Hi

October 16, 2001

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October 16, 2001

Get your FREE download of MSN Explorer at http://explorer.msn.com

October 16, 2001

Hi,

Yes I had a liver biopsy in September and they told me

that there was no liver damage, which I was very

thankful for. I am a 21 year old college senior and

was very upset when they diagnosed me. I have lowered

my Prednisone to 15mg and I started on azathioprine a

week ago at 50 mg. I get bloodwork done tomorrow to

see how I am reacting to the medicine. I haven't had

many side effects, just some abdominal pain every once

in a while. I was just diagnosed about a month and a

half ago, so I am very thankful that the medicine is

working so well.

Have a great day!

--- jackie paterson <jaknjills@...> wrote:

<HR>

<P>hi linda, i`m new to this group also. I was

diagnosed with aih just over 2 years ago, and so far

havn`t met anyone who has the same illness, so it was

good for me to find this group.</P>

<P>I`ve been on prednisolone for 2 years now. The

doctors tried me on azathoprine twice but each time it

made me sick. I hope you can get on with it better.

I`ve heard people who are tolerant to it start to feel

much better after six months or so. </P>

<P>If you have any questions i`ll try to help, i`ve

found a few web sites since i started this

journey.</P>

<P>Have you had a biopsy? & nbsp; I hope your starting

to feel better with the medications. & nbsp;Take care.

jacqui & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

</P>

<DIV></DIV> & gt;From: lindsayud@...

<DIV></DIV> & gt;Reply-To:

<DIV></DIV> & gt;

<DIV></DIV> & gt;Subject: [ ] HI

<DIV></DIV> & gt;Date: Tue, 16 Oct 2001 18:45:28 -0000

<DIV></DIV> & gt;

<DIV></DIV> & gt;Hi!

<DIV></DIV> & gt;I am new to the group and newly

diagnosed with AIH. I am not really

<DIV></DIV> & gt;sure how this group thing works, so I

thought I would try it out. I

<DIV></DIV> & gt;have been on Prednisone for about a

month now and I just started with

<DIV></DIV> & gt;Azathioprine too. If anybody has any

advice or would like to chat,

<DIV></DIV> & gt;just let me know!

<DIV></DIV> & gt;

<DIV></DIV></div><br clear=all><hr>Get your FREE

download of MSN Explorer at <a

href='http://go.msn.com/bql/hmtag_itl_EN.asp'>http://explorer.msn.com</a><br>

<br>

<td align=center><font size= " -1 "

color=#003399><b>

October 16, 2001

Hi Lucy,

I was just wondering if you have had any long term

side effects from azathioprine? My doctor said that I

would probably be on low doses of Prednisone for at

least a year and then if the azathioprine is working

well, possibly go off prednisone. Does your doctor

think you will be on Azathioprine for the rest of your

life?

Have a great day!

--- flatcat9@... wrote:

> In a message dated 10/16/01 2:16:23 PM Pacific

> Daylight Time,

> roath@... writes:

>

> >

> > Hello, I am also new to the group, and I have

> gotten alot of advice

> > already.

> > I have had AIH now for 4 years and I was on

> prednisone for about 2 years

> > and

> > aziothorpine for the 4 years if you've got

> questions maybe I can help with

> > some answers.

> >

> > Lucy.

> >

>

> Great! We're always looking for ideas, sources of

> information.

> Harper (AIH 5/00)

>

__________________________________________________

October 17, 2001

, My doctor did tell me I would have to take the aziothorpine

forever just in case. It's not bad though, if I have any effects from the

medication I hav'nt noticed them. I have noticed though it is hard to loose

the weight I gained from the prednisone, which was about 40 pounds. I do

think the prednisone gave me more trouble with side effects than the other

but I always knew that the prednisone was to treat the inflamation of my

liver and the aziothorpine was to slow down my immune system so that I would

not get inflamation. And to me I was glad to take the aziothorpine if it

meant less prednisone. I do have odd things now and then and I am very

choosy on which one's to tell the doctor only because I always got the same

response of " Prednisone and imuran can do that to some people " some of my

odd things are- Itchy skin , Dry skin which might be why I'm Itchy? Mood

swings, Tiredness, A feeling of being weak., Sometimes my bones in my feet

hurt .( I did go to the doctor for this one because I could'nt walk) He

could not find anything wrong . Recently, My fingers tingled so much that I

did not want to touch anything. Again he could not find any connection or

anything wrong with my fingers. My point is I think that it is powerful

medication and these things come and GO and you just have to decide for

yourself what you want to address and not. I do think it is good to tell

your doctor of the side effects for one day maybe we will all get to be in a

study and all of these things plus other things that others have expierienced

might actually be called side effects of the medication, or the disease

itself. There is just to many of us who have these odd things to others but

not to ourselves . YOU JUST HAVE TO BE STRONG MINDED AND GO WITH IT. I

truely believe you are not given anything that you can't handle.

October 17, 2001

In a message dated 10/17/01 9:25:29 AM Pacific Daylight Time, roath@... writes:

I do think it is good to tell your doctor of the side effects

I think there is always the danger that we will assume that something is a Prednisone side effect that is really a symptom of an unrelated, undetected illness. We can't afford to let another illness slip in, untreated!

I thought I "knew" what was causing my problems before I was diagnosed, so I didn't mention those symptoms to a doctor. (I thought I itched from seasonal allergies and was tired due to the demands of a miserable job. So, I didn't say a word until I turned orange the day of an annual checkup.) I don't want to do that sort of thing again!

But, yes, generally my doctor just stares at me blankly when I say I'm tired and forgetful and haven't been able to lose weight.

Harper (AIH 5/00)

October 30, 2001

Thank you for the e-mail Jen. I think half the battle of hyper-t is just

getting over thinking that there are a million things wrong in the body. If

nothing else, that is what this web site has done for me-given me piece of

mind. Knowing that so many of us experience the same symptoms is very mind

easing.

I have gone to many different doctors (yes, even endo's) and they don't know

anything about this disease. Only the people who have gone through it do and

that is why this web-site is so great. Take care of yourself and I hope that

you beat this thing, I plan to.

November 1, 2001

AndromedaGurl wrote:

> Now for the bad news - it does NOT always get rid of the joint pain, muscle

> aches, fatigue, etc.

> I have fibromyalgia and chronic fatigue among other miscellaneous sides

> haha.

>

Hi Alley

Well, you just answered a question I had. So you feel you have

chronic fatigue? In other words, you had active HepC and chronic

fatigue? Hmmmm, I think I do too. I haven't had treatment yet so I

don't know for sure. When I have an active day..the next day I'm

zonked. I slept 14 hours last night...feel better today, but I had a

dentist appt. yesterday and was feeling yuckie before I went. To me,

this sounds more like chronic fatigue which I was diagnosed with

before the HepC diagnosis. I was wondering how possible it is to have

both diseases?

Sorry you still have these ailments after treatment, although you're

lucky that the treatment worked! I know how you must feel physically,

esp with working too. ARGGGGGG.

Huggggs

Carol

November 1, 2001