Is there a cure?

[Guest guest]

Rick,

That is the best advice that I have seen, the

emotional upheaval that this disease causes is

ubelievable.

It seems that you can go along for months and

everything goes back to normal (whatever that is) and

then the ugly dragon rears up again.

Thank you for applauding your wife and how wonderful

she is.

Sometimes I think that the ones who are the caretakers

should have a forum, that might be helpfulvery helpful

as well.

Blessings to you and your wife. Thank goodness for

this group, I get a lot of support from this list.

NoeLani

--- Rick Kipp <rickkipp@...> wrote:

> First of all, is he on and antidepressants?? Most of

> us have been or

> are still on them, like myself. He sounds depressed,

> so please ask

> your Doc when you see him. Usually, you don't need a

> shrink to

> prescribe, like I need my first tx 12 years ago.

> Last 2 tx, the GI

> Doc took care of it. It's almost automatic nowadays.

> Also, you and

> your hubby HAVE to get together in a positive way.

> If it weren't for

> my wife, I don't think I'd still be here. Now I'm

> afraid I really

> rely on her, but she goes to all my appointments

> with me, and is a

> very hands on type of woman. Sorta like You, sound

> like!! Right now

> you feel helpless and lost. If you can sit down with

> you husband and

> can quietly discuss everything, please do so ASAP.

> Print and show him

> all the advice and experiences you have received

> from this forum. If

> he wishes to call me, I will gladly provide my phone

> number in a

> private email. I certainly don't know it all,

> learning all the time,

> but referring to google and back to this board

> should answer all your

> questions. Your husband needs to here this also.

> Don't take his

> verbal abuse too personal, he'll regret ever saying

> any of it. And,

> yes, the disease and treatment does some very

> strange things to your

> head!! It's happened to probably all of us. Hang

> tough, kiddo, it

> will get better, believe me!

>

> ...the answers to

> your

> > questions have general statistical patterns, but

> vary

> > > widely all over the place with individuals.

> > >

> > > > -----Original Message-----

> > > Is there a cure?

> > > >

> > > >

> > > > My husband has hepatitic c and his dr. has him

> on pills and

> shots

> > for

> > > > 6 months. Does this stuff really work?

> > >

> > > ...sometimes. the odds in general depend on the

> genotype of the

> > viruse he

> > > has. then there's his personal factors...his

> immune system,

> > lifestyle,

> > > attitude, stress levels, etc.

> > >

> > > I mean if you get cured are

> > > > you cured for life?

> > >

> > > ...sometimes, but rarely. pretty much the same

> answer as above.

> > > a small percent of people manage to clear it on

> their own by the

> > power of

> > > their immune system.

> > > most commonly it comes back after some years,

> but the longer you

> > stay clear

> > > the more likely you'll continue to.

> > >

> > > Does it ever come back later on?

> > >

> > > ...it's generally accepted that getting virus

> free is a state of

> > remission,

> > > not a cure. how to define a " cure " for this? if

> you think in

> terms

> > of

> > > being 100% virus free, there is no known cure,

> but some people

> > might get

> > > there, again depending on the stuff in the

> answers above. one

> never

> > really

> > > knows if there's still a few virus hanging out

> somewhere

> hidden...

> > so it's a

> > > matter of maintaining the healthy lifestyle and

> attitudes and

> > getting tested

> > > once in awhile to keep an eye (and an upper

> hand)on it.

> > >

> > > Does anyone

> > > > know the answer to these questions?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> removed]

> > >

> >

> >

>

=== message truncated ===

________________________________________________________________________________\

____

Have a burning question?

Go to www.Answers. and get answers from real people who know.

[Guest guest]

Hey,

I thought this list was supposed to be a sounding

board for those in need, is having a tough time,

I know she might be asking a lot of questions but she

is walking through a bad time and is trying to

understand what her husband is going through and being

a newlywed as well is an added twist to this dragon of

a disease.

Lighten up and play nice.

NoeLani

--- Arthur DeLong <adelongnace3@...> wrote:

> SUSAN BUNDY, PLEASE REMOVE ME FROM YOUR MAILING

> LIST. I DON'T HAVE TIME TO READ 10 E-MAILS A DAY.

>

> Bundy <suzbundy@...> wrote:

> Oh ok. Yes I have been tested and it was negative.

> His dr. said there was a 5% chance that it could be

> passed sexually. Immediatly we got seperate rooms.

> He has just weired out so much I never know what he

> is going to be like from one hour to the next. We

> don't share any of those items you metioned. I try

> and be very careful and cautious about everything.

> It has taken a huge toll on our marriage of only 9

> months. Newlyweds we aren't and it's sad we still

> should be on our honeymoon. I just don't know how to

> help me and he won't let me. I have suggested

> marriage counceling and he refused.

>

> bob Larson <bobLists@...> wrote:

> hubby,after he clears the virus. have you been

> tested? if you're negative,

> great. you have to get his blood into yours to catch

> it. this needn't mess

> with sex life, which can be important for you both

> to keep both your

> energies up and balanced well. without condoms, no

> unnecessary roughness,

> chances of passing it are something like 1:1000

> maybe less, i forget.

> don't share razors, toothbrushes, or anything where

> blood could be involved.

> bleeding gums/dental infections can be a way it can

> get in. it won't make

> it through the stomach.

>

> > Re: Re: Is

> there a cure?

> > >

> > >

> > > Thanks guys. I am not really sure what genotype

> we go back to

> > > the dr. Friday and I will ask those questions.

> He had a liver

> > > biopsy and his dr. said on a scale of 1-4 with 4

> being the worse

> > > he had 1 Cirrhosis of the liver. His dr. is

> saying he has to be

> > > on this medication for 6 months then if he test

> negative they

> > > will test him again in 6 months if he still test

> negative then he

> > > is cured and they will test again in 2 years and

> it should still

> > > be negative and it shouldn't ever come back?

> What are your

> > views on this?

> > >

> > > hutchinsonhepper <hutchinsonhepper@...>

> wrote: I

> > > would have to say.....what genotype does he have

> and have they done a

> > > liver biopsy? I was on it for 6

> months......started with a viral load

> > > of 13 million 6 months later was down to 930,000

> viral load....I quit

> > > responding cause I am a genotype 1A and stage 4

> Hep C

> > > victim........keep your chin up this stuff

> changes it's own mind all

> > > the time....

> > >

> > > Good Luck

> > >

> > >

> > >

> > > >

> > > > My husband has hepatitic c and his dr. has him

> on pills and shots for

> > > > 6 months. Does this stuff really work? I mean

> if you get cured are

> > > > you cured for life? Does it ever come back

> later on? Does anyone

> > > > know the answer to these questions?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> removed]

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks, Rick.

The Dr. put him on Lexapro Friday and suggested strongly that we go to

counceling. But my husband refuses. So I feel I am still back at square one.

Rick Kipp <rickkipp@...> wrote:

Sounds like you have 2 major problems now. Methinks you must separate

them, and deal with them: Your marriage should be primary. If you can

reconcile at all, do so. None of us are quaranteed a life with one

spouse and without setbacks and without diseases. I'm on my third

marriage, and we've been together 22 years, doing very well. So, try

to reconcile any way you can. Perhaps before you next see the Doc,

you could email or fax him/her just what you're saying here. Get the

Doc in the middle by having them talk to your hub, and prescribing

anti-depressents. It is usually quite visible to others that he is

depressed. Some of my Docs have also asked me or my wife how we are

getting along, because a good Doc realizes the needs of the both of

you. You'll never make it alone, and he needs you, too. Just hang on

while your Doc works on his depression, and try to avoid conflict.

Stress and internal conflicts are indeed very dangerous for all of

us, but expecially for him going through Tx. So, vent here in the

forums, and try to give your relationship some time, especially if

the Doc puts him on something.

In Hepatitis C , Bundy <suzbundy@...>

wrote:

>

> Thanks Rick. No he is not on any antidepressants. I try so hard

to understand what he is going though and be there for him but he

just keeps shoving me away further and further we have seperate rooms

and have had for several months and that makes things even worse he

shuts me out completely I try hard to get in I really do but he

doesn't want me there. I really don't know what else to do?

>

> Rick Kipp <rickkipp@...> wrote: First of all, is he on and

antidepressants?? Most of us have been or

> are still on them, like myself. He sounds depressed, so please ask

> your Doc when you see him. Usually, you don't need a shrink to

> prescribe, like I need my first tx 12 years ago. Last 2 tx, the GI

> Doc took care of it. It's almost automatic nowadays. Also, you and

> your hubby HAVE to get together in a positive way. If it weren't

for

> my wife, I don't think I'd still be here. Now I'm afraid I really

> rely on her, but she goes to all my appointments with me, and is a

> very hands on type of woman. Sorta like You, sound like!! Right now

> you feel helpless and lost. If you can sit down with you husband

and

> can quietly discuss everything, please do so ASAP. Print and show

him

> all the advice and experiences you have received from this forum.

If

> he wishes to call me, I will gladly provide my phone number in a

> private email. I certainly don't know it all, learning all the

time,

> but referring to google and back to this board should answer all

your

> questions. Your husband needs to here this also. Don't take his

> verbal abuse too personal, he'll regret ever saying any of it. And,

> yes, the disease and treatment does some very strange things to

your

> head!! It's happened to probably all of us. Hang tough, kiddo, it

> will get better, believe me!

>

> ...the answers to your

> > questions have general statistical patterns, but vary

> > > widely all over the place with individuals.

> > >

> > > > -----Original Message-----

> > > Is there a cure?

> > > >

> > > >

> > > > My husband has hepatitic c and his dr. has him on pills and

> shots

> > for

> > > > 6 months. Does this stuff really work?

> > >

> > > ...sometimes. the odds in general depend on the genotype of the

> > viruse he

> > > has. then there's his personal factors...his immune system,

> > lifestyle,

> > > attitude, stress levels, etc.

> > >

> > > I mean if you get cured are

> > > > you cured for life?

> > >

> > > ...sometimes, but rarely. pretty much the same answer as above.

> > > a small percent of people manage to clear it on their own by

the

> > power of

> > > their immune system.

> > > most commonly it comes back after some years, but the longer

you

> > stay clear

> > > the more likely you'll continue to.

> > >

> > > Does it ever come back later on?

> > >

> > > ...it's generally accepted that getting virus free is a state

of

> > remission,

> > > not a cure. how to define a " cure " for this? if you think in

> terms

> > of

> > > being 100% virus free, there is no known cure, but some people

> > might get

> > > there, again depending on the stuff in the answers above. one

> never

> > really

> > > knows if there's still a few virus hanging out somewhere

> hidden...

> > so it's a

> > > matter of maintaining the healthy lifestyle and attitudes and

> > getting tested

> > > once in awhile to keep an eye (and an upper hand)on it.

> > >

> > > Does anyone

> > > > know the answer to these questions?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thank you Bob, I was offended by that. I am not writing to him directly.

bob Larson <bobLists@...> wrote: if she's writing to you

direct, then how about taking that in a direct

reply?

otherwise, when you see her name in group posts and you don't want to read

them you have a handy dandy delete key...it works on my posts too, or anyone

elses.

she's new to this problem, and will soon be up tospeed with the basics, then

i'm sure will slow down here like everyone else, unless she has issues to

deal with which is what we're here for mostly, right?

> Re: Re: Is there a cure?

> > >

> > >

> > > Thanks guys. I am not really sure what genotype we go back to

> > > the dr. Friday and I will ask those questions. He had a liver

> > > biopsy and his dr. said on a scale of 1-4 with 4 being the worse

> > > he had 1 Cirrhosis of the liver. His dr. is saying he has to be

> > > on this medication for 6 months then if he test negative they

> > > will test him again in 6 months if he still test negative then he

> > > is cured and they will test again in 2 years and it should still

> > > be negative and it shouldn't ever come back? What are your

> > views on this?

> > >

> > > hutchinsonhepper <hutchinsonhepper@...> wrote: I

> > > would have to say.....what genotype does he have and have they done a

> > > liver biopsy? I was on it for 6 months......started with a viral load

> > > of 13 million 6 months later was down to 930,000 viral load....I quit

> > > responding cause I am a genotype 1A and stage 4 Hep C

> > > victim........keep your chin up this stuff changes it's own mind all

> > > the time....

> > >

> > > Good Luck

> > >

> > >

> > >

> > > >

> > > > My husband has hepatitic c and his dr. has him on pills and

> shots for

> > > > 6 months. Does this stuff really work? I mean if you get cured are

> > > > you cured for life? Does it ever come back later on? Does anyone

> > > > know the answer to these questions?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

On Jan 22, 2007, at 9:54 AM, Bundy wrote:

> Thanks, Rick.

> The Dr. put him on Lexapro Friday and suggested strongly that we

> go to counceling. But my husband refuses. So I feel I am still

> back at square one.

>

Think of it as square 1a, the fact that he is on the meds is

definite movement.. You might want to consider counselling on your

own, it certainly couldn't hurt and the theapist might have some tips

for getting him involved. The worst that can happen is you get some

help to handle the hooha in the relationship. When the medicines kick

in (the bad news being that it might 14 days or more until they do

kick in) then you already have a relationship with the therapist when/

if he decides he is ready.

I have worked mainly in-patient over the years, so even to me

outpatient therapy is sort of a blob, but you might consider checking

in with the hepatitis

doc's nurses or office to see if they have anyone they use that

specializes in working with this subgroup.

Good Luck and good hunting.

[Guest guest]

Thank you, his Dr. gave him the name of someone Friday but he hasn't given it to

me yet says there is no need for it. I am going to put a call into the Dr.

today and get the name and go ahead and make the appointment and tell him if he

wants to come fine but I am going with or without him. I feel I / we need this

right now.

Kurt Ullman <kurtullman@...> wrote:

On Jan 22, 2007, at 9:54 AM, Bundy wrote:

> Thanks, Rick.

> The Dr. put him on Lexapro Friday and suggested strongly that we

> go to counceling. But my husband refuses. So I feel I am still

> back at square one.

>

Think of it as square 1a, the fact that he is on the meds is

definite movement.. You might want to consider counselling on your

own, it certainly couldn't hurt and the theapist might have some tips

for getting him involved. The worst that can happen is you get some

help to handle the hooha in the relationship. When the medicines kick

in (the bad news being that it might 14 days or more until they do

kick in) then you already have a relationship with the therapist when/

if he decides he is ready.

I have worked mainly in-patient over the years, so even to me

outpatient therapy is sort of a blob, but you might consider checking

in with the hepatitis

doc's nurses or office to see if they have anyone they use that

specializes in working with this subgroup.

Good Luck and good hunting.

[Guest guest]

On Jan 22, 2007, at 10:35 AM, Bundy wrote:

> Thank you, his Dr. gave him the name of someone Friday but he

> hasn't given it to me yet says there is no need for it. I am going

> to put a call into the Dr. today and get the name and go ahead and

> make the appointment and tell him if he wants to come fine but I am

> going with or without him. I feel I / we need this right now.

>

Go for it. At this point you need to do what you need to do to

keep YOUR OWN head above water. The rest is gravy. Then when he comes

around either to

the idea of therapist or at least the meds help him be less of a

jerk, you are able to help him when he is ready. Don't worry ONLY

about him at this point, your mental health is ALSO very important.

Good luck

K

[Guest guest]

Thank you and I couldn't agree more.

Kurt Ullman <kurtullman@...> wrote:

On Jan 22, 2007, at 10:35 AM, Bundy wrote:

> Thank you, his Dr. gave him the name of someone Friday but he

> hasn't given it to me yet says there is no need for it. I am going

> to put a call into the Dr. today and get the name and go ahead and

> make the appointment and tell him if he wants to come fine but I am

> going with or without him. I feel I / we need this right now.

>

Go for it. At this point you need to do what you need to do to

keep YOUR OWN head above water. The rest is gravy. Then when he comes

around either to

the idea of therapist or at least the meds help him be less of a

jerk, you are able to help him when he is ready. Don't worry ONLY

about him at this point, your mental health is ALSO very important.

Good luck

K

[Guest guest]

hey Annette - hope they have good water there!

if you mean me re down on donsbach from recent posts, i'm not really down on

him... i certainly do find his backround suspicious and take him with a

great deal of scepticism...i haven't heard his side of the story either, nor

do i expect to.

whatever his level of greed/corruption might be, it's results that matter,

and he does seem to have some good formulas together and has a good enough

mind to survive on a radio show.

so, all that being said, i and possibly others on here would be interested

in the hospital santa monica hep program, esp in the case of your apparent

autoimmune version. any and all details of testing, protocols for

cleansing/protecting/regenerating the liver, killing the virus, etc etc

would be very welcome in my inbox.

glad to hear you're getting some relief, hope it'll work.

cheers,

bobL

> Re: Re: Is there a cure?

>

>

> 1-19-07

>

> Hello ,

>

> My name is Annette, I am in Utah, and I have liver disease other

> than Hep C. I was diagnosed on 10-5-06 because my enzymes were

> HUGE 1700 and 1300, bilirubin 7.7. Norms are about 50 high, and

> 1.5 on the bilirubin.

>

> The folks at this Hepatitis group are wonderful and so helpful;

> however, my husband and I, after examining all our options

> decided NOT to do the orthodox recommended treatment tests other

> than blood work and ultrasound. (These tests were done and have

> ruled out Hep A,B,C, Wilcox, cancer and blocked ducts.

> Conclusion: I have autoimmune disease)

>

> After thorough research and discussing my reports with several

> doctors, we have also concluded my disease was caused by

> toxin/lumbar steroid injections I received for a herniated disk

> in my back that took place Jan,Feb,Mar 2006. To further

> exacerbate the problem I was taking huge amounts of Advil,

> Tylenol with codeine and Hydrocodone for the back pain ... all

> very bad for the liver.

>

> To date I have refused the biopsy and any other orthodox medical

> treatment as we do not believe they will help only hurt or cause

> side affects.

>

> I am now in Mexico at a wholistic treatment hospital called

> “Hospital Santa ”. The originator is Dr. Kurt Donsbach.

> (There are friends in this group who have very negative

> opinions about Dr. Donsbach, and surely they will share their feelings.)

>

> Dr. D’s opinion about biopsy is: " It's like taking a balloon,

> filling it with ink, submerging it into a tank of water then

> puncturing it with a needle, then remove the needle. " (draw your

> own conclusions)

>

> There are currently patients at the hospital who have shared

> their experiences with biopsy’s and the consensus is that many of

> the organs that had cancer and subsequently biopsied caused the

> cancer to spread. Many have told me that they didn’t feel bad

> until the biopsy. I know that most of the members of this group

> fully recommend having the biopsy to KNOW what type of hep you

> have or what condition your liver be in. I disagree with that

> opinion as I choose not to do any of the treatments whatever the

> “findings”.

>

> Therefore, we are opting to heal the body and my immune system to

> eradicate the problem without any invasive treatments other than

> xray, mri, ultrasound, urine or blood tests. Dr. D’s protocol for

> me is many different supplements, detox and neuropeptide injections.

>

> I already feel better after only 5 days of treatment … appetite

> has returned as the nausea is gone, energy back, sleeping again.

> I will be here another 10 days for continued treatment then

> follow the regime at home for a year.

>

> You ask is there a cure? It appears not. But IF you control it

> and feel ok … and you’re not in danger … it makes no difference to me.

>

> I hope I haven’t overloaded this message with too much

> information, I just wanted to share what we have chosen as my

> path of healing.

>

> If you’d like to communicate with me privately, I’m available at:

> treeoflifebiblestudy@...

>

> May God lead you to your own peace and well being.

> *^*^*^*^*^*^*^*^*^*^*^*^*^*^*

> Annette Meisner ;~>

> http://www.angelfire.com/or/TREEOFLIFE

> Bible lessons

> *^*^*^*^*^*^*^*^*^*^*^*^*^*^*

>

>

>

>

>

>

>

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> #ygrp-sponsor .ad a:hover{

> text-decoration:underline;

> }

> #ygrp-sponsor .ad p{

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> }

> o {font-size:0;}

> .MsoNormal {

> margin:0 0 0 0;

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> #ygrp-text tt{

> font-size:120%;

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> blockquote{margin:0 0 0 4px;}

> .replbq {margin:4;}

> -->

>

>

>

>

>

>

>

>

>

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