Re: sadly back on all the meds :(

[Guest guest]

,

Never feel stupid about this disease! Clearly, there are still a few

surprises waiting for even the experts. The rule seems to be that there

are no rules. Bone density testing is very important and let us know what

your doctor says about the stages. I hope that she is a little more

communicative. I thought that it was mostly male doctors who are

dismissive, and there you are, with a woman doctor who also doesn't

communicate well. But, that's THEIR problem and they have to get over it.

Take care,

Geri

[Guest guest]

Elena,

I have told my story before and don't want to bore anyone, if you would

like to write direct to me at milko@... I would be more than happy

to discuss things with you without taking up the groups space.

SueB.

----------

> From: ELENA PHEASANT <brit71@...>

> onelist

> Subject: Re: [ ] sadly back on all the meds

> Date: Tuesday, 18 May 1999 0:33

>

> From: ELENA PHEASANT <brit71@...>

>

> Sue

> Yep, its just like my case. I am always interested to know if someone

> has a similar case to mine what there lab results were, so i can

> compare. What stage AIH are you? and what were your lab/biopsy results.

>

> I still am not too sure what the sludge means. Im sorry you had to go

> through all that. Having you gb removed all for nothing?!

> Thanks for responding, and would love to hear your story.

> Elena

>

> --- milko <milko@...> wrote:

> > From: " milko " <milko@...>

> >

> > Elena,

> > I was told originally that I had " sludge " in my

> > gallbladder and that it

> > should be removed. That is when everything went

> > wrong, the doc clipped the

> > bile ducts and bile leaked internally. Other docs

> > since told me I should

> > never had had my gallbladder out at all. My liver

> > area is always tender

> > too. I suffer extreme pain most of the time. When

> > probed by docs it

> > actually goes into like a spasm and is extremely

> > painful. That is why I say

> > that the liver can cause pain, contrary to what the

> > docs say.

> > SueB.

> >

> > ----------

> > > From: ELENA PHEASANT <brit71@...>

> > > onelist

> > > Subject: Re: [ ] sadly back on all

> > the meds

> > > Date: Saturday, 15 May 1999 1:02

> > >

> > > From: ELENA PHEASANT <brit71@...>

> > >

> > > Geri

> > > Thats interesting, i was thinking that it cant be

> > from my liver as

> > > there is only mild inflamation. In regards to my

> > gallbladder, I had an

> > > ultrasound and it didnt show any stones or

> > anything;however, they

> > > spotted sludge in my gallbladder. I dont know what

> > that means, does

> > > anyone know? Could it be anything to do with AIH.

> > Also, my liver is

> > > tender to the toach. When i prode it or when a

> > doctor prodes it, its a

> > > little painful. Has anyone with AIH experience

> > that?

> > > Thanks for your response,Informative as always.

> > > Take care

> > > Elena

> > >

> > > --- Geri Spang <spangs@...> wrote:

> > > > From: Geri Spang <spangs@...>

> > > >

> > > > Elena,

> > > > My doctor told me that cirrhosis actually causes

> > the

> > > > liver to shrink.

> > > > That's one of the reasons he concluded that the

> > pain

> > > > I get on my left side

> > > > isn't from the left lobe of my liver. It's my

> > > > understanding that you don't

> > > > feel pain from the liver itself, but I imagine

> > > > inflammation causes pain. I

> > > > had no pain on my right side even at my worst.

> > > > Could it be your gall

> > > > bladder? My Mom had a badly inflamed and

> > eventually

> > > > infected gall bladder

> > > > and she was in severe pain, but they didn't

> > identify

> > > > the problem until they

> > > > did exploratory surgery. I certainly hope

> > nothing

> > > > that extreme is going on

> > > > with you and anyhow, you have good doctors and

> > she

> > > > ddn't.

> > > > Take care,

> > > > Geri

> > > >

> > > >

> > >

> >

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> > > Elena Pheasant

> > >

> > >

> > _________________________________________________________

> > >