things I did was put bookcases and tables around my chair

with everything I could think of that I might need, so I wouldn't

have to get up....water jugs, a jar of instant tea, coffee maker,

books, meds, cd player, walker, snacks, small microwave. I knew that

once I got to the chair I'd be there for hours, so I planned for that.

And once I got up, I did whatever needed to be done like quick meals,

feeding the cats etc. I had to break down everything I did into

steps. And sometimes all the steps to something like, emptying the

litter box, would take a couple days.

I made a list of the things I wanted to do, needed to do, and broke

it down over a week, and checked them off as I did them. And if I

couldn't do it on the day planned for that, I'd move it to another

day.

The list gave me a sense of order and accomplishment.

I put the chair by the picture window, and hung bird feeders so I

could watch the birds, and the seasons.

I spent hours each day listening to music with headphones, and

listened to the radio, to help make time pass.

This was before I had a computer, or cable and there's only one fuzzy

free tv station out here in the sticks, so the days were

long...especially if I didn't feel good enough to read.

I also journaled, just wrote down everything that was running through

my mind for 10 minutes or so.

What this forced me to do, was learn how to just be in the moment.

I had a small fish tank, and it may sound funny, but fish can be lots

of company, lol. I had get rid of the fish when I could no longer

clean the tank.

I also had water colors and brushes near my chair and played around

with those.

I also got one of those memory foam mattress pads and that really

helped with the pain at night. I made my own shoes from a pair of

those elastic water shoes, with foam shock absorbers and gel insoles.

These really helped my back and foot pain. I padded my recliner with

a piece of foam mattress pad. I also put throw rugs on the kitchen

floor because walking on tile was so painful. I should have had a

wheelchair, but my medical care at the time was woefully inadequate.

I hope some of this is helpful.

Maureen

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really

wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am

on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

[Guest guest]

Two b sailing

How are you doing now?

Marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Hi Junediann, and group.

This is my first post.

There were several years when I lived my life in a recliner. I live

alone, so I had to do for myself.

One of the things I did was put bookcases and tables around my chair

with everything I could think of that I might need, so I wouldn't

have to get up....water jugs, a jar of instant tea, coffee maker,

books, meds, cd player, walker, snacks, small microwave. I knew that

once I got to the chair I'd be there for hours, so I planned for that.

And once I got up, I did whatever needed to be done like quick meals,

feeding the cats etc. I had to break down everything I did into

steps. And sometimes all the steps to something like, emptying the

litter box, would take a couple days.

I made a list of the things I wanted to do, needed to do, and broke

it down over a week, and checked them off as I did them. And if I

couldn't do it on the day planned for that, I'd move it to another

day.

The list gave me a sense of order and accomplishment.

I put the chair by the picture window, and hung bird feeders so I

could watch the birds, and the seasons.

I spent hours each day listening to music with headphones, and

listened to the radio, to help make time pass.

This was before I had a computer, or cable and there's only one fuzzy

free tv station out here in the sticks, so the days were

long...especially if I didn't feel good enough to read.

I also journaled, just wrote down everything that was running through

my mind for 10 minutes or so.

What this forced me to do, was learn how to just be in the moment.

I had a small fish tank, and it may sound funny, but fish can be lots

of company, lol. I had get rid of the fish when I could no longer

clean the tank.

I also had water colors and brushes near my chair and played around

with those.

I also got one of those memory foam mattress pads and that really

helped with the pain at night. I made my own shoes from a pair of

those elastic water shoes, with foam shock absorbers and gel insoles.

These really helped my back and foot pain. I padded my recliner with

a piece of foam mattress pad. I also put throw rugs on the kitchen

floor because walking on tile was so painful. I should have had a

wheelchair, but my medical care at the time was woefully inadequate.

I hope some of this is helpful.

Maureen

>

> I have to ask....What does everybody do all day when you can't do

> anything. The chronic pain and not sleeping at night is really

wearing

> on me. When I do sleep it is usually between 3am to 8am then I will

> get up but because of the pain I will be on the couch by 9 or 9:30.

> Then it is up and down all day. There have been some days when I am

on

> the couch all day. I want to get up do things but I can't handle the

> pain.

>

> I had a car accident and broke 32 bones in my back. My worst pain is

> in the upper back, T4-T7 are pushing on the spinal cord. No surgery

> without putting me in a wheelchair for the rest of my life. They say

> my back will collapse and then I will be in the chair but I want to

> walk as long as possible. It's like my upper back will not hold my

> upper body up even with the braces on.

>

> junediann

>

[Guest guest]

Cat,

Yes, I live in Kimball. Small world isn't it.

Mine is the right hip also and mine feels like it pops out also and

then I can't move it at all. Oh the pain......

June

>

> June, S

> So you must be somewhere near Kimball County then... I have in laws

in Kimball County.... Its beautiful out there ... we went there one yr

on vacation...

> I will probably have to have hip replacement on my right hip

sometime in the future all the women on my dad's side have bad right

hips... never thought something like that would be genetic...but mines

been feeling likes its been popping in and out of socket for about 10

yrs now... just nowadays I can't even walk for 10 minutes down the

road to my bank or to the library without being in excruciating pain ...

> Take Care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship answers from someone

who knows.

> Answers - Check it out.

>

>

[Guest guest]

Cat,

Yes, I live in Kimball. Small world isn't it.

Mine is the right hip also and mine feels like it pops out also and

then I can't move it at all. Oh the pain......

June

>

> June, S

> So you must be somewhere near Kimball County then... I have in laws

in Kimball County.... Its beautiful out there ... we went there one yr

on vacation...

> I will probably have to have hip replacement on my right hip

sometime in the future all the women on my dad's side have bad right

hips... never thought something like that would be genetic...but mines

been feeling likes its been popping in and out of socket for about 10

yrs now... just nowadays I can't even walk for 10 minutes down the

road to my bank or to the library without being in excruciating pain ...

> Take Care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship answers from someone

who knows.

> Answers - Check it out.

>

>

[Guest guest]

I feel your pain June and dont like it much either... You take care of yourself

luv...

I will keep you in my prayers

Take Care God Bless

Angel Hugs

Cat

---------------------------------

Take the Internet to Go: Go puts the Internet in your pocket: mail, news,

photos & more.

[Guest guest]

I feel your pain June and dont like it much either... You take care of yourself

luv...

I will keep you in my prayers

Take Care God Bless

Angel Hugs

Cat

---------------------------------

Take the Internet to Go: Go puts the Internet in your pocket: mail, news,

photos & more.

[Guest guest]

Cat,

I have had Fibromyalgia diagnosed since 1994 and what you describe

sounds about right, especially the memory. When my pain is under

control, I function much better even if I'm on heavy meds. Good luck

on your Rheumatologist visit. Mine didn't do much for the

Fibromyalgia, he mostly looked after my Sjogren's Syndrome. My

Internist did most of the treating and was wonderful as we learned

together. My old Rheumy quit, so I have an appointment with a new

one in July, so I am hopeful that he will be better.

In April I had an Anterior Cervical Discectomy Fusion C5-6 and C6-7,

since I had stenosis and a herniated and bulging disc. I still have

my brace on and hope to get it off next Monday if fusing is going as

planned. Then we will see about the rest of my back and the rest of

my body. I've been waiting until I get the brace off to have a crown

done on a back tooth, double trigger finger surgery, and steroid

injections in my feet.

I consider myself healthy with a lot of Challenges.

Love, Pat

>

> Yes they have done a coupple of mri's in the neck thats where they

found 2 herniated discs and did surgery for that and in my right

shoulder where they found a worn rotator and did surgery there but

all the pain I had before both surgeries is still there.... I have

done tons of research even gone to webmd and everything points to

fibromyalgia or RA or Both together I even did a test one time online

that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as

possible fibromyalgia.... looks like I have to wait until I see a

rheumotologist to know whats up I hope and pray he has the

answers......

> is it just me or does anyone else here feel that the more pain

youre in the worse your memory is? that what it seems like to me

atleast..... Like just a couple weeks ago my neurologist put me on

morphine for pain management..... before that my memory was very poor

but after going on it and the pain decreased my memory got better....

and on days I feel lots of pain my memory goes poor again.... I dont

know was just wondering if anyone else was like this

> take care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

>

[Guest guest]

Cat,

I have had Fibromyalgia diagnosed since 1994 and what you describe

sounds about right, especially the memory. When my pain is under

control, I function much better even if I'm on heavy meds. Good luck

on your Rheumatologist visit. Mine didn't do much for the

Fibromyalgia, he mostly looked after my Sjogren's Syndrome. My

Internist did most of the treating and was wonderful as we learned

together. My old Rheumy quit, so I have an appointment with a new

one in July, so I am hopeful that he will be better.

In April I had an Anterior Cervical Discectomy Fusion C5-6 and C6-7,

since I had stenosis and a herniated and bulging disc. I still have

my brace on and hope to get it off next Monday if fusing is going as

planned. Then we will see about the rest of my back and the rest of

my body. I've been waiting until I get the brace off to have a crown

done on a back tooth, double trigger finger surgery, and steroid

injections in my feet.

I consider myself healthy with a lot of Challenges.

Love, Pat

>

> Yes they have done a coupple of mri's in the neck thats where they

found 2 herniated discs and did surgery for that and in my right

shoulder where they found a worn rotator and did surgery there but

all the pain I had before both surgeries is still there.... I have

done tons of research even gone to webmd and everything points to

fibromyalgia or RA or Both together I even did a test one time online

that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as

possible fibromyalgia.... looks like I have to wait until I see a

rheumotologist to know whats up I hope and pray he has the

answers......

> is it just me or does anyone else here feel that the more pain

youre in the worse your memory is? that what it seems like to me

atleast..... Like just a couple weeks ago my neurologist put me on

morphine for pain management..... before that my memory was very poor

but after going on it and the pain decreased my memory got better....

and on days I feel lots of pain my memory goes poor again.... I dont

know was just wondering if anyone else was like this

> take care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

>

[Guest guest]

Hi Pat, Wow I am glad you are so positive about it all. I am hoping after it is

finally diagnosed I am too. Which doctor found the fibro? Good luck today I will

keep you in my thoughts and prayers.

Angel Hugs

Cat

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

Hi Pat, Wow I am glad you are so positive about it all. I am hoping after it is

finally diagnosed I am too. Which doctor found the fibro? Good luck today I will

keep you in my thoughts and prayers.

Angel Hugs

Cat

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

Pat, i love that " healthy with a lot of challenges " . Marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Cat,

I have had Fibromyalgia diagnosed since 1994 and what you describe

sounds about right, especially the memory. When my pain is under

control, I function much better even if I'm on heavy meds. Good luck

on your Rheumatologist visit. Mine didn't do much for the

Fibromyalgia, he mostly looked after my Sjogren's Syndrome. My

Internist did most of the treating and was wonderful as we learned

together. My old Rheumy quit, so I have an appointment with a new

one in July, so I am hopeful that he will be better.

In April I had an Anterior Cervical Discectomy Fusion C5-6 and C6-7,

since I had stenosis and a herniated and bulging disc. I still have

my brace on and hope to get it off next Monday if fusing is going as

planned. Then we will see about the rest of my back and the rest of

my body. I've been waiting until I get the brace off to have a crown

done on a back tooth, double trigger finger surgery, and steroid

injections in my feet.

I consider myself healthy with a lot of Challenges.

Love, Pat

>

> Yes they have done a coupple of mri's in the neck thats where they

found 2 herniated discs and did surgery for that and in my right

shoulder where they found a worn rotator and did surgery there but

all the pain I had before both surgeries is still there.... I have

done tons of research even gone to webmd and everything points to

fibromyalgia or RA or Both together I even did a test one time online

that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as

possible fibromyalgia.... looks like I have to wait until I see a

rheumotologist to know whats up I hope and pray he has the

answers......

> is it just me or does anyone else here feel that the more pain

youre in the worse your memory is? that what it seems like to me

atleast..... Like just a couple weeks ago my neurologist put me on

morphine for pain management..... before that my memory was very poor

but after going on it and the pain decreased my memory got better....

and on days I feel lots of pain my memory goes poor again.... I dont

know was just wondering if anyone else was like this

> take care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

>

[Guest guest]

Pat, i love that " healthy with a lot of challenges " . Marsha

Sent via BlackBerry from T-Mobile

Re: What does everyone

do.......................

Cat,

I have had Fibromyalgia diagnosed since 1994 and what you describe

sounds about right, especially the memory. When my pain is under

control, I function much better even if I'm on heavy meds. Good luck

on your Rheumatologist visit. Mine didn't do much for the

Fibromyalgia, he mostly looked after my Sjogren's Syndrome. My

Internist did most of the treating and was wonderful as we learned

together. My old Rheumy quit, so I have an appointment with a new

one in July, so I am hopeful that he will be better.

In April I had an Anterior Cervical Discectomy Fusion C5-6 and C6-7,

since I had stenosis and a herniated and bulging disc. I still have

my brace on and hope to get it off next Monday if fusing is going as

planned. Then we will see about the rest of my back and the rest of

my body. I've been waiting until I get the brace off to have a crown

done on a back tooth, double trigger finger surgery, and steroid

injections in my feet.

I consider myself healthy with a lot of Challenges.

Love, Pat

>

> Yes they have done a coupple of mri's in the neck thats where they

found 2 herniated discs and did surgery for that and in my right

shoulder where they found a worn rotator and did surgery there but

all the pain I had before both surgeries is still there.... I have

done tons of research even gone to webmd and everything points to

fibromyalgia or RA or Both together I even did a test one time online

that I had found to see if it was fibro I thought I did it @ webmd

but I went back there and didnt find it but the results came back as

possible fibromyalgia.... looks like I have to wait until I see a

rheumotologist to know whats up I hope and pray he has the

answers......

> is it just me or does anyone else here feel that the more pain

youre in the worse your memory is? that what it seems like to me

atleast..... Like just a couple weeks ago my neurologist put me on

morphine for pain management..... before that my memory was very poor

but after going on it and the pain decreased my memory got better....

and on days I feel lots of pain my memory goes poor again.... I dont

know was just wondering if anyone else was like this

> take care and God Bless

> Angel Hugs

> Cat

>

>

> ---------------------------------

> Don't be flakey. Get for Mobile and

> always stay connected to friends.

>

>