Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Tammy, Keep your chin up. My heart goes out to you. Sue B. ---------- > From: TammyAnnG@... > onelist > Subject: [ ] sadly back on all the meds > Date: Wednesday, 12 May 1999 19:46 > > From: TammyAnnG@... > > I wanted to let you know that I went to my hepatologist yesterday and sadly I > am out of any " remission " that I thought I may be in.....my labs are in the > 200 and 400 ranges......my gamma is 2.2.......he has made arrangements to > restart me on Prednison/Imuran .....keep me on actigal and start me on some > type of anti depressant like Paxil in the hopes it will combat some of the > horrible " prednisone psychosis " I get......I feel badly that I have to do > this but I guess I knew it was inevidable......I quit my job yesterday so I > won't have the stress of trying to " function " without screwing things > up......I have trouble even computing simple math on the drugs......I have > terouble driving on the meds.......he also told me he feels a liver tx is > inevidable as well.......sad day in my house.....Tammy/AIH/NY > > ------------------------------------------------------------------------ > ONElist: the best source for group communications. > > Join a new list today! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to -subscribeonelist > 2.) To UNsubscribe send to -unsubscribeonelist > 3.) Digest e-mail format send to -digestonelist > 4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hi! Your E-mail reminded me of a question I wanted to ask everyone. My doctor was hesitant to diagnose me with AIH at the beggining. This is because my gamma level was fine;however, my enzymes were slightly elevated,ANA 1:320 speckled, smooth muscle 1:160. Is it possible to not have elevated gamma and still have AIH? Has anyone been diagnosed with AIH and not have elevated gamma? Thanks Elena --- TammyAnnG@... wrote: > From: TammyAnnG@... > > I wanted to let you know that I went to my > hepatologist yesterday and sadly I > am out of any " remission " that I thought I may be > in.....my labs are in the > 200 and 400 ranges......my gamma is 2.2.......he has > made arrangements to > restart me on Prednison/Imuran .....keep me on > actigal and start me on some > type of anti depressant like Paxil in the hopes it > will combat some of the > horrible " prednisone psychosis " I get......I feel > badly that I have to do > this but I guess I knew it was inevidable......I > quit my job yesterday so I > won't have the stress of trying to " function " > without screwing things > up......I have trouble even computing simple math on > the drugs......I have > terouble driving on the meds.......he also told me > he feels a liver tx is > inevidable as well.......sad day in my > house.....Tammy/AIH/NY > > ------------------------------------------------------------------------ > ONElist: the best source for group communications. > > Join a new list today! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Me again! I just wanted to say that I am sorry about your present situation. I cant imagine what your feeling. Im presently on Paxil and Serzone. Paxil is a very good drug and im sure it will help you emotionally. I was actually worried that I was doing more harm to my liver by taking those drugs. But it seems that its not the case? All our thoughts are with you and your family. I am wishing that after taking the drugs again you will get alot better. Take care of yourself Elena --- TammyAnnG@... wrote: > From: TammyAnnG@... > > I wanted to let you know that I went to my > hepatologist yesterday and sadly I > am out of any " remission " that I thought I may be > in.....my labs are in the > 200 and 400 ranges......my gamma is 2.2.......he has > made arrangements to > restart me on Prednison/Imuran .....keep me on > actigal and start me on some > type of anti depressant like Paxil in the hopes it > will combat some of the > horrible " prednisone psychosis " I get......I feel > badly that I have to do > this but I guess I knew it was inevidable......I > quit my job yesterday so I > won't have the stress of trying to " function " > without screwing things > up......I have trouble even computing simple math on > the drugs......I have > terouble driving on the meds.......he also told me > he feels a liver tx is > inevidable as well.......sad day in my > house.....Tammy/AIH/NY > > ------------------------------------------------------------------------ > ONElist: the best source for group communications. > > Join a new list today! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Thank you , Id really appreciate that. Elena --- " .Hutchinson " <brandy.hutchinson@...> wrote: > From: " .Hutchinson " > <brandy.hutchinson@...> > > Elenna > > I'm gonna ask my doctor that, I know that some of my > tests were normal, > at diagnoses that's why it took so long for a > diagnoses, and through out > the years, some test have risen and others stayed > normal (which was not > normal) he was gonna change the diagnoses recently > and tried thought it > could be something else, but he tested for others > and he sticking with > aih for now?? I'll have him clarify that next > appointment for you, I'll > take ur email!! > > > > > ------------------------------------------------------------------------ > Are you hogging all the fun? > > Friends tell friends about ONElist! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hi Tammy, I've been taking paxil 40mg/day, for about 2 years. It has made a huge difference in my moods. I lost my job about 20 months ago, it was difficult, but I too, knew it was inevitable. Hang in there, it will get better. Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Elenna I'm gonna ask my doctor that, I know that some of my tests were normal, at diagnoses that's why it took so long for a diagnoses, and through out the years, some test have risen and others stayed normal (which was not normal) he was gonna change the diagnoses recently and tried thought it could be something else, but he tested for others and he sticking with aih for now?? I'll have him clarify that next appointment for you, I'll take ur email!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Tammy, I am saddened with you. I was hopeful that things would go well and you could stay off the meds. At least you know you can take them. Will keep you in my thoughts and prayers Tami (AIH) chollyfam@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 TammyAnn: Sorry to hear that you are sick again. I have that in the back of my mind everytime I try to get off the Prednisone. I hoping that the new medicine will help but I have been soooooo tired and crabby. Today I slept for two hours and yesterday it was three hours. My naps are not getting short but longer. Hang In There We Are Here For You!!!! Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Don: Did you lose your job because of your health? I just wondering due to the status at work right now. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Tammy, I'm so sorry to hear about the bad news. How long were you in remission? How long were you off the meds? I was told that despite remission my doctors don't intend to take me off Imuran (50 mgs. from the beginning) and if my labs begin to rise, they'll first try to stop the process by increasing the Imuran. If that doesn't work, I suppose it means back to Prednisone. But, each liver disease center seems to have their own program and they don't all follow the same protocol. Why are you taking Actigal? Do you also have some bile duct problems? I asked my doctor about it and he said I don't need it. I never did have " prednisone psychosis " , or maybe I did and everyone but me noticed it. I was very irritable but that made sense, since I felt lousy. Actually, pred acted almost like a stimulant for me when I went back on it last February (after only one month off of it). I was so upbeat you'd have thought I'd won the lottery. I think that it was because of the relief from all that joint and muscle pain and the loss of weight. I did have some trouble concentrating when I was driving around town but seemed to focus okay on the highway. Good thing, because I tend to push the speed limits. Was this your first remission? Sorry, I don't remember but I think you've told us all of that before. Does your doctor think that a transplant is inevitable because a relapse means that the progression of liver deterioration can't be controlled? Naturally, this is very interesting to me since I'm also in remission. Do you ever have liver pain? I never have until recently, when I feel just a slight pain now and then on my right side, where I think my liver is. But, if I'm in remission, nothing should be hurting. Who knows, anyhow. I get so weary being anxious about these things. And, don't we all? I do hope that you go into remission again and soon. I'll be thinking and worrying about you. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Tammy, so sorry to hear your news. I feel for you and how disappointed you must be. But I think on the bright side, you quitting your job can only be a positive change for you and your healing. I hope that transition goes well. How long were you off of meds and in remission? A hug to you, Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Geri Isnt that strange? I have mild AIH and I have liver pain and is also tender especially when pressing on it. I would have thought it would hurt only if you had a more severe case of AIH Elena --- Geri Spang <spangs@...> wrote: > From: Geri Spang <spangs@...> > > Tammy, > I'm so sorry to hear about the bad news. How long > were you in remission? > How long were you off the meds? I was told that > despite remission my > doctors don't intend to take me off Imuran (50 mgs. > from the beginning) and > if my labs begin to rise, they'll first try to stop > the process by > increasing the Imuran. If that doesn't work, I > suppose it means back to > Prednisone. But, each liver disease center seems to > have their own program > and they don't all follow the same protocol. > > Why are you taking Actigal? Do you also have some > bile duct problems? I > asked my doctor about it and he said I don't need > it. I never did have > " prednisone psychosis " , or maybe I did and everyone > but me noticed it. I > was very irritable but that made sense, since I felt > lousy. Actually, pred > acted almost like a stimulant for me when I went > back on it last February > (after only one month off of it). I was so upbeat > you'd have thought I'd > won the lottery. I think that it was because of the > relief from all that > joint and muscle pain and the loss of weight. I did > have some trouble > concentrating when I was driving around town but > seemed to focus okay on > the highway. Good thing, because I tend to push the > speed limits. > > Was this your first remission? Sorry, I don't > remember but I think you've > told us all of that before. Does your doctor think > that a transplant is > inevitable because a relapse means that the > progression of liver > deterioration can't be controlled? Naturally, this > is very interesting to > me since I'm also in remission. Do you ever have > liver pain? I never have > until recently, when I feel just a slight pain now > and then on my right > side, where I think my liver is. But, if I'm in > remission, nothing should > be hurting. Who knows, anyhow. I get so weary > being anxious about these > things. And, don't we all? > > I do hope that you go into remission again and soon. > I'll be thinking and > worrying about you. > > Take care, > Geri > > ------------------------------------------------------------------------ > Congratulations to " Trail Rider, " our latest ONElist > of the Week. > http://www.ONElist.com > Visit our homepage and share with us how ONElist is > changing YOUR life! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Elena, The tenderness is not connected with the amount of damage necessarily. It makes sense that it is more connected with the amount of inflammation. Is your inflammation high? Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 No, my inflammation is supposed to be mild. Thats why I dont understand the pain and tenderness of my liver Elena --- CREE8V1@... wrote: > From: CREE8V1@... > > Elena, > > The tenderness is not connected with the amount of > damage necessarily. It > makes sense that it is more connected with the > amount of inflammation. Is > your inflammation high? > > Roxanne > > ------------------------------------------------------------------------ > ONElist members are using Shared Files in great > ways! > > Are you? If not, see our homepage for details. > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Elena, My doctor told me that cirrhosis actually causes the liver to shrink. That's one of the reasons he concluded that the pain I get on my left side isn't from the left lobe of my liver. It's my understanding that you don't feel pain from the liver itself, but I imagine inflammation causes pain. I had no pain on my right side even at my worst. Could it be your gall bladder? My Mom had a badly inflamed and eventually infected gall bladder and she was in severe pain, but they didn't identify the problem until they did exploratory surgery. I certainly hope nothing that extreme is going on with you and anyhow, you have good doctors and she ddn't. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Elena, I'm reading your messages, and they may as well be my own! I'm newly diagnosed as well, and my biopsy showed no scarring or cirrhosis. I differ a little in that I have severe inflammation. My liver is also pretty tender, and I'm worried that aerobics will aggravate it. At the same time, I want to get on a steady exercise routine before starting the pred (to decrease the risk of weight gain). I'm struggling with the idea of putting these medicines in my body as well. Too many differing viewpoints on the subject. I think I'm going to really pay attention to what the liver specialist says, and go with that. I'm hoping to bring my levels down, and get off the meds as quickly as possible. Problem is, the herbals I'm taking are likely lowering my levels, so they may complicate the decision. I feel so much better taking them, though! Why can't this be easier? >From: ELENA PHEASANT <brit71@...> >Reply- onelist > onelist >Subject: Re: [ ] sadly back on all the meds >Date: Fri, 14 May 1999 08:34:04 -0700 (PDT) > >From: ELENA PHEASANT <brit71@...> > >Tami >Thanks for replying. At least I know im not imagining things. The pain >feels a little worse today. The pain is mainly below my right rib cage, >and I also have tenderness directly beneath the centre of my ribcage. >Occasionaly, i will have a stabbing pain on my left side. Now, I know >the liver isnt that big that it stretches to the left side. So i dont >know what all this pain means, I know its not inside my head. >Take care >Elena > >--- Chollyfam@... wrote: > > From: Chollyfam@... > > > > Elena, > > > > I, too, had a milder case of AIH, no cirrhosis, yet. > > I guess that isn't > > milder, just that they caught it earlier. But I did > > also experience > > tenderness in my upper right area. My liver was > > tender when prodded by the > > doctor at the examinations. Seems funny that we > > have the pain and our liver > > has less damage. Maybe it is our liver's signal > > that something is wrong and > > we better pay attention! > > > > Tami (AIH) chollyfam@... > > > > >------------------------------------------------------------------------ > > Where do some of the Internet's largest email lists > > reside? > > > > At ONElist - the most scalable and reliable service > > on the Internet. > > >------------------------------------------------------------------------ > > Please support the American Liver Foundation! > > > > 1.) To subscribe send e-mail to > > -subscribeonelist > > 2.) To UNsubscribe send to > > -unsubscribeonelist > > 3.) Digest e-mail format send to > > -digestonelist > > 4.) Normal e-mail format send to > > -normalonelist > > > >=== >Elena Pheasant > >_________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Elena, I, too, had a milder case of AIH, no cirrhosis, yet. I guess that isn't milder, just that they caught it earlier. But I did also experience tenderness in my upper right area. My liver was tender when prodded by the doctor at the examinations. Seems funny that we have the pain and our liver has less damage. Maybe it is our liver's signal that something is wrong and we better pay attention! Tami (AIH) chollyfam@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Geri Thats interesting, i was thinking that it cant be from my liver as there is only mild inflamation. In regards to my gallbladder, I had an ultrasound and it didnt show any stones or anything;however, they spotted sludge in my gallbladder. I dont know what that means, does anyone know? Could it be anything to do with AIH. Also, my liver is tender to the toach. When i prode it or when a doctor prodes it, its a little painful. Has anyone with AIH experience that? Thanks for your response,Informative as always. Take care Elena --- Geri Spang <spangs@...> wrote: > From: Geri Spang <spangs@...> > > Elena, > My doctor told me that cirrhosis actually causes the > liver to shrink. > That's one of the reasons he concluded that the pain > I get on my left side > isn't from the left lobe of my liver. It's my > understanding that you don't > feel pain from the liver itself, but I imagine > inflammation causes pain. I > had no pain on my right side even at my worst. > Could it be your gall > bladder? My Mom had a badly inflamed and eventually > infected gall bladder > and she was in severe pain, but they didn't identify > the problem until they > did exploratory surgery. I certainly hope nothing > that extreme is going on > with you and anyhow, you have good doctors and she > ddn't. > Take care, > Geri > > ------------------------------------------------------------------------ > Star Wars fans are using ONElist to share the fun. > http://www.ONElist.com > Are you? > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Tami Thanks for replying. At least I know im not imagining things. The pain feels a little worse today. The pain is mainly below my right rib cage, and I also have tenderness directly beneath the centre of my ribcage. Occasionaly, i will have a stabbing pain on my left side. Now, I know the liver isnt that big that it stretches to the left side. So i dont know what all this pain means, I know its not inside my head. Take care Elena --- Chollyfam@... wrote: > From: Chollyfam@... > > Elena, > > I, too, had a milder case of AIH, no cirrhosis, yet. > I guess that isn't > milder, just that they caught it earlier. But I did > also experience > tenderness in my upper right area. My liver was > tender when prodded by the > doctor at the examinations. Seems funny that we > have the pain and our liver > has less damage. Maybe it is our liver's signal > that something is wrong and > we better pay attention! > > Tami (AIH) chollyfam@... > > ------------------------------------------------------------------------ > Where do some of the Internet's largest email lists > reside? > > At ONElist - the most scalable and reliable service > on the Internet. > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Elena, As for my experience---I also had a lot of tenderness on my upper right side and still do at times. About four months though after my diagnosis I had gal bladder surgery. They knew it was my gal bladder causing my pain, but couldn't figure out what was going on with it. The last test they did had a result that it was just about to quit functioning. The ducts were very clogged and couldn't perform properly. As for the pain I still have it, but not nearly as bad. I had it in the middle under my rib cage too and they even checked for a bleeding ulcer, but nothing. So I guess we all have a few different things that accompany our AIH. Just thought I would share this with you. Hope all gets better for you. Dorothy > Re: [ ] sadly back on all the meds > > From: ELENA PHEASANT <brit71@...> > > Geri > Thats interesting, i was thinking that it cant be from my liver as > there is only mild inflamation. In regards to my gallbladder, I had an > ultrasound and it didnt show any stones or anything;however, they > spotted sludge in my gallbladder. I dont know what that means, does > anyone know? Could it be anything to do with AIH. Also, my liver is > tender to the toach. When i prode it or when a doctor prodes it, its a > little painful. Has anyone with AIH experience that? > Thanks for your response,Informative as always. > Take care > Elena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 ELENA PHEASANT wrote: > > In regards to my gallbladder, I had an > ultrasound and it didnt show any stones or anything;however, they > spotted sludge in my gallbladder. I dont know what that means, does > anyone know? Could it be anything to do with AIH. Also, my liver is > tender to the toach. When i prode it or when a doctor prodes it, its a > little painful. I have had every gallbladder test imaginable, no stones or anything, except that sludge, lots of it. I dont have aih, but do have psc. My liver is also sore to touch and you're right the drs. always manage to find that very tender spot. I have had lots of back pains, both sides and they say that is liver pain, that it doesn't necessarily have to be right in the liver area. Elena, if you're dr. is the one that said memory is no problem tell him to check again. It most definitely is cause by the excess bile. I had no idea of that, and made jokes when I first started losing mine, that the bile had gone to my brain. (after seriously worried that alzheimers had set it) That is one of the first complaints I had. And.....one of the first questions every dr. asked. I was shocked to find my joke wasn't so funny! Does anyone have trouble with sleeping at night? Tat is also a problem I have. I stay awake all day but still can not sleep at night. Drs. said that is a common symptom also, sleep reversal. And I was blaming my husbands snoring!!!!!! PSC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Thanks for your reply. I never heard of that. How does sludge in the gall bladder cause memory loss? Do you think that sludge is more associated with PSC rather than AIH? My head is so fuzzed lately. As you see from my previous postings, I can no longer spell, my memory is terrible and i have diffuculty getting words out. I went to a neurologist about this and I had a MRI and EEG. He said that the eeg was abnormal, saying the background is slow? I dont know what that means. Anyway now hes ordered a spinal tap, which im worried about. I wonder if what your talking about would show on the spinal tap. How did your doctor confirm that you memory loss was due to the gall sludge? Sorry about all the question, Thanks for your help Elena --- <lparker@...> wrote: > From: <lparker@...> > > ELENA PHEASANT wrote: > > > > In regards to my gallbladder, I had an > > ultrasound and it didnt show any stones or > anything;however, they > > spotted sludge in my gallbladder. I dont know what > that means, does > > anyone know? Could it be anything to do with AIH. > Also, my liver is > > tender to the toach. When i prode it or when a > doctor prodes it, its a > > little painful. > > I have had every gallbladder test imaginable, no > stones or anything, > except that sludge, lots of it. I dont have aih, > but do have psc. My > liver is also sore to touch and you're right the > drs. always manage to > find that very tender spot. I have had lots of back > pains, both sides > and they say that is liver pain, that it doesn't > necessarily have to be > right in the liver area. Elena, if you're dr. is > the one that said > memory is no problem tell him to check again. It > most definitely is > cause by the excess bile. I had no idea of that, > and made jokes when I > first started losing mine, that the bile had gone to > my brain. (after > seriously worried that alzheimers had set it) That > is one of the first > complaints I had. And.....one of the first > questions every dr. asked. > I was shocked to find my joke wasn't so funny! > > Does anyone have trouble with sleeping at night? > Tat is also a problem > I have. I stay awake all day but still can not > sleep at night. Drs. > said that is a common symptom also, sleep reversal. > And I was blaming > my husbands snoring!!!!!! > > PSC > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list > members? > > Try ONElist's Shared Calendar to organize events, > meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Hi , I wonder if its PSC I have and not AIH. Your symptoms are the same as mine! What are the diagnostic tests to determine PSC, such as blood lab work. What was your lab results. I am interested to know. My head is kind of funky at the moment. As you know I cant spell, my memory is bad and I find it hards to get some words out. My EEG showed that the background was slow, I dont know what that means,but my neurologist is giving me a spinal tap. Do you know if a spinal tap would show PSC/bile etc. How does the bile affect the memory and how did your doctor diagnos the cause of your memory loss and your psc Sorry about all the questions, its just your case seems so similar to mine Thanks for your reply Elena --- <lparker@...> wrote: > From: <lparker@...> > > ELENA PHEASANT wrote: > > > > In regards to my gallbladder, I had an > > ultrasound and it didnt show any stones or > anything;however, they > > spotted sludge in my gallbladder. I dont know what > that means, does > > anyone know? Could it be anything to do with AIH. > Also, my liver is > > tender to the toach. When i prode it or when a > doctor prodes it, its a > > little painful. > > I have had every gallbladder test imaginable, no > stones or anything, > except that sludge, lots of it. I dont have aih, > but do have psc. My > liver is also sore to touch and you're right the > drs. always manage to > find that very tender spot. I have had lots of back > pains, both sides > and they say that is liver pain, that it doesn't > necessarily have to be > right in the liver area. Elena, if you're dr. is > the one that said > memory is no problem tell him to check again. It > most definitely is > cause by the excess bile. I had no idea of that, > and made jokes when I > first started losing mine, that the bile had gone to > my brain. (after > seriously worried that alzheimers had set it) That > is one of the first > complaints I had. And.....one of the first > questions every dr. asked. > I was shocked to find my joke wasn't so funny! > > Does anyone have trouble with sleeping at night? > Tat is also a problem > I have. I stay awake all day but still can not > sleep at night. Drs. > said that is a common symptom also, sleep reversal. > And I was blaming > my husbands snoring!!!!!! > > PSC > > ------------------------------------------------------------------------ > Having difficulty getting " in synch " with list > members? > > Try ONElist's Shared Calendar to organize events, > meetings and more! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Hi Great to hear from you. Your case sounds the same as mine. Id be interested to know what your lab results were. I wouldnt worry to much about the aerobics, as long as you dont exhaust yourself. I wish i could be like you, its just i have no energy or motivations to exercise. Take care Elena --- emily simpson <esimpson7@...> wrote: > From: " emily simpson " <esimpson7@...> > > Elena, > > I'm reading your messages, and they may as well be > my own! I'm newly > diagnosed as well, and my biopsy showed no scarring > or cirrhosis. I differ > a little in that I have severe inflammation. My > liver is also pretty > tender, and I'm worried that aerobics will aggravate > it. At the same time, > I want to get on a steady exercise routine before > starting the pred (to > decrease the risk of weight gain). I'm struggling > with the idea of putting > these medicines in my body as well. Too many > differing viewpoints on the > subject. I think I'm going to really pay attention > to what the liver > specialist says, and go with that. I'm hoping to > bring my levels down, and > get off the meds as quickly as possible. Problem > is, the herbals I'm taking > are likely lowering my levels, so they may > complicate the decision. I feel > so much better taking them, though! Why can't this > be easier? > > > > >From: ELENA PHEASANT <brit71@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] sadly back on all the > meds > >Date: Fri, 14 May 1999 08:34:04 -0700 (PDT) > > > >From: ELENA PHEASANT <brit71@...> > > > >Tami > >Thanks for replying. At least I know im not > imagining things. The pain > >feels a little worse today. The pain is mainly > below my right rib cage, > >and I also have tenderness directly beneath the > centre of my ribcage. > >Occasionaly, i will have a stabbing pain on my left > side. Now, I know > >the liver isnt that big that it stretches to the > left side. So i dont > >know what all this pain means, I know its not > inside my head. > >Take care > >Elena > > > >--- Chollyfam@... wrote: > > > From: Chollyfam@... > > > > > > Elena, > > > > > > I, too, had a milder case of AIH, no cirrhosis, > yet. > > > I guess that isn't > > > milder, just that they caught it earlier. But I > did > > > also experience > > > tenderness in my upper right area. My liver was > > > tender when prodded by the > > > doctor at the examinations. Seems funny that we > > > have the pain and our liver > > > has less damage. Maybe it is our liver's signal > > > that something is wrong and > > > we better pay attention! > > > > > > Tami (AIH) chollyfam@... > > > > > > > >------------------------------------------------------------------------ > > > Where do some of the Internet's largest email > lists > > > reside? > > > > > > At ONElist - the most scalable and reliable > service > > > on the Internet. > > > > >------------------------------------------------------------------------ > > > Please support the American Liver Foundation! > > > > > > 1.) To subscribe send e-mail to > > > -subscribeonelist > > > 2.) To UNsubscribe send to > > > -unsubscribeonelist > > > 3.) Digest e-mail format send to > > > -digestonelist > > > 4.) Normal e-mail format send to > > > -normalonelist > > > > > > >=== > >Elena Pheasant > > > >_________________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Hi Elena, I'm not too sure if aerobics are going to happen. Today, my energy level was down, and I'm getting light-headed and bloated again. Do you, or anyone else, know anything that eases the bloating? I hate it! Anyways, I'm not sure about my ANA levels (I'm only learning about those through this site!). I know that my ALT level was around 400, and my AST around 250-300. Is this what you meant by my lab results? I'm thinking of communing more with nature, and maybe taking a few walks. Good stress reliever, and some movement at the same time! Thanks for your reply! PS What are your levels? >From: ELENA PHEASANT <brit71@...> >Reply- onelist > onelist >Subject: Re: [ ] sadly back on all the meds >Date: Fri, 14 May 1999 12:48:13 -0700 (PDT) > >From: ELENA PHEASANT <brit71@...> > >Hi >Great to hear from you. Your case sounds the same as mine. Id be >interested to know what your lab results were. I wouldnt worry to much >about the aerobics, as long as you dont exhaust yourself. I wish i >could be like you, its just i have no energy or motivations to >exercise. >Take care >Elena > >--- emily simpson <esimpson7@...> wrote: > > From: " emily simpson " <esimpson7@...> > > > > Elena, > > > > I'm reading your messages, and they may as well be > > my own! I'm newly > > diagnosed as well, and my biopsy showed no scarring > > or cirrhosis. I differ > > a little in that I have severe inflammation. My > > liver is also pretty > > tender, and I'm worried that aerobics will aggravate > > it. At the same time, > > I want to get on a steady exercise routine before > > starting the pred (to > > decrease the risk of weight gain). I'm struggling > > with the idea of putting > > these medicines in my body as well. Too many > > differing viewpoints on the > > subject. I think I'm going to really pay attention > > to what the liver > > specialist says, and go with that. I'm hoping to > > bring my levels down, and > > get off the meds as quickly as possible. Problem > > is, the herbals I'm taking > > are likely lowering my levels, so they may > > complicate the decision. I feel > > so much better taking them, though! Why can't this > > be easier? > > > > > > > > >From: ELENA PHEASANT <brit71@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ] sadly back on all the > > meds > > >Date: Fri, 14 May 1999 08:34:04 -0700 (PDT) > > > > > >From: ELENA PHEASANT <brit71@...> > > > > > >Tami > > >Thanks for replying. At least I know im not > > imagining things. The pain > > >feels a little worse today. The pain is mainly > > below my right rib cage, > > >and I also have tenderness directly beneath the > > centre of my ribcage. > > >Occasionaly, i will have a stabbing pain on my left > > side. Now, I know > > >the liver isnt that big that it stretches to the > > left side. So i dont > > >know what all this pain means, I know its not > > inside my head. > > >Take care > > >Elena > > > > > >--- Chollyfam@... wrote: > > > > From: Chollyfam@... > > > > > > > > Elena, > > > > > > > > I, too, had a milder case of AIH, no cirrhosis, > > yet. > > > > I guess that isn't > > > > milder, just that they caught it earlier. But I > > did > > > > also experience > > > > tenderness in my upper right area. My liver was > > > > tender when prodded by the > > > > doctor at the examinations. Seems funny that we > > > > have the pain and our liver > > > > has less damage. Maybe it is our liver's signal > > > > that something is wrong and > > > > we better pay attention! > > > > > > > > Tami (AIH) chollyfam@... > > > > > > > > > > > >------------------------------------------------------------------------ > > > > Where do some of the Internet's largest email > > lists > > > > reside? > > > > > > > > At ONElist - the most scalable and reliable > > service > > > > on the Internet. > > > > > > > >------------------------------------------------------------------------ > > > > Please support the American Liver Foundation! > > > > > > > > 1.) To subscribe send e-mail to > > > > -subscribeonelist > > > > 2.) To UNsubscribe send to > > > > -unsubscribeonelist > > > > 3.) Digest e-mail format send to > > > > -digestonelist > > > > 4.) Normal e-mail format send to > > > > -normalonelist > > > > > > > > > >=== > > >Elena Pheasant > > > > > >_________________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
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